Yorkshire and Humber Learning Disability Leadership Meeting

17th March 2014 in York Welcome and Introductions

Rosy Pope welcomed everyone to the meeting. She said she is chairing this meeting as the Lead Director for people with Learning Disabilities for the Association of Directors (ADASS) in Yorkshire and Humber.

Everyone introduced themselves. This meeting was about: Sharing ideas and good ways of checking outcomes and how we make a difference. Sharing updates on the joint Health & Social Care self-assessment and plans for making the changes that are needed.

What has happened since the last meeting?

Sam explained that since the last meeting we have shared with everyone a short report on what groups or networks are working to support people with learning disabilities. You can see a copy here: http://bit.ly/1fyt0Yc

The Joint Social Care and Health Self-Assessment and checking how we are making a difference
Jenny Anderton reminded everyone about the social care and health self-assessment that each area did last year. You can see Jennys presentation at : http://bit.ly/1sbxutm

Local areas are now doing their plans to make self assessment difference based on what the self assessment shows is most important to work on. Sam asked everyone to think about how they check if they are making a difference to peoples lives

The good ways of working and big messages people said are: Involvement of self advocates, parents and families from the very beginning How do we get the views or more people with learning disabilities Work together better asking, listening, doing Peer reviews & Quality checkers Peoples Parliaments (or similar) Advocacy either helping people to speak up for themselves independent advocates to speak for those that cant Consistency in measuring quality outcomes Refreshing Partnership Boards accountability, learn from things that dont go to plan We do not feel included or welcome in our community - Crisis training would be helpful to stay independent for self advocates Community Connectors worked Trust families and take risks to help people make a difference Lack of co-ordination and consistency in care delivery can result in serious harm Doing the Self Assessment Framework is a way of checking Bring back the creativity to personal budgets support assessors to think differently The role of NHS England in supporting local services is unclear to us Annual Health Checks/Health Passport really work

What is happening with the Winterbourne View National Programme

Rosy explained that Zandrea Stewart who works for the Winterbourne View Joint Improvement Programme cannot be at the meeting but she has sent an update Rosy went through that. You can see the presentation at: http://bit.ly/1jE6y1k The Joint Improvement Programme can offer some help for funding for regions to work on what they are finding hard in the Winterbourne View targets. We worked in groups to come up with the ideas. The big issues are: Training in supporting people in the community Involving people with learning disabilities and family carers Building up local services and review of our assessment/treatment model Advocacy have the right amount of different kinds of advocacy Person centred support and approaches & planning ajead Independent brokerage services The Legal Framework Health and Local Authorities working together Housing models Recognising need of people with learning disabilities who are parents Transitions from Childrens to Adults services Employment & jobs

What we will work on next together

Important for us to have as part of the next meeting People with Learning Disabilities influencing and being part of planning the agenda Different people from other places to share ideas The chance to find out information from other people Skills and knowledge sharing Think about how do we make sure what comes from these meetings helps decision making elsewhere Make it a chance to focus on important issues Ideas for future work together Areas bring in display stand Invite health Commissioners Change how we work together & talk so it is as equals

Work on together in the future: Employment: Winterbourne View Joint Improvement Programme targets Good support for people with Complex Needs including housing Reasonable Adjustments

Transition NHS England and the effect of what we are able to deliver

Rosy thanked everyone for coming to the meeting and working hard. At the end of these notes you can see all the work each group did

The date of the next meeting is 9th July from 9.30am 1pm

Feedback from the meeting

What was good: The company Very good venue Able to get to know other people Please sent out info put out in tables/venue name, in first correspondence Very informative session Good to network with like minded people Good to share ideas and learn from others Venue fine looking at other areas Meeting with enemy good Venue, times and refreshments okay Opportunity for discussion Great meeting new people Like the minimal use of powerpoint and being able to work in small groups and network Speakers good, not too much talking Great venue

 Useful to look at priorities Liked groupwork Useful to share information and listen to other ideas Topics very interesting I had my voice heard and listened too Groupworking and sharing ideas Venue was good, central and good refreshments Good interaction Useful information sharing with carers Talking to people and getting their opinion Venue easily accessible Friendly, informal yet professional Good discussion, good opportunity to share ideas Learned the York and N Yorks are working together If they can do it then why cant we do it

What could have been better Some of it felt we had been before discussed same things Someone with a Learning Disability to help present day Topics weve been here before Parking bit too far away but otherwise venue ok Sam talks too much its official! Tables too small Too long a morning without somewhere on site to get refreshments at the end

Who was at the meeting

Name Julie Arnold Jill Burton Norman Campbell Peter Choules Beverley Nelson Jackie Derrick Joseph Haigh North Lincs Area East Riding North Yorkshire & Humber Leeds East Riding

Maggie Kelly Liane Kirk Sue Lear Rowy Lodge Di Lofthouse Hugh Lundberg Mark McGeachy Pamela Mellor Tracy Mayerhoff Karen Midgley Craig Milburn Danielle Michelle Paul Moss Alison Owen Nicci Pearce Rosy Pope Alison Porter

York East Riding North Yorks Wakefield Harrogate Hull Hull East Riding Hull Calderdale Wakefield Leeds Hull Rotherham Wakefield East Riding East Riding

Frits Rab Jai Rea Jean Riley Ann Salter Andrew Spherink Janet Wright Mairead ODonnell Peter Collier Jane Wood Glynis Smith

