RCVMHS FinalReport Vol5 Accessible
RCVMHS FinalReport Vol5 Accessible
Volume 5
Transforming the system—
innovation and implementation
Royal Commission into
Victoria’s Mental Health System
Volume 5
Transforming the system—
innovation and implementation
ORDERED TO BE PUBLISHED
Authorised and published by the Royal Commission into Victoria’s Mental Health System,
Melbourne Victoria.
© State of Victoria, Royal Commission into Victoria’s Mental Health System, February 2021.
Except where otherwise indicated, the images in this publication show models and illustrative
settings only, and do not necessarily depict actual services, facilities or recipients of services.
This publication may contain images of deceased Aboriginal and Torres Strait Islander peoples.
In this document, ‘Aboriginal’ refers to both Aboriginal and Torres Strait Islander people.
‘Indigenous’ or ‘Koori/Koorie’ is retained when part of the title of a report, program or quotation.
Available at the Royal Commission into Victoria’s Mental Health System website
<www.rcvmhs.vic.gov.au>. If you have any questions about the Commission’s work please
contact the Department of Health <[email protected]>.
ISBN
Suggested citation: State of Victoria, Royal Commission into Victoria’s Mental Health System,
Final Report, Volume 5: Transforming the system—innovation and implementation, Parl Paper
No. 202, Session 2018–21 (document 6 of 6).
Volume 5 Front matter
Acknowledgement of
Aboriginal land and peoples
The heritage of Aboriginal communities throughout Victoria is vibrant, rich and diverse. We
value these characteristics and consider them a source of strength and opportunity. We
recognise that the leadership of Aboriginal communities and Elders in Victoria is crucial
to improving outcomes for Aboriginal people. Also to be acknowledged, however, are the
devastating impacts and the accumulation of trauma resulting from colonisation, genocide,
the dispossession of land and children, discrimination and racism.
The Royal Commission into Victoria’s Mental Health System proudly acknowledges
Aboriginal people as the First Peoples and Traditional Owners and custodians of the land
and water on which we rely. We acknowledge that Aboriginal communities are steeped in
traditions and customs, and we respect this. We acknowledge the continuing leadership
role of the Aboriginal community in striving to redress inequality and disadvantage, and the
catastrophic and enduring effects of colonisation.
We recognise the diversity of Aboriginal people living throughout Victoria. Although the terms
‘Koorie’ and ‘Koori’ are commonly used to describe Aboriginal people of south-east Australia,
we use the term ‘Aboriginal’ in this report to include all people of Aboriginal and Torres Strait
Islander descent who are living in Victoria. This approach is consistent with the language
conventions of key Victorian frameworks such as the Aboriginal Affairs Framework 2018–2023.
The Royal Commission is conscious that its work is taking place concurrently with renewed
efforts to achieve constitutional recognition of Aboriginal peoples and treaty processes that
are underway in Victoria. We commit to building on this momentum and to ensuring our work
is shaped by the voice of Aboriginal people.
iii
Royal Commission into Victoria’s Mental Health System
iv
Volume 5 Front matter
Contents
Acknowledgement ofAboriginal land and peoples iii
A note on content x
Introduction 1
v
Royal Commission into Victoria’s Mental Health System
36.4 The features of an adaptive mental health and wellbeing system 136
37.3 Implementing the reimagined mental health and wellbeing system 225
vi
Volume 5 Front matter
vii
Royal Commission into Victoria’s Mental Health System
Appendices 401
Glossary 474
viii
Volume 5 Front matter
ix
Royal Commission into Victoria’s Mental Health System
A note on content
The Royal Commission recognises the strength of people living with mental illness or
psychological distress, families, carers and supporters, and members of the workforce who
have contributed their personal stories and perspectives to this inquiry.
Some of these stories and the Commission’s analysis may contain information that could be
distressing. You may want to consider how and when you read this report.
Aboriginal readers are advised that this report may contain photos, quotations and/or names
of people who are deceased.
If you are upset by any content in this report, or if you or a loved one need support, the
following services are available to support you:
• If you are not in immediate danger but you need help, call NURSE-ON-CALL
on 1300 60 60 24.
• For crisis support, contact Lifeline on 13 11 14.
• For phone-based support contact Beyond Blue on 1300 224 636.
• If you are looking for a mental health service, visit betterhealth.vic.gov.au.
• For situations that are harmful or life-threatening, contact emergency services
immediately on Triple Zero (000).
x
Volume 5 Front matter
There is no single set of definitions used to describe how people experience their mental
health. This diversity is reflected in the many terms used to capture people’s experiences
throughout the evidence put before the Commission.
As stated in the Commission’s interim report, words and language can have a lasting impact
on a person’s life. They can empower and embolden. They can be used to convey hope and
empathy. But they can also be divisive when used to dispossess and divide, and to stigmatise
and label.
The Commission has considered the many perspectives on terminology, and acknowledges
that language can be deeply contested and nuanced. Although it has at all times tried to use
inclusive and respectful language, the Commission is aware that not everyone will agree with
the terminology used.
Another consideration for the Commission has been this report’s broad audience, including
people with lived experience of mental illness or psychological distress, families, carers
and supporters, workers in the mental health system, government and the wider Victorian
community. This diverse audience needs to be able to read the report and understand its
intent at this point in time in the development of the mental health system.
Below is a list of important terms in the report and how the Commission understands them.
This list largely reflects the requirement to align with definitions outlined in the Commission’s
letters patent. It is also consistent with the Commission’s interim report for the purposes
of clarity.
Carer Means a person, including a person under the age of 18 years, who provides
care to another person with whom they are in a relationship of care.
Consumer People who identify as having a living or lived experience of mental illness or
psychological distress, irrespective of whether they have a formal diagnosis,
who have used mental health services and/or received treatment.
Good mental A state of wellbeing in which a person realises their own abilities, can cope
health with the normal stresses of life, can work productively and is able to make a
contribution to their community.
xi
Royal Commission into Victoria’s Mental Health System
Lived People with lived experience identify either as someone who is living with (or
experience has lived with) mental illness or psychological distress, or someone who is
caring for or otherwise supporting (or has cared for or otherwise supported)
a person who is living with (or has lived with) mental illness or psychological
distress. People with lived experience are sometimes referred to as
‘consumers’ or ‘carers’. The Commission acknowledges that the experiences
of consumers and carers are different.
Mental health The Commission outlines in this report its vision for a future mental health
and wellbeing and wellbeing system for Victoria. Mental health and wellbeing does not
system refer simply to the absence of mental illness or psychological distress but
to creating the conditions in which people are supported to achieve their
potential. As part of this approach, the Commission has also purposefully
chosen to focus on the strengths and needs that contribute to people’s
wellbeing. To better reflect international evidence about the need to strike
a balance between hospital-based services and care in the community, the
types of treatment, care and support the future system offers will need to
evolve and be organised differently to provide each person with dependable
access to mental health and wellbeing services and links to other supports
they may seek. The addition of the concept of ‘wellbeing’ represents a
fundamental shift in the role and structure of the system.
The Commission uses the above definition of mental illness in line with the
Mental Health Act 2014 (Vic).
Psychological One measure of poor mental health, which can be described as feelings of
distress tiredness, anxiety, nervousness, hopelessness, depression and sadness. This
is consistent with the definition accepted by the National Mental Health
Commission.
Social and Being resilient, being and feeling culturally safe and connected, having and
emotional realising aspirations, and being satisfied with life. This is consistent with Balit
wellbeing Murrup, Victoria’s Aboriginal social and emotional wellbeing framework.
xii
Volume 5 Front matter
Treatment, The Commission uses this phrase consistently with its letters patent. This
care phrase has also been a deliberate choice throughout this report to present
and support treatment, care and support as fully integrated, equal parts of the way
people will be supported in the future mental health and wellbeing system. In
particular, wellbeing supports (previously known as ‘psychosocial supports’)
that focus on rehabilitation, wellbeing and community participation will sit
within the core functions of the future system.
The Commission only departs from these terms when referring to specific data sources,
describing research works, or quoting an individual or organisation. The original language
is retained wherever possible to accurately reflect the views and evidence presented to
the Commission. For example, the Commission quotes individuals and organisations that
sometimes refer to ‘mental disorder’, rather than the Commission’s preferred terms of
‘mental illness or psychological distress’. Terms such as ‘disorder’ can be pathologising
and stigmatising, so the Commission only retains them if others use them to convey a
specific meaning.
xiii
Royal Commission into Victoria’s Mental Health System
Based on these sources, the Commission has included a selection of personal stories that
appear throughout this report. These stories provide the individual’s personal recollections of
their interactions and experiences with Victoria’s mental health system.
The Commission has also included a selection of case studies that are primarily about
services or approaches that illustrate reform opportunities or innovation.
The Commission wanted to consider a broad range of ideas for improving the mental health
system. Therefore, some of these personal stories and case studies include perspectives from
outside of Victoria.
With the permission of the individuals involved, these have been modified for privacy and
confidentiality where appropriate. In some instances, the Commission has also made
non‑publication orders to protect privacy and confidentiality.
xiv
Volume 5 Front matter
xv
Royal Commission into Victoria’s Mental Health System
xvi
Volume 5 Introduction
Introduction
1
Royal Commission into Victoria’s Mental Health System
2
Volume 5 Introduction
As required by the Commission’s letters patent, the Commission was a policy‑based inquiry.
This report presents the findings from this process and sets out recommendations to inform
the design of a new mental health and wellbeing system.
The Victorian community made more than 12,500 contributions to inform the Commission’s
work. The Commission has listened to this diversity of voices and analysed a wide variety of
data and research. These inputs have illustrated the factors that shape people’s experiences
of mental health and wellbeing and have formed the basis for the design of the future system
and services.
Volume 1 of this report outlines a new approach to providing Victorians with the right mental
health treatment, care and support at the right time, and in the right places across the state.
Volume 2 describes the collaboration needed to support good mental health and wellbeing.
Volume 3 outlines reforms to promote inclusion and address inequities in the mental health
system. Volume 4 explains the features that will ensure the system provides high‑quality and
safe services.
This volume starts by looking forward, outlining how the system will continue to be
transformed. It sets out the technology, information and expertise required for a contemporary
system, and how it will drive continuous improvement. It also details considerations for
implementing the Commission’s recommendations and proposes a 10‑year implementation
agenda that comprises three waves of reform. The volume concludes by looking back at the
work and processes of the Commission itself.
Harnessing the power of technology will be critical to providing a connected and accessible
mental health and wellbeing system for consumers, families, carers and supporters. As
outlined in Chapter 34: Integrating digital technology, a contemporary mental health and
wellbeing system should use the latest technologies to offer people access to the full range of
services and support available and help them navigate options so they receive continuity of
care. It should recognise diversity and allow people to access flexible, personalised supports,
regardless of where they live, the language they speak, their identity or their background.
3
Royal Commission into Victoria’s Mental Health System
The Collaborative Centre for Mental Health and Wellbeing will be the heart of this constantly
learning and improving system. Drawing together expertise from across Victoria and around
the world, the centre will research, develop and disseminate effective practice to effect
large‑scale positive changes across the system. It will translate cutting‑edge research into
practice through disseminating knowledge and research, and through providing treatment,
care and support across the state.
Dedicated funding and support for innovation will encourage consumers, people working in
the system, investors and entrepreneurs to try new approaches to providing services. The
Department of Health will systematically require and support the evaluation of emerging
innovations and established programs. It will use findings from research and practice to make
evidence‑informed approaches widely available. Refer to Chapter 36: Research, innovation
and system learning for details.
The changes described in this report are enormous and touch every part of the system.
Transformation will take strong leadership, courage and collaborative effort from all partners
involved in the delivery of reform over many years.
The Commission has considered the task that lies ahead for implementers and has tried to
make practical recommendations, anticipate implementation challenges, and consider how
to prioritise the work ahead.
4
Volume 5 Introduction
Chapter 37: Implementation aims to help prepare the Victorian Government and all partners
involved in implementation for success by exploring the requirements needed for enduring
and profound change across Victoria’s mental health system—as well as potential pitfalls. It
also proposes a 10‑year implementation agenda that comprises three waves of reform. This
plan must adapt and evolve with the changing environment in which implementation will take
place. Victorians need to be confident that the government will stay true to the Commission’s
aspirations and make the hopes of people with lived experience of mental illness or
psychological distress, families, carers and supporters a reality.
5
Royal Commission into Victoria’s Mental Health System
6
Volume 5 Chapter 34: Integrating digital technology
Chapter 34
Integrating digital
technology
7
Royal Commission into Victoria’s Mental Health System
8
Volume 5 Chapter 34: Integrating digital technology
Recommendation 60:
1. d
evelop new statewide digital service requirements for all publicly funded mental
health and wellbeing service providers that outline the consistent minimum digital
functionality every provider should offer to consumers, families, carers and supporters.
2. s
upport mental health and wellbeing service providers to adopt digital technologies,
where safe and appropriate to do so, through:
3. e
nable mental health and wellbeing services to offer people living with mental illness or
psychological distress access to devices, data and digital literacy support, where it is
their preference to use digital services but they are otherwise unable to do so.
9
Royal Commission into Victoria’s Mental Health System
The Victorian mental health and wellbeing system needs to deliver services in responsive,
compassionate, flexible and collaborative ways to give people the support they need,
when it is needed. New service offerings where providers work collaboratively to support
a consumer’s needs will help to achieve this goal. New planning approaches will ensure
environments, both physical and virtual, are inclusive, modern and welcoming. New skills and
approaches to practice will enable services to provide people tailored treatment, care and
support, regardless of their needs.
The system will also draw on, develop and test new ideas and evidence to determine what is
working and what can be improved. Delivering this mental health and wellbeing system requires
policy settings and service features that are designed with consumers, families, carers and
supporters.
The Commission’s interim report recognised that technological advancements offer the
potential to reimagine service access and delivery.1 Adopting digital technologies across
the health system is recognised as an important tool to help achieve more person‑centred
health and wellbeing support,2 high‑quality care3 and service delivery that focuses on early
intervention and coordinated care.4 Harnessing the power of technology will be critical to
providing a connected and accessible mental health and wellbeing system that promotes
continuity of treatment, care and support for consumers, families, carers and supporters.
While there has been growing support for using technology to address some of health’s
biggest challenges—such as increasing service demand, rising costs and shifting
workforce and consumer expectations5—its uptake in mental health, both in Australia and
internationally, has been limited.6 The COVID‑19 pandemic has sped up the adoption of some
forms of technology,7 but there are opportunities to build service delivery innovation and
improve the way services are accessed and experienced by consumers.8
A contemporary mental health and wellbeing system should use the latest technologies
to offer people access to the full range of services and support available and help them
navigate options so they receive continuity of treatment, care and support. It should
recognise diversity and allow people to access flexible, personalised supports, regardless of
where they live, the language they speak, their identity or their background.
10
Volume 5 Chapter 34: Integrating digital technology
These core functions are described in Chapter 7: Integrated treatment, care and support in
the community for adults and older adults, Chapter 12: Supporting perinatal, infant, child
and family mental health and wellbeing, and Chapter 13: Supporting the mental health and
wellbeing of young people.
People should have information at their fingertips and choice in the ways they receive
treatment, care and support, whether it be face‑to‑face, or through telehealth, text, email
or online. Automated referrals and online booking functions should simplify navigation and
movement between services, and there should be greater access to blended care, which
is discussed in more detail in Box 34.1. These things should be routinely available to people
while maintaining the highest standards of quality, trust, safety and human rights. Of course,
digital service delivery may not be the preference of every individual, nor appropriate
or accessible to all consumers. A range of service options and modes should always be
available, to ensure that no one is left behind.
Figure 34.1 outlines the Commission’s vision for a digitally integrated mental health and
wellbeing system. The Commission expects that new digital technologies will emerge, and will
continue to change the services and supports on offer. Because of this, the system will need
to be adaptable.
11
Royal Commission into Victoria’s Mental Health System
Figure 34.1: The Commission’s vision for a digitally integrated mental health and wellbeing system
12
Volume 5 Chapter 34: Integrating digital technology
13
Royal Commission into Victoria’s Mental Health System
One roundtable participant told the Commission that people are shifting to accessing
support online, particularly where they may have previously had negative experiences of
accessing face‑to‑face treatment, care and support:
I just think more people access things online, more people don’t want to go into a
hospital, especially if they’ve had negative experiences … you’ve got to have options
available to people.10
Associate Professor Simon Stafrace, Chief Adviser at Mental Health Reform Victoria, said in
a personal capacity that digital technologies have the potential to markedly transform the
mental health system:
I have little doubt that in time, digital technologies will create a new paradigm [model]
for mental health services that will transform the ways in which treatment is delivered,
information is shared and recorded, and the workforce is recruited, trained and
developed.11
There are already numerous and diverse digital tools and interventions being used within and
outside of the public mental health system, and digital technologies are changing quickly.
Box 34.1 summarises some of the most well‑known digital interventions and tools, as well as
the major terms used to describe digital technology in mental health.
14
Volume 5 Chapter 34: Integrating digital technology
The terminology used to describe the use of technology in health and mental
health care varies. The Commission considers that ’digital mental health
technology’ refers to the use of online and other digital technologies to improve
mental health and wellbeing, including access to information, service delivery,
education and wellbeing promotion.
This report uses ‘digital mental health technology’ as an overarching term that
encompasses many types of technology. Where relevant, however, the report
names specific technologies. Some of the major technologies used in the sector
are described below.
Text and chat‑based support—the use of text (phone) and chat (web) channels
to communicate with a service or support person.22 This can be in real time,
where both people communicate at the same time, or it can be asynchronous; for
example, the consumer leaves a message and a support person responds later.
One example is the Crisis Text Line in the United States.23 Consumers in crisis can
access free, 24/7 support. They text the supplied number and can exchange texts
with a trained crisis counsellor.24
15
Royal Commission into Victoria’s Mental Health System
Virtual or augmented reality (VR)—VR creates digitally generated worlds that the
user experiences through a digital device (such as a headset). In mental health,
VR is mostly being used as an aid to help clinicians to coach people through
difficult scenarios (such as phobias, social anxiety or post‑traumatic stress
disorder), and to help them adjust their behaviour and build coping strategies
that they can apply in real‑world settings.34
16
Volume 5 Chapter 34: Integrating digital technology
As noted above, digital technologies and interventions have a range of uses. Dr Piers Gooding,
Research Fellow at the Melbourne Social Equity Institute and the University of Melbourne
Law School, told the Commission in a personal capacity that technologies in mental health
services can be used for many purposes, including:
Figure 34.2 summarises some of the main technologies and their uses.
17
Royal Commission into Victoria’s Mental Health System
Figure 34.2: Major digital mental health technologies and their primary purpose
Source: Witness Statement of Dr Piers Gooding, 25 June 2020, paras. 18 (a–g); Piers Gooding, ‘Mapping the rise of
digital mental health technologies: emerging issues for law and society’, International Journal of Law and Psychiatry,
67 (2019), 1–11.
18
Volume 5 Chapter 34: Integrating digital technology
Helplines such as Beyond Blue,45 Lifeline46 and Suicide Call Back now offer, or are moving to
offer, multichannel and flexible access to support through text and web‑based chat services.
Ms Georgie Harman, CEO of Beyond Blue said that digital technology is shifting the way
information is accessed by consumers and is enhancing choice. This has changed the way
Beyond Blue responds to people.
The digital revolution has shifted the way in which information is created, received,
collected and shared. It has also enhanced the ways people can interact with each
other and broader communities, with a potential 24‑hour cycle of connectivity and more
consumer choice than ever. These trends have changed how Beyond Blue reaches out to
support people, how they reach out to us, and how they interact with each other.47
Beyond Blue is now implementing a new three‑year strategy using technology to create an
integrated online platform that offers consumers personalised experiences through a range
of channels informed by consumer preference.48
Outside of the public mental health system, many digital mental health services have
emerged in response to consumer needs and preferences, and they are gaining popularity.
The Black Dog Institute, which specialises in digital mental health interventions for anxiety
and depression, stated that there is growing use of and support for digital self‑help tools,
especially among people experiencing mild to moderate forms of depression and anxiety.49
The uptake of these supports has increased significantly during the COVID‑19 pandemic.
Dr Hila Haskelberg, Program Manager of THIS WAY UP at St Vincent’s Public Hospital Sydney,
told the Commission in a personal capacity that THIS WAY UP made its online courses
available directly to the public in 2015 in response to consumer demand for online delivery.50
Since the COVID‑19 pandemic, THIS WAY UP has experienced a 600 per cent increase in
the number of clinicians registering consumers to use their online courses and a 700 per
cent increase in the number of people accessing the courses.51 The organisation recently
partnered with Bupa Australia to give more people access to the program.52
Dr Addie Wootten, CEO of the widely used mindfulness app Smiling Mind, told the Commission
that since the COVID‑19 pandemic began the app has seen a 165 per cent increase in
downloads and a 367 per cent increase in monthly active users.53 The app is especially
popular with young people and is now used by one‑third of Australian educators in the
classroom, as well as by 50,000 participants in workplaces nationally.54
19
Royal Commission into Victoria’s Mental Health System
Large technology companies are also increasingly investing in early intervention in poor
mental health.55 During a roundtable, some companies noted that the internet is often the
first place people go when seeking information on mental health or services (such as through
online searches or forums). They indicated that this means online platforms provide a unique
opportunity to engage with people early and to help them access the right treatment, care
and support.56
One example is Twitter, which has partnered with Lifeline to offer the #ThereIsHelp
notification service, which provides people with mental health resources, and encourages
them to reach out and seek help when needed.57 Twitter has also supported Lifeline to launch
the #BeaLifeline direct message chatbot. The chatbot helps families, carers and supporters
to easily discover Lifeline’s resources, seek advice, or to discreetly request professional phone
or text support in times of need.58
Recent research has shown that as many as 80 per cent of young people would like to
receive support from mental health professionals via social media in the future, and others
may prefer to use online forums or blogs, indicating that social media platforms could be an
important avenue to support future service delivery.59
Advocacy organisations and groups are increasingly using digital technologies to improve
people’s understanding of their rights through the interactive provision of support tools and
resources. For example, Independent Mental Health Advocacy has co‑produced a self‑help
tool for people who want information and support to exercise their rights when they are
receiving compulsory treatment.60
Digital channels are also increasing the reach of peer support networks, and offer consumers
greatly expanded peer support options.61 One example is the online peer support initiative,
the Big Feels Club. The Big Feels Club offers support to people experiencing psychological
distress through online forums, podcasts, articles and sometimes face‑to‑face meet‑ups.62
Mr Graham Panther, a witness before the Commission and co‑founder of the Big Feels Club,
told the Commission that he and his co‑founder, Ms Honor Eastly, established the platform to
give people somewhere to go and hear from people like themselves, creating a community of
people with similar experiences to support one another.63
The Big Feels Club’s podcasts, online articles and online community are providing new forms
of support that are not available anywhere else in Victoria.64 Mr Panther noted that The Big
Feels Club has amassed nearly 6,000 community members, and its articles and podcasts
have been downloaded more than one million times.65 The growing use of these types of
supports indicates they are meeting a consumer need.
Within public health and mental health services, technologies such as telehealth (phone and
videoconferencing) and websites are now becoming commonplace and are embedded within
service delivery. These interventions have a strong evidence base and are being implemented
by government‑funded services.66
Since early 2020 the adoption of digital technologies has rapidly grown in response to the
COVID‑19 pandemic.67 Associate Professor Stafrace said that in mid‑2020, 40–100 per cent of
private psychiatrists’ work was being conducted using telehealth.68
20
Volume 5 Chapter 34: Integrating digital technology
Area mental health services have transitioned to using telehealth for much of their
community service delivery.69 Ms Kym Peake, then Secretary of the former Department of
Health and Human Services, said that in April 2019, area mental health services had only
delivered 346 consumer contacts via teleconference. In April 2020 this number increased to
more than 10,000 consumer contacts.70 Ms Peake noted that, where appropriate, telehealth
is being used for triage, screening, assessment and some aspects of community‑based
treatment.71
The Commission understands that the COVID‑19 pandemic has resulted in a shift in mode of
contact with consumers. While face‑to‑face contacts reduced between March and June 2020
compared with the same time in 2019, telephone and telehealth (video) increased.72 Figure
34.3 shows the rapid growth in telehealth use in community mental health services since the
start of 2020 and compared with 2019 levels. The growth was mostly caused by the impact
of the COVID‑19 pandemic, but it indicates that some people were able to use telehealth to
access treatment, care and support, though further work is needed to understand people’s
preferences.
Telehealth is also allowing for more contacts and flexibility, and improved administrative
productivity. Mr Angus Clelland, CEO of Mental Health Victoria, noted that online and phone
delivery has allowed services to offer consumers flexible options, such as substituting four
30‑minute video sessions for a two‑hour, face‑to‑face session.73 This approach has allowed
consumers to keep regular contact but also allowed mental health workers to provide
support to more people.74 Ms Peake noted that services are introducing innovative new ways
of working, including through online clinics and the provision of virtual subacute care, as
opposed to bed‑based services.75
Source: Department of Health and Human Services, Client Management Interface/Operational Data Store, 2019–20.
Note: Includes contacts where the patient is not present. Other mode category not displayed.
21
Royal Commission into Victoria’s Mental Health System
The digital revolution is one of the biggest forces transforming the ways in which we as a
society interact with one another and is reshaping systems globally and locally.78 The rapid
pace of change generated by the digital revolution influences how people communicate, find
and receive information, and how they engage with services.79 For example, social media
platforms such as Facebook and Twitter only emerged in the early 2000s, but social media
is now used by just over 70 per cent of the Australian population.80 This pace of change
continues to grow and move quickly, and so do advancements and opportunities in the digital
mental health space, particularly through collaboration with industries.
Given the rapid pace of change in digital technologies, there will be a need for the Victorian
Government to closely monitor new and emerging digital technologies and services and build
strategies to leverage innovation to improve mental health and wellbeing outcomes. This
should include testing new approaches and assessing their impact through partnerships with
consumers, academics, the private sector and service providers.81 This evidence base can
then support future investment in technologies and services that will have the biggest impact
on improving outcomes.82
Figure 34.4 outlines the Commission’s assessment of the maturity of major digital
technologies that may transform the mental health and wellbeing system—that is, how far
progressed they are from ‘being tested’ to ‘established’ and supported by evidence. As the
figure shows, some technologies require more research and evaluation to understand their
potential impacts, benefits and risks for consumers and services, but given the speed at
which technologies are evolving it can be difficult to predict trends.83
22
Volume 5 Chapter 34: Integrating digital technology
Sources: RCVMHS assessment derived from a range of sources including Witness Statement of Dr Piers Gooding, 25
June 2020, para. 32 (d); Gerhard Andersson and others, ‘Internet-delivered Psychological Treatments: From Innovation
to Implementation’, World Psychiatry, 18.1 (2019), 20–28 (p. 20); Simon Leigh and Steve Flatt, ‘App-Based Psychological
Interventions: Friend or Foe?’, Evidence Based Mental Health, 18.4 (2015), 97–99 (p. 97); Mario Alvarez-Jimenez and
others, ‘HORYZONS Trial: Protocol for a Randomised Controlled Trial of a Moderated Online Social Therapy to Maintain
Treatment Effects from First-Episode Psychosis Services’, BMJ Open, 9.2 (2019); Ian B Hickie and others, ‘Practitioner-
supported Delivery of Internet-based Cognitive Behaviour Therapy: Evaluation of the Feasibility of Conducting a
Cluster Randomised Trial’, Medical Journal of Australia, 192.S11 (2010), S31–35; Laura Martinengo and others, ‘Suicide
Prevention and Depression Apps’ Suicide Risk Assessment and Management: A Systematic Assessment of Adherence
to Clinical Guidelines’, BMC Medicine, 17:231 (2019); Michelle Burke Parish and others, ‘Managing Psychiatrist-Patient
Relationships in the Digital Age: A Summary Review of the Impact of Technology-Enabled Care on Clinical Processes
and Rapport’, Current Psychiatry Reports, 19.11 (2017).
23
Royal Commission into Victoria’s Mental Health System
Individual expectations will always differ, but generally speaking, the Commission has
been told that consumers expect and want technology to be used in ways that improve
their service experience and the quality of services, make services more accessible and
personalised, and give them more choice.
Mr Dave Peters, a witness before the Commission, noted that digital technology can play a
number of roles in improving consumer access to treatment, care and support, supporting
consumer wellbeing, improving face‑to‑face service delivery and monitoring service
performance:
Digital technology can play a massive role in terms of enhancing face‑to‑face support.
For example, it can act as a benchmarking tool to monitor progress, or as an activity
diary to record exercise. I believe technology can play a huge role in supporting people
to pursue their wellbeing. It is also useful for people in remote areas, where there may
be a lack of face‑to‑face support and other options. It can also be useful for people
experiencing domestic and family violence, where meeting face to face could be
difficult, as well as for people who don’t feel they can talk openly about these issues with
or in front of their family—a text message or email can be done privately, even in the
same room as other family members.84
While consumers can see the benefits of technology, they were clear that they want
technology to improve and build on face‑to‑face services to make them more accessible,
effective and personalised, rather than to replace the in‑person human element of care.85
As Mr Peters noted:
These technological tools can provide amazing access to support, but I want to
emphasise that technology will never be a replacement for human contact and
connectedness with a real person.86
Mr Al Gabb, a witness before the Commission, said he still preferred one‑on‑one contact with
a person, despite the benefits of interventions such as telehealth.
I think it’s definitely got merit. There’s some people that live far more remote than I
do, but I don’t think it’s the silver bullet. I think, you can’t go past one‑on‑one contact
as a human.87
Some consumers may be unable to use digital services (either completely or partially) for
a range of reasons. While it can have benefits for some people, others may find the mode
distressing or difficult to use.
24
Volume 5 Chapter 34: Integrating digital technology
Sources: RCVMHS, Young people Human Centred Design Focus Group, Record of Proceedings, 2020; RCVMHS,
Information sharing Human Centred Design Focus Group, Record of Proceedings, 2020; Witness Statement of Dave
Peters, 22 July 2020.
25
Royal Commission into Victoria’s Mental Health System
People also need to know that the technology will protect their privacy, safety and rights.
They want to be able to trust it.90 The Commission has heard from several consumers
of mental health services about their expectations of digital technologies. Figure 34.5
summarises some of the major features that consumers expect from these technologies, and
why these features are important to them.
In general, digital technologies have the potential to improve quality and effectiveness
through providing more intensive, personalised and data‑informed treatment.91 Digital
technologies may be more appropriate or preferred by some consumers because they
offer flexibility, choice and tailored content. They can also offer more connected treatment,
care and support through providing treatment in between face‑to‑face sessions, helping
consumers to manage their mental health and stay well.92
The Commission has not evaluated the effectiveness of individual digital interventions but
understands that some supported online interventions have been shown to be as effective
as their face‑to‑face counterparts.93 Feedback on the use of telehealth indicates that some
consumers are receiving the same level of service as in their face‑to‑face sessions.94 However,
the Commission understands that experiences are highly personalised. Dr Elizabeth Deveny,
CEO of South Eastern Melbourne Primary Health Network, noted that ‘[s]ome consumers
are enjoying the use of digital technologies to mediate clinical sessions, while others have
expressed dissatisfaction with the loss of face‑to‑face sessions.’95
Overall, there is evidence indicating that digital technology can benefit consumers, families,
carers and supporters, service providers and the system in many ways.
People appear to be taking advantage of online health information. Research by the Black
Dog Institute indicated that people often seek help via digital and online platforms, and some
people prefer to find information through these channels.98
The Commission’s 2019 Community Sentiment Survey found that websites were a popular
source of information for people facing a mental health challenge, with young people being
most likely to seek information online in the first instance, as shown in Figure 34.6. ReachOut,
an online mental health service provider for young people and their parents, also noted that
young people are increasingly dependent on the internet for information.99
26
Volume 5 Chapter 34: Integrating digital technology
Figure 34.6: Where people go to seek information when facing a mental health challenge, by
age group, Victoria, 2019
The Commission was told that access to high‑quality online information and navigation tools
is critical to help people manage their own mental health, understand the system and make
informed choices about which services they should use.
One person told the Commission that well‑designed websites can make information easily
accessible to people:
Everybody is saying the same thing—it’s hard to find services. There needs to be a
website for people to just click on ‘access’ and all the phone numbers are there. Make it
available and easily accessible.100
Ms Harman also said that digital tools help people access trusted information without having
to rely on service providers for advice.101 This builds people’s sense of agency and their ability
to manage their own needs, where appropriate.
The Productivity Commission Mental Health Inquiry Report recognised the value of digital
platforms to provide people with better access to information, to help them navigate between
services.102 It recommended developing a new national digital mental health platform that
provides people with comprehensive information on mental health and services, online
assessment and referral tools, access to supported digital interventions, and a gateway to a
range of digital and face‑to‑face supports.103
27
Royal Commission into Victoria’s Mental Health System
Chapter 8: Finding and accessing treatment, care and support recommends creating a new
state website for mental health and wellbeing services that will help consumers, families,
carers and supporters to easily find the right services to meet their needs.
Digital technologies can also help people find their way through the system. Once people
have found the information they need and sought help, online bookings, e‑referrals and text
notifications can provide better continuity of care and more streamlined service experiences.104
Delivering psychological or psychiatric treatments through telehealth could help ensure more
people can access the services they need, when they need them. Telehealth has been shown
to be just as effective as face‑to‑face service delivery for many consumers.105
One of the major benefits of telehealth is its ability to break down geographic barriers.106
In regional Victoria, telehealth is providing access to services where they otherwise don’t
exist.107 Workforce shortages in rural and regional areas significantly affect rural and
regional Victorians’ ability to access specialist services.108 The use of telehealth is allowing
more consumers to access specialist support, even when the service may not exist in their
local area.
One person submitted to the Commission that access to telehealth services provided critical
support when there was little else available in her area:
I live in a regional area … and struggled to see any therapists, telehealth services
is what saved me.109
Mr Trevor Thomas, a witness before the Commission, also stated that telehealth had allowed
him to skip the waiting list and see a psychiatrist in another state, who now works with his
local GP to provide the services he needs:
I tried to get in to see a psychiatrist, and I was told that it was a [3] month wait. There
just doesn’t seem to be enough psychiatrists around. My GP said to me he would
organise for me to see a psychiatrist through telehealth. So within [3] weeks I saw a
psychiatrist in Sydney. My GP clinic set me up with a laptop and I spent 40 minutes
talking to him. I clicked with him. He now is changing my medication. I am on a mental
health plan, and currently using my sessions to see the Sydney psychiatrist via
telehealth. The psychiatrist shares his notes with my local GP and so I feel like they are
working together to help me.110
28
Volume 5 Chapter 34: Integrating digital technology
Digital technologies such as telehealth also provide more opportunities for collaboration
between service providers in regional/remote areas and those in metropolitan areas.111 This
can improve access to multidisciplinary care teams and consultation liaison, which is critical
for people with more complex needs.
As one example, Professor Ravi Bhat, Divisional Clinical Director of Goulburn Valley Area
Mental Health Service, Goulburn Valley Health, told the Commission that Goulburn Valley
Health has introduced Project Echo, a videoconferencing program that allows primary
care teams and specialists to work together virtually to support a consumer, without them
having to travel to a metropolitan area to see the specialist.112 A recent systematic review of
Project Echo found it to be effective at increasing provider knowledge of mental health and
consumer access to services in remote locations.113
While telehealth has historically benefited regional areas, its value is also recognised more
broadly.114 It can provide an accessible means of service delivery for people who have other
commitments, who have limited access to transport, or who may find it difficult to leave their
property due to mobility issues, disability or caring duties. One person submitted that there
are benefits of telehealth for people in both regional and city areas:
Telehealth will be a great addition to mental health in both regional and city areas,
giving people access to help without leaving home.115
Another person submitted that having the ability to access online support groups would
greatly improve their ability to use these types of resources, without affecting their ability to
undertake their caring role:
I often can’t attend support groups … because I’m trying to single parent and work and
get better. If I could access these via audio/video conferencing I could still attend when
my kids are in bed, which would really help and also limit the isolation I experience
having no family around.116
In early 2020 in response to the COVID‑19 pandemic, the Medicare Benefits Schedule was
expanded to include national coverage of telehealth services for mental health services.117
This has further demonstrated the potential of telehealth to provide greater access to
services for people in metropolitan and regional areas. Since March 2020, Medicare funded
telehealth consultations for mental health has continued to increase. In June 2020, national
telehealth consultations for mental health services totalled 372,000, compared with only
56,000 in March 2020.118
Victoria has experienced similar growth in the use of telehealth for delivering mental health
and allied health services. Figure 34.7 shows that between March 2020 and September 2020
the use of telehealth rose significantly for a number of services including GPs, psychologists
and clinical psychologists. While use is still high, the Commission notes that telehealth use
has declined slightly between September and October 2020.119
29
Royal Commission into Victoria’s Mental Health System
Figure 34.7: Number of COVID-19 Temporary Medicare Benefits Schedule telehealth items
processed, by occupation, Victoria, March and September 2020
Source: Australian Government Services Australia, Medicare Statistics: Medicare Item Reports, <www.
medicarestatistics.humanservices.gov.au/statistics/mbs_item.jsp>, [accessed 14 November 2020].
Note: COVID-19 – Temporary Medical Benefits Schedule telehealth items: General practitioner telehealth items—92112,
92113, 92114, 92115, 92116, 92117, 91818, 91819, 92210; Other medical practitioner items—92118, 92119, 92120, 92122, 92123,
91820, 91821; Occupational therapist items—91172, 91173; Social workers items—91175, 91176; Clinical psychologists
items–91166, 91167; Psychologists items—91169, 91170.
The Productivity Commission has recognised the benefits of expanded telehealth consultations
in improving consumer access to services.120 It has recommended that the Commonwealth
Government makes telehealth access to mental health services permanent.121 The Commission
considers that such a reform will help increase access to treatment, care and support for a
wide range of consumers accessing primary mental health services.
Chapter 8: Finding and accessing treatment, care and support, Chapter 6: The pillars of the
new service system—community‑based mental health and wellbeing services and Chapter
9: Crisis and emergency responses recommend that digital services and modes are made
available to consumers to improve accessibility and flexibility. Chapter 13: Supporting the
mental health and wellbeing of young people also suggests that digital services be made
available to young people seeking treatment, care and support.
30
Volume 5 Chapter 34: Integrating digital technology
There is also a growing body of evidence indicating that digital mental health services
other than telehealth have the potential to increase access to mental health services and
reduce demand on downstream services. Supported digital services and self‑help supports
have been recognised as an effective means of expanding access to quality treatment,
care and support for some consumers, especially those with mild or moderate depression
and anxiety.122
A number of organisations have called for the proper integration of digital supports into
service delivery, to be offered as part of a range of treatment options.123
There are several evidence‑based, supported digital services available that research
indicates are as effective as face‑to‑face therapy of the same nature.124 Some examples
include THIS WAY UP and Mind Spot.125
The Productivity Commission conducted a detailed review of the potential for supported
digital services to improve access to care.126 It found that by improving access to these
types of services, more consumers can access support that improves their wellbeing.127 It
has recommended that the Commonwealth Government funds the expansion of supported
digital interventions as routine treatment, as part of its new digital platform.128
There is also a broad range of digital self‑help supports and online peer forums that can help
people manage their own mental health needs and wellbeing. Like supported digital services,
self‑help supports offer the potential to expand access to treatment, care and support. The
Productivity Commission recognised the benefits such supports can play in improving access
and choice recommending that steps be taken to improve people’s ability to select and
connect with relevant supports as appropriate.129
Mr John Brogden, Chairman of Lifeline Australia, suggested that one of the most promising
opportunities for digital technology is the delivery of outbound services to keep in touch with
people in between sessions.130 He said that where the consumer consents, automatic text
alerts could provide check‑ins or reminders that may make a difference to someone.131
For example, the South East Primary Health Network has been trialling ‘Nellie’—an
automated text service that prompts consumers with high levels of anxiety or depression to
remember to use their coping strategies, or to complete daily activities.132 Clinicians are able
to review Nellie’s data to see whether people are responding, identify any red flags early, and
contact the consumer if needed to offer treatment.133 While still a trial, some consumers are
responding very well to the text messages, because it feels like personal contact.134
Blended models of care are also being introduced. As explained in Box 34.1, blended models
of care integrate online therapy and wellbeing support with face‑to‑face service delivery.
This can provide people with immediate access to support while they wait for a face‑to‑face
session, continuing care in between face‑to‑face consultations, and aftercare and recovery
support to prevent relapses.135
31
Royal Commission into Victoria’s Mental Health System
Personal story:
Anh Nguyen
Anh accessed mental health support through Orygen when she was going through
a ‘rough time’ at university. Towards the end of her treatment, her case manager
suggested she try using Moderated Online Social Therapy (MOST)—an online platform
that provides a safe online social network, personal therapy programs and resources to
support mental health.
Anh said she found the online environment comforting and supportive, because it made
her feel like she was not alone, no matter what the time of day.
When I started going on to it, I felt more comfortable and relaxed, knowing that
I’ve got others around to support me. If I had any problems, I could contact
someone and they would be able to help make me feel a lot better and I know that
I’m never alone.
It’s a comfortable feeling knowing someone is there. They’re on there 24/7, if you
need someone at a bad time, they’re just there and they’ll appear and start talking
to you, making you feel a lot better.
Anh said she found the platform had a strong community feel, which positively
contributed to her own mental health.
You can post whatever you’ve got to say, for example, something encouraging, and
then you can just say, ‘this is what brightened up my day and I hope it brightens
up your day as well’. I remember seeing people commenting on my post that it had
actually brightened up their day and that made me feel a lot better as well.
Despite sometimes talking to clinicians who Anh may not have worked with before, she
still felt it was easy to connect with them.
They made themselves approachable like a friend, a very close, trusted friend so
that I was able to express myself.
Anh said the accessibility of the program can fill a gap between face‑to‑face
appointments.
When I started having an episode, I wasn’t always able to get an appointment with
my case manager as soon as possible. Then when I did see my case manager, the
episode was gone and I couldn’t really explain how bad it was. I felt really down
because I couldn’t talk to anyone about it during that time phase. But MOST is
carried in your pocket, you can message your case manager straight away and
explain to them what’s going on.
32
Volume 5 Chapter 34: Integrating digital technology
Anh said the platform helped her make social connections as well.
One of the workers would say, ‘we’re going to have a little social gathering’, and
then anyone that’s able to come can start meeting with each other and talking.
It was a step by step cartoon that illustrated someone going through the same
experiences as I was, with the help of the cartoon, it guided me through how to
take control of my own wellbeing, as well as how to manage how I was feeling and
that it was alright to stop and take a deep breath in and just breathe to relax and
calm myself down.
Following Anh’s positive experience with the platform, she would like to see it expanded
to more young people. Anh also thinks it could be a good access point to connect to
Orygen, because, she says it can be difficult to take the step of going there in person
and speaking to someone.
Sources: RCVMHS, Interview with Anh Nguyen, October 2020; Orygen, Moderated Online Social Therapy, <www.
orygen.org.au/Clinical-Care/Clinical-services/Moderated-Online-Social-Therapy>, [accessed November 2020].
33
Royal Commission into Victoria’s Mental Health System
Early modelling suggests that 30 per cent of young people may not need face‑to‑face
support once they access the digital service, which could free up waiting lists.140 It also
indicates that approximately 25 per cent of young people could require at least one fewer
session of face‑to‑face treatment,141 and approximately 33 per cent of young people could
experience fewer relapses, or relapses of lesser intensity.142 This could mean better health and
wellbeing outcomes for young people and better allocation of resources and workforce to
helping those with more complex needs.
For example, many digital options allow people to access support at a time and in a way
that is convenient to them.144 Ms Julie Anderson, Senior Consumer Advisor in the Office of
the Chief Mental Health Nurse and the Office of the Chief Psychiatrist in Victoria, told the
Commission in a personal capacity that digital options allowed her to receive support without
compromising her work schedule and in a way that protected her privacy:
I think digital approaches are helpful for young people and people generally who are
working in this digital age. For me personally, because I work, it is easy for me to get
online or to look up something up. I don’t have a lot of time to attend appointments and
things like that, so online is really great and allows me to easily access information on
mental health and mental health services in a timely way. It is also private and people
around me don’t need to know what I’m doing.145
Dr Haskelberg told the Commission that online courses like THIS WAY UP improve
convenience and allow people who wouldn’t otherwise have access to treatment, care and
support to access it when they want to, and faster.146
The suicide hotlines work reasonably well but not for people who are too scared to pick
up the phone. More app based suicide prevention services might be more useful. This
way the person can text their message which is much less frightening.148
34
Volume 5 Chapter 34: Integrating digital technology
Dr Gooding suggested that being able to seek support anonymously may be very important
to people who are concerned about sharing personal information locally.149 This could include
people in small or marginalised communities, people who may fear stigma, people who
identify as LGBTIQ+, and Aboriginal people.150
One person at a community consultation noted that traditional phone‑based supports don’t
always work for young people, especially boys. They suggested the system should be making
far better use of online channels and forums to offer support to these groups:
Helplines by phone don’t work for youth, boys in particular. They won’t pick up the phone
to ask for help. Instead, they share online. There is an opportunity to make far more use
of the potential … support networks [youth are] seeking on the internet, instead of (or in
addition to) phone availability.151
Technology can also offer more personalised and inclusive services and support, particularly
for diverse communities and groups. Alex Smith, a witness before the Commission, said that
access to online social media support had helped them to connect with other gender diverse
people, and the resource helped them through a challenging time:
A transgender and gender diverse organisation in Victoria runs a really, like, wonderful
online Facebook group … which is for trans masculine people … That was an amazingly
important resource for me … I really couldn’t have continued with work, I think, without
having that online Facebook group.152
Foundation House noted that innovative responses to translation services can support
culturally diverse communities to access services and supports that are tailored to their
language and cultural needs.153 They cited examples of some specialist service providers
recording phone or video messages in consumers’ preferred languages to organise
appointments, rather than written text.154
Mental Health Australia, the Federation of Ethnic Communities Councils of Australia and the
National Eating Disorders Association jointly told the Productivity Commission that online
services have the potential to break down language barriers and deliver services that are
understanding of and responsive to people’s individual cultural backgrounds and beliefs:
For culturally diverse communities, online services could support individuals in their first
language and/or understand their cultural norms and values around mental health and
wellbeing. This includes established migrant and refugee communities here in Australia,
international students, and second‑generation Australians who may not need someone
who speaks a language other than English but do need someone who understands the
nuances of their cultural background.155
Chapter 21: Responding to the mental health and wellbeing needs of a diverse population
recommends developing user‑centric digital technologies to support delivery of accessible,
confidential, timely language service delivery for mental health and wellbeing.
35
Royal Commission into Victoria’s Mental Health System
In their 2019 review of digital technology and mental health, Reinhard Michael Krausz and
colleagues suggested that the use of digital technology in mental health services can
contribute to ‘a more accessible and cost‑effective system of delivery’.158 They cited reduced
travel costs, less administrative work, and wider reach and scale as the leading benefits of
digital technologies.159 In its 2018 report on the Future of Health, the Commonwealth Scientific
and Industrial Research Organisation (CSIRO) also found that telehealth and digital services
can drive efficiency and cost‑effectiveness through a reduction in hospitalisations, reduced
consumer transport costs and shorter waiting lists.160
Service providers and clinicians have indicated that they want technologies that reduce the
amount of administrative work they have to do, that provide access to information that helps
them do their jobs well and more efficiently, and that supports consumer continuity of care.161
The Commission was told about a number of ways in which digital technology is supporting
these goals.
For example, both Mr Shane Solomon, Partner at Caligo Health, providing evidence in a
personal capacity, and Professor Rob Moodie, Deputy Head of School and Professor of
Public Health at the University of Melbourne, individually noted that online and telehealth
technologies can be more efficient for mental health workers.162 They both suggested their
use may cut workers’ travel time, allowing them to have longer sessions with consumers and
potentially see more consumers.163 Dr Deveny also noted that digital technologies provide the
flexibility for workers to be located anywhere when delivering services.164
The Commission’s interim report indicated that telehealth and other technologies are being
used for triaging and urgent assessment, which can reduce the need for some consumers
to be transported by ambulance to larger hospitals in rural and regional areas.165 Associate
Professor Ruth Vine, Director of Forensicare, suggested the advantage of screening and
triage services being provided digitally is that the services can be accessed from anywhere,
and by consumers, service providers and emergency services.166 This not only reduces the
burden on consumers having to travel but also reduces the amount of resources that have to
be dispatched. However, Associate Professor Vine said that mental health services depend on
interpersonal relationships and does not believe it is possible to do a thorough mental state
assessment of an acutely unwell person online.167
Further, the Commission was told that online and phone‑based service delivery may reduce
the number of ‘no‑shows’—that is, people who do not attend an appointment.168 No‑shows
reduce the amount of productive time a worker has during the day, as well as the number of
consumers they can see.169
36
Volume 5 Chapter 34: Integrating digital technology
Professor Ian Hickie AM, Co‑Director of Health and Policy at the Brain and Mind Centre at
the University of Sydney, confirmed in a personal capacity that the introduction of telehealth
services has resulted in a reduction in non‑attendance rates for people attending GP
clinics.170 He suggested that this reduction is likely due to consumers being able to attend
consultations in their own home.171 The organisation headspace produced a report about
the experience of its workforces using telehealth during the COVID‑19 pandemic. The report
noted that the impact of the COVID‑19 pandemic on consumer attendance was mixed, with 41
per cent of the workforce indicating that slightly or considerably fewer clients had cancelled
or missed their appointment, but that 30 per cent had also found that more clients had not
attended appointments.172
There are many reasons that people may be unable to attend a face‑to‑face appointment. As
noted earlier, mobility issues, physical or mental health interruptions (including worsening of
symptoms), and caring responsibilities can all be reasons that a person may struggle to make
it to a face‑to‑face session. Telehealth can provide people with more flexibility to attend their
appointments from their own home, and in hours that may suit them more.173
Dr Gooding suggested that digital data systems can help monitor the activity and
performance of services, system administrators and advocates to ensure services are
being delivered effectively and safely.175 For example, one New South Wales research team
used technology to monitor medicine use in aged care facilities across Australia to identify
excessive prescription of antipsychotic medication and flag areas for further checks.176
Such an approach may be beneficial in monitoring the use of restrictive practices in
inpatient units.
New tools can also empower consumers to directly provide feedback about the system or
a service, and then monitor the response to that feedback.177 Consumers should be able to
electronically submit a complaint and easily see its progress through the system.
Better data collection systems and data analytics can also provide services, system
administrators and researchers with a wealth of information to identify where interventions
and programs are working, and where more needs to be done.178 Chapter 35: New approaches
to information management, discusses the need for better information systems and
processes, and recommended solutions, in detail. Chapter 30: Overseeing the safety and
quality of services, and Chapter 36: Research, innovation and system learning also note the
importance of better using technologies to inform data collection and system improvement.
37
Royal Commission into Victoria’s Mental Health System
Digital interventions on their own may not be appropriate for some people with high‑intensity
needs. Professor Alan Rosen AO, Professorial Fellow in the Illawarra Institute for Mental Health
at the University of Wollongong and Clinical Associate Professor of the Brain and Mind Centre
in the Sydney Medical School, University of Sydney, suggested the ‘more severe’ a person’s
mental illness is, the more likely they are to need in‑person interdisciplinary services.179 While
Professor Rosen noted that digital supports can still augment care, they are unlikely to be
effective on their own.180 Dr Haskelberg holds a similar view to Professor Rosen, suggesting
that digital tools should be part of a more comprehensive suite of interventions.181
While some people with lower intensity needs relating to their mental illness or psychological
distress may respond well to online interventions, many digital mental health and wellbeing
apps and online courses are general in nature, or may lack a strong evidence base.182 The
University of Melbourne told the Productivity Commission that a number of digital products
appear to have been developed without consumer or clinical expertise, reducing their
usability and effectiveness.183
A 2019 study found that most apps are sold as therapeutic tools but have not been evaluated
rigorously.184 They may be informed by evidence‑based treatments, but this does not mean
they actually deliver evidence‑based services to consumers.185
While some people may stop using digital supports once it has met their needs, a lack of
rigorous development can be a reason people drop out of these services. A review of clinical
trials of smartphone apps to support people with depression indicated that drop‑out rates
were approximately 50 per cent.186 Only 4 per cent of mental health users continue using
mental health and wellbeing apps after two weeks, and even this statistic is not necessarily
meaningful because people only need to open the app—not use its features—for this to
be measured as ‘continued use’.187 It suggests people may not receive the results that were
expected, or may have higher hopes than the app or course can deliver.
Online and mobile interventions need to provide transparency of intended benefits and
limitations to help consumers manage expectations and decide if the option is truly right
for them.
Dr Haskelberg noted that people may be overwhelmed by the multiple digital interventions
available188 and may find it difficult to navigate and select the digital tool that best suits their
personal needs.189 Orygen also raised concerns that some digital services may have limited
quality control, safety measures and evidence to inform their development, making them
unsuitable as standalone supports for people.190
38
Volume 5 Chapter 34: Integrating digital technology
Consumers may be concerned about the safety and privacy of their data and personal
information when using such technologies. Dr Gooding and Professor Hickie both noted
that there can be a lack of transparency in mental health apps and websites about privacy
policies, data sharing practices and commercial interests.191
Victorians have a right to privacy under the Charter of Human Rights and Responsibilities Act
2006 (Vic), and they should have reassurance that the services and supports they are using
will maintain their privacy and trust.
The Commission was also told that if not implemented correctly, new technologies could
potentially increase pressure on services as they strive to input data into multiple systems,
which may reduce efficiency.194 For example, Professor Emeritus Bruce Singh AM, Clinical
Director of Mental Health Services at South West Healthcare, Warrnambool told the
Commission in a personal capacity that the introduction of some electronic medical records
has resulted in increased administration work, rather than more time for face‑to‑face service
delivery.195 New technologies should create efficiencies for services and relieve administrative
burden for professionals, rather than compound these issues.
There is a risk that if government and the mental health and wellbeing system do not move to
integrate new technologies, consumers, families, carers and supporters will increasingly rely
more on private or market‑based digital mental health services, and the government‑funded
mental health services will be left behind.196 Increasing the system’s adoption of digital
technologies and the ability to use them is a necessity in a contemporary system to ensure it
can provide people with safe, effective and modern treatment, care and support.
39
Royal Commission into Victoria’s Mental Health System
The COVID‑19 pandemic has accelerated the integration of some forms of digital mental
health technologies into the system, such as telehealth, but it has also revealed where
improvement is needed. Mental health and wellbeing services need to build remote and
flexible working capacity, and technology is required to achieve this.199
The Commission was repeatedly told that the system’s biggest challenge is properly
integrating digital interventions with face‑to‑face services.200 Provider capacity, inequity
of access, a lack of awareness and trust, and inconsistent approaches to the adoption and
integration of technologies into service delivery, are all barriers to realising the potential of
technology, as illustrated by Figure 34.8.
Figure 34.8: Challenges to digital integration in the mental health and wellbeing system
40
Volume 5 Chapter 34: Integrating digital technology
Some public mental health services do not appear to offer the range of basic technological
features already demonstrated to be effective for consumers and workers, such as online
bookings, e‑referral, electronic access to personal health information and service delivery
through multiple channels such as telehealth and text.
Under the former Department of Health and Human Services’ digital health strategy, health
services are building their capacity to deliver digital services.201 However, Ms Peake suggested
there is disparity between the adoption of technology in general health and mental health. 202
She said the lack of parity between the two sectors has meant that digital technologies have
been integrated in a more structured way in general health than in mental health.203
There are no clear guidelines that tell mental health and wellbeing services what their
minimum digital service offerings should look like, and no strategy to guide implementation.
This has likely contributed to the varying degrees to which providers have embedded digital
technologies into their service offerings.
NorthWestern Area Mental Health Service noted that this lack of strategic, service‑level
planning affects the system’s ability to deliver modern treatment, care and support. It also
pointed to a lack of technology funding as a problem:
The lack of a dedicated funding stream and strategic planning for digitising mental
health services has led to aging information technology infrastructure and inefficient
systems, which does not efficiently support the contemporary approach to service
delivery for instance mobile care teams. This is a significant risk in terms of transfer of
information across services and service settings.204
A number of service providers informed the Commission that as a result of this, they have
varied and often old devices and technology, which prevents them from delivering more
contemporary digital treatment, care and support.205
It also appears that many providers have not made updates to their digital systems and IT
infrastructure a priority, leading to an inability to effectively deliver digital service options
for consumers. The costs of new systems can be high due to the requirements for new
technology, workflow changes and workforce training.206
While the government has provided some funding over the past few years to introduce new
electronic records systems in some hospitals, there appears to have been little funding
support for devices, systems and interventions. More recently, the former Department of
Health and Human Services has provided IT grants to state‑funded community mental health
providers to support them to offer services remotely.207
41
Royal Commission into Victoria’s Mental Health System
The Victorian Government has also recently committed $13 million to boost virtual care
technology as part of its Hospital in the Home program. 208 The funding includes investment
in new software to facilitate telehealth appointments, a trial of telehealth with Ambulance
Victoria, and the purchase of devices to make home‑based care safer for patients and
clinicians.209 These investments are good steps that can be built on.
The Commission understands that pricing and funding may not always encourage the use
of digital mental health interventions in some services. Until recently, telehealth has only
been funded through the Medicare Benefits Schedule for specific regional and rural areas
in primary and secondary health services, and its availability in metropolitan areas has
been limited.
As noted above, recent changes to the Medicare Benefits Schedule in response to the
COVID‑19 pandemic have expanded access to telehealth nationally. The former Department
of Health and Human Services also purchased additional call volumes for area mental health
services to support the switch to telehealth.210
The Commission was told that the mental health workforce is likely to require a range of
new skills to effectively use digital technologies, including communication, data security and
safety, and the ability to select and recommend the right digital tools for consumers, as well
as general technological competencies.212 Professor Alvarez‑Jimenez said that collaboration,
education and training, implementation and funding support are all needed to help the
workforce build its skills and confidence in using technology.213
The Commission understands that, traditionally, there has been some resistance among
some of the mental health workforce to the use of new technologies in mental health
services.214 However, a lot has changed over the past decade, particularly recently as a result
of the COVID‑19 pandemic. The pandemic has quickly required the workforce to embrace the
use of digital technology and has rapidly built the evidence base for certain modes of care,
such as telehealth.215
There is growing recognition among mental health service providers that digital technologies
can be used to complement current roles and practices by providing new ways to treat and
support people, monitor their progress and receive information.
Chapter 33: A sustainable workforce for the future, considers how to build and support
workforce capability in the future mental health system, including to support the adoption
of digital technologies.
42
Volume 5 Chapter 34: Integrating digital technology
People in rural and regional areas are less likely to have access to the internet, and the
Commission has heard that people living in these areas can often struggle to access
high‑quality bandwidth or stable internet connections, which limits their ability to access
digital mental health services.219 Aboriginal Australians, people who are unemployed, people
with low incomes and people with a disability are also less likely to have access to the
internet, and may be disadvantaged as a result.220
Even when people do have access to data or devices, these may be shared among one
household, or may be old and ineffective. The cost of mobile data or devices has been a
barrier for some people wanting to access digital support, and unreliable internet access in
some regional areas limits the effectiveness of this support.221
Funded mental health services are reporting that some consumers are not able to
access telehealth because cost barriers prevent them from purchasing a smart device,
while for some consumers and service providers, poor connectivity can be a barrier.222
Mr Solomon told the Commission that some investment is needed to improve consumer
access to digital resources.223 Both the Victorian Government and the Commonwealth
Government have recently invested in digital upgrades to better support rural and regional
communities to access fast internet. The Victorian Government has committed $626 million
to deliver its Digital Future Now package, which will vastly improve mobile coverage and
broadband access in regional areas.224 The Commonwealth Government has also committed
more than $4.5 billion to extend the National Broadband Network and accelerate the 5G
network.225 These investments will help rural and regional consumers to access digital mental
health services.
De Beurs and others indicate in their research that it is important to take users’ needs and
preferences into account when designing and delivering mental health interventions using
technology.227 Mr Bruce Bonyhady AM, Executive Chair of the Melbourne Disability Institute
at the University of Melbourne, noted in a personal capacity that all people should be able to
enjoy the benefits of new technological advancements, but that this may be compromised
where the design of new technology discriminates against certain groups.228
43
Royal Commission into Victoria’s Mental Health System
However, because people with lived experience are often not part of the process to develop
digital mental health interventions, many barriers are overlooked.230 As a result, people with
mental illness can have difficulty using the tools that are being developed for their benefit.231
The Commission considers that digital mental health technologies and interventions should
always be inclusive and accessible and, wherever possible and appropriate, should be
designed in partnership with consumers, families, carers and supporters.
Digital mental health services may also be difficult to access for people who do not have
the technical skills to participate fully in the digital world. People need support to learn and
build the skills and confidence required to use technology.232 In saying this, services should
try, wherever possible, to use digital platforms that people are familiar with and prefer, rather
than assuming people have low digital literacy.
The Commission was told that many newly arrived migrants already engage with digital
technology but use different platforms from those typically offered in Australia.233 Adapting
services to meet the preferences and needs of consumers can be beneficial in expanding
access and usability.
A service provider at a roundtable discussing digital mental health opportunities told the
Commission that many of its consumers are already able to use technology, so it has adapted
its offerings to provide services on platforms that consumers are familiar with:
people are already digitally engaging. You know, when they come from different
countries, they’re already talking to their friends. They’re in refugee camps in different
countries, they’re already doing it. But their platforms were very different. And we have
discovered there [are] you know, 20 different platforms people are using. So the simple
thing we did was [ask] what do you use WhatsApp, FaceTime, zoom, WeChat? What are
you using currently, and tapping into those systems because they’re already familiar
and they are using it.234
44
Volume 5 Chapter 34: Integrating digital technology
Some platforms already exist to help people find supports. The Commonwealth Government’s
Head to Health website, which was co‑designed with consumers, carers, service providers,
health professionals and other interested parties, provides free access to evidence‑based
information and advice on digital mental health supports.237 There are also some supports
provided to sections of the workforce to support the uptake of digital technologies. Since
2013, E‑Mental Health in Practice (eMHPrac) has been funded by the Commonwealth
Department of Health to ‘promote the use of digital mental health services and resources by
primary healthcare providers across Australia’.238
While these resources are beneficial, those involved have suggested they can be improved.
The Productivity Commission was told that the Commonwealth’s Head to Health platform is
too generalist to provide support to some cohorts and that it has become a static website,
rather than a proper navigation tool.239
GPs and other professionals need to be better educated about available digital mental health
services and encouraged to inform and refer people to these services.240 The Productivity
Commission has recommended that Head to Health be expanded to include a broader
range of services and improved to better direct people to the right service for them.241 The
Productivity Commission has also recommended that, over time, the site be amalgamated
with the new national digital mental health platform and its gateway service offerings.242 The
Commission supports this approach.
