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A Study To Assess The Level of Knowledge Regarding The Rights of Mentally Ill Person Among Care Givers Attending OPD of Mental Hospital Selaqui Dehradun, Uttarakhand" Affiliation

This study assessed the level of knowledge regarding the rights of mentally ill persons among 100 caregivers at the State Mental Hospital in Selaqui, Dehradun, Uttarakhand, India. The researchers found that the majority (70%) of caregivers were male. Male caregivers were found to have inadequate (35%) or moderate (22%) knowledge, while female caregivers had inadequate (27%) or moderate (9%) knowledge regarding the human rights of mentally ill individuals. Statistical analysis found significant associations between caregiver's knowledge and factors like age, education level, marital status, occupation, and relationship to the patient. The study concluded there is a need for more health education programs for caregivers on the rights of

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0% found this document useful (0 votes)
185 views

A Study To Assess The Level of Knowledge Regarding The Rights of Mentally Ill Person Among Care Givers Attending OPD of Mental Hospital Selaqui Dehradun, Uttarakhand" Affiliation

This study assessed the level of knowledge regarding the rights of mentally ill persons among 100 caregivers at the State Mental Hospital in Selaqui, Dehradun, Uttarakhand, India. The researchers found that the majority (70%) of caregivers were male. Male caregivers were found to have inadequate (35%) or moderate (22%) knowledge, while female caregivers had inadequate (27%) or moderate (9%) knowledge regarding the human rights of mentally ill individuals. Statistical analysis found significant associations between caregiver's knowledge and factors like age, education level, marital status, occupation, and relationship to the patient. The study concluded there is a need for more health education programs for caregivers on the rights of

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Volume||08||Issue||05||May-2020||Pages-8329-8339||ISSN(e):2321-7545

Website: http://jsae.in

A study to assess the level of knowledge regarding the Rights of mentally ill person among
care givers attending OPD of mental hospital Selaqui Dehradun, Uttarakhand”
Affiliation:

Authors
Kuldeep Singh Pundir1, Kamlesh dixit2
Lecturer, Pal College of Nursing & Medical Sciences

ABSTRACT
India has a huge burden of mental illness which is increasing day by day. The rights of mentally ill have been
violated and stigmatized by the caregivers and society. The reason for ill treatment may be due to lack of
knowledge regarding rights of mentally ill clients. Rights of the human being deals with balancing the
rights of all human beings as individuals within the community, Hence the investigator has undertaken a
descriptive study to assess the knowledge regarding rights of mentally ill person among caregivers at State
Mental Health Institute, Selaqui, Dehradun. The objectives of the study were, describe the characteristics of the
subjects, assess the knowledge regarding rights of patient among their care givers, and determine the association
between selected demographic variables and level of knowledge. Descriptive survey was carried out among 100
caregivers at State Mental Hospital. Non probability convenient sampling technique was adopted for the present
study. The self-structured questionnaires were used for data collection. The data was collected through face to
face interviews. Data was analyzed and interpreted using descriptive and inferential. Majority 70 (70%) of the
samples were male and 30 (30%) of were female. Male care givers 35 (35%) were having inadequate
knowledge, 22 (22%) male were having moderate knowledge and 16 were having adequate knowledge, where
as in female care givers 27 (27%) were having inadequate knowledge, and 9 (9%) were having moderate and 6
(6%) having adequate knowledge regarding human rights of person with mental illness. shows that the mean
value of 100 subjects were 55.2 with standard deviation of 23.36 and mean percentage 55.20%. gender shows
no association at 0.05 level of significance Chi-square calculated value is 0.117 at df = 2, age and education
shows the significance level at 0.05, calculated value is 29.09 and 84.607 at df -6, marital status has significant
association with knowledge score value is 7.59 at df = 2 significance at 0.05 level, occupation has significant
association with knowledge at significance level 0.05 with df- 8, religion did not show any association at df-8,
whereas resident’s area is significant to knowledge score at p<0.05%, there is no significant association
between types of family at 0.05 level of significance value is 2.62 at df = 2, in relation with relationship its is
significant at 0.05 value is 27.19 at df = 14. Its is interpreted that there is scant need of health education among
caregivers of person with mental illness in vast area so that they can know about their rights and can help person
with mental illness to live with dignity.
Key words: knowledge, mentally ill, rights. Care givers.

Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8329
INTRODUCTION
"All human beings are born free and equal in dignity and rights" (UNO)
Since the dawn of human civilization, mentally ill patients have received the scant care and concern of the
community because of their unproductive value in the socio-economic value system. They have not only been
neglected but received step motherly treatment from the health planners especially in the developing countries.
Mental health is a core filament of life that is closely related and deeply interdependent with the physical health.
Universal Declaration of Human Rights UNO emphasized on that ―Everyone has the right to a standard of
living good for the health and wellbeing of himself and of his family including food, clothing, housing and
medical care and necessary social services and the right to security in the event of unemployment, sickness,
disability, widowhood, old age, or other lack of livelihood in circumstances beyond his control’’. The first
human rights legal resolutions, such as 1948 Universal Declaration of Human Rights , did not specifically
address the rights of mental health consumers. They codified more general, but still relevant , rights like right to
life and liberty and right to be free from inhuman , degrading treatment. Later resolutions such as the
Declaration on the Rights of Mentally Retarded Persons(1971) and the Declaration on the Rights Of The
Disabled Persons(1975), began the process of establishing international minimum standards for the treatment of
persons with mental disabilities.
Approximately 1 in 5 adults in the U.S.—43.8 million, or 18.5%—experiences mental illness in a given year.
Approximately 1 in 25 adults in the U.S.—9.8 million, or 4.0%—experiences a serious mental illness in a given
year that substantially interferes with or limits one or more major life activities. An estimated 26% of homeless
adults staying in shelters live with serious mental illness and an estimated 46% live with severe mental illness
and/or substance use disorders. Approximately 20% of state prisoners and 21% of local jail prisoners have ―a
recent history‖ of a mental health condition. 70% of youth in juvenile justice systems have at least one mental
health condition and at least 20% live with a serious mental illness. Only 41% of adults in the U.S. with a
mental health condition received mental health services in the past year. Among adults with a serious mental
illness, 62.9% received mental health services in the past year. Just over half (50.6%) of children aged 8-15
received mental health services in the previous year in 2015.
A countrywide National Institute of Mental Health & Neurosciences (NIMHANS) Banglore study has revealed
a shocking prevalence of mental illness in India. At least 13.7 per cent of India's general population has been
projected to be suffering from a variety of mental illnesses; and 10.6 per cent of this requires immediate
intervention. The common mental disorders such as depression, anxiety disorders and substance use disorders
are as high as 10 per cent in the total population. Almost 1 in 20 suffers from depression and it is reported to be
higher in females in the age-group of 40-49 years. High rates of depression are also reported in the elderly (3.5
per cent). 22.4 per cent of the population above 18 years suffers from substance use disorder. Nearly 1.9 per
cent of the population is affected by severe mental disorders that included schizophrenia, other non-affective
psychosis and bipolar affected disorders. These are detected more among males and those residing in urban and
metro areas.
In Indian culture, family is viewed as the most important structure in caring for susceptible family members
including those with mental illness and more than 90% of mental ill patients with chronic mental illness live
with their families. The caregivers not only provide the basic needs of care like long-term assistance of housing
and financial aid, they also take care of the day-to-day needs of the people with mental illness, monitoring the
mental state, identify the early signs of illness, relapse and deterioration, and help the patient in accessing
services. The family caregiver also supervises treatment and provides emotional support to the patient.
However, the lack of knowledge and relatively lower mental health literacy stance challenges to family
caregivers, mental health patients and service providers. Mental health literacy has been defined as knowledge

Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8330
on awareness about mental disorders, which aid their recognition, management or prevention though; people's
symptom-management activities will be influenced by mental health literacy.

MATERIAL AND METHODS


Design: Exploratory Descriptive Research Design was used to assess the knowledge rights of mentall ill
patients
Sample: A total of 100 of care giver selected through convenient sampling technique who met inclusion criteria.
Subjects who were not willing to participate in study
Tools: Various tools used to collect the data were:
Self- structured questionnaire: Total number of questions were 30.
Data collection schedule and procedure
Ethical permission
Permission to conduct the study was taken from the Chief Medical Officer Mental Hospital Selaqui Dehradun
Procedure of data collection
Data collection was conducted after receiving permission from the Medical Superintendent of State Mental
Hospital Selaqui, Dehradun
A separate cabin was allotted for conducting the interview, participants were asked to give active participation
in study, those who are willing for interview. Participants were fulfilling the inclusion criteria were enrolled in
the study. Participants were informed about the purpose of the study, possible risks, benefits and confidentiality
of their information before conducting interview. Written informed consent was obtained from the study
participants. After making participants comfortable, they were interviewed by using various tools i.e.socio-
demographic profile, and Self- Structured Questionnaire.

