2014 Start Up
2014 Start Up
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Table of Contents
1. INTRODUCTION...................................................................................................................3
Background........................................................................................................................................3
1. Self-Employment ....................................................................................................................3
Disabilities.....................................................................................................................................3
2. START-UP Accomplishments............................................................................................15
START-UP/Florida Entrepreneurs..............................................................................................27
Stella's Story—Restaurant........................................................................................................28
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5. POLICY AND SYSTEMS BARRIERS AND FACILITATORS OF THE TESTED
INTERVENTIONS................................................................................................................30
Expected Barriers............................................................................................................................30
Unexpected Barriers.......................................................................................................................31
7. CONCLUSION......................................................................................................................36
8. APPENDICES........................................................................................................................37
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EXECUTIVE SUMMARY
During periods of unemployment, whether due to economic downturns, job loss or ongoing barriers to
employment, self-employment is a viable means to provide income, assets and other elements of self-sufficiency.
The Workforce Investment !ct (WI!), which authorizes DOL’s American Job Centers (AJCs) (formerly known as
One-Stop Career Centers), makes numerous references to self-employment and in fact lists self-employment as
an exit outcome for individuals receiving services authorized by WIA.
Congress provided $5,000,000 in the FY 2006 appropriation for the Department of Labor’s Office of Disability
Employment Policy (ODEP) to develop research-based policy and provide technical assistance to organizations
geared toward achieving sustainable self-employment outcomes for individuals with disabilities. Reflecting this, in
October 2006 ODEP initiated the Self-Employment Technical Assistance, Resources and Training (START-UP) self-
employment program. Four cooperative agreements were awarded to three state or local projects (START-
UP/Alaska, START-UP/Florida and START-UP/New York) and one national project (START-UP/USA), which was
implemented by a consortium headed by Virginia Commonwealth University (VCU). The goals of each of the three
state consortia were to research, test and evaluate innovative models of self-employment service delivery at the
sub-national level to determine if those models could be replicated across the country. The goal of the national
project was to provide technical assistance to the three state grantees and individuals interested in becoming self-
employed, as well as to increase other states’ capacity to support potential entrepreneurs with disabilities
through information provision and research.
Each state grantee developed a different model for delivering assistance and training to potential entrepreneurs
with disabilities. Although these models shared a common goal, they differed in elements such as the partners
included in their collaborative work groups, types of training provided to front-line staff, and methods of direct
service provision.
START-UP/New York developed a broad network of 55 partners and collaborators, including the program
management team; research universities and colleges; financial institutions; disability service agencies at
the county, state and national levels; and technology and economic development agencies. New York also
used a business incubator, in collaboration with the state vocational rehabilitation (VR) agency and local
Small Business Development Center (SBDC), to provide advice and training to program participants,
including continued follow-up after business launch. Furthermore, START-UP/New York developed a course,
entitled “Inclusive Entrepreneurship,” which is now being offered through Syracuse University’s Whitman
School of Management to educate both graduate and undergraduate students about the issues that people
with disabilities face when they seek entrepreneurship. Students taking the course are assigned to
consulting teams to provide assistance to program participants.
START-UP/!laska's consortium included the state’s VR program, AJCs and SBDCs, among others. Using a
customized self-employment model, the program operated three sites based in AJCs and used a Virtual
Business Advisor to provide services and support to program participants in remote areas of the state using
electronic tools.
START-UP/Florida's consortium included the Florida workforce system (Workforce Florida, Inc. and the
Agency for Workforce Innovation), the Agency for Persons with Disabilities and the Department of
Education, Division of Vocational Rehabilitation. The program tested three self-employment training
models at three sites around the state. One training model was developed by the faculty from Martin
County Public Schools, another by the University of South Florida and the third by a nationally recognized
entrepreneurial training program. The state VR agency developed and implemented a vendor training and
certification program for self-employment. Individuals who successfully completed training became
Certified Business and Technical Assistance Consultants.
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Even though they faced multiple barriers within their states, all three states exceeded their expectations
regarding the number of entrepreneurs who would start businesses. Overall, the states had varied levels of
success in developing a self-employment infrastructure and increasing capacity for serving potential
entrepreneurs with disabilities.
The national grantee, START-UP/USA, provided intense technical assistance to and collected outcome data
from the three state grantees. It also provided technical assistance to individual potential entrepreneurs
through its website, webinars, fact sheets and case studies. It reported that several other states requested
information about starting their own self-employment programs. To assist, START-UP/USA developed an
online training course titled "Overview of Self-Employment for Entrepreneurs with Disabilities," which
continues to be available.
Success stories shared by entrepreneurs from the state and national initiatives provide insight into the
issues and methods used to assist them in starting a business. Furthermore, policy and system barriers
arose that were both expected and unexpected as the initiative began. Expected barriers included negative
attitudes and views of service providers, lack of technical knowledge of program participants, inconsistent
performance expectations, policies that created financial disincentives, complicated work incentives and
funding challenges. Unexpected challenges included views and attitudes from the participants (jobseekers
with disabilities) as well as language and communication.
Recommendations developed in response to the barriers experienced by the grantees during the period of the
grants address policy alignment, cross-system collaboration and public-private sector investment.
This report is intended to help policy makers, workforce development professionals and people with disabilities
view self-employment as a viable source of income for people with disabilities. With adherence to
recommendations and support from all stakeholders both within the varying levels of government as well as
community partners, individuals with disabilities can successfully start and maintain their own businesses and
reap the benefits of self-employment.
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1. INTRODUCTION
Background
1. Self-Employment
Many Americans are the descendants of people who came to the United States from across the globe to realize
opportunity and exercise freedom. Steeped in the spirit of independence, the earliest Americans were self-
employed, primarily in agriculture. However, as the nation’s economic base shifted from farming to
manufacturing and then on to the “Information !ge,” the nature of employment in !merica did as well, with
wage employment replacing self-employment as the primary means of livelihood.
Yet, America continues to be associated the world over with the spirit of self-determination that embodies its
roots as an entrepreneurial, self-reliant society. Furthermore, in economic downturns, job loss and lack of
employment opportunities may produce additional incentive to pursue self-employment for people in a variety of
situations and circumstances.
People with disabilities demonstrate the same passion, independence and self-direction as all Americans, and
given certain characteristics—including being on average older and less educated—it is not surprising that the
rate of self-employment for people with disabilities in the labor force in 2011 was about 50 percent higher than
the corresponding rate for people without disabilities. In 2011, among employed individuals, a higher proportion
of those with disabilities were unincorporated self-employed (11.8 percent) than individuals without disabilities
(6.6 percent).1
1
http://www.bls.gov/news.release/disabl.t04.htm.
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initiative, the Committee has included $3,000,000 to assist state job training institutions, WIA one
stops, Small Business Administration (SBA) small business development centers, the vocational
rehabilitation and employment services of the Department of Veterans Affairs (VA), state and tribal
Vocational Rehabilitation (VR) agencies and other related programs in implementing effective and
accessible practices for achieving sustainable self-employment outcomes for individuals with
disabilities. Practices should include, but not be limited to, providing public education, training,
technical assistance and accessible online and print resources with the purpose of advancing self-
employment opportunities for Americans with disabilities. The Committee directs that, in making the
national technical assistance grant, priority be given to national non-profits with experience in
delivering direct consumer services, as well as training, to public and private agencies. The remainder
of the funds in the initiative should be used to undertake a thorough analysis of the structures
currently in place that either promote or impede the expansion of business ownership in the disability
community.2
Based on this Congressional directive, START-UP was funded by ODEP in October 2006. Three separate START-UP
demonstration cooperative agreement grants were awarded to consortia in Alaska, Florida, and New York, and
one national-scale Self-Employment Technical Assistance, Resources and Training technical assistance center
(START-UP/USA) cooperative agreement was awarded to a consortium headed by Virginia Commonwealth
University (VCU). The goals of each of the three state consortia were to research, test, and evaluate innovative
models of self-employment service delivery at the sub-national level to determine if those models could be
adopted across the country. START-UP USA had four goals: 1) develop research-based policy, 2) provide technical
assistance to the three state and local START-UP projects, 3) provide direct technical assistance to individual
aspiring entrepreneurs from across the country to assist them to meet their self-employment goals, and 4)
provide technical assistance to related systems that could implement practices for achieving sustainable self-
employment outcomes for people with disabilities.
2
Senate Report Rep. No. 109–103, at 26 (2005).
3
Project GATE (Growing America Through Entrepreneurship) was initiated in 2003 to help emerging entrepreneurships create, sustain and/or
expand their existing small business. To help emerging entrepreneurs, Project GATE teamed ETA training and assistance programs with
economic development entities, such as local Small Business Development Centers (SBDCs), women's business development centers, local
chambers of commerce, entrepreneurial service providers and small business loan providers. The success of the original Project Gate led ETA
to award four new Project GATE II grants in 2008 for the extension of the Project GATE model to federal dislocated workers in rural areas and
over the age of 45. The evaluation, available at
http://wdr.doleta.gov/research/FullText_Documents/Findings%20from%20the%20Evaluation%20of%20Project%20GATE%20Report.pdf
found that Project GATE increased the probability of owning a business in the first few quarters after random assignment. Impacts were
stronger for participants receiving unemployment insurance (UI) at the time of random assignment than for the full sample. In the 1990s,
Congress authorized the Self-Employment Assistance (SEA) initiative which resulted in participants being 19 times more likely to be self-
employed at any time after their spell of unemployment than nonparticipants. The evaluation report is available at
http://wdr.doleta.gov/research/keyword.cfm?fuseaction=dsp_puListingDetails&pub_id=2293&mp=y&start=121&sort=7.
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businesses are mentioned in WIA, as amended, in several titles and sections: definitions; migrant and seasonal
farm workers programs; demonstration, pilot, multi-service research, and multi-state projects; employment
statistics; people with significant disabilities; VR services for individuals and groups; research; special projects and
demonstrations; and provider and individual training. Furthermore, self-employment is an allowed exit outcome
for individuals receiving services authorized by WIA. In 2010, the Employment and Training Administration (ETA)
issued guidance on self-employment to state and local workforce agencies and rapid response coordinators.4 But
the proportion of AJC exiters who entered self-employment is unknown. AJCs report outcomes as employment of
any type, with no distinction between self-employment and wage employment.
