Module 2
Module 2
holistic manner
An Introduction to Hospice and Palliative Care
- Patients receive skilled palliative care
- Hospice – healthcare dedicate to alleviating
interventions to ensure comfort
suffering in terminally ill patients. Has been in
- Care is mainly provided in the home (which may
the US for several decades. Large part is
include facilities, if this is where the patient
palliation of distressing symptoms.
resides; Coyle, 2015)
- Palliative care- considered a specialty distinct
- Hospice care is generally provided for patients
from hospice care.
who have a life expectancy of 6 months or less
without life-sustaining treatment.
- Goal: symptom management and support
- Beyond 6-month, a patient may continue to
throughout the disease process.
receive services provided that recertification
- Patient and family/caregivers – are the unit of
requirements are met.
care, their needs are addressed by members of - HC continues through the disease process,
the hospice interdisciplinary team. during the dying process and even after the
- Interdisciplinary team approach- to deliver patient’s death in the form of bereavement
medical, nursing, social, psychological, support for the patient’s family and caregivers.
emotional and spiritual services through a Palliative care nursing should be
collaboration of professionals and caregivers. integrated into the nursing care of older
adults, with chronic illness to improve
- Goal: making the beneficiary as physically and quality of care and to promote physical,
emotionally comfortable as possible. spiritual and emotional comfort.
- Hospice is compassionate beneficiary and (Ferrell, 2019)
family/caregiver centered care for those who
CHARACTERISTICS OF PALLIATIVE CARE
are terminally ill (Centers for Medicare and
- National Institute on Aging 2017 defines
Medicaid Services, 2018 p. 38624
palliative care as “ a resource for anyone living
- Resources for hospice and palliative nurses
with a serious illness (HF, COPD, CA, dementia,
include: *
PD)
American Nurses Association ANA - PC can be helpful at any stage of illness and is
End-of-life Nursing Education best provided from the point of diagnosis.
Consortium ELNEC - It can be provided along with curative
Hospice & Palliative Credentialing treatment and does not depend on prognosis.
Center HPCC - PC includes symptoms management such as
Hospice & Palliative Nurses Association pain, dyspnea, NV, fatigue and others that
HPNA interfere with the patient’s ability to be
National Hospice and Palliative Care comfortable.
Organization NHPCO - PC can take place in various settings in clinic,
The City of Hope. hospital, long-term care facility.
- It can be distinguished from other medical
CHARACTERISTICS OF HOSPICE CARE specialties by its foci on:
- It is associated with terminality, fear on the part Incorporation of interdisciplinary team
of patients and families when the term is used to address spiritual, psychosocial and
- Related with misperception, nearing death, all cultural needs of patients and families
hope is lost, patient will give up the will to live. Integration with curative treatments
- The patient may fear his/her actual death, and Symptom management in early stages
the family may fear the loss of their loved one of disease and throughout the disease
(El-Jawahri et al, 2017) process
- Hospice care focuses on physical, emotional and Patient and family involvement in the
spiritual comfort of terminally ill patients plan of care (WHO 2019)
through interventions developed by IDT - * PC is not specified as Medicare benefit,
- Hospice nurses may have expertise in symptom Medicare Part B may cover some treatments
management and be well versed in HOW each and services that are considered palliative.
disease trajectory typically evolves. - PC nurses have expertise in managing
- Care is specifically tailored to issues related to symptoms that disrupt patients’ and their
the terminal illness families quality of life.
- The patient agrees to forgo curative treatments - Pharmacologic and non-P measures are used to
- Services are covered by the Medicare Hospice alleviate suffering, whether plan of care is
Benefit (if eligible) curative or promotion of comfort.
- Some hospitals have embraced the need for - Dr. Elisabeth Kubler-Ross – a key researcher
palliative services and have gained certification who advanced end of life conversations by:
through The Joint Commission. www. capc.org.
- Nurses as the 1st HCP to identify EOL concerns - Conducting interviews with dying patients in the
among patients, PC skills are essential for mid 1960s
developing a trusting therapeutic relationship - Identifying that certain themes emerged over
with patient and conveying needs to IDT (Dahlin
and over
& Wittenberg, 2019)
- Publishing her groundbreaking work On Death
Differences Between Hospice and Palliative Care & Dying in 1969, with 5 stages: denial and
isolation, anger, bargaining, depression,
HOSPICE CARE PALLIATIVE CARE
for terminally ill and dying aimed promoting comfort acceptance.
patients for seriously ill whether
- Awareness of Dying book, Glaser and Strauss,
terminal or not
1965 offered how physicians and nurses had
bereavement services are bereavement services are
provided up to 1 year not always provided little skill in the care of dying patients. They
after death found that HCP:
care is primarily delivered care maybe in acute care,
Were quiet uncomfortable working
at patient’s home long-term care, homes or
other settings with dying patients
patient chooses to forgo provided either curative Tended to avoid dying patients because
curative treatment or end-of-life treatments
they felt ill-prepared to discuss death
covered by Hospice may or may not be
Medicare Benefit covered by Medicare or Increased their own feelings of
other health insurance ineptitude and distress by avoiding and
plan
isolating dying patients.
life expectancy is 6 life expectancy is not a
months or less factor. *Considered to be the model for
quality, compassionate care for people
HISTORY AND EVOLUTION OF HOSPICE IN USA facing a serious or life-limiting illness or
- It is rooted in the end-of-life movement that injury, hospice care involves a team-
came to US from Europe in the later half of 20th oriented approach to expert medical
century. care, pain management, and emotional
- Dame Cicely Saunders- an English nurse, social and spiritual support expressly tailored
worker and physician who is credited with
to the patient’s needs and wishes
founding the hospice movement. Her vision
involved: (National Hospice and Palliative Care
Organization NHPCO, 2019).