DATA ANALYSIS
Analysis of data was done in accordance with the objectives laid down for the study using descriptive and
inferential statistics in SPSS software version 20.0, and spearman’s correlation were used to analyze the data.

RESULT:
Findings of the study revealed that-
majority 70 (70%) of the samples were male and 30 (30%) of were female
Majority 44 (44%) of the samples were in the age group of 25-40 years, 35 (35%) were in age group of 41-65
years, 15 (15%) were in age group of 18-24 years, and only 6( 6%) were in age group of 65 and above.
Majority 41 (41%) of the samples were higher secondary education, 22 (22%) of samples were graduate and
primary education and minority of 15 (15%) have no formal education
One third 75 (75%) of the samples were married and 25 (25%) were unmarried
Majority 23 (23%) of the sample were employed, where as 22 (22%) of the sample were self employed and
labor, and only 17 (17%) were house wife
Majority 37 (37%) of the samples belongs to Hindu religion, and 34 (34%) were Muslim and 15(15%) were
Sikh and only 14(14%) were belongs to Christian from total samples
Majority 61 (61%) of the samples were residents of rural area, where as 39 (39%) living in urban area.
Majority 53 (53%) of the samples were from nuclear family and 47 (47%) belongs to joint family.
Majority 29 (29%) of the samples were father in relationship, 21 (21%) were son and 17 (17%) were brother
and daughter were 10 (10%) where as wife were 11 (11%) and only 1 (1%) were sister of mentally ill person.
Shows that majority 47% subjects were have poor knowledge, 31% have Average knowledge and only 22%
have good knowledge regarding rights of mentally ill person
Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8331
The findings in relation to aspect wise distribution of scores during the test shows that the highest 55.20 mean
percentage knowledge score was obtained questionnaire related to rights of mentally ill person, 50.20 mean
percentage knowledge score on questionnaire related to rights of mentally ill person
To determine the association between the knowledge score and demographic variables―Chi-square‖test was
used. The result findings exhibited that age, education, marital status, occupation, resident, and relationship with
patient on 0.05 level of significance had statistical significant association with knowledge score. There was no
significant association with other variables such as gender, religion, and family type.

DISCUSSION
Majority 44 (44%) of the samples were in the age group of 25-40 years, 35 (35%) were in age group of 41-65
years, 15 (15%) were in age group of 18-24 years, and only 6( 6%) were in age group of 65 and above.
Majority 41 (41%) of the samples were higher secondary education, 22 (22%) of samples were graduate and
primary education and minority of 15 (15%) have no formal education. One third 75 (75%) of the samples were
married and 25 (25%) were unmarried. Majority 23 (23%) of the sample were employed, where as 22 (22%) of
the sample were self employed and labor, and only 17 (17%) were house wife. Highest 37 (37%) of the
samples belongs to Hindu religion, and 34 (34%) were Muslim and 15(15%) were Sikh and only 14(14%) were
belongs to Christian from total samples, 61 (61%) of the samples were residents of rural area, where as 39
(39%) living in urban area. Majority 53 (53%) of the samples were from nuclear family and 47 (47%) belongs
to joint family, 29 (29%) of the samples were father in relationship, 21 (21%) were son and 17 (17%) were
brother and daughter were 10 (10%) where as wife were 11 (11%) and only 1 (1%) were sister of mentally ill
person.
Knowledge of the care givers of the mentally ill person regarding rights of mentally ill person.
Majority of care givers were having poor knowledge that is (47%), followed by (31%) had Average knowledge
and (22%) of them had good knowledge regarding rights of mentally ill person. Mean value of 100 subjects
were 55.2 with standard deviation of 23.36 and mean percentage 55.20%.