In 2011, ETA reported that 4.3 percent of all 2010 WIA exiters disclosed disabilities, and 3 percent who exited for
employment reported disabilities.5 ETA reported that less than 1 percent of WIA exiters in 2010 received
entrepreneurial training,6 suggesting that a very small percentage of all exiters (with and without disclosed
disabilities) prepared for self-employment.
The Social Security Administration (SSA) sponsors work incentive programs to encourage employment of people
with disabilities who receive Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) due
to disability. SS!’s Plan to Achieve Self-Support (PASS)7 and Ticket to Work8 incentive programs include self-
employment as an outcome for people with disabilities, but available data suggest self-employment is an
infrequent outcome for program exiters.
ETA sponsored a study that matched AJC clients in four states (Colorado, Iowa, Maryland, and Oregon) with SSI
and SSDI records to find out what proportion received SSA disability benefits (information not routinely recorded
by AJCs). In Program Years 2002–2007, in all four states, only 2-4 percent of AJC users were SSA beneficiaries
when they registered for services; slightly higher percentages (3 -6 percent) had once been SSA beneficiaries.9
Despite these low percentages, AJCs served a substantial percentage of all SSA beneficiaries actively seeking
employment (26 percent in Iowa and Colorado). These percentages are similar to, or much greater than, the
percentage of SSA beneficiaries receiving employment services from vocational rehabilitation (VR) agencies in the
same states.
People with disabilities may prepare for employment through their state VR programs, funded by the
Rehabilitation Services Administration (RSA) in the Department of Education. RSA collects data on self-
4
Training and Employment Guidance Letter 12-10, issued November 15, 2010. Available at
http://wdr.doleta.gov/directives/attach/TEGL/TEGL12-10acc.pdf.
5
U.S. Department of Labor, Employment and Training Administration. PY 2010 Characteristics and Services of WIA Exiters with Positive and
Negative Outcomes, Adult. (Derived from PY 2010Q4 WIASRD Records) November 28, 2011. p.1.
http://www.doleta.gov/Performance/results/Pdf/py10_adult_charact_services_positive_negative.pdf.
6
U.S. Department of Labor, Employment and Training Administration. PY 2010 Characteristics and Services of WIA Exiters with Positive and
Negative Outcomes, Adult. (Derived from PY 2010Q4 WIASRD Records) November 28, 2011. p.3.
http://www.doleta.gov/Performance/results/Pdf/py10_adult_charact_services_positive_negative.pdf.
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Plans for Achieving Self-Support (PASS). The PASS provisions under the Social Security Act are an opportunity for individuals with disabilities
to accumulate income and/or resources without causing either ineligibility for SSI or a reduction in benefit payments. Under an approved
PASS, an individual may set aside earned income, unearned income and/or resources in a special account to pay for items or services needed
to achieve a specified occupational goal. These income and/or resources are completely disregarded when determining an individual's
eligibility for SSI or in calculating the SSI payment amount. Furthermore, federal regulations require that PASS funds be excluded by
Medicaid, TANF, food stamps and HUD rental assistance programs. More information is available at
http://www.idaresources.org/page?pageid=a047000000AsH85.
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The Ticket to Work Program provides most people receiving Social Security benefits (beneficiaries) more choices for receiving employment
services. Under this program, most beneficiaries become eligible for the Ticket to Work Program when they start to receive SSDI or SSI
benefits based on disability. Beneficiaries may choose to assign their tickets to an Employment Network (EN) of their choice to obtain
employment services, vocational rehabilitation services or other support services necessary to achieve a vocational goal. The EN, if it accepts
the ticket, will coordinate and provide appropriate services to help the beneficiary find and maintain employment. More information is
available at http://www.chooseworkttw.net/about-program/faq.html.
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Livermore, Gina A. and Colman, Silvie. Use of One Stops by Social Security Disability Beneficiaries in Four States Implementing Disability
Program Navigator Initiatives: Final Report. May 2010. p. xi.
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employment outcomes for people with disabilities who receive VR services. The Rehabilitation Act of 1973,
Sections 7(11) (C) and 103(a) (13), supports state VR agencies in offering a self-employment outcome as follows:
(C) Satisfying any other vocational outcome the Secretary may determine to be appropriate (including
satisfying the vocational outcome of self-employment, telecommuting or business ownership), in a
manner consistent with the Act.
(13) Technical assistance and other consultation services to conduct market analyses, develop business
plans, and otherwise provide resources, to the extent such resources are authorized to be provided
through the statewide workforce investment system, to eligible individuals who are pursuing self-
employment or telecommuting or establishing a small business operation as an employment outcome.
Despite this authority, an analysis of RSA case closure statistics for VR clients indicated that self-employment
remains a small percentage of overall VR status 26 closures in employment, ranging from 1.97 percent in 2003 to
1.66 percent in 2007 and 1.99 percent in 2009, although there has been a small increase to 2.40 percent in
2012.10
VR agencies with the highest percentage of self-employment outcomes were in states generally considered to
have more disbursed populations and generally more rural communities.
Average hourly and weekly earnings for individuals closed in self-employment were consistently higher than the
average wages for all Status 26 (successfully employed) closures. The average hourly wage for persons closed in
self-employment in FY 2012 was $14.46, compared to $11.33 for all Status 26 closures. Average weekly wage in
self-employment in FY 2012 was $445, compared to $365 for all Status 26 closures.
The mean average case service expenditure by VR agencies for persons closed in self-employment in FY 2012 was
approximately $7,910. In comparison, the average expenditure for all Status 26 closures in FY 2012 was
approximately $5,436.
The mean average time period from the point that the Individual Plan for Employment was initiated to closure in
self-employment in FY 2012 was 663 days. The comparative time period for all Status 26 closures in employment
was 630 days.
VR State agency involvement in facilitating self-employment outcomes does vary substantially from state to state,
particularly for persons with a primary intellectual disability. There are states, such as Florida and Ohio, whose VR
agencies are involved in initiatives to implement policies and practices that expand participation in self-
employment. These agencies are implementing a step-by-step vocational rehabilitation process that provides a
variety of resources to the individual with a disability potentially interested in self-employment. This process
focuses on individual support needs and emphasizes the development of a business design team to assist and
support the self-employment initiative. It also focuses on the ongoing supports needed for the development of a
viable business plan and the successful implementation and maintenance of the self-employment venture.
10
West, Michael D. Access to Public Self-Employment Opportunities and Resources for Individuals with Disabilities. Virginia Commonwealth
University, December 2008. RSA case closure statistics are currently available for each state, not nationally. VCU analyzed the national data
as part of the START-UP/USA grant. 2012 data provided by RSA based on 2012 RSA-911 report data.
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2. KEY ELEMENTS OF THE ODEP START-UP GRANTS
One National Technical Assistance Center and Three State Grantees
In 2011, ODEP funded Economic Systems Inc. to examine key elements, outcomes and impacts, and successes of
the START-UP grants, as well as identify policy and systems barriers and propose recommendations for the future.
This analysis, contained in the following pages, derived from two main sources: 1) existing reports and websites
produced by the four START-UP grantees, and 2) interviews with the leadership of the four START-UP grantees. In-
person interviews were conducted in Syracuse for START-UP /New York. The leadership of START-UP/Alaska,
START-UP/Florida, and START-UP/USA were interviewed by phone. The interviews and site visit were completed
in January and February of 2012.
START-UP/USA and all three state initiatives used a non-traditional assessment process, referred to as
“discovery,” which is the foundation of the innovative strategy of Customized Employment. The traditional model
of employment services consists of determining employer needs and then finding a person with a disability to
fulfill those needs. Customized employment, in contrast, considers an individual’s talents and desires first, and the
business idea follows. Thus, “discovery” in the context of self-employment is the customized approach to assisting
an individual with a disability in pursuing entrepreneurship. Typically, discovery begins with conversations with
the individual and family members, friends, and other acquaintances to learn about the individual’s interests,
talents, and needed support strategies. These discussions, plus observations in the home, neighborhood, and
workplace, if appropriate, reveal existing social capital, business expertise, connections, and experiences, which
may be helpful if the individual launches an enterprise.
The discovery process seeks to reveal personal themes that can be used to develop goals for employment.
Questions addressed during the discovery process include, but are not limited to, the following:
When is the person “in flow” (i.e., at peak performance or most comfortable)?11
Discovery guided START-UP candidates in analyzing whether self-employment was appropriate and feasible for
them to pursue. Some candidates did not pursue self-employment because of either failing to pursue discovery or
concluding that self-employment was not their best employment option.
11
Griffin, Cary. Discovery. http://www.start-up-usa.biz/resources/content.cfm?id=696.
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with online resources, materials and links; a webinar series on topics of interest; and online
courses.
3. Provided technical assistance to individual potential entrepreneurs through mail, phone and email support.
4. Conducted nationwide research and analysis of current resources and support available to individuals with
disabilities for pursuit of entrepreneurship.
Administration)
• Advocacy groups
• Universities
Developed, trained and implemented a curriculum for counselors and people with disabilities in:
• Discovery assessment process for self-employment readiness
• Support in developing a business plan
• Support in obtaining financing
• Support in carrying out the business plan
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From 2001 to 2006, ODEP funded 20 demonstration projects, including Alaska, to provide customized employment through AJCs, as well
as non-profit and faith-based agencies. Customized employment is an employment strategy that matches the specific skills, interests and
needs of the job seeker with the unmet workplace needs of the employer through a newly customized position or to become self-employed.
It is based on an individualized determination of the strengths, requirements and interests of a person and an assessment of the
organizational and operational needs of a particular employer. Additional information on customized employment is available at
http://www.dol.gov/odep/categories/workforce/CustomizedEmployment/what/index.htm .
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Scale
START-UP/Alaska covered the cities of Anchorage, Juneau, and Fairbanks and their surrounding areas. The Juneau
site expanded to cover southeast Alaska through virtual services.
Target Populations
Clients accessed START-UP/Alaska services through a variety of referral sources, such as Division of Vocational
Rehabilitation (DVR) counselors, Disability Program Navigators (DPN) based at AJCs, colleagues, SBDCs, school
districts, Client Assistance Programs (CAPs), and self-referrals. START-UP/Alaska characterized some of the
referrals as individuals for whom counselors had already “tried everything,” yet had not succeeded in achieving
wage employment. Candidates went through a formal “discovery” process, conceptualized by Marc Gold and
Associates and offered through Employment for All, an offshoot of Marc Gold and Associates, as well as through
Griffin-Hammis Associates, LLC, a member of the START-UP/USA consortium.
