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EHLERS-DANLOS.COM EMERGENCY INFORMATION
ALERT HANDLE with CARE EHLERS-DANLOS
•
•
•
•
•
•

• spontaneous arterial/intestinal/uterine rupture, including aortic dissection

systems of the body. Can result in:
Group of 13 genetic disorders that produce complex problems across multiple
CONNECTIVE TISSUE DISORDERS:
Ehlers-Danlos Syndromes
ALERT HANDLE with CARE
EMERGENCY
possible neurological and/or spinal involvement.
dysautonomia, particularly orthostatic intolerance;
delayed healing;
musculoskeletal pain and fatigue;
fragile and/or stretchable skin and tissue that may readily bruise and tear;
hypermobile joints that can dislocate easily;
and other cardiac abnormalities;
HANDLE THIS PATIENT WITH GREAT CARE.
• Joints may be lax and dislocate easily.
• Skin tearing, splitting and bruising are common.
• Arterial or intestinal rupture commonly presents
as acute abdominal or flank pain that can be
diffuse or localized.
• Cerebral arterial rupture may present with altered
mental status and be mistaken for drug overdose.
• Emergency procedures (especially for Vascular
EDS) may require trauma, vascular surgery, ICU.
Elective surgery and procedures should be carefully
considered. Non-invasive testing is highly preferred.
• Healing may be delayed, with irregular scarring. Use
alternatives to sutures whenever possible. Retain
sutures/staples for twice the normal period; watch for
wound reopening and dehiscence.
• For general anesthesia, use caution when intubating
as jaw dislocation is common and GI tissue fragile.
• Local anesthestics are most often inadequate or
short-lasting.
EMERGENCY

• Potential spinal and/or cerebullar involvement may

increase general anesthetic and surgical risks.

P.O. Box 87463

Montgomery Village, MD 20886
P: 410-670-7577
Office 7 • 35-37 Ludgate Hill
London, EC4M 7JN UK
P: +44 203 887 6132
EHLERS-DANLOS.COM
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EHLERS-DANLOS.COM EMERGENCY INFORMATION
ALERT HANDLE with CARE

EHLERS-DANLOS
•
•
•
•
•
•

• spontaneous arterial/intestinal/uterine rupture, including aortic dissection

systems of the body. Can result in:
Group of 13 genetic disorders that produce complex problems across multiple
CONNECTIVE TISSUE DISORDERS:
Ehlers-Danlos Syndromes
ALERT HANDLE with CARE
EMERGENCY
possible neurological and/or spinal involvement.
dysautonomia, particularly orthostatic intolerance;
delayed healing;
musculoskeletal pain and fatigue;
fragile and/or stretchable skin and tissue that may readily bruise and tear;
hypermobile joints that can dislocate easily;
and other cardiac abnormalities;

HANDLE THIS PATIENT WITH GREAT CARE.

• Joints may be lax and dislocate easily.
• Skin tearing, splitting and bruising are common.
• Arterial or intestinal rupture commonly presents
as acute abdominal or flank pain that can be
diffuse or localized.
• Cerebral arterial rupture may present with altered
mental status and be mistaken for drug overdose.
• Emergency procedures (especially for Vascular
EDS) may require trauma, vascular surgery, ICU.
Elective surgery and procedures should be carefully
considered. Non-invasive testing is highly preferred.
• Healing may be delayed, with irregular scarring. Use
alternatives to sutures whenever possible. Retain
sutures/staples for twice the normal period; watch for
wound reopening and dehiscence.
• For general anesthesia, use caution when intubating
as jaw dislocation is common and GI tissue fragile.
• Local anesthestics are most often inadequate or
short-lasting.
EMERGENCY

• Potential spinal and/or cerebullar involvement may

increase general anesthetic and surgical risks.

P.O. Box 87463

Montgomery Village, MD 20886
P: 410-670-7577
Office 7 • 35-37 Ludgate Hill
London, EC4M 7JN UK
P: +44 203 887 6132
EHLERS-DANLOS.COM
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