People also need to trust digital service offerings. This requires assurance that digital
offerings will suit their needs, be effective, and that they will work well with any other
services they are using.243 It also means that people need to know the offerings are safe,
evidence‑based and meet the same quality standards as any other service offering. This
includes approval from government and services, but also from other consumers.244
Dr Deveny noted that some clinicians may choose not to refer their consumer to a digital
resource because they are unsure if it is safe:
I also am aware that some clinicians are not comfortable referring people to certain
digital health solutions because they do not know if the content of the app is evidence
based and there is concern about any potential adverse health outcome from its use.245
There is no single organisation responsible for the oversight and regulation of digital
mental health services. Oversight occurs through ‘a mix of government regulation, industry
self‑regulation, and direct education of consumers and practitioners’.246 Experts have noted
that current legal and regulatory structures for digital mental health services may not be
adequate, but there is debate about the extent to which these services should be governed.247
As a first step, the new National Safety and Quality Digital Mental Health Standards will
help to provide transparency about what good practice looks like, and ensure that digital
interventions are designed safely and effectively. While this is a good start, Dr Gooding
informed the Commission that further work will be needed to ensure these standards are
met, and consumer trust is maintained and respected.248
Ms Peake also said the standards need to be ‘complemented by local mechanisms to ensure
appropriate quality assurance frameworks are in place to facilitate the shift towards digital
health solutions’.249
45
Royal Commission into Victoria’s Mental Health System
Protecting privacy and data is another challenge in the digital age. Consumers need to have
assurance that their data is being collected and used in a responsible, secure way, and only
for the purpose for which they supplied it.250 However, personal data gathered by digital
mental health technologies may have insufficient protections.251 There are digital supports
that present risks to consumer safety and privacy due to inappropriate data security
standards or on‑selling of data to third parties.252
The University of Melbourne noted that without good protections for data and information,
there is a risk that consumers’ low levels of trust will have negative flow‑on effects for mental
health service use. 253 In turn, this may be a barrier to people accessing support through these
channels.254 According to the Consumer Policy Resource Centre, ‘consumers may well start
to avoid accessing important healthcare services and support, if they feel companies or
governments cannot be trusted with that information or that they may be disadvantaged by
that information in future’.255
the current system is built for products that release once and in a similar way that
you might have a drug and don’t change for the next three years. That’s not how you
build a technical product. And that won’t be how you build the best technical products
for years to come. In terms of both usability from a patient’s perspective, usability
from a healthcare perspective, effectiveness on outcomes, everything is tied against
continuous improvement. And that’s how good products are made ... It’s all built around
this one soft build and release model, which won’t survive long term. [We should be]
focused around how we can create more of an iterative process to policymaking
that adapts to changing products and changing environments in the product
developer process.257
Another entrepreneur noted that current research and implementation approaches are too
slow and are hampering progress:
I think fundamentally, the challenges for health services, that we have an accepted
gold standard of evidence that’s required before something is taken up and integrated
into clinical practice. And until we’re willing to flip that, and actually experiment with
and adopt these new technologies, we’re going to keep getting the same solutions …
Research is done in a university context, it may or may not get adopted, if it does, it
probably takes 10 to 15 years, by which point, the technology is well and truly out of date.
And so, I think as a system, we need to be creating an environment where it is accepted
that we can take these new technologies, use them in our practice, and then grow
from there.258
46
Volume 5 Chapter 34: Integrating digital technology
Professor Alvarez‑Jimenez told the Commission that the integration of digital supports
requires new approaches to the development, research and funding of digital technologies in
mental health to accelerate their adoption into routine practice over time.259
• clear guidance and pathways to support the integration of digital mental health
technologies into routine service delivery and to create greater service consistency and
equity across Victoria
• greater support for services to build their digital offerings
• better support for disadvantaged groups and consumers to access technologically
enabled mental health services to the same level as others, if that is their preference.
Regardless of what technologies are used across the system, consumers, families, carers and
supporters must have reassurance that they can trust the technology and service offerings
available.
While the Commission understands there is support for the greater adoption of digital
technologies into mental health services, most consumers, experts and service providers
have emphasised that people should still have a choice about how they wish to receive
services, including face‑to‑face services, wherever possible. The Commission agrees that this
choice should lie with the consumer, and they should receive appropriate information, advice
and support to help them decide which services best meet their needs.
Considering this, the Commission recommends that the Victorian Government ensures that
public mental health and wellbeing services have the ability to offer consumers, families,
carers and supporters a consistent suite of digital services. These offerings should meet
people’s individual needs and provide them with an improved experience across their
entire recovery journey. To achieve this, the Commission recommends that the Victorian
Government implements several initiatives.
47
Royal Commission into Victoria’s Mental Health System
In other jurisdictions and sectors, policymakers and funders have implemented clear
and concise digital service requirements and guidance to help service providers deliver
contemporary digital service offerings.
Victoria’s Digitising Health strategy guides overall digital health policy and investment in
Victoria’s general health system.260 It reflects a general health system that is well on its way to
improving digital service delivery and technology capacity. However, mental health remains
behind general health in integrating digital channels into service delivery, and requires a
strategy that is tailored to support the adoption of forthcoming reforms and accelerate
uptake of technology. Such an approach will also ensure accountability for implementation
and provide clear timelines and milestones.
In the province of Ontario, Canada in the Ministry of Health has developed new minimum
recommended requirements to ensure the basic digital tools and functionalities are in
place across health teams.261 These requirements are underpinned by digital health policy
guidelines to ensure a consistent approach to setting up digital supports across the
province.262 The guidelines give service providers directions on selecting, procuring and
implementing digital technologies. They include four general digital health policy directions
and three system‑specific policy directions.263
The four general digital health policy directions support the implementation and use of all
digital health systems. 264 They focus on:
48
Volume 5 Chapter 34: Integrating digital technology
The three system‑specific policy directions guide providers' digital service delivery and
require them to offer consumers virtual consultations, and digital self‑management tools
including access to digital information, online booking functions and e‑referral.265
The Commission supports this approach. It offers consistency and transparency, and
provides a clear framework for integrating, investing in and making digital supports a priority,
without stifling innovation or flexibility.
To this end, the Commission recommends that the Department of Health develops and
implements new statewide minimum digital service requirements for all publicly funded
mental health and wellbeing service providers. The requirements should align with the
Commission’s recommended service standards and further define the general digital
capacity expected of all service providers. They should be broad enough to allow for
technological advancements that are not yet anticipated.
As a minimum, the requirements should include the statewide uptake of telehealth (video
preferred and phone if video is not possible), access to services through multiple channels,
e‑referrals and online booking capability. They should also support and inform the necessary
investment in interoperability functionality—that is, the ability for IT systems to connect to
one another, and support electronic information exchange for service delivery and service
accountability, with relevant parameters.
The requirements should be supported by a new statewide digital mental health and
wellbeing strategy and framework that articulates the Victorian Government’s approach to
improving service providers’ capacity to use digital technologies across the mental health
and wellbeing system over time, the desired outcomes to be achieved, and the statewide
roadmap to support integration. It should clearly set out the IT infrastructure needed to
ensure digital mental health technologies are adopted.266
One model that could be explored is the National Health Service in the United Kingdom,
which has introduced digital maturity assessments as part of a comprehensive digital health
transformation plan.267 These have led to the development of 73 local digital road maps, which
are championed by chief information officers across service areas.268
At the local level, the maturity assessments and road maps are used to promote local service
investment and transformation, in a uniform and staged way.269 System‑wide, the information
has allowed the United Kingdom to create its first digital maturity index for health, to monitor
progress and determine investment priorities for the future.270
49
Royal Commission into Victoria’s Mental Health System
• High‑quality and safe services are delivered in alignment with established standards
of treatment, care and support, new digital mental health standards and the pending
national digital mental health framework.271
• Requirements are informed by the experiences and preferences of consumers, families,
carers and supporters.272
• Digital services promote and support diversity and cultural inclusiveness, including
through accessibility and language options.
• Alternative approaches are available, wherever possible, recognising that it is the
consumers’ choice whether they wish to use digital services.
It is highly unlikely that all mental health service providers will have the digital capacity or
maturity to meet the requirements quickly. At the state level, some community mental health
services and hospitals lack the devices and high‑speed internet to support a major shift in
service delivery.274 As the provider landscape adapts to deliver the new system, new providers
will be expected to demonstrate or build their digital capacity, in order to deliver on digital
requirements.
The Commission recommends that the Department of Health provides some form of
dedicated capability funding to help organisations build their digital maturity over time,
linked to the statewide framework and service‑level maturity assessments. In the United
Kingdom, the National Health Service introduced the Integrated Digital Care Fund to support
providers to develop their maturity over time.275
Investment in regional areas should be given priority in the first instance to support Local
Mental Health and Wellbeing Services, Area Mental Health and Wellbeing Services and
statewide services to procure new technologies, introduce innovation and build their
capability to deliver digitally integrated service offerings. Chapter 24: Supporting the mental
health and wellbeing of people in rural and regional Victoria, discusses this approach in
more detail.
To improve cost‑efficiency—that is, to get value for money—the government could also
consider purchasing some technology where it would make sense to have consistency
across the state. For example, the government could purchase licences for a preferred
telehealth system, for rollout across community and inpatient mental health services. The
Commonwealth Government has already provided free access to a preferred and secure
telehealth platform for all GPs.276
50
Volume 5 Chapter 34: Integrating digital technology
The Victorian Government should also identify digital interventions that have shown positive
outcomes for consumers, and invest in rolling them out across the state. For example, in April
2020, the Victorian Government provided funding to Orygen to implement its Moderated
Online Social Therapy (MOST) program across all state‑funded child and adolescent youth
mental health services and all Victorian headspace centres by mid‑2021.277 The significant
research and evaluation effort put into Moderated Online Social Therapy (MOST) over the
last decade has resulted in the government choosing to fund, expand and roll out the model
statewide.
This expansion will allow all young people in headspace or child and youth mental health
services to receive digital services that are fully integrated with their face‑to‑face therapy,
if they wish to. A new partnership between Orygen and other state youth services will deliver
the service. While careful evaluation of the rollout is needed, it could be a model for future
projects.278
Existing legislation and policy set out privacy standards and protections for many digital
mental health interventions, but as technologies change, so too will the governance and
regulation needed.279
As its first step towards ensuring consumer safety, the Victorian Government should promote
all relevant standards and policies for digital mental health, including the new National
Safety and Quality Digital Mental Health Standards. As the evidence grows, the government
should ensure that governance, funding and regulatory arrangements continue to account
for any impacts of digital technologies on service delivery and consumer wellbeing.
A roundtable participant told the Commission that the government should consider which
tools it makes available, and how closely it oversees them, based on the level of risk and
benefit to consumers:
there is a need to have a wide variety of tools available [but] we actually want to make
sure that for those that are being used for the most serious of conditions, we … require
a level of evidence and rigor and quality assurance … There may however, be other tools
that we think are useful, but don’t require that level of evidence … And we don’t think
they need such a strong and rigorous evidence base. But we do want to make sure …
they’re reasonable, they don’t make outlandish claims for people. And then there may be
a whole lot of other tools that we make freely available with very little controls.280
Supported digital services or interventions that deliver mental health services should be
subject to appropriate tests and safeguards to ensure consumer safety is upheld. The new
Collaborative Centre for Mental Health and Wellbeing should play an active role in publicly
endorsing evidence‑based and quality mental health technologies.281 This will help to build
consumer, carer and service provider trust in good‑practice technologies.
51
Royal Commission into Victoria’s Mental Health System
In April 2020, the former Department of Health and Human Services announced it would supply
phones and extra data to eligible clients of public mental health services to help them stay
engaged with treatment and services during the COVID‑19 pandemic.282 Associate Professor
Stafrace said the impact of such a program is difficult to measure. 283 He did note, however, that
the pandemic and the resulting reduction in face‑to‑face content has not slowed the provision
of community services, indicating that the program may be having some effect.284
The Victorian Government has also recently committed funding to deliver more Hospital in
the Home health care.285 Investment includes software to facilitate telehealth appointments
and purchasing of devices to make home‑based care safer for consumers and clinicians.286
The Commission recommends that the Department of Health uses these programs as a
model, and allows Local Mental Health and Wellbeing Services, Area Mental Health and
Wellbeing Services and statewide services to offer digital support packages to eligible
consumers. These packages will provide access to devices, data and digital literacy support.
The digital support packages should be offered to eligible consumers who have
demonstrated disadvantage and cannot access data or devices of their own. The package
should be directly connected to the supports a consumer is receiving, and should be open
to all eligible consumers receiving mental health and wellbeing services through the state
government, including adults, young people and children. The package would be strictly opt
in, and based on a consumer’s preference to use digital tools to access mental health and
wellbeing services.
The support packages should be funded through the Victorian Government, but the government
could also work with technology companies that are willing to provide in‑kind contributions
to the program, such as devices and data. The government could also consider setting up a
donation program that allows members of the public to provide their second‑hand devices (in
good working condition) to mental health and wellbeing services for use by consumers.
The Department of Health should also support mental health and wellbeing services to offer
digital literacy support to any registered consumer who wishes to use digitally integrated
services, potentially through the future system’s new recovery colleges (or discovery colleges),
as outlined in Chapter 7: Integrated treatment, care and support in the community for
adults and older adults and Chapter 13: Supporting the mental health and wellbeing of
young people.
52
Volume 5 Chapter 34: Integrating digital technology
• the basics of using the chosen technology and intervention—for example, how to work
a smartphone, and how to connect to telehealth services or a chosen mobile app
• safe and effective use of their chosen technology and intervention
• risks and benefits of digital intervention
• how to use the technology safely—for example, having telehealth consultations in a
space where their conversation cannot be overheard
• data and privacy protections.
53
Royal Commission into Victoria’s Mental Health System
1 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 527.
2 Department of Health and Human Services, Digitising Health: How Information and Communications Technology
Will Enable Person-Centred Health and Wellbeing Within Victoria, 2016, p. iv.
3 Australian Digital Health Agency, Safe, Seamless and Secure: Evolving Health and Care to Meet the Needs of
Modern Australia: Australia’s National Digital Health Strategy, 2017, p. 3.
4 Piers Gooding, Mapping the Rise of Digital Mental Health Technologies: Emerging Issues for Law and Society,
International Journal of Law and Psychiatry, 67 (2019), 1–11 (pp. 1–2).
5 Department of Health and Human Services, p. 2; CSIRO, Future of Health: Shifting Australia’s Focus from Illness
Treatment to Health and Wellbeing Management, 2018, p. vii.
6 Jennifer Nicholas and others, Issues for EHealth in Psychiatry: Results of an Expert Survey, Journal of Medical
Internet Research, 19.2 (2017), 1–11 (p. 2).
7 John Torous, Keris Jän Myrick and others, Digital Mental Health and COVID-19: Using Technology Today to
Accelerate the Curve on Access and Quality Tomorrow, JMIR Mental Health, 7.3 (2020), 1–6 (p. 1).
8 Witness Statement of Kym Peake, 4 October 2020, para. 284.
9 Witness Statement of Dr Hila Haskelberg, 13 July 2020, para. 38.
10 RCVMHS, Consumer Human-Centred Design Focus Group—Crisis Response: Record of Proceedings, 2020.
11 Witness Statement of Associate Professor Simon Stafrace, 14 August 2020, para. 184.
12 Shalini Lal, E-Mental Health: Promising Advancements in Policy, Research, and Practice, Healthcare Management
Forum, 32.2 (2019), 56–62 (p. 57); Mental Health Commission of Canada, E-Mental Health in Canada: Transforming
the Mental Health System Using Technology, 2014, p. 7.
13 Lal, p. 57; Mental Health Commission of Canada, E-Mental Health in Canada: Transforming the Mental Health
System Using Technology, p. 7.
14 Ana Hategan, Caroline Giroux and James A. Bourgeois, Digital Technology Adoption in Psychiatric Care: An
Overview of the Contemporary Shift from Technology to Opportunity, Journal of Technology in Behavioral Science,
4 (2019), 171–177 (p. 171).
15 Mental Health Commission of Canada, Toolkit for E-Mental Health Implementation, 2018, p. 12.
16 Productivity Commission, Mental Health Inquiry Report, Volume 2, 2020, pp. 491–492.
17 Productivity Commission, Draft Report on Mental Health, Volume 1, 2019, p. 208.
18 Witness Statement of Dr Hila Haskelberg, para. 8.
19 Beyond Blue, Submission to the RCVMHS: SUB.0002.0029.0099, 2019, p. 18; Gooding, p. 4; Commonwealth
Department of Health, Head to Health, <www.headtohealth.gov.au/>, [accessed 9 November 2020].
20 Smiling Mind, Briefing Note to the RCVMHS: CSP.0001.0118.0001, 2020, p. 1; Calm Blog, About, <www.calm.com/blog/
about>, [accessed 14 December 2020].
21 iMoodJournal, About, <www.imoodjournal.com/>, [accessed 14 December 2020].
22 Simon Hoermann and others, Application of Synchronous Text-Based Dialogue Systems in Mental Health
Interventions: Systematic Review, Journal of Medical Internet Research, 19.8 (2017), 1-10 (p. 1).
23 World Economic Forum, Empowering 8 Billion Minds Enabling Better Mental Health for All via the Ethical Adoption
of Technologies: White Paper, 2019, p. 14.
24 Crisis Text Line, Text HOME To 741741 to Connect with a Crisis Counselor, <www.crisistextline.org/>, [accessed 17
November 2020].
25 Doris Erbe and others, Blending Face-to-Face and Internet-Based Interventions for the Treatment of Mental
Disorders in Adults: Systematic Review, Journal of Medical Internet Research, 19.9 (2017), 1–15 (p. 2).
26 Clare Liddy and others, The Current State of Electronic Consultation and Electronic Referral Systems in Canada:
An Environmental Scan, Studies in Health Technology and Informatics, 209 (2015), 75–83 (p. 76).
27 Ministry of Health, Ontario, Ontario Health Teams: Digital Health Playbook, 2019, p. 31; Katie O’Leary and
others, ‘Collaborative Health Reminders and Notifications: Insights from Prototypes’, AMIA Annual Symposium
Proceedings Archive, 2018, 837–846 (p. 837).
28 Peng Zhao and others, Web-Based Medical Appointment Systems: A Systematic Review, Journal of Medical
Internet Research, 19.4 (2017), 1–17 (p. 3).
29 Kobi Leins and others, Correspondence to the RCVMHS: CSP.0001.0111.0001, To Chat, or Bot to Chat, Just the
First Question: Potential Legal and Ethical Issues Arising from a Chatbot Case Study, 2020, pp. 2–3; Aditya
Nrusimha Vaidyam and others, Chatbots and Conversational Agents in Mental Health: A Review of the Psychiatric
Landscape, The Canadian Journal of Psychiatry, 64.7 (2019), 456–464 (p. 457).
30 Commonwealth Department of Health, Head to Health, <headtohealth.gov.au/>, [accessed 9 November 2020].
31 Leins and others, pp. 3–4.
32 Grant Blashki and Simon Lock, Artificial Intelligence and Mental Health, Artificial Intelligence for Better or Worse,
Future Leaders, 2019, 73–85 (pp. 75–84).
54
Volume 5 Chapter 34: Integrating digital technology
55
Royal Commission into Victoria’s Mental Health System
56
Volume 5 Chapter 34: Integrating digital technology
57
Royal Commission into Victoria’s Mental Health System
58
Volume 5 Chapter 34: Integrating digital technology
187 Dr Piers Gooding and Dr Yvette Maker, Submission in Response to the Draft Report from the Productivity
Commission Inquiry into Mental Health, 2020, pp. 3–4.
188 Witness Statement of Dr Hila Haskelberg, para. 32(c).
189 H. Wisniewski and J. Torous, ‘Digital Navigators to Implement Smartphone and Digital Tools in Care’, Acta
Psychiatrica Scandinavica, 141.4 (2020), 350–355 (p. 352).
190 Orygen, The National Centre of Excellence in Youth Mental Health, p. 34.
191 Gooding, p. 4; Witness Statement of Professor Ian Hickie AM, para. 126.
192 Productivity Commission, Mental Health Inquiry Report, Volume 2, pp. 483–484.
193 Australian Commission on Safety and Quality in Health Care, National Safety and Quality Digital Mental Health
Standards, <www.safetyandquality.gov.au/standards/national-safety-and-quality-digital-mental-health-
standards>, [accessed 3 December 2020].
194 Witness Statement of Dr Piers Gooding, para. 32(c).
195 Witness Statement of Professor Emeritus Bruce Singh AM, 23 July 2020, para. 36.
196 Black Dog Institute, Submission to the Productivity Commission Inquiry into Mental Health, p. 23.
197 Witness Statement of Terry Welch, 11 July 2019, para. 71.
198 Commonwealth Department of Health, The Fifth National Mental Health and Suicide Prevention Plan, 2017,
pp. 46–47.
199 Australian Government Services Australia, Medicare Statistics: Medicare Item Reports, <www.medicarestatistics.
humanservices.gov.au/statistics/mbs_item.jsp>, [accessed 14 November 2020].
200 Witness Statement of Georgie Harman, 2020, para. 66; Witness Statement of Professor Mario Alvarez-Jimenez,
para. 102.
201 Department of Health and Human Services, pp. v–vii.
202 Witness Statement of Kym Peake, 2020, paras. 275–276.
203 Witness Statement of Kym Peake, 2020, paras. 275–276.
204 NorthWestern Mental Health (A Division of Melbourne Health), Submission to the RCVMHS: SUB.0002.0030.0061,
2019, p. 29.
205 RCVMHS, Regional AMHS Provider Information Sharing Roundtable: Record of Proceedings, 2020.
206 RCVMHS, Regional AMHS Provider Information Sharing Roundtable: Record of Proceedings.
207 Witness Statement of Kym Peake, 2020, para. 291.
208 Victorian Government, Victorian Budget 2020–21: Overview, 2020, p. 23.
209 Victorian Government, Victorian Budget 2020–21: Overview, p. 23.
210 Witness Statement of Kym Peake, 2020, para. 291.
211 Health Education England NHS, The Topol Review. Preparing the Healthcare Workforce to Deliver the Digital
Future, 2019, p. 10.
212 Witness Statement of Dr Hila Haskelberg, para. 65.
213 Witness Statement of Professor Mario Alvarez-Jimenez, paras 185–186.
214 Wisniewski and Torous, p. 10.
215 McKinsey and Company, Returning to Resilience: The Impact of COVID-19 on Mental Health and Substance Use,
<www.mckinsey.com/industries/healthcare-systems-and-services/our-insights/returning-to-resilience-the-
impact-of-covid-19-on-behavioral-health>, [accessed 23 April 2020].
216 Australian Bureau of Statistics, Household Use of Information Technology, 2016–17, <www.abs.gov.au/statistics/
industry/technology-and-innovation/household-use-information-technology/latest-release>, [accessed 4
November 2020].
217 Julian Thomas and others, Measuring Australia’s Digital Divide: The Australian Digital Inclusion Index 2019,
2019, pp. 5–6.
218 Witness Statement of Shane Solomon, para. 50.
219 Royal Flying Doctor Service Victoria, Submission to the RCVMHS: SUB.0002.0029.0072, 2019, p. 5.
220 Witness Statement of Professor Rob Moodie, p. 32.
221 Grow Australia, Submission to the RCVMHS: SUB.0002.0029.0325, 2019, p. 7.
222 Witness Statement of Kym Peake, 2020, para. 289.
223 Witness Statement of Shane Solomon, para. 50.
224 Victorian Government, Victorian Budget 2020–21: Rural and Regional Budget Information Paper, 2020, p. 11.
225 Commonwealth Government, Budget 2020–21: Economic Recovery Plan for Australia Overview, 2020, p. 20.
226 CSIRO, p. 10.
59
Royal Commission into Victoria’s Mental Health System
227 Derek de Beurs and others, ‘Active Involvement of End Users When Developing Web-Based Mental Health
Interventions’, Frontiers in Psychiatry, 8:72 (2017), 1–5 (p. 4).
228 Witness Statement of Professor Bruce Bonyhady AM, 16 June 2020, p. 51.
229 Sophie Farthing and others, Human Rights and Technology Discussion Paper, 2019, pp. 170–171; Witness Statement
of Professor Bruce Bonyhady AM, p. 56.
230 Lisa Hoffman, Social Services Innovations—Equity and Inclusion in Digital Mental Health Literacy, Social Work
Today Magazine, <www.socialworktoday.com/archive/SO19p10.shtml>, [accessed 4 November 2020].
231 Hoffman, Social Services Innovations—Equity and Inclusion in Digital Mental Health Literacy, Social Work Today
Magazine, <www.socialworktoday.com/archive/SO19p10.shtml>, [accessed 4 November 2020].
232 CSIRO, pp. 28–29.
233 RCVMHS, Virtual Help—The Future of Digital Services Roundtable: Record of Proceedings, 2020.
234 RCVMHS, Virtual Help—The Future of Digital Services Roundtable: Record of Proceedings.
235 Helen Christensen and others, E-Mental Health Services in Australia 2014: Current and Future, 2014, p. 10.
236 Christensen and others, pp. 3–4 and 10–11.
237 Commonwealth Department of Health, Initial Submission to the Productivity Commission Inquiry into Mental
Health, 2019, pp. 22–23.
238 E-Mental Health in Practice, Submission in Response to the Draft Report, Chapter 6: Supported Online Treatment
from the Productivity Commission Inquiry into Mental Health, 2020, p. 2.
239 Productivity Commission, Mental Health Inquiry Report, Volume 2, pp. 666–667.
240 EY, Submission in Response to the Draft Report from the Productivity Commission Inquiry into Mental Health,
2020, p. 4.
241 Productivity Commission, Mental Health Inquiry Report, Volume 2, p. 667.
242 Productivity Commission, Mental Health Inquiry Report, Volume 2, p. 667.
243 Gooding and Maker, p. 4.
244 Michael Bauer and others, ‘Ethical Perspectives on Recommending Digital Technology for Patients with Mental
Illness’, International Journal of Bipolar Disorders, 5.6 (2017), 1–14, (pp. 6 and 8).
245 Witness Statement of Dr Elizabeth Deveny, para. 106.
246 Quinn Grundy and others, Finding Peace of Mind: Navigating the Marketplace of Mental Health Apps, 2017, p. 12.
247 Gooding, p. 4.
248 Witness Statement of Dr Piers Gooding, para. 27.
249 Witness Statement of Kym Peake, 2020, para. 295.
250 CSIRO, p. 10.
251 Gooding and Maker, p. 4.
252 Grundy and others, pp. 7–10.
253 Gooding and Maker, p. 4.
254 Gooding and Maker, p. 4.
255 Brigid Richmond, A Day in the Life of Data: Removing the Opacity Surrounding the Data Collection, Sharing and
Use Environment in Australia, 2019, p. 37.
256 Bucci, Schwannauer and Berry, pp. 289–290.
257 RCVMHS, Innovation Roundtable—Hosted by LaunchVic: Record of Proceedings, 2020.
258 RCVMHS, Innovation Roundtable—Hosted by LaunchVic: Record of Proceedings.
259 Witness Statement of Professor Mario Alvarez-Jimenez, para. 38.
260 Department of Health and Human Services, pp. v–vii.
261 Ministry of Health, Ontario, p. 12.
262 Ministry of Health, Ontario, p. 64.
263 Ministry of Health, Ontario, p. 64.
264 Ministry of Health, Ontario, p. 64.
265 Ministry of Health, Ontario, p. 64..
266 Witness Statement of Associate Professor Simon Stafrace, 2020, para. 192.
267 Daniel S. Johnston, ‘Digital Maturity: Are We Ready to Use Technology in the NHS?’, Future Hospital Journal, 4.3
(2017), 189–192 (p. 191).
268 Johnston, p. 191.
269 Johnston, pp. 190–191.
60
Volume 5 Chapter 34: Integrating digital technology
61
Royal Commission into Victoria’s Mental Health System
62
Volume 5 Chapter 35: New approaches to information management
Chapter 35
New approaches
to information
management
63
Royal Commission into Victoria’s Mental Health System
64
Volume 5 Chapter 35: New approaches to information management
Recommendation 61:
1. develop policies, standards and protocols to enable the effective, safe and efficient
collection and sharing of mental health and wellbeing information.
2. s
et expectations that mental health and wellbeing services will provide opportunities
for consumers to contribute to the information held about them and gain easy
access to it.
3. c
ollaborate with consumers to introduce a consent-driven approach to information
sharing with mental health and wellbeing services and individuals outside of the mental
health and wellbeing system.
65
Royal Commission into Victoria’s Mental Health System
Recommendation 62:
Contemporary
information architecture
The Royal Commission recommends that the Victorian Government:
1. d
evelop, fund and implement modern infrastructure for Information and
Communications Technology (ICT) systems, including:
a. a
new statewide Electronic Mental Health and Wellbeing Record for mental health
and wellbeing services to replace the current Client Management Interface/
Operational Data Store (CMI/ODS) system;
b. a
review of data items currently required for service delivery and system
administration, the removal of unused items and the addition of new items that
accurately reflect mental health service activity and consumer outcomes;
c. a
new Mental Health Information and Data Exchange that allows interoperability
between the proposed Mental Health and Wellbeing Record and other services’
major ICT systems to support information sharing in real time within and across
services and sectors;
d. a
new user-friendly online consumer portal (web and mobile) connected to the
Mental Health Information and Data Exchange that allows consumers to view key
information about themselves and authorise sharing of information with members
of their care team, including families, carers and supporters; and
e. a
comprehensive data repository and associated clinical registries for mental health
(within the recommended Mental Health Information and Data Exchange) that will
support outcome measurement, future service planning, continuous improvement
and mental health research.
66
Volume 5 Chapter 35: New approaches to information management
In the digital age, a person’s mental health and wellbeing information should be easily
accessible to them—they should be able to get it quickly and efficiently.1 Consumers having
access to their own information helps to build their trust and supports them to participate in
discussions and decisions about their treatment, care and support.2
Organisations and service providers involved in a person’s treatment, care and support need
to have access to appropriate, timely and accurate information to provide services that are
compassionate, safe, effective and coordinated. The flow of this information helps consumers
move seamlessly and safely within and between services.3 Families, carers and supporters
also need access to appropriate information to support people living with mental illness or
psychological distress.
A wide range of information is collected and used across the mental health system. This
information is often sensitive and personal to the consumer. It needs to be collected and used
to help service providers and mental health workers understand a consumer’s experiences,
needs and preferences, and to work closely with them to identify and deliver appropriate
treatment, care and support. Information and data are also needed to help services and
the system to remain accountable for their performance, to forecast and respond to future
service demand, and to continually improve the quality of service delivery.4
The National Mental Health Commission and the Productivity Commission recently highlighted
the need for future mental health services and systems to be underpinned by high‑quality
information and data to support better consumer outcomes and good system administration.5
In the new mental health and wellbeing system, many people will receive treatment, care and
support that requires some form of collaboration across multiple services and individuals.
This might include health services, emergency departments, acute inpatient services,
community‑based services and GPs, as well as families, carers and supporters and other
services.6 The effective, safe and efficient collection, use and sharing of information is
essential for this to occur.
Figure 35.1 outlines some of the Commission’s major reform objectives that will need to be
supported by contemporary approaches to information collection, use and sharing.
67
Royal Commission into Victoria’s Mental Health System
They should help people move within and between services seamlessly and should provide for
consumers to actively participate in and collaboratively manage their own mental health and
wellbeing. They should also enable families, carers and supporters to undertake their caring
roles effectively.
Figure 35.2 describes the Commission’s vision for a connected and high‑performing mental
health and wellbeing system across all age cohorts that uses contemporary approaches
to information collection, use and sharing to improve consumer experiences, outcomes
and service and system performance. These arrangements will improve communication
and collaboration between service providers, improve service efficiency through reduced
administrative burden and duplication of effort, and improve decision making. Most
importantly, they will improve the consumer experience.
68
Volume 5 Chapter 35: New approaches to information management
69
Royal Commission into Victoria’s Mental Health System
Mental health information can take a number of forms but includes items such as assessment
results, clinical notes, medication information, admission and discharge summary
information, prior service delivery history and interventions received, consumer advance
statements—which are formal documents that set out consumer preferences for treatment,
care and support—and consumer outcomes.
There is widespread support for better information sharing across the system from
consumers, families, carers and supporters and service providers, but they have emphasised
that ensuring people’s privacy and safety must remain a major feature of the future system.9
Mr Dave Peters, a witness before the Commission, said that while information sharing is
beneficial, unfortunately the stigma of mental illness means that too much sharing may have
a negative impact on consumers:
there’s a real opportunity to use the available information to benefit both the
patient and the clinician by preventing repeated tests and helping prevent a need
for the patient to tell their history again. Unfortunately there is a risk that too much
shared information could impair the diagnostic process due to the stigma related to
mental illness.10
The Commission understands that some mental health information is very sensitive. While
increased information sharing will most likely improve the continuity of treatment, care and
support and consumer experiences, when implementing the recommended reforms, the
Victorian Government will need to carefully consider the extent to which different types of
information are collected, stored and shared, to uphold consumer privacy and safety.11
New information cultures and systems will need to strongly protect consumers’ information
and privacy, and promote trust in information sharing. Some information may continue to
be shared as it currently is. Examples include existing permissions that allow for workers
on the same team to communicate about a consumer in their treatment, care and support
or existing obligations to provide information to relevant authorities when legally required.
However, to allow services to deliver integrated and seamless treatment, care and support,
the movement of information around the mental health and wellbeing system must change.
Supported by appropriate permissions and protections, new approaches to the collection, use
and sharing of information can enable:
• consumer access to their own information to help them to manage their own
treatment, care and support and increase their agency—that is, their sense of control
over their own lives
• sharing information within a mental health and wellbeing service to deliver treatment,
care and support
70
Volume 5 Chapter 35: New approaches to information management
• sharing information between different mental health and other health services (such
as physical health, general practice or allied health) to enable effective consumer
transitions
• where appropriate and necessary, sharing basic information with broader service
systems such as community providers and other services including alcohol and other
drug, housing, employment and other support services
• improved system administration and accountability
• more effective continuous improvement of services, interventions and the system
as a whole.
For the purpose of this report, ‘information collection’ refers to mental health
information a service provider or entity may collect as part of its organisational
functions. ‘Use’ refers to the use of information for the purpose of delivering
services to consumers, or for directly related purposes such as administration.
‘Use’ also refers to who can see and use this information, and in what
circumstances. It includes the protections and securities put in place to ensure
privacy standards are met.
Consumers access and use their own health information so they can make
decisions about their treatment, care and support. Having timely access to
complete information helps them to manage their own recovery.
Mental health and wellbeing workers and services also use consumer mental
health records to document a consumer’s health history, medications, diagnoses,
treatment plans and clinical notes and outcomes.
71
Royal Commission into Victoria’s Mental Health System
At the service level, access to data and information, coupled with data analytics
capability, helps with performance monitoring and supports clinical practice and
the management, delivery and evaluation of health services.14 Comprehensive
outcomes‑based data also helps inform research into the effectiveness of
interventions, both for specific groups of people and at the system level.15
72
Volume 5 Chapter 35: New approaches to information management
• clarity about the purpose of information collection, use and sharing—to ensure
everyone understands how, when and why information should be captured or shared,
and to recognise that each person involved in someone’s treatment, care and support
has information that others may need to know
• open sharing of information between workers, services and organisations, governed by
clear and transparent permissions that describe what information should be shared
and in which circumstances—noting that not all information needs to be shared
with everyone
• increased consumer access to their own mental health and wellbeing information, and
the ability for consumers to contribute to their own records, where appropriate—noting
that there are circumstances when this cannot occur due to risk to the person or others
• an open and respectful mindset when recording information about consumers
• privacy and credentialling arrangements to ensure mental health and wellbeing
information is only shared with those who need to see it—with clear and simple consent
policies and mechanisms that give as much control as possible to consumers in terms
of who sees what information, and in which circumstances
• information is recorded securely in electronic form in interoperable systems, and there
are mechanisms in place to enable efficient and appropriate flow of information within
and between services
• progressive improvement based on experience of what works and what does not.
73
Royal Commission into Victoria’s Mental Health System
Figure 35.3: Features of contemporary information management in mental health and wellbeing
74
Volume 5 Chapter 35: New approaches to information management
However, the Commission found there are limitations in the sharing of information within
mental health services, between mental health services and with other organisations involved
in a person’s treatment, care and support.17 These limitations have a negative impact on
consumer experiences and outcomes. There are also challenges associated with consumers
accessing their own mental health information, and families, carers and supporters often
struggle to access appropriate information when needed.
The Commission’s interim report emphasised that, at the service and system levels,
‘inadequacies in information gathering and data collection across all levels of the mental
health system also constrain system accountability and monitoring’.18 It observed that
‘information and data are incomplete, inconsistent and often inaccessible, lacking a
nationally consistent approach to outcomes measurement, collection and use’.19
The Commission is concerned about the negative impacts these challenges are having
on consumers, families, carers, supporters, service providers and mental health workers,
and the system.
In their witness statement, Mary and Jacob Corbett described how the lack of information
sharing between services, and even within services, forces people to explain their
circumstances time and again, negatively affecting the experience of receiving treatment,
care and support:
In our experience, there is not very good communication and sharing of information
between services, or even within the same service. For example, if a person goes to
hospital in an ambulance, the paramedics ask questions, which the patient answers.
Then the receptionist asks the same questions, then the doctor on the ward asks the
same questions, and so on and so on. Even before a patient is settled in their room, they
may have been asked the same questions by five or six different people. It is obviously
counterproductive to have to relive the traumatic experiences over and over, especially
when you are just freshly sick and disoriented.20
75
Royal Commission into Victoria’s Mental Health System
Similar challenges occur as consumers move between public mental health services and
primary and secondary mental health and related services, sometimes negatively affecting
their wellbeing. For example, one person shared the damaging impact poor information
sharing between her hospital team and private psychiatrist had on her physical health:
And well, for me, a really big thing happened earlier this year. It was between the hospital
service and my private psychiatrist. Because I had a really rare reaction to medication.
And the hospital didn’t communicate what actually happened to my psychiatrist,
even though they said they did. And he put me on another medication, which caused
the same thing. And I’ve now been in a wheelchair since February, because they didn’t
communicate …21
The experience of limited information sharing was echoed by a number of consumers, who
cited examples of poor information sharing between their GP and public area mental health
services, between community‑based services and inpatient services, and between public
mental health and private services.22
Area mental health services noted that a reliance on paper‑based files and the lack of
sufficiently accessible and joined‑up clinical information sharing systems often meant
lengthy delays in receiving information from other services. As a result, consumers may be
discharged without a comprehensive assessment, forced to wait for lengthy periods in the
emergency department, or given inadequate responses.23
Mental health services also currently have no way of identifying how many times a person
may have attended an emergency department or called for help.24 This means that
someone’s deterioration may go unnoticed for long periods of time.25 Limited information
sharing between different services means that services are often unaware of a person’s
history. One carer informed the Commission about the terrible result the lack of access to
prior information had on her daughter’s life. Unfortunately, her experience reflected others
across the system:
There needs to be access to a patient’s file across all mental health institutions. My
daughter was taken to [hospital] … in a heightened state claiming she wanted to die, she
was assessed, and released. She was found dead in the city at 7am. My first question to
the Detective who told me this was ‘Why was she released when she had a long history
of [mental health] treatment and had only been in Psych Ward 4 days earlier?’ You can
only imagine my disbelief when informed that they had no way of knowing unless told by
the patient or someone with them.26
76
Volume 5 Chapter 35: New approaches to information management
Outdated systems and processes also affect people’s privacy and safety. The Commission
heard from a consumer who had suffered a severe breach of privacy due to a lack of secure
and efficient digital sharing capability:
My private doctor doesn’t have a fax. They wouldn’t take an email, they wouldn’t
take a phone call. And so I ended up getting my parents to print a copy so that I could
physically hand it to the treating team so that they would have the relevant information.
However, what happened in that exchange was that my parents, particularly my mother
read it, which is a huge violation of privacy, but also there’s a history of family violence
there. And so it really wasn’t an appropriate mechanism at all for that information
sharing to occur between my private doctor and the public hospital treating team. And
it was incredibly disempowering that there was no efficient, streamlined way for that
information sharing to occur, it was detrimental to my treatment, it was detrimental for
them not to have that contextual information.27
While the lack of information sharing within and between services is a considerable challenge,
the Commission was equally concerned with the apparent lack of consumer access to their
own mental health information. Consumers indicated that they want to access their own
information for a number of reasons, including as closure for past circumstances, as a means
of understanding their experiences, to assist their recovery and to challenge the record.28
However, they often struggle to access their mental health information when they need it.
One person told Victoria Legal Aid that the lack of access to their clinical notes made it
challenging to exercise their rights:
It’s not easy to exercise your rights when you don’t have any of the information you
need. In there I tried to access my own clinical notes, to understand what they were
saying about me. Instead they said that I would have to go through this rigorous
freedom of information process, to access the notes that they were writing about me! I
just gave up. For someone doing worse than me, this would be impossible.29
Access to appropriate levels of information was also a big challenge for families, carers
and supporters. The Victorian Government’s submission to the Productivity Commission
recognised that families, carers and supporters are often not provided with relevant
information or excluded from the treatment of their loved ones.30 Chapter 19: Valuing and
supporting families, carers and supporters discusses these information challenges in detail
and highlights that the lack of information sharing with families, carers and supporters
makes it incredibly challenging for them to undertake their caring role successfully, and can
make them feel alienated.31 One carer at a roundtable told the Commission that they felt
excluded from the person’s care team:
they weren’t sharing [information] and they weren’t treating me as an important part
of the team.32
77
Royal Commission into Victoria’s Mental Health System
Another carer noted that the role carers play is not acknowledged, and the information that
they hold is not always valued:
the communication just isn’t there, that acknowledgement that we have, I suppose
wisdom and resilience as a consequence of the role that we play is overlooked
and I think there’s the potential for allyship and collaboration, [but] the lack of
communication just means that that’s always missed.33
The Commission understands there are many reasons for the current challenges with the
collection, use and sharing of information outlined above, including:
The Productivity Commission’s Mental Health Inquiry Report also found culture, legislation
and ICT systems to be the major barriers preventing routine sharing of information in mental
health to enable continuity of care.35 The Royal Commission into Family Violence found
similar barriers to information collection, use and sharing, indicating that these types of
issues are common in large and complex systems.36
The Commission was told that there is a lack of engagement with information and a general
lack of collaboration and process. A consumer at a roundtable said that there needs to be a
culture that promotes reading and engaging with information:
we can develop the best and incredibly well designed information sharing system with
state of the art technology, that will only be as good as the way that it’s implemented
… any system that we design in terms of information sharing is only as good as people
actually having time to read it, having a culture around the importance of reading it,
and engaging with it.37
However, some consumers told the Commission that there appears to be a lack of willingness
or time on the part of mental health workers to read consumer information, resulting in
consumers continually being asked the same questions, or receiving ineffective responses:
My experience is that staff often don’t have time to read information, even when it’s
there. So even when I’ve had an advance directive on file … my experience is that even
though they’re legally required to the overwhelming majority of staff don’t read it.38
78
Volume 5 Chapter 35: New approaches to information management
The Commission also understands that practitioners may refuse to share information either
within or between services. Sometimes this is due to a lack of trust, or different attitudes
and beliefs between different workforces; or a fear of causing further stigma for a consumer.39
The stigma surrounding mental illness means that clinicians, often with the best of intentions,
may be unwilling to share sensitive information with other members of the team, or with
other services.40
Dr Stuart Lewena, Director of Emergency Medicine at The Royal Children’s Hospital, cited
the lack of willingness of some service providers to collaborate as a central cause of poor
information sharing. He also noted that a reluctance to collaborate can be caused by
practitioners disagreeing about diagnosis or approaches to treatment, care and support:
The predominant barrier that needs to be overcome … is the apparent lack of willingness
of some stakeholders to engage and collaborate with one another. My observations of
this as a stakeholder who interacts with the mental health system and its practitioners
are that this manifests in … some mental health care providers refusing to share patient
information [and] clinical disagreements between mental health care providers on
diagnosis and treatment methodology for particular shared patients.41
One consumer at a roundtable told the Commission that staff appeared to disregard
important information about her health from another clinical expert:
I’m actually trying to share clinical information and they don’t even care about clinical
information from another … experienced doctor who’s known me for five years.42
Consumers also felt that the mental health system in general was unwilling to share notes
with them, and that the systems and processes in place to access their own information are
cumbersome and ineffective.43
Placing a freedom of information request with services to receive information, and associated
lengthy delays, can be a cause of strain for consumers. One consumer was sent only
screenshots from clinical systems that were impossible to decipher:
I asked for all my medical records from the [hospital] … all they did was give me
screenshots of my admissions, there were no notes, there was no nothing. Like, you know,
no one wants to share your information, like I can’t even get my own information.44
Another consumer described receiving heavily redacted copies of their own records, which
caused great anxiety and fear that there was something terrible in the record that they
should not see.45 Under the Freedom of Information Act 1982 (Vic), service providers can be
legally obliged to redact information for many reasons, including when the provider believes
(on reasonable grounds) that providing the information to the person would pose a serious
threat to the life or health of the person or another person.46 However, some consumers
find this practice to be inconsistent across and within services, and that it is overused and
excludes them from understanding their service history.47
While consumers recognised that there may be some circumstances where information
sharing may need to be delayed, or where information may not be shared, they argued that
in most cases people should be able to know and see what is written about them.
79
Royal Commission into Victoria’s Mental Health System
I think, there needs to be a culture shift in the mental health system, to see that in the
majority of situations, consumers should know what is written about them, and have the
opportunity to disagree or to clarify information.48
When consumers did receive their records, they stated that the information was often written
in clinical language that was not accessible to them, or felt disrespectful, judgemental and
hurtful.49 One roundtable participant said that the notes they received were unprofessional:
the notes that were written about me some of them were bordering on insulting, some
of them are bordering on incredibly disrespectful. Very judgmental language, language
that was very much not recovery‑oriented … it was like reading a playbook of insults.
And I was like, this is supposed to be my medical record. This is absurd … how can this
mental health service legitimately claim that this is a medical record when parts of it
read like a schoolyard series of insults.50
Consumers were adamant that there needs to be a cultural shift in the recording of
information that places the person at the centre, is therapeutic and captures the consumer’s
own voice. Another person noted the need for more accessible language in records:
An issue with the clinical notes at the moment, is that they’re so clinical and written in
a language that individuals don’t use those words to describe themselves … And I think
there’s sometimes potentially a case for writing two notes, one in a clinical language and
another one, that it’s an accessible language for consumers to process themselves, or
just ditch the clinical language in the first place and have all of it written in accessible
language. So I think it’s a change in the way things are written rather than a not
sharing at all.51
The Commission expects that in the future mental health and wellbeing system, information
recorded about, and provided to, consumers will be accessible and understandable. The
Commission also understands the critical importance of accurate, clear and clinically
relevant notes to support practitioners to appropriately assess people experiencing mental
illness or psychological distress, diagnose their conditions and provide them with treatment,
care and support. In many cases, this requires the creation of notes that contain technical
language and apply commonly used terms or phrases. As these notes are used across
periods of time and sometimes shared between practitioners, there needs to be a level of
consistency and clinical rigour to ensure they can be used to deliver high‑quality treatment,
care and support.
Providers are required to capture relevant and sufficient content to safely perform their roles,
and regulated practitioners and clinicians are required to take appropriate, relevant and
accurate notes as part of their professional registration.52 Consumers should be supported to
understand any technical references in their notes and, where feasible, safe and appropriate,
information should be recorded in an accessible format. Information should always be
communicated in a respectful way.
80
Volume 5 Chapter 35: New approaches to information management
The Commission was also told that it is rare for consumers to be able to contribute to their
own mental health records, which reduces their sense of agency and their control over their
own treatment, care and support.53 Consumers were clear that, wherever possible, they would
like the opportunity to contribute to their own records.54 A person told Victoria Legal Aid that
their inability to contribute risked organisations forming a negative perception of them:
I have no meaningful way to be involved in how these are written, to see them or to
correct them when they are wrong. This then goes to places like the [Mental Health
Tribunal] where it defames me.55
Families, carers and supporters said that some service providers may use privacy and
confidentiality obligations as a way to exclude them from accessing relevant information,56
stating that there is an overall culture of not including consumers’ support networks in
consultations.57 The Commission understands that there are a number of potential factors
leading to such practices. For example:
• Many professionals are trained to work with consumers in a one‑on‑one context, which
means they might not have the information needs of families, carers and supporters
front of mind.
• Professional codes of ethics generally impose confidentiality as a fundamental
principle.
• The management of legal or other risks within services may require them to routinely
reinforce the importance of privacy and confidentiality.
• Time and capacity to think and work with an individual and their families, carers and
supporters is limited in the current system.
• Sometimes families, carers and supporters can be perceived as ‘difficult’ because
they have had to advocate strongly for the person they care for in a broken system.
As a result, some practitioners are reluctant to engage with them or do not feel
confident doing so.
• the complexity and number of legislative, regulatory and policy frameworks, which
creates uncertainty about which regimes or rules apply, to whom and in what
circumstances
• uncertainty creating a default position of privacy and confidentiality, even when
information may be able to be shared
• a focus on the obligations of individual service providers, rather than consumer needs,
which means that information sharing across multiple providers is difficult, despite
information being essential for consumers accessing mental health services and
consumers often requesting it.
81
Royal Commission into Victoria’s Mental Health System
While intended to protect consumers’ privacy and safety, the current frameworks have been
established with a focus on what information individual service providers can collect, use and
share. These rules are important but do not always support an integrated and responsive
approach that focuses on individual consumers and their preferences or needs. Consumers,
families, carers, supporters and service providers are sometimes restricted from accessing or
receiving information that may improve treatment, care and support.
Information collection, use and sharing is already taking place under current arrangements.
However, given the scale of change needed to establish the new mental health and wellbeing
system, changes to legislation, protocols, processes and practices will be required to ensure
information can flow safely and effectively. The Commission has identified several areas
where change will likely be needed.
Under the Health Records Act 2001 (Vic), consumers have a right of access to their own
information,58 subject to requirements in the Freedom of Information Act. A consumer's request
to access their information is often initiated through a freedom of information request to their
relevant mental health service provider. Consumers are required to submit a separate freedom
of information request for each health service provider they require information from and may
also need to pay a fee for the administrative cost of gathering or preparing the information.59
Under current laws, service providers must not give a person access to their mental
health information if the organisation believes on reasonable grounds that providing the
information would pose a serious threat to the life or health of the individual or any other
person,60 or where the information has been handed over to the organisation in confidence.61
This may result in the redaction of certain information provided to a consumer.
When consumers try to access their own information as allowed by legislation, this process
can take a very long time. It is not an efficient way for consumers to check that the health
information about them is accurate, up to date and fairly records their position and views.
There are also inconsistent approaches in the redaction of information.
So, while current legislation does not in itself appear to be a barrier to consumers accessing
their own records, it is clear that the means of gaining this access are cumbersome and
require reform. New practices and processes are needed to improve consumers’ ability to
easily gain access to their mental health information, supported by technology.
Progress towards this objective is already underway in parts of the mental health system. For
example, a number of services are trialling new consumer portals that improve consumer and
practitioner access to information.62 Epic at Melbourne Health is introducing a portal called
the Health Hub. Professor George Braitberg AM, Executive Director of Strategy, Quality and
Improvement at The Royal Melbourne Hospital, said that the hub will:
allow medical practitioners and patients to access their records securely and document
any changes to their treatment plan, review their admissions to hospital, pathology
results and upcoming appointments, and facilitate correspondence between medical
practitioners.63
82
Volume 5 Chapter 35: New approaches to information management
As discussed in Chapter 19: Valuing and supporting families, carers and supporters, current
legislative and policy arrangements set out several provisions that allow families, carers
and supporters to access some consumer mental health information that will allow them to
carry out their caring role.64 A range of different provisions exist for different circumstances,
but Chapter 19 acknowledges that these provisions are complex, not always well understood
by service providers, families, carers and supporters, and so are not always effective. The
Commission has suggested that these provisions be simplified as part of legislative change
recommended in Chapter 26: Rebalancing mental health laws—a new Mental Health and
Wellbeing Act, and has recommended new standards to help guide information sharing in the
mental health and wellbeing system.
Under current arrangements in Victoria, designated mental health services65 can collect and
use consumer mental health information and share it between one another for the purpose of
service delivery.66
However, for other types of health service providers, such as primary and secondary
providers, emergency services and non‑government organisations, information collection,
use and sharing is more complex. Different frameworks govern their ability to collect, receive,
use and share information in different circumstances.
This complexity can make it difficult for workers and services to understand which regime
applies to which organisation, and in what circumstances. Even when legislation does not
formally restrict the collection or disclosure of information, its complexity can mean that
services avoid collecting and sharing information out of an abundance of caution.67
In this section, the Commission outlines its reforms and an assessment of the limitations of
current information arrangements. This analysis is indicative rather than comprehensive
because the operational requirements of the recommended reforms will need to be further
considered before they are implemented.
83
Royal Commission into Victoria’s Mental Health System
As part of its broader reforms, the Commission has recommended—in Chapter 8: Finding and
accessing treatment, care and support—that any service provider can refer people to Local
Mental Health and Wellbeing Services and that medical practitioners can refer people to Area
Mental Health and Wellbeing Services.
Electronic referrals will be the preferred form of non‑crisis referrals to Local Mental Health
and Wellbeing Services, Area Mental Health and Wellbeing Services and statewide services,
allowing information about the consumer to be received by the services, with the consumer’s
consent, in a standard form. Medical practitioners will collect basic referral information on
the consumer’s health and mental health, as well as other information about their needs and
preferences to facilitate effective transitions.
While legislation already allows medical practitioners to make referrals into public mental
health services, new referral processes, guidelines and policies will need to be established
to ensure consistent referral approaches across the state. However, legislative change
may be required to support circumstances where other service providers may be making a
referral into Local Mental Health and Wellbeing Services. As described in Chapter 8: Finding
and accessing treatment, care and support, the Department of Health should develop and
promote an access policy for mental health and wellbeing services. This will promote a clear
and consistent approach to managing referrals and people’s initial contact with mental
health and wellbeing services.
The legislation will also likely need to be amended to allow for electronic collection of
information and referral into mental health and wellbeing services, as the current scope of
electronic information collection and sharing appears limited.
In the future mental health and wellbeing system, services and practitioners will be expected
to work in a much more multidisciplinary and integrated way, both within and between
services. The Commission intends that alcohol and other drug services, physical health
services, allied health services, wellbeing services, primary and secondary services and a
range of other services will work much more closely together to provide people with effective
treatment, care and support. Functions that have predominantly been the responsibility of
area mental health services may also be undertaken by a broader range of practitioners
and service providers including non‑government organisations. Chapter 5: A responsive and
integrated system, and Chapter 6: The pillars of the new service system—community‑based
mental health and wellbeing services describe these arrangements in detail.
Current arrangements already support the legal sharing of information between primary
and secondary service providers and new mental health and wellbeing services, but there
does not appear to be a uniform process or approach to information sharing with these
organisations, or at least there is little evidence of this. New information sharing protocols
and practices will be needed between mental health and wellbeing services and primary
or secondary providers to allow for Area Mental Health and Wellbeing Services to provide
secondary consultation, and for shared treatment, care and support arrangements,
where relevant.
84
Volume 5 Chapter 35: New approaches to information management
The Commission’s proposed crisis reforms mean that Ambulance Victoria will take a lead
role in responding to consumers experiencing a mental health crisis, as outlined in Chapter
9: Crisis and emergency responses. Police will be involved only where necessary to protect
people’s safety.
The Commission understands that under current arrangements, Ambulance Victoria and
emergency departments not operated by a designated mental health service are unable
to access any consumer mental health information directly.68 Mr Simon Thomson, Regional
Director of Ambulance Victoria, told the Commission that ambulance workers are unable to
access even basic consumer data, such as whether they have a mental health care plan or an
existing provider, to determine the best approach to respond to a person in crisis.69
While these organisations can receive consumer health information from a designated
mental health service under certain circumstances prescribed by the Mental Health Act,
the database that holds this information must be accessed by someone from a designated
mental health service.72
85
Royal Commission into Victoria’s Mental Health System
The Commission recognises that some people who seek treatment, care and support from
multiple service providers find it very challenging to access responsive and coordinated
service responses. Chapter 5: A responsive and integrated system recommends establishing
new Regional Multiagency Panels to support collaboration and accountability of service
provision to some adults, older adults and children and young people who need ongoing
intensive treatment, care and support. Regional Multiagency Panels will support people and
the services that provide treatment, care and support to this cohort to ensure they are held
accountable and collaborate in their work. Participants in Regional Multiagency Panels will be
diverse and will vary, but may include clinical, housing and wellbeing support services.
Health, mental health and other information about people’s needs and preferences will need to
be shared between representatives of participating providers to support good outcomes. Some
information will also need to be shared between Regional Multiagency Panels, the Multiple and
Complex Needs Initiative (MACNI) and the Victorian Fixed Threat Assessment Centre, especially
when community safety is a concern.
In relation to MACNI, there is already some legislative provision to allow for the collection
and sharing of health and personal information between service providers involved in
an approved care plan for eligible people with multiple or complex needs.74 However,
this legislation is not broad enough to allow information to be collected and shared for
all consumers receiving support under the panels, and was crafted specifically for the
MACNI program.
The Regional Multiagency Panel regime will accordingly require its own legislated information
sharing regime. This regime can be modelled on the MACNI information sharing regime
but will need to be crafted to allow sharing of information between those people and
organisations involved in providing treatment, care and support to these cohorts. Ensuring
appropriate delegations and protocols are in place to protect privacy and sensitive
information will also be important.
Better support for people in or leaving prison who are living with mental illness
or psychological distress
The Commission understands that much stronger collaboration and coordination needs to
occur between services and organisations detaining (due to their actual or alleged offending)
people living with mental illness or psychological distress in the criminal and youth justice
systems, particularly people who require ongoing intensive treatment, care and support.
86
Volume 5 Chapter 35: New approaches to information management
Currently, there is a failure to share critically important mental health and health information
across relevant settings and providers, and this greatly impedes the capacity to deliver
effective mental health services in custodial settings, including prisons and police cells. The
Coroners Court of Victoria has previously recommended that better information sharing
occurs between institutional parties involved in a prisoner’s treatment, care and support and
transitions, including Victoria Police, corrections (in both custodial and community settings)
and mental health services.75
While it is not appropriate for officers or general staff to have access to a person’s clinical
information, good communication between these agencies in certain circumstances is
paramount—such as when a person is at high risk of self‑harm or suicide or when they have
a need for intensive treatment, care and support.76 Better coordination of referrals at key
transition points is important, including when someone is transferred from police custody
to a correctional facility, and when they are released from a custodial setting and require
treatment, care and support from an area mental health service.77 Some level of electronic
access to mental health and other information will be necessary to achieve this.
This sharing of limited information will likely require legislative changes and very clear
protocols and delegations to ensure access to any sensitive information is tightly held.
There are already examples in other sectors, including the family violence information
sharing reforms and the Criminal Justice Enhancement Program, which have implemented
comprehensive access rules and oversight arrangements to ensure only authorised people
can view sensitive information.78
The Commission is also recommending the creation of a program to help transition people
in prison living with mental illness or psychological distress who require ongoing intensive
treatment, care and support to Area Mental Health and Wellbeing Services, as outlined in
Chapter 23: Improving mental health outcomes across the criminal justice, forensic mental
health and youth justice systems. The Commission was told of a need to improve information
sharing between health services in prisons and community and mental health and wellbeing
services when someone is released from prison. For example, limited information may be
shared about a person’s medical treatment in prison, and discharge summaries can be lost.79
Privacy and confidentiality concerns may also limit shared information between agencies.80
Chapter 30: Overseeing the safety and quality of services, suggests that the new mental
health quality and safety functions include oversight of the mental health of prisoners to
ensure they receive high‑quality mental health treatment, care and support. This will require
prisoner mental health information to be shared as part of custodial mental health oversight
arrangements. New legislation will be necessary to allow this to occur.
87
Royal Commission into Victoria’s Mental Health System
As noted earlier, information and data are also routinely collected and shared for service and
system administration purposes. Current legislation allows de‑identified information—that
is, information that does not identify an individual—to be used for research in the public
interest. It can also be used for service planning, funding, management, monitoring and
improvement. Thoroughly assessing and revising, if necessary, existing policy and legislative
provisions will be critical to ensure they enable the generation of more advanced information,
including better datasets and new clinical registries to inform research, evaluation,
continuous improvement and system accountability.
Further, the Commission is concerned that the current definition of electronic collection and
use of health information in the Mental Health Act81 appears to be outdated and no longer
fit for purpose. Future electronic information management and sharing arrangements will
require amendments to this section of the legislation so it enables the information sharing
arrangements and associated ICT solutions proposed by the Commission to fulfil their
intended purposes.
Multiple service providers have told the Commission that antiquated ICT systems and
inefficient information collection and sharing arrangements limit their capacity to provide
good‑quality treatment, care and support and to work within and across services in an
integrated and collaborative way.83 Mr Terry Symonds, then Deputy Secretary of Health and
Wellbeing at the former Department of Health and Human Services, also noted that ‘[c]urrent
IT infrastructure and data capabilities for mental health are unable to support contemporary
best practice approaches to service delivery in Victoria.’84
While digital records and electronic sharing of information can raise privacy concerns for
some people, consumers at a roundtable indicated that they would ultimately prefer some
form of efficient electronic system:
I think we have the technology to abate any concern about [privacy]. And I think the
other mechanisms that we have, like printing out paper, like faxing, like phone calls, all of
that is very non‑ideal and an electronic system that is secure is much preferable to that.85
Both nationally and internationally, there is a push to digitise information and records to improve
information sharing through connected systems. The main drivers of this change have been:
88
Volume 5 Chapter 35: New approaches to information management
Electronic medical records systems are now commonplace in health care globally
and nationally. For example, New South Wales, Queensland and South Australia
are progressively implementing electronic medical records systems across all
their major hospitals.86 More than 60 per cent of Victoria’s public hospital beds
have electronic medical record systems, and this is being extended.87
In 2019, the Australian Health Ministers Advisory Council endorsed the National
Health Interoperability Roadmap, which sets out a framework for sharing of
health information between all parts of health care—primary, specialist and
inpatient, whether public or private.92 All states and territories are moving to
support this framework.93
89
Royal Commission into Victoria’s Mental Health System
In Victoria, most public mental health service delivery occurs within the broader health
service system. The state’s hospital and community health ICT systems are advanced. The
Victorian Government’s investment through the 2016 Digitising Health strategy has focused
on implementing new clinical systems and electronic medical records within hospitals;
sector‑wide shared clinical information, integration and interoperability in line with state and
national standards; and international good practice.97
As a result of this and health service investment, more than 60 per cent of acute hospitals
have advanced digital health records and information management systems and most
others are upgrading their systems.98 Victoria allows health services to choose their own
electronic medical record systems in line with a set of standards, leading to implementation
of different systems in different hospitals.99
Despite the ICT advancements in general health, the Commission was told that investments
have not always incorporated mental health service needs.100 As a result, the use and type of
electronic health records for acute and community‑based mental health services are mixed.101
The major hospital records include records for acute inpatient mental health wards.102 In a
limited number of cases, these electronic records have been configured to include mental
health services in community‑based settings.103 For example, one metropolitan hospital has
adapted its system to operate in the adult community mental health service, informing both
inpatient and community mental health staff about what is happening with consumers.104
However, most community‑based mental health services do not have an electronic health
record system, instead recording information on paper and transferring it by fax.105 The
Commission is aware that some of these services are moving to adopt electronic records, but
on the whole there are very limited digital records in community‑based mental health services.