START-UP/Alaska planned to provide services to 10 people with significant disabilities in each of the 3 locations, or
help a total of 30 people with significant disabilities become self-employed as a result of the interventions of the
demonstration. Actually, 78 individuals received services, 37 completed a business plan and 33 created
businesses.
Critical Elements of Alaska Model
START-UP/Alaska used a business incubator model with customized self-employment, supported by resources
provided by START-UP/USA and three self-employment facilitators with business start-up expertise. All START-
UP/Alaska candidates who chose to pursue self-employment went through a discovery process as the first step
toward developing a customized self-employment business. Initially planned as a physical incubator in a single
location, the rural nature and size of the coverage area led to the implementation of the virtual incubator model.
The approach successfully used electronic tools to provide entrepreneurs and site facilitators with business
development, management training and technical assistance, including Internet-based webinars, teleconferences,
and one-on-one phone calls.
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Scale
Jacksonville (targeted veterans with disabilities), Lakeland (targeted people with developmental disabilities), and
Ft. Lauderdale/Miami (targeted all people with disabilities) were selected for intensive training and technical
assistance. They then served as incubators for further expansion of the models tested through START-UP/Florida.
Target Populations
START-UP/Florida targeted youth, adults, veterans, and older workers with disabilities.
Critical Elements of Florida Model
START-UP/Florida tested three models that had been previously developed and used in Florida to build capacity
and infrastructure for people with disabilities interested in self-employment. The START-UP/Florida grant was
designed to study the impact of and build upon these three models at both the systems and individual levels.
Thus, collaborative partners included the agencies involved with the three models: the state’s workforce
innovation agency, VR agency and Department of Education; the University of South Florida; and the Association
for Persons with Developmental Disabilities. AJCs were used as the primary training location in several sites.
The three models implemented and tested were METTA (Micro-Enterprise Training and Technical Assistance),
BOSS (Bridging Opportunities for Self-Sufficiency) and FastTrac (a private-sector self-employment training
curriculum). Developed by the University of South Florida, the METTA model is highly interactive, with a defined
discovery process and team approach that integrates partners across disciplines working toward the goal of self-
employment for individuals who are mostly VR-eligible with significant disabilities. The model’s training includes
professional and technical assistance curricula for people located in both urban and rural communities.
Developed by Florida's Department of Education, the BOSS model is essentially a manual designed for educators
and human services’ professionals to help individuals with disabilities explore and pursue the option of self-
employment as a career choice. The model consists of a four-step process: 1) identification of a primary support
person; 2) selection of the support team; 3) exploration and examination of relevant information about the
individual’s life, dreams, talents, supports and relationships; and 4) development of the BOSS Self-Folio. The BOSS
model is an action-oriented tool that has been used to assist students in transition from high school to work.
START-UP/Florida also used BOSS in conjunction with METTA as a tool for individuals transitioning from school to
work, as well as for others already out of school.
A nationally recognized entrepreneurial training program that has a developed curriculum, FastTrac uses certified
facilitators and materials to provide entrepreneurial training. FastTrac was introduced by AWI in AJCs prior to
START-UP/Florida as a viable self-employment training option for veterans with disabilities.
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Scale
START-UP/New York was conducted in Onondaga County, in which Syracuse is the largest city. By the end of
the grant period, START-UP/New York had also begun to establish programs in surrounding counties and
New York City.
Target Populations
START-UP/New York sought referrals in Onondaga County through direct advertising, partner agencies and the
state public workforce system. Individuals with disabilities were recruited inclusively by START-UP/New York,
without regard for the nature or severity of their disability. Interested persons with disabilities went through a
discovery process in which they explored their interests, strengths and support systems. Individuals who
concluded that they wanted to pursue entrepreneurship at the end of their discovery experience continued into
ongoing support from START-UP/New York.
Critical Elements of New York Model
The START-UP/New York program was built and delivered using a strong network of multi-stakeholder
partners and collaborators. In addition to the BBI, these key stakeholders included Syracuse University’s
Institute for Veterans and Military Families and Whitman School of Management; the county VR agency;
the South Side Innovation Center (SSIC) small business incubator; and the local SBDC. By June 2009, START-
UP/New York had engaged 55 stakeholders, including the program management team; research
universities and colleges; financial institutions; disability service agencies at the county, state and national
levels; and technology and economic development agencies.
START-UP/New York's model used a business incubator operated at the SSIC in Syracuse to support
entrepreneurs through the discovery process and ongoing peer-to-peer networking meetings during which
participants shared experiences. Prospective entrepreneurs first met with an SSIC staff member designated
as a “Business Navigator.” After discovery, the SSIC connected the entrepreneurs with the state's VR
agency and SBDC, which provided advice and business training needed for a successful business launch. The
Business Navigator and SBDC staff then continued to follow and advise entrepreneurs following launch to
ensure sustainability of the business.
As the project evolved, START-UP/New York developed a graduate and undergraduate course, entitled
Inclusive Entrepreneurship, offered through Syracuse University's Whitman School of Management. The
course familiarizes management majors with the issues that people with disabilities face when they seek
entrepreneurship. Students enrolled in the course are assigned to consulting teams to work with START-
UP/New York entrepreneurs in developing their business plans and marketing materials, identifying
financing, and conducting related activities.
START-UP/New York’s I team also worked closely with the Whitman School-led Entrepreneurship Bootcamp for
Veterans (EBV) program started in 2007 to develop a customized program for veterans with disabilities. This
program provides cutting edge, experiential training in entrepreneurship and small business management to post-
9/11 veterans with disabilities and is offered entirely free to qualified candidates accepted into the program. BBI is
a collaborative EBV partner for creating disability-related curriculum and assisting participants in understanding
and leveraging programs at the intersection of disability and entrepreneurship. The EBV program is currently
offered by a network of six world-class institutions.
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3. OUTCOMES AND IMPACTS
Context and Legacies of START-UP
1. The Context for START-UP Self-Employment Outcomes
State START-UP grantees consistently reported that the workforce development system and state VR agencies are
not oriented toward entrepreneurship and self-employment as employment outcomes for people with
disabilities. Instead, these programs and services emphasize wage employment, as shown below in Figure 1.
For people with disabilities interested in pursuing self-employment, the path requires substantial initiative,
tenacity and skills, just as it does for people without disabilities. Agencies are generally oriented to supporting
individuals in seeking wage employment and thus are better prepared to support that path. Figure 2 illustrates
the path a person with a disability might follow in the public workforce system, with linkages to other sources of
support.
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Figure 2: General Path for People with Disabilities Seeking Self-Employment
The three demonstration sites reported that prior to START-UP, self-employment was not a typical outcome for a
person with a disability seeking assistance from the state's VR agency or an AJC. VCU analyzed the RSA 911 data
system (performance data RSA collects annually from state VR programs) and found that nationally, VR agencies
produced a 1.99 percent rate of self-employment among the cases they closed in 2009.
State grantees met the following perceived barriers, to varying degrees:
A culture that was not oriented toward self-employment for people with disabilities. Staff involved
with START-UP reported that some stakeholders held the belief that self-employment is not viable or
feasible for most people with disabilities.
Unrealistic expectations for business plan development. Some staff involved with START-UP reported
that some stakeholders had expectations for people with no prior business experience to develop
business plans independently and without much support.
Lack of infrastructure to support self-employment, including absence of communication and
coordination among organizations involved in supporting people with disabilities in seeking self-
employment.
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Lack of understanding among front-line staff about entrepreneurship and the tools and resources
needed to support self-employment among people with disabilities.
Federal Social Security disability benefit policies that create disincentives to employment overall13
and federal workforce system program policies14 that discourage choice and pursuit of self-
employment.
Performance measures for AJCs that are wage-driven do not consider business start-up as a relevant
indicator of success.
Lack of financial resources and access to capital for entrepreneurs to support business start-up.
VCU interviewed 23 successful (defined as having been in business at least 12 months and having achieved
$10,000 in revenue) entrepreneurs with disabilities about their experiences in getting support for self-
employment from existing systems prior to START-UP. Interview participants indicated that their core case
coordination contact points were not a primary source for assistance in pursuing self-employment. Local mental
health case management and treatment systems, secondary-level public education programs, and community
rehabilitation programs and employment services organizations generally did not proactively offer information on
self-employment options during vocational assessment and career exploration activities. In general, staff
members of these programs were generally not knowledgeable about self-employment.
Rather, the entrepreneurs with disabilities interviewed said a significant factor in their success was finding an
individual who could champion and facilitate an exploration of self-employment. Such individuals were found in
community non-profit programs or a unit of a public program that had a specific focus on entrepreneurship. Self-
employment champions, programs and agencies are occasionally available, but not widely, to support people
with disabilities. VCU also observed that state VR programs tended to support entrepreneurs who had obtained
multiple funding sources for their business.15
The situation for a person with a disability was significantly different in the state START-UP demonstrations. These
demonstrations brought together existing resources to support self-employment and used START-UP resources to
train agency staff and create an infrastructure to support people with disabilities in developing self-employment
plans and goals for themselves. START-UP shifted the paradigm from one that assumed people with disabilities
should pursue wage employment to one in which people with disabilities were encouraged to pursue self-
employment. START-UP helped to inspire individuals with disabilities to consider self-employment. Most
importantly, it overcame the systemic barriers that people with disabilities face when trying to pursue
entrepreneurship. Figure 3 illustrates how the general path to self-employment and entrepreneurship changed
for people with disabilities, following the approaches demonstrated by START-UP.
13
Perceived disincentives are not expecting people to pursue employment after having been deemed “unemployable,” potential loss of
benefits due to employment income, and fear of not being able to get disability benefits again if self-employment does not work out.
14
Program policies that discourage choice and self-employment are policies that encourage agencies to place people in employment as soon
as possible and policies that do not have separate indicators for success for self-employment and wage employment. Self- employment
typically takes more time to develop than wage employment.
15
Virginia Commonwealth University. START-UP/USA Final Close-Out Report. December 10, 2010.