North Yorkshire Wakefield North Yorkshire Hull Wakefield Leeds Bradford Doncaster Barnsley Doncaster

Apologies Ian Parkinson Barrie Warner Judith Wild John Williams Jayne Gilmour Ruth Jefferson North Yorkshire Wakefield South Yorkshire & Bassetlaw Area Team Rotherham Wakefield Barnsley

Yorkshire & Humber Leadership meeting March 2014 Outcomes making a difference? How we or others we know are checking on individual outcomes NYCC Questionnaire (but no explanation and not independent Reviews, Reassessments Support Plan (but people are worried that this is not happening) How we or others we know are checking on big outcomes for groups of people The good ideas we have heard and want to find out more about

CQC (we would like a link with CQC locally) Healthwatch Health and Wellbeing Board HT Group NYCC monitoring contracts, Baseline Assessment Visits

Parents and carers and self advocates would like independent people to share issues with, ore people who know them well to develop Support Plans like to know more Independent v- Support Planning Personal Health Budgets

More decision making on PB to be given to person (pre-paid card and guidance, need to be persons choice PB in York have become more accountable and finance driven which reduce innovation and creativity

What we will do next (who will do what?)

Any independent checking needs to link with CQC, Healthwatch, Health and Wellbeing Board We need to ensure that people are aware of CQC Standards Partnership Board to write to NYCC and CQC (via PCU) about having an independent peer review or link with their experts by experiences Make more use of parents, carers and self advocates I have a voice, listen to me Link with York Self Advocates Forum

Yorkshire & Humber Leadership meeting March 2014 Outcomes making a difference? How we or others we know are checking on individual outcomes Locally Health/Social Care sign up to quality standard but which one? Or a defined set of national standards How we or others we know are checking on big outcomes for groups of people The good ideas we have heard and want to find out more about

We require one Quality Assurance measures that encompasses the different ones out there at the moment Clarity of what the big outcomes are? JIP keeps us focused on what is required, nothing there to keep us focused on health outcomes, employment etc Role of NHS England is not helpful in terms of what they are willing to share too detached from local services

Multi-disciplinary approach to ensuring people going into A&T unit have a planned exit plan East Riding approach (Winterbourne Strategy Plan) Bradford involving NDTI to review current culture within A&T Unit

What we will do next (who will do what?) We require one defined quality standard Challenging the culture of Assessment/Treatment units from Retainment to Enablement Clarity of the role of NHS England to support more local services

Yorkshire & Humber Leadership meeting March 2014

Outcomes making a difference? - Doncaster How we or others we know are checking on individual outcomes X2 Specialist Case Managers for people in Specialist or out of authority placements Monitoring Care Providers Contracts Team How we or others we know are checking on big outcomes for groups of people The good ideas we have heard and want to find out more about

Partnership Board

Questionnaire for People with Learning Disability Questionnaire for Carers based on key parts of SAF (CHAD to do) Big SAF Day

Choice for All in Doncaster (CHAD) ESL Safer in Doncaster LD Health Sub-group Contract Monitoring Meetings with performance indicators

Individual Reviews Health Equality Framework Pilot

Monitoring H&SC Pl (DES, LES, CQuins)

 Healthwatch Annual Health Check Health Action Plan Traffic Light Assessment Safeguarding Adults Procedures X2 Health Liaison Posts What we will do next (who will do what?) The SAF Safeguarding Adults Board Safeguarding Childrens Board

Report back to PB and H&WBB about the results of SAF and the Action Planning work Do a Questionnaire and arrange a Big SAF Day for September with CHAD and Inclusion North Complete our Action Planning From SAF

Yorkshire & Humber Leadership meeting March 2014 Outcomes making a difference? How we or others we know are checking on individual outcomes New contract for care providers which will ensure care providers give feedback on individual experience Winterbourne Board looking at the experience of people who have been placed out of area receiving the review process Going into care How we or others we know are checking on big outcomes for groups of people The good ideas we have heard and want to find out more about

Our Say meetings opportunities for people to say what they are unhappy with. Members of Our Say ask their friends and colleagues for their experiences.

We Care magazine for carers Wakefields thinking about starting a magazine for self advocates HOT (Hear Our Thoughts) focus group monthly, speakers invited Work with local transport providers and develop video which is used to train bus drivers Can give people notebooks to keep a note of their experiences

Questionnaire

homes and asking people what they like or dislike about it (Rainbow reps) (Service user led quality checks)

Putting interviews with people with a learning disability talking about their experiences on the internet Safe Places local shops who are aware and will ring to call for help if needed

What we will do next (who will do what?) Meeting other Partnership Boards to see what they do Need to get better at hearing individual stories, good stories as well as where things havent gone well Look at self assessment and pull through actions for immediate action

Yorkshire & Humber Leadership meeting March 2014 Outcomes making a difference? How we or others we know are checking on individual outcomes Contract monitoring (Quality Standards Assessment) Self Directed Reviews (outcome based how does it feel for you) Development of quality checkers Peer reviews (colleges) Individual complaints How we or others we know are checking on big outcomes for groups of people The good ideas we have heard and want to find out more about

Public Health Audit Healthwatch Health and Wellbeing Board Partnership Boards and Subgroups

Peer reviews/support Quality Checkers Peoples Parliaments (or similar)

What we will do next (who will do what?) Need to improve information/data raise it with Boards etc As above Regional event with responsible agencies/boards re information and data, not just usual people