There are also multiple patient management systems in primary and secondary health
services. For example, there is widespread adoption of clinical information systems in general
practice.106 Private specialists are increasingly using patient management systems as the
market responds to differing needs in this sector.107
While the switch to digital records is a positive step, hospital electronic medical records only
enable intrahospital information capture and sharing.108 They do not allow for sharing with
other services and sectors.109
Existing area mental health services use a longstanding statewide data system called the
Clinical Management Interface/Operational Data Store (CMI/ODS) to record and share
basic information about registered consumers.110 CMI/ODS records a range of mental
health–related data including details of consumer admissions to bed‑based services,
clinical contacts in the community, consumer outcome measures (consumer and clinician
completed) and details of consumers receiving compulsory treatment under the Mental
Health Act.111 The Department of Health manages the system, and area mental health services
input their data into the server to report to the department.112
90
Volume 5 Chapter 35: New approaches to information management
The advantages of CMI/ODS are that it generates a unique statewide identifier for registered
consumers, which lets any area mental health service access information, in real time,
recorded about that person, regardless of which service they use.113 It ensures the legal basis
for providing treatment on a compulsory basis is evident to all services and provides the
mechanism for the services to meet their departmental data reporting obligations, as well
as reporting obligations to the Chief Psychiatrist and Mental Health Tribunal.114 Registered
consumers are those who have been admitted into a public mental health service for
treatment, care and support.
While the statewide view of mental health consumers available in CMI/ODS is useful, several
area mental health services and others told the Commission that the information in the
system is largely administrative and is not used for day‑to‑day service delivery.119 They also
noted that it has very limited capacity to record or share clinical notes.120 Its clinical use is
limited to the initial assessment of a person, for discovering whether the person is already
registered in the mental health system, and for reporting to the department.121
Other aspects of CMI/ODS are also less than ideal. The data for CMI/ODS is collected
manually by the mental health worker and entered into the system by administrative staff.122
This is inefficient, and not consistent with how modern health record systems work, such as
those used in hospitals and by GPs, where a person’s data is entered directly into the system
and replaces paper records.
Further, CMI/ODS also does not allow for any sharing of information with other health
systems, including hospital electronic records or primary care systems.123 This means that
electronic information sharing within and between mental health providers is very limited,
and that CMI/ODS is not useful as a tool to support integration of physical and mental health
treatment, care and support across sectors. There is currently no other statewide information
sharing system that enables quick and secure sharing of records.124
NorthWestern Mental Health described the challenges of current ICT arrangements, which
limit both information capture and information sharing:
91
Royal Commission into Victoria’s Mental Health System
Monash Health also stated that data system management needs to be refocused towards
clinical care, and that better use must be made of available technology and digital health
solutions to improve information collection and sharing:
The current data system for Victoria, CMI, fundamentally restricts clinical care. It is a
legacy system and should be retired so that best practice clinical care is facilitated
by, not dictated by, the data system. Technology needs to assist the clinical process
and allow flexibility in the clinical work as well as in the design of services. We need
to move on from CMI to something much simpler and flexible. Currently, CMI is highly
prescriptive, encourages silos in the way it opens and closes cases, and increases
likelihood of people falling through the cracks rather than decreasing the likelihood
which was intended. It should be designed from the bottom up to assist clinicians.126
Area mental health services advised the Commission that due to the lack of shared electronic
records, they mostly use phone, fax or hard copy to share clinical records during transitions
and care coordination.127 In regional settings, a courier is sometimes needed to transport
paper information.128
Moreover, because CMI/ODS and service provider electronic records do not currently connect
to one another, this leads to duplication of data entry, inefficiency and increased chance of
data entry error.130 Duplication of entry can also result in human error inputs, which may put
consumers at physical or non‑physical risk.131
Bendigo Health recognised that services have had to implement bespoke systems to capture
data but that this duplicates data entry and requires extra resources:
While use of the system [CMI/ODS] is mandated, the system lacks functionality and
usability is poor. In addition, ability to access live data from the system at a service level
is limited. As a result, [designated mental health services] are utilising bespoke systems
in addition to CMI/ODS to allow for local analysis and interrogation of data to both
monitor performance and inform service provision, duplicating both data collection and
resource effort as system integration with CMI/ODS is not supported.132
Outside of state mental health services, there is virtually no electronic connectivity between
primary and secondary care and the state system, which solely relies on fax, phone and
paper‑based sharing of clinical information.133 This lack of even the most basic secure
electronic messaging is a major barrier to sharing information and limits providers’ ability to
seek important information about a consumer.
Primary Health Networks described how challenging this lack of integrated systems is
when trying to help consumers move between service sectors. Primary Health Network
representatives suggested that Victoria is difficult because it does not have statewide
data infrastructure to manage patient flow.134 They argued that Victoria needs a statewide
architecture to maximise data and improve how patient information is shared so consumers
do not need to tell their story over and over again.135
92
Volume 5 Chapter 35: New approaches to information management
Dr Elizabeth Deveny, CEO of South Eastern Melbourne Primary Health Network, also said that
electronic information sharing is important for ensuring smooth transitions between public
mental health services and GPs:
The Commission is concerned that the current disconnect, variability and inefficiency of ICT
systems and processes hampers the ability of service providers to capture, use and share
consumer information effectively. At the core of the issue, the Commission was told that
services needed to ‘demolish the fax machine’ and implement more contemporary systems
that support better consumer experiences and safety.137
As noted above, CMI/ODS is the primary source of data for Victorian mental health
services. It does have some advantages: it enables longitudinal studies—that is, studies
over a period of time—of consumer outcomes and it contains some rich data.139 However,
Mr Symonds noted that mental health data collection, analysis, synthesis and dissemination
are all hampered by the CMI/ODS system, which has limited use in informing performance
monitoring and improvement.140 Mr Symonds, Mr Shane Solomon (Partner of Caligo Health
and giving evidence in a personal capacity), and others have noted major issues with current
data collection including:
93
Royal Commission into Victoria’s Mental Health System
At the service level, the Commission was told that CMI/ODS does not allow service providers
to easily see their own data that they have inputted into the system, nor produce live reports
and graphs to track their performance and outcomes.149 Ms Karyn Cook, Executive Director
of Mental Health Services at Warrnambool Community Health’s South West Healthcare,
said that improving digital infrastructure and capability could improve data analytics,
research and innovation, including by enabling ‘services to access their own data, monitor
performance easily, and slice it to suit their own strategic planning’.150
At the system level, Mr Solomon noted that there is scant evidence to indicate what type
of service model and level of intervention works best.151 He indicated there is little focus
on recording and describing the types of services consumers receive and linking that
to outcomes, which is important for evaluating the effectiveness of different models of
treatment, care and support.152 Instead, mental health services tend to record only basic
output data such as number of bed days or number of phone calls made.153 Mr Symonds also
said that the Victorian Government holds multiple valuable datasets that could be better
linked to improve evidence‑based policy, planning and service delivery.154
The Victorian Government noted that a ‘redesign of the client management system
would facilitate the delivery of high‑quality services’, 155 and that new data standards and
mechanisms would be beneficial to improve system administration and accountability:
Mr Solomon suggested that such changes to the type of data that is collected, and how,
are necessary for researchers to undertake more effective studies. He also stated that the
impact of existing institutes and new ones like the Collaborative Centre for Mental Health and
Wellbeing will depend on getting access to this type of data.157
94
Volume 5 Chapter 35: New approaches to information management
Professor Suresh Sundram, Head of the Department of Psychiatry at the School of Clinical
Sciences at Monash University and Director of Research at Monash Health Mental Health
Program, told the Commission in a personal capacity that ‘[a] clinical registry concept
similar to that successfully established in oncology is required in the public mental health
system.’158 Clinical registries collect health‑related information to monitor outcomes from
various interventions and guide service and system improvements.159 He noted that this
would allow ‘the collection of high‑quality clinical data for every individual who engages with
the public mental health system, and long‑term data associated with that individual’.160 This
data could be linked with demographic data, creating a record of outcomes associated with
interventions and socioeconomic variables.161 Professor Sundram suggested that a mental
health registry would be invaluable for research into effective interventions, and could reduce
ineffective practices.162
Many other services and universities also suggested to the Commission that access to
better data is essential to create a learning culture. For instance, in its submission, the Adult
Psychiatric Imperative noted that linking health datasets with other national and state
datasets is critical to help determine factors that contribute to and precipitate mental illness,
as well as to determine outcomes from interventions.163 However, there is currently limited ability
to link data and information across different sectors and with primary mental health services.164
The Commission considers that a new approach to information collection, use and sharing
is needed to support measuring outcomes, system accountability, research, innovation
and evaluation.
95
Royal Commission into Victoria’s Mental Health System
The Commission believes that the Victorian Government needs to shift the culture of
information collection and sharing in mental health from one of risk avoidance and silos, to
one of collaboration, openness and presumed but protected access.
To achieve this, there need to be major reforms that give priority to:
96
Volume 5 Chapter 35: New approaches to information management
To achieve this, the Commission recommends that the Victorian Government establishes the
following approaches to promote a more open culture of recording and sharing information
between mental health and wellbeing service providers and with consumers, families, carers
and supporters.
These documents should not be prescriptive in nature but should clearly emphasise the
expectation that new ways of collecting, using and sharing information are required to ensure:
• they reflect the principle of ‘open and presumed but protected access’, including
transparency about how information is being collected, used and shared
• they reflect existing and emerging information security standards and arrangements
that ensure data and information is secure and only accessed by those who need to see it
• integrated and joined‑up care between workers, within and between services and for
continuity of care
• seamless consumer transitions that reduce the burden on consumers, families, carers
and supporters to have to tell their story multiple times or to bear the responsibility of
maintaining and transferring their health information
• improved service monitoring, performance and accountability
• enhanced outcome measurement, research and innovation to deliver better
interventions and outcomes over time.
The complexity of the mental health and wellbeing system also means that clear guidance
about information management is needed for service providers, consumers, families, carers
and supporters. The Victorian Government should develop and release standards developed
in consultation with consumers, families, carers and supporters to ensure they effectively
respond to the priority needs of each.
97
Royal Commission into Victoria’s Mental Health System
Wherever appropriate, specific protocols should also be implemented to guide the delivery
of information‑related reforms, including for referral approaches into Local Mental Health
and Wellbeing Services and Area Mental Health and Wellbeing Services, and transitions
and shared care arrangements between primary and secondary care providers and mental
health and wellbeing services.
Alongside the protocols and standards, the government should also ensure information
security arrangements are in place to inform the proper access, use and protection of
consumer mental health information. Mr Symonds noted that ‘records must be kept, stored
and used in ways that protect and preserve the safety of clients’.165 This should include that
the system and services have appropriate delegations, permissions and operational policies
to make sure only those who need to view information can access it and are responsible for
safe and proper management of the information. Oversight of information sharing will also
be critical. The Victorian Information Commissioner has combined oversight of information
access, information privacy and data protection.166 The Information Commissioner has the
power to undertake inquiries and audits into organisations’ compliance with relevant privacy
regulation and legislation—for example, its 2017 Review of Information Governance in the
then Department of Health and Human Services.167 Together, strong information security
arrangements and oversight functions should provide openness of information sharing,
clarity of roles and responsibilities, and consequences for breaches.
The Commission recognises that in some instances legislative change will be necessary
to modernise information sharing arrangements and to ensure the future system delivers
contemporary services. Removing legislative and regulatory barriers that prevent open
sharing of information between service providers, while retaining appropriate consumer and
worker rights and protections, is critical.
The new Mental Health and Wellbeing Act recommended in Chapter 26: Rebalancing
mental health laws—a new Mental Health and Wellbeing Act will specify the ways in which
information should be collected and used for the purpose of: electronic collection, use and
sharing; service provision; system administration; accountability; measuring outcomes; and
conducting research and evaluation.
Outside of this Act, the Victorian Government will need to ensure it regularly reviews and
revises other legislative frameworks that may affect the ability to use or share information in
line with the new reforms.
• recording information that is sensitive, factual and assumes from the beginning that
consumers will be able to access it
• providing consumers with opportunities to contribute to the information held about
them, where appropriate
• supporting consumers to easily access their own information.
98
Volume 5 Chapter 35: New approaches to information management
Comprehensive consent arrangements will help ensure consumer privacy and increase their
agency, and such arrangements will help service providers understand when information
should and should not be shared. Consent is important to ensure a consumer‑centric system
of service delivery.
The Victorian Government should, without removing existing permissions, co‑design and
implement a consumer consent approach with consumers. This system will inform service
providers, families, carers and supporters involved in a person’s treatment, care and support
about how consumer information can be collected, used and shared. Importantly, the consent
approach needs to adequately consider and capture the information needs of parents
and guardians of children and young people, as well as legal guardians responsible for the
wellbeing of some adult consumers. Parents of children need access to their child’s mental
health and wellbeing information, and many parents and guardians of young people play
an active role in that person’s treatment, care and support. Consent arrangements should
consider these needs and transition arrangements while protecting the privacy and safety of
individuals.
The consent system should also build on information currently available in CMI/ODS (it would not
scale back existing access permissions) and should inform the implementation and accessibility
of information in the Mental Health Information and Data Exchange proposed in section 35.6.3.
The consent system would be aligned to and work within the parameters of future legislation.
This consent system will give consumers more power over their information and will support
them in working closely with their treatment, care and support team in the way that best
suits them. This will also mean families, carers and supporters can get more detailed
information where a consumer requests it, more easily.
At the same time, legislative change will occur through establishing a new Act to enable
effective and efficient information sharing aligned with the new reforms. Over time,
legislation, including the new Act and other relevant legislation, should be routinely reviewed
to ensure it enables effective and safe information collection, use and sharing.
99
Royal Commission into Victoria’s Mental Health System
A number of service providers and experts have suggested that new information systems are
needed to allow for better service delivery to consumers, and better performance monitoring.
Sharing of records has been raised as a major enabler of increased safety and improved
service delivery.169 St Vincent’s Hospital Melbourne suggested that connected ICT systems will
help to improve service delivery:
Ensuring integrated ICT systems where information is readily accessible across [area
mental health services] is important. Solutions that clinicians can readily access,
wherever they see the consumer, as well as technology that allows people to connect,
would improve service delivery and efficiency.170
The Commonwealth Scientific and Industrial Research Organisation (CSIRO) noted that
electronic information sharing systems are critical to providing more holistic, precise and
preventative health responses in future health systems.171 They indicated that these systems
can improve consumer outcomes by ‘enabling safer medicines management, improving
care coordination, and helping inform treatment decisions’.172 The Productivity Commission
found that expanding the use of digital records in mental health services would facilitate
a much better consumer experience and improve information sharing.173 The Productivity
Commission recommended that My Health Record, the national shared health record,
provides a good platform for this information sharing to occur.174
The Commission is broadly supportive of this approach, and concurs that digital records and
systems need to be better used to allow for contemporary service delivery. The Commission
also notes that My Health Record is one valuable tool for sharing some mental health
information, and that its utility in the sector will improve as more services adopt it.
However, the Commission notes that many of Victoria’s mental health services do not even
have the basic electronic records systems nor functionality to connect to My Health Record,
which itself does not have the full functionality needed to effectively and appropriately collect
and share the full range of information needed to deliver comprehensive mental health
services. As Peninsula Health stated, ‘My Health Record does not appear to have materially
assisted with information sharing in the mental health sector.’175
100
Volume 5 Chapter 35: New approaches to information management
Mr Symonds noted that significant investment is needed in Victoria to redesign how the
system manages case information and service delivery, as well as collection of data for
administrative purposes.176 Without this investment, the mental health and wellbeing system
will continue to fall further behind general health and will not deliver on its reform objectives.
As previously described, Victoria has the existing CMI/ODS system that allows public mental
health services to share some information on common registered consumers, and also
includes a central statewide data store of information. However, the system is outdated and
does not have many of the features needed for contemporary information collection, use and
sharing, including:
• the ability to record clinical notes and access clinical information between mental
health services
• the ability to see prior service delivery information on non‑registered people—that
is, those people who have sought treatment, care and support from a mental health
provider but have not been accepted
• the ability to easily and efficiently generate performance and service reports to
improve service responses.
There is also limited ICT capacity to allow connectivity or sharing of information between
public mental health and wellbeing services and other health services involved in a
person’s day‑to‑day treatment, care and support, including GPs, private psychologists and
psychiatrists and allied health workers.
To this end, the Victorian Government should fund and establish new state‑of‑the‑art
technology infrastructure and systems for mental health and wellbeing that at a minimum
will ensure:
• information is recorded efficiently and safely in electronic form, removing the reliance
on paper records, reducing double entry of information, and creating easily retrievable
information for providers
• it is easy to access and share information—providers should not have to search
through multiple applications to find essential information
• the technology solution draws on digital information already available in other systems,
with a focus on what information is to be shared with other permitted parties
• recording and visibility of consistent information across all mental health and wellbeing
systems and service streams, with appropriate parameters and protections in place
• systems are designed to progressively improve over time, based on experience of what
works and what does not and on evolving needs
• the design and oversight of the projects and ICT systems are controlled by those
people with most to gain from their success, including frontline mental health and
wellbeing workers, consumers and families, carers and supporters.
101
Royal Commission into Victoria’s Mental Health System
The Commission recommends introducing three new major ICT components to achieve this:
• A new statewide Electronic Mental Health and Wellbeing Record—this would be for
all public mental health and wellbeing services (including services within the infant,
child and youth mental health and wellbeing system, and those within the adult and
older adult mental health and wellbeing system), which will replace the current CMI/
ODS system. For community mental health and wellbeing services, which are almost
all still paper‑and fax‑based, using the record will bring their mental health service
digitisation to a level comparable to that in hospitals and primary health care. The new
record will interoperate with hospitals that have electronic medical records, and so
avoid duplication of data entry and resources.
• A new Mental Health Information and Data Exchange—this would allow for sharing
of information outside of public mental health and wellbeing services, such as GPs
and community mental health and wellbeing services, where appropriate. This could
happen for one of two purposes: to facilitate service delivery or to enable access to
deidentified data for research and administrative purposes.
• A new consumer portal to allow consumers to easily access their own information.
Figure 35.4 summarises the Commission’s intent for the new ICT arrangements, noting that
the Victorian Government should partner with consumers, families, carers, supporters, service
providers and frontline workers to design and implement all of the priority initiatives listed.
102
Volume 5 Chapter 35: New approaches to information management
Figure 35.4: Conceptual map—ICT arrangements for information collection, use and sharing
in the mental health and wellbeing system
103
Royal Commission into Victoria’s Mental Health System
The department should develop and implement a contemporary Electronic Mental Health
and Wellbeing Record using new governance arrangements outlined later in this chapter. This
will replace the current CMI/ODS system for all public mental health and wellbeing service
providers that do not currently have an electronic medical record with a mental health
module. Mental health and wellbeing services that do have a mental health module as part of
their electronic medical record should have the opportunity (and be encouraged) to opt in if
they wish.
This record should be a single system created and maintained for the whole state and across
age cohorts to ensure sustainability and consistency across the sector. Functionality should
be progressively developed in line with consumer and service provider needs, but initially this
record should hold the basic information that mental health and wellbeing workers need to
provide treatment, care and support. This functionality would include:
• demographic information
• contacts
• intervention codes and services delivered
• outcomes and experience measurements
• bookings
• full clinical notes recording capacity
• visible access to consumer advance statements and preferences
• ability to generate performance reports.
The record should retain the strengths of CMI/ODS, including statewide look‑up capacity, a
single consumer record number, initial assessment functionality and data definitions (where
appropriate).177
Over time, further functionality could be added to support activity such as prescribing and
ordering tests or medications. The design of the record should allow for easy updating and
for new modules and functions to be progressively added as new needs arise over time.
104
Volume 5 Chapter 35: New approaches to information management
While the record should support service delivery to consumers of all ages, the Victorian
Government should ensure appropriate parameters are in place that control viewing of specific
information based, for example, on age at the time of treatment or other factors that may
affect consumer privacy. These issues should be the focus of the co‑design process outlined in
section 35.6.7 involving consumers, families, carers, supporters and service providers.
The new Electronic Mental Health and Wellbeing Record should be cloud‑based to support a
mobile workforce and interoperable with existing and emerging hospital electronic medical
records and other patient management systems. It should build on existing state platforms
wherever possible.
The Victorian Government should undertake a comprehensive review of the current data
being captured by public mental health services. It should reduce those items that are not
routinely used and add items that better reflect mental health activity and consumer mental
health and wellbeing outcomes.
This review should be led in consultation with service providers and other experts to identify
unnecessary measures and to determine the most appropriate new items for inclusion.
The new data items will give service providers more comprehensive information about the
types of services their consumers are receiving and their effectiveness. This information will
support optimum service model design in the future.
105
Royal Commission into Victoria’s Mental Health System
New data items and standards will also improve system capability to undertake service
planning, commissioning and performance monitoring. A better understanding of which
interventions work will guide more targeted research and investment, leading to improved
treatment and intervention models for mental health and wellbeing.
The Victorian Government should consider the way the system operates in the context of
broader data management approaches for health and also community services.
The Victorian Government should, through the governance model outlined below, fund and
implement development of the new Mental Health Information and Data Exchange.
The Mental Health Information and Data Exchange should allow interoperability between the
recommended Electronic Mental Health and Wellbeing Record and other major systems such
as (but not limited to) hospital electronic medical records, GP practice management systems,
specialist psychiatric and psychologist systems and My Health Record.
The Mental Health Information and Data Exchange would not share every piece of
information about a consumer with everyone who has access to it. It should have a ‘clinical
viewer’ function that allows each relevant service or worker to view relevant information
easily. It should provide basic information needed for other entities to provide treatment, care
and support effectively and in line with consumer preferences.
In the beginning, the Mental Health Information and Data Exchange should allow for seamless
viewing and sharing of information between Victorian funded mental health and wellbeing
services and health entities directly involved in responding to mental health and wellbeing
needs, including emergency departments and emergency responders. This does not mean
that every party should have access to every part of a consumer’s record, but they should be
able to view the fundamental information they need to deliver their services effectively.
Once established, the Mental Health Information and Data Exchange should allow for sharing
of some relevant information between funded mental health and wellbeing services and
primary and secondary service providers (for example, GPs, allied health workers and private
psychiatrists and psychologists). This access should be informed by the consumer consent
approach previously proposed, and should be controlled by the consumer.
Over time, the Mental Health Information and Data Exchange could be expanded to include
a more diverse range of services involved in a person’s treatment, care and support, such
as alcohol and other drug services and housing. Sharing of information with these entities
should be limited to only the information that they need to know to deliver services effectively,
informed by strict information privacy and security protocols and protections, and strictly
informed by consumer consent.
106
Volume 5 Chapter 35: New approaches to information management
Appropriate privacy and security protections should be applied to the Mental Health
Information and Data Exchange to ensure consumer privacy, safety and trust, and strict
delegations should ensure that only authorised personnel can view relevant information
about the consumer. Transparent communication about how and when information is used
and shared should also be available to consumers and service providers. Mr Peters told the
Commission that people’s lack of confidence in being able to control digital information
sharing can be a hindrance to adopting digital records.178 Mr Peters noted that the system
needs ‘strict controls around information sharing’, and in addition, that information should
wherever possible, be shared with consent, and should be opt in.179
Ms Kym Peake, then Secretary of the former Department of Health and Human Services,
also said that electronic records should have strong safeguards, and that it is important to
cultivate trust in consumers that their privacy will be maintained.180 Ms Peake noted that
actively engaging with the public about how their information will be used, communicating
the benefits of information sharing, and listening and responding to concerns will help to
build support and trust for electronic systems and processes.181
The Victorian Government should ensure the Mental Health Information and Data Exchange
is designed in partnership with service users and service providers to help build usability and
trust as recommended in the implementation approach below. The Department of Health
should also consider establishing a clear communication plan to promote the features of the
new system to consumers and service providers that explains the benefits of the new system
and implementation timelines. Communication materials should also be transparent about how
information will be collected, shared and protected across all parts of the system.
While the Mental Health Information and Data Exchange is being developed, secure
messaging capability should be implemented to allow basic information such as discharge
summaries and medication lists to be sent to a consumer’s primary and secondary care
team, including GPs and private providers. This will allow basic information to be shared
quickly and securely while the larger systems are being developed. This approach should
also be used to support electronic referrals between medical practitioners and Local Mental
Health and Wellbeing Services and Area Mental Health and Wellbeing Services in the interim.
In the immediate term, while the Mental Health Information and Data Exchange is being
established, the Victorian Government should also provide Ambulance Victoria with access
to the basic information they need from CMI/ODS so they can effectively respond to mental
health crises in the community. As described in Chapter 9: Crisis and emergency responses,
while Ambulance Victoria should have access to this information, mental health expertise
should also be offered to the attending responders to help them understand the context
and implications of this information for the consumer, and therefore the most appropriate
response. Chapter 9 outlines the current trial of such an approach that Ambulance Victoria is
undertaking in partnership with Eastern Health.182
107
Royal Commission into Victoria’s Mental Health System
The information in the data repository should inform the suite of mental health and wellbeing
data collections the Department of Health collects to advise on policy and service design,
and performance monitoring and accountability.
Information in the data repository should also be made available to services to help them
benchmark and improve their own performance.
The Mental Health Information and Data Exchange and data repository should also be used
to house and inform new clinical registries for mental health and wellbeing that will support
future research and practice translation. These registries should be available to authorised
researchers, advocates, innovators, service providers, practitioners, consumers, families,
carers and supporters, as well as some government organisations, to inform service and
system improvements. Strict permissions should apply to the registries to ensure information
is only accessible to those who need to see it.
De‑identified information from the Mental Health Information and Data Exchange—that
is, information that is aggregated to a level that ensures that an individual cannot be
identified—should also be used to create new public dashboards that provide the general
community with access to regularly updated data on a range of mental health and wellbeing
system performance and outcome measures. This will help to improve transparency
about system performance. Figure 35.5 outlines the major features a new data repository
should have.
108
Volume 5 Chapter 35: New approaches to information management
Figure 35.5: Features of the mental health and wellbeing data repository
109
Royal Commission into Victoria’s Mental Health System
The online portal should give consumers access to their mental health information (including
medications, discharge information, contacts and clinical notes, where appropriate). The
portal should draw information from the Mental Health Information and Data Exchange and
the Electronic Mental Health and Wellbeing Record, and put it into a user‑friendly format that
consumers can easily engage with. It should provide a consumer‑friendly viewing window
that makes it easy for consumers to find relevant information about their mental health
and wellbeing.
The Victorian Government should ensure the portal is accessible, inclusive and supports
multiple languages. It should be co‑designed with consumers to ensure it meets their needs
and preferences.
A number of health services are already moving to introduce consumer portals, and their
design could help inform the new approach. The portal should be available to both current
consumers and consumers who have been discharged from mental health and wellbeing
services, ensuring they can easily access their history and information as required.
For children, parents and guardians should have access to the portal in line with relevant best
practice, legislation and the consent approach. Consumers should also be able to authorise
sharing their portal access with families, carers and supporters if they wish.
The Commission notes that, in limited circumstances, it may not be safe or appropriate for
service providers to automatically provide consumers with access to their information (for
example, in times of severe distress).183 In such circumstances, the release of this information
could be delayed until the consumer is ready to receive this information, and the service
provider should ensure they discuss the information with the consumer before releasing it.184
The portal should not be used to communicate information to a consumer that they are not
already aware of through discussions with their service provider, such as a medication change.
Mental health and wellbeing service providers should also continue to ensure they can offer
user‑friendly non‑digital versions of records if requested, noting that some consumers may
choose not to receive their information in a digital format. Use of the portal should be optional.
110
Volume 5 Chapter 35: New approaches to information management
• The roles and authorities should be clearly defined, including decisions about
system design, responsibility for commissioning/contracting and implementation of
the system.
• The authority on specifications, selection and configuration should lie with those who
will benefit most from the system—those with lived experience and mental health
professionals (‘the users’).
• Entities should consult with people with expertise and knowledge, and not rely only on
staff tasked with implementing the system.
• ICT experts will need to advise on what is technically possible and implement the
decisions made by users.
• Leadership of the program should be embedded in the mental health and wellbeing
service delivery system, in collaboration with ICT experts.
The Commission advises the Victorian Government to establish a Mental Health Information
Sharing Program Board (within the Department of Health) with overall responsibility for the
program, including specifying the system requirements and setting priorities for investment.
The board would comprise those with lived experience of mental illness or psychological
distress, frontline mental health professionals who will use the system, families, carers
and supporters, experts who have successfully implemented health ICT systems, and the
department. For accountability purposes, the board should be chaired by an independent
person outside the public service.
Implementation of the proposed systems could be contracted out or delivered in house by the
department, depending on capability and cost. The board should decide who is to implement
the system based on advice from the program office.
111
Royal Commission into Victoria’s Mental Health System
The project should be guided by mental health and wellbeing workers and consumers, and
approached from a content and user perspective. It should not be led primarily from an ICT
point of view. This will ensure it is built to benefit those who will use it the most, and that the
systems are fit for purpose and sustainable.
As noted above, secure messaging should be quickly introduced to allow for appropriate
referrals to be electronically sent to Local Mental Health and Wellbeing Services and Area
Mental Health and Wellbeing Services, and for sharing of information between these services
and primary and secondary services. Ambulance Victoria should also be given access to
relevant information.
A minimum viable version of the new Electronic Mental Health and Wellbeing Record should
be established and rolled out in a staged way across Local Mental Health and Wellbeing
Services and Area Mental Health and Wellbeing Services and statewide services. This will
allow for iterative change and improvement in response to early testing and implementation.
The new Mental Health Information and Data Exchange should be established and trialled
with primary and secondary providers, emergency responders and Local Mental Health
and Wellbeing Services and Area Mental Health and Wellbeing Services, and with a selected
Regional Mental Health and Wellbeing Board. Findings from the trial should be used to refine
the arrangements and functions of the Mental Health Data and Information Exchange and
support its statewide rollout. The consumer portal should be trialled at the same time.
The ICT systems need to be developed in conjunction with the rollout of the broader reforms
recommended by the Commission. Careful initial planning and implementation will be
critical to ensure cost‑effectiveness and good outcomes. This will also ensure the systems
are designed appropriately for the new provider landscape in a responsive and integrated
mental health and wellbeing system.
112
Volume 5 Chapter 35: New approaches to information management
1 Witness Statement of Professor Ian Hickie AM, 11 August 2020, para. 118.
2 Sarah Kipping and others, ‘A Web-Based Patient Portal for Mental Health Care: Benefits Evaluation’, Journal of
Medical Internet Research, 18.11 (2016), 1–9 (p. 2); Deede Gammon and others, ‘Shifting Practices Toward Recovery-
Oriented Care Through an E-Recovery Portal in Community Mental Health Care: A Mixed-Methods Exploratory
Study’, Journal of Medical Internet Research, 19.5 (2017), 1–15 (p. 2).
3 Witness Statement of Kym Peake, 4 October 2020, para. 313; Witness Statement of Terry Symonds, 2 November
2020, paras. 313–314; Queensland Health, Information Sharing Between Mental Health Staff, Consumers, Family,
Carers, Nominated Support Persons and Others, 2018, p. 1.
4 Victorian Government, Submission to the RCVMHS: SUB.5000.0001.0001, 2019, p. 34.
5 National Mental Health Commissioner, Vision 2030: Blueprint for Mental Health and Suicide Prevention, 2020, p. 21;
Productivity Commission, Draft Report on Mental Health: Overview and Recommendations, 2019, p. 47.
6 Witness Statement of Shane Solomon, 22 May 2020, para. 22.
7 Under the Health Records Act 2001 (Vic), section 3, a person’s identity must be apparent or be reasonably able to
be ascertained from the information to be health information.
8 Health Records Act 2001 (Vic), sec. 3.
9 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings, 2020;
Australian Medical Association, Victoria, Submission to the RCVMHS: SUB.4000.0001.0008, 2019, pp. 103–104;
Lifeline Australia, Submission to the RCVMHS: SUB.0002.0029.0151, 2019, p. 32; Queensland Health, Information
Sharing Between Mental Health Staff, Consumers, Family, Carers, Nominated Support Persons and Others, p. 1.
10 Witness Statement of Dave Peters, 22 July 2020, paras. 41–42.
11 Witness Statement of Kym Peake, 2020, para. 315.
12 Health.vic, Disclosure of Health Information, <www2.health.vic.gov.au/mental-health/practice-and-service-quality/
mental-health-act-2014-handbook/oversight-and-service-improvement/disclosure-of-health-information>,
[accessed 5 November 2020].
13 Witness Statement of Terry Symonds, paras. 303–309; Witness Statement of Shane Solomon, paras. 72–78.
14 Witness Statement of Karyn Cook, 21 May 2020, para. 202.
15 Witness Statement of Shane Solomon, paras. 19–21.
16 Witness Statement of Terry Symonds, para. 313.
17 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 171.
18 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 115.
19 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 115.
20 Joint Witness Statement of ‘Mary Corbett’ and ‘Jacob Corbett’ (pseudonyms), 25 June 2020, para. 105.
21 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
22 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
23 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings, 2020.
24 Witness Statement of Shane Solomon, paras. 23 and 39.
25 Witness Statement of Shane Solomon, paras. 22–23.
26 Anonymous 49, Submission to the RCVMHS: SUB.0002.0028.0627, 2019, p. 2.
27 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
28 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings; Witness
Statement of ‘Rachel Bateman’ (pseudonym), 16 June 2020, paras. 149–150.
29 Victoria Legal Aid, Your Story, Your Say, 2020, p. 8.
30 Victorian Government, Submission in Response to the Draft Report from the Productivity Commission Inquiry into
Mental Health, 2020, p. 6.
31 RCVMHS, Carer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings, 2020.
32 RCVMHS, Carer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
33 RCVMHS, Carer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
34 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 262.
35 Productivity Commission, Mental Health Inquiry Report, Volume 2, 2020, p. 675.
36 Royal Commission into Family Violence, Report and Recommendations, Volume VI, 2016, p. 142.
37 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
38 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
39 Wei Wen Chong, Parisa Aslani and Timothy F. Chen, ‘Shared Decision-Making and Interprofessional Collaboration
in Mental Healthcare: A Qualitative Study Exploring Perceptions of Barriers and Facilitators’, Journal of
Interprofessional Care, 27.5 (2013), 373–379 (p. 376); Timothy C. Kariotis and Keith M. Harris, ‘Clinician Perceptions
113
Royal Commission into Victoria’s Mental Health System
of My Health Record in Mental Health Care: Medication Management and Sharing Mental Health Information’,
Australian Journal of Primary Health, 25.1 (2019), 66–71 (pp. 68–69).
40 Gillian Strudwick, Anthony Yeung and David Gratzer, ‘Easy Access, Difficult Consequences? Providing Psychiatric
Patients With Access to Their Health Records Electronically’, Frontiers in Psychiatry, 10:917 (2019), 1–2 (p. 1).
41 Witness Statement of Dr Stuart Lewena, 11 May 2020, para. 69.
42 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
43 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
44 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
45 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
46 Freedom of Information Act 1982 (Vic), sec. 33(4).
47 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
48 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
49 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
50 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
51 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
52 Australian Psychological Society, APS Code of Ethics, 2007, pp. 14 and 19; Medical Board, Australian Health
Practitioner Regulation Agency, Good Medical Practice: A Code of Conduct for Doctors in Australia, 2020,
pp. 6 and 21.
53 Witness Statement of ‘Rachel Bateman’ (pseudonym), paras. 150–151.
54 Witness Statement of ‘Rachel Bateman’ (pseudonym), paras. 150–151.
55 Victoria Legal Aid, p. 8.
56 National Mental Health Consumer and Carer Forum, Privacy, Confidentiality and Information Sharing—
Consumers, Carers and Clinicians: A Position Statement and Issues Paper by the National Mental Health
Consumer and Carer Forum (NMHCCF), 2011, p. 7; L. S. Wilson and others, ‘Mental Health Professionals and
Information Sharing: Carer Perspectives’, Irish Journal of Medical Science, 184.4 (2015), 781–790 (p. 782).
57 RCVMHS, Carer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings; Wilson and
others, pp. 781–782.
58 Health Records Act 2001 (Vic), sec. 25.
59 Department of Health and Human Services, Making a Freedom of Information Request, <www.dhhs.vic.gov.
au/making-freedom-information-request>, [accessed 12 November 2020]; RCVMHS, Consumer Human-
Centred Design Focus Group—Information Sharing: Record of Proceedings; Office of the Victorian Information
Commissioner, Make a Freedom of Information Request, <ovic.vic.gov.au/freedom-of-information/for-the-public/
make-a-freedom-of-information-request/>, [accessed 22 December 2020].
60 Health Records Act 2001 (Vic), sec. 26.
61 Health Records Act 2001 (Vic), sec. 27.
62 Kipping and others, p. 2; Gammon and others, p. 2.
63 Witness Statement of Professor George Braitberg AM, 19 May 2020, para. 23.
64 Health Records Act 2001 (Vic), sec. 2.4; Mental Health Act 2014 (Vic), sec. 346(2)(h); Mental Health Act 2014 (Vic), sec.
346(2)(g).
65 A designated mental health service is a service defined as being able to deliver mental health services under the
Mental Health Act 2014 (Vic). There are a limited number of designated mental health services in Victoria.
66 Mental Health Act 2014 (Vic), sec. 346(2).
67 Department of Health and Human Services, New Laws to Improve Quality and Safety in the Health System:
Frequently Asked Questions—For Patients, 2020, p. 2.
68 Witness Statement of Simon Thomson, 24 June 2019, para. 51.4.
69 Witness Statement of Simon Thomson, paras. 51.4 and 88.1.
70 Witness Statement of Simon Thomson, para. 59.1.
71 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings.
72 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings.
73 Witness Statement of Dave Peters, paras. 47 and 48.
74 Human Services (Complex Needs) Act 2009 (Vic), secs. 1, 14 and 17.
75 Coroner Simon McGregor, Coronial Inquest into the Death of Darren Brandon (Melbourne, 2020), pp. 56–57.
76 Witness Statement of Associate Professor Ruth Vine, 29 April 2020, para. 151.
77 Witness Statement of Dr Shaymaa Elkadi, 25 May 2020, para. 128.
114
Volume 5 Chapter 35: New approaches to information management
78 Family Violence Protection Amendment (Information Sharing) Act 2017 (Vic), sec. 7; Victorian Auditor-General’s
Office, Implementation of the Criminal Justice Enhancement Program (CJEP), 2008, pp. 11–14 and 65–69; Family
Safety Victoria, Family Violence Information Sharing Guidelines, 2018, pp. 18–34.
79 Witness Statement of Julie Edwards, 21 May 2020, para. 12.
80 Witness Statement of Julie Edwards, para. 66.
81 Mental Health Act 2014 (Vic), sec. 347.
82 Witness Statement of Terry Symonds, para. 298.
83 Monash Health, Submission to the RCVMHS: SUB.7000.0003.0001, 2019, p. 78; Witness Statement of Dr Elizabeth
Deveny, 8 June 2020, paras. 98–100; Witness Statement of Dr Stuart Lewena, para. 68; Witness Statement of Dr
Shaymaa Elkadi, para. 128.
84 Witness Statement of Terry Symonds, para. 304.
85 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
86 Queensland Health, Integrated Electronic Medical Record (IeMR), <www.health.qld.gov.au/clinical-practice/
innovation/digital-health-initiatives/queensland/integrated-electronic-medical-record-iemr>, [accessed 10
December 2020]; eHealth New South Wales, EMR Connect, <www.ehealth.nsw.gov.au/programs/clinical/emr-
connect>, [accessed 10 December 2020]; South Australia Health, Sunrise EMR and PAS, SA Health’s Electronic
Medical Record, <www.sahealth.sa.gov.au/wps/wcm/connect/public+content/sa+health+internet/clinical+resources/
clinical+information+systems/sunrise+emr+pas/sunrise+emr+pas+sa+healths+electronic+medical+record>,
[accessed 10 December 2020].
87 RCVMHS, Meeting with Department of Health and Human Services Meeting Notes, 22 June 2020, p. 3.
88 Productivity Commission, Mental Health Inquiry Report, Volume 2, p. 676.
89 Australian Digital Health Agency, My Health Record, <www.myhealthrecord.gov.au/>, [accessed 13 August 2020].
90 Australian Digital Health Agency, National Health Interoperability Principles, 2020, pp. 6 and 15–16.
91 CSIRO, Future of Health: Shifting Australia’s Focus from Illness Treatment to Health and Wellbeing Management,
2018, p. 34; Australian Digital Health Agency, National Health Interoperability Principles, p. 34.
92 Australian Digital Health Agency, National Health Interoperability Principles, p. 8.
93 Australian Digital Health Agency, National Health Interoperability Principles, p. 6.
94 Ontario Health ICT System, Health Report Manager Supports Virtual Care and the Integration of
Patient Information in Ontario Health Teams, 5 February 2020, <www.globenewswire.com/news-
release/2020/02/05/1980410/0/en/Health-Report-Manager-supports-virtual-care-and-the-integration-of-patient-
information-in-Ontario-Health-Teams.html>, [accessed 5 November 2020].
95 Ontario Health ICT System, Health Report Manager Supports Virtual Care and the Integration of
Patient Information in Ontario Health Teams, 5 February 2020, <www.globenewswire.com/news-
release/2020/02/05/1980410/0/en/Health-Report-Manager-supports-virtual-care-and-the-integration-of-patient-
information-in-Ontario-Health-Teams.html>, [accessed 5 November 2020].
96 Precedence Health Care, How Inca Works, <precedencehealthcare.com/inca/>, [accessed 17 December 2020].
97 Department of Health and Human Services, Digitising Health: How Information and Communications Technology
Will Enable Person-Centred Health and Wellbeing Within Victoria, 2016, pp. v and 4.
98 RCVMHS, Meeting with Department of Health and Human Services Meeting Notes, p. 2.
99 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS, Regional
AMHS Provider Information Sharing Roundtable: Record of Proceedings, 2020; Witness Statement of Shane
Solomon, para. 33.
100 Witness Statement of Terry Symonds, para. 307.
101 RCVMHS, Meeting with Department of Health and Human Services Meeting Notes, p. 2.
102 Witness Statement of Shane Solomon, paras. 33–34.
103 RCVMHS, Regional AMHS Provider Information Sharing Roundtable: Record of Proceedings; Witness Statement of
Shane Solomon, para. 35.
104 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings.
105 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS, Regional AMHS
Provider Information Sharing Roundtable: Record of Proceedings.
106 Royal Australian College of General Practitioners, RACGP Practice Technology and Management: Minimum
Requirements for General Practice Clinical Information Systems to Improve Usability, 2019, p. 1.
107 Witness Statement of Shane Solomon, para. 47.
108 Witness Statement of Professor George Braitberg AM, para. 22.
109 Witness Statement of Professor George Braitberg AM, para. 22.
110 Witness Statement of Terry Symonds, para. 305.
115
Royal Commission into Victoria’s Mental Health System
111 RCVMHS Meeting with DHHS and VAHI Meeting Notes, 6 July 2020, p. 3.
112 health.vic, Client Management Interface/Operational Data Store Service Contacts, <www2.health.vic.gov.au/
mental-health/research-and-reporting/reporting-requirements-for-clinical-mental-health-services/service-
contacts>, [accessed 15 May 2020]; Witness Statement of Shane Solomon, para. 36; Witness Statement of Terry
Symonds, paras. 303–311.
113 RCVMHS Meeting with DHHS and VAHI Meeting Notes, p. 8.
114 RCVMHS Meeting with DHHS and VAHI Meeting Notes, p. 8.
115 RCVMHS Meeting with DHHS and VAHI Meeting Notes, p. 3.
116 RCVMHS Meeting with DHHS and VAHI Meeting Notes, p. 3.
117 RCVMHS Meeting with DHHS and VAHI Meeting Notes, p. 6; Witness Statement of Dr Neil Coventry, 29 July
2020, para. 92.
118 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS Meeting with
DHHS and VAHI Meeting Notes, p. 5.
119 Bendigo Health, Submission to the RCVMHS: SUB.0002.0030.0051, 2019, pp. 21–22; RCVMHS, Regional AMHS Provider
Information Sharing Roundtable: Record of Proceedings; Witness Statement of Shane Solomon, para. 36.
120 Victorian Auditor-General’s Office, Access to Mental Health Services, 2019, p. 46; RCVMHS, Metro AMHS Provider
Information Sharing Roundtable: Record of Proceedings.
121 Victorian Auditor-General’s Office, Access to Mental Health Services, p. 46; RCVMHS, Metro AMHS Provider
Information Sharing Roundtable: Record of Proceedings.
122 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS, Regional AMHS
Provider Information Sharing Roundtable: Record of Proceedings.
123 Witness Statement of Professor Robert Thomas OAM, 12 May 2020, para. 75.
124 Witness Statement of Dr Stuart Lewena, paras. 67–68.
125 NorthWestern Mental Health (A Division of Melbourne Health), Submission to the RCVMHS: SUB.0002.0030.0061,
2019, p. 29.
126 Monash Health, p. 78.
127 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS, Regional AMHS
Provider Information Sharing Roundtable: Record of Proceedings.
128 RCVMHS, Regional AMHS Provider Information Sharing Roundtable: Record of Proceedings.
129 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
130 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS Meeting with
DHHS and VAHI Meeting Notes, p. 4.
131 Mental Health Australia, Submission in Response to the Draft Report from the Productivity Commission Inquiry
into Mental Health, 2020, p. 32; Productivity Commission, Draft Report on Mental Health, Volume 1, 2019, p. 66;
Witness Statement of Scientia Professor Helen Christensen AO, 18 July 2019, para. 52; Mental Health Legal Centre,
Submission in Response to the Draft Report from the Productivity Commission Inquiry into Mental Health,
2020, p. 5; Allied Health Professions Australia, Submission in Response to the Draft Report from the Productivity
Commission Inquiry into Mental Health, 2020, p. 3.
132 Bendigo Health, p. 21.
133 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings; RCVMHS, Regional AMHS
Provider Information Sharing Roundtable: Record of Proceedings.
134 RCVMHS, Primary Health Networks Roundtable: Record of Proceedings, 2020.
135 RCVMHS, Primary Health Networks Roundtable: Record of Proceedings.
136 Witness Statement of Dr Elizabeth Deveny, para. 100.
137 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
138 The Adult Psychiatry Imperative, Submission to the RCVMHS: SUB.3000.0001.0070, 2019, p. 68.
139 Witness Statement of Terry Symonds, para. 182.
140 Witness Statement of Terry Symonds, para. 183.
141 Witness Statement of Shane Solomon, para. 19.
142 Witness Statement of Shane Solomon, paras. 76–78.
143 RCVMHS, Metro AMHS Provider Information Sharing Roundtable: Record of Proceedings.
144 Witness Statement of Terry Symonds, para. 185.
145 Victorian Auditor-General’s Office, Access to Mental Health Services, p. 12.
146 Witness Statement of Shane Solomon, para. 73.
116
Volume 5 Chapter 35: New approaches to information management
147 Witness Statement of Dr Lynne Coulson Barr OAM, 4 June 2020, para. 89; Witness Statement of Louise Glanville, 8
July 2019, paras. 68–73.
148 RCVMHS, Culturally and Linguistically Diverse People Roundtable: Record of Proceedings, 2019.
149 Witness Statement of Terry Symonds, para. 185.
150 Witness Statement of Karyn Cook, para. 202(a).
151 Witness Statement of Shane Solomon, para. 19.
152 Witness Statement of Shane Solomon, para. 20.
153 Witness Statement of Shane Solomon, para. 20.
154 Witness Statement of Terry Symonds, para. 187.
155 Victorian Government, Submission to the RCVMHS: SUB.5000.0001.0001, p. 34.
156 Victorian Government, Submission to the RCVMHS: SUB.5000.0001.0001, p. 34.
157 Witness Statement of Shane Solomon, para. 21.
158 Witness Statement of Professor Suresh Sundram, 19 May 2020, para. 115.
159 Public Health and Preventive Medicine, Monash University, What Are Clinical Registries?, <www.monash.edu/
medicine/sphpm/registries/what-are-clinical-registries>, [accessed 5 November 2020].
160 Witness Statement of Professor Suresh Sundram, para. 116.
161 Witness Statement of Professor Suresh Sundram, paras. 115–116.
162 Witness Statement of Professor Suresh Sundram, paras. 115–116.
163 The Adult Psychiatry Imperative, p. 68.
164 Latrobe Regional Hospital, Submission to the RCVMHS: SUB.0002.0028.0034, 2019, pp. 5–6.
165 Witness Statement of Terry Symonds, para. 317(a).
166 Office of the Victorian Information Commissioner, What We Do, <ovic.vic.gov.au/about-us/what-we-do/>, [accessed
18 December 2020].
167 Office of the Victorian Information Commissioner, What We Do; PricewaterhouseCoopers, Review of Information
Governance in the Department of Health and Human Services (DHHS), 2017.
168 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
169 Witness Statement of Terry Symonds, para. 314; The Adult Psychiatry Imperative, pp. 70–71.
170 St Vincent’s Hospital Melbourne, Submission to the RCVMHS: SUB.0002.0030.0106, 2019, p. 28.
171 CSIRO, p. 32.
172 CSIRO, p. 32.
173 Productivity Commission, Mental Health Inquiry Report, Volume 2, p. 678.
174 Productivity Commission, Mental Health Inquiry Report, Volume 2, p. 678.
175 Peninsula Health, Submission to the RCVMHS: SUB.0002.0028.0109, 2019, p. 7.
176 Witness Statement of Terry Symonds, para. 303.
177 Witness Statement of Terry Symonds, para. 308.
178 Witness Statement of Dave Peters, para. 44.
179 Witness Statement of Dave Peters, para. 44.
180 Witness Statement of Kym Peake, 2020, para. 315.
181 Witness Statement of Kym Peake, 2020, para. 317.
182 Ambulance Victoria, COVID 19 Enhanced Mental Health Triage Response Pilot Proposal, 2020.
183 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings; Witness
Statement of Emeritus Professor Terry Carney AO, 17 July 2020, para. 73.
184 RCVMHS, Consumer Human-Centred Design Focus Group—Information Sharing: Record of Proceedings.
117
Royal Commission into Victoria’s Mental Health System
118
Volume 5 Chapter 36: Research, innovation and system learning
Chapter 36
Research, innovation
and system learning
119
Royal Commission into Victoria’s Mental Health System
120
Volume 5 Chapter 36: Research, innovation and system learning
Recommendation 63:
Facilitating translational
research and its dissemination
The Royal Commission recommends that the Victorian Government:
1. building on the interim report’s recommendation 1, by the end of 2023, enable the
Collaborative Centre for Mental Health and Wellbeing, to:
a. f acilitate translational research throughout the mental health and wellbeing system,
including in collaboration with other research centres and institutes;
b. e
nsure new research aligns with initial reform priorities identified by the Royal
Commission;
c. s
trengthen and support a formal network of academic service leaders responsible
for sharing and applying research in service settings;
d. e
nsure that evidence informs workforce education and training, and promotes
cultures of inquiry, innovation and learning;
e. p
rovide a ‘clearing house’ to collect, combine and share information from research,
innovation projects and evaluations; and
f. p
rovide authoritative advice on evidence-informed approaches to treatment, care
and support to inform policy development, planning and investment.
121
Royal Commission into Victoria’s Mental Health System
Recommendation 64:
1. c
ommission an existing entity to provide dedicated support and resources for
innovation in mental health treatment, care and support.
2. fund this entity to:
a. a
dminister a dedicated mental health innovation fund for projects selected by
an expert panel;
b. e
stablish and promote collaborative networks to drive and facilitate innovation
in mental health treatment, care and support; and
c. p
rovide practical support to services to implement and test new approaches
to mental health treatment, care and support.
122
Volume 5 Chapter 36: Research, innovation and system learning
Recommendation 65:
1. s
et an expectation that adequate evaluation is a condition of funding for all new
mental health and wellbeing programs, initiatives and innovations.
2. develop and fund a strategy to ensure evaluation routinely informs the implementation
of reforms and ongoing decision making about policies and investment.
3. p
romote and improve evaluation practices throughout the mental health and wellbeing
system by issuing guidance and facilitating access to evaluation expertise.
123
Royal Commission into Victoria’s Mental Health System
As Dr Ravi Bhat, Divisional Clinical Director at Goulburn Valley Area Mental Health Service,
Goulburn Valley Health, explained, the system needs to be flexible enough to respond to new
developments:
we can easily fall into the trap of thinking that we have all the answers. I think we should
not. I think that the future is inherently uncertain. It’s not like a roulette machine where
the odds are known and we can predict what’s going to happen, it’s inherently uncertain.
So, I think that we should be careful about saying things like lasting changes and so on.
I think that we should design a system for the realities that we know today, but I think
that we should develop a system that is reflective, that is adaptive, that is responsive,
that is data‑informed.2
A system must adapt in a changing context. An adaptive system is one that can identify and
test new ideas, gather evidence about what works, and translate this into effective treatment,
care and support. In an adaptive system, evidence about what works is used to continually
improve professional practice, service design and system policy. The knowledge, expertise
and experience of consumers, carers and people who work in the system are integral to
effective change and improvement.
To meet a gap in translational research into treatment, care and support for adults, the
Commission boosted the foundations for an adaptive mental health and wellbeing system, by
recommending the establishment of the Victorian Collaborative Centre for Mental Health and
Wellbeing in its interim report (refer to Box 36.1). The collaborative centre will bring together
clinical, academic and peer researchers with a range of disciplinary expertise, and will be
pivotal in growing the research base and supporting the translation of research evidence
into practice.
The Commission’s vision is for a modern and sustainable system that responds to Victorians’
needs into the future. It must be designed with components that allow the system to be reflective
and evolving. It must also create conditions where improvement and innovation can flourish.
124
Volume 5 Chapter 36: Research, innovation and system learning
• lead exemplary practice for the full and effective participation and
inclusion of people with lived experience across the mental health system
• lead interdisciplinary, translational research into new treatments and
models of care and support, to inform service delivery, policy and
law making
• educate the mental health workforce through practice improvement,
training and professional development programs.
The interim report stated that the collaborative centre will embody the
characteristics of responsiveness, collaboration and continuous improvement
that exemplify the future system. Critically, it will emphasise the participation
of people with lived experience in the design, development and production of
research programs.
125
Royal Commission into Victoria’s Mental Health System
Despite past reforms, however, the mental health system has failed to keep up with the
changing needs and expectations of the people for whom it exists.10 It is the Commission’s
view that the system must be designed to tackle inequity head on, and it must be able to
respond and adapt as the issues driving inequity evolve. This means ensuring that the best
aspects of the system are widely accessible across the state, by speeding up the diffusion of
leading practices and approaches.
Victoria also needs a system that is resilient and adaptable in the face of unpredictability.
Unexpected events, such as the 2019–20 summer bushfires and the COVID‑19 pandemic, have
had considerable effects on the health and wellbeing of Victoria’s population, and on the
ways that treatment, care and support are provided.
The Commission has heard many accounts of rapid innovation in response to these events.
These include the use of telehealth, digital improvements to youth mental health services,
and collaborative governance arrangements.11 Solutions have drawn on expertise that is not
traditionally used in public system problem solving.12 Barriers that would usually take years
to remove have been swept aside, allowing solutions to be implemented quickly.13 Mr Angus
Clelland, CEO of Mental Health Victoria, noted that ‘even with tight resources, we are seeing
changes occur rapidly in response to COVID‑19’.14
While tragic, the effects of COVID‑19 have created a new spirit of cooperation. Continuing
this collaborative approach beyond the pandemic will be important to the mental health and
wellbeing system’s future success.15
126
Volume 5 Chapter 36: Research, innovation and system learning
The Commission believes that the system will be better equipped if it can use the momentum
generated by the challenges faced in 2020 to solve collective problems in the future. It has
considered how governments and systems around the world are finding better ways to solve
problems, respond to challenges and develop sustainable systems that continually improve.
In response to these considerations, the Commission has adopted a systems‑change mindset
to the mental health system. This approach, explained in more detail in Chapter 2: The
Commission’s approach to reform, is suited to dealing with complex and shared problems. It
brings together a wide range of interested parties with diverse skills and expertise, who work
to fully understand a problem, identify innovative solutions and speed up the change needed
to achieve them.16
Governments, locally and globally, are actively engaging innovation and entrepreneurship in
public service priorities. Examples within Victoria include:
As described in the Commission’s interim report, decades of past reforms have failed to
deliver a mental health system that can meet consumer needs, keep up with demand, or
deliver contemporary approaches to treatment, care and support. There is the potential now
to make ‘exponential progress’ supported by technology and innovation, but this requires a
change in culture to adopt new approaches and innovation.22
Research, practice development, innovation and evaluation are critical parts of an adaptive
system. To ensure continuous improvement, mechanisms must be put in place to ensure
evidence reaches the people who design and deliver services, and new ideas and innovative
approaches must be rapidly and consistently applied to policy and practice.
127
Royal Commission into Victoria’s Mental Health System
The new system design must include and connect core improvement activities through cycles
of learning as depicted in Figure 36.1. These include:
The Commission’s recommended approach (outlined in section 36.6) will support the
necessary activities and relationships to connect innovation and improvement activities in
cycles of learning. The Commission envisages that the Victorian mental health and wellbeing
system will have a range of leading centres contributing to this effort.
128
Volume 5 Chapter 36: Research, innovation and system learning
129
Royal Commission into Victoria’s Mental Health System
Translational research involves testing and applying new treatments and models
of care in service delivery environments. Knowledge translation refers to the
process of disseminating translational research or other new knowledge though
the system.
Innovation
Practice translation
130
Volume 5 Chapter 36: Research, innovation and system learning
Evaluation
Figure 36.2 outlines the Commission’s recommended functions and activities for a mental
health and wellbeing system that innovates, learns and adapts. It shows the activities that will
be performed by the collaborative centre and a range of potential partners. It also depicts
the relationships between those functions, mental health and wellbeing services, and the
Department of Health. The goal of the new arrangements is to use knowledge and expertise
in the most widespread and coordinated way possible, and allow promising and proven ideas
to flourish.28
131
Royal Commission into Victoria’s Mental Health System
Figure 36.2: An adaptive mental health and wellbeing system in Victoria
132
Volume 5 Chapter 36: Research, innovation and system learning
The Ontario Health Teams model builds on local innovation to ‘transform the way health
care is provided and funded’. The model enables ‘patients, families, communities, providers,
and system leaders to better work together, innovate and build on what is best in Ontario’s
healthcare system. The goal is to provide better, more connected care across the province’.30
This partnership approach is also discussed in Chapter 29: Encouraging partnerships.
RISE aims to create a rapidly learning health system that achieves ‘the quadruple aims of
improving care experiences and health outcomes at manageable per capita costs and with
positive provider experiences’.31 Through RISE, Ontario Health Teams receive consistent and
equitable access to help and guidance when implementing new approaches. This allows
questions, suggestions and improvements to be discussed and implemented quickly and
effectively, helping Ontario Health Teams to generate improvement at the point of care for
their local populations. Evidence of the successes and failures of local initiatives is collected
and shared with the RISE and Ontario Health Team communities of practice. Over time, this
will generate a self‑improving system that is able to adapt and respond to issues identified,
and create sustainable improvements.
The strength of this model is its focus on continuous improvement and knowledge exchange,
which grows consistency and resilience in the system.
133
Royal Commission into Victoria’s Mental Health System
Case study:
Rapid Improvement
Support and Exchange
Ontario Health Teams are designed to make Ontario’s health system more responsive
to local needs. They are groups of health providers who partner to deliver integrated
healthcare services. The first teams were announced in December 2019. Once fully
operational, they will be jointly accountable for the cost and provision of services. They
will also share accountability for health outcomes and care experiences of their local
population, including for mental health and addiction.
RISE provides teams with three types of support: coaching, collaboratives and
communities of practice.
134
Volume 5 Chapter 36: Research, innovation and system learning
RISE also delivers an ‘on demand’ suite of activities (for example, convening ‘jamborees’
to work through important challenges like how best to engage clinicians in teams)
and products (for example, briefs and analyses of evidence on priority topics like
collaborative governance).
RISE uses a number of approaches to share tools and resources with teams, including
a website, monthly newsletter, webinars and Twitter. It puts a lot of effort into ensuring
that all products use frameworks and language specific to and consistent with the
transformation project.
Professor Rob Reid, Chief Scientist of Trillium Health Partners and co‑lead of RISE, said
researchers are the backbone of RISE.
Researchers help teams to push through the stages of the learning cycle. This
starts with developing a deep understanding of the problem they are trying to
solve, and how it has been tackled elsewhere. Then we bring science into the
design of better models of care, making consumer experiences the focus, and
building in the new skills, resources and ways of working that will be needed to
implement them. Then we help them use the Ontario Health Teams evaluation
framework to assess what’s happening when they implement new models in the
field, and feed information back to them in a continuous loop so they can adjust
their approach.
RISE also partners with many health system partners to support research translation,
capability development and evidence building. These partners include the new Ontario
Centre of Excellence for Mental Health and Addictions as well as the Centre for Effective
Practice, an independent research and knowledge translation organisation focusing on
primary care.
Professor John Lavis, Director of the McMaster Health Forum and co‑lead of RISE, said
that government, health system partners, research partners and RISE staff are all
motivated to collaborate in improving mental health services for people in Ontario.
The outcomes that matter are mental health and care experiences—and you must
be able to measure and improve both. Mental health touches everyone. And we
can and must do better for people.
135
Royal Commission into Victoria’s Mental Health System
Associate Professor Simon Stafrace, Chief Adviser, Mental Health Reform Victoria, told the
Commission in his personal capacity that enabling systems and organisations to adapt and
innovate involves allowing for ‘multiple mindsets to operate in a complex environment’.33 Dr
Hila Haskelberg, Program Manager of THIS WAY UP at St Vincent’s Public Hospital Sydney,
providing evidence in her personal capacity, suggested that this requires relationships built
on trust, supported by technology and promoted by committed leaders.34
Getting the most out of collaborative innovation requires a cultural shift to support the
inclusion of multiple voices, flexibility in problem solving, and spaces and time for invention
and reflection. The National Health Service Institute for Innovation and Improvement in the
United Kingdom identifies cultural features that need to be encouraged for innovation (refer
to Figure 36.3).35
Associate Professor Jo‑An Atkinson, Managing Director, Computer Simulation and Advanced
Research Technologies; Head of Systems Modelling and Simulation with the Brain and Mind
Centre, University of Sydney, also advocated in a personal capacity for more innovation
in mental health. She suggests that structures and mechanisms governing mental health
research influence the extent to which research partnerships are created and sustained,
and innovation is supported. She also advised that a conservative culture in mental health
research persists ‘such that forays into alternative methods … are perceived as high risk and
exploratory’.36
Associate Professor Stafrace argues that the following conditions must be actively
encouraged to challenge the dominant culture within Victoria’s mental health system:
The Commission’s view is that a more open and collaborative culture of reflection and
innovation in mental health is important to ensure Victorians will benefit from new ideas
and ways of working.