14
Figure 3: General Path for People with Disabilities Seeking Self-Employment after START-UP
2. START-UP Accomplishments
VCU was responsible for collecting outcome data from all START-UP grantees, including START-UP/USA. START-UP
accomplishments are presented in three categories: technical assistance, capacity-building, and numbers of
participants. Except as otherwise noted, all quantitative information on accomplishments are those reported in
VU’s close-out report cited previously.
a. Technical Assistance
VCU's START-UP/USA reported the following accomplishments for the START-UP/USA website and technical
assistance center during START-UP’s funding period:
From January 1, 2007 through December 10, 2010, a total of 73,922 visitors came to the START-UP/USA
website. A total of 270,218 page views were made by these visitors.
START-UP/USA produced and streamed 19 live webcasts. A total of 2,613 individuals participated in the
webcasts during the course of the project. (See Appendix 1 for a list of the webcasts topics.)
15
Webcasts were made available through online archives, which were used by 11,276 visitors with a total of
17,442 page views through December 10, 2010.
VCU developed and acquired resources for the website, including 18 fact sheets, 8 case studies, and links to
relevant information for business start-up. The 18 fact sheets were accessed by 12,866 individuals during
the project with a total of 28,576 page views. (See Appendix 2 for a list of fact sheets.)
START-UP/USA developed an online course entitled "Overview of Self-Employment for Entrepreneurs with
Disabilities." A total of 335 individuals participated in the course between April 2009 and November 2010.
The course is still offered regularly as of the date of this publication. (See Appendix 3 for more information.)
START-UP/USA completed 1,422 technical assistance and information requests made by people with
disabilities and others between October 1, 2007 and September 30, 2010. Almost half (46.1 percent) of the
requests were made by people with disabilities and their families. The next largest group of requests came
from community rehabilitation providers, at 17.6 percent. Requests were completed by email, web, phone,
and in-person.
Technical assistance requests were most frequently about starting a business (38.3 percent), funding (30.1
percent), and policies and supports (19.1 percent). About two-thirds of the technical assistance requests
about funding were related to work incentives, waivers, and blended funding.
b. Capacity-Building
Systems Change
The three state grantees were engaged in systems change. All project managers interviewed in January and
February of 2012 reported increased capacity and coordination through the development of new collaborations
and relationships among stakeholders and breaking down of silos. Considerable effort went into building trust and
consensus among collaborators whose goals were focused more on wage employment than self-employment for
people with disabilities. Stakeholders signed memoranda of understanding, defining their roles and common
goals. Meetings, team-building activities, and retreats were used by the grantees to build consensus on the idea
of entrepreneurship for people with disabilities. Not all consortia members were convinced initially that self-
employment was feasible for people with disabilities.
Each START-UP state consortium coordinated resources from the public and private sectors, including
government, higher education, non-profit community agencies, for-profit companies, and advocacy groups.
Figure 4 presents the collaborators in each state.
Once an appropriate level of consensus was achieved, START-UP consortia worked to become knowledgeable in
the multiple facets of supporting self-employment for people with disabilities. The facets included consultation in
business planning, marketing, advertising, financing, licensure, and numerous other aspects specific to the nature
of a particular business. This knowledge was then used to provide customized services to people with disabilities.
Leveraging Funding
A critical concern to all state demonstration sites was raising funds for business start-up while maintaining
support through disability benefits from Social Security, maintaining health care from Medicaid, and channeling
work-incentive funding to support START-UP businesses. Grantees that were most successful in addressing
funding issues for their entrepreneurs obtained financing from foundations and non-profits. All grantees worked
closely with START-UP/USA on strategies to leverage funds from work-incentive programs and to prevent
entrepreneurs from losing their benefits during the critical phase of launching their businesses.
16
Figure 4: Collaborators in START-UP States
START-UP/Alaska START-UP/Florida START-UP/New York
Governor’s Council on Disabilities and Workforce Florida, Inc. Burton Blatt Institute at Syracuse
Special Education University
Agency for Persons with Disabilities
Alaska Division of Vocational South Side Entrepreneurial Connect
Florida Division of Vocational
Rehabilitation Project and Incubator of the Walt
Rehabilitation
Whitman School of Business at
Alaska Employment Security Division
Three Florida Regional Workforce Syracuse University
Alaska Division of Business Boards
Institute for Veterans and Military
Partnerships
University of South Florida Families
Alaska Division of Public Assistance
Griffin-Hammis LLC ARISE Independent Living Center
Alaska Division of Behavioral Health
National Disability Institute Advocates for Living Potential
Alaska Division of Senior and Disability
CNY Works
Services
Enable
Alaska Division of Teaching and
Learning Support Greater Syracuse Chamber of
Commerce
University of Alaska
Syracuse Cooperative Federal Credit
Small Business Development Center
Union
Alaska Mental Health Trust Authority
Onondaga County Office of Economic
Employment for All (EFA) Development
Office of Vocational and Educational
Services for Individuals with
Disabilities, New York State Education
Department
PASS, for instance, is utilized by less than 1 percent of those eligible overall.16 In contrast, one fourth (43 of 194
START-UP participants surveyed by VCU)17 had PASS plans. START-UP/USA demonstrated how to use this
resource by helping craft numerous PASS scenarios with business owners in the three states. With assistance from
START-UP/USA, demonstration grantees leveraged PASS, VR funding, PESS18 and Medicaid waiver funds for
support of business development.19 START-UP demonstration managers interviewed in 2012 reported that
blending funds from these sources is a cumbersome and time-consuming process that requires specialized
expertise. Although SSA counselors in the Work Incentive Planning and Assistance (WIPA) program were available
and were consulted by grantees, there was still a need for grantees to provide additional benefits counseling to
16
The Social Security Administration reported that 0.1 percent of SSI recipients who are blind or have other disabilities and worked in 2010
had a Plan to Achieve Self Sufficiency (PASS). http://www.ssa.gov/policy/docs/statcomps/ssi_asr/2010/ssi_asr10.pdf .
17
Virginia Commonwealth University. START-UP/USA Final Close-Out Report. December 2010.
18
Property Essential for Self Support. SSI allows unlimited accumulation of assets (including cash in a business account) for the operation of
certain small businesses or micro-enterprises. PESS is excluded from Medicaid eligibility determinations, thereby allowing Medicaid to
continue for business owners who received SSI disability benefits. See: http://www.socialsecurity.gov/redbook/eng/ssi-only-employment-
supports.htm#4.
19
Virginia Commonwealth University, START-UP/USA Final Close-Out Report. December 2010.
17
START-UP entrepreneurs. With assistance from START-UP/USA, START-UP demonstration grantees trained
specialized benefits navigators to assist entrepreneurs.
Sustained Collaborations and Partnerships
In addressing barriers to self-employment, state grantees made formal and informal agreements, executed
memoranda of understanding, developed manuals, wrote policy, instituted trainings for staff and for
entrepreneurs, and uncovered features of existing programs and systems that supported and hindered self-
employment for people with disabilities. For example, START-UP/Alaska developed memoranda of understanding
between major stakeholders in the state to align policies in support of self-employment among people with
disabilities. In Florida, the VR program revised its self-employment policy and funded staff development. Alaska's
Division of Senior and Disability Services put in state Medicaid waiver regulations provisions to increase the
service period so that longer-term support to nascent entrepreneurs could be provided and the businesses could
be sustained. The New York State Senate introduced legislation in 2012, aimed at dramatically expanding
entrepreneurship opportunities for veterans with disabilities. The bill, which was pending when this report went
to press, referenced the work of the BBI at Syracuse University and reflected the success of START-UP/New York
and the university course entitled Inclusive Entrepreneurship.
Curricula and Training
START-UP/Florida created a self-employment certification for its vendor network. By the end of 2010, more than
100 vendors had received certification in self-employment. START-UP/Florida also incorporated the BOSS self-
employment manual into their high school curricula statewide to assist youth in transition.
As mentioned above, in New York, BBI and the Whitman School of Management at Syracuse University developed
a course offered by the Whitman School to undergraduate and graduate business majors entitled Inclusive
Entrepreneurship. The course sensitizes students to the issues faced by people with disabilities in employment
and in self-employment, and students provide technical assistance to START-UP entrepreneurs.
VCU's START-UP/USA, in association with Griffin-Hammis Associates, LLC, refined approaches to discovery
(assessment), marketing (the MicroMarketing materials), and business planning (the Quick-Launch Parts I and II
Business Plan curriculum). They also provided extensive training and materials on SSA and U.S. Department of
Veterans Affairs (VA) benefits relating to self-employment income and activities. State grantees received technical
assistance and training in these approaches and adapted or implemented them in developing their own projects.
All of the state grantees received training and technical assistance in implementing the discovery assessment
process, during which START-UP candidates were coached to assess their desire and capacity to be an
entrepreneur. START-UP/USA also provided training to staff and directly assisted entrepreneurs in planning and
launching their businesses.
The Quick-Launch training curriculum was expanded by START-UP/USA. (See Figure 5.) Part I of Quick-Launch
brought prospective business owners and their team members (START-UP state staff) together and led them step-
by-step through the small business-planning map resulting in a draft business plan. The two-day Part I sessions
gathered information from discovery, the rationale for a business instead of wage employment, the business
model, a sales plan, pro-forma cash flow projections, a start-up budget, supplies, tools and equipment needed,
the existence of competitors, marketing and distribution approaches, etc.
Part II of Quick-Launch pulled together the work between the initial planning and the addition of SSA work
incentives, analyses of the impact of earnings on medical benefits, leveraging opportunities for financial and
business supports, and the incorporation of feasibility testing into a useable business plan. While Quick-Launch
was a training series, much of the actual writing and research took place leading up to and following the class
sessions. This resulted in ongoing technical assistance to the prospective business owner, the team, family
members offering support, and the various funders. This technical assistance effort demonstrated the intensity
and the rigor of the process, and is now being used in numerous states across the country.
