4th Annual Interprofessional

Case Study Conference

April12,2016
5:308:30PM
TheAlfredWhiteGym
AlbanyCollegeofPharmacy
Overview

Stephen Heywood was a self-taught architect and builder living in

Massachusetts who specialized in the renovation of old houses. In 1998, at
the age of 29, he was diagnosed with ALS. Shortly after his diagnosis,
Stephen met and married Wendy (Stacy) Heywood. They bore a son,
Alexander Stephen. Stephen had close relationships with his father, who
was a Professor of Mechanical Engineering, and his mother Peggy. His
S
brothers, James and Benjamin,
Stephen and their families were also very close. They
founded a social networking site for people with ALS and other life-
changing illnesses called PatientsLikeMe and a non-profit biotechnology
company called the ALS Therapy Development Institute. Stephen died in
2006 when his ventilator disconnected accidentally during the night. Today,
PatientsLikeMe has over 1000,000 members and covers more than 1200
health conditions. The research foundation is now called ALS Therapy
Development Foundation and is the worlds largest research and
development program focused on ALS.
 Interdisciplinary Case Study Discussion 4/12/2016

Panelists
Lisa Campo-Engelstein, PhD, Albany Medical College
Susan Calyer, OTR/L, ATR, ALS Regional Center
Shannon Donnell, RN, ALS Case Manager, ALS Regional Center
Ed Dick, LCSW, St. Peters ALS Regional Center Team
Roberta Miller, PhD, ALS Medical Director, ALS Regional Center
Kimberly Millett, ALS Caregiver & Volunteer
Karen Spinelli, RN, BSN, Operations Manager of ALS Center, St. Peters Hospital

Facilitators
*Debbie Allen, OTD, OTR/L, Occupational Therapy, TSC
Amy Barton Pai, PharmD, RPh, Pharmacy, ACP
Becky Bernhardt, OTD, OTR/L, Occupational Therapy, TSC
Jim Brennan, PT, PhD, MA, Physical Therapy, TSC
*Jeffrey Brewer, PharmD, RPh, Pharmacy, ACP
Alex Brix, OTS, Occupational Therapy Graduate Student, TSC
Madeline Cafiero, EdD, RN, FNP, Nursing, TSC
Ellen Cole, PhD, Psychology, TSC
*Laurae Coburn, PhD, Professional School Counseling, Esteves School of
Education, TSC
Brittany DelGrande, PTA, SDTP, Physical Therapy, TSC
Eileen FitzPatrick, DRPH, RD, Nutrition Science, TSC
Rachel Gibson, MS, OTR/L, CDPC/Rehab/OT Department, Office of Mental
Health
Donald Graves, PhD, Psychology, TSC
Lisa Greenwald, DNP, RN, Nursing, TSC
Victoria Greenwood, MS, RN, Nursing, TSC
Maria Griswald, PharmD, RPh, Pharmacy, ACP
Christopher Heatley, OTR/L, Occupational Therapy, TSC
*Nancy Hellman, DPT, PT, Physical Therapy, TSC
Kathleen Kennedy, MS, RN, Nursing, TSC
Amy LeFevre, PhD, Psychology, TSC
Danielle Lehman, MS, OTR/L, Sunnyview Hospital and Rehabilitation Center
Ireta London, OTD, MPH, OTR/L, Occupational Therapy Adjunct, TSC
John Macri, RPh, Pharmacy, ACP
Kathleen Marsch, MS, RN, Nursing, TSC
Katie Marschilok, RN, MS, Adjunct in Nursing, TSC
Brian Matthews, PharmD, RPh, Pharmacy, ACP
*Colleen McCrief, MS, RD, Nutrition Science, TSC
*Arlene McGuane, MS, RN, Nursing, TSC
*Nancy Michela, DA, RN, Nursing, TSC
Carrie Minahan, PT, DPT, MS, NCS, Physical Therapy, TSC
Marybeth Moran, MS, OTR/L, OT, Occupational Therapy Adjunct, TSC
Michelle Morgan, MS, RD, CND, Nutrition Science, TSC
Gayle Skawennio Morse, PhD, Licensed Psychologist, Psychology, TSC
Laura Stachnik, PharmD, RPh, Pharmacy, ACP
 Interdisciplinary Case Study Discussion 4/12/2016

Facilitators(continued)
Caroline Mosca, MS, RN, Nursing, TSC
Brittany Muir, PhD, Occupational Therapy, TSC
Tabitha Norris, MSRD, Stratton VA
Patricia OConnor. PhD, Psychology, TSC
Wendy Parker, PhD, ACP
John Polnak, PharmD, RPh, St. Peters Hospital
Gurpreet Singh, PhD, PT, Physical Therapy, TSC
Kiki Smith, MS, RN, Nursing, TSC
Matthew Stryker, PharmD, Pharmacy, ACP

*Members of the Interprofessional Case Conference Committee

Case Conference Overview

5:00-5:30 pm
Arrive at the Alfred White Gym (Albany College of Pharmacy) by 5:00 pm, sharp.
Find a seat at a table with a sticky note indicating your discipline.
Fill out the front page of the Evaluation Form Part A that you will find on the table. Do not put
your name on the form; you will be filling out the back, Part B at the end. This is anonymous and
voluntary.
5:45 5:55 pm
Welcome and Orientation

Jeffrey Brewer, PharmD, RPh

Associate Professor, Department of Pharmacy Practice
Director, Professional Affairs
School of Pharmacy and Pharmaceutical Science
Albany College of Pharmacy and Health Sciences