136
Volume 5 Chapter 36: Research, innovation and system learning
Source: Adapted from NHS Institute for Innovation and Improvement, Creating the culture for innovation: A practical
guide for leaders, 2010.
137
Royal Commission into Victoria’s Mental Health System
Lived experience experts advised the Commission that consumers need to lead research
and innovation. Ms Cath Roper, Consumer Academic at the Centre for Psychiatric Nursing,
University of Melbourne, said:
There are two things we can do to champion the co‑production of research and
innovation in mental health. First, we can open up leadership roles for consumers which
means … others will need to step back into support roles; and secondly, we can start
elevating consumer leaders as thinkers and innovators.40
Consumer academics Dr Louise Byrne and Professor Dame Til Wykes describe the value of
consumer‑led research:
Australian National University academic, Dr Michelle Banfield, says that lived experience
researchers can break down the barriers between consumers and researchers, and in the
process, change perceptions about the importance of consumers in research.42
Principles of co‑design and co‑production are critical. These ensure that consumers are
involved from the outset; that power imbalances between participants are acknowledged
and addressed; and that developing the knowledge and capability of all involved is an
integral part of the process.43 Ms Georgie Harman, CEO of Beyond Blue, told the Commission
that such co‑design principles are integral to all stages of innovation if they are to respond to
the greatest needs:
Co‑design principles should be in place from the beginning to ensure that innovative
models meet genuine gaps and use approaches that are attractive to people that need
them. Involvement of people with lived experience must continue through the life of the
project, including in governance, implementing improvements and evaluation.44
It is the Commission’s strong view, shared by the Productivity Commission in its Mental
Health Inquiry Report, that people with lived experience should be involved in all stages
of development, trialling, monitoring and evaluation,45 to support the production of more
valuable services, programs and policies. This includes initial thinking and priority setting
through to co‑planning, co‑design, co‑delivery and co‑evaluation stages.46
138
Volume 5 Chapter 36: Research, innovation and system learning
The Commission’s interim report recognised that private sector competition and
partnerships can lead to improvements in service quality, innovative new service models
and better outcomes for consumers.48 Global analysis demonstrates that non‑traditional
players are disrupting traditional service delivery across industries. They are building new
capabilities to empower consumers and creating smoother service experiences.49
Analysts suggest that people outside of the healthcare system could soon be reshaping
models of business and care:
In a data‑ and technology‑enabled world, it is not a stretch to imagine that whole new
business models could be created by nonhealthcare players to deliver superior health
outcomes.50
Where different people are coming together to solve problems, common goals and values are
essential.53 A review of successful research centres indicates that common goals and values
help develop a clear mission and rationale for building partnerships that motivate innovation
and ensure it can be applied in the real world.54 This includes partnerships with other national
and international academic organisations, entrepreneurs, businesses and local services.55
Including consumers and focusing on their needs also creates a unifying purpose.56
The What Works Centre for Wellbeing in the United Kingdom is an example of a growing clearing
house that functions by attracting a network of collaborators and innovators (refer to Box 36.4).
139
Royal Commission into Victoria’s Mental Health System
Another partner is the Melbourne Centre for Data Science, which aims to
collaborate across academia, the private and public sectors, research centres,
centres of excellence and research groups to lead innovation; and assemble
interdisciplinary teams to tackle long‑term or large‑scale projects.
140
Volume 5 Chapter 36: Research, innovation and system learning
The centre is part of a broader ‘What Works Network’ and the Evidence Quarter.
These networks improve the way government and other organisations create,
share and use high‑quality evidence for decision making. Other members
represent a broad range of social policy areas, including health and social care,
education, justice, early intervention, economic growth and homelessness.
141
Royal Commission into Victoria’s Mental Health System
International consulting firms recognise that the world is entering an era of exponential,
disruptive improvement in how consumers access health care, how providers deliver it, and
what outcomes it achieves.59 Much of this value will be created by innovation that enables more
community‑based delivery, more effective care delivery and improved clinical productivity.60
The Commission identified the conditions, structures and relationships (what it calls
‘enablers’) that are required to support innovation in a future, adaptive mental health and
wellbeing system. These are outlined in Figure 36.4.
Governments and the private sector are moving to support more rapid innovation that will
enable improvement in public and social services.61 Efforts are being made to create broader
networks, which are needed for public and social services innovation.
Governments have created departments and agencies to support innovation across a range
of service sectors, including transport, power, environment, health and education.62
There is a window of opportunity for Australia, as an early developer of e‑health self‑care tools,
to show leadership in this area. The Black Dog Institute told the Productivity Commission:
There is a timely opportunity for public sector‑led initiatives that can address questions
concerning trust and safety, equality of access, integration of data and ensuring data is
accessible rather than within the control of tech giants.64
A major trend in both general health care and mental health care is innovation‑led
entrepreneurship in the form of start‑up companies. The Commission heard from a number
of mental health entrepreneurs who were motivated to help build a more equitable service
system and have a positive effect on people’s lives.65
142
Volume 5 Chapter 36: Research, innovation and system learning
143
Royal Commission into Victoria’s Mental Health System
Dr Haskelberg observed that people who engage with and work in the system are also
motivated to see it improve, so it is critical to involve them in innovation:
I believe real innovation comes from people who are part of the system and/or using the
services, and who have the drive and passion to make things better. It needs to be built
from the ground up …66
The Commission understands that people often discover new and better ways of doing things
while working in their day‑to‑day roles. The system must capture promising new approaches
that are developed on the ground, so that more people can benefit from these grassroots
innovations.
It’s very important to emphasise that most innovation comes from ordinary people,
not extraordinary. Some extraordinary people get lucky enough to produce some
innovation. But a lot of extraordinary innovations are the concepts of ordinary people.67
Innovation requires flexible funding. Development and testing can be resource intensive, so
innovators need access to funding that accepts an element of risk in trialling, and properly
testing and assessing unproven approaches.68 A review of 60 successful healthcare reforms
across the world found that funding to test and scale innovation initiatives is a factor behind
longer‑term system improvement:
By funding projects that are initially modest in scale, and piloting or testing the
improvement initiatives, reformers can help shape the environment, preparing the ground
for later implementation of measures that can lead to systems‑wide enhancements.69
Innovation also requires regulatory environments that welcome new activity and are
responsive to change.70 More flexible regulatory approaches can provide greater opportunities
to design and test new ideas rapidly, and determine the right safeguards to use.71
Innovators told the Commission that health systems in the United Kingdom and Germany
provide a clear basis for reimbursing development expenses, empowering start‑ups to create
new tools for consumers. They still apply rigorous quality and safety standards. Innovators
also indicated that governments could learn from the way the private and start‑up sectors
safely manage concurrent implementation and testing of new interventions.72
Innovation often happens on the fringes of the system which is absolutely welcome—
funding should be set aside to seed new ideas and spark experiments. However, we must
also provide people working within the system with enough certainty and stability to
learn from their mistakes.73
144
Volume 5 Chapter 36: Research, innovation and system learning
Dr Haskelberg advised that clinicians should be provided with time and incentives for
research and development.74 Mr Clelland proposed the use of initiatives such as service
awards to recognise innovative practice. He said, ‘[y]ou cannot force people to innovate:
it is better to bring them along by recognising good practice and modelling it.’75
Together, these processes support cycles of learning that translate new knowledge into
practice, to improve consumer experiences and outcomes.78
A system that successfully translates evidence into practice requires feedback loops between
different types of research, services, government and consumers. This loop (refer to Figure
36.5) is what transforms knowledge into action and action back into knowledge, through new
or improved interventions and innovations in the system.79
In some cases, leading practice within the system may be more advanced than the
established research base. Therefore, feedback loops also need to capture, test and expand
learning and innovation that is taking place in different settings and services. Innovators who
met with the Commission said that effective loops also allow for rapid testing and adaptation
during the development of new solutions:
I think government[s] need to look to the start‑up community [for how to] concurrently
gather evidence and data so quickly … that you can actually make smart decisions
and pivots around the product as you go in a really safe, clever manner. [Technology
increases] the data feedback loop that’s so important to measure effectiveness … that’s
the kind of stuff that you can do … on the run.80
Ms Mary‑Ann O’Loughlin AM, Deputy Secretary, Skills and Higher Education in the New South
Wales Department of Education, speaking in her personal capacity, supports this approach:
Adaptive responses are also experimental: learn by doing, trial and error, with iteration
to improve response. Unique and shifting contexts require experimentation with real
time feedback and data about what is working, and then adjustment.81
145
Royal Commission into Victoria’s Mental Health System
Innovators also advised that continuous feedback loops are essential to ensure that
promising and proven initiatives can be rapidly scaled, and that investment and
commissioning processes need to keep pace:
the current system is built for products that release once [and] don’t change … In terms
of both usability from a patient’s perspective, usability from a healthcare perspective,
effectiveness on outcomes, everything is tied against continuous improvement. And
that’s how good products are made … how we can create more of an iterative process to
policymaking that adapts to changing products and changing environments.82
146
Volume 5 Chapter 36: Research, innovation and system learning
Evaluation is a critical part of ensuring that a ‘learning system’ can respond to changing
needs, and of keeping policy and programs adaptive and responsive. As The Australian Policy
Handbook states:
In addition to co‑design and co‑production of new approaches, assessment of how well the
system is currently working and how it could be improved should include the views of those
it is designed for.91 Therefore, people who use services should lead and collaborate in their
evaluation.92
Ms Robyn Kruk AO, Interim Chair of Mental Health Australia, said in her personal capacity that
lived experience is one of the best sources of advice about flaws in the system:
Lived experience voices can provide insight on where the gaps and opportunities are in
delivery of the mental health system. From this perspective alone, having the voice of
lived experience built into decision‑making is logical from a first principles basis.93
The Australian Policy Handbook further emphasises that evaluation should be viewed as a
collaborative learning opportunity:
147
Royal Commission into Victoria’s Mental Health System
The Commission shares the view of the Productivity Commission in its Mental Health Inquiry
Report that, to achieve continuing improvement, evaluation should be included in program
design implementation and delivery. This will ensure that programs make the best possible
contributions to mental health and wellbeing, and use public funds efficiently.95
The Productivity Commission notes that ‘[w]here evaluations of mental health programs have
been undertaken, they have tended to be ‘monitoring evaluations’ … [whereas] evaluations …
are most useful when they reveal the effectiveness or the ‘impact’ of a program.’96 It says this
is best achieved through randomised control trials that allow comparison between the group
of individuals who receive an intervention and a control group that does not.
This may not always be feasible or ethical, in which case alternative approaches should
involve ‘careful measurement of changes in mental health over time, controlling for any other
factors that change during the evaluation period’.97 The Productivity Commission argues that
state governments should undertake more impact evaluations, particularly based on trials,
ahead of broader rollout of programs.98
The Productivity Commission also recommends extending the functions of the National
Mental Health Commission to lead evaluations nationally in relation to ‘aspects of the system
that are of national significance or that relate to multiple jurisdictions’. The Productivity
Commission says that this does not rule out evaluating individual state or territory programs,
but ‘would involve close consultation with jurisdictions to discern where and when the
[National Mental Health Commission] could best add value’.99 It also stated that a national
evaluation function does not take away the primary responsibility of all governments to
monitor and evaluate programs.100
It is this Commission’s firm view that reflective and evaluative professional practice within the
workplace is also important. It is highly valued by people working in the system, and needs to
be enabled and supported across the workforce.101
148
Volume 5 Chapter 36: Research, innovation and system learning
To ensure knowledge about what works is translated into equitable access to best practice
across the system, it is important that there is a definitive source of guidance and advice, where
a clear evidence base has been established. As Professor Alexander McFarlane AO, Professor
of Psychiatry in the School of Medicine at the University of Adelaide told the Commission in his
personal capacity, ‘there needs to be a system that actually treats people in a coordinated way
guided from the top by excellent co‑ordination of knowledge and research’.103
The National Institute for Health and Care Excellence in the United Kingdom (refer to
Box 36.5) runs a longstanding and successful model of this kind.
149
Royal Commission into Victoria’s Mental Health System
The National Institute for Health and Care Excellence (NICE) produces
evidence‑based recommendations by committees of experts, professionals and
members of the public across health and social care topics.
NICE publishes:
Topics for guidance are agreed with NHS England or the Department of Health
and Social Care, and then formally referred to NICE.
NICE has developed several guidelines for mental health and related conditions,
including depression in children and young people, generalised anxiety disorder
and panic disorder in adults, common mental health problems, and preventing
suicide in community and custodial settings.
Sources: National Institute for Health and Care Excellence , <www.nice.org.uk/>, [accessed 8 October
2020]; National Institute for Health and Care Excellence, Developing NICE guidelines: the manual,
<www.nice.org.uk/process/pmg20/chapter/introduction>, [accessed 12 October 2020]; Productivity
Commission, Mental Health Inquiry Report, Volume 3, pp. 1239–1240.
150
Volume 5 Chapter 36: Research, innovation and system learning
The state has a diverse range of independent bodies and experts engaged in mental health
research, and is well recognised in a number of mental health research fields.104 In its interim
report, the Commission recognised the valuable contributions of many bodies—including
Orygen, the Victorian Institute of Forensic Medicine, and headspace’s Discovery College—
and Victorian health services, universities and foundations who are collaborating with them
to research and improve mental health treatment, care and support.105 Many others are
highlighted throughout this report.
Unifying this expertise and experience will reposition Victoria as a leader in mental health
and wellbeing research and innovation, able to attract further eminent expertise, and secure
available funding and resources to undertake pioneering work.
However, the current system struggles to support widespread innovation and continuous
improvement. In particular, the Commission considers that the system lacks the structures
and processes needed to bring together and use the available intelligence and expertise to
the greatest possible effect. As a result, the mental health system is not adapting quickly to
evidence about what works in practice, and Victorians are not benefitting from this evidence
in the services they receive.
the current system is not geared for constant learning, improvement and change so that
it can meet the needs of service users and communities. The system finds difficulty in
drawing on publicly funded researchers, quality improvement specialists, clinicians and
people with lived experience to be part of the research process … there is limited public
investment in research and training and there is no coordination of outputs, priorities
and desired research.109
151
Royal Commission into Victoria’s Mental Health System
The collaborative centre will be a pivotal addition to Victoria’s ability to grow the research
base and support the translation of research evidence into practice through collaborative
methods.110 This new landscape reflects many of the functions required in an adaptive
system. However, other capabilities will need to be established to fully develop and use new
knowledge and evidence.
The following section outlines the aspects of the current system that need strengthening,
in order to become truly adaptive.
While there is a strong basis for consumer research capability in Victoria, the voices of
experts and people with lived experience are not given enough power within the current
mental health system. Consumer‑led research is often not given priority, or enough funding
or commitment, and it has ‘no real power to set agendas, influence decision‑making, or bring
about structural change’.111
The Commission was told of consumer researchers being required to align with unrelated
disciplines, such as nursing or social work, in order to find support to develop research or
projects that are fully grounded in what matters to consumers.112
Ms Roper advocates for more consumer academics, because ‘[t]hese roles are key influencers
of mental health workforce practices and policies and can achieve so much more if further
embedded in other academic settings.’113 She argues that a lack of influence means research
agendas can overlook issues that are most important to consumers:
consumer perspective in policy and research are not well developed areas in Victoria
and need investment. There is also a need for consumer led research … which prioritises
the research areas of interest to consumers … [A]dopting human rights perspectives in
mental health research … tends to matter most to consumers who have the least control
over research agendas. This needs to change ...114
As a result, consumers say that research can fail to use their strengths or to respond to
their needs:
Currently, consumers are often excluded from innovation. Innovations often meet
clinical and carer, but not consumer needs. The process for developing these innovations
often occurs without our involvement, let alone co‑design or co‑production. And there
seems little space for us to set the agenda, by developing our own innovations to meet
our strengths and needs.115
152
Volume 5 Chapter 36: Research, innovation and system learning
Ms Indigo Daya, Consumer Academic, Centre for Psychiatric Nursing at the University of
Melbourne, says in her personal capacity that one cause of this is that consumers are not
invited to participate early enough in the process:
Most commonly … we’re invited to join a research project, after the funding and ethics
(and therefore major decisions) have all been made.116
Victorian innovators warned that funding was not reaching the most likely sources of
innovation, with one saying:
There’s clear funding out there, it’s just not directed into the right areas. And we think
about the [Medical Research Future Fund which] has significant capital. But of course,
it’s still directed towards universities.119
In a meeting with the Commission, LaunchVic innovators stated that they saw the current
hierarchical biomedical model as unwelcoming to new voices, ideas or technology. This stifles
opportunities for new contributions and solutions:
I think one of the biggest barriers is the outdated and very hierarchical medical model …
so how are we actually going to shake out that model and bring in new thinking? I think
the biggest missing link is … that there is no connector … so how do we actually get these
ideas heard and accepted … how do we make it part of the system rather than just a
nice to have?120
The Commission also heard that the mental health workforce is not supported to develop and
improve models of care. Professor Ian Hickie AM, Co‑Director, Health and Policy at the Brain
and Mind Centre at the University of Sydney, reported in his personal capacity that reflective
practice is often not prioritised within services, and that the ‘system has somewhat stultified
the personal drive in individuals to engage in innovation and development’.121
153
Royal Commission into Victoria’s Mental Health System
In the Commission’s view, this could include currently underrepresented research groups,
including clinical psychology, specialist mental health nursing, occupational therapy, social
work, and consumer academic leaders.125
Australian mental health research has demonstrated a strong economic return from
investment. One study of Australian and international research investments found that the
returns were two to three times higher than for cardiovascular disease and cancer.127 However,
funding allocated to mental health research is out of step with the prevalence and impact of
mental health conditions in our community.128
The Commission heard about the de‑prioritisation of mental health investment, planning
and improvement, compared to other forms of health.129 In its interim report, the Commission
noted that mental health receives less funding and attracts less investment in research than
physical health problems, such as cancer, diabetes and cardiovascular disease.130
Cancer attracts around twice the amount of research funding from the Commonwealth
Government,131 and up to 2.5 times more from the National Health and Medical Research
Council.132 Since 2016–17, just 1.1 per cent of the Medical Research Future Fund grants have
been committed to mental health.133 Mental health research also receives comparatively low
support from corporate, community, family foundations and private charitable trusts.134
In its submission, Orygen noted that the recent introduction of the Commonwealth’s Million
Minds Mental Health Research Mission fund has boosted investment, but mental health
continues to be underfunded compared to other health areas, both nationally and globally.135
Other submissions contend there is relatively little funding for mental health research.136
The Productivity Commission states that ‘[r]eliable estimates of the total amount of
research funding in mental health are unavailable due to the variety of funding sources and
differences in reporting’, but that Commonwealth Government funding for mental health
research has increased in recent years. This includes $15 million to support mental health
research in the 2017–18 budget, and $12 million to establish a National Suicide Prevention
Research Fund. National Health and Medical Research Council funding has grown around
fivefold from 2000 to 2019, when mental health and addiction expenditure of $110.2 million
comprised 16 per cent of the Council's expenditure on the Australian Government’s National
Health Priority Areas.137
154
Volume 5 Chapter 36: Research, innovation and system learning
Source: National Mental Health Research Council Corporate Plan 2019–20; Medical Research Future Fund 10-year plan;
Million Minds Research Mission (Department of Health); Victorian Medical Research Acceleration Fund (Health Vic);
Victorian Government 2018–19 budget papers; Australian Rotary, Funding Breakdown, <www.australianrotaryhealth.
org.au/home/funding-breakdown>, [accessed 20 November 2020].
155
Royal Commission into Victoria’s Mental Health System
Underinvestment in mental health research at state, national and global levels has meant
that advances in understanding about the causes of mental illness, and better ways to
manage and treat mental illness, have been described as ‘negligible’.138 In particular, new
treatments and drug therapies fall far behind other areas of medicine, such as cancer and
cardiovascular disease treatment (refer to Box 36.6).139
156
Volume 5 Chapter 36: Research, innovation and system learning
The Productivity Commission found that more research into the clinical benefits
and long‑term health implications of mental health medications ‘could generate
significant improvements in mental healthcare treatment outcomes’.155
Submissions from research bodies confirmed that a lack of funding and the low assignment
of priority for mental health research has contributed to slow translation of evidence‑based
models of care into practice.156 The Florey Institute of Neuroscience and Mental Health said
that more support is needed for translational or participatory research:
At a fundamental level, the quality of treatments for mental disorders hinges on the
successful translation of basic science research to clinical interventions. Yet the
translational gap … to implementation at the bedside remains a significant issue …
A major impediment between the bench and bedside is the cultural and academic
divide between basic and clinical research, and the resultant difficulty in successfully
translating research through to the point where it is available for use by the public.157
157
Royal Commission into Victoria’s Mental Health System
Professor Shitij Kapur, Dean of the Faculty of Medicine Dentistry and Health Sciences, and the
Assistant Vice Chancellor for Health at the University of Melbourne, argued in his personal
capacity that this support must come from within Victoria:
We are not really leveraging funding for [translational research]. The reason for this
is that there are currently not many national or international agencies that will fund
that research. Therefore, if Victoria wants translational and implementation science
research, if it is a priority, Victoria will need to pay for it.158
The need for more research into mental health and wellbeing is increasingly understood, and
levels of research funding in Australia for mental health are higher than ever and growing.159
Establishing the collaborative centre, and building strong and diverse networks of research
expertise, will put Victoria in a strong position to attract and secure research funding, and
grow its reputation as a research leader.
There also appears to be a lack of funding and impetus for evaluation, particularly at the
community level.160 The Productivity Commission observed in its Mental Health Inquiry Report
that ‘Australia generally has a lack of routine program evaluation and evidence gathering
to inform funding allocations and program improvements in mental health … [a]nd where
evaluations are undertaken, it is not clear if they are used to improve programs.’161
The Australian Psychological Society contends that ‘lack of investment in quality outcome
evaluations means the effectiveness of much of the expenditure on mental health remains
unclear’, and calls for outcome evaluation of programs and services provided by the public
mental health sector to be mandated and routinely undertaken.162
Foundation House said more support is needed for evaluation of community‑based programs
and initiatives in Victoria:
Expert evidence also suggests that a lack of funding and resources, and low assignment of
priority for innovation within the system, is stifling a culture of exploration and creativity.164
Victorian innovators have said it is hard to find opportunities, resources and support for
innovation, and ways to translate it into practice:
Often peer alternatives are trapped in a Catch‑22 where the argument against
commissioning alternative models of care is based on them having a less established
evidence‑base compared to other models, and yet it is often difficult to get substantial
funding to research consumer‑led alternatives to build that evidence base.165
158
Volume 5 Chapter 36: Research, innovation and system learning
I think the big challenge is, so many organisations, I think, fall through the cracks of
being able to access the support and funding … how can we provide quick, agile paths to
funding for organisations that are probably a bit smaller? And on the coalface? And how
can we equip them with the skills and the know‑how to be able to put their hat in the
ring to even access these sorts of opportunities? 166
Mr Graham Panther, witness and co‑founder of the Big Feels Club, told the Commission
that government funding often comes with excessively restrictive requirements that force
innovators to find financial support from outside the system:
to truly build your offering with your users, you have to go into it not knowing what your
solution will be … The money we’ve accepted has been money that came with few strings
attached … This has allowed us to experiment in a way that we could not have if we were
funded via health funding.167
Innovators who met with the Commission also perceive low levels of government trust and
confidence in small and non‑traditional enterprises:
Innovation is often hampered by a lack of evidence and outcomes in the early days of
development, which is required to secure resources for further development. Professor
Lisa Brophy, Discipline Lead in Social Work and Social Policy, Department of Occupational
Therapy, Social Work and Social Policy at La Trobe University, observed in a personal
capacity that this can undermine innovative approaches before they are able to
demonstrate value:
Often when implementing new models of care, the model is corrupted by the impact
of having insufficient resources to properly analyse its impacts and see it flourish.
New innovations must be supported on a continued basis, so they can be given the
opportunity to operate as intended.171
159
Royal Commission into Victoria’s Mental Health System
As a result, consumers and carers, or smaller innovation organisations, are often not eligible
or able to scale up their ideas and evaluate them:172
There’s all of these announcements about … new funds to support innovation and
support collaboration. But very few start‑ups or NGOs [non‑government organisations]
are eligible … it means that we end up with the same old solutions all the time. So it has
to … come completely out of those systems, and into a completely new environment. 173
The Black Dog Institute identified other barriers to innovative and digital solutions that exist.
These include:
Even where an innovation is developed and receives a positive evaluation, it often lacks the
investment and support required to make it widely available.175 This can discourage further
innovation. Ms Harman explained:
Successful projects need to be scaled up and integrated within wider service systems.
Running short term, small scale pilots that never reach scale despite positive
evaluations becomes a significant disincentive to further innovation.176
The Florey Institute of Neuroscience and Mental Health, and Professor Mario Alvarez‑Jimenez,
Director at Orygen Digital, cite research indicating that it takes 17 years to move research
innovation into clinical practice.177 Even then, 85 per cent of innovations never reach those
who need them.178 A major cause of this delay is the cultural divide between clinical research
and basic research (which includes local innovation).179
Innovators told the Commission that the failure to sustain and grow proven innovations
creates inefficiencies, because effort and resources are wasted on reinventing approaches:
[Start‑ups have] got technologies with solutions out there already. And they fall over
after a couple of years, because we just don’t have the ability to get adopted into the
system … And so, then we invent the wheel, and we do another one … we’re just going to
see this constant circulation of failure happening.180
The Black Dog Institute pinpointed self‑help technologies as one area where successful ideas
are not being picked up and invested in:
e‑health programs and apps are … effective, cost‑effective and can be scaled up
cheaply … Although these products are effective, they are underused even when the
need is high … There are many more specialised digital services that have been created
but do not receive Government funding for scale up or roll out.181
160
Volume 5 Chapter 36: Research, innovation and system learning
However, while the system has been slow to encourage and adopt innovations, many people
have chosen to access information and support through digital, multichannel and flexible
sources. This has been accelerated during the COVID‑19 pandemic.182 Beyond Blue,183 the Black
Dog Institute,184 and the Clinical Research Unit for Anxiety and Depression at the University
of Sydney185 all report increased demand for digital mental health tools and resources. For
example, the online cognitive behavioural therapy program, THIS WAY UP, has experienced a
700 per cent increase in the number of individuals accessing the courses.186
In Victoria, area mental health services delivered 346 consumer contacts via teleconference
in April 2019. A year later, this number increased to over 10,000 consumer contacts.187 The
growing use of online communities such as The Big Feels Club clearly indicates these
alternative supports are meeting a consumer need for other options to clinical care.188
Professor Kapur stated that the integration of lived experience, and digital and technological
leadership could place Victoria ‘at the cutting edge’: 189
I think it is feasible for us to be at the cutting edge of digital mental health here
in Victoria. It is not just about medicine, it is about getting a lot of input from our
sociologists, our historians, our ethicists, our lawyers, and of course our mental health
professionals, along with the community of people with lived experience. We have a
strong tradition of it in Australia and I think Victoria could amplify it.190
While some innovation will happen organically through investment in research and the
translation of new knowledge into practice, the Commission believes there needs to be more
disruptive innovation that reflects the views and preferences of consumers. The mental
health and wellbeing system needs to create flexible funding and regulatory environments
that encourage invention, risk‑taking and controlled trial and error, in order to find new and
effective approaches to mental health treatment, care and support.
The Commission believes that spaces and funding opportunities must be created to
encourage collaborative experimentation, learning and solution design. LaunchVic has
observed that parties want to come together with the system to contribute, but they
do not know how to do this. They are also often overwhelmed by the complexity of the
environment.192 Innovators told the Commission that these supports will need to be carefully
chosen and organised, and have the flexibility and openness to enable consumers, smaller
innovators and non‑traditional researchers to participate with other experts:
If there was a facilitator of passionate and talented and capable innovators to have a
safe place to play, it kind of opens up the other side of the funnel … I think it’s a huge
catalyst to unlocking a whole amount of, like really passionate, really smart, really
capable people not being scared away …193
161
Royal Commission into Victoria’s Mental Health System
There is also strong and consistent evidence supporting specific therapies and …
specialist therapeutic interventions … These interventions are not systematically
embedded in … models of care ...195
Professor McGorry emphasised that the failure to translate evidence into practice means
consumers miss out on the most effective treatments, and may be exposed to unproven
alternatives.
The evidence‑base for mental health care has improved a lot in recent years, however
fewer and fewer patients get exposed to this. Examples include clozapine, cognitive
behavioural therapy (CBT), individual placement and support (IPS), assertive community
treatment (ACT), family interventions and home‑based treatment. Non‑evidence based
models have emerged, such as [emergency department] based admission beds, to replace
models that were evidence‑based, such as home based treatment of acute episodes.196
The Commission is concerned that, as a result, services may continue using outdated treatment
and delivery models that do not meet the needs of consumers, families, carers and supporters.
The collaborative centre will need strong connections with service delivery organisations
across the state to translate research into practice. Currently, limited academic and clinical
connections exist at a service level to build these networks.197 Without translation at the
service level, the benefits of research, innovation and evaluation will not be realised.
The Commission recognises the need for dedicated resources to support, capture and scale
innovation that is happening on the ground, so that practitioners and small organisations
are able to contribute to the evidence base.198 Feedback loops and connections to decision
making are also needed to ensure the system is equipped to use local innovation to develop
and test policies. To effectively trial and test new approaches, and then validate and scale
proven innovation, it is important to develop inquiry and assessment skills throughout the
system to support learning and evaluation activities, along with leadership capability to
enable high‑quality reflective practice.199
162
Volume 5 Chapter 36: Research, innovation and system learning
The Commission considers that the system still lacks a function that brings a diversity of
knowledge and evidence together. This includes knowledge and evidence from the research
community, and system data and evaluation, as well as from the expertise and experiences of
consumers, carers and staff.
There are currently very archaic data and knowledge systems in place in the mental
health system. These systems are not integrated and prevent the sharing of information
across services in the clients’ best interests as well as effective research and
innovation.201
In its interim report, the Commission stated that this knowledge‑translation gap is ‘a
deficiency that must be redressed’.202 This will require the creation, synthesis and sharing of
data, evaluation findings and evidence‑based guidance, as well as support and resources to
implement it in practice.
The Productivity Commission in its Mental Health Inquiry Report similarly noted that the
collection and use of outcomes data is crucial to making improvements. It observed the
mental health system has been criticised for being ‘data rich but information‑poor’, and said
‘[m]uch more can be done to improve the collection and use of mental health data to inform
decision making and improve outcomes for consumers and carers.’203 It noted that ‘program
evaluations in mental health across Australia are, for the most part, ad hoc, uncoordinated
and lacking in objective evidence’.204
The Commission agrees, and considers that evaluation is not being systematically used as a
tool for continuous improvement.
The former Department of Health and Human Services released an evaluation guide that
promotes the use of evaluation before, during and after the implementation of programs.205
The Commission has seen evidence of many impact and outcome evaluations carried out
for specific programs and local service innovations within Victoria’s mental health system.
However, it is not clear whether this information is used to invest in and expand effective
initiatives. This requires: evaluation that incorporates collecting feedback from consumers
and practitioners; and the system using evaluation findings to adapt new initiatives and
maximise their potential benefit.
In fact, there appears to be little system‑level evaluation to determine the collective and
independent effects of mental health services on consumer and carer outcomes, or on
system sustainability. The Victorian Auditor‑General’s Office noted in 2019 that a formal
evaluation framework for the government’s 10‑year mental health plan (launched in 2015)
was yet to be completed.206
163
Royal Commission into Victoria’s Mental Health System
There is also no function to formalise ‘definitive’ evidence on behalf of the system to guide
the translation of research into practice. There are many examples of practice guidance
and standards that relate to particular professions, service settings or diagnoses.207
However, to ensure all consumers can choose or experience a consistent, high standard
of care, the mental health and wellbeing system needs a function to publish authoritative,
evidence‑based practice guidance that can be applied more universally.
Innovators said that without this, there is uncertainty about what is effective and supported:
As detailed in Chapter 11: Supporting good mental health and wellbeing in the places
we work, learn, live and connect, there is a broader need for authoritative advice to help
other community sectors and organisations better support people’s mental health and
wellbeing. For example, the Commission was advised that frameworks and programs which
support mental health and wellbeing are inconsistently applied across early childhood and
school settings,209 and that ‘accreditation’ of evidence‑informed initiatives would greatly
assist schools.210
Similarly, participants in the Commission’s Mentally Healthy Workplaces Roundtable said that
businesses need guidance and clarity about how to support the mental health and wellbeing
of their workers, and that it is unclear which workplace interventions are effective.211
The lack of authoritative evidence also makes it harder for objective, consistent and
evidence‑based policy design and investment decisions to be made at system, regional and
service levels.
164
Volume 5 Chapter 36: Research, innovation and system learning
As Alfred Health argues, ‘[m]uch is still unknown about the causes and treatments of
mental illness’.212 Therefore, Victoria’s mental health and wellbeing system must be set up
to continue learning:
[Victoria’s mental health system] must be explicitly designed for learning and
improvement, with the capacity to monitor performance, evaluate services and
innovation and undertake research into new knowledge through engagement with
academics, patients and clinicians.213
Figure 36.2 presents the recommended functions and relationships for a mental health
and wellbeing system that innovates, learns and adapts. It outlines arrangements that are
designed to:
• build the culture and capabilities needed to encourage collaboration, courage and
reflection
• bring together interdisciplinary experts, researchers, service leaders and people with
lived experience to carry out research, translate it through service delivery, and share
knowledge to improve treatment, care and support across the system
• support collaborative innovation, and assist with the application of new and proven
approaches to treatment, care and support
• collect, combine and share evidence and lessons learned about effective practice
to continually develop service design, policymaking and investment, to improve
experiences and outcomes.
Collectively, these functions will enable an adaptive, responsive system that is designed for
current realities, but has an inbuilt capacity for self‑review and adjustment if it is not meeting
future needs or achieving expected outcomes.214
165
Royal Commission into Victoria’s Mental Health System
Working with established research organisations, including those featured in this and other
chapters, the collaborative centre will bring together people with lived experience, and a
broad range of multidisciplinary experts and researchers to develop, translate and share best
practice across the system.215 Working closely together, this network of research organisations
will collaborate on further research into priority needs in the system, and bridge gaps
between research and practice. They will share the objective of making world‑class
treatment, care and support widely available to Victorians in the future system.
A promising example of a networked approach that brings together research, clinical and
lived experience expertise to improve services and outcomes for Victorians is the Change to
Improve Mental Health Centre of Excellence (CHIME) partnership between Barwon Health and
Deakin University (refer to Box 36.7).
During its early deliberations, the Commission recognised established research expertise
and activity in Victoria, relating to mental illness in children and young people (refer to
Box 36.8). It identified a clear gap in current translational research focused on adults and
older Victorians.
The collaborative centre is designed to fill this gap. It will lead translational research, and
provide mental health and wellbeing services to adults (from 26 years) and older adults.
This remit, including people aged 65 years and older, will align with the adult and older
adult mental health and wellbeing system recommended in Chapter 5: A responsive and
integrated system and Chapter 14: Supporting the mental health and wellbeing of older
people. The collaborative centre will work closely with existing research bodies—such as the
National Ageing Research Institute—to ensure that available expertise is used to develop the
evidence base.
It has been suggested to the Commission that there is less translational research for infants
and children (aged 0–11) and there would be benefit in creating the system‑wide capability
equivalent to the collaborative centre for children and younger people aged 0–25.
166
Volume 5 Chapter 36: Research, innovation and system learning
Research projects engage clinical staff from Barwon Health into Deakin’s
research team, enhancing knowledge exchange across both organisations and
diversifying the skills, experiences and perspectives of all involved.
• using data to understand risk factors for poor mental health for youth in
the region to inform early intervention measures
• clinical research into the efficacy of particular interventions (such as
diet and exercise) as part of mental health treatments and models of
care. The aim is to both improve mental health outcomes for rural and
regional consumers and at the same time address common co‑morbidities
associated with mental illness such as cardiovascular disease
• evaluation of the rollout of mental health telehealth services in the region
in response to the COVID‑19 pandemic.
Future research priorities for CHIME include integrating digital capabilities such
as artificial intelligence in the development of new therapies and technologies;
and working with IMPACT (Deakin’s Institute for Mental and Physical Health and
Clinical Translation), to expand opportunities for consumers, families, carers
and supporters across the region to participate in mental health clinical trials,
and enhance the Barwon community’s access to world‑leading treatment, care
and support.
Sources: Interview with Associate Professor Steven Moylan, Barwon Health and Renae Carolin, Interim
Director – CHIME, 14 December 2020; Barwon Health, CHIME (Change to Improve Mental Health Centre
of Excellence), <www.barwonhealth.org.au/research/our-research/item/chime-change-to-improve-
mental-health-centre-of-excellence>, [accessed 15 December 2020].
167
Royal Commission into Victoria’s Mental Health System
The Commission, in its interim report, identified a particular need for research
focused on treatment, care and support for adults and older Victorians. It
recommended that this be the focus of translational research led by the
collaborative centre. In doing so, the Commission recognised that within Victoria,
there are already bodies with established reputations and expertise in the
fields of infant, child and adolescent mental health that could partner with the
collaborative centre and other bodies in networks and communities of practice.
The Institute is also the custodian of research within the Melbourne Children’s
Campus—a strategic and physical alignment including the Institute, the Royal
Children’s Hospital, and the University of Melbourne’s Department of Paediatrics
co‑located with the Royal Children’s Hospital Foundation. The Foundation
supports clinical trials and research with the aim of improving mental health
provision on the campus.216
The Institute helped establish the Centre for Research Excellence in Childhood
Adversity and Mental Health, a five‑year research program co‑funded by the
National Health and Medical Research Council and Beyond Blue, to support
multidisciplinary and community‑based approaches to child mental health.217
During 2020, the Victorian Department of Education and Training partnered with
the Institute and the Ian Potter Foundation to develop and pilot evidence‑based
training and resources to help staff better identify and respond to mental health
issues affecting primary school students (refer to Chapter 11: Supporting good
mental health and wellbeing in the places we work, learn, live and connect).218
During 2018–19, Orygen delivered clinical and non‑clinical services training and
consultations to workforces in Ireland, Hong Kong, New Zealand and the United
States.222 In 2019, it also co‑hosted the International Association of Youth Mental
Health’s fifth International Conference.223
168
Volume 5 Chapter 36: Research, innovation and system learning
Orygen also partnered with the World Economic Forum as part of the Forum’s
initiative to develop a global youth mental health model, and to ‘put youth mental
health on the global agenda for the World Economic Forum Annual Meeting in
Davos 2020’.224
In 2018–19, Orygen delivered clinical services for more than 3,500 young people
(aged 12–25) at four headspace centres in the north and north‑west of Melbourne.
It was involved in 36 research projects, published more than 200 articles, led
17 clinical trials, delivered 15 training programs and events, and supported 250
young people in its youth participation programs.225
Research translation
The collaborative centre and other research partners will carry out applied research through
their respective service delivery arms, including testing it in different contexts and settings.
Professor Sundram and Professor Emeritus Bruce Singh AM, Clinical Director, Mental Health
Services at South West Healthcare Warrnambool, advised in their personal capacities
that embedding clinical advocates of research and translation within the service system
is essential to create a strong translational research culture.228 Professor Sundram also
observed that it is important to build a research culture in the workforce, so that clinicians
‘will become alive as to how research will improve practice’.229 He noted that this is a challenge
in the current system:
At present, the difficulty is that research is hitting a cold workforce, one that has no
experience with research. There is antagonism towards research, with many clinicians
seeing it as a burden on their day to day work. The only way to overcome this is to
embed research into mainstream practice.230
169
Royal Commission into Victoria’s Mental Health System
Orygen suggested that restructuring and better investing in leadership academic posts
would greatly improve research translation on the ground. It would also build the critical
mass needed to generate change.231
The Commission believes these clinical leadership positions need greater respect, support
and assignment of priority by universities, service providers and government to be effective.
clinically active health researchers. They work in health and social care as
clinicians to improve, maintain or recover health while in parallel researching
new ways of delivering better outcomes for the patients they treat
and care for.
170
Volume 5 Chapter 36: Research, innovation and system learning
In 2018–19, the former Department of Health and Human Services invested over
$4.7 million in clinical and non‑clinical academic positions, with funding allocated
to a range of service agencies. This clinical academic program funded around
30 mental health clinical and non‑clinical academic positions (suitably qualified
clinicians who have both an academic role within a university and a senior
clinical role within specialist mental health services) to provide clinical leadership
in mental health, and promote innovation through a range of workforce
development and knowledge translation projects.235
The Commission recommends that the Victorian Government gives the collaborative
centre responsibility for creating a ‘clearing house’ to bring together high‑quality data and
learning from research, evaluations and innovation relating to mental illness in adults and
older people.
The purpose is to combine and promote evidence about proven and effective treatment, care
and support. This will inform policy development and investment at the system level, and
service design and commissioning by Regional Mental Health and Wellbeing Boards. It will
also provide a source of reliable and contemporary evidence and information to local, area
and statewide services, innovators and the general public.
These evidence synthesis and publication activities could be modelled on the National
Institute for Health and Care Excellence (described in Box 36.5) and the What Works Centre
for Wellbeing in the United Kingdom (described in Box 36.4).
Topics for guidance will be self‑determined or referred to the collaborative centre by the
Department of Health or the Mental Health and Wellbeing Commission, and informed by
phases of reform and research priorities.
Other research bodies may also be mandated to perform similar activities relating to
evidence about mental illness in infants, children and young people in the future. The
networked model within which organisations will work can ensure that promising innovations
and validated approaches across the lifespan will be identified, captured and integrated
where appropriate into authoritative evidence and guidance.
The guidance and advice that is developed could include systematic reviews and other
synthesised research evidence of the effectiveness of clinical and non‑clinical approaches
to mental health treatment, care and support; guidance on adopting new, evidence‑based
therapeutic innovations; tools and resources to support evidence‑based professional
practice; and operationalising and implementing culturally responsive and recovery‑oriented
care in partnership with consumers, families, carers and supporters, as modelled by the Yale
Program for Recovery and Community Health (refer to Box 36.10).
171
Royal Commission into Victoria’s Mental Health System
The Department of Health should establish processes to ensure the guidance from the
collaborative centre and any other mandated research partners is used to inform the
assignment of priorities for policy development; integrated in commissioning and planning
cycles; and made available to service and system oversight functions.
In undertaking these roles, the collaborative centre and other research centres will be well
placed to contribute to, and benefit from, interjurisdictional work led by the National Mental
Health Commission to build the evidence base in mental health—part of the Productivity
Commission’s recommendations for a significantly strengthened national evaluation
environment.236
The Yale Program for Recovery and Community Health—part of the Connecticut
Mental Health Center of the Department of Psychiatry at Yale School of Medicine—
conducts research and evaluation in the areas of recovery from serious mental
illness, substance use, citizenship, social inclusion, and health disparities
and equity.
The Program for Recovery and Community Health research and evaluation is
rooted in community work and connections. It is developed as a learning activity
in partnership with people, families and organisations across the boundaries that
academic disciplines and diagnostic labels can at times create.
Source: Yale School of Medicine, Yale Program for Recovery and Community Health, <www.medicine.yale.
edu/psychiatry/prch/about>, [accessed 26 August 2020].
172
Volume 5 Chapter 36: Research, innovation and system learning
• be made up of a flexible and evolving group of partners from different fields of national
and international expertise (including lived experience, technology, private investors
and organisations, mental health services and government)
• use a ‘collective impact’ framework to bring people and organisations together to
solve problems
• focus on supporting co‑design and co‑production with consumers and carers
• allow for rapid design and testing of new ideas that demonstrate strong alignment with
consumer, carer and system needs
• offer resourcing and support to people or small organisations with inventive ideas.
A new mental health and wellbeing innovation fund should reflect the model and principles
of the Better Care Victoria Innovation Fund, which supports sector‑led innovation and
improvement projects in the Victorian health sector.237
• be flexible, providing the initial funding to test new ideas, and encourage
creative exploration and testing, without needing a fully established theory or
guaranteed outcome
• require alignment to principles of co‑design and co‑production, and fund
consumer‑led initiatives238
• respond to clearly defined system problems and support innovators to raise and tackle
new challenges
• establish a funding stream for ‘spreading and growing’ good ideas that demonstrate
effectiveness, and provide financial and technical support to scale them.239
The innovation fund and networks should be coordinated through an existing entity that has
the culture and conditions to foster new ideas and approaches. It should be arm’s length from
government, and visibly and culturally separate from formal research and system entities,
including the collaborative centre. This is so that innovation initiatives can attract a diverse
range of partners, allow flexible ways of working, and promote non‑traditional inquiry to help
build the evidence base.
173
Royal Commission into Victoria’s Mental Health System
The coordinating body will ensure the funding and activities for mental health and wellbeing
innovation are aligned with system needs and expectations, including a commitment to
consumer leadership, and provide meaningful support to a variety of service providers and
service systems to implement, test and evaluate new approaches in various settings.
CivVic Labs is a local example of collaborative innovation. It provides a space for entrepreneurs
and government to come together to tackle identified problems (refer to Box 36.11).
LaunchVic partnered with the Victorian Government and its Public Sector
Innovation Fund to create the CivVic Labs accelerator. CivVic Labs provides a
space for government and start‑ups to come together to solve identified public
sector challenges.
While government sets the ‘challenges’ to be solved, the solutions are brought in
from outside thinking, and are not prescriptive.
The innovation body must have the expertise to identify leading practice wherever it
emerges, and to test and develop promising innovation. It should also partner with the
Department of Health and relevant regulators to ensure the right conditions for safe
yet flexible testing. This will allow new ideas to be designed and tested quickly, and for
appropriate safeguards to be progressively determined.242 Such an approach also allows
regulators and innovators to determine what regulatory changes may be required to ensure
they deliver projects safely.243
174
Volume 5 Chapter 36: Research, innovation and system learning
The innovation body will support developmental testing and assessment of promising
initiatives. It will also identify to the Department of Health, innovations that have the
potential to be shared more widely for greater benefit. The department will be responsible for
ensuring independent evaluation of innovative approaches, as part of a defined process of
decision‑making and investment, to scale proven approaches and provide equitable access
across the system. This will include translation and innovation efforts by area partnerships
and local services that are funded by Regional Mental Health and Wellbeing Boards.
The innovation body will also be responsible for supporting practice translation—applying
knowledge and guidance on the ground, and embedding effective innovation in routine practice.
Alfred Health says that services need to have the capacity to develop and test new ideas:
we also believe that every Area Mental Health Service (AHMS) must have capacity to use
data, patient, family and clinician feedback to develop ideas for improvement, rapidly
test and evaluate them in practice and then spread those ideas in order to generate
learning about what changes, in which contexts actually work.244
Drawing on the example of Ontario’s Rapid Improvement Support and Exchange model, the
innovation body will provide practical tools and support to translate new innovations, and
both promising and evidence‑based models and guidance, into service delivery at area and
local levels.
It will support organisations and service providers through coaching and step‑by‑step
capability building in assessment and testing, and empower workforces and professionals,
including lived experience experts, as researchers of their own practice.
Other system supports for implementing quality improvement are discussed in more detail in
Chapter 30: Overseeing the safety and quality of services.
If successful, this practical support model could be extended to local and regional
implementation of the Commission’s recommendations more broadly, and where needed.
The Victorian Government should design processes to support regional commissioning that
encourages innovation in areas of need by area partnerships and local services, and also to
collect information from Regional Mental Health and Wellbeing Boards about local service
needs, activity or improvement.
175
Royal Commission into Victoria’s Mental Health System
Mental health services use continuing research, evaluation and innovation to respond to
community needs now and into the future.
As previously stated, it is the Commission’s view that the system must respond and adapt to
inequity within it. This includes making leading practices and approaches available across
the system, in line with the Commission’s third guiding principle:
Comprehensive mental health treatment, care and support services are provided on
an equitable basis to those who need them and as close as possible to people’s own
communities—including in rural areas.
The Commission is concerned that the failure to validate, sustain and grow proven
approaches is denying Victorians the best possible treatment, care and support. Mr Alan
Woodward, witness, believed that this failure also worsens inequity when best practice
interventions are available to some consumers, but are not made widely available:
My concern is that while some regions in Victoria have benefited from trials, there
needs to be more consistency across the State. As the trials move into the delivery of
services phase, there needs to be an application of what is being learnt from them and
translation into more consistently improved services for all Victorians, regardless of
where they live.250
Austin Health said that the system needs services to evaluate local improvements, and
that expectations about evaluating and sharing learnings should be made clear as part of
funding arrangements:
Good governance calls for robust evaluation of all activities and trials undertaken within
the mental health system, with a particular focus on identifying and sharing learnings
from those events. Where a health service has made an attempt to improve services,
or a discovery of a new way of overcoming an issue, there should be mechanisms in
place for sharing or collaborating these breakthroughs and innovations … [for funded
programs] reporting against expectations should be required … following completion
with results and learnings promulgated appropriately.251
Therefore, the Commission places great value on effective evaluation at all levels of the
system, and capturing new ideas and approaches from research and innovation, wherever
they may occur.
176
Volume 5 Chapter 36: Research, innovation and system learning
Under the Mental Health Act 2014 (Vic), the Secretary of the Department of Health has
responsibility to ‘monitor and evaluate the performance, standards and outcomes of mental
health service providers and the quality and safety of the mental health services they provide’. 252
The Mental Health and Wellbeing Commission recommended in Chapter 27: Effective
leadership and accountability for the mental health system—new system‑level governance
will be responsible for system performance oversight. This includes monitoring and reporting
on system‑wide outcomes, and on the Victorian Government’s progress in implementing the
Commission’s recommendations and delivery of reforms.
The Department of Health will remain accountable for monitoring and evaluating the
performance and outcomes of mental health and wellbeing service providers. This must
include ensuring that new service and program funding depends on clearly communicated
and appropriate levels of spending on evaluation, and on independent evaluation findings
being shared to promote system learning.
The Commission notes that the Centre for Evaluation and Research in the former Department
of Health and Human Services carries out evaluation activities across a range of programs.
This supports policy and program development, as well as the continued improvement of
services. However, due to the scale of mental health and wellbeing system reforms, and the
need for extensive evaluation activity in the future, the Commission recommends resourcing
dedicated capacity for mental health and wellbeing evaluation.
More systematic evaluation is needed to understand how to apply models of care in widely
varying cultures and settings.254 Without this, evaluation activity may create inequity in the
mental health and wellbeing system. For example, trials of a program at limited sites could
give different results in different areas. This may lead to some services being discontinued
and others continued, causing inconsistency in access.255
177
Royal Commission into Victoria’s Mental Health System
As a result, the Department of Health should report evaluation findings publicly.256 It should
ensure that processes are in place to use them proactively in system and policy design.
The Institute for Safety, Compensation and Recovery Research provides a model for how
government and service providers can partner with expert evaluators and researchers to
inform continued review, refinement and implementation of what works (refer to Box 36.12).
The Institute for Safety, Compensation and Recovery Research is a joint initiative
established and funded by Monash University, WorkSafe Victoria and the
Transport Accident Commission (TAC). The purpose of the Institute is to lead
exploratory and translational research that can inform real‑life policy and service
improvements for member organisations.
Working closely with WorkSafe and the TAC, Monash University co‑develops
its research approach and questions to understand the issues they face and
how to answer them. One of the major services that WorkSafe, the TAC and
Monash University provide is the development and implementation of evaluation
frameworks and activities to assess the effectiveness, outcomes, and effects or
lessons for any government program and initiative that WorkSafe and TAC use,
and for the outputs of the evaluations to inform policy and investment decisions.
The benefits of this model are that government has a large network of experts
who can inform evaluation and continuous improvement. The TAC and WorkSafe
do not have major in‑house evaluation capabilities or ethics functions. Therefore,
this approach ensures that all programs and services are properly and
independently assessed. Evaluation outcomes can also be fed back into research
to improve future service design and outcomes.
Source: Institute for Safety, Compensation and Recovery Research, Our partners and Governance,
<www.iscrr.com.au/who-we-are/our-partners-and-governance/>, [accessed 20 August 2020].
the [National Mental Health Commission] is expected to evaluate aspects of the system
that are of national significance or that relate to multiple jurisdictions. This would
involve close consultation with jurisdictions to discern where and when the [National
Mental Health Commission] could best add value.258
178
Volume 5 Chapter 36: Research, innovation and system learning
There would be an opportunity for a dedicated mental health and wellbeing evaluation
function in Victoria to form a strong relationship with the national body, and access funding
to undertake program evaluations that would have national interest.
Support provided for practice translation by the clinical academic leaders’ network, and
local innovation and trials by the innovation body should include helping to establish
models of ongoing testing, reflection and adaptation within teams—reflecting structured
processes such as the RISE rapid improvement model. They should also build the skills of
workers and consumers to reflect on and evaluate different approaches and implications for
their practice.
The collaborative centre, other research bodies, the Department of Health, and the
innovation body should all ensure that consumers have a meaningful and influential role in
research and evaluation, and that consumer expertise is built into research efforts, service
innovation and workforce capability development.
Consumer leadership will be integral to networked collaboration. The collaborative centre will
employ leaders with lived experience in influential positions in many of its functions, to help
grow the body of consumer‑led research, and ensure that promising findings are put into
practice for the benefit of consumers, families, carers and supporters.259
Proactive efforts must be undertaken to support and build the capabilities of consumers as
leaders of research and evaluation.
179
Royal Commission into Victoria’s Mental Health System
As described in Chapter 33: A sustainable workforce for the future, the collaborative centre
will work with existing learning and development providers, and statewide services to
coordinate and increase access to high‑quality workforce training and development. This will
be for all staff in the Victorian mental health and wellbeing system, including consumer and
peer workforces. It will include:
Associate Professor Stafrace argues that ‘[t]he techniques of adaptive thinking can be taught
and learnt.’260 In his view, the ‘ability to recruit adaptive leaders or develop adaptive leadership
capability will be crucial in building the capacity for reform in our mental health sector’.261
Overall, the system should have the capacity to respond to breakthroughs that may not be
part of the formal research agenda, but that have the potential to add considerable value
for consumers. This includes responding to unexpected events or needs within the Victorian
community.
The Commission is confident that, by taking these steps to strengthen research, innovation,
practice translation and evaluation, Victoria’s mental health and wellbeing system will be
set up to learn, adapt and improve into the future, and regain its status as a world‑leader in
mental health treatment, care and support.
180
Volume 5 Chapter 36: Research, innovation and system learning
Children and young people: the future system will provide treatment, care and
support earlier in life, and earlier in an individual’s experience of mental illness—
including increasing wellbeing and preventing poor mental health. Research
into the role of psychosocial factors early in life, and effective wellbeing and
treatment interventions, will help to improve outcomes for young people. In
particular, a stronger understanding of the links between substance use and
mental health, and effective interventions for children and young people who
have experienced trauma, will help the system to better respond to those most at
risk of mental illness.263
Families, carers and supporters: the future system will respond to the significant
role that relationships of care and support play in promoting mental health and
wellbeing for people living with mental illness or psychological distress. Research
will provide a stronger understanding of the crucial role that parents, families
and other carers and supporters play, the challenges they face, and how their
experiences can strengthen how services are offered and delivered. It will also
inform the development of dedicated supports that the system will offer to
families, carers and supporters.
Older Victorians: the collaborative centre will create research capacity in Victoria
that is dedicated to developing the evidence base for improving the mental
health and wellbeing of older adults. This will enable the system to provide more
effective interventions aimed at improving help‑seeking, facilitating diagnosis
and increasing participation in enjoyable and meaningful activities.268
181
Royal Commission into Victoria’s Mental Health System
Suicide prevention and support: suicide prevention research has been effective
in describing risk factors, but the Commission understands there is still much to
learn about the effectiveness of suicide prevention interventions. Research will
be critical in helping the system to reduce the rates of self‑harm and suicide,
particularly among younger people. It is also important to better understand
family and carer experiences of caring for someone who is suicidal, and how the
system can help people who provide this support.271
Treatment and services for people with mental illness needing ongoing intensive
treatment, care and support: there are some people whose mental health
outcomes are substantially worse than the general population, and who would
benefit from accelerated research and new care models to support them. The
Commission considers that the needs of these Victorians should be a paramount
concern, as evidence indicates that many experience high levels of coercion, poor
physical health, and personal recovery outcomes and social exclusion.273
182
Volume 5 Chapter 36: Research, innovation and system learning
1 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, pp. 98 and 385.
2 Evidence of Dr Ravi Bhat, 15 July 2019, p. 988.
3 Royal Commission into Victoria’s Mental Health System, Interim Report, pp. 391–393.
4 Productivity Commission, Mental Health Inquiry Report, Volume 3, 2020, p. 1246.
5 Productivity Commission, Mental Health Inquiry Report, Volume 3, pp. 1244 and 1246.
6 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1246.
7 Australian Bureau of Statistics, 4159.0 General Social Survey: Summary Results, Australia, 2014, 2015, <www.abs.gov.
au/statistics/people/people-and-communities/general-social-survey-summary-results-australia/latest-release>,
[accessed 25 September 2020]; Australian Bureau of Statistics, 1370.0 Measures of Australia’s Progress, 2013, <www.
abs.gov.au/ausstats/[email protected]/Lookup/by%20Subject/1370.0~2013~Main%20Features~Homepage~1>, [accessed
25 September 2020].
8 Commonwealth Department of Infrastructure and Transport, State of Australian Cities, 2013, pp. 7–8 and 271–272.
9 Australian Council of Social Service, Inequality in Australia: A Nation Divided, 2015 Part 1: Income Inequality;
Australian Council of Social Service Part 2: Wealth Inequality; Vinson, Rawsthorne, Beavis and Ericson, Dropping
Off the Edge 2015: Persistent Communal Disadvantage in Australia, 2015, p. 11.
10 Department of Health and Human Services, Victoria’s 10–Year Mental Health Plan, 2015, p. 10; John Mendoza,
Kathleen Margaret Griffiths and Sebastian Pascal Rosenberg, Obsessive Hope Disorder: Reflections on 30 Years of
Mental Health Reform and Visions for the Future: Summary Report, 2013, p. 41; Witness Statement of Kym Peake, 24
July 2019, paras. 57 and 74; Victorian Auditor-General’s Office, Access to Mental Health Services, 2019, p. 8; Mercy
Mental Health, Submission to the RCVMHS: SUB.0002.0029.0267, 2019, p. 4; Witness Statement of Dr Neil Coventry,
28 June 2019, para. 118.
11 Witness Statement of Angus Clelland, 5 June 2020, paras. 15–20; Witness Statement of Associate Professor
Alessandra Radovini, 10 June 2020, para. 54; Witness Statement of Dr Hila Haskelberg, 13 July 2020, paras. 84 and
100; Witness Statement of Georgie Harman, 2 July 2020, para. 59; Witness Statement of Professor Mario Alvarez-
Jimenez, 10 June 2020, paras. 159 and 167.
12 Monash Sustainable Development Institute, Correspondence to the RCVMHS: CSP.0001.0102.0001, Final Outcomes
Report, 2020, pp. 13–14.
13 Monash Sustainable Development Institute, p. 14; Witness Statement of Dr Hila Haskelberg, para. 84.
14 Witness Statement of Angus Clelland, para. 143.
15 Witness Statement of Professor Ian Hickie AM, 11 August 2020, paras. 185–186; Witness Statement of Angus
Clelland, para. 14.
16 Monash Sustainable Development Institute, Monash University, Correspondence to the RCVMHS:
CSP.0001.0103.0001, A Primer Paper: Forces Shaping Victoria’s Mental Health System, 2020, pp. 20–21.
17 LaunchVic, About LaunchVic, <launchvic.org/about-launchvic>, [accessed 6 October 2020].
18 Better Care Victoria, Better Care Victoria Innovation Fund, <www.bettercare.vic.gov.au/our-work/innovation-fund>,
[accessed 6 October 2020].
19 Victorian Council of Social Service, Social Impact Bonds Briefing Paper, 2017, pp. 1–2.
20 Department of Treasury and Finance, Partnerships Addressing Disadvantage, <www.dtf.vic.gov.au/funds-
programs-and-policies/partnerships-addressing-disadvantage>, [accessed 3 March 2020]; Witness Statement of
Georgie Harman, 2020, para. 80.
21 Victorian Government, Victorian Budget 2020–21: Service Delivery: Budget Paper No. 3, 2020, p. 118.
22 Shubham Singhal and Stephanie Carlton, The Era of Exponential Improvement in Healthcare?, 2019, p. 4.
23 Fiona McKenzie and Mark Cabaj, Changing Systems, Power and Potential, 2020, p. 9.
24 Harvard Business Review, Disruptive Technologies: Catching the Wave, <hbr.org/1995/01/disruptive-technologies-
catching-the-wave>, [accessed 26 October 2020].
25 Australian Institute of Family Studies, Collective Impact: Evidence and Implications for Practice, <aifs.gov.au/
cfca/publications/collective-impact-evidence-and-implications-practice/what-collective-impact>, [accessed 20
October 2020].
26 Forbes, What Is A Startup?, <www.forbes.com/sites/natalierobehmed/2013/12/16/what-is-a-startup/>, [accessed
26 October 2020].
27 Productivity Commission, Draft Indigenous Evaluation Strategy, 2020, p. 5.
28 Monash Sustainable Development Institute, Monash University, p. 4.
29 Monash Sustainable Development Institute, Monash University, p. 26; Ministry of Health, Ontario, Ontario Health
Teams: Guidance for Health Care Providers and Organizations; K.A. Moat, K. Waddell and J.N. Lavis, RISE Brief 11:
Accountable-Care Organizations, 2019.
30 Ministry of Health, Ontario, p. 5.
183
Royal Commission into Victoria’s Mental Health System
184
Volume 5 Chapter 36: Research, innovation and system learning
67 Buenos Aires Times, Edmund Phelps: “It’s Important to Get a Debt Agreement That Is Feasible for Argentina”, <www.
batimes.com.ar/news/economy/edmund-phelps-its-important-to-get-a-debt-agreement-that-is-feasible-for-
argentina.phtml>, [accessed 6 October 2020].
68 Witness Statement of Associate Professor Jo-An Atkinson, para. 92; Witness Statement of Georgie Harman, 2020,
paras. 76 and 80.
69 Braithwaite and others, p. 883.
70 William D. Eggers and Mike Turley, The Future of Regulation: Principles for Regulating Emerging Technologies,
2018, pp. 9–10.