18
Figure 5: Small Business START-UP Flow Chart Used by the START-UP/USA in Quick-Launch Training
Infrastructure
State grantees' goals included policy changes and infrastructure development, as well as entrepreneurship
outcomes for people with disabilities enrolled in their programs. The level of infrastructure development and
capacity to serve entrepreneurs with disabilities varied in the grantee sites. The Florida grantee leadership
reported that prior to START-UP, little capacity existed to support entrepreneurship, and therefore it had to place
more emphasis on planning, design, and development than actual service delivery. Other state grantees built
upon existing systems. Alaska leadership, for instance, noted that self-employment was a natural offshoot to their
customized employment grant (previously funded by ODEP). New York's BBI Institute built on its extensive
experience in supporting wage employment of individuals with disabilities. With backing from the chancellor to
improve the lives of people in the community, BBI marshaled stakeholders to support entrepreneurship among
people with disabilities in Onondaga County, NY.
c. Number of Entrepreneurs
Given their different starting positions, the state grantees varied in their expectations for the third type of
accomplishment: the number of entrepreneurs they anticipated would complete their programs. Alaska
anticipated that it would produce about 7 or 8 entrepreneurs per local site, or a total of 30; Florida expected one
successful entrepreneur per model, or a total of 3, and New York expected 30 entrepreneurs with disabilities
would start businesses. START-UP/USA established a data reporting system for the state grantees to record
information about the people with disabilities enrolled in their START-UP programs. During the period during
which START-UP/USA collected data, all state grantees exceeded their expectations. Candidates for START-UP
were recruited by referrals from stakeholder agencies, word of mouth, publicity about the projects and, in New
York, direct outreach in the community. VCU recorded 19420 people enrolled in START-UP services in the three
participating states.21
20
Although START-UP had 194 recorded participants, not all 194 provided data for each item in the reporting system. Findings are from
respondents who provided data on the topic discussed, which could be fewer than all participants.
21
Virginia Commonwealth University, START-UP/USA Final Close-Out Report, December 10, 2010.
19
3. Outcomes for Entrepreneurs
With grantees devoting the first year of their grants to planning and development, START-UP entrepreneurs
typically had less than two years to launch a business and become operational. Available research indicates that
less than two years is insufficient for nascent entrepreneurs, with or without a disability, to develop plans, secure
financing, launch a business, and become established. The first U.S. Panel Study of Entrepreneurial Dynamics22
(PSED) surveyed a panel of nascent entrepreneurs and found that after about four and a half years, about one-
third of entrepreneurs were operating a new business, one-third were still in the active start-up phase, and one-
third had disengaged from the entrepreneurial process.23 ET!’s Project G!TE reported that it took an average of
about a year24 of support before their participants launched a business (Project GATE did not target people with
disabilities). The two-year implementation was too short to expect many START-UP entrepreneurs to have
entered the operational stage, yet with support from the grantees, many did.
Likewise, START-UP’s implementation period was too short to expect businesses to generate an income and
profit. Analysis of the PSED found that the median amount of time between the first organizing activity performed
to start a business and the first receipt of money, income, or fees from the sale of goods and services was 25
months.
START-UP entrepreneurs exceeded many of the norms for launching new businesses. Of the 194 persons with
disabilities enrolled in START-UP programming, 137 achieved at least one major milestone.25 The most frequently
achieved milestone was initiation of a business plan. During the period VCU gathered data, 56 entrepreneurs
reported an operating business. A business could be defined as viable on the basis of having filed federal and state
tax returns. Of the persons with disabilities supported by START-UP in the 3 states, 11 entrepreneurs in Alaska, 3
entrepreneurs in Florida and 23 entrepreneurs in New York filed federal tax returns.26
In the 2012 interviews, START-UP/Florida and START-UP/New York leadership said that more individuals pursued
entrepreneurship than what was captured by the START-UP/USA reporting. START-UP/Florida leadership stated
that the FastTrac model was implemented with veterans before the reporting system was established; therefore,
the veteran entrepreneurs were not counted. START-UP/New York leadership reported a lengthy planning and
development process, with far more individuals than reported to VCU in the pipeline. START-UP/New York also
reported that at the end of the grant funding period, about 30 businesses were started, and that a total of 60
businesses were established through START-UP efforts, including the post-grant period.
Furthermore, state grantees noted that they considered a successful outcome of START-UP to be an informed
decision not to start a business or pursue self-employment. Going through the discovery process led some people
to conclude that entrepreneurship was not the right avenue for them, thereby enabling them to focus on wage
employment opportunities.
The START-UP/USA data system did not collect information on the nature of the businesses. Success stories and
anecdotal evidence revealed that the businesses covered numerous sectors, including automotive repair,
automotive detailing, furniture manufacturing, online gift certificates, property management, home repair, dog
22
The Panel Survey of Entrepreneurial Dynamics is conducted by the University of Michigan’s Institute for Survey Research. More information
can be found at http://www.psed.isr.umich.edu/psed/documentation.
23
PSED results are from Gartner, William B., Shaver, Kelly G., Carter, Nancy M., Reynolds, and Paul D. Handbook of Entrepreneurial Dynamics:
The Process of Business Creation. Thousand Oaks, CA: Sage Publications, 2004.
24
Benus, Jacob, McConnell, Sheena, Belotti, Jeanne, Shen, Theodore, Fortson, Kenneth, Kahvecioblu, Daver. Growing America Through
Entrepreneurship: Findings from the Evaluation of Project GATE. May 2008, P. 79.
http://wdr.doleta.gov/research/FullText_Documents/Findings%20from%20the%20Evaluation%20of%20Project%20GATE%20Report.pdf
25
Milestones included 1) initiating a business plan, 2) completing a business plan, 3) completing a business feasibility study, 4) obtaining start-
up funding, 5) creating a business, 6) filing state and federal taxes, 7) obtaining state and local business licenses, 8) making a sale, 9)
expanding their business.
26
Virginia Commonwealth University, START-UP/USA Final Close-Out Report, December 10, 2010.
20
kennels, photography, art, craft sales, restaurants and lodging, catering and food concessions, a variety of retail
outlets, and internet-based and mail-order sales.
27
Not all of the 194 enrollees reported a primary diagnosis.
28
Virginia Commonwealth University, START-UP Final Close-Out Report, December 10, 2010.
29
The survey did not ask whether the source of health care was through Medicare, Medicaid, private or other sources. It is reasonable to
expect that a substantial portion received Medicare and Medicaid, because SSDI and SSI beneficiaries qualify for these benefits.
30
Retrieved from: http://www.ssa.gov/policy/docs/statcomps/ssi_asr/2008/sect07.html#table54.
31
Retrieved from: http://www.ssa.gov/policy/docs/statcomps/ssi_asr/2010/sect07.html#table54.
21
UP/USA was informing SSA of the need for Limited Liability Companies (LLCs)32 to be excluded under the
PASS plan and then implementing an interpretation by the SSA reflecting this. START-UP/USA worked with
START-UP/New York in developing an approach for using non-federally funded Individual Development
Accounts (IDAs) to help finance business expenses. SSA agreed to an approach that permitted exclusion of
those accounts from the SSI resource limits.33 VCU and Griffin-Hammis are continuing to respond to
requests for information and assistance submitted to the START-UP/USA website, and website visitors are
continuing to download information and view the archived webinars. In the absence of funding, however,
VCU is no longer able to tabulate statistics on visitors or use of the site.
START-UP/USA left a legacy far beyond the three demonstration states. Its staff provided policy samples,
self-employment strategies, capacity building, and other information to VR personnel in Minnesota,
California, New Mexico, Colorado, Rhode Island, Texas, Illinois, Michigan, Oregon, New Jersey, Iowa, New
Hampshire, Nevada, Idaho, Arkansas, South Dakota, and other states. They were also instrumental in
assisting Texas and Ohio in developing self-employment programs for people with disabilities.
b. Legacy of START-UP/New York
START-UP/New York has launched several offshoots of its program. First, it is continuing to support entrepreneurs
with disabilities through collaboration between BBI; the South Side Innovation Center, a small business incubator
in Syracuse, VR, and an SBDC. Second, Inclusive Entrepreneurship, the course developed collaboratively by BBI and
the Whitman School of Management at Syracuse University, is now taken by graduate and undergraduate
business and management majors. Third, START-UP/New York has been replicated in numerous locations (and
further discussions are underway to create more branches both domestically and internationally). For example, it
was replicated in Hunter College in New York City in a program to train rehabilitation counselors, and discussions
are underway with Florida Atlantic University and with academics in Accra, Ghana. Furthermore, START-UP New
York's Principal Investigator taught concepts from START-UP in Stellenbosch, South Africa, and BBI replicated
START-UP in three more counties in New York through a Medicaid infrastructure grant. Fourth, BBI was awarded
an SBA PRIME grant that integrated START-UP strategies with support for TANF recipients with disabilities. Fifth,
START-UP/ New York collaborated with the Syracuse Cooperative Federal Credit Union to offer IDAs to START-UP
grantees with matching funds provided by a foundation. The credit union provides basic financial counseling, with
the expectation that successful entrepreneurs will bank with them as they become successful. START-UP/New
York also produced several publications, including Simply Speaking: Inclusive Entrepreneurship Guidelines for SBDC
32
Self-employed individuals often are advised from a business tax and liability perspective, and would prefer to form Limited Liability
Companies (LLCs), sub-chapter S corporations or C corporations to protect their personal and family assets from potential lawsuits associated
with their business. However, resources and assets of income from any for-profit corporation or any form of LLC are treated as personal
resources subject to a $2,000 SSI personal resource limit in combination with the LL’s, member’s or corporate stock holder’s personal
resources. If the limit is exceed, it causes the loss of SSI eligibility in all states (and loss of Medicaid in many states), whereas the resources
and assets of sole proprietorships or partnerships are totally excluded by SSI and Medicaid. The business liability issue is that sole
proprietorships or partnerships offer no liability protection for family and personal assets from business-related lawsuits. START-UP/USA
worked with SSA to develop an interpretation that benefitted START-UP entrepreneurs seeking start-up funding from SSI’s P!SS. If an
individual has a PASS, he or she may be able to exclude an LL’s entire net worth from the SSI $2,000 personal resource limit during the life of
the PASS if the LLC structure is necessary to fulfill the plan. It is important to note that PASS is a limited duration work incentive, so when it
comes to an end, the net worth (assets and resources) of the LLC would become a countable personal resource. The value of the business
would likely be over the resource limit in any business that could produce an income for the owner significant enough to survive on without
relying on SSI or Medicaid.