Developing a humane and systematic
approach to end-of-life care, - Medical training was mainly focused on fighting
Devising an interdisciplinary approach disease and prolonging life.
to patient care
Supporting the spiritual growth of - However, the growing interest in death and
patients and hospice staff, dying was already creating perspective and
Easing the pain and suffering involved driving changes in health care.
in dying
- 1974: the Connecticut Hospice, Inc. the 1st
- Saunders anticipated that hospice workers hospice to open in the US began to provide end
would be organized in a way similar to religious of life care (Simms, 2007)
orders. For expansive hospice movement,
Saunders and her colleagues developed - 1978: the National Cancer Institute provided
document “Aim and Basis”, outlined the 5 funding to the Connecticut Hospice, Inc.
premises of HC. Purposes: developing a national demonstration
- 1st hospice, St. Christopher’s in London, 1967 center for home care of terminally ill and their
families
- *Saunders’ passion for e-o-l care was fueled by
her deep religious convictions and her belief - By the end of 1978, there were 59 hospices in
that ministering to the dying is a religious calling the US. (Greer, Morris and Birnbaum, 1983)
(Wright & Clark, 2012) - 1979: the Health Care Financing Administration
funded an inquiry into the scope of hospice
services and the costs associated with this type - 2001: The National Consensus Project, an
of care. interprofessional meeting to discuss end-of-life
care in the US, took place in NYC.
- 1982: Congress approved a provision that
covered hospice services under Medicare Part - 2004: National Quality Forum NQF released “A
B. the provision included a sunset clause, which national framework and preferred practices for
meant it would end in 1986 without palliative and hospice care quality: A consensus
congressional action. report”
Fast Facts: the Hospice Medicare
- 2009: Updated clinical guidelines were created
Benefit covers services from doctors,
and released through a collaboration among
nurses, nurse practitioners, nurses’
the:
aides, therapists, social workers,
1. American Academy of Hospice & Palliative
chaplain and volunteers.
Medicine,
Medical equipment, supplies and
2. The Center for the Advancement of
medications that are related to the
Palliative Care,
terminal illness are also covered.
3. The Hospice & Palliative Care Organization
Respite care is available in an inpatient
4. National Hospice & Palliative Care
facility for up to 5 days each month
Organization.
(Centers for Medicare and Medicaid
- 2010: The Patient Protection & Affordable Care
Services, 2018)
Act included provisions for the delivery of high-
- 1983: US Senate report from the Committee of
quality palliative and e-o-l care.
Finance chaired by Sen Robert Dole, collected
data about hospice and reported hospice care - 2011: The Joint Commission launched Advanced
was more effective and cost efficient than end- Palliative Care Certification opportunities for
of-life care provided in the hospital setting. The qualifying healthcare organizations;
average savings were $2,485 per patient.
- 2015: The Centers for Medicare and Medicaid
Today’s terms would be $5,000 per patient.
Services introduced 2 new billing codes for
- 1984: The Joint Commission began accrediting advance care planning provided for Medicare
hospice organizations beneficiaries;
- 1986: Recognizing the benefits of care of the - 2016: The Centers for Medicare & Medicaid
dying patients, Congress voted to make the Services introduced a two-tiered payment
Hospice Medicare benefit permanent. system for routine home care, decreasing
payment for routine visits after the 60th day of
- 1991: Hospice care was recommended for
hospice service.
inclusion in veterans benefits NHPCO
However, a service intensity add-on was
- 1993: Hospice care became a nationally introduced, increasing payments to
guaranteed benefit, and President Clinton hospice organizations caring for
recognized November as National Hospice patients during the last 7 days of life
Month. (National Association for Home Care &
Hospice, 2017)
- 1994: The 1st certification examination for
- 2018: Passage of the Medicare Patient Access
hospice nurses was administered through the
to Hospice Act enabled physician assistants to
Hospice and Palliative Credentialing Center
serve as attending physicians for hospice
(HPCC, 2019)
patients (American Academy of Physician
- 1997: The Balanced Budget Act included several Assistants, 2018)
provisions for hospice care, such as an updated
- Numerous national and international efforts to
payment structure, revised benefit periods and
improve care for terminally ill patients continue
expanded coverage.
each year.
- 2000: the end-of Life Nursing Education - Today, HC is available in every state in America,
Consortium Nursing ELNEC developed to hospice and palliative certification is available
provide training for RN. Today, over 24,000 for both RN and advance practice nurses
nurses and other HCP have attended ELNEC (Hospice & Palliative Credentialing Center,
courses (American Association of Colleges of 2019).
Nursing, 2019).
- For the past 50 years, e-o-l care has been - Most often hospice referrals are obtained late
rapidly expanding in the US in the course of patient’s illness and
- Aided by pioneers in the field and numerous conversations regarding e-o-l care and wishes
legislative changes. can be influenced by emotion and fear, cultural
- Hospice Medicare Benefit ensures access to HC and religious beliefs, and individual’s
for all Americans at the EOL acceptance (or lack) of diagnosis (Candrian et al,
2017).
- For nurses providing e-o-l care, certification is
available and HC is now a recognized specialty. - The initial visit is an opportunity for the hospice
team to explain services, gain trust, alleviate
You can differentiate and elaborate between Hospice fears and clear up any misconceptions about
& Palliative Care hospice services.
You can demonstrate & identify an understanding of - To initiate hospice services, the patient must
HC, its turning points, how research helped shape EOL, sigh a Notice of Election NOE, which the hospice
and the legislative changes that supported HC in the must file with Medicare within 5 calendar days
US. of the admission date to prevent inappropriate
payment to nonhospice providers.