71 Eggers and Turley, p. 11.
72 RCVMHS, Innovation Roundtable: Record of Proceedings.
73 Witness Statement of Frank Quinlan, 25 May 2020, para. 39.
74 Witness Statement of Dr Hila Haskelberg, para. 79.
75 Witness Statement of Angus Clelland, para. 144.
76 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 393.
77 Translational Cancer Research Network, Translational Research—Defining the “T’s”, <www.tcrn.unsw.edu.au/
translational-research-definitions>, [accessed 6 October 2020].
78 Royal Commission into Victoria’s Mental Health System, Interim Report, pp. 392–394.
79 The Florey Institute of Neuroscience and Mental Health, Submission to the RCVMHS: SUB.0002.0029.0209, 2019, pp.
5–6; Dana-Farber Cancer Institute, Basic, Clinical and Translational Research: What’s the Difference?, <blog.dana-
farber.org/insight/2017/12/basic-clinical-translational-research-whats-difference/>, [accessed 6 October 2020].
80 RCVMHS, Innovation Roundtable: Record of Proceedings.
81 Witness Statement of Mary-Ann O’Loughlin AM, 28 July 2020, para. 58.
82 RCVMHS, Innovation Roundtable: Record of Proceedings.
83 Australian Evaluation Society, Talking About Evaluation, <aes.asn.au/talking-about-evaluation>, [accessed
12 October 2020].
84 Department of Treasury and Finance, Performance Management Framework: For Victorian Government
Departments March 2016, 2017, p. 32; Australian Psychological Society, Submission to the RCVMHS:
SUB.0002.0029.0349, 2019, p. 77.
85 Department of Treasury and Finance, Performance Management Framework: For Victorian Government
Departments March 2016, p. 37.
86 Department of Health and Human Services, Victorian Health Services Performance Monitoring Framework
2019–20, 2019, p. 28.
87 Catherine Althaus, Peter Bridgman and Glyn Davis, Chapter 11: Evaluation, in The Australian Policy Handbook:
A Practical Guide to the Policy-Making Process, 6th Edition (Allen and Unwin Academic, 2017), pp. 200–214 (p. 201).
88 Witness Statement of Professor David Castle, 29 May 2020, para. 62.
89 Althaus, Bridgman and Davis, p. 209.
90 Department of Treasury and Finance, Performance Management Framework: For Victorian Government
Departments March 2016, p. 32.
91 Mental Health Victoria and Mental Health Legal Centre, Submission to the RCVMHS: SUB.0002.0029.0006,
2019, p. 31; Mental Health Victoria and Victorian Healthcare Association, Submission to the RCVMHS:
SUB.0002.0029.0005, 2019, p. 55.
92 Witness Statement of Vrinda Edan, 10 July 2019, para. 33; Victorian Council of Social Service, Submission to the
RCVMHS: SUB.0002.0029.0282, 2019, p. 20.
93 Witness Statement of Robyn Kruk AO, 4 May 2020, para. 29.
94 Althaus, Bridgman and Davis, p. 212.
95 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1239.
96 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1236.
97 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1236.
98 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1237.
99 Productivity Commission, Mental Health Inquiry Report, Volume 3, pp. 1131 and 1234.
100 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1123.
101 RCVMHS, Allied Health Workforce Human-Centred Design Focus Group: Record of Proceedings, 2020; RCVMHS,
Nurses Workforce Human-Centred Design Focus Group: Record of Proceedings, 2020; ORIMA Research, Mental
Health Workforce Survey, 2020, pp. 8, 24–28 and 67.
102 Bianca Albers, Mary Abdo and Robyn Mildon, Implementing the Commission’s Recommendations: Prepared by the
Centre for Evidence and Implementation for the Royal Commission into Victoria’s Mental Health System, 2020, pp. 7–8.
185
Royal Commission into Victoria’s Mental Health System
103 Witness Statement of Professor Alexander McFarlane AO, 14 May 2020, para. 107.
104 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 393; Victorian Government, Healthier
Lives, Stronger Economy: Victoria’s Health and Medical Research Strategy 2016–2020, p. 5; Orygen, The National
Centre of Excellence in Youth Mental Health, Submission to the RCVMHS: SUB.2000.0001.0741, 2019, pp. 16 and 46;
The Florey Institute of Neuroscience and Mental Health, p. 4.
105 Royal Commission into Victoria’s Mental Health System, Interim Report, pp. 400, 407 and 411.
106 Public Health and Wellbeing Act 2008 (Vic) sec. 5; Department of Health and Human Services, Victorian Health Services
Performance Monitoring Framework 2019–20, p. 4; Witness Statement of Kym Peake, 2019, paras. 224.4 and 229.5.
107 18 per cent of Victoria’s start-up firms operating in 2020 are health-focused, indicating that entrepreneurial
interest is consolidating in the sector. LaunchVic, Victorian Start-up Ecosystem Mapping, 2020, p. 17.
108 Royal Commission into Victoria’s Mental Health System, Interim Report, p.403.
109 Alfred Health, Submission to the RCVMHS: SUB.0002.0028.0157, 2019, p. 17.
110 Witness Statement of Professor Robert Thomas OAM, 12 May 2020, para. 16.
111 Nev Jones, Louise Byrne and Sarah Carr, ‘If Not Now, When? COVID-19, Lived Experience, and a Moment for Real
Change’, The Lancet Psychiatry, 2020, 1–2 (p. 1); Witness Statement of Cath Roper, para. 17.
112 RCVMHS, Consumer Foundations Working Group, 14 August 2020: Record of Proceedings, 2020.
113 Witness Statement of Cath Roper, para. 42.
114 Witness Statement of Cath Roper, paras. 21 and 31.
115 Consumer Foundations Working Group, Correspondence to the RCVMHS: Consumer Leadership and Mobilisation,
2020, p. 25.
116 Witness Statement of Indigo Daya, 12 May 2020, para. 106.
117 Future Generation, Australia’s Mental Health Crisis: Why Private Funders Are Not Answering the Call, 2019, p. 13;
Witness Statement of Associate Professor Jo-An Atkinson, paras. 92–93.
118 Witness Statement of Associate Professor Jo-An Atkinson, para. 93.
119 RCVMHS, Innovation Roundtable: Record of Proceedings.
120 RCVMHS, Innovation Roundtable: Record of Proceedings.
121 Witness Statement of Professor Ian Hickie AM, para. 180.
122 Department of Human Services, Policy Framework: Clinical Academic Positions and Activity 2004–09, 2004, <www.
yumpu.com/en/document/read/9047501/policy-framework-clinical-academic-positions-and-activity-2004>,
[accessed 26 October 2020].
123 Orygen, The National Centre of Excellence in Youth Mental Health and Brown, p. 47.
124 Witness Statement of Professor Suresh Sundram, 19 May 2020, paras. 176–179.
125 Department of Human Services, p. 5; Dr Louise Byrne, Promoting Lived Experience Perspective: Discussion Paper
Prepared for the Queensland Mental Health Commission, p. 5.
126 Witness Statement of Matt Jones, 29 July 2020, para. 28; Witness Statement of Frank Quinlan, para. 39; Witness
Statement of Professor Graham Meadows, 26 June 2020, para. 84.
127 Association of Australian Medical Research Institutes, Submission to the Productivity Commission Inquiry into
Mental Health, 2019, p. 43.
128 Prevention United, Submission to the RCVMHS: SUB.0002.0028.0412, 2019, p. 11.
129 Orygen, The National Centre of Excellence in Youth Mental Health, p. 47; Monash Health, Submission to the
RCVMHS: SUB.7000.0003.0001, 2019, pp. 65–66.
130 Philip J Batterham and others, ‘NHMRC Funding of Mental Health Research’, Medical Journal of Australia, 205.8,
2016, 348–349, (p.348); Witness Statement of The Hon. Robert Knowles AO, 16 July 2019, para. 30.
131 Australian Institute of Health and Welfare, Mental Health Services in Australia: Expenditure on Mental Health
Services 2016–17, EXP.31; Australian Government Department of Health, Cancer Fact Sheet, 9 July 2018, <www1.
health.gov.au/internet/main/publishing.nsf/Content/A091E85A15E4F93DCA25814E0005C8EE/$File/20180709%20
Cancer%20Fact%20Sheet.pdf> [accessed 22 January 2021].
132 National Health and Medical Research Council, Research Funding Statistics and Data, <www.nhmrc.gov.au/
funding/data-research/research-funding-statistics-and-data>, [accessed 7 November 2019]; Productivity
Commission, Mental Health Inquiry Report, Volume 3, p. 1242.
133 Future Generation, p. 21.
134 Future Generation, p. 24.
135 Orygen, The National Centre of Excellence in Youth Mental Health, pp. 46–47.
136 The University of Melbourne, Submission to the RCVMHS: SUB.0002.0029.0263, 2019, p. 6; Witness Statement of Dr
Gerard Naughtin, 24 July 2019, para. 17; Mental Health Victoria and Victorian Healthcare Association, p. 5.
186
Volume 5 Chapter 36: Research, innovation and system learning
137 Productivity Commission, Mental Health Inquiry Report, Volume 3, pp. 1242–1243; National Health and Medical
Research Council, Research Funding Statistics and Data, <www.nhmrc.gov.au/funding/data-research/research-
funding-statistics-and-data>, [accessed 7 November 2019].
138 Witness Statement of Professor Patrick McGorry AO, 2 July 2019, paras. 15 and 34; The University of Melbourne, p. 6;
Orygen, The National Centre of Excellence in Youth Mental Health, pp. 46–47.
139 Evidence of Professor Patrick McGorry AO, 5 July 2019, pp. 333–334.
140 Brianna Jade Chesser, Criminal Courts and Mental Illness: The Emergence of Specialist Problem Solving Courts in
Australia (Thomson Reuters (Professional) Australia Limited, 2016), pp. 25–26.
141 Professor Arthur Christopoulos, Faculty of Pharmacy and Pharmaceutical Sciences, Monash University,
Correspondence to the RCVMHS: CSP.0001.0131.0001, 2020.
142 Evidence of Professor Patrick McGorry AO, p. 334.
143 St Vincent’s Hospital Melbourne, Submission to the RCVMHS: SUB.0002.0030.0106, 2019, p. 18; Joseph Firth and
others, ‘The Lancet Psychiatry Commission: A Blueprint for Protecting Physical Health in People with Mental Illness’,
The Lancet Psychiatry, 6 (2019), 675–712 (p. 685).
144 Witness Statement of Dr Neil Coventry, 29 July 2020, para. 363(e).
145 Mental Health Complaints Commissioner, Submission to the RCVMHS: SUB.4000.0001.0179, 2019, p. 25.
146 Mental Health Complaints Commissioner, p. 34.
147 Mental Health Complaints Commissioner, pp. 17 and 64; Lisa Brophy and others, People Making Choices: The Support
Needs and Preferences of People with Psychosocial Disability (Mind, 2014), p. 29; Firth and others, pp. 1 and 12–13.
148 Dr Stuart Thomas, Kaisha Corkery-Lavender, Dr Michael Daffern and Dr Danny Sullivan, Centre for Forensic
Behavioural Science, School of Psychology & Psychiatry, Monash University, Disability, Mental Health and
Medication: Implications for Practice and Policy, 2010, p. 7.
149 Mental Health Complaints Commissioner, p. 49.
150 Association of Counselling Psychologists, Submission to the Productivity Commission Inquiry into Mental Health,
2019, p. 6.
151 Andrea Cipriani and others, ‘Comparative Efficacy and Acceptability of 21 Antidepressant Drugs for the Acute
Treatment of Adults with Major Depressive Disorder: A Systematic Review and Network Meta-Analysis’, The Lancet,
391, 2018, 1357–1366 (p. 1358).
152 John Ioannidis, ‘Effectiveness of Antidepressants: An Evidence Myth Constructed from a Thousand Randomized
Trials?’, Philosophy, Ethics, and Humanities in Medicine, 3:14, 2008, 1–9 (p. 1).
153 Pat Bracken and others, ‘Psychiatry beyond the Current Paradigm’, British Journal of Psychiatry, 201.6, (2012),
430–434 (p. 432).
154 Paul J Harrison, ‘Recent Genetic Findings in Schizophrenia and Their Therapeutic Relevance’, Journal of
Psychopharmacology, 29.2, (2015), 85–96 (p. 92).
155 Productivity Commission, Mental Health Inquiry Report, Volume 1, 2020, p. 38.
156 Centre for Mental Health, Swinburne University of Technology, Submission to the RCVMHS: SUB.0002.0030.0009,
2019, p. 5; The Florey Institute of Neuroscience and Mental Health, p. 5.
157 The Florey Institute of Neuroscience and Mental Health, p. 5.
158 Witness Statement of Professor Shitij Kapur, 8 May 2020, para. 50.
159 Productivity Commission, Mental Health Inquiry Report, Volume 3, pp. 1242–1243.
160 Royal Commission into Victoria’s Mental Health System, Interim Report, p.476; Evidence of Dr Graham Gee, 16
July 2019, p. 1120; NorthWestern Mental Health (A Division of Melbourne Health), Submission to the RCVMHS:
SUB.0002.0030.0061, 2019, p. 6.
161 Productivity Commission, Mental Health Inquiry Report, Volume 3, p. 1233.
162 Australian Psychological Society, pp. 76–77.
163 Foundation House, Submission to the RCVMHS: SUB.1000.0001.0868, 2019, p. 39.
164 Witness Statement of Matt Jones, para. 28; Witness Statement of Frank Quinlan, para. 39; Witness Statement of
Professor Graham Meadows, para. 84.
165 Witness Statement of Honor Eastly, 14 September 2020, para. 63b.
166 RCVMHS, Innovation Roundtable: Record of Proceedings.
167 Witness Statement of Graham Panther, 6 July 2020, paras. 170–171.
168 Witness Statement of Dr Hila Haskelberg, para. 77.
169 Witness Statement of Georgie Harman, 2020, para. 80.
170 RCVMHS, Innovation Roundtable: Record of Proceedings.
171 Witness Statement of Professor Lisa Brophy, 29 April 2020, para. 35.
172 RCVMHS, Innovation Roundtable: Record of Proceedings; Witness Statement of Alan Woodward, 18 July 2019, para. 39.
187
Royal Commission into Victoria’s Mental Health System
188
Volume 5 Chapter 36: Research, innovation and system learning
189
Royal Commission into Victoria’s Mental Health System
190
Volume 5 Chapter 36: Research, innovation and system learning
273 Witness Statement of Professor Patrick McGorry AO, 2019, para. 11; Witness Statement of Professor Lisa Brophy,
para. 97; David Castle and others, Submission to the RCVMHS: SUB.0002.0002.0118, 2019, p. 3; National Institute
for Health and Care Excellence, United Kingdom, Rehabilitation for Adults with Complex Psychosis (NG181):
NICE Guideline, 2020, pp. 46–49; Carol Harvey and others, Models of Care for Victorians Living with Severe and
Persistent Mental Illness and Complex Multiagency Needs: Literature Review and Key Reform Considerations.
Report Prepared for the Royal Commission into Victoria’s Mental Health System by the University of Melbourne,
2020, p. 6; E Sally Rogers, ‘Recovery-Oriented Practices Need Innovative Research’, The Lancet Psychiatry, 6.2,
(2019), 82–83 (p. 82).
191
Royal Commission into Victoria’s Mental Health System
192
Volume 5 Chapter 37: Implementation
Chapter 37
Implementation
193
Royal Commission into Victoria’s Mental Health System
194
Volume 5 Chapter 37: Implementation
During the two years of its operation, the Commission engaged widely with the community,
collected a wealth of knowledge and evidence and undertook a comprehensive systems
design process to set the reform agenda. Collectively, the recommendations contained in this
report present the Commission’s aspirations for a reimagined and compassionate mental
health and wellbeing system.
While much has already been done, and the foundations for reform are set, considerable
work lies ahead to realise the Commission’s ambitions. Promisingly, the Commission has
observed an encouraging level of public discourse, community‑wide interest and open
communication about mental health and wellbeing. The Commission’s inquiry benefited
enormously from this collective momentum, which must now be harnessed to support
implementation efforts.
The recommendations made in the Commission’s interim report are currently being
implemented. Those reforms focused on responding to pressing challenges within the system
and preparing for the extensive changes to come.1 This report puts forward the Commission’s
final directions on how to transform the mental health system so that all Victorians ‘can
experience their best mental health, now and into the future’.2
Although this report is a major milestone, it is only the start of the reform process. The
Commission has created a plan of action—however, ‘a strategy is only as good as its
execution’.3 Putting the Commission’s ambitious reform agenda into practice is what will
make the hopes held by many in the Victorian community become a reality. Implementation
is not about repeating the work of the Commission or revisiting its decisions; it is about taking
definitive action and fulfilling the solutions presented in this report.4
If history is any indication, reform will not be easy. Despite best endeavours, previous efforts
to redesign the mental health system in Victoria, and across Australia more broadly, have not
been realised.5 As a result, the state’s mental health system has catastrophically failed to live
up to expectations and is unprepared for current and future challenges.6 This persistent gap
between the rhetoric of past inquiries and the reality for people living with mental illness or
psychological distress, families, carers and supporters as well as the mental health workforce,
has been described by some as devastating.7
The Victorian Mental Illness Awareness Council articulated its hopes that implementation of
the Commission’s recommendations will be different:
The Commission agrees with this sentiment—that this time, the results must lead to
transformational change.
195
Royal Commission into Victoria’s Mental Health System
Implementation, however, is rarely a straightforward activity. Many service systems, not just
mental health systems, have faced challenges in implementing inquiry recommendations.9
Evidence from past reviews suggests that a substantial number of recommended actions
or programs are never implemented.10 The factors that hamper implementation efforts are
complex, but failures in implementation may be attributed in part to a lack of preparedness,
loss of momentum due to changes in leadership, shifting policy agendas or insufficient
funding, people and expertise.11
Reforming Victoria’s mental health system brings its own unique challenges. One factor
contributing to this is the lack of priority given to the mental health system over the years,
partly fuelled by stigma and discrimination.12 The system’s many intersections with other
health, justice and social supports services, including, for example, physical health, alcohol
and other drug services and housing, is another. Now, the COVID‑19 pandemic and its
far‑reaching impacts have combined with these historical factors, further affecting the
process of reform.
Despite this, it is imperative to get implementation right. Witnesses Mary Corbett and her
brother and carer Jacob Corbett expressed what this would look like for them:
change that comes as result of the Royal Commission needs to be felt mainly at the
patient/consumer level—the level where people enter the mental health system and are
treated and discharged. There is no point doing a good analysis and good report, if it
does not effect change at the ground level; it becomes only a bureaucratic shuffle.13
Delivering on these aspirations requires strong leadership across the Victorian Government,
the workforce, service providers and, importantly, from people with lived experience of mental
illness or psychological distress, families, carers and supporters. Leaders must be equipped
with the knowledge, skills and attributes—with their development supported—to lead and
push change forward. Those already working in the system must be supported to engage
with and enable the reform process. Deliberate and sustained collaboration from all levels
of government, related systems and the Victorian community is also required. While there is
much at stake, all those involved in implementing the Commission’s recommendations must
rise to the challenge and work together to build a new mental health and wellbeing system.
There will be obstacles along the way. Ensuring all partners in delivering this reform
remain connected and committed to the change process will be imperative to success.
The Commission has presented a clear and compelling vision for profound change that
incorporates ways of maintaining these connections.
Implementing the reforms effectively will also require learning from past experiences,
including identifying and preventing unintended consequences and developing new ways of
thinking and doing. Some research encourages learning from the past as a means to prepare
for effective change in the future:
The incremental, incomplete and inconsistent approach to mental health reform over
the past twenty years is demonstrably inadequate and unaffordable for the challenges
now confronting our nation.
We can and must do better. To do better we have to accept the baggage from the
past, identify the barriers to reform and map out strategies for change based on these
experiences and those from overseas.14
196
Volume 5 Chapter 37: Implementation
Establishing the foundational structures that will promote and enable large‑scale change
will not be a straightforward or sequential process; it will be dynamic and evolving, with many
reforms occurring in parallel. The Victorian Government will need to actively manage this
process, helping implementers to stay the course.
To achieve substantial policy change, royal commissions may need to adopt effective
‘influencing strategies’, involving problem framing, coalition building, and making
recommendations that are implementable.16 In this respect, the Commission has sought to
frame the narrative around the challenges facing the mental health system, made efforts
to strengthen the consensus for change and tested ideas for reform and implementation
with a wide range of actors. In line with its letters patent, it has also endeavoured to make
recommendations ‘to achieve practical, prioritised, efficient and sustainable outcomes’17 to
improve the lives of people living with mental illness or psychological distress, families, carers
and supporters.
In its recommendations, the Commission has expressed its hopes for a reimagined
mental health and wellbeing system and suggested how to implement reforms to achieve
these aspirations. This chapter takes a broad view. It aims to help prepare the Victorian
Government and all partners involved in implementation for success by exploring the
requirements needed for enduring and profound change across Victoria’s mental health
system—as well as potential pitfalls. This chapter therefore complements the Commission’s
recommendations and chapters in both its interim and final reports, and should be read
alongside them.
197
Royal Commission into Victoria’s Mental Health System
How to deliver the reimagined mental health and wellbeing system is a fundamental
consideration. Informed by evidence collected throughout the course of its inquiry, the
Commission has chosen to share its reflections on several key requirements for successful
implementation, with a view to assisting with implementation efforts. These reflections are
outlined below.
The Commission has set out the structure of its report to cover the essential features of a
reformed mental health and wellbeing system:
• Volume 1 sets out the Commission’s vision for a responsive and integrated system that
centres on a community‑based model of care that provides people with dependable
access to services when and where it would make the most difference to them.
198
Volume 5 Chapter 37: Implementation
The Commission’s reform approach is not about making isolated improvements. It seeks
to build a new system to meet the evolving needs and expectations of individuals and
communities now and into the future. Delivering this transformational change requires that
all recommendations established in this report are read collectively. Implementers must take
a long and broad view to understand how all the components of the redesigned system fit
together and reinforce each other.
The momentum for change generated by this report, and the reforms to come, will be
substantial. But this ambition relies on the continued prioritisation of good mental health and
wellbeing. In particular, it depends on a future in which good mental health and wellbeing is
rightly recognised as a fundamental tenet of a well‑functioning and compassionate society.
At the time of finalising this report, there is an encouraging level of support across the
Victorian and Commonwealth governments for change. The Commission recognises, however,
that changes to government leadership, competing priorities and a reluctance to commit to
long‑term reform are all potential barriers to the enduring success of its agenda.19
As explored throughout this report, mental health has been a low priority of successive
governments and the community.
Community attitudes towards people living with mental illness or psychological distress
have influenced funding decisions, detracting from investment in mental health.20 This lack
of prioritisation may have also been influenced by competing advocacy priorities, making
it difficult for governments to work out where the priority for reform lies and diminishing
accountability.21 As Professor Bruce Bonyhady AM, Executive Chair of the Melbourne Disability
Institute at the University of Melbourne, stated in a personal capacity:
Based on my own observation, the mental health sector has been deeply divided along
clinical mental health and community mental health lines. There has been conflict
and envy between these groups regarding who should receive funding—and at times
this has led them to undermine each other’s claims and this has made it easy for
governments to ignore both.22
199
Royal Commission into Victoria’s Mental Health System
Ensuring mental health is a priority, and that there is a shared and clear vision for the future
at all levels of government decision making, will be critical to successfully implementing
the Commission’s recommendations. This will be particularly important in light of the many
reviews and planned reforms that are underway across comparable systems such as the
aged care and disability sectors. Maintaining a genuine commitment at the highest political
spheres at the local, state and national levels will be integral to achieving long‑lasting and
successful reform. As discussed in Chapter 29: Encouraging partnerships, governance
arrangements between the Commonwealth and state governments have recently evolved,
with decision making now occurring through the newly established National Cabinet Reform
Committee. These new arrangements have the advantage of streamlining decision making,23
yet the Commission holds concerns that these structures may limit the influence of the
Victorian Government and indeed other states and territories in progressing an ambitious
mental health and wellbeing agenda. It will therefore be vital that the Victorian Government
works closely with the Commonwealth Government and the National Cabinet Reform
Committee to ensure mental health and wellbeing remains a priority.
Mental health used to be deemed to be ‘above politics’ but it seems to have become
increasingly politicised with successive governments wanting to make their mark.
This is not good for system development, the clinical workforce and the end users. The
government must be bipartisan in relation to mental health as it was in the 1990s and
has to be for many years, as the challenges in the system cannot be overcome in a single
term of government or by switching between partisan policies.26
In some ways, the COVID‑19 pandemic has strengthened collaborative approaches to reform,
demonstrating the value of bipartisanship between levels of government. The Commission
hopes these efforts continue and that they may sustain momentum for reform as the mental
health system is reshaped. The Hon. Julia Gillard AC, Chair of Beyond Blue, noted the benefits
of bipartisanship during times of significant change, ‘[t]he collaborative, bipartisan response
to the mental health challenges posed by this crisis has been swift and decisive and reminds
us of what we can achieve by working together.’27
Professor Rob Moodie, Deputy Head of School and Professor of Public Health at the University
of Melbourne, shared similar thoughts:
If you can forge bipartisanship, then you can generally forge more effective
interventions. Those interventions are the responsibility of government. For example,
in the case of COVID‑19, we have seen significant bipartisan interventions around
controlling COVID‑19 and stimulating the economy.28
200
Volume 5 Chapter 37: Implementation
The attitudes and perceptions of the community also play an important role, given ‘the public
hold[s] the key to transformational change’.29
When there is strong community support for recommendations, this can help overcome
objections in other sections of the community and give government ‘licence’ to implement
difficult changes.30 This has been demonstrated with successful reforms in the past. For
example, while Medicare was originally met with mixed reviews, those opposed to its
introduction were persuaded in part by strong community support for universal access to
health care.31
Professor David Copolov AO, Professor of Psychiatry and Pro Vice Chancellor of Major
Campuses and Student Engagement at Monash University, shared similar observations,
reflecting on lessons from the National Disability Insurance Scheme:
In particular, the early history of the [National Disability Insurance Scheme] teaches us
that we need … recognition that we cannot expect politicians to support reforms unless
there is already clear, visible and unified community support ...32
There is such evidence of strong community support for the types of changes the
Commission is recommending. There is certainly much more public conversation about and
interest in mental health and wellbeing. The work of this Commission, alongside national
efforts for reform—including the Productivity Commission’s Mental Health Inquiry Report
and the work of the Prime Minister’s Suicide Prevention Adviser—have contributed to this.
This heightened level of community awareness presents a unique opportunity that must be
capitalised on to achieve momentum in implementation.
The community’s interest in and connection to reform will also shore up continued efforts to
raise awareness of mental health and wellbeing and to tackle the stigma and discrimination
associated with poor mental health and mental illness, and should therefore be harnessed.
Indeed, those implementing the reforms must bring the Victorian community with them.
Being clear about the broad vision and principles underpinning reform, and ensuring they
resonate with the public, will help with this.33 As Ms Kym Peake, the former Secretary of the
then Department of Health and Human Services, said:
As a starting point, implementers should draw inspiration from the Commission’s guiding
principles (refer to Figure 37.1), which outline the Commission’s aspirations for a reformed
mental health and wellbeing system. They should build on these principles to convey to the
public the vision and direction for the change ahead in an open and clear way. Implementers
also need to offer the public opportunities to genuinely engage and participate in reform.
201
Royal Commission into Victoria’s Mental Health System
Figure 37.1: The Commission’s guiding principles for a future mental health and wellbeing system
Note: These principles are in large part based on the many contributions made to the Commission, as well as relevant
international documents such as the United Nations’ Convention on the Rights of Persons with Disabilities, the
World Health Organization’s publications on mental health (including its 2014 report with the Calouste Gulbenkian
Foundation on the social determinants of mental health) and legislation such as the Commonwealth Government’s
Carers Recognition Act 2010.
202
Volume 5 Chapter 37: Implementation
As highlighted in the Commission’s interim report and described in Figure 37.2, there are five
different but equally important leadership types that are essential to a reformed mental health
and wellbeing system: policy and system stewardship; organisational leadership; clinical and
academic leadership; operational leadership; and emerging leaders across all areas.37
Figure 37.2: Leadership types across the new mental health and wellbeing system
Dispersed leadership across organisations, services, disciplines and locations will pave the
way for collaboration and collective learning opportunities. It will also embed consistency and
accountability, ensuring there is always someone responsible for reform. This will mitigate the
risk of leadership turnover, ensuring reform momentum is not lost with changes in personnel.38
203
Royal Commission into Victoria’s Mental Health System
The type of collaborative leadership required to transform Victoria’s mental health system
is different from traditional hierarchical leadership; it guides rather than controls and
inspires rather than directs.39 Other leadership theories are continuing to emerge. Ensemble
leadership theory, for example, describes leadership from an Indigenous world view that is:
collective rather than individual; dynamic, rather than static; based on a social structure that
is fluid and flexible; and encompasses multiple intersecting hierarchies.40
In its evaluation of the factors that contribute to successful implementation, the Parenting
Research Centre reflected on the importance of strong unified leadership in driving broader
organisational change:
Reform may be impeded where agencies or departments are not open to new practices
or agendas. This can be perpetuated by organisational leaders entrenched in the old
culture. By contrast, new leadership may scrutinise the situation from an external
standpoint and accommodate change. This needs to be matched with retaining
expertise and corporate memory in the organisation. Either way, it can be argued
that senior management needs to be united in its commitment to change, and middle
management needs to directly manage cultural change as its leadership shapes
organisational behaviour.42
All leaders involved in the change process must be empowered to make decisions and
take risks, with an eagerness to learn and collaborate and share their knowledge and
power.43 These traits must be complemented by strong systems knowledge and the skills
and capabilities to lead and drive change. Passion and belief in the change process have
also been identified as integral to effective leadership.44 Providing evidence in a personal
capacity, Associate Professor Simon Stafrace, Chief Adviser of Mental Health Reform Victoria,
described some of the distinguishing features of effective leadership:
If the goal of mental health reform is to transform Victoria’s mental health system into
a public asset valued by the community, then leadership will be the key activity through
which this will be delivered. And if located at its heart is a capacity for driving change,
then the distinguishing features of effective leadership must surely be an ability to see
the world from multiple perspectives, a vision for what might be possible, an openness to
learning, and the courage to fail.45
It is therefore essential that all new and emerging leaders involved in reform are supported
to develop and maintain the core attributes, skills, system knowledge and competencies
required. They must also be enabled to make decisions and continue to develop and improve
by learning from previous experiences.
204
Volume 5 Chapter 37: Implementation
Alongside these reforms, the Commission has made several recommendations to strengthen
the leadership of people with lived experience of mental illness or psychological distress,
families, carers and supporters across the reimagined mental health and wellbeing system.
In addition to these roles, it is imperative that the Victorian Government continue efforts to
identify and develop key lived experience leadership roles as new and emerging opportunities
and challenges arise throughout implementation. For this to occur, implementers must make
proactive efforts to dismantle the power imbalances that are inhibiting people with lived
experience of mental illness or psychological distress from leading and influencing change.
Strategies for distributing power more evenly across the reimagined mental health and
wellbeing system are discussed in Chapter 18: The leadership of people with lived experience
of mental illness or psychological distress. Co‑production is one example of how power can
be shared more evenly. This is discussed more in the following section.
Continued efforts must be made to strengthen, sustain and empower leaders across different
places and positions in the sector. Nurturing and developing the skills and capabilities of
leaders so they can thrive and champion reform will support this. Supports should reflect the
needs and strengths of individuals and organisations but may include providing mentorship
and opportunities to gain technical skills, as well as role‑sharing arrangements, executive
coaching, training and professional development.47 Leaders must also be encouraged to take
risks, with the opportunity to learn from their experiences and continue to adapt and evolve
their approach throughout the reform process.
Leadership must stem from within the sector, noting that leadership from the Victorian
Government alone will not be enough to drive reform. For example, fostering the leadership
capabilities of advocacy organisations and peak bodies, including the Victorian Mental Illness
Awareness Council and Tandem, will be crucial. These organisations play a pivotal role in
supporting individuals and other organisations to engage, advocate and implement reform.
Through times of major change, these organisations will be an important source of guidance
and support. It is likely that their role will also intensify as government and implementers
look to partner with them to harness their expertise and relationships across the sector.
The Commission encourages the Victorian Government to support these organisations
through adequate and stable resourcing, tailored supports and opportunities for professional
development and training.
Redesigning Victoria’s mental health system must involve meaningful partnerships with
people with lived experience of mental illness or psychological distress, families, carers
and supporters. It is only through this process that the ambitions of the Commission’s
recommendations will be realised. As Ms Janet Meagher AM, an advocate for people with
lived experience of mental illness, stated, ‘[t]he mental health system can only assist people
to live contributing lives when the principles of involvement, genuine partnership and
empowerment are central to its operation.’48
205
Royal Commission into Victoria’s Mental Health System
In order to strengthen service improvement and ensure that services are designed
in a way that genuinely meets the needs of consumers and their families and carers,
organisations need to engage in co‑production. Co‑production includes consumers
being a central part of the co‑planning, co‑design, co‑delivery and co‑evaluation
of service improvement activities. Co‑production processes should include genuine
opportunities for consumers to feel heard as equals, and opportunities for organisations
to reflect upon the power held by them and by clinical professions.49
As described in Figure 37.3, co‑production involves people with lived experience of mental
illness or psychological distress leading or partnering across all aspects of an initiative
or program from the outset—that is, co‑planning, co‑designing, co‑delivering and
co‑evaluating. Each of these phases can stand alone as a collaborative activity in and of
itself, but taken together they represent true co‑production.50
Source: Cath Roper, Flick Grey and Emma Cadogan, Co-Production: Putting Principles into Practice in Mental Health
Contexts, 2018, p.2.
206
Volume 5 Chapter 37: Implementation
Co‑production involves equal partnerships between those involved in the project or initiative,
allowing for negotiation and compromise.51 Co‑production is different from other partnership
approaches because it values the expertise and knowledge of those most affected by the
problem and actively responds to power differentials within partnerships. In light of the
power imbalances that permeate the current system, co‑production cannot occur without
leadership from people with lived experience of mental illness or psychological distress,
with real opportunities and supports for these roles to flourish.52 As described in Chapter 18:
The leadership of people with lived experience of mental illness or psychological distress,
advisory groups with limited influence will not be able to deliver on this ambition. Elevating
the leadership of people with lived experience of mental illness or psychological distress
requires that they have decision‑making authority, with influence over policy and resourcing
decisions.53
There are great benefits in co‑producing the planning, design, delivery and evaluation
of reform initiatives so they are based on people’s lived knowledge, values, needs and
preferences. These include improved outcomes and experiences for individuals as well as
increased capacity and impact of services, and return on investment.54 Yet, as explored
throughout this report, co‑production is often poorly understood. There are tokenistic
approaches to participation, meaning that many of the benefits of co‑production
are missed.55
Instead what often happens is that agenda, budget and timelines are set up without
consumer involvement and half way through the project consumers will be consulted
but only in a very limited way (often citing budgetary and time constraints). The
consultation will often occur in a very superficial way such as with respect to the colours
of a building or the name of a service.56
Dr Melissa Petrakis, Chair of Tandem, shared similar thoughts when providing evidence to the
Commission in a personal capacity:
[Consumer, carer and family workers] are expected to provide ‘the’ consumer or carer
perspective when asked, as if there is only one and as though representativeness
can be delivered without time to consult others with lived experience about the
matter at hand.57
The Commission undertook a range of activities with people with lived experience of
mental illness or psychological distress, families, carers and supporters to understand
their experiences and to design a system that reflects their needs and perspectives. The
Commission has also engaged widely across the Victorian community, drawing on the
expertise, experiences and perspectives of many to inform its recommendations. It is
imperative that implementers do not repeat the consultative work of the Commission or
revisit the decisions behind its reform agenda. To do so would be a disservice to those who
have generously shared their experiences, analysis and ideas for reform with the Commission.
Implementers must not delay; they must start building on the work of the Commission,
focusing their efforts on implementing the solutions in this report. The time for action is now.
207
Royal Commission into Victoria’s Mental Health System
the nature of co‑design and co‑production is that you work with people as partners, to
understand what the problem is to design a solution to deliver and implement it. But the
Royal Commission has been doing the work of understanding the problem, and also the
beginning of designing solutions.59
The Commission has included guidance and recommendations throughout this report to
support implementers to partner with people in this way. In addition to this guidance, there
are other important factors that should be considered.
Importantly, people with lived experience of mental illness or psychological distress and
families, carers and supporters must be recognised as two distinct groups with different sets
of experiences, perspectives and expertise. While at times these groups may have shared
interests, they speak from their own perspectives and experiences and at times may have
different views.60 Approaches to partnering with these two groups must therefore be designed
to account for these varied perspectives and experiences. To this end, there are times where
the Commission has provided specific guidance to implementers on which group to partner
with. For example, in Chapter 19: Valuing and supporting families, carers and supporters,
family and carer‑led centres will be developed in partnership with families and carers.
Similarly, as described in Chapter 18: The leadership of people with lived experience of mental
illness or psychological distress, a new agency to help the emergence of organisations led by
people with lived experience of mental illness or psychological distress will be implemented in
co‑production with people with lived experience of mental illness or psychological distress.
It is important that implementers are honest and transparent about the level and types
of participation they intend to use from the outset, including establishing clear roles and
responsibilities and expectations about the process ahead.61 This is critical to accountability,
building trust, managing expectations and to the integrity of the implementation processes.
As Ms Cath Roper, Consumer Academic with the Centre for Psychiatric Nursing at the
University of Melbourne, advised:
Full co‑production and other partnering approaches take time and resources. Implementers
should therefore ensure project and strategic planning efforts build in enough time to
support these approaches. Implementers must plan effectively across the various stages of a
project or initiative including factoring in the costs of remuneration and reimbursement.63
208
Volume 5 Chapter 37: Implementation
This will ensure approaches to co‑production and partnering with people with lived
experience are authentic and avoid the risk of being sidelined by budget and time
constraints. With sound planning, there should always be a capacity to meaningfully partner
with people with lived experience of mental illness or psychological distress and families,
carers and supporters.
Approaches to partnering with people with lived experience of mental illness or psychological
distress and families, carers and supporters must also be relevant and fit for purpose.
Implementers should think about who to engage with, ensuring a diversity of perspectives
that are relevant to the context and purpose. This includes engaging with people who may
not have been heard before. Different people may also be required to participate at various
stages of the project or initiative.64 In a 2020 article published in the International Journal
of Mental Health Nursing, staff from the Centre for Psychiatric Nursing at the University of
Melbourne advised that partnering with people with lived experience of mental illness or
psychological distress can be supported by:
Importantly, power differentials between all those involved in the implementation process
must be explored and continually dismantled. This can be supported by identifying and
openly exploring power imbalances before responding. Strategies to actively shift power to
those who have traditionally held less include:
• ensuring people are provided with the supports they need to participate and lead in
meaningful ways
• setting aside time to reflect and improve partnership approaches
• outlining clear roles and responsibilities and expectations of those involved in the
partnership
• providing opportunities for people with lived experience of mental illness or
psychological distress to lead and make decisions, with real operational responsibilities
and powers to affect change
• providing opportunities to elevate the expertise, experiences and perspectives of those
who hold less power.66
209
Royal Commission into Victoria’s Mental Health System
Throughout its inquiry, the Commission has engaged with people from across Victoria and
Australia and internationally. It has been privileged to hear the deeply personal experiences
of people living with mental illness or psychological distress, and those of families, carers
and supporters, and the experiences of those working in and managing the system. Many
have shared their painful memories of the past, in the hope of shaping a better future. As one
person said:
thank you for the opportunity to tell a small part of our story and [I] look forward to the
outcomes of this much needed Royal Commission. If we can help prevent one person
from experiencing what we have gone through, I will feel it has all been worthwhile.67
People have willingly shared their powerful and deeply moving experiences. These
contributions have left a lasting impact and have provided the impetus for profound change.
While it is not the role of the Commission to substantiate the claims of individual people,
hearing these personal stories has helped the Commission to explore what lies at the heart
of individual experiences and, importantly, what needs to change. The sharing of people’s
personal experiences also played an important role in raising awareness of mental health
and wellbeing and tackling the stigma and discrimination that continues to have a pervasive
influence on the lives of people with lived experience of mental illness or psychological
distress. In many ways, this sharing has raised the level of public conversation about
mental illness.
Mr Al Gabb, a witness before the Commission, hoped that openly talking about his
experiences would help others:
for me speaking out and openly talking about it—and I’ll talk about it to anybody that
asks—it’s about helping. If I can help one person, that’s a win, that’s all that matters to
me, is to give back.68
For some, engagement with the Commission was the first opportunity they have had to share
their story formally, giving those who had not been listened to before the chance to have their
voices heard and acknowledged. As one person shared, ‘[t]hank you so much for listening. No
one ever has before.’69
While the time for consultation on what needs to be done is over, opportunities for people to
share their experiences and stories must continue throughout the implementation process.
Continued dialogue and opportunities for sharing and reflection on implementing the
Commission's reforms will be integral to generating system‑wide change. This could include
local and tailored engagement approaches such as gathering places, discussion groups,
forums, programs and events, supported by online and digital approaches. Implementers
should use these stories and experiences to sustain commitment across the Victorian
community by making the impact of reform ‘real’. 70
Providing evidence in a personal capacity, Mr David Pearl, Innovator, Author and Public
Speaker of The Studios, London, suggested that sharing individual experiences can help
people envisage a changed world, which will be critical in encouraging and inspiring all
partners throughout the reform process, ‘I think the stories that are really helpful … are stories
that generate change, that make a future state real to people.’71
210
Volume 5 Chapter 37: Implementation
Implementers should also look to share people’s stories and experiences to help bring about
broad cultural change, countering the false assumptions and discriminatory beliefs held
by some Victorians about people with lived experience of mental illness or psychological
distress. Efforts to respond to and challenge stigma will be essential to successfully
implementing the Commission’s recommendations, ensuring good mental health and
wellbeing remains a priority in government decision‑making and for the community. As one
person shared with the Commission:
For a lot of people mental ill health, especially on an extreme level hasn’t been
experienced. It is hard for people to identify with others who do experience it if they
can’t quite understand the feelings themselves. Being able to connect with personal
stories makes it less clinical and encourages a level of connection between those who do
and don’t experience it.72
Creating opportunities for continued dialogue and discussion will also ensure an evolving and
adaptable mental health and wellbeing system that responds to the needs and perspectives
of individuals. As the National Mental Health Commission reflected:
Mental health consumers and carers hold vital knowledge about what is needed from
the system, both for individual care and at broader levels. Engagement of consumers
and carers in recovery focussed services can lead to healing of historical traumatisation
within services and promote cultural change.73
Actively engaging with and listening to the experiences of individuals will provide
implementers with early warning signs about where reform is falling short of community
expectations. This will ensure approaches to implementation can be refined and adapted,
responding to emerging challenges.
The Commission acknowledges that some people have called for a formal process through
which they can have their experiences and their stories heard, including, for example, a
consumer‑led truth telling and reconciliation process.74 While it is outside the remit of the
Commission to formalise processes such as this, the experiences, perspectives and expertise
of people with lived experience of mental illness or psychological distress, families, carers and
supporters have been central to its work. These contributions underpin the narrative, reform
agenda and recommendations outlined in this report.
As reform progresses, the Commission envisages that the mental health and wellbeing system
will continue to create opportunities for people to share their individual stories and experiences.
The recommended strategies for enabling the leadership of people with lived experience of
mental illness or psychological distress outlined in Chapter 18: The leadership of people with
lived experience of mental illness or psychological distress, will support this endeavour.
Creating the space for people to share their stories and have their experiences heard and
acknowledged, however, will be the responsibility of all those involved in implementing
the recommendations contained in this report—this includes the entities created by the
Commission, and the existing agencies, organisations and individuals involved in the mental
health and wellbeing system. This will involve enquiring into and engaging with the individual
experiences and perspectives of those who use and work within the system, and seeking out
diverse views and perspectives, including those of people who have previously been silenced
or excluded.
211
Royal Commission into Victoria’s Mental Health System
Continued dialogue, reflection and the sharing of individual experiences and stories is
essential to rebuilding the Victorian community’s trust in the mental health and wellbeing
system and to creating a system that is flexible and respects people’s needs and experiences.
There is considerable optimism and readiness for change within the workforce. A workforce
survey that the Commission engaged ORIMA Research to undertake suggests that almost all
respondents personally felt ready for changes to the mental health system, with 90 per cent
of respondents indicating they believed change was necessary in the mental health setting
where they worked.75
When asked what would help to prepare them for changes to the system, ‘[r]eceiving clear
communication and being kept informed throughout the changes’ was rated as the most
important factor, followed by ‘[a]ccess to relevant training, professional development, and
practice support.'76 Some specific suggestions for improving how change is managed across
the mental health system included an ‘opportunity to collaborate in the proposed changes,
necessary resources and positive workplace culture’77 as well as ‘being consulted about
how to best implement changes locally’.78 These results suggest there is an opportunity to
capitalise on the enthusiasm and expertise amongst the workforce by involving them in the
implementation of reforms.
Leaders from a range of organisations involved in service delivery will also play a pivotal
role, steering their own organisations, including individuals, teams and associated systems,
through a substantial period of change and innovation. Associate Professor Stafrace
described how leaders of organisations can influence outcomes for the better by shaping
‘the pattern of beliefs, values, and behavioural norms that represents the shared learning
of the organisation as it solves the problems it confronts’.79 In this way, their support for
implementation will be critical. Garnering that support will require the Department of Health
to actively seek and involve leaders from a range of organisations involved in service delivery
throughout the implementation process. This will also help to ensure that the translation of
the Commission’s reforms and enablement of change across the system is informed by a
deep understanding of what works on the ground, at the point of service delivery.
212
Volume 5 Chapter 37: Implementation
Evaluation is a critical part of ensuring reform implementation can adapt to changing needs.
It indicates what works and what does not work, and for whom, in what context and why.
Evaluation can also shift power to people whose voice might otherwise not be heard by giving
them a say about decisions and services that affect their lives.80
The balance between planning and responding to feedback ‘on the go’ was discussed
in an essay published in Delivering Policy Reform: Anchoring Significant Reforms in
Turbulent Times:
We also know … that policy reforms cannot anticipate all factors and contingencies;
there will inevitably be a great deal of learning and adjustment in order to meet these
realities. [Implementation must manage] the tensions between seeking durability in
policy reforms and making improvements or adjustments in light of feedback from
those responsible for implementation and evidence on the performance of the policy
and programs without losing the integrity and momentum of the original reforms.83
Rigorous evaluation also builds momentum for change by indicating the benefits of the
approach—when people can see that what they are doing is having a positive impact, and
achieving an aim, it helps them to keep up their commitment. Exemplifying how reforms will
make a difference to individuals’ experiences and outcomes, as well as for service providers,
governments and the public, helps to build people’s confidence and engagement in the
change effort.84 This is particularly important because reform efforts will take time to deliver.
For example Joannah Luetjens of Utrecht University, Professor Michael Mintrom of Monash
University and Professor Paul ‘t Hart of Utrecht University made the following observations
about reforms to make Melbourne more ‘liveable’ in Successful Public Policy, Lessons from
Australia and New Zealand:
In the case of the drive to make Melbourne a more liveable city, there were various
challenges that meant implementation occurred in a slow, incremental fashion … When
people started to see the benefits of the implementation efforts, assessments of the
overall initiative became far more positive.85
Continually evaluating the impact of reforms and sharing the knowledge obtained not only
gives people visibility of how well new approaches are working (thus building confidence in
reforms). It also enables better decisions at the system and service levels—for example, about
what initiatives to invest in and at what scale. Therefore, evidence plays a crucial role in
guiding the expansion of what works so the full benefits can be understood and realised.86
213
Royal Commission into Victoria’s Mental Health System
It is important to note, however, that scaling up and expanding effective approaches must
be tailored to and reflect the local context.87 When expanding programs or initiatives,
implementers must take care to strike the balance between ensuring efforts respond to the
identity and culture of communities while maintaining a level of consistency and fidelity to
the model.88
Continuous evaluation implicitly acknowledges one important fact: not all efforts will be
successful on their first attempt. Implementation of substantial reform necessarily involves
new and innovative ways of doing, including approaches and initiatives that have never
been attempted before. To innovate and take these risks, implementers must have both
the permission and the courage to try, with the opportunity to learn from their experiences
and adapt future approaches. This is also important to achieving momentum. Delaying
decisions and progress towards a reformed mental health and wellbeing system may
compromise Victorians’ trust in reform—in some ways, perhaps, more than unsuccessful first
attempts would.
In Chapter 36: Research, innovation and system learning, the Commission has recommended
an approach to build evaluation activity and capability across the redesigned mental
health and wellbeing system, including developing a rolling three‑year evaluation program
to promote system learning. The Commission notes the Productivity Commission’s Mental
Health Inquiry Report recommendation that a national body be established to promote
a culture of evaluation, commissioning program evaluations, and building evaluation
capacity and capabilities.89 This body would build and maintain partnerships with research
institutes and state and territory partners and ‘evaluate aspects of the system that are of
national significance or that relate to multiple jurisdictions’.90 But this ‘does not obviate the
responsibility for all governments’ to monitor and evaluate programs.91 A dedicated mental
health evaluation function in Victoria should form a strong relationship with the national
body and receive funding to undertake program evaluations that would have national
interest. These collaborative activities will enable Victoria to assess, grow and extend
approaches so Victorians can connect with high‑quality treatment, care and support.
The Commission recognises that the Victorian Government will be implementing its
recommendations within a fiscally constrained environment, particularly as a result of
the COVID‑19 pandemic. For the first time since 1991, in July 2020 Australia found itself in
recession.93 While technically it has since ‘emerged’, the federal Treasurer, the Hon. Josh
Frydenberg MP, has warned that Australia’s economic recovery is far from over.94
While this context is important, it is the firm view of the Commission that the impacts of
the COVID‑19 pandemic on individuals and communities—including social isolation and
unemployment rates—necessitates a strong focus on mental health and wellbeing and its
prioritisation in future budgets.
214
Volume 5 Chapter 37: Implementation
The costs of poor mental health are borne by everyone; people living with mental illness or
psychological distress are most affected, but families, carers, supporters, governments and
employers also incur costs. In its interim report, the Commission estimated that poor mental
health costs Victoria $14.2 billion a year.95 Australia‑wide, too, the costs of poor mental health
are enormous. The Productivity Commission's Mental Health Inquiry Report estimates the
economic costs to the country of poor mental health and suicide in 2018–19 to range from
$43 billion to $70 billion. It anticipates that these costs are likely to increase in response to
the COVID‑19 pandemic and the 2019–20 severe bushfire season, with predicted widespread
implications for the mental health and wellbeing of all Australians.96
Investment in good mental health and wellbeing has been at the fore of the Commission’s
thinking throughout the conduct of its inquiry. Anticipating the considerable work needed
to redesign the system, the Commission’s interim report recommended a new approach
to mental health investment to both deliver a substantial funding increase and ensure
that funding is best distributed and used throughout the reformed mental health and
wellbeing system—a new levy and a dedicated capital investment fund.97 The design and
implementation of this new approach to investment will be critical to ensuring sustainable
and enduring reform. Should the new levy and dedicated capital investment fund be delayed,
the Commission expects the Victorian Government to demonstrate its commitment by
allocating investment from general revenue as part of the annual budget process, to pave the
way for major, sustained investment in good mental health and wellbeing.
The Victorian Government has recently shown it is willing to invest in the good mental health
and wellbeing of Victorians. Through the 2020–21 State Budget, it has announced measures
to rebuild the economy and to respond to the ‘cracks’ exposed by the COVID‑19 pandemic.
This includes a commitment of almost $870 million to implement the recommendations made
by the Commission in its interim report to repair a ‘frail mental health system’.98 As the Hon.
Tim Pallas MP, Treasurer of Victoria articulated:
this year has tested us emotionally and it has revealed the very deep cracks in our
mental health system. This year’s Budget invests nearly $870 million to ensure Victorians
have the mental health support they need as we get on with fixing a broken system.99
The Commission is encouraged by the way the Victorian Government made mental health
a priority in response to the COVID‑19 pandemic. This investment, however, is just the
beginning. The scale of funding required to redress historical underinvestment and meet the
future needs of the Victorian community is enormous. Yet, as explored in the Commission’s
interim report there is a compelling case for increasing investment in mental health.
Increased funding in Victoria’s mental health and wellbeing system would provide a range of
benefits including: opportunities to tackle inequity and design a system that is fair and just
for all; improved social and economic participation that will boost the economy; and health
benefits, including improvements to Victorians’ quality of life and life expectancy.100
While increased funding alone will not fix all the problems in the mental health system, strong
and sustained investment will be vital to delivering on the reforms outlined in this report and
to ensuring future savings.
215
Royal Commission into Victoria’s Mental Health System
The Productivity Commission Mental Health Inquiry Report reached similar conclusions,
suggesting that if Commonwealth, state and territory governments spent $3.5–$4.2 billion
to deliver major reform across the system, this would result in estimated savings due to
increased productivity and good quality of life of $1.7 billion, and increases to total income
earned of up to $1.3 billion per year.101 The Commission believes that these investment
estimates are modest for Victoria, given the historical underinvestment in the mental
health system in the state. The reality of past underinvestment means there will need to be
substantial spending put in place for the fundamental elements that will enable large‑scale
change across the state. Only once that has happened will the Victorian community and
economy see the benefits the Productivity Commission envisages for Australia.
The Victorian Government will need to continue making the mental health and wellbeing of
the Victorian community a priority as it makes funding decisions. It should also explore ways
to coordinate investments with other levels of government—for example, by forming new
partnerships—to best meet Victorians’ mental health and wellbeing needs and preferences.
37.2.8 Collaboration
The scale and complexity of the task ahead, and the fact that implementation of many
reforms will occur in parallel, means that government, service providers, the workforce,
people with lived experience of mental illness or psychological distress, families, carers,
supporters and the Victorian community will need to collaborate effectively.
Successful collaboration ‘require[s] a shared vision, objectives and methodology, utilising the
skills and expertise of all parties’.102 It involves ‘creating new structures within which to embed
authority, developing a common mission, engaging in comprehensive and shared planning,
and in which formal communication across multiple levels occurs’.103
Dr Tricia Szirom, the then CEO of the Victorian Mental Illness Awareness Council, reflected on
the benefits of collaborative efforts in solving complex problems:
when you bring people with diverse backgrounds together, you can solve complex
problems, particularly as you are able to bounce your ideas off one another and you all
bring with yourself a different perspective.106
A report by the Australian New Zealand School of Government made similar observations
about the importance of collective problem solving:
public problem‑solving skills are directed not at convincing others that one is right, but
at harnessing the collective intelligence of others to develop a deeper and more realistic
understanding of both problem and solution, and to evolve along with them. We cannot
be as smart alone as we are together, taking advantage of our diverse intelligence.107
216
Volume 5 Chapter 37: Implementation
Collaboration can also help to ease the transition to new arrangements. For example, at the
Commission’s public health roundtable, participants highlighted strong potential to improve
public health efforts for mental health in Victoria through collaborative efforts, but that the
transition to new arrangements and managing new complexities may be challenging.108
As described earlier, Victoria’s mental health sector has been divided and at times has
struggled to achieve a consistent and unified voice.109 The Commission considers that this
may be partly explained by the historical and structural pressures facing the system. While
the Commission’s aspiration is for a unified mental health and wellbeing system where
collaboration can flourish, in reality there are several pressures—in particular, demand for
services and a shortage of workers—that will continue to test collaborative efforts.
Over the past 30 years, demand for mental health services has increased, and this is only
likely to continue.110 It is also anticipated that as community awareness and understanding
of mental health and wellbeing continues to develop, in part due to this inquiry, so too will
demand for services. This has been evident with comparable reforms; for example, the
Implementation Monitor of the Royal Commission into Family Violence acknowledged the
increasing demand when the sector was reformed:
Demand for services continues to grow, likely due in part to the increased community
awareness of family violence the reforms have supported. The existing system needs
to simultaneously grow and reform while meeting the immediate needs of victim
survivors. This is a pressure being felt across all areas of government and community
organisations …111
The Implementation Monitor of the Victorian Bushfires Royal Commission made similar
observations, suggesting that recent inquiries into the sector had increased public interest
and expectation:
The public conduct of the [Victorian Bush Fires Royal Commission] and [other] inquiries
… show that the community is interested in what is going on and has an expectation
that if problems or failures in response to a disaster or emergency event are identified,
then these will be swiftly rectified to ensure the ongoing protection of the community.112
Increasing demand places pressure on all aspects of the mental health and wellbeing system,
with flow‑on effects to interrelated service systems. This in turn places considerable pressure
on the workforce and those managing the system. Responding to increasing demand for
mental health and wellbeing services cannot be the responsibility of one part of the system
alone. Effectively responding to demand requires collaboration between all parts of the
system—governments and service providers alike. Collaboration can help ensure the needs
of a population are well understood by Victorian and Commonwealth governments and
that subsequent investments are complementary and coordinated towards the areas of
greatest need—minimising duplication of effort and the risk of service gaps. At the service
delivery level, collaboration between service providers can help ensure people receive the
right services when it would make the most difference to them, reducing the need for higher
intensity service responses.
217
Royal Commission into Victoria’s Mental Health System
Responding to demand and reforming the mental health and wellbeing system simultaneously
will be a major challenge. Faced with these pressures, there may be a temptation for
implementers to respond to demand in isolation of the Commission’s recommended
system‑wide approach—for example, by resourcing existing mental health services based on
historical approaches. Yet this would be a missed opportunity, given responding to demand
cannot be done by simply more investment. New and innovative approaches to mental health
and wellbeing must be explored concurrently and collaboratively.
Alongside increasing demand, the mental health workforce will also continue to face
substantial resourcing challenges, with shortfalls across professional groups in specialist
public mental health services expected to worsen over time.113 As explored in Chapter 33: A
sustainable workforce for the future, proactive efforts to substantially expand the workforce,
develop new roles and support new and enhanced capabilities will be essential to effectively
implementing the future mental health and wellbeing system.
In light of these pressures, proactive efforts must be made to unite and strengthen the
sector so all partners involved in delivering reform can work together to achieve systemic
change. Recognising the importance of collaboration to reform, the Commission’s interim
report recommended establishing the Victorian Collaborative Centre for Mental Health and
Wellbeing to bring together people with lived experience of mental illness, families, carers and
supporters, researchers, academics and clinicians to improve service delivery and research.
As a contemporary facility with statewide leadership and delivery functions, the Collaborative
Centre will encourage greater collaboration. But it is only one entity within a broad system. It
is essential that the entire system has an equally strong focus on collaboration.
Fostering collaborative efforts across the sector, while at the same time responding to
emerging and historical pressures, will be supported by defined objectives, roles and
responsibilities,114 with ongoing efforts to acknowledge, explore and confront power
imbalances.115 Implementers must also take care to develop decision‑making structures in
which the different needs and perspectives of individuals and groups can be considered,
including through regular consultation and clearly defined accountability. Dr Peter Shergold,
former Secretary of the Department of the Prime Minister and Cabinet and current Chair
of the Centre for Social Impact, recognises that there are often ‘competing interests’ and
‘different perspectives’ that can only be understood and attended to through a process of
‘interaction and negotiation’.116
Because the Victorian public will be partners in delivering reform, it will be important to
create a shared sense of purpose with them to maintain momentum. As described earlier,
there is a strong appetite in the Victorian community for system‑wide change. Presenting a
compelling vision for reform, using the media effectively and identifying champions to lead
reform will help to capitalise on this desire for a new system.118
218
Volume 5 Chapter 37: Implementation
Making sure the public has visibility over the reform process can help maintain trust,
including the trust of people with lived experience of mental illness or psychological distress.
This can be achieved by regularly updating people on the reform work such as through
regular progress updates via a dashboard or website and monthly reports, which can also
include information on opportunities for participation.119
The Family Violence Implementation Monitor described the risks of not having clear
governance structures:
Alongside establishing accountability for reform, governance structures also play a critical
role in ensuring it is clear who has authority over what, therefore enabling decision‑making.
An independent review of the Australian Public Service made the following observations about
good governance in enabling and supporting the change process, ‘[i]t empowers and guides …
leaders to make good decisions without unnecessary delay, and ensures public resources are
deployed properly and effectively. It supports the organisation to act with integrity.’122
219
Royal Commission into Victoria’s Mental Health System
220
Volume 5 Chapter 37: Implementation
221
Royal Commission into Victoria’s Mental Health System
The Victorian Mental Illness Awareness Council advocated for an integrated system‑wide
approach to governance:
changes to the mental health system will require strong integrated system‑wide
governance to ensure that the vision of the Commission for consumer‑centred
and consumer‑acknowledged leadership is implemented and maintained over
future years.126
This approach to governance will bring with it a number of challenges. But with the
right structures, funding, people expertise, and accountabilities in place, governance
arrangements that involve a number of parties will play a critical role in driving and
implementing change and improving outcomes for people living with mental illness or
psychological distress, families, carers and supporters.
As Ms Lin Hatfield Dodds, Associate Dean for the Australian and New Zealand School of
Government of the Crawford School at Australian National University stated in a personal
capacity:
Collaboration is hard, grinding, and resource intensive. If it were easy, our federation would
work more efficiently and consistently deliver seamless service systems for citizens. When
properly resourced, collaboration across types of organisations and levels of government
is generally highly effective in delivering outcomes and value for communities.127
222
Volume 5 Chapter 37: Implementation
• legitimacy and voice—ensuring those who should and need to be represented are
supported to actively participate and collaborate
• strategic vision—stating a clear direction and strategic vision with goals and
objectives, ensuring all partners understand their role in achieving change
• performance—monitoring and reporting on progress towards reform and making
necessary adaptations
• accountability—facilitating a culture of openness and transparency and ensuring
clarity about the accountabilities of different individuals and the collective
• fairness and equity—ensuring all those involved get value from the process and
applying the principles of equity, inclusion and diversity across all aspects of
governance.128
Lessons should also be drawn from comparative reforms. For example, an interdepartmental
committee was established to oversee all of the reforms planned by the Royal Commission
into Family Violence. However, there were several problems identified with its structure,
including that it lacked clear purpose and decision‑making authority.129 These challenges
emphasise the importance of putting in place strong decision‑making structures with
defined roles for each governance body and guidance on how they intersect. Past challenges
also show the importance of having a single point of accountability for system reform.130 For
governance structures to be successful, it will be essential to establish clear priorities and
ways of working together, including information‑sharing protocols to ensure work programs
are coordinated.
The Parenting Research Centre identified three important features of effective monitoring for
successful implementation—transparency; independence and sustainability132—suggesting
that, ‘[a]n external oversight body may be necessary for the effective monitoring and
evaluation of implementation, ensuring accountability.’133
223
Royal Commission into Victoria’s Mental Health System
In line with these features, as described in Chapter 27: Effective leadership and accountability
of the mental health and wellbeing system – system-level governance, the Commission
recommends that the new Mental Health and Wellbeing Commission will be responsible
for examining and overseeing implementation of the Commission’s recommendations. As
an independent statutory authority, the Mental Health and Wellbeing Commission is best
placed to provide independent scrutiny and oversight, holding implementers to account
for fulfilling the aspirations of the Victorian community. This includes annual public
reporting to parliament while the Commission’s recommendations are being implemented.