CONCLUSION
The primary aim of the study was to assess to assess the knowledge of caregivers regarding the rights of
mentally ill person state mental hospital, Selaqui, Dehradun. . A descriptive design, with survey approach was
used for the present study. The data was collection from 100 samples through convenient sampling.
The conclusion drawn on the basis of the findings of the study includes:
Gender: In relation to gender the maximum number were males 73 (73%) whereas female were 23 (23%).
Age: The maximum number of respondent were25-40 years 44 (44%) whereas 6 (6%) were above 65.
Education: Most of the respondent were 41(41%) not having secondary education.
Marital status: majority of 75 (75%) were Married and only 25 (25) were unmarried
Occupation: Majority of caregivers were employed 23(23%), and 22 (22%) labor.
Religion: Maximum caregiver belongs to Hindu 37 (37%)
Residential area: Maximum caregiver 61 (61%) were from rural area.
Type of family: majority 53 (53%) were belongs to nuclear family
Relationship: Most of the caregiver were parents (father/mother) 35 (35%).

The result of the study showed that the maximum number of caregivers 47 (47%) had poor knowledge, 31
(31%) had Average knowledge and 22 (22%) had good knowledge about the rights of mentally ill person.
There is statistically significant association found between demographic variables such as age, education,
occupation, residential area, and type of family.
Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8332
Table 1: Frequency and percentage distribution of socio demographic characteristics of care givers of mentally
ill patient
N=100
Demographic data Frequency Percentage%

Gender Male 73 73%


Female 27 27%
Age in years 18-24 15 15%
25-40 44 44%
41-65 35 35%
65 above 6 6%

Education No formal education 15 15%


Primary 22 22%
Secondary 41 41%

Graduation 22 22%

Marital status Married 75 75%

Unmarried 25 25%

Occupation Employed 23 23%


Unemployed 16 16%
House wife 17 17%
Self-employed 22 22%
Labor 22 22%
Religion Hindu 37 37%

Muslim 34 34%

Christian 14 14%

Sikh 15 15%
Resident Urban 39 39%

Rural 61 61%
Type of family Joint 47 47%
Nuclear 53 53%
Relationship Mother 6 6%
with patient Father 29 29%
Sister 1 1%
Brother 17 17%
Wife 11 11%
Husband 5 5%
Son 21 21%
Daughter 10 10%

Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8333
Table 2: Frequency and percentage distribution of knowledge score.
N=100
Knowledge grading in percentage Frequency Percent %
Good Knowledge (81 to 120) 22 22.0
Average Knowledge (41 to 80) 31 31.0
Poor Knowledge (<40) 47 47.0
Total 100 100.0
The above table shows the frequency and percentage (%) distribution of knowledge score of caregivers of the
mentally ill patient. The table depicts that in 47 (47%) of the care givers had Poor knowledge, 31 (31% ) of the
care givers had Average knowledge and 22 (22%) of the care givers possess Good knowledge.
Figure 1: showing knowledge socre

knowledge score
47%
50%

40%
31%
Adequate
30% 22%
Moderate
20% Inadequate

10%

0%
Adequate Moderate Inadequate

Above bar diagram shows the knowledge score of the care givers of mentally ill person Majority of 47% were
having poor knowledge about rights of mentally ill person
Aspect wise comparison on knowledge scores based on mean in different components of questionnaire
regarding substance abuse.
Table 3: Association of care givers knowledge score regarding human rights of mentally ill person with gender.
N=100
Demographical Level of knowledge Total Chi P Inference
variables square value
Gender Good Average Poor (x2)
knowledge knowledge knowledge
F 16 22 35 73
Male
% 16% 22% 35% 73%
0.117 0.943 NS
F 6 9 12 27
Female
% 6% 9% 12% 27%

Note: - Chi-square value is not significant (NS) at 5% level (p>0.05)

Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8334
Table 4: Association of care givers knowledge score regarding human rights of mentally ill person with age.
N=100
Demographical Level of knowledge Total Chi P Inference
variables Good Average Poor square value
knowledge knowledge knowledge (x2)
18- F 5 7 3 15
24 % 3.3% 4.7% 7.1% 15%
Age 25- F 15 17 12 44
in 40 29.09* 0.000 S*
% 9.7% 13.6% 20.7% 44%
years
41- F 2 5 28 35
64 % 7.7% 10.9% 16.5% 35%
>65 F 0 2 4 6
% 1.3% 1.9% 2.8% 6%

