QUALITY OF LIFE IN EPILEPSY - QOLIE-31 (Version 1.

0)
US English QOLIE-31 Copyright 1993, RAND. All rights reserved. The QOLIE-31 was developed in cooperation with Professional
Postgraduate Services.

Today’s Date _______ / _______ / _______

mm dd yy

Patient’s Name ________________________

Age: ___ ___ years

INSTRUCTIONS

The QOLIE-31 is a survey of health-related quality of life for adults (18 years or older) with
epilepsy. [Adolescents (ages 11-17 years) should complete the QOLIE-AD-48, which is
designed for that age group.] This questionnaire should be completed only by the person who
has epilepsy (not a relative or friend) because no one else knows how YOU feel.

There are 31 questions about your health and daily activities. Answer every question by circling
the appropriate number (1, 2, 3...). If you are unsure about how to answer a question, please
give the best answer you can and write a comment or explanation on the side of the page.
These notes may be useful if you discuss the QOLIE-31 with your doctor. Completing the
QOLIE-31 before and after treatment changes may help you and your doctor understand how
the changes have affected your life.

This copy of the QOLIE-31 is provided by the Epilepsy Therapy Project, who bring you
www.epilepsy.com, your trusted source for epilepsy information. We wish you success in living
your life with epilepsy.

1. Overall, how would you rate your quality of life?

(Circle one number on the scale below)

10 9 8 7 6 5 4 3 2 1 0

Best Possible Worst Possible

Quality of Life
Quality of Life
(as bad as or
worse than
being dead)
These questions are about how you FEEL and how things have been for you during
the past 4 weeks. For each question, please indicate the one answer that comes
closest to the way you have been feeling.

How much of the time during the past 4 weeks...

(Circle one number on each line)

All Most A good Some A little None

of the of the bit of of the of the of the
time time the time time time time

2. Did you feel full of pep? 1 2 3 4 5 6

3. Have you been a very 1 2 3 4 5 6

nervous person?

4. Have you felt so down in the 1 2 3 4 5 6

dumps that nothing could
cheer you up?

5. Have you felt calm and 1 2 3 4 5 6

peaceful?

6. Did you have a lot of 1 2 3 4 5 6

energy?

7. Have you felt downhearted 1 2 3 4 5 6

and blue?

8. Did you feel worn out? 1 2 3 4 5 6

9. Have you been a happy 1 2 3 4 5 6

person?

10. Did you feel tired? 1 2 3 4 5 6

11. Have you worried about 1 2 3 4 5 6

having another seizure?

12. Did you have difficulty 1 2 3 4 5 6

reasoning and solving
problems (such as making
plans, making decisions,
learning new things)?

13. Has your health limited your 1 2 3 4 5 6

social activities (such as
visiting with friends or close
relatives)?
14. How has the QUALITY OF YOUR LIFE been during the past 4 weeks (that is,
how have things been going for you)?
(Circle
one
number)

Very well:
1
could hardly be better

Pretty good 2

Good & bad parts about equal 3

Pretty bad 4

Very bad:
5
could hardly be worse

Copyright  Trustees of Dartmouth College

The following question is about MEMORY.

(Circle one number)

Yes, a great Yes, Only No,

deal somewhat a little not at all

15. In the past 4 weeks, have 1 2 3 4

you had any trouble with
your memory?

Circle one number for how often in the past 4 weeks you have had trouble
remembering or how often this memory problem has interfered with your normal work
or living.

All Most A good Some A little None

of the of the bit of of the of the of the
time time the time time time time

16. Trouble remembering things 1 2 3 4 5 6

people tell you

The following questions are about CONCENTRATION problems you may have. Circle
one number for how often in the past 4 weeks you had trouble concentrating or how
often these problems interfered with your normal work or living.

All Most A good Some A little None

of the of the bit of of the of the of the
time time the time time time time

17. Trouble concentrating on 1 2 3 4 5 6

reading

18. Trouble concentrating on 1 2 3 4 5 6

doing one thing at a time

The following questions are about problems you may have with certain ACTIVITIES.
Circle one number for how much during the past 4 weeks your epilepsy or
antiepileptic medication has caused trouble with...

A great Only Not

A lot Somewh
deal a little at all
at

19. Leisure time (such as 1 2 3 4 5

hobbies, going out)

20. Driving 1 2 3 4 5
The following questions relate to the way you FEEL about your seizures.

(Circle one number on each line)

Very Somewhat Not very Not fearful

fearful fearful fearful at all

21. How fearful are you of 1 2 3 4

having a seizure during the
next month?

Worry a lot Occasionally Don’t worry

worry at all

22. Do you worry about hurting 1 2 3

yourself during a seizure?

Very Somewhat Not very Not at all

worried worried worried worried

23. How worried are you about 1 2 3 4

embarrassment or other
social problems resulting
from having a seizure during
the next month?

24. How worried are you that 1 2 3 4

medications you are taking
will be bad for you if taken
for a long time?

For each of these PROBLEMS, circle one number for how much they bother you on
a scale of 1 to 5 where 1 = Not at all bothersome, and 5 = Extremely bothersome.

Not at all Extremely

bothersome bothersome

25. Seizures 1 2 3 4 5

26. Memory difficulties 1 2 3 4 5

27. Work limitations 1 2 3 4 5

28. Social limitations 1 2 3 4 5

29. Physical effects of 1 2 3 4 5

antiepileptic medication

30. Mental effects of 1 2 3 4 5

antiepileptic medication
31. How good or bad do you think your health is? On the thermometer scale
below, the best imaginable state of health is 100 and the worst imaginable state
is 0. Please indicate how you feel about your health by circling one number on
the scale. Please consider your epilepsy as part of your health when you
answer this question.