Importantly, the new Mental Health and Wellbeing Commission will also include leadership
from people with lived experience of mental illness or psychological distress and families and
carers, ensuring lived experience oversight over the implementation of the Commission’s
recommendations.
The Royal Commission into Family Violence took a similar approach, recommending an
independent statutory agency be established to, among other things, monitor and report on
the implementation of its recommendations.135
Effective monitoring must go beyond providing a ‘scorecard’ or a ‘tick the box’ exercise. For
example, while information on output measures or analysis of how much money has been
invested is important, it does not reflect whether the reform has had the intended impacts.136
The Mental Health and Wellbeing Commission must therefore engage widely across the
sector to gather information and assess whether implementation efforts are meeting the
needs and preferences of people with lived experience of mental illness or psychological
distress, families, carers and supporters.
224
Volume 5 Chapter 37: Implementation
Because of the complexities associated with implementation, the reform activity following
this Commission should be staged or sequenced. As Associate Professor Stafrace stated,
‘[r]eform takes time. The most successful examples involved building momentum over time.’139
Associate Professor Vine also encouraged an incremental approach to implementation:
Implementers must strike the balance, however, between the pace and scale of reform and the
urgency required to deal with the depth of the problems in the existing mental health system.
There is a moral imperative for implementers to capitalise on the opportunities afforded
by this inquiry. Timely, deliberate and sustained actions are therefore required to ensure all
Victorians can benefit from the changes described in this report, both now and into the future.
225
Royal Commission into Victoria’s Mental Health System
When considering the staging of reform, it is important to identify and plan for what skills
and capacity will be needed to implement reforms, not just in the short‑term but over
many years.145 The Royal Commission into Institutional Responses to Child Sexual Abuse,
for example, acknowledged the importance of a phased approach in achieving long‑term
cultural change, providing institutions, regulatory bodies and governments with time to build
their capabilities and capacity for large scale change.146
When sequencing reform activities, then, implementers should consider the time required
to build sufficient capacity and readiness for reform while also allowing for the evaluation
needed to adapt and scale up successful approaches.
The Commission has consistently considered the potential resourcing, time and effort
required to implement the changes it has recommended. It also considered the sequencing
of its reform agenda, identifying the main steps or activities that may form the basis of an
implementation plan. This section provides a consolidated overview of the Commission’s
reform agenda and indicative sequencing.
This section provides an overview of the reform agenda. Table 37.1 presents the main
components of each recommendation and provides an overview of associated timeframes
for implementation. The timeframes depicted in Table 37.1 are the period within which
implementation processes will commence and the major steps associated with the delivery of
each component of the recommendation undertaken. It is noted that some recommendations
include a specific and articulated deadline against componentry (for example, ‘by the end
of 2022’), which means all major steps must be complete by this date. Some timeframes in
the table extend through to the end of 2031, noting they are in the main associated with
ongoing governance arrangements. The presentation of the Commission's recommendations
in this way is intended to provide the Victorian Government with a starting point to aid the
implementation process. It also serves to illustrate what reforms the Commission considered
are priorities, and what may take more time.
It is important to acknowledge, however, that system‑wide reform will not be achieved simply
by implementing the Commission’s recommendations. The Family Violence Implementation
Monitor described the key deficiencies of this assumption:
226
Volume 5 Chapter 37: Implementation
Instead, implementers must take a systemic approach and consider how recommendations
work in parallel to achieve the changes envisaged by the Commission, including how
all of the components of the redesigned system will fit together149 and the impacts of
recommendations on other parts of the system and interrelated services. As described earlier,
the recommended Mental Health and Wellbeing Commission will also assist by monitoring
implementation efforts and supporting implementers to learn and adapt their approach.
It is important to note that while the Commission has articulated a 10‑year reform agenda,
implementation is not a static or linear process; reform will be ongoing and dynamic, requiring
‘consistency, resilience, and perseverance’150 from all those involved in implementation.
While the work ahead will not be easy, there is hope that this time will be different—that all
possible efforts will be made to give the recommended reforms the best chance of success.
The Commission calls on implementers to make the hopes of people with lived experience of
mental illness or psychological distress, families, carers and supporters a reality.
The Victorian public’s optimism and desire for change gives implementers a unique opportunity
to create enduring reform. All partners in delivering profound change must rise to the challenge.
The Commission’s inquiry is over; the time for decisive and deliberate action is now.
227
Royal Commission into Victoria’s Mental Health System
Recommendation 1:
228
Volume 5 Chapter 37: Implementation
Recommendation 2:
229
Royal Commission into Victoria’s Mental Health System
Recommendation 3:
5. establish the requirements for each service and the links between
them through a ‘service capability framework’.
230
Volume 5 Chapter 37: Implementation
Recommendation 4:
2. by no later than the end of 2023, replace interim regional bodies with
legislated Regional Mental Health and Wellbeing Boards to:
a. undertake workforce, service and capital planning for mental
health and wellbeing services; and
b. lead engagement with their respective communities.
3. from the end of 2023 and by no later than the end of 2026, enable
each Regional Mental Health and Wellbeing Board also to:
a. commission mental health and wellbeing services; and
b. hold individual providers to account to improve the outcomes and
experiences of people who use their services.
231
Royal Commission into Victoria’s Mental Health System
Recommendation 5:
1. commission and ensure that Adult and Older Adult Local Mental
Health and Wellbeing Services and Adult and Older Adult Area
Mental Health and Wellbeing Services referred to in recommendation
3(2)(a) and (b) work in collaboration to deliver in each of the 22
service areas short-term, ongoing and intensive services as required
and include the following core functions:
a. Core function 1: integrated treatment, care and support that
comprises:
• a broad range of treatments and therapies;
• a broad range of wellbeing supports (formerly called
psychosocial supports) for those who require them, including
those who are unable to access the National Disability
Insurance Scheme;
• education, peer support and self-help; and
• care planning and coordination.
b. Core function 2: services to help people find and access
treatment, care and support and, in Area Mental Health and
Wellbeing Services, respond to crises 24 hours a day, seven days
a week.
c. Core function 3: support for primary and secondary care and
related services through primary consultation with consumers,
secondary consultation with providers of those services and a
formal model of comprehensive shared care.
2. commission and ensure that Adult and Older Adult Local Mental
Health and Wellbeing Services and Adult and Older Adult Area
Mental Health and Wellbeing Services referred to in recommendation
3(2)(a) and (b) work in collaboration to deliver multidisciplinary,
holistic and integrated treatment, care and support through a range
of delivery modes including:
a. site-based care (such as centres or clinics);
b. telehealth;
c. digital technologies; and
d. visits to people’s homes and other places (including targeted
assertive outreach).
3. ensure Adult and Older Adult Local Mental Health and Wellbeing
Services and Adult and Older Adult Area Mental Health and
Wellbeing Services are accessible and responsive to the diversity of
local communities.
232
Volume 5 Chapter 37: Implementation
Recommendation 6:
233
Royal Commission into Victoria’s Mental Health System
Recommendation 7:
234
Volume 5 Chapter 37: Implementation
Recommendation 8:
1. ensure each Adult and Older Adult Area Mental Health and
Wellbeing Service delivers a centrally coordinated 24-hours-a-day
telephone/telehealth crisis response service accessible to both
service providers and to members of the community of all ages that
provides:
a. crisis assessment and immediate support;
b. mobilisation of a crisis outreach team or emergency service
response where necessary; and
c. referral for follow-up by mental health and wellbeing services
and/or other appropriate services.
2. expand crisis outreach services in each Adult and Older Adult Area
Mental Health and Wellbeing Service to provide treatment, care
and support from a clinician and nonclinical worker such as a peer
worker.
235
Royal Commission into Victoria’s Mental Health System
Recommendation 9:
236
Volume 5 Chapter 37: Implementation
Recommendation 10:
237
Royal Commission into Victoria’s Mental Health System
Recommendation 11:
238
Volume 5 Chapter 37: Implementation
Recommendation 12:
239
Royal Commission into Victoria’s Mental Health System
Recommendation 13:
240
Volume 5 Chapter 37: Implementation
Recommendation 14:
241
Royal Commission into Victoria’s Mental Health System
Recommendation 15:
242
Volume 5 Chapter 37: Implementation
Recommendation 16:
243
Royal Commission into Victoria’s Mental Health System
Recommendation 17:
244
Volume 5 Chapter 37: Implementation
Recommendation 18:
245
Royal Commission into Victoria’s Mental Health System
Recommendation 19:
246
Volume 5 Chapter 37: Implementation
Recommendation 20:
247
Royal Commission into Victoria’s Mental Health System
Recommendation 21:
248
Volume 5 Chapter 37: Implementation
Recommendation 22:
249
Royal Commission into Victoria’s Mental Health System
Recommendation 23:
250
Volume 5 Chapter 37: Implementation
Recommendation 24:
251
Royal Commission into Victoria’s Mental Health System
Recommendation 25:
5. ensure that the supported housing homes for adults and young
people living with mental illness are:
a. delivered in a range of housing configurations including
standalone units, self-contained units with shared amenities and
various forms of clustered independent units on a single-site
property;
b. appropriately located, provide for the requirements of people
living with mental illness and are co-designed by Homes Victoria,
representatives appointed by the Mental Health and Wellbeing
Division and people with lived experience of mental illness; and
c. accompanied by an appropriate level of integrated,
multidisciplinary and individually tailored mental health and
wellbeing treatment, care and support.
252
Volume 5 Chapter 37: Implementation
Recommendation 26:
253
Royal Commission into Victoria’s Mental Health System
Recommendation 27:
254
Volume 5 Chapter 37: Implementation
Recommendation 28:
255
Royal Commission into Victoria’s Mental Health System
Recommendation 29:
256
Volume 5 Chapter 37: Implementation
Recommendation 30:
3. ensure that:
a. in commissioning mental health and wellbeing services,
expectations are set for working with families, carers and
supporters;
b. families, carers and supporters are included in a range of
therapeutic interventions in each Area Mental Health and
Wellbeing Service; and
c. working with families, carers and supporters is part of
system‑wide workforce training.
257
Royal Commission into Victoria’s Mental Health System
Recommendation 31:
258
Volume 5 Chapter 37: Implementation
Recommendation 32:
2. by the end of 2022, broaden the scope and reach of the Families
where a Parent has a Mental Illness program, including by:
a. enabling each Area Mental Health and Wellbeing Service to
employ new workers to support young carers in their local
environment; and
259
Royal Commission into Victoria’s Mental Health System
Recommendation 33:
2. resource Infant, Child and Youth Area Mental Health and Wellbeing
Services to support Aboriginal community-controlled health
organisations by providing primary consultation, secondary
consultation and shared care.
260
Volume 5 Chapter 37: Implementation
Recommendation 34:
261
Royal Commission into Victoria’s Mental Health System
Recommendation 35:
262
Volume 5 Chapter 37: Implementation
Recommendation 36:
263
Royal Commission into Victoria’s Mental Health System
Recommendation 37:
264
Volume 5 Chapter 37: Implementation
Recommendation 38:
1. in line with master planning for Thomas Embling Hospital and the
proposal of the Victorian Health and Human Services Building
Authority:
a. refurbish the existing 136 beds; and
b. by the end of 2026, provide an additional 107 beds, a small number
of which should be allocated for people living with mental illness
whose treatment, care and support requirements cannot be safely
and appropriately met in acute inpatient settings or through the
forensic community model (refer to recommendation 37(2)).
265
Royal Commission into Victoria’s Mental Health System
Recommendation 39:
b. by the end of 2022, trial two new digital service delivery initiatives
in rural and regional areas that meet the needs of local
communities.
266
Volume 5 Chapter 37: Implementation
Recommendation 40:
267
Royal Commission into Victoria’s Mental Health System
Recommendation 41:
268
Volume 5 Chapter 37: Implementation
Recommendation 42:
1. repeal the Mental Health Act 2014 (Vic) and enact a new Mental
Health and Wellbeing Act, preferably by the end of 2021 and no later
than mid-2022, to:
a. promote good mental health and wellbeing;
b. reset the legislative foundations underpinning the mental health
and wellbeing system; and
c. support the delivery of services that are responsive to the needs
and preferences of Victorians.
269
Royal Commission into Victoria’s Mental Health System
Recommendation 43:
3. as part of this review, consider the role and functions of the Mental
Health Tribunal and Chief Psychiatrist to ensure they remain
appropriate.
270
Volume 5 Chapter 37: Implementation
Recommendation 44:
271
Royal Commission into Victoria’s Mental Health System
Recommendation 45:
1. establish in legislation the role of Chief Officer for Mental Health and
Wellbeing to lead the Mental Health and Wellbeing Division in the
Department of Health, and set out in that legislation that this Chief
Officer is:
a. delegated the functions and powers conferred on the Secretary
of the Department of Health under the new Mental Health and
Wellbeing Act (refer to recommendation 42);
b. appointed by and reports to the Secretary; and
c. at the level of a Deputy Secretary.
272
Volume 5 Chapter 37: Implementation
Recommendation 46:
273
Royal Commission into Victoria’s Mental Health System
Recommendation 47:
274
Volume 5 Chapter 37: Implementation
Recommendation 48:
275
Royal Commission into Victoria’s Mental Health System
Recommendation 49:
276
Volume 5 Chapter 37: Implementation
Recommendation 50:
277
Royal Commission into Victoria’s Mental Health System
Recommendation 51:
278
Volume 5 Chapter 37: Implementation
Recommendation 52:
279
Royal Commission into Victoria’s Mental Health System
Recommendation 53:
280
Volume 5 Chapter 37: Implementation
Recommendation 54:
3. ensure the Chief Officer for Mental Health and Wellbeing (refer to
recommendation 45(1)) develops and leads a strategy to reduce the
use of seclusion and restraint.
4. enable the Mental Health Improvement Unit within Safer Care Victoria
(refer to recommendation 52(1)) to co-design with mental health
and wellbeing services and people with lived experience a range of
programs and supports aligned with the strategy that focus on:
a. working with each mental health and wellbeing service to
investigate local data and practices in order to identify priority
areas for change;
b. making workforce training available for services; and
c. continuing to support services to embed Safewards.
281
Royal Commission into Victoria’s Mental Health System
Recommendation 55:
282
Volume 5 Chapter 37: Implementation
Recommendation 56:
1. promote, protect and ensure the right of people living with mental
illness or psychological distress to the enjoyment of the highest
attainable standard of mental health and wellbeing without
discrimination.
4. align mental health laws over time with other decision-making laws
with a view to promoting supported decision-making principles and
practices.
283
Royal Commission into Victoria’s Mental Health System
Recommendation 57:
284
Volume 5 Chapter 37: Implementation
Recommendation 58:
285
Royal Commission into Victoria’s Mental Health System
Recommendation 59:
286
Volume 5 Chapter 37: Implementation
Recommendation 60:
287
Royal Commission into Victoria’s Mental Health System
Recommendation 61:
288
Volume 5 Chapter 37: Implementation
Recommendation 62:
289
Royal Commission into Victoria’s Mental Health System
Recommendation 63:
290
Volume 5 Chapter 37: Implementation
Recommendation 64:
291
Royal Commission into Victoria’s Mental Health System
Recommendation 65:
292
Volume 5 Chapter 37: Implementation
293
Royal Commission into Victoria’s Mental Health System
1 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 385.
2 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, 2019, para. I.
3 Dr Dahle Suggett, Occasional Paper No. 15: The Implementation Challenge: Strategy Is Only as Good as Its
Execution, 2011, p. 3.
4 Implementation is about putting decisions into practice, refer to: Bianca Albers, Mary Abdo and Robyn Mildon,
Implementing the Commission’s Recommendations: Prepared by the Centre for Evidence and Implementation
for the Royal Commission into Victoria’s Mental Health System, 2020, p. 2. The Commission arranged this report
from the Centre for Evidence and Implementation to inform development of this chapter. The Commission
acknowledges Bianca Albers, Mary Abdo and Robyn Mildon for this work.
5 Royal Commission into Victoria’s Mental Health System, Interim Report, pp. 568–570.
6 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 1.
7 John Mendoza, Kathleen Margaret Griffiths and Sebastian Pascal Rosenberg, Obsessive Hope Disorder: Reflections
on 30 Years of Mental Health Reform and Visions for the Future: Summary Report, 2013, p. 11.
8 The Victorian Mental Illness Awareness Council, Correspondence to the RCVMHS: Governance in Mental Health,
2020, p. 13.
9 See for example, Family Violence Reform Implementation Monitor, Report of the Family Violence Reform
Implementation Monitor as at 1 November 2018, 2018, p. iv.
10 Parenting Research Centre, Implementation of Recommendations Arising from Previous Inquiries of Relevance to
the Royal Commission into Institutional Responses to Child Sexual Abuse Final Report, 2015, pp. xiv and 22.
11 Albers, Abdo and Mildon, p. 1; Parenting Research Centre, pp. xv–xvi.
12 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 121.
13 Joint Witness Statement of ‘Mary Corbett’ and ‘Jacob Corbett’ (pseudonyms), 25 June 2020, para. 119.
14 Mendoza, Griffiths and Rosenberg, p. 43.
15 Victorian Government, Announcement: Royal Commission into Mental Health Speech, 24 October 2018, p. 4.
16 Michael Mintrom, Deirdre O’Neill and Ruby O’Connor, ‘Royal Commissions and Policy Influence’, Australian Journal
of Public Administration, 2020, 1–17 (pp. 4 and 15).
17 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. III.
18 Throughout this chapter, the Commission defines ‘implementation partners’ or ‘implementers’ as all those involved
in implementing the Commission’s reform agenda. This includes the Victorian Government, the workforce, service
providers, people with lived experience of mental illness or psychological distress, families, carers, supporters and
the Victorian community more broadly. It also extends to involvement from the Commonwealth Government and
other human services systems.
19 Parenting Research Centre, p. 90.
20 Witness Statement of Dr Chris Groot, 4 September 2019, para. 16; Professor Patrick McGorry, Mental Illness Is More
Ubiquitous Than Cancer. How Can We Help the “Missing Middle”?, The Guardian, 25 April 2019, p. 2.
21 Beyond Blue, Beyond Blue Chair The Hon. Julia Gillard AC Delivers the 2019 Diego De Leo Address, 23 July 2019,
<www.beyondblue.org.au/media/news/news/2019/07/22/beyond-blue-chair-the-hon-julia-gillard-ac-delivers-the-
2019-diego-de-leo-address>, [accessed 3 December 2020].
22 Witness Statement of Professor Bruce Bonyhady AM, 16 June 2020, para. 33.
23 Royal Commission into National Natural Disaster Arrangements, Transcript of Proceedings, Day 29, 5 August
2020, p. 2595.
24 Parenting Research Centre, p. 93.
25 Witness Statement of Georgie Harman, 1 July 2019, para. 106.
26 Witness Statement of Associate Professor Ruth Vine, 27 June 2019, para. 97.
27 Beyond Blue, Media Release: Beyond Blue Backs National Mental Health and Wellbeing Pandemic Response Plan, 15
May 2020, p. 1.
28 Witness Statement of Professor Rob Moodie, 9 June 2020, para. 15.
29 Patrick D McGorry and Matthew P Hamilton, ‘Broken Promises and Missing Steps in Mental Health Reform’, Medical
Journal of Australia, 206.11 (2017), 487–489 (p. 488).
30 Witness Statement of Kym Peake, 24 July 2019, para. 188; Parenting Research Centre, p. 94.
31 Anne-marie Boxall, Chapter 11: Medicare: The Making and Consolidation of an Australian Institution, in Successful
Public Policy: Lessons from Australia and New Zealand (Canberra: ANU Press, 2019), pp. 257–278 (p. 260); Witness
Statement of Kym Peake, 2019, paras. 188–190.
32 Witness Statement of Professor David Copolov AO, 7 July 2020, para. 296(b).
33 Parenting Research Centre, p. 154.
34 Witness Statement of Kym Peake, 4 October 2020, para. 132.
294
Volume 5 Chapter 37: Implementation
295
Royal Commission into Victoria’s Mental Health System
296
Volume 5 Chapter 37: Implementation
Institute of Health and Welfare, Mental Health Services in Australia: Specialised Mental Health Care Facilities
2017–18 Tables Table FAC.3.
114 Albers, Abdo and Mildon, p. 20.
115 Roper, Grey and Cadogan, p. 7.
116 Dr Peter Shergold, Chapter 2: Governing Through Collaboration, in Collaborative Governance: A New Era of Public
Policy in Australia? (Canberra: ANU E Press, 2008), pp. 13–22 (p. 20).
117 Albers, Abdo and Mildon, pp. 13–15; Witness Statement of Kym Peake, 2020, paras. 141–142 and 145(d).
118 Parenting Research Centre, p. 91; Witness Statement of Kym Peake, 2020, para. 132.
119 RCVMHS, Consumer Foundations Working Group Meeting Summary, p. 18.
120 Albers, Abdo and Mildon, p. 20.
121 Family Violence Reform Implementation Monitor, Report of the Family Violence Reform Implementation Monitor as
at 1 November 2017, 2017, p. 12.
122 Commonwealth Government, Our Public Service, Our Future. Independent Review of the Australian Public Service,
2019, p. 278.
123 Crick Lund and others, Social Determinants of Mental Disorders and the Sustainable Development Goals: A
Systematic Review of Reviews, The Lancet Psychiatry, 5 (2018), 357–369 (p. 357).
124 Commonwealth Government, p. 278.
125 The Honourable Daniel Andrews MP, Premier of Victoria, Media Release: New Departments To Deliver A Healthier,
Fairer Victoria, 30 November 2020, <www.premier.vic.gov.au/new-departments-deliver-healthier-fairer-victoria>,
[accessed 1 December 2020].
126 The Victorian Mental Illness Awareness Council, p. 13.
127 Witness Statement of Lin Hatfield Dodds, 15 June 2020, para. 47.
128 Albers, Abdo and Mildon, pp. 20–21.
129 Family Violence Reform Implementation Monitor, Report of the Family Violence Reform Implementation Monitor as
at 1 November 2018, pp. 11–12.
130 Family Violence Reform Implementation Monitor, Report of the Family Violence Reform Implementation Monitor as
at 1 November 2018, p. 14.
131 Parenting Research Centre, pp. 142–143.
132 Parenting Research Centre, p. 144.
133 Parenting Research Centre, p. xvii.
134 Victorian Bushfires Royal Commission, Volume 2, Chapter 12: Monitoring Implementation, 2010, p. 404.
135 Royal Commission into Family Violence, Report and Recommendations, Volume VI, 2016, p. 133.
136 Parenting Research Centre, p. 146.
137 Parenting Research Centre, p. 87.
138 Parenting Research Centre, p. 147.
139 Witness Statement of Associate Professor Simon Stafrace, 2020, para. 67(d).
140 Witness Statement of Associate Professor Ruth Vine, 2019, para. 125.
141 Parenting Research Centre, p. 157.
142 Witness Statement of Associate Professor Simon Stafrace, 2020, para. 67(d).
143 Albers, Abdo and Mildon, p. 18.
144 Parenting Research Centre, p. 157.
145 Albers, Abdo and Mildon, p. 19.
146 Royal Commission into Institutional Responses to Child Sexual Abuse, Final Report: Making Institutions Child Safe,
Volume 6, 2017, p. 19.
147 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. III.
148 Family Violence Reform Implementation Monitor, Report of the Family Violence Reform Implementation Monitor as
at 1 November 2017, p. 4.
149 Family Violence Reform Implementation Monitor, Report of the Family Violence Reform Implementation Monitor as
at 1 November 2017, p. 4.
150 Albers, Abdo and Mildon, p. 18.
297
Royal Commission into Victoria’s Mental Health System
298
Volume 5 A note from the CEO
299
Royal Commission into Victoria’s Mental Health System
300
Volume 5 A note from the CEO
As royal commissions before us showed, the most rewarding part of conducting a commission
is engaging with people and learning from the experiences they share. Thousands of
people—people with lived experience of mental illness or psychological distress, families,
carers and supporters, and people who work in and manage the system—gave their time and
wisdom to the Commission. From all over Victoria, and indeed other parts of Australia and
overseas, people came forward, voluntarily, to contribute, and the Commission encouraged
them to do so in many different ways. The experience of listening to people’s thoughts and
aspirations, and the collective desire to create a better future, gave meaning and purpose to
the Commission. This sense of shared hope is reflected in this report.
There were many special moments during the course of our work, in the sharing of stories,
that went to the heart of human experience. Indeed, a royal commission is really a series of
these special moments. Some of them were shared publicly, in community consultations, in
which many people, sitting in deep grief, were comforted by strangers. Some contributions
were more private, sent anonymously to the Commission. For many, it took a lot of courage to
take part. Commission staff will long remember the strength of the people who stood to take
the microphone, or even a seat at a table, at the community consultations. There were many
occasions at our public hearings too, where formality gave way to emotion—not just for the
witnesses sharing their experience, but also for Commission staff and Commissioners. Finally,
people said they felt ‘heard’, and for some this was the first time they felt their ideas and
aspirations were valued. Many carers and family witnesses told us a heavy weight they had
carried was lifted by the public acknowledgment that it was not them who had failed their
loved one, but the system.
Moments like these highlighted the importance of a royal commission as a vehicle for
engagement and change. There is no doubt that the lives of all Commission staff have been
enriched by the experiences shared, and by the community’s generosity towards our work.
The Chair and I focused on the qualities we required for a diverse, yet united team. We were
influenced in particular by the knowledge of the executives of the Royal Commission into
Institutional Responses to Child Sexual Abuse, whom we consulted in our formative stages.
301
Royal Commission into Victoria’s Mental Health System
They advised that we would require staff with endurance and, in equal measure, the nature
to treat people engaging with the Commission with kindness and respect. They spoke of the
importance of gestures that made witnesses feel valued—opening their car door when they
arrived at a hearing, making a follow-up call afterward—as being critical to the process, and
to how those involved would remember their experience. This wisdom guided us in building
our team, and we selected every staff member with these characteristics in mind.
We were also encouraged to ensure that the diversity of skills and teams present did
not result in division. A royal commission is a pressured environment, united by purpose
but presented with many pathways to reach the end point, all of them unrelenting and
exhausting. It was necessary to ensure all teams, legal and policy, and the community
engagement team, worked together and recognised the separate but critical contributions
each made.
I am proud to say that despite the difficulty and operational demands of forming a royal
commission, we did have the team we wanted: people committed to the purpose of the
Commission, with respect for its process, each other and the community. The Commission
worked harmoniously, and it was a privilege to work alongside all staff, the Counsel Assisting
appointed by the Chair, our contractors, the Expert Advisory Committee and Consumer
Foundations Working Group, and our legal firm, Herbert Smith Freehills.
The impacts of these events, and the related uncertainties, tragedies and losses, influenced
our work. These forces shaped the mental health system, and the wellbeing of communities,
as the Commission deliberated. As explained throughout this report, the focus of our work
became how to best support people through crisis and tragedy and bolster the system’s
long-term adaptability.
The pandemic also changed the way we worked, with staff spending most of 2020 working
remotely. This presented challenges. Some, like the cancellation of our final round of public
hearings, were visible, while others were less so, such as the personal isolation staff felt and
the challenge of connecting ideas at a distance. Yet, undeterred and motivated to ensure the
Commission delivered on its commitment to transform the Victorian mental health system,
staff adapted to the new arrangements and worked tirelessly to ensure the Commission’s
work was done.
Leading the staff through the Commission’s enormous work program, including the
unexpected challenges 2020 brought, was a remarkably talented and thoughtful executive
leadership group. Listed in the order they started at the Commission, and noting some stayed
for the duration while others gave the time they could, they are: Maria Perera, Luke Horwill,
Phil Ames, Fayyaz Khan, Nicola Farray, Rhys Benny, Kerin Leonard, Phuong Nguyen, Luke
Bo’sher, Tessa Piper, Charlotte Frew, James Lavery, Erica Grundell and Caroline Aebersold. I
also acknowledge the contribution of Dan Jefferson, who stood in briefly as Interim CEO while
302
Volume 5 A note from the CEO
I was seconded to the Department of Health and Human Services to assist with the response
to the COVID-19 pandemic.
I also acknowledge the persistence and talents of my Strategic Adviser, Shane Robertson,
and the deliberate and reflective work of both Cath Roper, Lived Experience Adviser, and the
Commission’s Aboriginal Adviser, Nicole Cassar.
The Department of Health and Human Services and the Department of Premier and Cabinet
were critical in the Commission’s establishment phase, deploying key staff to assist in its
early weeks. In particular I want to thank Greg Wilson, Emma Fenby and Alison Rutherford.
I am also grateful for the early support of Ben Rimmer, who joined briefly as a strategic
adviser, and the ongoing support of Ross Broad, Director, Royal Commission Engagement
Branch, Department of Health and Human Services. Mr Broad coordinated responses to
the Commission’s Notices to Produce and numerous requests it made for information from
multiple government departments.
The operational aspects of the Commission and the work of its leadership team and
other staff are presented in the following chapters. These provide a formal record in the
hope it supports future royal commissions as we have been supported by those before
us. The chapters also explain the expectation we set to work to the highest standards
of transparency and integrity and as prescribed by the Inquiries Act 2014 (Vic). The
Commission’s policies and protocols now form part of the public record.
The 2015 Royal Commission into Family Violence showed how royal commissions could
focus on policy with an eye to the future, rather than only on past events. This example, too,
encouraged us to think differently, and this is evident in the ‘systems design’ approach that
informed our work.
This Commission chose to harness the licence its letters patent gave it to go beyond system
improvement and to look forward to the future—and deliver a complete redesign of Victoria’s
mental health system. In many respects, the Commission was a leader of systems change
practice. It sought the input of people with experience in diverse areas of business, academia,
systems engineering and design, implementation science, public policy, regulation, digital
services and social innovation. Many of these people had no direct expertise in mental health,
but enriched the Commission’s ability to ‘think in systems’. In particular, they helped the
Commission to see and understand the complexity of Victoria’s mental health system and
identify ways to transform it. The Commission particularly acknowledges those who advised
it through its systems advisory function.
303
Royal Commission into Victoria’s Mental Health System
The Commission has also reflected on the Victorian Government’s commitment to implement
its recommendations. This commitment, along with the Commission’s focus on the future
system, has been instrumental in shaping the work. The focus shifted away from changing
individual services and programs, toward the full system—its structures, practices, services,
policies, resources, power dynamics, relationships and connections, values and beliefs—that,
collectively reformed, will deliver better outcomes for Victorians.
We hope that in some small way, we opened up new possibilities for royal
commissions to come.
Final words
All royal commissions will unfold differently, yet every CEO who establishes one will be
challenged by the rapid momentum they generate, the expectations they set, and the
pressing need for integrity of process in the face of tight timelines and significant legal and
policy questions.
The work of the Commission, as described in this report, speaks to the dedication of the staff
and the rigorous processes followed. It is an important record for Victoria.
To undertake this momentous work with the Commission staff, to work alongside the Chair of
the Commission and with the other Commissioners, and with Counsel Assisting and the legal
team—and to meet so many of the people who shared their stories—has been an honour.
Jodie Geissler
Chief Executive Officer,
Royal Commission into
Victoria’s Mental Health System
304
Volume 5 A note from the CEO
305
Royal Commission into Victoria’s Mental Health System
306
Volume 5 Chapter 38: The establishment of the Commission
Chapter 38
The establishment
of the Commission
307
Royal Commission into Victoria’s Mental Health System
308
Volume 5 Chapter 38: The establishment of the Commission
On 22 February 2019, Her Excellency, the Hon. Linda Dessau AC, the Governor of the State of
Victoria, formally established the Royal Commission into Victoria’s Mental Health System.
The same day, the Premier said the mental health system is ‘a broken system and until we
acknowledge that and set a course to find those answers and a practical plan for the future,
people will continue to die, people will continue to be forever diminished’..4
The work of the Commission was also bound by the Inquiries Act 2014 (Vic) which outlines
the conduct of royal commissions.7 The Commission conducted the inquiry in line with the
requirements of procedural fairness, letters patent and the Inquiries Act.8 The Commission
was supported by the Department of Premier and Cabinet, which assisted with the
establishment phase, and some operational and corporate functions.
309
Royal Commission into Victoria’s Mental Health System
On 26 May 2020, the Governor formally extended the Commission’s final report deadline
to 5 February 2021.12
Appendix A.2 shows the Commission’s amended letters patent granting the extension.
The extension allowed the Commission to explore mental health and wellbeing issues that
became increasingly prominent during the COVID-19 pandemic, such as loneliness and social
isolation and the importance of telehealth.
The pandemic had an impact on the Commission’s operations. Like many Victorians,
Commissioners and the Commission staff had to adapt quickly. They continued to engage
with the community, meet with interested parties, workshop ideas, collaborate, research
and write—all remotely. One important impact of the pandemic on the Commission was
cancelling the second round of public hearings, which were to take place in April 2020. The
Commission announced the cancellation of the hearings on 19 March 2020, during the early
stage of the COVID-19 pandemic.13 This was in response to government health advice to
protect the health and safety of participants and the general public.
A COVIDSafe Plan was established in the Commission under the direction of a small
committee. This plan outlined the measures to be put in place to minimise the risk of
transmitting COVID-19 in the workplace, and appropriate procedures to ensure the health
and safety of Commissioners and staff while working in the office and remotely.
To support staff wellbeing during their 10 months of remote working, and at a time of such
uncertainty, the Commission put a number of measures in place. These included regular
counselling sessions for staff, and wellbeing workshops to help staff deal with challenges
such as change, social isolation and balancing work with caring responsibilities. This was
complemented with flexible working arrangements, regular discussions among the leadership
team, and updates from the Chair and CEO to staff, including about how to best manage the
impacts of COVID-19.
The Commission also implemented security measures to ensure documents were protected
and processes were maintained during remote working. This included the delivery of
information management and security training, and regular communication to staff about
risk management, confidentiality and document security protocols.
To ensure calls from the public were being attended to, phone lines were redirected to staff
working from home, making sure all calls from the public could be answered, and that
support was provided when required.
310
Volume 5 Chapter 38: The establishment of the Commission
She has also been the chair of the Transport Accident Commission board and president
of the board of Berry Street, an independent family services organisation. She was the
National President of the Institute of Public Administration Australia.
Alex was previously the CEO of Western Health, before she joined the board of Epworth
HealthCare group, one of Australia’s largest not-for-profit healthcare providers. She is
also a board director of the Central Adelaide Local Health Network.
311
Royal Commission into Victoria’s Mental Health System
Bernadette is the immediate past president of the Australian and New Zealand Association of
Psychiatry, Psychology and Law. For seventeen years, she was a legal member of the Mental
Health Tribunal of Victoria. She is currently a Commissioner of the Victorian Law Reform
Commission.
312
Volume 5 Chapter 38: The establishment of the Commission
Many staff had lived experience of mental illness or psychological distress, including as
consumers and carers. The Commission also employed Ms Cath Roper as a special adviser
on consumer lived experience, and Ms Nicole Cassar as a special adviser on Aboriginal
engagement.
There was a high level of flexibility in work arrangements due to the nature of the
Commission’s work. Some staff members worked for the full length of the Commission and
some joined for short-term engagements; work ranged from part to full-time. This level of
flexibility occurred across all teams.
313
Royal Commission into Victoria’s Mental Health System
Note: The Commission had a core contingent of 45 staff. This is an exhaustive list and includes staff who worked for
the Commission for short engagements and on a part-time basis. It also includes secondees who were engaged to
assist the Commission for a period of time.
314
Volume 5 Chapter 38: The establishment of the Commission
Patrick is the Executive Director of Orygen and Professor of Youth Mental Health at the
University of Melbourne. He is a world leader in mental health innovation, advocacy and
reform. In 2010, Patrick was selected as Australian of the Year. As a psychiatrist, Patrick
has worked in mental health for the past 40 years and is a prominent researcher in early
psychosis, youth mental health and clinical research more broadly.
Anne Doherty
Anne has extensive experience in leading and managing clinical mental health services, and
has a deep knowledge of clinical and corporate governance. Anne has worked in a range
of senior executive roles and has been a member of boards and state committees. She has
held leading executive portfolios at Monash Health and is a board member at the Butterfly
Foundation.
Honor Eastly
Julian Gardner AM
Julian has held several senior positions within the Victorian mental health sector and public
sector. Most recently, Julian was chair of the Mind Australia board, and has previously held
positions as the chair of advisory and consultation groups for the review of the Victorian
Mental Health Act. From 2000 to 2007, he was the Public Advocate for Victoria.
315
Royal Commission into Victoria’s Mental Health System
Erandathie Jayakody
Erandathie has a lived experience of mental ill health and recovery. Erandathie is a member
of the Mental Health Tribunal and an Assistant Director, Strategic Advice, Psychosocial
Disability at the National Disability Insurance Agency. She is the co-editor of the book Peer
Work in Australia: a new future for mental health.
Dr Gerry Naughtin
Gerry has had an extensive career in human services in the disability and aged care sectors,
and has a strong history of promoting consumer and carer participation in sector reform.
Gerry is the strategic adviser for mental health in the Strategic Advisers and Research
Division of the National Disability Insurance Agency, and was previously the CEO of
Mind Australia.
James is a clinical and forensic psychologist, academic, researcher and practitioner with
extensive experience in clinical and forensic mental health. He is Executive Director of
Psychology Services and Research at the Victorian Institute of Forensic Mental Health
(Forensicare) and a Distinguished Professor and Director of the Centre for Forensic
Behavioural Science at Swinburne University.
Jim Williamson
Jim started his career as a secondary school teacher and lecturer, and has worked as a
senior policy manager and consultant in public policy. He holds several advocacy roles
impacting on local government areas in the western region of Melbourne and has an interest
in developing a mental health system with a stronger community focus.
316
Volume 5 Chapter 38: The establishment of the Commission
1 Victorian Government, Announcement: Royal Commission into Mental Health Speech, 24 October 2018, p. 4.
2 Victorian Government, Announcement: Royal Commission into Mental Health Speech, p. 5.
3 Victorian Government, Announcement: Royal Commission into Mental Health Speech, p. 4.
4 The Age, Commissioners Named in Bid to Fix State’s ‘Broken’ Mental Health System, 24 February 2019, p. 2.
5 Victorian Government, Announcement: Royal Commission into Mental Health Speech, p. 4.
6 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, 2019, para. I.
7 Inquiries Act 2014 (Vic), Part 2, Division 3.
8 Inquiries Act 2014 (Vic), sec. 12.
9 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019.
10 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. II(b).
11 The Honourable Daniel Andrews MP, Premier of Victoria, Media Release: Statement On Extension For Royal
Commission, 5 May 2020, <www.premier.vic.gov.au/statement-extension-royal-commission>, [accessed 29
October 2020].
12 Victorian Government, Royal Commission into Victoria’s Mental Health System—Amended Letters Patent, 2020.
13 RCVMHS, Statement on Public Hearings, 19 March 2020.
14 The Honourable Daniel Andrews MP, Premier of Victoria, Media Release: Experts to Lead the Mental Health Royal
Commission, 24 February 2019, <www.premier.vic.gov.au/experts-lead-mental-health-royal-commission>, [accessed
1 September 2020].
15 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. IV.
317
Royal Commission into Victoria’s Mental Health System
318
Volume 5 Chapter 39: The work of the Commission
Chapter 39
The work of
the Commission
319
Royal Commission into Victoria’s Mental Health System
320
Volume 5 Chapter 39: The work of the Commission
The Commission’s approach to its inquiry was also informed by the complexity of its task and
the level of change to the mental health system that is required. As outlined in Chapter 2: The
Commission’s approach to reform, the Commission applied a systems change framework
to its work. Within this context, the Commission used a range of processes to develop its
understanding of the existing mental health system and to inform its recommendations
about the future system design. These processes included formal inquiry mechanisms, such
as gathering evidence through submissions and public hearings, drawing on academic
research and literature, and community engagement.
The Commission’s letters patent, which were informed by more than 8,000 community
contributions,1 asked it to ‘engage widely’.2 The letters patent also identified major population
groups for the Commission to consider in making its recommendations: in particular,
people who are at greater risk of experiencing poor mental health.3 In considering this, the
Commission committed to hear and take into account the needs of diverse communities
in Victoria.
As the Premier stated at the announcement of the extension of the Commission, ‘[f]rom the
outset of the Royal Commission, we understood that the voices of Victorians must be at the
heart of our reform.’4
The Commission made it possible for new insights about the mental health system to be heard
and incorporated into the future system’s design, by supporting continued conversations with
people with diverse perspectives, expertise and experience throughout its inquiry.
While the Commission understands that the term lived experience is used and understood in
different ways by different people, for the purpose of this report, the Commission builds on its
interim report and refers to people with lived experience to include:
• someone who is living with (or has lived with) mental illness or psychological distress, or
• someone who is caring for or otherwise supporting (or has cared for or otherwise
supported) a person who is living with (or has lived with) mental illness or psychological
distress.7
321
Royal Commission into Victoria’s Mental Health System
The Commission recognises that the needs of each group can be different, that one
individual can be in both groups, and that individuals identify in many ways.
It also recognises that there is a power imbalance when it comes to involving people with
lived experience in policy reform and system design, as described in more detail in Chapter 2:
The Commission’s approach to reform.
Ms Janet Meagher AM, an advocate for people with lived experience of mental illness,
highlighted in her witness statement that:
Often people with personal experience of mental illness have been taught that others
are the experts, that there is a professional who has ‘the answer’, knows what is best
and that there are only limited, rigid versions of the way forward.8
The Commission went further than the requirements of its letters patent to have ‘regard to …
the evidence of people with lived experience’.9 It continued to draw on the perspectives and
analysis of people with lived experience throughout all phases of its system design work,
through carefully designed engagement opportunities.
All inputs the Commission has received will be delivered to the Public Record Office Victoria
at the end of the Commission. This record of the Commission’s work and contributions made
to it will include submissions, witness statements and records of meeting proceedings.
From late March 2020, when the COVID-19 pandemic worsened in Australia, engagements
were quickly adapted and held in various online formats. Shifting to virtual engagement
benefited many participants by removing several barriers to taking part, including eliminating
travel time and increasing the flexibility for people to participate from their homes.
322
Volume 5 Chapter 39: The work of the Commission
323
Royal Commission into Victoria’s Mental Health System
324
Volume 5 Chapter 39: The work of the Commission
325
Royal Commission into Victoria’s Mental Health System
A wide variety of people attended the consultations to share their experiences of living with
mental illness or psychological distress, caring for someone living with mental illness, or
of working in the mental health sector. Some came to tell of losing someone they loved to
suicide. Some had described their experiences in previous forums, while others were taking
part in a formal consultation process for the first time.
The Commission heard from people working in acute, community and specialist services,
general practitioners, private psychiatrists, allied health and other professionals, youth
workers and numerous staff working in intersecting fields, such as community health services,
housing and homelessness services, family violence, and alcohol and other drug services.
There were also people from legal and justice services, financial counselling organisations,
local councils, schools, emergency services and gambling services, as well as state and
federal members of parliament, library staff and academics.
Many participants had their own lived experience of mental illness or psychological distress,
or were families, carers or supporters. The Commission noted that people often brought
multiple perspectives, and it appreciated the diversity this brought to the consultations.
Each session ran for about 90 minutes and was guided by a facilitator, allowing
Commissioners to move around the tables and listen directly to community members. Each
table had eight to ten people, and had a Commission staff member listening and taking
detailed notes while the participants discussed three questions:
326
Volume 5 Chapter 39: The work of the Commission
The level of interest in the community consultations often meant that multiple sessions
were held in one day, and that extra rooms were required to accommodate the number of
attendees. An example of this was the Box Hill community consultation on 20 May 2019. Three
sessions were held in Box Hill, with more than 170 people coming to share their contributions
with the Commission. The pictures at Figure 39.4 and Figure 39.5 show two of the rooms at
the Box Hill Town Hall where people gathered to have their say at the consultation.
327
Royal Commission into Victoria’s Mental Health System
Conversations at tables allowed participants to share their experience with a smaller group,
before joining in a plenary discussion inviting participants to share their insights and ideas
for change, including any new ideas they had, with the whole group. No topic was off limits in
the small groups or in plenary sessions.
Some participants also chose to share supporting information and documentation for
the Commission to consider. These contributions became part of the Commission’s
evidence base.
Following the community consultations, the notes Commission staff had taken were
combined and analysed, and a report was produced for Commissioners describing common
experiences and important issues participants had raised in response to the three questions
outlined previously. The Commission used this information to shape its work and help it
decide on topics for the 2019 public hearings.
The Commission received feedback from participants about the community consultations,
which was taken into account as it developed further engagement activities. Specifically,
the Commission heard from some participants that they wanted a more private opportunity
to provide input, and they did not always feel safe to openly share when they were in the
same space as others. For example, some consumers provided feedback that having
dedicated ‘consumer-only’ sessions would support sharing lived experience from a consumer
perspective and would go some of the way to addressing the power imbalance outlined earlier.
People attending the consultations could also make private and confidential submissions.
328
Volume 5 Chapter 39: The work of the Commission
When planning other engagements, the Commission provided a range of options that
included consumer-only, family and carer-only and workforce-only spaces for conversation.
The Commission received a range of feedback on the consultation process, with some
participants saying they felt their experiences were acknowledged by the process. For some,
this was the first time they have felt this in the context of the mental health system:
[The Royal Commission] is the first time I’ve felt like I could use my intelligence and my
experience to add to the picture.10
39.4 Submissions
The Commission issued a media release on 17 April 2019 calling for submissions until 15 July
2019. The call for submissions was open for 11 weeks and the Commission received 3,267
submissions.11
Input was sought from the general public, and all views and ideas for change were welcomed.
Those who shared their experiences included people who had lived experience of mental
illness or psychological distress, families, carers and supporters, people who worked in the
mental health or related sectors, services, academics and members of the public with a
general interest in mental health. Many submissions covered multiple topics, concerns and
suggestions.
329
Royal Commission into Victoria’s Mental Health System
Note: Totals may not add to 100 per cent due to invalid/unknown responses. Where totals exceeded 100 per cent, these
have been adjusted to 100 per cent.
330
Volume 5 Chapter 39: The work of the Commission
People could make submissions in a range of formats, so they could tell the Commission
about their experience or perspective in the way that best suited them. Box 39.2 describes
one example of the flexible options for people to share their stories with the Commission.
Submissions could be made online, via mail or email, by phone, or with audio or visual
content. They could also be made by telephone with an interpreter service.
Information about how to make a submission was provided in English, Easy English and in 16
languages other than English, with priority given to the most commonly spoken languages in
Victoria and the languages of newly arrived communities.
All submissions were read and reviewed. Where people agreed to their submissions being
public, the Commission published them on its website.
An older person wanted to share her story and ideas with the Commission as part
of the submission process. She said she was unable to handwrite her experience
and there was no one else to support her to do this. She did not have a computer
or the internet. Her only form of communication was her mobile phone, which she
regularly used to contact the Commission for updates.
The Commission worked with the person to find a way of making a submission
that suited her. It offered her options for listening to her story, such as talking with
a Commission staff member over the phone, coming to the Royal Commission
office to speak with someone in person, and having a Commission staff member
visit her at home. However, because she did not want to talk about her experience
in a concentrated period of time, she decided that she preferred to call after
business hours and leave her story on the Commission’s voicemail, in multiple
messages. This allowed her to make her submission over a number of evenings,
and to call at times that suited her. The Commission then transcribed the audio
recordings to capture her submission, which it published anonymously on its
website with her permission.
This process supported the person to make a submission. She was able to choose
a way to engage in the process that was flexible, accessible and made her feel
comfortable.
Some people chose to provide visual content, as a way of strengthening the points in their
written submission, as shown in Figure 39.7.
331
Royal Commission into Victoria’s Mental Health System
Figure 39.7: An anonymously published submission with pictures and diary excerpts from
when the writer was in an inpatient unit12
Diary entry 29th April: ‘I’m currently sitting in the communal area watching TV with everyone else. A new boy came in today and
he came in to solitary confinement which is pretty scary and full on. Last night the girl with anorexia was screaming and the
security guards tried to hold her and stop her from running out of here. I’m waiting for Mum to come I’ll maybe write a little later
but goodbye for now’.
The Commission’s long-form submission process took people through a structured online
questionnaire consisting of 11 questions about reducing stigma and discrimination,
preventing suicide, early intervention, and how people access, use and experience care,
treatment and support. People could answer the questionnaire alone or attach their
submission to the online form. The Commission also provided the option for people to
complete brief comments via a shorter online questionnaire that included a subsection of the
long-form submission questions.
Some submissions did both—they responded to the questions and provided additional
information for the Commission’s consideration. One submission provided a written response,
links to videos and an invitation for the Commission to attend a theatre performance, which
is described in Box 39.3.
332
Volume 5 Chapter 39: The work of the Commission
The performance aimed to show audiences the many realities of living with
mental health challenges, in the hope that the audience will gain a better
understanding of people’s lived experiences, build empathy and reduce stigma.
333
Royal Commission into Victoria’s Mental Health System
The work honours the lived experiences of the performers, placing them as
the experts and exploring what works and what urgently needs attention.
Through their storytelling, powerful and confronting, they are stimulating
very important dialogue.39
After the performance, the Artistic Director asked the audience to call out words
that reflected their impressions of the performance and how it made them feel.
Some of the reflections and words called out were ‘inspired’, ‘amazed’, ‘strength’,
‘encouraged’ and ‘talented’.
Listening to Voices Theatre has been using this unique creative form of advocacy
since 2016.
334
Volume 5 Chapter 39: The work of the Commission
The Commission also supported people sharing their experience with the Commission
to connect with the Mental Health Complaints Commissioner, if they wanted to seek an
individual remedy for a complaint about a mental health service.
Names of people other than the person who made the submission were generally redacted—
removed—to protect privacy. The protocol also detailed the Commission’s strict checking
process. Before publishing any submission, two different staff members checked the content
to make sure the file title matched the contents of the submission. They also checked the
submission against a list that outlined which category each submission belonged to—public,
anonymous or restricted—to prevent the accidental publication of confidential material.
People were notified about the publication of their submission in advance.
There were some site visits planned for the later stages of the Commission’s work in 2020,
but these could not occur due to COVID-19 restrictions. Instead, Commissioners had online
meetings with a range of different service providers to discuss practice and service delivery
models, and the benefits and limitations of particular facilities. Box 39.4 describes one of
these online meetings.
335
Royal Commission into Victoria’s Mental Health System
Academics, leading professionals and consumer leaders also provided input to the
Commission in various ways, including through public hearings and witness statements,
roundtable meetings, and by contributing information and supplementary submissions. The
Commission benefitted greatly from this expertise.
336
Volume 5 Chapter 39: The work of the Commission
One of the Commission’s meetings was with people at the Adult Mental Health
Rehabilitation Unit – Secure Extended Care Unit (AMHRU–SECU) in Sunshine.
Due to COVID-19 restrictions, the meetings took place via video conference. The
Commission met with the unit’s senior leadership team in a meeting chaired by
a Commissioner. The Commission also met with three people using the AMHRU’s
services and two AMHRU carers.
The meetings with the service users and carers focused on what they liked about
the environment and what they thought could be improved. The conversations
helped the Commission understand how both groups of people experience such
an environment.
A nurse attended with the service users to provide support and service users were
given the opportunity to speak to Commission staff without the nurse present.
The sessions were recorded with the service users’ and carers’ consent.
To help people to stay informed about the Commission’s work, it developed and distributed
its own communications and updates to the public through a range of digital formats. Its
website, for example, featured the most important information about the Commission,
including its letters patent, the interim report, and submissions and witness statements that
contributors had agreed to let the Commission publish.
Figure 39.9 shows that the Commission’s website received more than 488,400 views and
195,800 visits from more than 98,200 users as at 31 December 2020.
337
Royal Commission into Victoria’s Mental Health System
As well as keeping its website up to date, the Commission used Twitter to communicate and
promote its work, including giving details about its public hearings, live-tweeting important
events, and publishing witness statements and other content, including videos, media
statements and updates.
The Commission also published and promoted more than 25 different videos on its YouTube
channel, gaining more than 10,000 views.
People interacted with and shared content the Commission published on social media
with enthusiasm, particularly for milestones such as public hearings, the publication of
submissions and statements, and the launch of the interim report. The Commission had more
than 1,800 Twitter followers at the end of its inquiry.
Another way the Commission updated the public on its work was through regular digital
newsletters. People could subscribe to the newsletter on the Commission’s website or by
calling the 1800 number, and many did: the newsletter went out to almost 2,000 subscribers.
The Commission continued to interact with people with lived experience by holding Q&A
(question and answer) sessions with VMIAC, Tandem and the Youth Affairs Council Victoria
(YACVic). During these sessions, Commissioners responded directly to questions from people
with lived experience from across Victoria, and detailed the Commission’s work to date. The
shift to digital meant that sessions held after April 2020 were able to be easily recorded and
made available online for viewing by a wider audience.
Figure 39.10 was taken during a Q&A forum with VMIAC in 2020.
338
Volume 5 Chapter 39: The work of the Commission
39.7.1 Correspondence
The Commission received a range of correspondence, which supported it in all stages of its
work. This included correspondence from people providing or seeking extra information from
the Commission. In total, the Commission received more than 1,300 items of correspondence.
All correspondence was read by a Commission staff member. The Commission valued the
time and care people took to send correspondence. By responding with a similar amount of
time and care, the Commission hoped people would feel they had been heard and that their
contribution would continue to inform the Commission’s work.
339
Royal Commission into Victoria’s Mental Health System
Commission staff also provided a supportive contact point if people wanted to talk about
their concerns or experiences with mental health and the mental health system.
Commission staff managed and responded to correspondence and calls to the support
telephone line by following Commission protocols that included the:
• Referral protocol between the Commission, the Department of Health and Human
Services, Melbourne Health and Monash Health
• Referral protocol between the Commission and the Victorian Fixated Threat
Assessment Centre
• Personal story collection protocol
• Protocol on public communications
• Privacy policy.
While this Royal Commission was asked to run a policy-focused inquiry, the public hearings
took a legal format, and had the benefit of allowing evidence to be publicly presented and
tested through examination by Counsel Assisting. The Commission’s policy staff worked
closely with Counsel Assisting to ensure the hearings were able to effectively explore
important policy questions.
Witness statements provided background, history and context, allowing for a depth of
understanding that could be explored during the hearings. Counsel Assisting’s questions
enabled further analysis of the evidence. The approach Counsel Assisting took to questioning
supported witnesses to put their views forward.
On the first day of the hearings, the Commission showed a short animated video it
had prepared about the current Victorian mental health system. The video provided
Commissioners, Counsel Assisting, witnesses and those attending the hearings or watching
remotely, with a shared context for what would be covered in the hearings and why. This
video was also shared through social media channels and viewed more than 1,500 times.
Figure 39.11 is of the public hearings taking place at the Melbourne Town Hall in July 2019.
340
Volume 5 Chapter 39: The work of the Commission
During the hearings, the Commission heard from witnesses about issues and questions
relevant to its terms of reference contained in the letters patent. As noted above, hearing
topics were informed by what the Commission had previously heard. Witnesses included
consumers and carers, service providers, and workforce and government representatives.
• stigma
• prevention and early intervention
• accessing and navigating the mental health system
• carers and family
• supports for and the needs of particular groups, including rural communities,
Aboriginal people, LGBTIQ+ people, and culturally and linguistically diverse communities
• community resilience
• suicide prevention
• prioritisation and delivery of mental health services.
To support the Commission’s focus on rural and regional mental health needs, a regional
hearing day was held in Maryborough in the Central Goldfields. A day-long hearing
that focused on the needs of Aboriginal people in Victoria was held at the Aborigines
Advancement League in Thornbury.
Witness statements and transcripts from the hearings are available on the Commission’s website.
341
Royal Commission into Victoria’s Mental Health System
Although most of the hearings were open to the public and livestreamed, the evidence of
some witnesses was the subject of a restricted publication order. This meant that identifying
information about a witness could not be published on the Commission’s website. On a
small number of occasions, the hearings were closed to the public to protect the privacy of
witnesses and their families.
39.8.1 Witnesses
The Commission heard from 99 witnesses during the 2019 hearings. Thirty community
witnesses spoke about their lived experience—18 from personal experience and 12 from the
perspective of being family members, carers and supporters of people living with mental
illness or psychological distress. The Commission heard from mental health professionals,
police officers, paramedics and leaders in research, service management and education.
Witnesses outside of government and mental health services were also supported by the
Commission’s Counsel Assisting to make their statements.
The support that the Commission gave witnesses extended to interactions with the media.
Throughout the hearings, there was considerable media interest and coverage. Metropolitan
and regional media attended each day and were given a dedicated space with screens and
audio feeds. Commission staff acted as a liaison between witnesses and media to support
individuals to share their stories, and to encourage consistent and accurate media coverage
about mental health.
The Commission also created some short videos featuring witnesses to promote and
highlight content from the public hearings, and to give a sense of the evidence received to
those who did not watch the hearings. These videos were promoted on social media and
online, and shared with those involved for distribution.
• sharing videos about what it was like for witnesses to give evidence before the
Royal Commission into Family Violence in formal hearings, featuring the generous
contribution of two witnesses with lived experience of family violence
342
Volume 5 Chapter 39: The work of the Commission
The Commission’s efforts to support witnesses were well received, with the Commission
continuing communications with community witnesses throughout its duration:
Thank you for your wonderful words and thank [you] for all of your wonderful support.
[Y]our team had been so good to me throughout this whole experience. It is what any
mother would do and by knowing how painful it is for another mother to go through a
mental health journey and suicide, that is why I did the Royal Commission.13
The Commission took care to provide detailed information on its website for those who wanted to
attend the hearings, putting thought and care into trying to make people feel safe and welcome.
• preparing a factsheet for the general public that outlined what to expect at a Royal
Commission hearing and a sense of what would happen on the day
• developing a protocol outlining how the Commission wanted people to be treated and
welcomed and discussed this with venues in advance of hearings
• having Commission staff present to welcome and guide people at access points
• providing physical security to ensure everyone’s safety, while maintaining a welcoming
atmosphere
• allocating an extra, less-formal space for people to watch the livestream, without
having to be in the hearing room: this was a room where people could talk to each other
and help themselves to refreshments—colouring books for children were also provided
343
Royal Commission into Victoria’s Mental Health System
• providing a dedicated space for media, which allowed Commission staff to act as a
liaison with witnesses first to confirm their wishes to speak with media, and to provide
support before and after any interviews
• providing trained counsellors, and a private area for conversations with them at the
hearing venues: this included counsellors from the Victorian Aboriginal Health Service
at the hearing day at the Aborigines Advancement League
• providing childcare support at the Aborigines Advancement League
• providing refreshments, ranging from tea, coffee and biscuits at the Melbourne Town
Hall, through to a catered lunch at Maryborough and the Aborigines Advancement
League, in recognition that food outlets were not always available or accessible.
The protocols set out procedures to de-escalate situations; for example, if there was violence
or threat of violence. The procedures outlined circumstances under which the Commissioners
and audience would be removed from the hearing venue, and when police would be called
(this would only be if there was an emergency, not if someone merely disturbed proceedings).
In line with the Commission’s commitment to support people to express their opinions, the
protocol specified that while people may be asked to leave a hearing if they were disrupting
it, there should be no intent to limit people’s ability to express themselves in a way they chose.
The company surveyed more than 3,000 Victorians in July 2019. The survey was
complemented by five focus group discussions across Victoria, involving 46 people: two
groups in Richmond, and one each in Frankston, Traralgon and Warrnambool.
A summary of the findings was published on the Commission’s website and Figure 39.12
details the survey respondent characteristics.
The information from this survey informed the Commission’s assessment of issues outlined
in its interim report. The content also helped to shape the Commission’s work in 2020 on
stigma, discrimination and the role of communities, places and sectors in supporting better
mental health.
344
Volume 5 Chapter 39: The work of the Commission
These roundtable meetings were used to explore the diverse needs of Victorians, with a
focus on the needs of Aboriginal people, LGBTIQ+ people, culturally and linguistically diverse
communities, people with neurodiversity and intellectual disabilities, older people and young
people. They were also used to examine intersecting service systems, including housing,
alcohol and other drugs, and the justice system. A full list of roundtables and attendees is at
Appendix C.
345
Royal Commission into Victoria’s Mental Health System
The Commission valued the contribution and voices of rural and regional
Victorians, and hearing about the unique challenges and opportunities these
communities face. The Commission visited specific communities and connected
with services, community leaders and people with lived experience, supporting its
commitment to rural and regional perspectives.
While COVID-19 restrictions meant that plans for more hearing days and
roundtables in rural and regional locations in 2020 had to be revised,
arrangements were made to continue with online roundtables with communities
in East Gippsland and north-eastern Victoria.
Participants from rural and regional services were invited to attend topic-
based roundtables by travelling into the city, using technology to participate, or
responding to written questions, instead of attending. Moving to digital delivery
also removed travel as a barrier for participation in focus groups, and enabled
people who may not otherwise be able to be involved to take part—the same was
true for roundtables.
346
Volume 5 Chapter 39: The work of the Commission
Commissioners and Commission staff read personal stories to understand the current
system and develop recommendations. Personal stories provided important input into the
Commission’s policy design and research, by detailing the realities of service delivery from
a variety of perspectives and the practical implications of existing policy decisions. The
Commission collected stories from more than 100 people from August 2019 to November 2020
and documented what people would like to see changed in the system.
A selection of personal stories was published in the Commission’s interim report and personal
stories are an important feature of this final report. To ensure that people were comfortable
with the final form of any story selected for publication in one of the Commission’s reports,
the personal stories protocol outlined a process for checking this with them.
The Commission also collected personal stories from a range of other sources. For example,
the Commission received stories directly from community members, and from peak bodies
and services. In addition, the Victorian Government provided funding to several organisations
to assist them to provide stories to the Commission, including VMIAC, Tandem, Victorian
Aboriginal Community Controlled Health Organisation (VACCHO), Mental Health Legal Centre
and Victoria Legal Aid.
These materials have been shared with Commissioners and policy staff to inform their
analysis of current issues, and to test whether ideas for change may have made a difference
to their situation:
It was good to talk to you. We had the sense that you were really listening to us, which
was most heartening as it hasn’t happened much with the health professionals whose
job has been to help our son. So we appreciated it.14
I’m only just learning the power of my story, I thought it was just very ordinary ...
Somebody said to me once … ‘once you are heard, you begin to heal’ and I think that is
really important because a lot of these experiences are very isolating ... So to finally be
heard and listened to, I can now heal.15
347
Royal Commission into Victoria’s Mental Health System
The interim report was accompanied by an executive summary, Easy English outline and
a short animated video outlining the purpose of the report and key recommendations. The
video received more than 2,200 views.