Barbara Thompson, OTD, LCSW, OTR/L

Professor, Department of Occupational Therapy
The Sage Colleges

Madeline Kennedy, Doctorate of Public Service, MS, RN

Adjunct Professor in Nursing
The Sage Colleges

This evening is dedicated in honor of Madeline Kennedy, RN, Adjunct Professor, The Sage Colleges
Madeline speaking on ALS: http://www.youtube.com/watch?v=q6XVLScDuO4&feature=youtu.be

5:55 6:05 pm
Question 1: Introduce yourself, state your discipline and tell why (briefly) you chose your
discipline. Then, from your disciplinary perspective, share your primary questions/concerns.
Each person at the table will have one minute to respond to this question using the talking stone
(10 minutes total).
 Interdisciplinary Case Study Discussion 4/12/2016

6:05 6:20 pm
Question 2: How do you see your professional role changing as the illness progresses?
Each person at the table will have one minute more-or-less to respond to this question using the
talking stone (15 minutes total). The remaining time can be used for open discussion.

6:20- 6:35 pm
Question 3: What do you perceive as the ethical issues that would need to be explored as a team?
What would you say to the family to make it a fully informed decision? How would your ethical
values impact your work?
Each person at the table will have one minute, more-or-less, to respond to this question using the
talking stone (15 minutes total). The remaining time can be used for open discussion.

6:35 6:50 pm
Question 4: What questions do you think the patient/family will have for you? How will you
respond?
Each person at the table will have one minute, more-or-less, to respond to this question using the
talking stone (15 minutes total). The remaining time can be used for open discussion.

6:50-7:05 pm
Question 5: What factors helped to shape this familys story? How might that be different for
another family with an ALS-diagnosed family member?
Each person at the table will have one minute, more-or-less, to respond to this question using the
talking stone (15 minutes total). The remaining time can be used for open discussion.
Think about your top three questions for the ALS team panel during the break. Please ask
students to pose the questions rather than the tables facilitator.

7:05-7:15 pm
BREAK

7:15-8:15 pm
St. Peters ALS Regional Center Team Panel

8:15 8:25 pm
Closing Remarks from the Panel

8:25-8:30 pm
Program Evaluation
Please complete Part B of the evaluation form (again, anonymous and voluntary).
Do not put your name on the form.
Put your completed evaluation form in the envelope at the table.

Thank you for your participation in our spring 2016 interdisciplinary case conference.
 Interdisciplinary Case Study Discussion 4/12/2016

Talking Stone
There is a stone at each table. We invite you to use it as a talking stone. The talking stone or
talking stick derived from the Native American tradition as a way to involve the community in a
deepened form of listening and dialogue. Now, it is used in other communities as a simple way to
structure conversations and deepen listening. Michael Murphy MD, co-founder of St. Peters Hospice,
introduced the talking stick to the hospice community as a way to engage staff in conversation about
their work with patients and families. Additionally, he began using it during family meetings, which
were routinely held with patients and families served by hospice. The founders of the ALS Center, many
of whom are part of the ALS Team today, brought the tradition of the talking stone with them to their
work with ALS patients and families. We invite you to use the talking stone in our work together
today.

Use of the talking stone is simple. When you have the stone you can speak (in this case we are limiting
the amount of time each person can speak). When you do not have the stone, just listen. Just listening is
not easy. You may find yourself planning your response or thinking about what you want to say rather
than listening to what someone else is saying. See if you can just listen carefully to what each person
at the table says. Youll hear much more. When the stone comes to you, take a moment to look at it, feel
it, notice for instance if it is warm or cold. These simple awareness exercises will ground you in the
present. Try and speak spontaneously rather than from a rehearsed script. There is no right answer.
There is no competition for the best answer. We are here to learn from each other. Nobody has the
whole picture. When you give the stone to the next person, dont worry about what you said or get lost
in evaluating your performance. Just listen to what the next person has to say.
 Interdisciplinary Case Study Discussion 4/12/2016

Since1988,St.Peter'sALSRegionalCenterhasbeenproviding
peoplewithAmyotrophicLateralSclerosis(ALS),sometimes
referredtoasLouGehrig'sdisease,andtheirfamilieswitha
comprehensive,specializedblendofservicesandresources.

Acompleterangeofspecialistsprovideamultidisciplinaryapproach
topatientvisitsatourconvenient,handicappedaccessiblecenterin
Albany.TheCenterprovidesbothmedicalandemotionalsupportto
helpmaintainqualityoflifethroughoutthecourseofthisdisease;
servingasamodelofcompassionandcareforsimilarprograms
nationally.

Staff

TheALSCenterisstaffedwithaninterdisciplinaryteamcomprised
ofmedicalprofessionalsfrombothSt.Peter'sHospitalandSt.Peter'sRehabilitationCenter.Theteamincludes:

an ALS physician;
specialized ALS nurses;
a respiratory therapist;
physical therapist;
occupational therapist;
speech pathologist;
social worker;
volunteer coordinator;
senior secretary; and
foundation associate.

How is the ALS Regional Center funded?

There is no charge for services provided directly by the ALS Center. Medicare, Medicaid and other
third-party medical insurance reimbursements are accepted forms of payment for physician and
rehabilitation services. The ALS Center is a program of St. Peters Hospital and receives no financial
assistance from any national organization. The center receives funding through individual and
corporate gifts, memorial donations and fundraisers. The Center relies on the generous
contributions of patients, families and others. Contributions are tax-deductible to the extent allowed
by law.

For information on how you can help to sustain the work of the ALS Center, please call
518-525-1629.