33
START-UP/New York and START-UP/USA communicated with SSA via email to obtain clarification on circumstances under which a START-
UP entrepreneur would be permitted to have a non-federal Individual Development Account (IDA) without jeopardizing SSI and Medicaid
benefits. Although SSI does not exclude the resources of non-federal IDAs, both SSI and Medicaid do exclude the resources of federal Assets
for Independence Act (AFIA) and TANF authorized/funded IDAs. Therefor the solution was to set the IDA up so it was trust-like in nature. The
account required a signature by the IDA administrator as well as the individual for funds to be disbursed. And when the funds were
dispersed, a check was made to the vendor of the particular item or service, the funds were not given to the individual. By doing that, the
money the individual set aside in his or her IDA account was considered to be an excluded resource. SSA sent an email to START-UP staff
stating, “if the funds are administered as described they can be excluded from income and resources and will therefore NOT affect an
individual's receipt of SSI.”
22
Advisors (2010)34 and a chapter, "Inclusive Entrepreneurship" in Academic Entrepreneurship and Community
Engagement (2011).35
c. Legacy of START-UP/Alaska
The management of START-UP/Alaska reported that employment and rehabilitation advisors in the state VR and
employment security systems have been trained to support entrepreneurship for people with disabilities, and the
know-how exists to enable entrepreneurship. Because of the networking among stakeholders in START-UP,
working relationships now exist among involved agencies. A key legacy is attitudinal shifts and more knowledge
and better understanding of what it takes to support small business development. The state’s VR agency was also
trained in and adopted discovery from START-UP. Furthermore, counselors from all of !laska’s SBDCs received
training from START-UP/USA in discovery, customized self-employment and Quick-Launch business plan
development in 2009. The Virtual Business Incubator successfully provided not only training, counseling and other
supports to potential entrepreneurs in remote areas of the state, but also invaluable post-START-UP support to all
33 of those individuals who opened businesses. !laska’s Department of Disability and Senior Services put in a
Medicaid waiver for the length of time self-employment supportive services could be provided. A self-
employment policy summit was also held in February 2010. Participants included representatives from !laska’s
divisions of VR, employment security (AJCs), behavioral health, public assistance and business partnerships. These
state agencies were joined by representatives from the University of Alaska, including the Center for Human
Development (the research contractor), the Center for Economic Development and SBDCs.
START-UP/Alaska also went on to secure complementary funding resources, much as START-UP/New York and
START-UP/Florida did. Included were the Medicaid infrastructure grant, an economic development grant to the
University of Alaska and a recent DOL ETA/ODEP Disability Employment Initiative (DEI) grant, which will expand
self-employment efforts across the state. In addition, Alaska was awarded related grants, including one from SBA
to develop a model for promoting the work of artists with disabilities and one from the Kessler Foundation to
assist persons with traumatic brain injuries in pursuing self-employment. START-UP/Alaska was able to access
funds from the Alaska Mental Health Trust Authority for capacity building and to support business startups.
d. Legacy of START-UP/Florida
Management of START-UP/Florida reported that silos have been bridged, and stakeholder agencies have
developed working relationships. Key agencies previously operated in isolation. Now there are formal linkages
between the organizations involved in supporting employment for people with disabilities. For instance, the
Agency for Persons with Disabilities is now represented on the Board of Workforce Florida, Inc., which leads the
state’s workforce system. The department of VR now has trained Certified Business and Technical Assistance
Consultants (CBTACs) to guide people with disabilities interested in developing small businesses. Another
important legacy of START-UP/Florida is the inclusion of the BOSS manual as part of the high school curriculum to
encourage self-employment for people with disabilities, distributed by the Florida Department of Education.
The state team at the University of South Florida and the state Department of Economic Opportunity (Formerly
known as the Agency for Workforce Innovations) called on START-UP/ USA to explore reasonable outcome
measures for AJCs considering the use of self-employment, and the workforce system went on to fund a trial of
self-employment classes. The workforce system also funded a statewide demonstration project on self-
employment that began operations in 2010. Further technical consultation was given by START-UP/USA to several
school districts, most notably the Martin County school district, which adopted methods of assessment
(discovery) and self-employment (the BOSS manual) to explore self-employment with transition-age youth.
Numerous other school districts across Florida and the country have also requested information from START-
UP/USA. The Florida department of VR was particularly supportive of START-UP/Florida and START-UP/USA and
34
Published by New York Makes Work Pay, a statewide initiative intended to "dramatically improve the rate of employment among people
with disabilities funded by the Center for Medicare and Medicaid Services.."
35
Kingman, Bruce, Ed. Academic Entrepreneurship and Community Engagement. Edward Elgar, 2011.
23
concurrently re-wrote its self-employment policy to expressly expand self-employment and funded staff
development and certification for its vendor network. Through 2010, more than 100 vendors had received
certification in self-employment.36
Overall, the START-UP state demonstration projects used the influence of their grants to recommend and change
policy. Figure 6 highlights examples of their impacts.
36
Virginia Commonwealth University, START-UP Final Close-Out Report, December 10, 2010.
24
Figure 6: Highlights of START-UP Policy Influence
37
Saunders, Rich. Alaska Works Self-employment Project – START-UP/Alaska Final Report. !laska Governor’s ouncil on Disabilities & Special
Education, December 2010.
38
From Action Plan to Address Recommendations Made By NDIF For Implementation by START-UP/Florida State Steering Committee, April
39
Onondaga County in partnership with the Burton Blatt Institute and Whitman School of Management.
of Syracuse University. Inclusive Entrepreneurship, November 17, 2010. (Final Report of START-UP/New York.)
40
Virginia Commonwealth University, START-UP/USA Final Close-Out Report, December 10, 2010.
25
4. SELF-EMPLOYMENT SUCCESS STORIES FROM THE
DEMONSTRATIONS
As discussed previously, state demonstration sites assisted 194 entrepreneurs with disabilities in pursuing self-
employment. The following success stories anecdotally illustrate the variety of outcomes and impacts of the
programs.
START-UP/Alaska Entrepreneurs
Elizabeth’s Story—Occupational Therapist
Elizabeth, who has a visual disability, had a longstanding relationship with the Division of Vocational Rehabilitation
(DVR) and had received assistive devices, including a computer to support wage employment as an occupational
therapist (OT). Elizabeth's self-employment goal was to start an OT private practice. She had more than 16 years’
experience as an OT in various settings, including schools, nursing homes, hospitals and community agencies.
Elizabeth decided to open a practice focusing on children with autism and sensory-processing disabilities.
Her business gave her the control and flexibility that she needed, while also providing accommodations for her
visual disability. A physical therapist and a speech and language pathologist offered to share their treatment space
and equipment. Elizabeth also needed to purchase evaluation materials and additional equipment, such as a
swing, spinner board, tilt board, sensory-tactile items and a sound system. Furthermore, she needed assistive
technology (AT) to accommodate her disability, including a closed-circuit TV-camera system. Using the closed-
circuit TV system, Elizabeth would be able to videotape the children in her practice and use the video to closely
view her OT evaluations and treatment sessions. She also needed an AT device that could read journals and
reports aloud, allowing Elizabeth to stay current in her practice.
START-UP/Alaska assisted Elizabeth in developing her business plan and financial projections, as well as accessing
additional funding from the Alaska Mental Health Trust Authority's microenterprise fund, which was approved.
This funding also provided a match to the funds Alaska’s DVR was willing to provide for the business start-up.
26
increase her breeding to meet the market demand and plans to add grooming to her services. START-UP/Alaska
helped her to customize her business to fit her own physical abilities and needs.
START-UP/Florida Entrepreneurs
Ren’s Story—Fly Fishing Equipment
Ren connected with START-UP/Florida when the SBDC suggested that he attend a training session it was
offering on self-employment for individuals with disabilities. The training was sponsored by START-
UP/Florida and START-UP/USA and held at the AJC in Lakeland, Florida. After listening to the presentation,
he realized that he could pursue selling handmade bamboo fly rods, this combining a personal hobby and his
need for employment.
The first step was to conduct a feasibility study. He then developed his business plan with input from START-
UP/Florida and START-UP/USA. Once the business plan was completed, it was submitted to VR for review.
Based on this review, he received funding for start-up costs and opened for business on November 2, 2007
specializing in the production and sales of hand-crafted, split-cane bamboo fly rods and handmade fly reels.
START-UP/Florida also assisted him in writing a PASS, which was approved for an 18-month period.
27
START-UP/New York Entrepreneurs
Greg's Story—Automotive Repair
For 35 years, Greg and his father owned and operated an auto detailing and minor repair shop. After his father
passed away, the business gradually decreased, and Greg experienced a debilitating back injury. As a result, he
was unable to manage the physical demands of the business and sales dropped. Greg wanted to work. However,
he did not want to close the business that he had built with his father. Since Greg owned the property, he decided
to rent parking spaces to supplement the detail work. Because the business was not turning a profit, he applied
for and began receiving SSDI benefits to supplement his wife’s earnings and to cover their basic monthly bills.
In March 2008, Greg learned about START-UP/New York from another participant. The program’s Business
Navigator supported Greg through a process of identifying and inventorying his strengths and conditions for
employment. Greg began exploring how his current strengths could fit into an auto detail and minor repair
business, while at the same time, identifying ways to provide accommodations for certain tasks. Through
brainstorming, the idea emerged to build having employees into the business model and to diversify services. As
his business ideas developed, Greg realized that he needed to complete a feasibility study. He had concerns that
the business would not be able to bring in enough sales to pay for an employee.
Greg was referred to the local Work Incentive Planner41 who specialized in understanding benefits related to self-
employment. Greg received some preliminary information about potential changes to his benefits if he decided to
pursue growing his business. The next step was to include the SBDC, which was facilitated by the START-UP/New
York Business Navigator. The SBDC counselor provided Greg support and structure for gathering the information
needed to complete his feasibility study. During this process, Greg was encouraged to reach out and utilize his
well-established network within the local auto industry to gather information on industry standards, trends and
opportunities. Through this research, Greg identified a local auto mechanic who was interested in teaming up
with him to offer state inspections and repairs at his shop. As Greg began to gather the feasibility information, it
became clear to him that a market was still available in his community. He also realized that his business could be
financially viable even with employees.