Note: - Chi-square value is significant (S) at 5% level (p>0.05)

Table 5: Association of care givers knowledge score regarding rights of mentally ill person with education
status.
N=100
Demographical variables Level of knowledge Total Chi P Inference
Good Average Poor square valu
knowledge knowledge knowledge (x2) e
No formal F 0 1 14 15
Education
% 0% 1% 14% 15%
Primary F 1 0 21 22
Education % 1% 0% 21% 22%
Secondary F 5 24 12 41 84.6* 0.00 S*
% 5% 24% 12% 41% 0
Graduate F 16 6 0 22
% 16% 6% 0% 22%
Note: - Chi-square value is significant (S) at 5% level (p>0.05)
Table 6: Association of care givers knowledge score regarding rights of mentally ill person with marital status.
N=100

Demographical variables Level of knowledge Total Chi P Inference


square value
Good Average Poor (x2)
knowledge knowledge knowledge
Marital Married F 13 21 41 75 7.59 .022 S*
Status % 13% 21% 41% 75%
Unmarried F 9 10 6 25
% 9% 10% 6% 25%

Note: - Chi-square value is Significant (S) at 5% level (p< 0.05)

Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8335
Table 7: Association of care givers knowledge score regarding rights of mentally ill person with occupation.
N=100
Demographical variables Level of knowledge Total Chi P Inferenc
Good Average Poor knowledge square value e
knowledge knowledge (x2)
Employed F 11 11 1 23

% 11% 11% 1% 23%


unemployed F 5 5 6 16
% 5% 5% 6% 16%
Occupa House wife F 1 7 9 17
tion % 1% 7% 9% 17% 36.599 .000 S*
Self employes F 5 5 12 22
% 5% 5% 12% 22%
Labor F 0 3 19 22
% 0% 3% 19% 22%
Note: - Chi-square value is not significant (S) at 5% level (p>0.05)
Table 8: Association of care givers knowledge score regarding rights of mentally ill person with religion.
N=100
Chi
P
Level of knowledge Total square Inference
value
Demographical variables (x2)
Good Average Poor
knowledge knowledge knowledge
F 6 15 16 37
Hindu
% 6% 15% 16% 37%
F 6 11 17 34
Muslim
% 6% 11% 17% 34%
F 4 2 8 14
Christian
% 4% 2% 8% 14%
Religion F 6 3 6 15 6.932 0.327 NS*
Sikh
% 6% 3% 6% 15%
Note: - Chi-square value is not significant (NS) at 5% level (p>0.05)
Table 9: Association of care givers knowledge score regarding rights of mentally ill person with residents.
N=100
Total Chi P Inference
Demographical variables square value
Level of knowledge (x2)
Good Average Poor
knowledge knowledge knowledge
Rural F 4 19 38 61 S*
% 4% 19% 38% 61%
Urban F 18 12 9 39
Resident’s
24.74 .000
% 18% 12% 9% 39%

Kuldeep Singh Pundir, Kamlesh dixit IJSARE Volume 08 Issue 05 May 2020 Page 8336
Note: - Chi-square value is not significant (S) at 5% level (p>0.05)
Table 10: Association of care givers knowledge score regarding rights of mentally ill person with relationship
with persons with mental illness. N=100
Level of knowledge Chi
P
Demographical variables Good Average Poor Total square Inference
value
knowledge knowledge knowledge (x2)
F 1 3 2 6
Mother % 1% 3% 2% 6%
F 2 4 23 29
Father
% 2% 4% 23% 29%
F 0 1 0 1
Sister
% 0% 1% 0% 1%
F 5 6 6 17
Brother % 5% 6% 6% 17%
F 1 5 5 11
Wife % 1% 5% 5% 11%
F 2 2 1 5
Husband
Relation- % 2% 2% 1% 5%
ship with F 7 9 5 21
mentally Son % 7% 9% 5% 21%
F 4 1 5 10 27.19* .018 S*
ill person
Daughter
% 4% 1% 5% 10%
Note: - Chi-square value is not significant (S) at 5% level (p>0.05)

Acknowledgement
The authors sincerely thank all the care givers who participate in study and I’m highly thankful to medical
superintendent of Mental Hospital, Selaqui, Dehradun for giving permission and support and their co-operation
for the smooth conduct of the study.

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