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Common Datatypes in Healthcare, Workflow and Management

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49 views9 pages

Common Datatypes in Healthcare, Workflow and Management

Uploaded by

Krishnanjali Vu
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
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Download as PDF, TXT or read online on Scribd
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3.

Common datatypes & Data flow in Healthcare

Healthcare data is either collected during the course of ongoing patient care or as part of a formal clinical trial program.
i. Electronic health records
ii. Administrative data
iii. Claims data
iv. Patient / Disease registries
v. Health surveys
vi. Clinical trials data

i. Electronic health records


• Digital version of a patient's medical history.

• Electronic clinical data which is obtained at the point of care at a medical facility, hospital, clinic or practice.

• EMR is generally not available to outside researchers.

• The data collected includes administrative and demographic information, past medical history, diagnosis, treatment, prescription
drugs, laboratory tests, physiologic monitoring data, hospitalization, patient insurance, etc.

• Individual organizations such as hospitals or health systems may provide access to internal staff.
ii. Administrative data

Associated with electronic health records, these are primarily hospital discharge data reported to a government agency like (Agency
for Healthcare Research and Quality's (AHRQ).

Healthcare Cost & Utilization Project (H-CUP)


• HCUPnet is a free, on-line query system based on data from the Healthcare Cost and Utilization Project (HCUP).
• It provides access to health statistics and information on hospital inpatient and emergency department utilization.
• The project includes a number of datasets and sample studies listed under the information icon.
• Datasets are available for purchase.
 Nationwide Inpatient Sample
 Kids Inpatient Database
 State Inpatient Databases
 State Ambulatory Surgery Databases
 State Emergency Department Databases
iii. Claims data
 Claims data describe the billable interactions (insurance claims) between insured patients and the healthcare delivery system.
 Claims data falls into four general categories: inpatient, outpatient, pharmacy, and enrollment.
 The sources of claims data can be obtained from the government (e.g., Medicare) and/or commercial health firms (e.g., United
HealthCare).

Leading health insurers across India in financial year 2019, by incurred claims ratio
iv. Patient / Disease registries

Disease registries are clinical information systems, that track a narrow range of key data for certain chronic conditions such as
Alzheimer's Disease, cancer, diabetes, heart disease, and asthma. Registries often provide critical information for managing patient
conditions.

Global Alzheimer's Association Interactive Network (GAAIN)

• It is a collaborative project that will provide researchers around the globe with access to a vast repository of Alzheimer’s
disease research data and the sophisticated analytical tools and computational power needed to work with that data.

National Cardiovascular Data Registry (NCDR)

• The NCDR® is the American College of Cardiology’s worldwide suite of data registries helping hospitals and private practices
measure and improve the quality of cardiovascular care they provide.
• The NCDR encompasses six hospital-based registries and one outpatient registry.
• There are currently more than 2,400 hospitals and nearly 1,000 outpatient providers participating in NCDR registries.

National Program of Cancer Registries

• CDC provides support for states and territories to maintain registries that provide high-quality data.
• Data collected by local cancer registries enable public health professionals to understand and address the cancer burden
more effectively.

National Trauma Data Bank

• The goal of the NTDB is to inform the medical community, the public, and decision makers about a wide variety of issues that
characterize the current state of care for injured persons.
v. Health surveys
• In order to provide an accurate evaluation of the population health, national surveys of the most common chronic conditions are
generally conducted to provide prevalence estimates.
• National surveys are one of the few types of data collected specifically for research purposes, thus making it more widely
accessible.

Medicare Current Beneficiary Survey


 The central goals of MCBS are to determine expenditures and sources of payment for all services used by Medicare beneficiaries.

National Health & Nutrition Examination Survey (NHANES)


 It is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The survey
is unique in that it combines interviews and physical examinations.

National Medical Expenditure Survey


 It is a set of large-scale surveys of families and individuals, their medical providers, and employers across the world.
 MEPS is the most complete source of data on the cost and use of health care and health insurance coverage.

National Center for Health Statistics


 A rich source of health data and statistics on a variety of topics.

CMS Data Navigator


 Center for Medicare & Medicaid Services - Research, Statistics, Data & Systems

National Health and Aging Trends Study (NHATS)


 NHATS is a study of Medicare beneficiaries age 65 years and older.
 NHATS is intended to foster research that will guide efforts to reduce disability, maximize health and independent functioning, and
enhance quality of life at older ages.
vi. Clinical trials data

ClinicalTrials.gov
 Registry and results database hosted by the NIH.
 Information on publicly and privately supported clinical studies from around the world.

Cochrane Library
 Trials database, CENTRAL, is component of Cochrane Library.
 Reports of randomized and quasi-randomized clinical trials taken from Medline, Embase, and elsewhere.

WHO International Clinical Trials Registry Platform (ICTRP)


 Clinical trial registration data from over 15 trial registries, including registries from the European Union, Africa, China, Japan,
Brazil, and Australia.
 Use "standard search" to look for NCT or ISRCTN numbers cited in articles.

European Union Clinical Trials Database


 Protocol and results information on interventional clinical trials conducted in the EU.
 Good source of pediatric drug development trials.

CenterWatch
 Portal for actively recruiting pharmaceutical industry-sponsored clinical trials.

OpenTrials (beta)
 Goal of this project is to locate, match, and share all publicly accessible data on all trials.
 Data sources to include trial registries, journal articles, and regulatory documents.
 Funded by Center for Open Science.

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