The interim report was an important first step towards reforming the mental health system,
making a number of priority recommendations. These changes were aimed at addressing urgent
problems and preparing the foundations for further reform. The interim report highlighted the
scale of change required and foreshadowed that a comprehensive set of recommendations for
transforming Victoria’s mental health services will be presented in this final report.
On 28 November 2019, the Commissioners led a media doorstop event on the steps of Parliament
House to launch the interim report. On the same morning, the Commission held a public launch
at the Melbourne Town Hall with almost 200 attendees, including community witnesses and
representatives from mental health services, peak bodies and government departments.
The Commission wanted the interim report launch to replicate the feel of the public hearings:
welcoming and inclusive. Therefore, similar thought and care went into preparations for the
launch. The Commission formally presented the report and answered attendees’ questions.
The launch was recorded and made available online, along with the Chair’s opening remarks
and presentation slides. The event shown in Figure 39.13 was also live-tweeted via the
Commission’s Twitter account.
Figure 39.13: Interim report launch at Melbourne Town Hall on 28 November 2019
348
Volume 5 Chapter 39: The work of the Commission
Aunty Nellie Flagg, an Elder and a Taylor-Charles, whose traditional countries are
Wemba Wemba, Dja Wurrung and Boonwurrung, was the first witness to appear before
the Commission that day. She reflected that, ‘when Aboriginal people talk about our
health, we don’t do it in isolation. Mental, physical and spiritual health is holistic. We
need not only to treat the person who is being damaged, but their families too.’16
Before publication of the Commission’s interim report, the Chair of the Commission
hosted several roundtables with leaders of Aboriginal services and people who had
appeared before the Commission as witnesses at the Aborigines Advancement League.
The Commission received compelling evidence from Aboriginal witnesses and services,
which recommended expanding multidisciplinary models of care that apply the
Aboriginal concept of social and emotional wellbeing. Social and emotional wellbeing
means being resilient, being and feeling culturally safe and connected, having and
realising aspirations, and being satisfied with life.17
349
Royal Commission into Victoria’s Mental Health System
In that report, the Commission recommended that the Victorian Government expand
social and emotional wellbeing teams throughout Victoria, and that these teams be
supported by a new Aboriginal Social and Emotional Wellbeing Centre.
• examinations of housing
• the needs of older Victorians
• mental health services for children and young people in the youth justice system
• courts
• criminal justice services
• forensic justice services
• practitioner regulation.
The Commission was grateful for the attendance of Aboriginal organisations and
community members at regional roundtables in Traralgon, East Gippsland and
north‑eastern Victoria.
The Commission also held dedicated focus groups with carers who identify as
Aboriginal, and appreciated the assistance of the Victorian Aboriginal Legal Service
in identifying Aboriginal participants who have experience of mental illness and the
criminal justice system for the focus groups.
The Victorian Government also funded VACCHO to consult and support the
Commission’s work. This consultation took place in 2020 and resulted in Balit Durn
Durn: Strong brain, mind, intellect and sense of self, a report to the Commission that
was delivered in October 2020.
Jill Gallagher AO, CEO of VACCHO, said of the Balit Durn Durn report:
For the first time in history, Aboriginal leaders, organisations, people, families,
carers, and communities were given the opportunity to have their voices and
experiences included in a redesign of the mental health system through the
Royal Commission into Victoria’s Mental Health System.
This report explores the power of Aboriginal culture. It outlines ways to build strength,
resilience, connectedness and identity in Aboriginal people and communities to
create essential pathways for fostering positive mental health and wellbeing.18
The Commission thanks the many Aboriginal people who contributed to its
consultations and to the Balit Durn Durn report. People contributed with courage and
generosity, often sharing their difficult experiences during the COVID-19 pandemic, and
over periods of mourning in the community.
350
Volume 5 Chapter 39: The work of the Commission
To support the nature and ambition of its task, Commissioners expanded the typical royal
commission model of engagement to include participation in the process of designing the
new mental health and wellbeing system.
Human-centred design is about defining and solving problems. It puts those experiencing a
problem at the heart of the design process by working with them to come up with solutions. It
provides a ‘powerful alternative philosophy for systems design, and broader educational and
societal development’.19
From November 2019 to June 2020, the Commission undertook the first stage of its human-
centred design approach. The focus groups were held in Wangaratta, Bairnsdale, Traralgon,
Frankston and Melbourne. The Commission organised and ran focus groups in November
and December, which were facilitated by the external consultant who had adapted the
methodology. From December to June, Commission staff ran focus groups, with external
facilitation engaged at times to support participation.
The Commission worked closely with VMIAC, Tandem and a range of other services, to identify
and support participants for the human-centred design sessions. In response to feedback
from community consultations, and in discussion with Cath Roper, Consumer Adviser to the
Commission’s CEO, focus groups were split into separate consumer and carer sessions. This
was intended to provide a dedicated and safe space for open discussion about the difficulties
with the current system and aspirations for the future.
To assist participation, the Commission had a support person at every session and—
depending on whether the session was for consumers, families, carers or supporters—a peer
support worker from VMIAC or Tandem. Participants were also welcome to bring their own
support person.
351
Royal Commission into Victoria’s Mental Health System
Participants and focus group locations were chosen to reflect a mix of experiences of mental
illness or psychological distress and caring, ages and geographic location. The range of
experiences covered included experience in inpatient services, clinical settings, youth mental
health services, aged mental health services, and experience of mental illness and alcohol
and other drug services.
The Commission also held a series of dedicated human-centred design focus groups with
people who had experience of mental health illness or psychological distress and the
justice system:
The Commission heard from 36 people across six focus groups, who had
experience of mental illness and recent experience of the criminal justice system.
The sessions were interactive and accessible—a high level of literacy was not
required, participants could request interpreters and bring their own support
people, and venues were in central locations close to transport. A graphic
recorder captured the conversation using a range of pictures, images and key
words. Refreshments were provided, and created an informal and welcoming feel.
In jail, the psychiatrist changed every six months. So, every six months, you’d
have to go through your backstory, your origin story. Again. I wouldn’t do
that. I tell them, read the files. I got sick of repeating my life story.21
352
Volume 5 Chapter 39: The work of the Commission
The Commission brought various materials that summarised some of what it had already
heard to these focus groups, to test its understanding of the issues and barriers people had
experienced in the mental health system. The materials included diagrams of the current
system experience, and statements about challenges consumers and carers had shared
about their experience with the mental health system.
The Commission wanted the focus groups to be a positive experience for participants,
despite the conversations centring on difficulties and challenges with the existing mental
health system. The Commission worked hard to adapt and deliver the methodology in a way
that was respectful and considerate of people’s differences, experiences and circumstances.
I found the HCD [human-centred design] session last year incredibly powerful and
gained some new friends from that group of people. I was terrified of participating but
found the participants, Royal Commission staff … and the whole process incredibly
supportive, so the experience was a very positive one.22
353
Royal Commission into Victoria’s Mental Health System
354
Volume 5 Chapter 39: The work of the Commission
Each session ran for up to two and a half hours, and were audio recorded and transcribed.
Focus group conversations were captured by a graphic recorder who used a variety of
pictures, words and symbols to create a record of the key things that were discussed on a big
piece of paper, referred to as a canvas. The canvases, detailed notes and transcripts were
provided to Commissioners and Commission staff to support the development of ideas and
decision making.
Stories and quotes used by the Commission from the session were kept anonymous.
On a Saturday morning, a group of young carers from across the state came
together in the Melbourne CBD to talk about their specific challenges and
aspirations. For some of these young people, it was their first time being part of
focus group, while others were young leaders in the advocacy space. The group
was a revelation for some participants, who exclaimed that they did not know
there were so many others with the same or similar experience as them. The
planned two-hour focus group went for closer to three hours, with conversations
continuing after the session formally ended. The young participants made
connections and started a WhatsApp group to continue the conversations and
support to each other.
An insights report from the phase 1 human-centred design process was prepared and
presented to the Commissioners by external consultants in January 2020. It provided detailed
analysis of themes from the focus groups held in November and December 2019. The analysis
in the report was used by the Commission to inform and shape options for the design of the
future mental health system.
355
Royal Commission into Victoria’s Mental Health System
The session with the peer and lived experience workforces was co-facilitated by a lived
experience expert. The Commission engaged an independent peer support person to sit in on
the session and provide supervision and debriefing as needed for those attending the focus
group. One participant observed:
I am very impressed with the integrity of the Royal Commission and it gives me a lot
of hope for the future of mental health. I hope this process will enable us to help many
people, to overcome barriers and prepare Australia for future challenges. I am grateful
for everyone’s efforts. Thank you.23
The public hearings had been scheduled to start in late-April 2020 and to run
for four weeks—during the anticipated peak of the first wave of COVID-19 in
Melbourne. The scheduled commencement of the Commission’s hearings, a
few weeks after isolation measures were first introduced, did not allow time for
alternative hearing formats to be put in place that would both ensure safety and
support the smooth participation of Commissioners, Counsel Assisting, witnesses,
lawyers for witnesses and support staff.
This was not a decision made lightly. Consideration was given to a range of
options to progress the second round of public hearings, while also managing the
logistics and risks associated with COVID-19, which were still emerging, including:
356
Volume 5 Chapter 39: The work of the Commission
As well as cancelling the hearings, the Commission cancelled four focus groups
with lived experience participants. All participants were invited to share
their personal story with the Commission via a one-on-one phone call with a
Commission staff member, or via email or mail.
Four focus groups planned with workforce participants were postponed and
delivered via an online format in May and June 2020.
The Commission also put in place a digital process to collect witness statements
from people who had been scheduled to give evidence at the Commission’s 2020
hearings. This process is outlined in section 39.14.
357
Royal Commission into Victoria’s Mental Health System
The move to more flexible, online participation helped many people engage with
the Commission. For example, Q&A sessions between Commissioners and families
and carers were attended by 70–90 people, rather than the 30 or so who may
have been able to attend a similar meeting in the Melbourne CBD.
While physically distanced, many witnesses with lived experience had one-on-one
conversations with a Commissioner that were more personal and direct than the
experience at a public hearing.
The Commission assisted people to build their skills and knowledge using digital
technology, offering every person invited to an online lived experience focus
group and workshop the opportunity to test the technology with Commission staff
prior to the session. This meant that participants entered sessions confident that
they could actively take part. If technology or an internet connection failed during
online engagements, the Commission contacted participants to offer technical
support, and to invite them to share anything they may not have been able to
share in the session.
All participants were offered an opportunity to send through any other thoughts
or information related to the session in the days after their involvement, via
phone, email or mail.
358
Volume 5 Chapter 39: The work of the Commission
Community witness statements were collected with the support of a Commission staff
member as a consistent point of contact. This support evolved based on feedback from the
2019 hearings: for the 2020 hearings, the Commission gave witnesses the option of having
a preparatory or debriefing session with a counsellor or allied health support person of
their choice. This was in addition to the offer of support from a psychologist engaged by
the Commission.
People giving evidence from the perspective of their lived experience and lived expertise
were offered a one-on-one online meeting with a Commissioner to talk about their witness
statement in more detail. The online meetings showed the ways that people adapted to and
used digital formats.
Through the online meetings, witnesses and Commissioners shared parts of their lives,
meeting from their homes, which brought a personal flavour to the conversations. There were
pictures hanging on walls, shelves of books and boardgames, and the sights and sounds of
daily life continuing: children and pets in the background, ringing doorbells and cats walking
in front of the camera. There was also the odd technical difficulty that participants worked
through with support from a Commission staff member. A number of these videos have been
published on the Commission’s website.
Community witnesses reflected on the process of discussing their statements, and how it felt
speaking to Commissioners from their homes, as opposed to the more formal hearings forum:
Thank you again for assisting in bringing my meeting with your Chair, Penny Armytage
to life—it was an incredible opportunity for me that I am still very grateful for … So much
appreciation for what we have created as a team.24
Thanks for giving me this platform and opportunity to share my experiences with
Commissioner McSherry to possibly help others.25
Just a note to say how grateful we are to you for arranging a chat with Professor Fels.
We had a great time and he seemed genuinely interested.26
I actually preferred to be in my own home. It helped me feel that the power was more
equal. And it was surprisingly comforting to have Angus [the cat] there with me.28
359
Royal Commission into Victoria’s Mental Health System
Miss Denna Healy, witness and spoken word poet, provided a poem as part of her witness
statement. The poem was recorded and the video was published on the Commission’s
website. Following is an excerpt from the poem.
I see you.
Your mind ruminating about what you could have done differently,
how you could have shown up, who you would rather be ...
You’re in a constant state of disconnect.
With every day flowing into the next.
Anxiety engraved within your being like it’s your middle name.
Mind racing.
Heart thumping; breaking, and growing with every beat.
I hear you.
You cry yourself to sleep most nights, exhausted after long days of
wearing a facade and keeping your truth held close to your chest.
It feels hard to trust.
To open up.
To love.
To risk being hurt yet again.
Vulnerability is a strength disguised as a weakness within
society—opening the door to connection when fully embraced.
I forgive you.
For starving yourself—physically, mentally, emotionally and spiritually.
You weren’t as present as you could have been in life because you didn’t
believe that you had a place in the world.
Your eyes were closed off from the beauty that has always lived within you.
360
Volume 5 Chapter 39: The work of the Commission
361
Royal Commission into Victoria’s Mental Health System
Working Group members provided advice on reforms related to the leadership of people
with lived experience of mental illness or psychological distress, with a view to creating
an enduring foundation for a future mental health system that is grounded in consumer
expertise. They were invited to consider and provide expert advice on policy proposals.
Members were encouraged to be bold and innovative in their ideas for reform.
The Commission also provided informal opportunities for members to gather and network
online, to ensure they had the space to share ideas, prepare for and debrief after meetings,
and develop their own ideas.
The Commission appreciated the advice, thoughtfulness and generosity of Working Group
members who provided input to the Commission. This input informed the deliberation of
Commissioners who are responsible for the recommendations of the Commission as a whole.
The Commission acknowledges that many members, like many other people with lived
experience of mental illness or psychological distress, have contributed to similar processes
before, sharing their hopes and aspirations to little or no avail. Like the Working Group
members, the Commission hopes this process will be different—that it will lead to a reformed
mental health and wellbeing system that meets the evolving needs and desires of consumers,
and people living with mental illness and psychological distress.
362
Volume 5 Chapter 39: The work of the Commission
A total of 139 consumers and carers with a range of experiences and backgrounds attended
24 virtual focus groups hosted by the Commission, with policy staff in attendance. Topics
covered during the focus groups included core components of the future service model, such
as crisis responses, entry pathways, community integrated mental health services, primary
care, alcohol and other drugs, suicide prevention, bereavement by suicide, perinatal mental
health, housing, bed-based services, information sharing, services for young people, carers of
young people, restrictive practices and compulsory treatment.
In most focus groups, a visual prompt was used to illustrate a range of policy options that had
been raised with the Commission. This tool helped to bring previous contributions into the
room, and supported people with lived experience to share in the analysis of potential policy
directions and provide feedback directly to the Commission’s policy staff.
Focus groups were held online, and most were led by a facilitator with lived experience. The
shift to online engagements, while reducing geographic barriers to participation, did require
participants to use an internet-enabled device. In light of the changed delivery, the format
was adapted. Participants were invited to log into the session to meet the facilitator and
support staff, and settle into the online ‘room’ before the Commission’s policy staff joined.
Many participants positively reflected on their experience participating in the focus groups,
speaking of how they felt heard, and hoped for positive change in the future:
Thank you all for the experience and opportunity to speak of our humanity and solutions
to power over problems ... It was cathartic in terms of seeing that someone sees our
humanity. Thank you.30
Thanks for allowing me the chance to be involved in the focus group. I hope I brought
something valuable to the table/discussion ... Anyway I had a great experience and hope
for some positive change for my local mental health system.31
363
Royal Commission into Victoria’s Mental Health System
Figure 39.15: Canvas capturing a focus group conversation about suicide prevention on 10 July 2020
364
Volume 5 Chapter 39: The work of the Commission
365
Royal Commission into Victoria’s Mental Health System
This topic was particularly important in the context of COVID-19, which saw
changes to, and in some cases the closure of, various industries.
It was a privilege to join the roundtable and to hear and learn from others.32
366
Volume 5 Chapter 39: The work of the Commission
The COVID-19 restrictions saw the Commission adjust its plans, including
cancelling public hearing days planned for East Gippsland and north-eastern
Victoria, areas that had been significantly affected by the 2019–20 summer
bushfires. The Commission instead held regional roundtables in these areas,
once management of COVID-19 restrictions within those communities had been
well established, and people and organisations were in a position to talk with the
Commission again.
Each area was unique in what they brought to the roundtable, with
themes such as:
Case studies and personal experiences were presented to the Commission. For
example the story of a primary-school-aged boy living with family conflict, who
was evacuated from two houses during the fires in early 2020. The school noted
changes in his behaviour, including a decline in his schooling, suicidal ideation,
self-harm, destructive behaviour at school and threats of harm to others. The
school and family both tried to access child and youth mental health services, but
were told there were no services available for him. The child was without mental
health support services until a hospital admission.
Another personal story was from a local farming couple who lost their home and a
large amount of their farming crop in early 2020. They spoke about the realities of
farming life: drought, fire, flood and succession planning.
it was a very, very stressful period like for probably 18 months to two years
having to make phone calls every month on who we can pay and who we
can’t pay and how we’re going to hang on is very difficult and then dealing
with a young family at the same time.33
367
Royal Commission into Victoria’s Mental Health System
These roundtables echoed what the Commission had heard about the differences
between regional and rural living, and what this means for people living with
psychological and emotional distress. A common theme that came up was the
importance of local knowledge and service providers.
It was totally useless; I spent all my time trying to explain to the counsellor/
mental health worker about the farm or why what they were suggesting
wouldn’t work or that the referral they gave me was to a service that is
miles away.34
Our community that we look after is quite diverse and it’s from farming,
small industry, small business professionals, environmental groups and it’s
quite a low socioeconomic area.35
The Commission was grateful for the work of the hosting organisations and
those who gave presentations to the Commission to demonstrate the distinctive
barriers and opportunities in their areas.
368
Volume 5 Chapter 39: The work of the Commission
The Commission worked with organisations and unions across the mental health sector to
promote the survey and encourage participation.
Responses were collected across a wide range of professions, roles and workplace settings,
broadly reflecting the diversity of the mental health workforce across Victoria. While
just under 5 per cent of survey responses received were from workers primarily in a lived
experience role, the majority of respondents across diverse professional roles and settings
reported having lived experience of mental illness, or of caring for a friend or family member
living with mental illness. This illustrates the breadth of lived experience in the current mental
health workforce. Many respondents expressed their appreciation of the opportunity to
contribute to the Commission. The workforce survey, as shown in Figure 39.16 was open from
27 July to 12 August 2020.
369
Royal Commission into Victoria’s Mental Health System
Local community members in Wangaratta and south eastern metropolitan Melbourne met
with the Commission on 6 and 7 October 2020 respectively in two separate online workshops
to talk about what communities can do at a grassroots level to strengthen wellbeing and
promote good mental health. The workshops were not looking at the mental health system
specifically, but focused on prevention and promotion. Involvement in this conversation,
unlike human-centred design focus groups, was not limited to people with lived experience.
In fact, the invitation was broad to encourage any member of the public with an interest in
prevention and promotion to attend.
Attendees included parents, young people, older people, workers in the health and human
services systems, artists and playwrights, school teachers and principals, faith leaders,
tradespeople and sporting club members. While lived experience of mental illness or
familiarity with the mental health system was not required, participants brought a range of
experiences, some of which included lived experience.
The workshops were interactive and ran for two and a half hours, with participants allocated
to smaller groups to discuss social connectedness and the roles that communities can play
in promoting good mental health and wellbeing. The Commission heard that social isolation
and loneliness in communities are associated with poor mental health and are increasing in
Victoria, particularly among older Victorians.
Conversations in the workshops spanned definitions of good mental health and wellbeing,
promoting good mental wellbeing in day-to-day activities, and opportunities to strengthen
these from a grassroots perspective. People spoke about the importance and the difficulty of
building community connections, as well as supporting wellbeing, particularly where people
are adapting to new environments:
The young kids, especially the young men, really are developing their bonding with
the soccer teams. They love it, they engage with it; I have a client, a kid who’s lost
three to four years in the detention camp now back to school. And he’s thriving in that
environment, connecting, developing bonding with other culture voices from the other
cultures. So I think outdoor activities definitely helped them.37
Commission staff attended to hear from participants directly, help guide discussion and take
notes of the proceedings. A graphic recorder captured the conversation using a variety of
words and pictures as shown in Figure 39.17.
370
Volume 5 Chapter 39: The work of the Commission
371
Royal Commission into Victoria’s Mental Health System
Figure 39.17: Canvas recording of the conversation held with members of the south eastern
metropolitan Melbourne community as part of a community workshop on 7 October 2020
372
Volume 5 Chapter 39: The work of the Commission
373
Royal Commission into Victoria’s Mental Health System
All of the information the Commission has received throughout its inquiry has informed the
final report and the Commission’s recommendations.
While policy analysis and research proceeded across the Commission’s inquiry, the core
writing for the final report took place from October to December 2020, after the Commission
closed its public engagements at the beginning of October 2020.
The final report is accompanied by a summary and recommendations, Plain Language and
Easy Read outlines, and a short animated video.
374
Volume 5 Chapter 39: The work of the Commission
39.22 Acknowledgements
The Commission would like to thank all those who made contributions to this inquiry—people
with lived experience, members of the workforce, academics, government officials and those
in related fields—for sharing their time, perspectives and ideas. The fact that engagement
with the Commission continued at pace during the COVID-19 pandemic was a testament to
the considerable interest and dedication of so many in the Victorian community to building
a better mental health and wellbeing system. The Commission is particularly grateful for
the many contributions from people with lived experience, and recognises that these
contributions were often deeply personal and sometimes difficult for people to share.
The Commission acknowledges that many people shared personal, sometimes tragic
experiences in the generous hope of improving treatment, care and support for others:
It is my hope that by sharing some of my experiences, I can help be part of the process of
change, so that no other child or adolescent has to go through what I went through in an
attempt to recover from a mental illness.38
The Commission was supported by strong connections with key lived experience peak bodies,
VMIAC and Tandem, and also by VACCHO. The Commission acknowledges the support of
these organisations and thanks them for the commitment they showed to the Commission’s
work, and for supporting a wide range of people with lived experience to engage with the
Commission.
The Commission would like to acknowledge several people who assisted the Commission with
its policy work and processes, often over many months: Chris Kotur; Gemma Varley; Shane
Solomon; Professor Hal Swerissen; Professor Rod Glover; James Mansell; Gareth Edwards;
Dr Nina Terrey; Max Harman; Simon Katterl; Cathy Balding and Lesley Thornton. While all
of the work in this final report is that of the Commission, these individuals supported legal,
engagement and policy processes.
375
Royal Commission into Victoria’s Mental Health System
1 The Honourable Daniel Andrews MP, Premier of Victoria, Media Release: Experts to Lead the Mental Health Royal
Commission, 24 February 2019, <www.premier.vic.gov.au/experts-lead-mental-health-royal-commission>, [accessed
1 September 2020].
2 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, 2019, para. IV(i).
3 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. I(4).
4 The Honourable Daniel Andrews MP, Premier of Victoria, Media Release: More Time to Design a Better Mental
Health System for Victoria, 27 May 2020, <hnb.dhs.vic.gov.au/web/pubaff/medrel.nsf/AllDocs/ABA0B5C3D6194D
D5CA2585750006C1BB/$FILE/200527-More-Time-To-Design-A-Better-Mental-Health-System-For-Victoria.pdf>,
[accessed 7 January 2021].
5 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. III(a).
6 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. IV(f).
7 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 5.
8 Witness Statement of Janet Meagher AM, 1 July 2019, para. 35.
9 Victorian Government, Royal Commission into Victoria’s Mental Health System—Letters Patent, para. III.
10 RCVMHS, Seymour Community Consultation—May 2019.
11 RCVMHS, Media Release: Have Your Say to Improve Victoria’s Mental Health System, 17 April 2019, <rcvmhs.vic.gov.
au/news/have-your-say-improve-victorias-mental-health-system>, [accessed 28 October 2020].
12 Anonymous 107, Submission to the RCVMHS: SUB.0002.0032.0056, 2019, pp. 3 and 9.
13 Correspondence from ‘Susan Trotter’ (pseudonym), July 2019.
14 Correspondence from Anonymous, April 2020.
15 RCVMHS, Interview with Julie Rickard, August 2020.
16 Witness Statement of Aunty Nellie Flagg, 9 July 2019, para. 35.
17 Department of Health and Human Services, Balit Murrup: Aboriginal Social and Emotional Wellbeing Framework
2017–2027, 2017, p. 50.
18 Victorian Aboriginal Community Controlled Health Organisation, Correspondence to the RCVMHS:
CSP.0001.0114.0001. Balit Durn Durn Report, 2020, p. 10.
19 Mike Cooley, Chapter 4: Human Centred Design, in Information Design (Massachusetts Institute of Technology: MIT
Press, 1999), pp. 59–82 (p. 64).
20 RCVMHS, Youth Female Criminal Justice Human-Centred Design Focus Group: Record of Proceedings, 2020.
21 RCVMHS, Adult Female Criminal Justice Human-Centred Design Focus Group: Record of Proceedings, 2020.
22 Correspondence from a Human-Centred Design Participant, August 2020.
23 RCVMHS, Workforce Focus Group: Record of Proceedings, 2020.
24 Correspondence from Denna Healy, August 2020.
25 Correspondence from ‘Nathan Turner’ (pseudonym), November 2020.
26 Correspondence from ‘Mary and Jacob Corbett’ (pseudonyms), August 2020.
27 Correspondence from Kiba Reeves, September 2020.
28 ABC News, How Angus the Cat Helped a Mental Health Royal Commission Witness Feel More Equal
Giving Her Testimony, 27 May 2020, <www.abc.net.au/news/2020-05-27/mental-health-royal-commission-
coronavirus/12288698>, [accessed 5 November 2020].
29 Correspondence to the RCVMHS—Poem of Denna Healy: CSP.0001.0123.0001, 2020.
30 Correspondence from a Human-Centred Design Participant, September 2020.
31 Correspondence from a Human-Centred Design Participant, July 2020.
32 Correspondence from a Roundtable Participant, September 2020.
33 RCVMHS, East Gippsland Roundtable: Record of Proceedings, 2020.
34 RCVMHS, North Eastern Victoria Roundtable: Record of Proceedings, 2020.
35 RCVMHS, East Gippsland Roundtable: Record of Proceedings.
36 ORIMA Research, Mental Health Workforce Survey, 2020.
37 RCVMHS, Southern Metro Community Workshop (Dandenong / Frankston): Record of Proceedings, 2020.
38 Anonymous 60, Submission to the RCVMHS: SUB.0002.0022.0023, 2019, p. 1.
39 Listening to Voices Theatre Group, Submission to the RCVMHS: SUB.0002.0032.0032, 2019, pp. 21–22
376
Volume 5 Chapter 39: The work of the Commission
377
Royal Commission into Victoria’s Mental Health System
378
Volume 5 Chapter 40: The operations of the Commission
Chapter 40
The operations
of the Commission
379
Royal Commission into Victoria’s Mental Health System
380
Volume 5 Chapter 40: The operations of the Commission
The initially small Commission team reviewed previous royal commission reports and spoke
to government contacts who had set up similar operations, and came up with a set of
priorities that comprised:
The team then set up processes to ensure the Commission could operate effectively,
independent of government, including:
Where possible, the team sought support from other entities, including from:
The team used established operational processes wherever possible. For example, they used
State Purchase Contracts to secure providers quickly and on standard government-approved
terms to achieve value for money.
The Commission was able to set up its operations quickly using a combination of these
processes and support.
381
Royal Commission into Victoria’s Mental Health System
382
Volume 5 Chapter 40: The operations of the Commission
The Commission implemented a governance framework to support this structure, oversee the
delivery of its work and guide decision making. This comprised:
383
Royal Commission into Victoria’s Mental Health System
384
Volume 5 Chapter 40: The operations of the Commission
The Commission made two practice directions. Practice direction number 1 related to the
conduct of the Commission’s public hearings.2 Practice direction number 2 related to the
production of material and document management protocol for providing information under
a Notice to Produce to the Commission.3
The Commission also entered into a protocol with the State of Victoria to set out the process
of timely access to documents and data.4 The protocol established a mechanism for dealing
with claims of public interest immunity made over documents produced by the State.5 This
protocol was read in conjunction with practice direction number 2.
The Commission issued 217 Notices to Produce (Table 40.1). Documents and data produced to
the Commission had to comply with the Document Management Protocol set out in Practice
direction number 2.
The Commission received 8,243 documents through the Notice to Produce process. Some
documents provided by agencies were subject to the following claims:
385
Royal Commission into Victoria’s Mental Health System
Note: Includes Notices to Produce issued for the production of witness statements. The number of documents
produced is an approximate number due the reproduction of some documents.
386
Volume 5 Chapter 40: The operations of the Commission
The Commission’s estimated total expenditure is $35.7 million. This estimate of all costs
associated with the Commission reflects actual costs incurred to 31 December 2020 as well as
an estimate of costs for the final period of operation from 1 January to 5 February 2021 and
expected wind-down and decommissioning costs to 31 March 2021.
Costs incurred by the Commission for the period 22 February 2019 to 30 June 2020 were
included in the audit by the Victorian Auditor-General’s Office as part of its annual financial
audits of the Department of Premier and Cabinet, which processed all Commission expenses.
The costs incurred for the period 1 July 2020 to 31 March 2021 will be included in the audit by
the Victorian Auditor-General’s Office as part of its annual financial audit of the Department
of Premier and Cabinet at the end of the 2020–21 financial year.
Although the Commission managed its own financial decisions and processes, the
Department of Premier and Cabinet’s finance team supported the Commission with reporting
and accounts payable.
Using the powers conferred in the letters patent and in accordance with the Inquiries Act,
the Chairperson issued delegations to several executive staff to support the Commission’s
effective operation.7 This permitted directors to approve expenditure up to $25,000 and
the CEO to approve up to $150,000. The Chairperson authorised expenditure above those
delegations.
The Commission also used the internal controls built into the finance system, such as
position-controlled delegations, as well as segregation of duties for approving payments.
Corporate Services provided staff with advice and support to ensure they had the knowledge
and expertise to follow policies and processes regarding Commission expenditure.
The lead of Finance and Procurement and the director of Corporate Services undertook
regular reviews of financial transactions and ensured there was correct documentation to
support financial decisions.
387
Royal Commission into Victoria’s Mental Health System
The budget was divided into cost categories, and these formed the basis for the
Commission’s financial reporting framework, which assisted the Commission to plan and
manage its expenditure.
Each month, the Corporate Services director and Finance and Procurement lead worked
together to create a financial reporting package. The package was approved by the CEO and
was distributed to and discussed with the Executive Leadership Group. High-level financial
reporting was also provided monthly to the Commissioners as part of their meetings, so the
Commission was aware of how the budget was tracking overall.
In addition to this reporting, Corporate Services, as well as the cost category and contract
managers, were in regular contact so they could identify any financial risks and issues early.
The onset of the COVID-19 pandemic was one major example of this. As outlined in
Chapter 39: The work of the Commission, the pandemic resulted in the cancellation of in-
person activities, such as hearings, which reduced expenditure in this area. However, it led
to an increase in other expenditure because resources needed to be reallocated to collect
evidence and interact virtually with interested parties. Corporate Services worked closely
with the Executive Leadership Group and the Commission to provide visibility over the
Commission’s finances and to support these decisions.
40.5.3 Procurement
The Commission adopted standard policies and processes in line with Victorian public sector
guidelines to manage procurement. Consistent with Victorian public service procurement
practice, the Commission at times applied exemptions whilst maintaining competitive
procurement processes. The procurement processes included:
388
Volume 5 Chapter 40: The operations of the Commission
Corporate Services was responsible for designing and managing the Commission’s IT
environment, supported by a partnership of managed services providers Citadel (Kapish) and
SXIQ. The Commission engaged these providers within the first few months of its operations
from a select tender process using the Victorian Government eServices register for IT services.
This team was supported by electronic document and evidence management services from
three sources—the Commission’s Solicitors Assisting firm, an independent IT security firm
(Trusted Impact) and a team in the Policy and Research Branch dedicated to managing
Commission data.
The ability to have good information flow and the need to support virtual engagement
activities became more important as the COVID-19 pandemic resulted in staff working
remotely and the Commission’s engagement activities moving to an online format rather
than face-to-face. The Commission quickly mobilised to use collaboration software such
as Zoom and Microsoft Teams, which enabled staff to conduct activities online. Staff and
contractors were provided with portable devices to help them work flexibly, and Commission
contractors provided desktop support via an onsite technician and an after-hours number in
peak periods. IT help guides were also developed so staff could resolve issues independently
where possible.
The Commission placed great emphasis on regular maintenance, backup and security of
systems and devices to protect information and the Commission’s work. Staff were given
information security training and the environment was managed in accordance with a
range of policies, procedures and protocols. This included monthly service delivery meetings
between Commission staff and its managed service providers, as well as regular IT risk
assessment meetings and security testing.
389
Royal Commission into Victoria’s Mental Health System
The Commission chose the NVivo platform to host its source documentation and reference
materials. This database became the main repository for research materials, submissions,
hearings materials such as transcripts and exhibits, correspondence, responses to Notices to
Produce, and formal records of engagement activities.
The NVivo platform also allowed staff to sort, search, code and extract information, helping them
to analyse the suite of information, to inform findings and write reports and recommendations.
As mentioned above, the Commission was supported by the document management arm of
its Solicitors Assisting firm. The firm processed, catalogued and stamped formal evidence
and then provided it to the Commission to upload into NVivo.
While the Commission valued flexibility and usability in its records management approach,
it was mindful that documentation would ultimately become part of the public record.
Accordingly, the Commission worked with the Department of Premier and Cabinet and Public
Record Office Victoria to set up a records management framework that would comply with
the archive requirements in the Inquiries Act and the Retention and Disposal Authority under
the Public Records Act 1973 (Vic). 8
The Commission sought and received datasets from a range of Victorian Government
departments, agencies and funded services including:
• Ambulance Victoria
• Coroners Court of Victoria
• Department of Education and Training
• Department of Health and Human Services
• Department of Justice and Community Safety
• Emergency Services Telecommunications Authority
• Mental Health Complaints Commissioner
• Mental Health Tribunal
• Victoria Police
390
Volume 5 Chapter 40: The operations of the Commission
The Commission also received the Victorian Social Investment Integrated Data Resource,
which is an enduring linked data resource combining information on Victorian health care,
community care, education, crime and safety. The dataset enabled the Commission to not
only investigate a population at a specific time (cross-sectional data) but also changes over
time (longitudinal data). Longitudinal data provides valuable insights over an individual’s life
course—insights that are not usually available in standalone datasets.
The Commission is grateful to these departments and agencies for providing these datasets
and supporting the Commission to use and analyse their content appropriately.
The merged dataset helped the Commission to understand, at a de-identified individual level,
the use of relevant services. Ethics approval was obtained from the Australian Institute of
Health and Welfare to integrate these datasets, and the merged data was accessed through
The Sax Institute.
391
Royal Commission into Victoria’s Mental Health System
Many of the Commission’s staff joined the Commission because they were motivated to make
a difference and to contribute to real and lasting change in Victoria’s mental health system.
They were extremely dedicated to the Commission’s purpose and worked very hard as a result.
Corporate Services provided people and culture services, with support from the Department
of Education and Training’s HR Shared Services function for its payroll.
40.7.1 Workforce
The people working at the Commission came from a variety of backgrounds, including the
Victorian public sector, the health sector, non-government organisations and the private sector.
The Commission was deliberate in recruiting staff with diverse backgrounds to provide
breadth in experience and perspective, and depth in its capability. The Commission reached
out to relevant organisations to promote job advertisements in order to encourage people
with lived experience to apply. It also advertised for roles through standard channels such
as the Careers.Vic website and the Jobs and Skills Exchange, an internal web portal set up to
find talent within the Victorian public service.
The Commission engaged its staff under various arrangements including secondment and
fixed-term appointments. Where necessary, some staff were also directly employed on contract.
Due to the variability of the Commission’s work, and the need to build operations quickly and
to wind down quickly, staff numbers fluctuated greatly. A core contingent of about 45 staff
were present for most of the Commission’s timeline.
40.7.2 Culture
One challenge of a royal commission is quickly bringing together a range of people, many of
whom have not worked together before, to work in a pressured environment to solve complex
problems within tight deadlines.
392
Volume 5 Chapter 40: The operations of the Commission
Recognising this challenge, and as fitting for a royal commission into mental health, the
Executive Leadership Group prioritised initiatives to foster a collaborative, supportive and
innovative culture. They wanted to build high-performing teams in which everyone supported
each other, shared ideas and worked together towards a common goal. This included being
willing to share the workload, take on additional responsibilities and do what was needed to
deliver on the Commission’s objectives.
Despite staff having specific roles and responsibilities, there was always the understanding
that everyone was working together for the same purpose and outcome. There was support
from different teams and across functions to ensure work was produced efficiently and
delivered on time.
Two important aspects of the Commission’s culture were wellbeing and staff learning and
development. These are outlined further below.
40.7.3 Wellbeing
The Executive Leadership Group recognised that staff could be affected by the Commission’s
high-pressure environment and its sensitive and critical subject matter. Commission
staff were often exposed to accounts of traumatic events and various other confronting
information. To mitigate any negative impact on staff, the Commission established a
Wellbeing Framework to support its people to care for their own and each other’s mental
health and wellbeing. This framework was developed collectively by staff and was supported
and maintained by Corporate Services. It covered four pillars: mind, body, connection
and purpose.
Staff were encouraged to integrate mindfulness into their work and to be aware of their
colleagues’ mental health. To support this, the Commission engaged Carfi Psychological and
Rehabilitation Services, and Carfi became embedded in Commission operations. Staff could
contact Carfi confidentially at any time or have one-on-one sessions with them.
Carfi checked on staff welfare by walking the office floor and chatting with them. They also
facilitated debriefs after challenging milestones such as community consultations and
hearings, and ran group support sessions. During the COVID-19 restrictions, for example, they
ran sessions for staff who had to balance their work with caring responsibilities.
The Executive Leadership Group encouraged staff to maintain work-life balance and to eat
well, move regularly and look after their physical wellbeing more generally.
The Executive Leadership Group focused on creating opportunities for people to connect and
share—for example, by celebrating milestones and important days. There were also informal
ways staff continued to connect with each other such as weekly staff stand-up meetings
hosted by the CEO and regular staff gatherings.
393
Royal Commission into Victoria’s Mental Health System
While the Executive Leadership Group initiated many activities, they were supported by the
Commission’s Health and Safety Committee. The director of Corporate Services chaired
the committee, which included people with specific health and safety roles such as first aid
officers, wardens and health and safety representatives. The committee met many times to
consider staff health and safety, and ways it could be improved.
A committee was also formed to lead the Commission’s health and safety response to the
COVID-19 pandemic, overseeing:
Commissioners also actively supported staff health, safety and wellbeing, and the CEO and
the Leadership Group provided regular reports to them about human resources and culture.
The Commission provided staff with opportunities for formal learning, particularly to help
them understand aspects of the mental health system. This comprised cultural awareness
training and workshops on lived experience run by people with lived experience. The
Commission ensured as many staff as possible were provided with this training before
attending consultations and hearings.
Carfi ran several information sessions to educate and inform staff on how to best manage the
challenges that lay ahead during their time at the Commission.
Training and briefing sessions were held about operational matters such as the Commission’s
responsibilities under the Inquiries Act, IT security, privacy and information management,
and hearings operations.
394
Volume 5 Chapter 40: The operations of the Commission
The office location was close to public transport options, and the building had bike storage
facilities and showers for staff who wanted to ride, walk or run to and from work. The office
was already suitably fitted out and mostly furnished, which helped staff move in quickly and
kept accommodation costs down.
In March 2020, when the COVID-19 pandemic worsened, the Commission transitioned staff
to work from home. When staff were still working in the office, the Commission ensured
appropriate cleaning, hygiene and safety processes were in place, and that staff and visitors
followed the Commission’s COVIDSafe Plan.
The Commission built on existing Victorian Government risk management guidance and
implemented its own risk management framework. It developed and implemented a strategic
risk register and operational risk registers for important areas such as IT. These were used to
outline, measure and assess the likelihood and impact of adverse events, and ways of dealing
with them.
Risk management processes and documentation were also implemented for deliverables
such as the interim and final report, and for major community engagement activities such
as community consultations and forums, hearings and workshops. This ensured coverage for
risks in delivering these highly complex products and activities.
The risk registers were regularly updated and discussed at Executive Leadership Group
meetings to ensure there was a holistic view of the Commission’s risks and how they were
being addressed.
395
Royal Commission into Victoria’s Mental Health System
The risk framework was managed by Corporate Services and overseen by the Commission’s
Executive Leadership Group. The Commission also received monthly reports on strategic
risks and engaged with the Executive Leadership Group and staff to manage risk.
40.9.3 Security
Security was a priority for the Commission. Security considerations were important in all
aspects, particularly IT and physical security.
As mentioned above, special care was taken in establishing and maintaining the IT
environment and protecting the sensitive information the Commission held.
Physical security was considered in relation to the Commission’s office environment. For
example, the Commission’s office was not publicly accessible, with all staff and any invited
visitors needing to use a swipe card to gain entry.
Physical security was also provided at public-facing events such as hearings. In considering
the level and types of security services it engaged, the Commission was careful to strike
the right balance between protecting staff, contractors and the public while creating a
welcoming atmosphere.
396
Volume 5 Chapter 40: The operations of the Commission
40.10.1 Staff
As described above, the Commission provided staff with transition support services to help
them move to their next venture. Staff began finishing up with the Commission in October
2020, gradually dispersing until February 2021 when only a few staff remained to wrap up
operations.
40.10.2 Records
The Commission’s substantial inquiries will become an important part of the history and
public record of Victoria. The Commission wanted its records to be useful to subsequent Royal
Commissions or boards of inquiry, and to provide insight into how the Commission operated.
As noted above, the Commission worked with the Department of Premier and Cabinet and
Public Record Office Victoria to transfer Commission records to the Department of Premier and
Cabinet and then to Public Record Office Victoria, in accordance with the relevant legislation.
This ensures that documents relating to the Commission’s inquiries are considered
permanent records. It means that they will be held for the public record at Public Record
Office Victoria for a designated period. Temporary records, such as those about the operation
of the Commission, were transferred to the Department of Premier and Cabinet or destroyed.
The Commission also took care to apply caveats to certain classes of records to ensure
privacy and other interests were protected, consistent with relevant requirements.
397
Royal Commission into Victoria’s Mental Health System
398
Volume 5 Chapter 40: The operations of the Commission
399
Royal Commission into Victoria’s Mental Health System
400
Volume 5 Appendices
Appendices
401
Royal Commission into Victoria’s Mental Health System
402
Volume 5 Appendices
403
Royal Commission into Victoria’s Mental Health System
404
Volume 5 Appendices
405
Royal Commission into Victoria’s Mental Health System
406
Volume 5 Appendices
407
Royal Commission into Victoria’s Mental Health System
408
Volume 5 Appendices
409
Royal Commission into Victoria’s Mental Health System
410
Volume 5 Appendices
411
Royal Commission into Victoria’s Mental Health System
412
Volume 5 Appendices
The Commission is grateful for the support provided by data custodians. The Commission
also acknowledges the contribution of Department of Health and Human Services, Australian
Institute of Health and Welfare and Queensland Centre for Mental Health Research, University
of Queensland, for advice and support on the Commission’s analysis.
The Commission has endeavoured to use the most accurate, up-to-date and recent data
and information available to inform this report, drawn from a range of data sources that are
referenced throughout.
The Commission has used the mental and behavioural disorders categorised in Chapter 5
of the International statistical classification of diseases and related health problems, Tenth
revision, Australian modification in its analysis of data.
When undertaking analysis of external sources such as the Australian Institute of Health and
Welfare and the Australian Bureau of Statistics, the definition of mental illness in the original
data source has been retained and noted in the relevant section of the report.
Mental health-related presentations from the Victorian Emergency Minimum Dataset were
identified based on if the presentation either:
This definition may depart from the public reporting approach used by the Department of
Health and Human Services and the Victorian Agency for Health Information.
413
Royal Commission into Victoria’s Mental Health System
B.3 Sources
Most of the data sources are Victorian collections managed by Victorian Government
departments or agencies.
• Department of Health and Human Services, Victorian Integrated Data Resource v1812
• Department of Health and Human Services, Victorian Integrated Data Resource v1906
• Department of Health and Human Services, Client Management Interface/Operational
Data Store (extracted 1 October 2020)
• Department of Health and Human Services, Victorian Emergency Minimum Dataset
2019–20 (extracted 8 October 2020)
• Department of Health and Human Services, Victorian Admitted Episodes Dataset
2019–20 (extracted 8 October 2020)
These data sources are supplemented by other data collections, such as the Australian
Institute of Health and Welfare and Australian Bureau of Statistics.
Where relevant, the Commission has identified limitations of the relevant data in footnotes
alongside figures.
For some data, the most recently available information is 2014–15 or even earlier. This is
because some data (for example, population-based surveys) is only collected periodically. As
stated above, the Commission has used the most recently available data where possible.
B.4 Presentation
In this report:
• values reported (for example, in the columns and rows of tables) may not sum to the
totals shown, due to missing and not stated values or rounding
• percentages reported may not sum to 100 due to rounding
• percentages reported exclude missing and not stated values, unless otherwise stated
• totals reported include missing and not stated values, unless otherwise stated
• some data may not have been included to avoid identifying individuals or where
estimates are based on small numbers, resulting in low reliability. Information that
results in attribute disclosure has not been included, unless agreement was obtained
from the custodian to publish the data.
414
Volume 5 Appendices
Where the compound annual growth rate is not stated as the measure for calculating the
annual rate of change, the average annual growth rate (linear measure) is used.
Confidence intervals are calculated with a stated probability (commonly 95 per cent); this
means there is a 95 per cent chance that the confidence interval includes the true value.
415
Royal Commission into Victoria’s Mental Health System
As shown in Figure 1, of those 209,000 people, Victoria’s current public specialist mental
health services saw only 77,471 (37.1 per cent).
Of those 209,000 people, a further estimated 36,129 people (17.3 per cent) to 75,421 people (36.1
per cent) accessed specialist mental health services in the private health system in 2019–20.
Private specialist mental health services might include mental health services provided in a
private hospital or multiple Medicare-subsidised psychiatric services (refer to Figure 7.1). Such
private services are not accessible to all—for example, those with lower incomes or those in
areas with limited private sector supply.
Figure 1 also shows the service gap—the proportion of those 209,000 people in 2019–20
who were estimated to require services who did not get them in either the public or private
systems. This service gap was estimated to be between 56,108 people (26.8 per cent) and
95,400 people (45.6 per cent).
The second part of Figure 1 shows that in 2019–20 public specialist mental health services
delivered only 1,411,000 (30.0 per cent) of the estimated 4,702,000 hours of care required by
Victorians. This data does not include the gaps in access to wellbeing supports. This suggests
that many people who need these services are not getting them.
416
Volume 5 Appendices
Figure 1: The difference between the actual number of people receiving specialist mental
health services/actual consumer-related community service hours delivered
and estimated demand, all ages, Victoria, 2010–11 to 2019–20
A. Consumers
B. Service hours
Source: A. Calculation by the Commission based on Department of Health (Commonwealth), National Mental Health
Service Planning Framework; Australian Bureau of Statistics, Australian Demographic Statistics, June 2020, cat. no.
3101.0, Canberra; Department of Health and Human Services, Client Management Interface/Operational Data Store
2010–11 to 2019–20; Department of Health and Human Services, Victorian Admitted Episodes Dataset, 2010–11 to
2018–19; Australian Government Services Australia, Medicare Benefits Schedule, 2017–18.
B. Calculation by the Commission based on Department of Health (Commonwealth), National Mental Health Service
Planning Framework; Australian Bureau of Statistics, Australian Demographic Statistics, June 2009 to June 2019, cat.
no. 3101.0, Canberra; Department of Health and Human Services, Client Management Interface/Operational Data Store
2010–11 to 2019–20.
417
Royal Commission into Victoria’s Mental Health System
Note: 2010–11, 2012–13, 2015–16 and 2016–17 data collection was affected by protected industrial action. The collection
of non-clinical and administrative data (public specialist mental health services) was affected, with impacts on the
recording of community mental health service activity and client outcome measures.
A. Consumers: The estimated number of private clients using the private system is based on the proportion of overall
people admitted to a private hospital in Victoria for a mental health reason between 2010–11 and 2018–19. There may
be consumers receiving mental health services in both public and private specialist services that are double counted.
There may also be people receiving specialist mental health services from other private providers that are not
counted with this methodology.
This analysis does not include ‘unregistered clients’. Each year there are a number of contacts delivered to consumers
that are not registered in the Client Management Interface/Operational Data Store which in 2019–20 was 16 per cent of
total contacts.
For 2019–20, there are two alternative estimates of the number of private specialist mental health consumers in
2019–20. First, 36,129 consumers which would mean there is an estimated gap of 95,400. This estimate is based on
the proportion of people that had a mental health admission to a private hospital. Second, 75,421 consumers which
would mean there is an estimated gap of 56,108. This includes all people that received more than one service from a
medicare-subsidised psychiatrist or had a mental health-related admission to a private hospital. Anyone that also
received public specialist mental health services has been excluded to avoid double counting.
B. Service hours: Some of the gap may be met through services delivered in the private mental health system
Consumer-related service hours are defined in the National Mental Health Service Planning Framework as time
spent working with or for a client. This includes direct activity, for example assessment, monitoring, and ongoing
management, care coordination and liaison, respite services, therapies, peer work, review, intervention, prescriptions,
pharmacotherapy reviews, carer peer work and support services and community treatment teams. It does not include
administration, training, travel, clinical supervision and other activities that do not generate reportable activity on a
consumer’s record.
418
Volume 5 Appendices
Figure 2 shows the principal diagnosis trends of people treated by the public specialist
mental health system, Victoria, 2010–11 and 2019–20.
419
Royal Commission into Victoria’s Mental Health System
Source: Department of Health and Human Services, Client Management Interface/Operational Data Store, 2010–11
and 2019–20.
Note: The reported diagnosis is recorded based on the International Classification of Diseases and Related Health
Problems, 10th Revision, Australian Modification (ICD-10-AM). A diagnosis is the decision reached by the treating
clinician, after assessment, of the nature and identity of the disease or condition of a patient. It represents the major or
principal condition and other primary conditions, complications or comorbidities and associated conditions treated or
investigated during the relevant episode of care. Diagnoses must be coded in accordance with the Victorian additions to
the Australian coding standards and the Department of Health and Human Services ICD: clinical coding information.
The Commission acknowledges the concerns of many consumers about their lack of involvement in diagnostic
processes and the impacts of these labels on them. Terms such as ‘disorder’ can be pathologising and stigmatising, so
the Commission retains them only if others use them to convey a specific meaning.
Since 2014–15, data quality improvements have reduced the proportion of ‘not recorded’ diagnosis.
Methodology to derive principal diagnosis based on the Department of Health and Human Services Mental Health
Services Annual Report approach.
420
Volume 5 Appendices
Stage 4 COVID-19 restrictions: Was implemented on 4 August 2020, and in addition to the
restrictions under Stage 3, additional restrictions limited travel to up to 5 kilometres from a
person’s home for necessary goods and services. Only one person per household could leave
home to shop once per day. Curfews were in place from 8:00 pm to 5:00 am every night to
reduce the number of people leaving their homes and moving around.
Second step: Was implemented on 13 September 2020 for regional Victoria and on 28
September 2020 for metropolitan Melbourne, and eased restrictions with a strong focus on
moving activity into outdoor well-ventilated, outdoor areas wherever possible. The second-
step restrictions balanced population mobility and wellbeing while ensuring the infection
rates were driven down.
Third step: Was implemented on 16 September 2020 for regional Victoria and on 27 October
2020 for metropolitan Melbourne, and eased restrictions with a focus on reopening core
components of the economy in a safe and steady way. A key milestone during this step
was the alignment of metropolitan Melbourne and regional Victoria restrictions on 8
November 2020.
Last step: Was implemented on 22 November 2020, and eased restrictions with a focus on
enhancing social interactions such as increasing private gathering limits and permitting non-
contact and contact sports, as well as further changes to support Victoria’s economic revival.
421
Royal Commission into Victoria’s Mental Health System
422
Volume 5 Appendices
Appendix C:
Consultation and engagement
423
Royal Commission into Victoria’s Mental Health System
4 April 2019 – Eastern Health Linwood 5 June 2019 – Royal Children’s Hospital
Prevention and Recovery Care Facility
10 April 2019 – Ravenhall Prison 6 June 2019 – Royal Melbourne Hospital and
Waratah Clinic
10 April 2019 – Dame Phyllis Frost Prison 7 June 2019 – St Vincent’s Safe Haven Café
12 April 2019 – National Centre for 17 September 2019 – Odyssey, New Zealand
Farmer Health
1 May 2019 – Swan Hill Aboriginal District 17 September 2019 – Piri Pono, New Zealand
Health Service
1 May 2019 – Mildura Base Public Hospital 18 December 2019 – Magistrates’ Court of
(mental health ward and Aboriginal Victoria (Assessment and Referral Court
Healing Place) (ARC) list)
424
Volume 5 Appendices
Dr Ravi Bhat Divisional Clinical Director, Goulburn Valley Area 15 July 2019
Mental Health Service, Goulburn Valley Health
Dr Michelle Blanchard Deputy CEO, SANE Australia and Founding 3 July 2019
Director, Anne Deveson Research Centre
Dr Gaynor Blankley Deputy Clinical Services Director, Mercy Mental 5 July 2019
Health and Head of Perinatal Mental Health
Mr Matiu Bush Founder, One Good Street and Deputy Director, 19 July 2019
Health Transformation Lab, RMIT
Scientia Helen Christensen Director and Chief Scientist, Black Dog Institute 19 July 2019
Professor AO
425
Royal Commission into Victoria’s Mental Health System
Dr Paul Denborough Clinical Director, Alfred Child and Youth Mental 9 July 2019
Health Service and Headspace, Alfred Health
Mr Jeremy Dwyer Manager, Suicide, Mental Health and General 22 July 2019
Investigations, Coroners Prevention Unit,
Coroners Court of Victoria
Ms Vrinda Edan Acting CEO, Victorian Mental Illness Awareness 11 July 2019
Council Inc.
Ms Aunty Nellie Flagg Witness; respected Elder and a Taylor-Charles 16 July 2019
Dr Louise Flynn Manager, Support After Suicide, Jesuit Social 23 July 2019
Services
Professor David Forbes Clinical Psychologist and Director, Phoenix 4 July 2019
Australia Centre for Posttraumatic Mental
Health
Professor Helen Herrman AO Academic and President, World Psychiatric 4 July 2019
Association
Professor Malcolm Hopwood Director, Professional Psychiatry Unit, Albert 10 July 2019
Road Clinic and Ramsay Health Care Professor
of Psychiatry, University of Melbourne
426
Volume 5 Appendices
Dr Alison Kennedy Research Fellow, Faculty of Health and National 15 July 2019
Centre for Farmer Health, Deakin University
The Hon. Robert Knowles AO A former Victorian Minister whose 24 July 2019
responsibilities included the Health and Aged
Care portfolios
Ms Tamara Lovett Witness and a Gunai and Gunditjmara woman 16 July 2019
Ms Anne Lyon Executive Director, Mental Health and Alcohol 23 July 2019
and Other Drugs, Eastern Melbourne Primary
Health Network
Mr David Martine PSM Secretary, Department of Treasury and Finance 26 July 2019
Ms Janet Meagher AM Advocate for people with lived experience of 3 July 2019
mental illness
Professor Patrick McGorry Professor of Youth Mental Health, The University 5 July 2019
AO of Melbourne and Executive Director, Orygen
Mr Gregory McMahon Executive Principal, Hallam Senior College and 19 July 2019
Strategic Director, Doveton College
427
Royal Commission into Victoria’s Mental Health System
Dr Gerry Naughtin Held a number of leadership roles across the 24 July 2019
mental health and community sectors
Professor Jane Pirkis Director, Centre for Melbourne Health, 22 July 2019
Melbourne School of Population and Global
Health, University of Melbourne
Associate Nicola Reavley Head, Population Mental Health Unit and 3 July 2019
Professor Deputy Director, Centre for Mental Health, The
University of Melbourne
The Hon. Andrew Robb AO Former Federal Member of Parliament 2 July 2019
Mr Wayne Schwass Former AFL player and CEO, Puka Up 2 July 2019
Associate Simon Stafrace Program Director, Alfred Mental and Addiction 8 July 2019
Professor Health, Alfred Health
Associate Dean Stevenson Clinical Services Director, Mercy Mental Health 10 July 2019
Professor
428
Volume 5 Appendices
Dr Sika Turner Discipline Senior, Adult Mental Health, Monash 9 July 2019
Health
Associate Ruth Vine Executive Director, NorthWestern Mental Health, 8 July 2019
Professor Melbourne Health
429
Royal Commission into Victoria’s Mental Health System
Ms Julie Anderson Senior Consumer Advisor, Office of the Chief 16 June 2020
Mental Health Nurse and the Office of the Chief
Psychiatrist, Department of Health and Human
Services
The Kevin Bell AM QC Director, The Castan Centre for Human Rights
Honourable Law, Monash University
Professor
430
Volume 5 Appendices
Professor Lisa Brophy Discipline Lead in Social Work and Social Policy, 20 May 2020
Department of Occupational Therapy, Social
Work and Social Policy, La Trobe University
431
Royal Commission into Victoria’s Mental Health System
Dr Paul Denborough Clinical Director, Alfred Child and Youth Mental 25 June 2020
Health Service and headspace, Alfred Health
Dr Elizabeth Deveny CEO, South Eastern Melbourne Primary Health 24 June 2020
Network
432
Volume 5 Appendices
Professor Louise Harms Chair and Head, Social Work, Melbourne School
of Health Sciences, The University of Melbourne
Professor Ian Hickie AM Co-Director, Health and Policy, Brain and Mind
Centre, University of Sydney
Professor Harriet Hiscock Paediatrician, Centre for Community Child 23 June 2020
Health and Director Health Services Research
Unit, Royal Children’s Hospital, Melbourne
Ms Catherine CEO, Sacred Heart Mission and Chair of the 2 June 2020
Humphrey Board, Council to Homeless Persons
Ms Erandathie Witness
Jayakody
433
Royal Commission into Victoria’s Mental Health System
Professor Stuart Kinner Head, Justice Health Unit, Centre for Health
Equity, Melbourne School of Population and
Global Health, University of Melbourne
Professor Dan Lubman Executive Clinical Director, Turning Point, 18 June 2020
Eastern Health and Professor of Addiction
Study and Services, Monash University
434
Volume 5 Appendices
Associate Steven Moylan Clinical Director, Mental Health, Drug and 24 June 2020
Professor Alcohol Services, Barwon Health
Mr Dan Nicholson Executive Director, Criminal Law, Victoria Legal 9 June 2020
Aid
435
Royal Commission into Victoria’s Mental Health System
436
Volume 5 Appendices
Associate Ruth Vine Director, Victorian Institute of Forensic Mental 20 May 2020
Professor Health
437
Royal Commission into Victoria’s Mental Health System
438
Volume 5 Appendices
Roundtable 20 August Lived experience • Julie Anderson, Senior Consumer Advisor, Office of
2019 workforce the Chief Mental Health Nurse, Department of Health
and Human Services
• Wanda Bennetts, Senior Consumer Consultant,
Independent Mental Health Advocacy
• Cate Bourke, Manager and Consumer Carer, Eastern
Health
• Emma Cadogan, Senior Policy Advisor, Lived
Experience Strategy, Department of Health and
Human Services
• Bianca Childs, Peer Practice Advisor, Mind Australia
• Lorna Downes, Family/carer Workforce Development
Coordinator, Centre for Mental Health Learning
• Julie Dempsey, Senior Consumer Consultant,
Forensicare
• Vrinda Edan, Acting CEO, Victorian Mental Illness
Awareness Council Inc.