Once Greg completed the discovery and feasibility phases, he felt confident about making a decision to build his
business to a profitable level. Based on information he had gathered, Greg decided to continue offering detailing
services and hire an employee to do the bulk of the work. To reach this goal, Greg needed a business plan to
include the critical details of growing his business. He again talked with START-UP/New York, which
recommended that he apply for assistance from the Inclusive Entrepreneurship class at Syracuse University’s
Whitman School of Business. As a part of the class, students work in groups to support an entrepreneur with a
disability. Together, Greg and the group identified four outcomes to include marketing segmentation; redesigning
business cards, fliers and marketing communications; drafting a letter to potential fleet agency managers; and
compilation and completion of a business plan. Over time, Greg implemented the first portion of his business
plan, which included hiring an employee to perform auto detailing and minor repairs.
Stella's Story—Restaurant
Stella had been unemployed due to numerous foot surgeries and a lupus diagnosis. One day she went to the
Women Igniting the Spirit of Entrepreneurship Center at Syracuse University, where she met a number of women
who shared a variety of resources available to her as a minority woman. Upon further exploration, it became clear
that Stella would like to start a taco restaurant.
Stella was referred to START-UP/New York and met with the local Certified Work Incentives Planner. Stella
attended a monthly workshop that provided an overview of available work incentives including a PASS. Stella
41
SSA provided Community Work Incentive Coordinators (CWICs) in 102 locations around the country to assist with work incentive planning
through its Work Incentive Planning and Assistance project (http://www.ssa.gov/work/wipafactsheet.html ).
28
received $785/month of SSDI. With an approved PASS, she could set aside $765 per month of her SSDI monthly
benefit to pay for start-up expenses. After this was set aside, she would receive $761 per month of SSI and New
York’s State Supplement to cover her monthly living expenses. The Work Incentives Planner assisted Stella in
completing the PASS application and submitting it to SSA once she had her business plan completed, a required
step for a PASS with a self-employment work goal. At the close of START-UP funding, Stella had located the ideal
location and was refining her business plan.
MJ's Story—Photography
MJ’s mental health disability affected his ability to maintain and advance in employment. After years of
experimenting with medications and counseling, he was able to stabilize his condition. Given his natural talent
and interest in the arts, MJ determined photography and painting would be the best fit. While searching for help,
MJ learned about START-UP/New York from the SBDC. He contacted the START-UP/New York facilitator, who
then helped him to refine his business plan and to secure start-up funding. In April 2008, MJ was referred to the
local Work Incentives Planner who helped him rewrite his PASS application. Eventually, MJ was able to
accumulate enough start-up funds for initial operating expenses and photography equipment to enable him to
launch a business.
29
5. POLICY AND SYSTEMS BARRIERS AND FACILITATORS OF THE
TESTED INTERVENTIONS
Expected Barriers
In developing their projects, demonstration grantees faced a number of barriers associated with local operating
conditions, the conflict between vision and reality that all systems change endeavors encounter, and barriers that
could be attributed to federal and state program policies.
Attitudes and Views. Each of the START-UP demonstrations began with an exploration of which organizations
should be called upon to play a role in improving self-employment opportunities for people with disabilities. In
most instances the key agencies that participated in START-UP (workforce development, VR and SBDCs) are
separate entities that have their own priorities and performance expectations. While all have missions that can
benefit people with disabilities, they routinely have not joined together to develop self-employment options for
people with disabilities. All of the sites formed consortia, and there was variation in the length of time it took for
agencies to cooperate and constructively pursue collaborative actions toward START-UP’s goals. Attitudes, beliefs,
and views that self-employment was not possible or appropriate for people with disabilities was an obstacle to
progress that grantees had to overcome with communication and education.
Inconsistent Expectations. A consistent vision was not held by all parties involved as to what outcomes should be
expected. One individual in a leadership position felt that the agencies bearing the funding burden to support self-
employment should be able to limit self-employment aspirations to entrepreneurs with the greatest earnings
potential. Other individuals expressed views that an improved quality of life is a worthwhile outcome, and that if
self-employment moved a person from an existing job environment that paid low wages and did not take
advantage of their capabilities, the outcome should be considered positive regardless of income potential. This
tension over what outcomes are reasonable remained among some of the consortia members over time.
Know-how. All START-UP grantees mentioned that key players involved in service delivery generally had no
formal training or depth of knowledge in what it takes to start a small business and what kinds of supports people
with disabilities would need to succeed as entrepreneurs. Grantees spent considerable time and effort preparing
and securing resources to assist grantees in entrepreneurship. A substantial amount of time was also spent
identifying barriers and obstacles to self-employment on an individual participant level and on a systems level,
including service providers. Each grantee had to conduct an exploration and analysis of the resources and systems
available. Staff training and cross-system collaboration and capacity building remained a significant challenge.
Inconsistent Performance Expectations. Support for entrepreneurship involved departments of VR, funded
through the U.S. Department of Education; AJCs, funded by DOL; disability benefits, funded through the SSA; and
resources and training, offered by SBDCs and funded through the SBA. Each of these organizations has different
performance expectations under the Government Performance and Results Act (GPRA). Performance goals that
strive to reduce dependency on government assistance benefits quickly are at odds with self-employment and
entrepreneurship, which take time to develop. Except for SBA programs, none of the other stakeholders has
explicit performance goals in support of self-employment. It is an acceptable outcome, but because of the lack of
knowledge in assisting people with disabilities to pursue self-employment and the time it takes to develop a
business, support for entrepreneurship remains a secondary priority for systems focused on achievement of
employment outcomes.
Policies that Lead to Financial Disincentives for Self-Employment. People with disabilities are concerned about
the risk of losing disability benefits because of earnings from a small business. Government cash assistance
programs provide a standard of living just above poverty, and earnings from self-employment can jeopardize
eligibility for benefits, such as SSI and Medicaid, or reduce benefit amounts. Grantees felt overwhelmingly that
such a low standard of living is not an incentive to remain on cash assistance benefits. Yet they observed that
some people with disabilities feared that earnings from self-employment might not be sufficient to make up for
30
reduced or lost cash assistance and health benefits. Such concerns had to be addressed by grantees, and these
concerns prevented some people with disabilities from pursuing self- employment.
One grantee explored using IDAs to generate cash reserves for businesses, but found that participants must have
earned income to qualify for matching IDA funds. The business launch phase is the worst time to expect earnings,
but also the time that funds are most needed. One grantee was able to obtain matching funds through a
foundation instead of through participants’ earned income, but was unable to use the foundation grant’s funds
because IDAs require matching funds from earned income.
Complicated Work Incentives. Federal work-incentive policies are geared toward wage employment and are very
complicated relative to funding self-employment. Start-Up/USA spent considerable effort exploring this issue and
counseling people with disabilities on how to work within the system. Although this obstacle was overcome in
many instances for START-UP participants, the effort and resources to deal with it is a barrier for agencies and
people with disabilities. Further, the amount of savings permitted to retain SSI benefits is set at $2,000, which is a
very small cash reserve for a nascent business.
Funding Challenges. Policies and funding in VR, Social Security, and Medicaid are geared toward wage
employment and pose barriers to self-employment. VR programs offer limited funding, if any, for discovery. VR
funding may be inadequate to cover initial start-up and ongoing costs. Social Security and Medicaid income and
asset limits challenge entrepreneurs during the critical start-up phase of a business.
Some interview respondents expressed concern about ongoing funding to continue support for self- employment.
In observing the legacies of START-UP, greater success and continuity of support is observed in demonstrations
sites where resources from universities, grants and foundations were used to continue START-UP efforts. The
ongoing commitment and expertise of BBI at Syracuse University and the Alaska Mental Health Trust Authority in
Alaska provided an ongoing funding stream to continue and expand services in support of entrepreneurship for
people with disabilities. The absence of such expertise and non-government resources could pose a barrier to
other locations seeking to support entrepreneurship.
Unexpected Barriers
Participants’ Views and Attitudes. Grantees reported that some people with disabilities held limiting views that
prevented them from considering self-employment as a possibility. They had spent their lives being told "you
can't" and did not believe it would be possible for them to own a business or become self-employed. Grantees
expressed how gratifying it was for participants and for them to assist someone who never thought it would be
possible to own a business, especially people whose talents and skills were underutilized in jobs with little to no
potential for growth and advancement. Grantees also noted that in some instances, people spent two or three
years in the system and were declared totally “unemployable” by the SSA. Because of this, they were not inclined
to seek self-employment or any employment for that matter. Clearly, having been declared unemployable is not
an incentive to seek employment. Overall, grantees spent more effort than they expected in addressing such
concerns of participants.
Language and Communication. By bringing together stakeholders from the business and social service
communities, grantees found that language could be a barrier. Economic development partners like SBDCs and
business incubators tend to use a different vocabulary, one related to market analysis, return on investment and
business feasibility, than people with disabilities and service agencies, who tend to converse in terms focused on
public benefits and work incentives. The term “mainstream,” for instance, has very different meanings to the
business community and to the disability community. Thus, START-UP managers had to be sensitive to
communication issues in managing the collaborative process.42
42
Shaheen, Gary and Mintz, Jason. Mapping the Barriers and Facilitators to Self-Employment for People with Disabilities Living in Onondaga
County, NY. September 14, 2007.
31
6. RECOMMENDATIONS FOR THE FUTURE
The emerging and growing promise of self-employment, documented by the individual and systemic outcomes
achieved by START-UP’s three funded demonstration projects and national technical assistance center, raise the
bar of expectations for all relevant stakeholders: government, the business community, service delivery systems,
and people with disabilities and their families.
The START-UP initiative set a new conceptual framework that recognizes the creative spirit and capacity of
people with disabilities to be a part of the economic mainstream and contribute to !merica’s long-standing
spirit of entrepreneurism. With access to appropriate supports and improved coordination of multiple,
publicly funded service-delivery systems, people with disabilities can successfully pursue self-employment
as a choice to produce income, create jobs, reduce their reliance on public benefits, advance their
economic self-sufficiency, and improve the quality of their lives. As such, self-employment should be among
the national disability employment policy priorities.