• Jacinta Kuklych, Carer Lived Experience Workforce
Network, Tandem
• Jen Maries, Consumer Peer Support Worker,
NorthWestern Mental Health
• Donna Mathews, Lived Experience Manager, Barwon
Health
• Catherine Minshall, Consumer Researcher, Recovery
and Social Justice Unit, Centre for Mental Health,
University of Melbourne
• Rory Randall, Peer Support Worker, Prevention and
Recovery Care, Neami National
• Melanie Ryan, Family/Carer Peer, Peninsula Health
Mental Health Service
• Michelle Swann, Board Chair, Tandem
• Scott Walker, CEO, Carers Victoria
• Craig Wallace, Consumer Workforce Development
Coordinator, Centre for Mental Health Learning
439
Royal Commission into Victoria’s Mental Health System
440
Volume 5 Appendices
Roundtable 21 August Nurses workforce • Duncan Baulch, Manager, Nursing and Midwifery
2019 Special Projects, Safer Care Victoria
• Melanie Bish, Senior Lecturer, Rural Nursing and
Midwifery, La Trobe University
• Pip Carew, Assistant Secretary, Australian Nursing
and Midwifery Federation (Victoria)
• Associate Professor Alicia Evans, Head, School of
Nursing, Midwifery and Paramedicine, Australian
Catholic University
• Professor Kim Foster, Professor, Mental Health
Nursing, Australian Catholic University and North
Western Mental Health
• Professor Richard Gray, Mental Health, Nursing and
Midwifery, La Trobe University
• Dr Bridget Hamilton, Centre of Psychiatric Nursing,
University of Melbourne
• Stewart Imrie, Nurse Unit Manager, Child and
Adolescent Mental Health Service, Monash Health
• Brian Jackson, Director, Nursing, Melbourne Health
• Anna Love, Chief Mental Health Nurse, Department of
Health and Human Services
• Andrew Morgan, Workplace Representative, Mental
Health Triage and ED Response Service (Victoria)
• Professor Nikki Phillips, Head of School, Nursing and
Midwifery, Deakin University
• Jo Ryan, Director of Nursing, Forensicare
• Honie Thomson, Nurse Unit Manager, Adult Acute,
Peninsula Health
• Fiona Whitecross, Acute Services Manager, Alfred
Health
441
Royal Commission into Victoria’s Mental Health System
Roundtable 22 August Health • Kamal Bekhazi, Senior Research and Projects Officer,
2019 professionals Health Workers Union
• Sarah Castle, Mental Health Nurse and Member,
Health and Community Services Union
• Professor Kim Cornish, Head of School, Psychological
Sciences, Monash University
• Professor Ellie Fossey, Head of Department and
Graduate Research Coordinator, Monash University
• Professor Louise Harms, Chair and Head,
Department of Social Work, University of Melbourne
• Paul Healey, Acting State Secretary, Health and
Community Services Union
• Dr Rosemary Kelly, Secretary, Victorian Psychologists
Association
• Kate Lheude, Occupational Therapist, Melbourne Health
• Craig McGregor, Secretary, Victorian Allied Health
Professionals Association
• Associate Professor Melissa O’Shea, Deakin
University
• Debra Parnell, Manager, Social Policy and Advocacy,
Australian Association of Social Workers
• Rachel Starbuck, Occupational Therapist,
St Vincent’s Health
• Jacqueline White, Victorian State Chair, Australian
Psychological Society
• Leon Wiegard, Assistant Branch Secretary, Australian
Services Union
• Professor Sarah Wilson, Head of School,
Psychological Sciences, University of Melbourne
442
Volume 5 Appendices
Roundtable 28 August Aboriginal people • Raelene Stephens, Nurse Manager, Social and
2019 and communities Emotional Well-Being Team, Mallee and District
Aboriginal Services
• Wayne Freeman, Senior Adviser, Commission for
Children and Young People
• Michael Graham, Chairperson, Victorian Aboriginal
Health Service
• Daniel Bolger, Community Witness
• Tamara Lovett, Community Witness
• Andrew Jackomos PSM, Executive Director,
Aboriginal Economic Development, Department of
Jobs, Precincts and Regions
• Helen Kennedy, Chief Operations Officer, Victorian
Aboriginal Community Controlled Health
Organisation
• Trevor Pearce, Acting Chief Executive Officer,
Victorian Aboriginal Community Controlled Health
Organisation
443
Royal Commission into Victoria’s Mental Health System
444
Volume 5 Appendices
445
Royal Commission into Victoria’s Mental Health System
446
Volume 5 Appendices
447
Royal Commission into Victoria’s Mental Health System
448
Volume 5 Appendices
449
Royal Commission into Victoria’s Mental Health System
450
Volume 5 Appendices
451
Royal Commission into Victoria’s Mental Health System
Roundtable 9 June Antidiscrimination • The Honourable Professor Kevin Bell QC AM, Director
2020 and human rights Castan Centre for Human Rights Law, Monash
University
• Julian Gardner AM, Royal Commission into Victoria’s
Mental Health System’s Expert Advisory Committee
• Louise Glanville, CEO, Victoria Legal Aid
• Rob Hulls, Director, Centre for Innovative Justice,
RMIT University
• Dr Helen Szoke AO
• Professor Penny Weller, RMIT University
• Stan Winford, Associate Director, Research,
Innovation and Reform, RMIT University
452
Volume 5 Appendices
453
Royal Commission into Victoria’s Mental Health System
Roundtable 2 July 2020 Mental health • Katherine Ariola, Project Officer, Koori Youth Justice
services for Taskforce, Commissioner for Aboriginal Children and
children and Young People
young people in • Paris Aristotle, CEO, Foundation House
the youth justice
system • Dr James Belshaw, Melbourne Health
• Megan Boland, Department of Health and Human
Services
• Liana Buchanan, Principal Commissioner for
Children and Young People
• Her Honour Judge Amanda Chambers, President,
Children’s Court of Victoria
• Assistant Commissioner Luke Cornelius APM, Victoria
Police
• Dannii de Kretser, Deputy Secretary, Youth Justice,
Department of Justice and Community Safety
• Dr Adam Deacon, Alfred Health
• Dr Paul Denborough, Clinical Director, Alfred Child
and Youth Mental Health Services and headspace,
Alfred Hospital
• Julie Edwards, CEO, Jesuit Social Services
• Commander Tim Hansen, Victoria Police
• Jodi Henderson, Youth Justice Commissioner,
Department of Justice and Community Safety
• Dan Nicholson, Executive Director, Criminal Law,
Victoria Legal Aid
• Professor James Ogloff AM, Executive Director,
Victorian Institute of Forensic Mental Health
and Distinguished Professor, Centre for Forensic
Behavioural Sciences, Swinburne University
• Joshua Smith, Deputy Secretary, Aboriginal Justice,
Department of Justice and Community Safety
454
Volume 5 Appendices
Roundtable 7 July 2020 Social • Chelsea Lang, Manager, YLab, Foundation for Young
connectedness Australians
– Effectiveness • Jennifer Beckett, University of Melbourne
of community-
led initiatives • Professor Judy Lowthian, Head of Research and
involving social Principal Research Fellow, Bolton Clarke
connection in • Kerry Jones, Director, Systems Initiatives, The
supporting mental Australian Centre for Social Innovation
wellbeing: A rapid • Jodie Belyea, Founder, Women’s Spirit Project
review of evidence
and practice • Zachary Schlosser, Resilient Connections
• Ian Forsyth, Shannon Company
Roundtable 8 July 2020 Primary care • Dr Cathy Andronis, General Practitioner, Royal
Australian College of General Practitioners
• Caroline Radowksi, Network Director Clinical and
Practice Excellence, community health centre
general practitioner, cohealth
• Sara Renwick-Lau, General Practitioner, Mallacoota
Medical Centre
• Professor Graeme Meadows, Department of
Psychiatry, Monash University,
• Vikki Ryall, Executive Director, Clinical Practice,
headspace
• Margaret McDonald, CEO, Cobaw Community Health
Service
• Joe Fishburn, FirstStep
• Anne Lyon, formerly Eastern Melbourne Primary
Health Network
• Matt Jones, CEO, Murray Primary Health Network
Roundtable 8 July 2020 Crisis response • Karyn Cook, Executive Director, Mental Health
Services, SouthWest Healthcare
• Fran Timmins, Director of Nursing, Mental Health, St
Vincent’s Hospital
• Ivan Frkovic, Commissioner, Queensland Mental
Health Commission
• Dr Aaron Groves, Chief Psychiatrist, Tasmania
• Tracey Morgan, Community Services Manager, Casey
area, Monash Health
• Georgie Harman, CEO, Beyond Blue
• Dr Murray Wright, Chief Psychiatrist, New South
Wales Government
• Susan Murray, Practice Leader, Zero Suicide Institute
of Australasia
• Dr Kathryn Turner, Clinical Director, Mental Health
and Special Services, Gold Coast Hospital and Health
Service
• Peter Kelly, Director, Operations, NorthWestern
Mental Health
455
Royal Commission into Victoria’s Mental Health System
Roundtable 15 July Primary health • Janine Wilson, CEO, Eastern Melbourne Primary
2020 networks Health Network
• Adjunct Associcate Professor Christopher Carter,
CEO, North Western Primary Health Network
• Elizabeth Deveny, CEO, South Eastern Melbourne
Primary Health Network
• Rowena Clift, CEO, Western Victorian Primary Health
Network
456
Volume 5 Appendices
Roundtable 15 July Finding and • Maureen Lewis, Director, Priority Programs, Mental
2020 accessing care, Health Branch, NSW Health
treatment and • Dr Paul Denborough, Clinical Director, Alfred Child
support and Youth Mental Health Service and headspace,
Alfred Health
• Dr Steven Moylan, Director, Clinical Services, Barwon
Health
• Jason Davies-Kildea, Head, Policy and Advocacy,
Beyond Blue
• Associate Professor Philip Tune, Clinical Director,
Mental Health Services, Bendigo Health
• Bronwyn Lawman, Director, Operations, Peninsula
Health
457
Royal Commission into Victoria’s Mental Health System
Roundtable 21 July Public health • John Batho, Executive Director Fairer Victoria,
2020 Department of Premier and Cabinet
• Dr Bruce Bolam, Executive Director, Health
Protection, Department of Health and Human
Services
• Professor Cathy Mihalopoulos, Chair and Head,
Deakin Health Economics, Deakin University
• Dr Gaynor Blankley, Deputy Clinical Services Director,
Mercy Mental Health and Head of Perinatal Mental
Health
• Carolyn Nikoloski, Chief Strategy Officer, Beyond Blue
• Professor Helen Herrman AO, Head, Vulnerable and
Disengaged Youth Research, Orygen and Professor
of Psychiatry, Centre for Youth Mental Health,
University of Melbourne, President, World Psychiatric
Association
• Kerry Jones, Director Systems Initiatives, The
Australian Centre for Social Innovation
• Professor Patrick McGorry AO, Professor of Youth
Mental Health, University of Melbourne and Executive
Director, Orygen
• Professor Rob Moodie, Nossal Institute of Global
Health, University of Melbourne
• Associate Professor Peter Bragge, Monash
Sustainable Development Institute
• Dr Sandro Demaio, CEO, VicHealth
• Dr Stephen Carbone, Executive Director, Prevention
United
• Thea Snow, Centre for Public Impact, Australia and
New Zealand
• Kristan Corben, Executive Manager, VicHealth
Roundtable 21 July Alcohol and other • Laurence Alvis, CEO, UnitingCare Regen
2020 drugs • Sam Biondo, Executive Officer, Victorian Alcohol and
Drug Association Inc.
• Dr Stefan Gruenert, CEO, Odyssey House
• Ann-Maree Kaser, CEO, Windana
• Gary Croton, Clinical Nurse Consultant, Victorian
Dual Diagnosis Initiative
• Andrew Brunn, CEO, Youth Support and Advocacy
Service (YSAS)
• Professor Dan Lubman, Turning Point
• Professor James Ogloff AM, Executive Director,
Victorian Institute of Forensic Mental Health
and Distinguished Professor, Centre for Forensic
Behavioural Sciences, Swinburne University
• Heather Pickard, CEO, Self Help Addiction Resource
Centre (SHARC)
• Sione Crawford, Harm Reduction Victoria
458
Volume 5 Appendices
Roundtable 22 July Community • Frances Cook, Director, Vision 2030, National Mental
2020 integrated mental Health Commission
health services • Professor Ian Hickie, Co-Director, Health and Policy,
Brain and Mind Centre, Sydney University
• Kent Burgess, Acting CEO, Star Health
• Professor Richard Newton, Clinical Director, Mental
Health, Peninsula Health
• Brian Kennedy, Director, Community Operations
Adult Mental Health, Albury Wodonga Mental Health
• Dr Sarah Pollock, Executive Director, Research and
Advocacy, Mind Australia
• Tass Mousaferiadis, Chair of the Board and
Chair, Executive Performance and Development
Committee, Star Health
• Laura Collister, Director, Mental Health Services,
Wellways
Roundtable 23 July Infant and child • Professor Frank Oberklaid, Paediatrician, Royal
2020 mental health Children’s Hospital, Melbourne and Co-Group
Leader of Child Health Policy, Equity and Translation,
Murdoch Children’s Research Institute
• Alison Smith, Divisional Manager, Child and Youth
Mental Health, Austin Health
• Dr Richard Haslam, Director, Mental Health, Royal
Children’s Hospital, Melbourne
• Dr Vibhay Raykar, Clinical Director, Child and
Adolescent Mental Health Service, Goulburn Valley
Health
• Dr Louise Newman, Professor of Psychiatry,
University of Melbourne and practising perinatal and
infant clinician
• Allison Cox, Director, Take Two, Berry Street
• Professor Christel Middeldorp, Professor of Child
and Youth Psychiatry, Children and Health Research
Centre Queensland and Queensland’s Child and
Youth Mental Health Service
• Associate Professor Campbell Paul, Consultant Infant
and Child Psychiatrist, Royal Children’s Hospital,
Melbourne; Honorary Principal Fellow, Department
of Psychiatry, University of Melbourne and Member,
Board of Directors, World Association for Infant
Mental Health
• Jacquie O’Brien, CEO, Tweddle
• Helen Lees, Municipal Association of Victoria
Maternal and Child Health Nurse Consultant
459
Royal Commission into Victoria’s Mental Health System
Roundtable 29 July Bed-based • Stefano Scalzo, Director, Victorian Health and Human
2020 services Services Building Authority
• Francis Diver, CEO, Barwon Health
• Professor David Copolov, Monash University
• Cayte Hoppner, Executive Director, Mental Health
and Chief Mental Health Nurse, Latrobe Regional
Hospital
• Professor Nicholas Lintzeris, University of Sydney
• Sebastian Rosenberg, Head, Mental Health Policy
Unit, Centre for Mental Health, Australian National
University
• Sean Hegarty, General Manager, Wellways
Roundtable 30 July Suicide prevention • Dr Jaelea Skehan OAM, Special Adviser, National
2020 and response Suicide Prevention Taskforce
• Jo Robinson, Head, Suicide Prevention
Research Orygen
• Maureen Lewis, Director, Priority Programs, Mental
Health Branch, NSW Health
• Janet Martin, Director, Clinical Governance,
Queensland Health
• Alan Woodward, Commissioner, National Mental
Health Commission
• Judge John Cain, State Coroner, Coroners Court of
Victoria
• Professor Jane Pirkis, Director, Centre for Mental
Health, Melbourne School of Population and Global
Health
• Bronwen Edwards, CEO, Roses in the Ocean
• Joe Ball, CEO, Switchboard
460
Volume 5 Appendices
Roundtable 4 August Australian Health • Martin Fletcher, CEO, Australian Health Practitioner
2020 Practitioner Regulation Agency
Regulation • Dr Peggy Brown AO, Senior Clinical Advisor,
Agency (AHPRA) Australian Commission on Safety and Quality in
Health Care and Member, Agency Management
Committee, Australian Health Practitioner Regulation
Agency
• Associate Professor Ruth Vine, Deputy Chief Medical
Officer for Mental Health, National Mental Health
Commission and Member, Victorian Board of the
Medical Board of Australia
• Dr Debra O’Brien, Chair, Victorian Board of the
Medical Board of Australia
• Dr Rachel Phillips, Chair, Psychology Board of
Australia
• Sally Cunningham, Member, Occupational Therapy
Board of Australia
• Lynette Cusack, Chair, Nursing and Midwifery Board
of Australia
• Renee Owens, Chair, Aboriginal and Torres Strait
Islander Health Practice Board of Australia
• Dr Clarissa Martin, State Manager, Australian Health
Practitioner Regulation Agency
• Nick Lord, National Director, Government Relations,
Australian Health Practitioner Regulation Agency
• Helen Townley, National Director, Policy, Australian
Health Practitioner Regulation Agency
Roundtable 4 August Youth mental • Professor Patrick McGorry AO, Professor of Youth
2020 health Mental Health, University of Melbourne and Executive
Director, Orygen
• Dr Paul Denborough, Clinical Director, Alfred Child
and Youth Mental Health Service and headspace,
Alfred Health
• Andrew Bruun, CEO, Youth Support and Advocacy
Service (YSAS)
• Jason Trethowan, CEO, headspace
• Dr Leaanne Fisher, Clinical Director, Child and Youth,
Austin Health
• Dr Liam O’Connor, Faculty Chair, Child and
Adolescent Psychiatry, Royal Australian and New
Zealand College of Psychiatry and practising child
and adolescent psychiatrist, Bendigo Child and
Adolescent Mental Health Service
• Dean McCaughan, Services Manager, headspace
• Lynne Allison, Associate Program Director, Child and
Youth Mental Health Service, Eastern Health
• Dr John Cooper, Consultant Psychiatrist, Phoenix
Australia
461
Royal Commission into Victoria’s Mental Health System
Roundtable 5 August Governance and • Terry Symonds, Deputy Secretary, Health and
2020 commissioning Wellbeing, Department of Health and Human
Services
• Elda Colagrande, Senior Analyst, Service Delivery
and Reform, Department of Treasury and Finance
• Dr Jane Opie, Board Member, Victorian Primary
Health Network
• Bronwyn Lawman, Director, Mental Health
Operations, Peninsula Health
• Kent Burgess, Acting CEO, Star Health
• Ivan Frkovic, Mental Health Commission, Queensland
• Dr Leanne Beagley, CEO, Mental Health Australia
• Dr Ravi Bhat, Divisional Clinical Director, Goulburn
Valley Area Mental Health Service, Goulburn Valley
Health
• Dr Stephen Duckett, Health Program Director,
Grattan Institute
• Professor Hal Swerissen, Visiting Fellow, Grattan
Institute
Roundtable 7 August Aged persons • Gerard Mansour, Commissioner for Senior Victorians
2020 mental health • Dr Daniel O’Connor, Deputy Chief Psychiatrist (Aged),
services Department of Health and Human Services
• Dr Brett Coulson, Director, Clinical
Services, NorthWestern Mental Health
• Dr Maria Tsanglis, Director, Aged and Liaison
Psychiatry Service, Alfred Health
• Associate Professor Briony Dow, National Ageing
Research Institute
• Dr Gerry Naughtin, Strategic Adviser, Mental Health,
Strategic Advisers and Research Division, National
Disability Insurance Agency
• Associate Professor Mark Yates, Executive
Director, Ballarat Innovation and Research
Collaboration for Health
• Mark Silver, Wellbeing Clinic for Older Adults,
Swinburne University
462
Volume 5 Appendices
Roundtable 19 August Workforce needs • Michaela Cronin, Director, Future Social Services
2020 of the future Institute
and enabling • Robyn Mildon, Executive Director, Centre for Evidence
transformation and Implementation
• Professor Chris Davey, Head, Department of
Psychiatry, University of Melbourne
• Dr Tom Foley, National Health Service Digital (UK)
• Gill Callister, CEO, Mind Australia
• Adele Beasley, Manager, Policy and Campaigns, Mind
Australia
• Larry Kamener, Centre for Public Impact, Boston
Consulting Group
• Professor Emeritus Bruce Singh AM, University of
Melbourne
• Dr Rosemary Charleston, Centre for Mental Health
Learning
• Kylie Boucher, Senior Project Lead, Centre for Mental
Health Learning
• Angus Clelland, CEO, Mental Health Victoria
• Associate Professor Bridget Hamilton, Director, Centre
for Psychiatric Nursing, University of Melbourne
• Erandathie Jayakody, Royal Commission into
Victoria’s Mental Health System’s Expert Advisory
Committee and Assistant Director, National Disability
Insurance Agency
Roundtable 25 August Mentally healthy • Chris Wilks, Group Manager, Safety, Health and
2020 workplaces, Wellbeing, Linfox
mentally healthy • Marian Merrigan, Healthy Fox Program Manager,
Victoria Linfox
• Nicci Horton, Injury and Wellbeing Manager, Bunnings
• Kylie Bishop, People and Culture Leader, Medibank
• Chris Akayan, Head, Culture and Capability, Mirvac
• Susan Ferrier, Group Executive, People and Culture,
National Australia Bank Limited
• Jacquie Lyon, Head of Health and Wellbeing , Metro
Trains
• David Brewster, Chief Legal and Safety Officer, Coles
• Angela Konstantopoulos, General Manager, Safety,
Coles
• Sue Davies, Executive General Manager, People and
Culture, Australia Post
• Alex Badenoch, Group Executive, Transformation,
Communications and People, Telstra
• Tanya Hosch, General Manager, Inclusion and Social
Policy, AFL
• Kate Hall, Head, Mental Health and Wellbeing, AFL
• Claire Spencer AM, Chair, Arts Wellbeing Collective
and CEO, Arts Centre Melbourne
• Annie Reeves, Executive Director, People and Culture,
Department of Jobs, Precincts and Regions
• Dr Kate Cornick, CEO, LaunchVic
• Alistair Carmichael, Associate Partner, McKinsey and
Company
• Helen Steele, CEO, The Shared Value Project
463
Royal Commission into Victoria’s Mental Health System
Roundtable 26 August Governance and • James Downie, CEO, Independent Hospital Pricing
2020 commissioning Authority
• Elda Colagrande, Senior Analyst, Service Delivery
and Reform, Department of Treasury and Finance
• Terry Symonds, Deputy Secretary, Health and
Wellbeing, Department of Health and Human
Services
• Dr Jane Opie, Board Member, Western Victoria
Primary Health Network
• Kent Burgess, Acting CEO, Star Health
• Ivan Frkovic, Mental Health Commission, Queensland
• Dr Leanne Beagley, CEO, Mental Health Australia
• Dr Ravi Bhat, Divisional Clinical Director, Goulburn
Valley Area Mental Health Service, Goulburn Valley
Health
• Professor Hal Swerissen, Visiting Fellow, Grattan
Institute
• Jennifer Williams, Chair, Northern Health
• Abbe Anderson, General Manager, Health Alliance
• Dr Stephen Duckett, Health Program Director,
Grattan Institute
Roundtable 27 August Virtual help and • Oliver Bladek, Deputy CEO, Design, Digital and
2020 the future of Strategy, National Disability Insurance Agency
digital services • Emma Constantine, General Manager, Quality and
Service Development, Wellways
• Rohan Hammet, Director, Deloitte
• Cinnamon Pollard, Chief Experience Officer, Beyond
Blue
• Mario Alvarez-Jimenez, Director, Orygen Digital
• Ramesh Kumar, CEO, Southern Migrant and Refugee
Centre
• Dr Steven Moylan, Director, Clinical Services, Barwon
Health
• Associate Professor Neil Thomas, Deputy Director,
Centre for Mental Health, Swinburne
• Addie Wootten, CEO, Smiling Mind
• Dr Katherine James, Clinical Director, Mildura Base
Hospital
• Dr Kean-Seng Lim, Mount Druitt Medical Centre, New
South Wales
464
Volume 5 Appendices
Roundtable 15 East Gippsland • Peter Quinn, Mental Health Clinician, Royal Flying
September Roundtable Doctor Service
2020 Hosted by • Lauren Zappa, Health Services Manager, Royal Flying
Selena Gillham, Doctor Service
Executive Officer, • Kelly Duncan, Department of Education and Training
East Gippsland
Primary Care • Terri McNeil, Lucknow Primary School
Partnership • James Bush, Youth Advisory Group, headspace
• Brydie Bourke, Community Engagement Officer,
headspace
• Matt Zagami, Farmers, Farmers Voice East Gippsland
• Katie Zagami, Farmers, Farmers Voice East
Gippsland
• Jamie Williamson, CEO, Gippsland and East
Gippsland Aboriginal Co-Operative
• Vicki Farthing, CEO, Orbost District Health
• Robyn Hayles, CEO, Bairnsdale Regional Health
• Sue Mulkearns, Manager, Mental Health East
Gippsland, Latrobe Regional Hospital
• Sue Medson OAM, CEO, Gippsland Lakes Complete
Health
• Sarah Clarke, Manager, Regional Services, Gippsland
Primary Health Network
• Jo Grzelinska, Special Projects, Gippsland Primary
Health Network
• Daniel Poynton, Executive Officer, GippSport
• Selena Gillham, Executive Officer, East Gippsland
Primary Care Partnership
465
Royal Commission into Victoria’s Mental Health System
Roundtable 16 Youth justice and • Professor James Ogloff AM, Executive Director,
September youth forensic Victorian Institute of Forensic Mental Health
2020 mental health and Distinguished Professor, Centre for Forensic
Behavioural Sciences, Swinburne University
• Professor Andrew Chanen, Director, Clinical
Programs and Services, Orygen Youth Health
• Dr Paul Denborough, Clinical Director, Alfred Child
and Youth Mental Health Service and headspace,
Alfred Health
• Dr Neil Coventry, Chief Psychiatrist, Department of
Health and Human Services
• Dr John Cooper, Consultant Psychiatrist, Bendigo
Child and Adolescent Mental Health Service
466
Volume 5 Appendices
467
Royal Commission into Victoria’s Mental Health System
19 November 2019 Aged 18–65 with experience of mental health services in an Wangaratta
outpatient and/or clinical setting in the last 12 months
19 November 2019 Aged 65+ with experience of geriatric/aged mental health services Wangaratta
20 November 2019 Aged 18–65 with experience of acute mental health services in Frankston
inpatient facilities in the last 12 months (but not currently in an
inpatient facility)
20 November 2019 Aged 65+ with experience of geriatric/aged mental health services Frankston
25 November 2019 Aged 18–65 with experience of mental health services in an Bairnsdale
outpatient and/or clinical setting in the last 12 months
25 November 2019 Aged 18+ with experience caring for people experiencing mental Bairnsdale
illness
26 November 2019 Aged 16–25 with lived experience of child and youth mental health Traralgon
services in the last two years
26 November 2019 Aged 18–65 with experience of acute mental health services in Traralgon
inpatient facilities in the last 12 months (but not currently in an
inpatient facility)
27 November 2019 Aged 18–65 with experience of acute mental health services in Melbourne
inpatient facilities in the last 12 months (but not currently in an
inpatient facility)
29 November 2019 Aged 18–65 with experience of mental illness and alcohol and other Melbourne
drugs (AOD) services
29 November 2019 Aged 18+ with experience of forensic/justice mental health services Melbourne
30 November 2019 Aged 18+ with experience caring for people experiencing mental Melbourne
illness
30 November 2019 Aged 16–25 with experience caring for people experiencing mental Melbourne
illness
10 December 2019 Young people (16–25) with a lived experience of mental illness, Melbourne
including those with caring responsibilities
26 February 2020 Men over 25 years old with experience of mental illness and recent Melbourne
experience of the justice system
26 February 2020 Young men 16+ years old with experience of mental illness and Melbourne
recent experience of the justice system, including Youth Justice
28 February 2020 Women over 25 years old with experience of mental illness and Melbourne
recent experience of the justice system
468
Volume 5 Appendices
28 February 2020 Young women 16+ years old with experience of mental illness and Melbourne
recent experience of the justice system, including Youth Justice
12 May 2020 Frontline workers in the allied and community health sector online
13 May 2020 Frontline psychiatrists and clinical psychologists from public and online
private sectors
22 May 2020 Those caring for a young person/people under the age of 12 online
experiencing mental illness
27 May 2020 Carers who identify as LGBTIQ+ caring for a person/people online
experiencing mental illness
3 June 2020 Carers who identify as culturally and linguistically diverse caring online
for a person/people experiencing mental illness
4 June 2020 Young people over 16 and under 25 years old caring for a person/ online
people experiencing mental illness
9 June 2020 Consumer and carer lived experience and peer workers online
30 June 2020 Carers who have recent experience of crisis responses online
30 June 2020 People who have recent experience of crisis responses online
6 July 2020 Carers and consumers who have tried to access services across the online
spectrum
7 July 2020 People who have lived experience of both AOD service use and online
mental illness
7 July 2020 Carers of people who have lived experience of both AOD service use online
and mental illness
10 July 2020 People with lived experience of suicidal crisis including carers online
13 July 2020 Carers of adults (18+) with experiences of community-based services online
13 July 2020 Adults (18+) with experiences of community-based area mental online
health services, community health organisations and Primary Health
Network services
17 July 2020 People that have experienced mental illness and housing challenges online
or homelessness
469
Royal Commission into Victoria’s Mental Health System
20 July 2020 Carers of people with experiences of community-based area mental online
health services, community health organisations and Primary Health
Network services
27 July 2020 People who have had a recent experience in an adult community or online
hospital bed-based setting
27 July 2020 Carers of people who have had a recent experience in an adult online
community or hospital bed-based setting
3 August 2020 Consumers who wish to discuss information sharing, including the online
pros and cons of using technology to support moving between
services, timely support and choices about when/what information is
shared
4 August 2020 Carers who wish to discuss information sharing, including the pros online
and cons of using technology to support moving between services,
timely support and choices about when/what information is shared
5 August 2020 Young consumers aged 16+ with experience of mental health services online
7 August 2020 Those caring for a young person/people under the age of 12 online
experiencing mental illness
7 August 2020 Those caring for a young person/people between 12 and 25 online
experiencing mental illness
3 September 2020 Those who identify as being culturally and linguistically diverse who online
have experience with the mental health system
4 September 2020 Restrictive practices with lived experience experts, including carers online
to develop questions for the combined session
4 September 2020 Restrictive practices with lived experience experts, carers and online
clinicians
10 September 2020 Restrictive practices lived experience experts including carers online
14 September 2020 Speaking From Experience Group, Independent Mental Health online
Advocacy
15 September 2020 Speaking From Experience Group, Independent Mental Health online
Advocacy
6 October 2020 Community workshop with a range of community members in North online
Eastern Victoria
470
Volume 5 Appendices
• Cath Roper
• Erandathie Jayakody
• Gareth Edwards
• Heather Pickard
• Ian Watts
• Indigo Daya
• Dr Tricia Szirom
471
Royal Commission into Victoria’s Mental Health System
The Commission established an expert systems advisory function in November 2019. The
advisory function had a flexible membership to reflect the specific needs of each stage of the
Commission’s inquiry. It included diverse expertise in systems reform from across Australia
and overseas.
• Professor Luis Salvador-Carulla, Head, Centre for Mental Health Research, Research
School of Population Health, College of Health and Medicine, Australian National
University, Canberra
• Professor Richie Poulton, Co-Director, National Centre for Lifecourse Research,
University of Otago, New Zealand
• Ms Allison Costello, Director, Policy and Innovations Branch, Ontario Ministry of Health
and Long-Term Care, Canada
• Dr Robyn Mildon, Founding Executive Director, Centre for Evidence and
Implementation, Melbourne
• Professor Iven Mareels, Chair of Electrical and Electronic Engineering, Electrical and
Electronic Engineering, Melbourne University
• Professor Ezekiel Emanuel, Vice Provost for Global Initiatives, University of
Pennsylvania, United States.
They contributed to the Commission but were in no way associated with its final deliberations
and findings.
The Commission’s system design approach was also informed by Professor Rod Glover and
the team at Monash Sustainable Development Institute.
The Commission also acknowledges Dr Seanna Davidson, Director, The Systems School and
Dr Fiona McKenzie, Director, Orange Compass, who provided content drafting support for the
systems design chapter of this report.
472
Volume 5 Appendices
473
Royal Commission into Victoria’s Mental Health System
Glossary
The Commission notes that several of the terms within this glossary differ from phrasing used
in its letters patent. Where this is the case, the Commission has either made a deliberate
choice to provide greater clarity on a term, or to enable a more inclusive interpretation. The
Commission has inquired into all matters as per the expectations set in the letters patent.
Term Description
Aboriginal A primary health care service initiated and operated by the local
community Aboriginal community to deliver holistic, comprehensive and culturally
controlled health appropriate health services to the community that controls it, through a
organisation locally elected board of management. This definition is consistent with
that stated by the National Aboriginal Community Controlled Health
Organisation.1
Acute mental Acute mental health beds, or acute inpatient units, support people
health inpatient experiencing an acute episode of mental illness that calls for treatment
services in hospital. These services include acute mental health beds for young
people, adults and older adults.
474
Volume 5 Glossary
Term Description
Adult and Older Future services that will provide tertiary-level, high-intensity and complex
Adult Area support responses via multidisciplinary teams to people aged 26 years or
Mental Health older in both community and bed based settings.
and Wellbeing
Services Adult and Older Adult Area Mental Health and Wellbeing Services will
deliver all the core functions of community-based mental health services
for those requiring a higher intensity of treatment, care and support than
can be provided through local services.
Adult and older Future system that will provide treatment, care and support to Victorians
adult community over the age of 26 years. The Commission has taken an expansive view
mental health of what makes up the community mental health and wellbeing system,
and wellbeing beyond mental health and wellbeing services. The system can be
system considered to span six levels, where the top level engages with the most
people and each subsequent level supports a decreasing proportion of
the population. The six levels are:
Within this system, there will be an older adult mental health and
wellbeing service stream that provides treatment, care and support for
people with complex and compounding mental health needs generally
related to ageing who are over the age of 65.
Adult and Older Future services that will deliver treatment, care and support to people
Adult Local aged 26 years or older. They will be delivered in a variety of settings
Mental Health where people first access services and receive most of their treatment,
and Wellbeing care and support. People will access these services either directly or
Services via referral, and services will operate with extended hours. Services will
deliver the Commission’s recommended core functions for community
mental health and wellbeing services. Service delivery may involve Area
Mental Health and Wellbeing Services.
475
Royal Commission into Victoria’s Mental Health System
Term Description
Area Mental Future services that will provide tertiary-level, high-intensity and complex
Health and support responses via multidisciplinary teams in both community and
Wellbeing bed based settings. Area Mental Health and Wellbeing Services will
Services deliver all the core functions of community-based mental health services
for those requiring a higher intensity of treatment, care and support than
can be provided through local services or in partnership with them.
There will be separate Area Mental Health and Wellbeing Services for
infants, children and young people and for adults and older adults. For
infants, children and young people there will be two service streams:
Infant, Child and Family Area Mental Health and Wellbeing Services (0–11);
and Youth Area Mental Health and Wellbeing Services (12–25). There will
also be Adult and Older Adult Area Mental Health and Wellbeing Services
(for people over the age of 26).
Area mental The current state-funded area mental health services provide clinical
health services community-based and inpatient care. Seventeen of Victoria’s public
health services operate area mental health services.
Note: For the purposes of clarity, the current system is referred to in lower
case and elements of the new service system have been capitalised in
this report.
Ambulatory care Care provided to hospital patients who are not admitted to the hospital,
such as patients of emergency departments and outpatient clinics. The
term also refers to care provided to patients of community-based (non-
hospital) healthcare services.4
476
Volume 5 Glossary
Term Description
Assessment An order made under the Mental Health Act 2014 (Vic) that authorises
Order a person to be compulsorily examined by an authorised psychiatrist to
determine whether the treatment criteria, specified in the Mental Health
Act, apply to the person. The order can either be an Inpatient Assessment
Order or a Community Assessment Order, which reflects the location of
where the examination is to occur.5
Blended care Providing care through integrating digital and face-to-face supports.
In blended care, digital supports are used to complement face-to-face
services and to build on the gains achieved in face-to-face delivery.7
Carer A person, including a person under the age of 18 years, who provides care
to another person with whom they are in a relationship of care.10
477
Royal Commission into Victoria’s Mental Health System
Term Description
Clinical ‘[T]he systems and processes that health services need to have in place
governance to be accountable to the community for ensuring that care is safe,
effective, patient-centred and continuously improving’.11
Coercion The action or practice of persuading in a way that uses or implies force
and threats—forcing someone to do something.
Community care A unit that provides clinical care and rehabilitation services in a homelike
unit environment.
Community Services that provide primary health, human services and community-
health services based supports to meet local community needs.
and integrated
care services
478
Volume 5 Glossary
Term Description
Comorbidity A situation where a person has two or more health problems at the same
time. Also known as multimorbidity.
Compulsory Under section 3 of the Mental Health Act 2014 (Vic) a compulsory
patient patient means a person who is subject to an Assessment Order, Court
Assessment Order, Temporary Treatment Order or Treatment Order
under the Act. Compulsory patients are sometimes referred to as
‘involuntary patients’.
479
Royal Commission into Victoria’s Mental Health System
Term Description
Compulsory The treatment of a person for mental illness subject to an order under
treatment the Mental Health Act 2014 (Vic), the Crimes (Mental Impairment
and Unfitness to be Tried) Act 1997 (Vic) or the Sentencing Act 1991
(Vic). This can include the administration of medication, hospital
stays, electroconvulsive treatment or neurosurgery for mental illness.
Compulsory treatment is sometimes referred to as ‘involuntary
treatment’.
Consumer People who identify as having a living or lived experience of mental illness
or psychological distress, irrespective of whether they have a formal
diagnosis, have used mental health services and/or received treatment,
care or support.
Consumer The Commission uses the streams to describe how, at any given point in
streams time, a person experiencing mental illness or psychological distress will
need one of:
480
Volume 5 Glossary
Term Description
Culturally Term used in this report to reflect the fact that the Victorian population is
diverse diverse and that culture and language can influence people’s needs and
their access to mental health services that meet their needs.
Designated A health service20 that is prescribed in the Mental Health Regulations 2014
mental health (Vic) to provide compulsory treatment21 (includes Forensicare).
service
Digital The use of online and other digital technologies to improve mental
mental health health and wellbeing, including access to information, service delivery,
technology education, promotion and prevention.
481
Royal Commission into Victoria’s Mental Health System
Term Description
Dual diagnosis Term historically used to describe services in Victoria that provide
service treatment, care and support to consumers living with mental illness and
substance use or addition.
Dual disability Term defined in the Commission’s interim report as people living with
both mental illness and an acquired or neurodevelopmental disability
(such an intellectual disability, autism spectrum disorder, attention-
deficit/hyperactivity disorder or a communication disorder).26
Early Includes prevention and early treatment. Early intervention can involve
intervention equipping people to deal with the signs and symptoms of illness or
distress and helping people as soon as possible once mental distress
is identified in order to improve the prospect of recovery (for example,
following exposure to trauma).
482
Volume 5 Glossary
Term Description
Fee for service Under a fee-for-service funding model, service providers receive funding
based on the number and mix of procedures, treatments and services
they deliver.28
Forensic mental A service that provides treatment, care and support services to people
health service living with mental illness who have come into contact with the criminal
justice system.
Forensic patient A person under the Crimes (Mental Impairment and Unfitness to be Tried)
Act 1997 (Vic) through an order of a court and detained at a designated
mental health service (usually at Forensicare’s Thomas Embling Hospital).29
Good mental A state of wellbeing in which a person realises their own abilities, can
health cope with the normal stresses of life, can work productively and is able to
make a contribution to their community.
Harm A health policy approach that recognises there are complex and
minimisation interrelated health, social and economic consequences of substance use
or addiction that affect individuals, families and the community. A harm
minimisation approach recognises that drug use is individual and occurs
from occasional use to dependency. The approach does not condone
drug use but recognises a range of strategies are required to support a
progressive reduction in substance-related harm.
483
Royal Commission into Victoria’s Mental Health System
Term Description
Infant, Child and Future local mental health and wellbeing services for people aged 0–11
Family Health years that will take the form of Infant, Child and Family Health and
and Wellbeing Wellbeing Hubs.
Hubs
These hubs will take a one-stop shop approach to child health by
prioritising infants and children with emotional (for example, mental
health challenges), developmental (for example, intellectual disability,
autism spectrum disorder, speech delay) and physical health challenges
(for example, asthma, allergies, chronic disease) that have continued to
affect their wellbeing despite previous support.
The hubs will provide age-appropriate treatment, care and support, use
a whole-of-family approach, conduct a range of assessments as needed
and be supported by Infant, Child and Family Area Mental Health and
Wellbeing Services.
Infant, Child Future services that will provide tertiary-level, high-intensity and complex
and Family Area support responses via multidisciplinary teams to people aged 0–11 years.
Mental Health Infant, Child and Family Area Mental Health and Wellbeing Services
and Wellbeing are a service stream of the 13 Infant, Child and Youth Area Mental
Services Health Services.
Infant, Child and Youth Area Mental Health Services will be delivered
through a partnership between a public health service (or public hospital)
and a non-government organisation that delivers wellbeing supports.
484
Volume 5 Glossary
Term Description
Infant, child and Future service stream that will provide treatment, care and support to
family mental Victorians under the age of 12 years. It is one service stream within the
health and broader infant, child and youth mental health and wellbeing system.
wellbeing service
stream The Commission has taken an expansive view of what makes up this
service stream, beyond mental health and wellbeing services. The service
stream can be considered to span six levels, where the top level engages
with the most people and each subsequent level supports a decreasing
proportion of the population. The six levels are:
Infant, Child Future services that will provide tertiary-level, high-intensity and complex
and Youth Area support responses via multidisciplinary teams to people aged 0–25 years
Mental Health in both community and bed based settings.
and Wellbeing
Services The 13 Infant, Child and Youth Area Mental Health and Wellbeing Services
will deliver all the core functions of community-based mental health
services for those requiring a higher intensity of treatment, care and
support than can be provided through local services.
Within these services will be two service streams: Infant, Child and Family
Area Mental Health and Wellbeing Services and Youth Area Mental Health
and Wellbeing Services.
485
Royal Commission into Victoria’s Mental Health System
Term Description
Infant, child and Future health system that will provide treatment, care and support to
youth mental Victorians aged 0–25 years.
health and
wellbeing system Within this broad system, there are two service streams—the infant, child
and family mental health and wellbeing service stream for people aged
0–11 years and the youth mental health and wellbeing service stream for
people aged 12–25 years.
At the area level, there will be shared clinical governance across the age
range of 0–25 years through the 13 Infant, Child and Youth Area Mental
Health Services.
Integrated care A service that provides a range of services and supports, including
service primary care and mental health care.
Lived experience People with lived experience identify either as someone who is living with
(or has lived with) mental illness or psychological distress, or someone
who is caring for or otherwise supporting (or has cared for or otherwise
supported) a person who is living with (or has lived with) mental illness
or psychological distress. People with lived experience are sometimes
referred to as ‘consumers’ or ‘carers’. The Commission acknowledges that
the experiences of consumers and carers are different.
486
Volume 5 Glossary
Term Description
Lived experience A broad term to represent two distinct professional groups in roles
workforces focused on their lived expertise—people with personal lived experience of
mental illness (‘consumers’) and families and carers with lived experience
of supporting a family member or friend who has experienced or is
experiencing mental illness. Within each professional discipline there are
various paid roles, among them workers who provide support directly
to consumers, families and carers through peer support or advocacy, or
indirectly through leadership, consultation, system advocacy, education,
training or research.
Local Mental Future services that will provide treatment, care and support in a variety
Health and of settings where people first access services. People will access these
Wellbeing services either directly or via referral, and services will operate with
Services extended hours. Services will deliver the Commission’s recommended core
functions. Service delivery may occur in partnership with area services.
There will be separate local services for each of three age groups: Infant,
Child and Family Local Health and Wellbeing Services (0–11), Youth Local
Mental Health and Wellbeing Services (12–25) and Adult and Older Adult
Local Mental Health and Wellbeing Services (over 26).
Medicare- Service in which the Medicare Benefits Scheme and the associated Better
subsidised Access Initiative provide subsidised access to GPs and other health
mental health- professionals such as psychiatrists, psychologists and other allied health
specific service practitioners.
Mental health An optimal state of mental health, including as it relates to people with
and wellbeing lived experience of mental illness or psychological distress. It can also be
used to refer to the prevention, avoidance or absence of mental illness or
psychological distress.
487
Royal Commission into Victoria’s Mental Health System
Term Description
Mental health The Commission outlines in this report its vision for a future mental
and wellbeing health and wellbeing system for Victoria. Mental health and wellbeing
system does not refer simply to the absence of mental illness but to creating the
conditions in which people are supported to achieve their potential. As
part of this approach, the Commission has also purposefully chosen to
focus on the strengths and needs that contribute to people’s wellbeing.
To better reflect international evidence about the need to strike a
balance between hospital-based services and care in the community,
the types of treatment, care and support the future system offers will
need to evolve and be organised differently to provide each person with
dependable access to mental health services and links to other supports
they may seek. The addition of the concept of ‘wellbeing’ represents a
fundamental shift in the role and structure of the system.
Mental health Overarching term that takes in services (with various funders and
system providers) that have a primary function of providing treatment, care or
support to people living with mental illness and/or their carers. This term
is used to describe the current and historical system.
Mental Health Independent statutory tribunal established under the Mental Health Act
Tribunal 2014 (Vic) to hear and determine the making of Treatment Orders and
other applications, including applications to perform electroconvulsive
treatment when a person does not have decision-making capacity or is
under the age of 18 years and applications to perform neurosurgery for
mental illness.32
488
Volume 5 Glossary
Term Description
The Commission uses the above definition of mental illness in line with
the Mental Health Act 2014 (Vic). However, the Commission recognises
the Victorian Mental Illness Awareness Council Declaration released on 1
November 2019.
The declaration notes that people with lived experience can have varying
ways of understanding the experiences that are often called ‘mental
illness’.
Mental wellbeing A dynamic state of complete physical, mental, social and spiritual
wellbeing in which a person can develop to their potential, cope with the
normal stresses of life, work productively and creatively, build strong and
positive relationships with others and contribute to their community.
Neurosurgery for Any of the following three procedures, provided to treat a person meeting
mental illness the criteria for mental illness:
Nominated The formal nomination of a person under the Mental Health Act
person 2014 (Vic) by a person to provide them with support and help and to
represent their interests and rights at times when they are at risk of
receiving compulsory treatment or are receiving compulsory treatment.
The nominated person also receives information from the authorised
psychiatrist at certain points and is consulted as part of decision-making
processes under the Act.35
489
Royal Commission into Victoria’s Mental Health System
Term Description
Older adult Future service stream that will provide treatment, care and support to
mental health Victorians with mental health support needs generally related to ageing.
and wellbeing It is a service stream within the broader adult and older adult mental
service stream health and wellbeing system.
Output funding The Victorian Government uses an ‘output funding model’ whereby
model departments use the investment allocated in the budget process
to deliver on the government’s objectives38 and outputs.39 Output
performance measures are used to specify the expected performance
standard at which these services are to be delivered,40 covering measures
such as the quantity of services provided, timeliness, quality and cost.41
490
Volume 5 Glossary
Term Description
Postvention A range of support services provided to people who have been bereaved
bereavement by suicide.
support
Prevention and Generally a short-term service (up to 28 days) that provides recovery-
recovery care focused treatment in a community-based residential setting.
unit
Primary care Health services where consumers access care, treatment and support
without the need for a referral or without needing to meet certain
eligibility criteria. Primary care settings include general practices,
community health services and some allied health services. Primary
care services are widely distributed, are the most accessible form of
health care and are provided in most local communities across Victoria.
Typical primary care providers are GPs or allied health professionals
such as social workers or mental health nurses. However, primary care
can be offered by a wide range of professionals including psychologists,
paediatricians and maternal child and health workers.
Primary Health Networks that commission a variety of mental health, alcohol and
Networks drug, and suicide prevention services. Services commissioned can vary
but may include: referral and support services; primary and specialist
consultation services; prevention and early intervention services; services
to reduce the harm associated with alcohol and other drugs; and
capacity-building activities such as workforce education and training.42
Refer to Box 29.4 in Chapter 29: Encouraging partnerships for detail.
Primary Strategies that aim to stop the onset of a health condition or disease
prevention from ever occurring by addressing the underlying causes or determinants
of that condition. Primary prevention is distinct from secondary
prevention, also referred to as early intervention, which aims to minimise
the progress of a condition or disease at an early stage. It is also distinct
from tertiary prevention, which aims to stop further progression of the
condition and address the impacts that have already occurred.
491
Royal Commission into Victoria’s Mental Health System
Term Description
Private hospital Includes acute care and psychiatric hospitals, as well as private
freestanding hospitals that provide day-only services.
Psychiatric A unit that offers assessment and treatment for people experiencing
assessment and an acute episode of mental illness and that minimises the need for an
planning unit extended hospital stay in an inpatient unit.
Psychological ‘One measure of poor mental health, which can be described as feelings
distress of tiredness, anxiety, nervousness, hopelessness, depression and
sadness.’43 This is consistent with the definition accepted by the National
Mental Health Commission.
Public specialist Services that provide both clinical and non-clinical mental health
mental health services. These are largely delivered by area mental health services
services operated by 17 public health services in Victoria.
Quality and Monitoring either system or service performance to identify and report
safety oversight on the quality and safety of mental health treatment, care and support.
This can include oversight of specific practices (such as monitoring the
use of electroconvulsive treatment), of the performance of an individual
service, or of the whole system. Oversight often involves a degree of
independence from the practice or service that is subject to oversight.
Recovery- Practice that supports people to autonomously build and maintain a self-
oriented practice defined, meaningful and satisfying life and personal identity, whether or
not there are ongoing symptoms of mental illness.44
492
Volume 5 Glossary
Term Description
493
Royal Commission into Victoria’s Mental Health System
Term Description
Seclusion and The Mental Health Act 2014 (Vic) currently defines two forms of ‘restrictive
restraint interventions’:
Under the Act, seclusion and restraint can only be used in designated
mental health services.48
Secondary care Health services that require a referral from a primary care provider
(usually a GP). A common example is a referral from a GP to a private
psychologist under the Better Access scheme. Another common form of
secondary care is where a GP refers a consumer to a psychiatrist for a
mental health assessment.
Secure extended A unit offering secure services on a general hospital site for people who
care unit need a high level of secure and intensive clinical treatment for severe
mental illness.
494
Volume 5 Glossary
Term Description
Security patient A prisoner who is placed on an order under the Mental Health Act 2014
(Vic) or the Sentencing Act 1991 (Vic) and detained at a designated
mental health service (usually at Forensicare’s Thomas Embling
Hospital).50
Self- In a collective sense, this term is used to refer to the ‘ability of Aboriginal
determination peoples to freely determine their own political, economic, social and
cultural development as an essential approach to overcoming Indigenous
disadvantage’.51
Some materials referenced by the Commission also use the term ‘self-
determination’ to refer to individual autonomy and each person’s ability
to make choices about themselves and their life.
Service and A plan that ‘identifies present and, as best as possible, future demand
capital plan for services’ and is intended to ‘guide the future allocation of resources’.52
Also called a ‘service and infrastructure plan’.
Service The Commission has developed service standards to assist the Victorian
standards Government and Regional Mental Health and Wellbeing Boards to
select service providers—including new providers, such as consumer-
led providers—with adequate capacity and capability to deliver mental
health services. Refer to Chapter 28: Commissioning for responsive
services for detail.
Shared care A structured approach between two or more health services that each
take responsibility for particular aspects of a consumer’s care. This
responsibility may relate to the particular expertise of the health service.
Shared care is supported by formal arrangements, including clear care
pathways and clinical governance, and all health services involved share
a joint and coordinated approach to the health and wellbeing of the
consumer. Shared care approaches can also benefit health providers—
for example, by providing them with access to expert advice, which can
increase their capabilities over time.
Social and Being resilient, being and feeling culturally safe and connected, having
emotional and realising aspirations, and being satisfied with life. This is consistent
wellbeing with Balit Murrup, Victoria’s Aboriginal social and emotional wellbeing
framework.
495
Royal Commission into Victoria’s Mental Health System
Term Description
Social A person’s mental health and many common mental illnesses are shaped
determinants of by social, economic, and physical environments, often termed the ‘social
mental health determinants of mental health’. Risk factors for many common mental
illnesses are heavily associated with social inequalities, whereby the
greater the inequality the higher the inequality in risk.53
Social housing Term covering two distinct forms of subsidised rental housing: public
housing, which is owned and operated by the Victorian Government, and
community housing, which is owned and operated by community housing
providers.54
Substance use or Substance use means the use of alcohol, tobacco or other drugs
addiction (prescription or illicit). Substance use may become harmful to a person’s
health and wellbeing or can have other impacts on someone’s life or that
of their family and broader social network.
Substituted Where a third party makes treatment decisions for the consumer.
decision making
496
Volume 5 Glossary
Term Description
Supported The process that supports a person to make and communicate decisions
decision making with respect to personal or legal matters. This may be achieved by
offering consumers access to a variety of tools and resources such as
non-legal advocates and peer workers.59
Systemic Term that ‘describes patterns or practices of discrimination that are the
discrimination result of interrelated policies, practices and attitudes that are entrenched
in organisations or in broader society’.60
Temporary An order made under the Mental Health Act 2014 (Vic) by an authorised
Treatment Order psychiatrist following an examination under an Assessment Order that
requires a person to be provided with compulsory treatment. The order
is either an Inpatient Temporary Treatment Order or a Community
Temporary Treatment Order.62
Tertiary care Highly specialised medical care usually over an extended period of
services time that involves advanced and complex procedures and treatments
performed by medical specialists in state-of-the-art facilities.
Treatment When ‘a person receives treatment for mental illness if things are done
in the course of the exercise of professional skills to remedy the person’s
mental illness; or to alleviate the symptoms and reduce the ill effects of
the person’s mental illness’.63
Treatment, care The Commission uses this phrase consistently with its letters patent.
and support This phrase has also been a deliberate choice throughout this report
to present treatment, care and support as fully integrated, equal parts
of the way people will be supported in the future mental health and
wellbeing system. In particular, wellbeing supports (previously known
at ‘psychosocial supports’) that focus on rehabilitation, wellbeing
and community participation will sit within the core functions of the
future system.
Treatment Order An order made under the Mental Health Act 2014 (Vic) by the Mental
Health Tribunal following a period of treatment under a Temporary
Treatment Order that requires a person to be provided with compulsory
treatment. The order is either an Inpatient Treatment Order or a
Community Treatment Order.64
497
Royal Commission into Victoria’s Mental Health System
Term Description
Value-based Care whose goal is to create more value for consumers by focusing on
care the outcomes that matter to them, rather than just focusing on cost-
efficiency. Some funding approaches are designed to encourage greater
value, such as bundled payments.65
Wellbeing Used to describe supports for wellbeing in the future system. Includes
supports supports currently known as ‘psychosocial supports’.
Whole of system The Commission’s terms of reference define the mental health system
by reference to mental health services that are funded wholly, or in
part, by the Victorian Government. When the Commission refers to
‘whole of system’ in relation to the mental health system, the reference
is to a broader system. This includes not only public sector bodies and
organisations at the federal, state and local government levels; it includes
all people and organisations who participate in—or are connected
with—the new mental health and wellbeing system recommended by the
Commission.
Youth Area Future services that will provide tertiary-level, high-intensity and complex
Mental Health support responses via multidisciplinary teams to people aged 12–25
and Wellbeing years. Youth Area Mental Health and Wellbeing Services are a service
Services stream of the 13 Infant, Child and Youth Area Mental Health Services.
Youth Area Mental Health and Wellbeing Services will deliver all the core
functions of community-based mental health services for those requiring
a higher intensity of treatment, care and support than can be provided
through local services or in partnership with them.
Infant, Child and Youth Area Mental Health Services will be delivered
through a partnership between a public health service (or public hospital)
and a non-government organisation that delivers wellbeing supports.
498
Volume 5 Glossary
Term Description
Youth Local Future services that will deliver treatment, care and support to people
Mental Health aged 12–25 years or older.
and Wellbeing
Services The role of Youth Local Mental Health and Wellbeing Services in the youth
mental health and wellbeing service stream will be predominantly played
by the network of headspaces across Victoria, although, over time, other
providers may also choose to deliver this level of service.
Youth Local Mental Health and Wellbeing Services and Youth Area Mental
Health and Wellbeing Services will be formally networked within each of
the 13 areas. They will work together in partnerships to provide treatment,
care and support to young people.
Youth mental Future service stream that will provide treatment, care and support to
health and Victorians aged 12–25 years. It is one service stream within the broader
wellbeing service infant, child and youth mental health and wellbeing system.
stream
The Commission has taken an expansive view of what makes up this
service stream, beyond mental health and wellbeing services. The service
stream can be considered to span six levels, where the top level engages
with the most people and each subsequent level supports a decreasing
proportion of the population. The six levels are:
499
Royal Commission into Victoria’s Mental Health System
Shortened forms
The following shortened forms are frequently used in this report. Other shortened forms are
explained where they are used.
Form Description
AC Companion of the Order of Australia
GP general practitioner
IT information technology
LGBTIQ+ lesbian, gay, bisexual, trans and gender diverse, intersex, queer and questioning
MP Member of Parliament
500
Volume 5 Glossary
1 National Aboriginal Community Controlled Health Organisation, Submission to the Productivity Commission
Inquiry into Human Services: Identifying Sectors for Reform, 2016, p. 4.
2 Victorian Government, Victorian Aboriginal Affairs Framework: 2018–2023, 2018, p. 1.
3 Department of Health and Human Services, Clinical Mental Health Funding Reform: Building a Stronger
Foundation for Funding Adequacy, Growth and Fairness, 2020, p. 3.
4 Australian Institute of Health and Welfare, Mental Health Services in Australia 2004–05, 2007.
5 Mental Health Act 2014 (Vic), sec. 28.
6 Mental Health Act 2014 (Vic), sec. 150.
7 Doris Erbe and others, ‘Blending Face-to-Face and Internet-Based Interventions for the Treatment of Mental
Disorders in Adults: Systematic Review’, Journal of Medical Internet Research, 19.9 (2017), 1–15 (p. 2).
8 Michael E Porter and Robert S Kaplan, How Should We Pay for Health Care? Working Paper 15-041, 2015, p. 3.
9 Carers Recognition Act 2012 (Vic), sec. 3.
10 Carers Recognition Act 2012 (Vic), sec. 3.
11 Department of Health and Human Services, Targeting Zero: Supporting the Victorian Hospital System to Eliminate
Avoidable Harm and Strengthen Quality of Care. Report of the Review of Hospital Safety and Quality Assurance in
Victoria, 2016, p. 3.
12 Karen Gardner and others, ‘A Rapid Review of the Impact of Commissioning on Service Use, Quality, Outcomes and
Value for Money: Implications for Australian Policy’, Australian Journal of Primary Health, 22.1 (2016), 40–49 (p. 40);
Productivity Commission, Introducing Competition and Informed User Choice into Human Services: Reforms to
Human Services, Inquiry Report, 2017, p. 21.
13 Helen Dickinson and others, ‘Making Sense of Joint Commissioning: Three Discourses of Prevention, Empowerment
and Efficiency’, BMC Health Services Research, 13.S6 (2013), p. 1.
14 Royal Commission into Victoria’s Mental Health System, Interim Report, 2019, p. 615.
15 Australian Institute of Health and Welfare, State and Territory Community Mental Health Care Services, 2019, p. 15;
Productivity Commission, Mental Health Inquiry Report, Volume 2, 2020, p. 570.
16 Note: Where there is a gap of no more than five minutes between the orders.
17 Kathryn Williams and others, Patient-Reported Outcome Measures: Literature Review (Australian Commission on
Safety and Quality in Health Care, 2016), pp. 1 and 18.
18 Cath Roper, Flick Grey and Emma Cadogan, Co-Production: Putting Principles into Practice in Mental Health
Contexts, 2018, p. 2.
19 Pet Dudgeon, Helen Milroy and Roz Walker (eds.), Working Together: Aboriginal and Torres Strait Islander Mental
Health and Wellbeing, Second Edition (Canberra: Commonwealth of Australia, 2014), p. 544.
20 Health Services Act 1988 (Vic), sec. 3. Note: the reference to a health service includes a public hospital, public
health service, denomination hospital, privately-operated hospital or private hospital within the meaning of the
Health Services Act 1988 (Vic).
21 Mental Health Act 2014 (Vic), sec. 3.
22 Ana Hategan, Caroline Giroux and James A. Bourgeois, ‘Digital Technology Adoption in Psychiatric Care: An
Overview of the Contemporary Shift from Technology to Opportunity’, Journal of Technology in Behavioral Science,
4 (2019), 171–77 (p. 171).
23 Equal Opportunity Act 2010 (Vic) secs. 4 and 6. The Commission recognises that terms such as ’psychological
disease or disorder’ can be pathologising and stigmatising.
24 Equal Opportunity Act 2010 (Vic), sec. 9.
25 Equal Opportunity Act 2010 (Vic), sec. 10.
26 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 35.
27 Mental Health Act 2014 (Vic), sec. 3.
28 Porter and Kaplan, p. 2.
29 Mental Health Act 2014 (Vic), sec. 305.
30 Centers for Disease Control and Prevention, United States, Indicators: CDC Approach to Evaluation, <www.cdc.gov/
eval/indicators/index.htm>, [accessed 3 December 2020].
31 Royal Commission into Victoria’s Mental Health System, Interim Report, p. 50; Family Safety Victoria, Everybody
Matters: Inclusion and Equity Statement, 2018.
32 Mental Health Act 2014 (Vic), sec. 153.
33 Mental Health Act 2014 (Vic), sec. 4.
34 Mental Health Act 2014 (Vic), sec. 3.
35 Mental Health Act 2014 (Vic), sec. 24.
501
Royal Commission into Victoria’s Mental Health System
36 Peter C Smith, Elias Mossialos and Irene Papanicolas, Performance Measurement for Health System Improvement:
Experiences, Challenges and Prospects (World Health Organization, 2008), p. 4.
37 Smith, Mossialos and Papanicolas, p. 4.
38 Department of Treasury and Finance, Performance Management Framework: For Victorian Government
Departments March 2016, 2017, p. 18.
39 Witness Statement of David Martine PSM, 28 June 2019, para. 17.
40 Department of Treasury and Finance, p. 12.
41 Witness Statement of David Martine PSM, para. 17.
42 PHN Eastern Melbourne, Mental Health, AOD and Suicide Prevention, <www.emphn.org.au/what-we-do/mental-
health>, [accessed 24 October 2019].
43 National Mental Health Commission, Monitoring Mental Health and Suicide Prevention Reform: National Report
2019, 2019, p. 87.
44 Department of Health, Victoria, Framework for Recovery-Oriented Practice, 2011, p. 2; Geoff Shepherd, Jed
Boardman and Mike Slade, Making Recovery a Reality Policy Paper, 2008, p. 2.
45 Mental Health Act 2014 (Vic), sec. 3.
46 Mental Health Act 2014 (Vic), sec. 3.
47 Mental Health Act 2014 (Vic), sec. 3.
48 Mental Health Act 2014 (Vic), secs. 105, 110 and 113.
49 Mental Health Act 2014 (Vic), sec. 105.
50 Mental Health Act 2014 (Vic), sec. 3.
51 Dudgeon, Milroy and Walker, p. 548.
52 Douglas G Travis, Travis Review: Increasing the Capacity of the Victorian Public Hospital System for Better Patient
Outcomes, 2015, pp. 1 and 39.
53 World Health Organization and the Calouste Gulbenkian Foundation, Social Determinants of Mental Health, p.
43, <www.who.int/mental_health/publications/gulbenkian_paper_social_determinants_of_mental_health/en/>,
[accessed 4 December 2020].
54 Victorian Auditor-General’s Office, Managing Victoria’s Public Housing, 2017, p. vii.
55 Witness Statement of Associate Professor Nicola Reavley, 3 July 2019, para. 8; World Health Organization, The
World Health Report 2001. Mental Health: New Understanding, New Hope, 2001, p. 16.
56 James D Livingston, Mental Illness-Related Structural Stigma: The Downward Spiral of Systemic Exclusion Final
Report, 2013, p. 6.
57 Mark L. Hatzenbuehler, Jo C. Phelan and Bruce G. Link, ‘Stigma as a Fundamental Cause of Population Health
Inequalities’, American Journal of Public Health, 103.5 (2013), 813–821 (p. 817).
58 Mark L. Hatzenbuehler and Bruce G. Link, ‘Introduction to the Special Issue on Structural Stigma and Health’, Social
Science and Medicine, 103 (2014), 1–6.
59 M. B. Simmons and P. M. Gooding, ‘Spot the Difference: Shared Decision-Making and Supported Decision-Making
in Mental Health’, Irish Journal of Psychological Medicine, 34.4 (2017), 1–12 (p. 5); General Assembly, United Nations,
Annual Report of the United Nations High Commissioner for Human Rights and Reports of the Office of the High
Commissioner and the Secretary-General, Human Rights Council, Tenth Session, Agenda Item 2, 26 January
2009, p. 15.
60 Department of Justice, An Equality Act for a Fairer Victoria: Equal Opportunity Review Final Report, 2008, p. 7.
61 Mental Health Commission of Canada, Toolkit for E-Mental Health Implementation, 2018, p. 12.
62 Mental Health Act 2014 (Vic), sec. 45.
63 Mental Health Act 2014 (Vic), sec. 6.
64 Mental Health Act 2014 (Vic), sec. 52.
65 Dr Shalika Hegde and Dr Rebecca Haddock, Re-Orienting Funding from Volume to Value in Public Dental Health
Services, Issues Brief No. 32, 2019, p. 44.
66 State Services Authority Victoria, Joined up Government: A Review of National and International Experiences
Working Paper No. 1, 2007, p. 2.
502
Volume 5 Glossary
503