To produce a long-term return on investment of the $5,000,000 expended on the START-UP initiative,
recommendations that provide a road map for sustainable, systematic change at the local, state and federal
levels are outlined below. The recommendations focus on policy and practice to accomplish three main
objectives:
1. Align policy across systems to reduce and eliminate barriers to individual exploration of
entrepreneurial goals that encourage income production and advancement of economic self-
sufficiency;
2. Promote cross-system collaboration and braiding of resources to invest in business start-up and job
creation for individuals with disabilities; and
3. Encourage public- and private-sector investment in, and purchase of, products and services offered
by businesses owned by people with disabilities.
Policy Alignment
Performance measures drive system behavior. Current federal performance measures for the public
workforce system do not account for activities at a state or local level that encourage and support self-
employment outcomes. If self-employment is not a stated and measured outcome, agencies are not likely
to give it priority and visibility. Reflecting this, the first recommendation is as follows:
Recommendation 1: Consider requiring state and local workforce investment boards to collect exit data
on self-employment outcomes and business start-ups with the number of jobs created. This would
necessitate modifying common performance measures to include a new set of separate indicators for
self-employment outcomes and wage employment outcomes, as well as milestones that support self-
employment outcomes, such as discovery and business plan development.
RSA and SSA do collect information on self-employment for exiters of their respective VR programs and
work incentive programs. However, the proportion of exiters in self-employment is very low, much lower
than the incidence of self-employment in the general labor force. To improve the number of exiters in self-
employment, a second recommendation is as follows:
Recommendation 2: Explore the possibility of having state VR agencies report annually to RSA on
indicators of expanded capacity and support of customers with disabilities who are interested in pursuing
entrepreneurial goals. To facilitate this, self-employment outcomes for VR, SSDI and SSI exiters should
have a benchmark, such as the rate of self- employment in the general labor force. Benchmarks would
also need to be established for critical groups, such as youth in transition and people with prior
employment experience.
32
In general, the underutilization of PASS and other work incentives, as well as their complexity and
cumbersome approval processes, may necessitate a rethinking and redesign. Reflecting this, a third
recommendation is as follows:
Recommendation 3: Seek ways to simplify the PASS process and make it friendlier to self-employment.
For instance, SSA could require SSI recipients to opt out, rather than into, the design and creation of a
PASS. This would require providing benefits advisement customized to individual needs that discusses the
choice of self-employment as a work objective, provides linkages to supports and services that help
explore entrepreneurship goals, and includes benefits planning assistance.
Restrictions on savings and earnings for individuals receiving SSI benefits make it more difficult for an individual
with a disability to accumulate funds needed to start and sustain a new business. PESS is an underutilized Social
Security work incentive that does not count certain resources in determining continuing eligibility for SSI.
Confusion exists as to whether SSI resource exclusion for PESS applies to business assets owned by an LLC.
In response to the confusion, a fourth recommendation is as follows:
Recommendation 4: Review legislation and SSA policies and guidance concerning income, resources and
assets, in order to make them friendlier to self-employment. As part of this, SSA could issue guidance to its field
offices, clarifying that assets owned by an LLC would not be counted in determining continuing eligibility for SSI
to further encourage self-employment as an approach to advancing self-sufficiency.
Several state and local agencies play an important role in preparing youth for employment and in providing
services that prepare people with disabilities for employment. RSA-funded VR agencies have policies supporting
wage employment but not policies tailored to self-employment. The low rate of RSA case closures resulting in self-
employment indicates that the policy infrastructure does not exist to support it as an outcome in state and local
agencies. Policy alignment is needed at the federal and state levels to cultivate a nationwide infrastructure to
produce higher rates of self-employment. Reflecting this, a fifth recommendation is as follows:
Recommendation 5: Federal and state agencies could work to better align policies in support of self-
employment for people with disabilities. For instance, RSA could articulate policies specific to self-employment,
including curricula for youth approaching transition, certification, and training for providers to guide people
with disabilities in developing small businesses, and financial support for the small business development
process, including discovery, business plan development, and implementation of business plans. In order to
ensure effectiveness, RSA policy guidance could include cooperation and collaboration with other agencies that
play a key role in self-employment, including SBDCs, Social Security, Medicaid, and AJCs. Policies of all involved
agencies would need to be aligned to recognize that a self-employment outcome requires more time and
specialized support than a wage employment outcome.
34
current research initiatives on the subject. Reflecting this, an eleventh and twelfth recommendation are as
follows:
Recommendation 11: Explore establishing a National Resource Center to Promote Entrepreneurship for
People with Disabilities . This Center would conduct relevant policy research and investigate systems
transformation issues as well as support training and provide technical assistance to states and the public
workforce system to advances self-employment outcomes for people with disabilities. An annual report
would update all relevant stakeholders, including the White House and Congress, on barriers and
facilitators to self- employment and quantitative indicators of progress to date.
Recommendation 12: The research budgets of relevant participating agencies (for instance, ETA, RSA,
SBA, SSA and EDA) could set priorities to increase knowledge and understanding of effective policy and
practices to support entrepreneurs with disabilities.
35
7. CONCLUSION
The strength of the START-UP initiative was to begin to document the potential benefits of cross-system
collaboration and the increased support of individuals with disabilities interested in self-employment. The
proposed recommendations in this report focus on resource coordination and policy alignment to shape
individual and system-wide behavior. A continued investment in research, capacity building and knowledge
translation can empower people with disabilities to build self-sufficiency and pay an important role in our
nation’s economic recovery.
36
8. Appendices
37
Appendix 1. START-UP/USA WEBCAST SERIES
Each year of the project, START-UP/USA produced and streamed live webcasts for a total of 19 webcasts
produced. These webcasts continue to be available through VCU's support even though funding has ended for the
project.
Webcasts were offered as a series to our stakeholders but they could also register for these as individual events. A
total of 2,545 individuals participated in the webcasts during the course of the project. In 2007, there were a total
Community Rehabilitation Providers & Creative Small Business Development Center - Business
Funding for Self-Employment Planning and Implementation
Number of Participants: 122
Number of Participants: 146
Negotiation Strategies for Business Owners & The Customized Self-Employment Model
Promoters Number of Participants: 116
WEBCAST ARCHIVES
38
After the live events, all webcasts were made available free of charge on the project's website. A review of the
online statistics reveals that the archives have been used by 11,276 visitors with a total of 17,442 page views. The
availability of the archives has significantly increased the reach of the project.
39
Appendix 2. START-UP/USA FACT SHEETS
Eighteen fact sheets and other resources were made available online during the project. These fact sheets
continue to be available at: http://www.start-up-usa.biz/resources/index.cfm . A review of the web statistics
shows that 12,866 individuals accessed the fact sheets during the length of the project with a total of 28,576 page
views.
Project Fact Sheets:
1. START-UP/USA Self-Employment Q and A: Braiding and Blending Funding for Business Start-Up
2. Self-Employment Q and A: Assistance not Assessment: Getting at the Heart of Small Business Feasibility
3. Self-Employment Q and A: Small Business Development Centers
4. Self-Employment Q and A: An Analysis of Self-Employment Outcomes within the Vocational
Rehabilitation System
5. Self-Employment Q and A: Low Cost/No Cost Marketing Strategies for Small Businesses
6. Self-Employment Q and A: Selecting a Business Structure
7. Plan to Achieve Self Support and Self-Employment
8. Self-Employment Q and A: Information on Entrepreneurship for Youth with Disabilities
9. Self-Employment Q and A: Discovery
10. Person-First Considerations for Generating Small Business Ideas
11. Self-Employment Q and A: Frequently Asked Questions from Families
12. Medicaid Home and Community Based Services
13. Disabled Veterans and Self-Employment
14. Community Resources
15. Successful Entrepreneurs with Disabilities Speak Out
16. Accessing VR Services
17. Develop a Business Plan
18. Self-Employment
40
Appendix 3. START-UP/USA SELF-EMPLOYMENT ONLINE COURSE
A total of 335 individuals participated in the online course that was developed by the project from April 2009
through November 2010. The course was offered eight times during this time period. Of the 335 individuals who
were enrolled in the online course, a total of 205 were individuals with disabilities who received the course free
of charge.
The last section of the course was specifically offered to individuals who belong to the MS Society, and a total of
75 participants were enrolled. Based on the feedback from the participants, the MS Society began offering the
online course to its participants throughout the U.S. beginning in 2011.
The course is covering these important topics on self-employment and more:
Strategies for Exploration and the Discovery Process
Writing a Business Plan
Conducting a Feasibility Study
Accessing Community Supports
Identifying Funding
Using Work Incentives
Lesson One: Self-Employment Overview
Lesson Two: Social Security Work Incentives, Medicaid Waivers, and Self-Employment
Lesson Three: Accessing Support Services from Vocational Rehabilitation and Community Rehabilitation
Programs
Lesson Four: Community Supports for Self-Employment
Lesson Five: Quick-Launch Business Start-Up
Participating Agencies
Alaska Division of Vocational Rehabilitation Minot State University
California Dept. of Rehabilitation Missouri Vocational Rehabilitation
Chesterfield Vocational Services National Organization on Disability
Community Integrated Services New Directions
Community Opportunities Northeast Michigan Comm. Mental Health
County of Summit Board of MRDD Ohio Rehabilitation Services Commission
DARS/Division for Blind Services Texas Oklahoma Dept. of Rehabilitation Services
DHS - Vocational Rehabilitation American Job Centers
DisAbility Resource Center Progressive Community Services
EmployAbility Prince George County Public Schools
Employment Resources, Inc. Radford University
Good will SWPA REACH-Inc.
Graves Consulting & Transition Services Ridge Meadows Association for Community Living
Independent Abilities Center The Cerebral Palsy Center
Idaho Division of Vocational Rehabilitation The Polus Center
Illinois Assistive Technology Program University of Massachusetts, Institute for Community
Independent Living Resources Inclusion, Boston
Jackson County Developmental Center, Inc. United Cerebral Palsy of Michigan
Jennifer Logan Rehabilitation Services Work-Able, Inc.
Kaposia, Inc. The Jewish Disability Empowerment Center
Lane Community College
41
The online course served as the foundation for the development of Florida's online Certified Business and
Technical Assistance Consultant (CBTAC) Certification for self-employment and the FL-CBTAC Re-certification
Courses. In addition, this course was being replicated in both Texas and Ohio beginning in 2011. The appendix
includes the outline for the course that is now available through Virginia Commonwealth University in
collaboration with Griffin-Hammis, LLC and the Center for Social Capital.
42