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The Handbook of
Language and Speech Disorders
Blackwell Handbooks in Linguistics
This outstanding multi‐volume series covers all the major subdisciplines within linguistics today and, when complete, will offer a com-
prehensive survey of linguistics as a whole.
The most recent publications in the series can be found below. To see the full list of titles available in the series, please visit www.wiley.
com/go/linguistics‐handbooks
Edited by
Edition History
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10 9 8 7 6 5 4 3 2 1
Contents
Introduction1
Jack S. Damico, Nicole Müller, and Martin J. Ball
Part I Foundations 5
1 Labeling as a Sociocultural Process in Communicative Disorders 7
Jack S. Damico, Nicole Müller, and Martin J. Ball
2 Diversity Considerations in Speech and Language Disorders:
A Focus on Training 33
Elena Babatsouli
3 Hearing Loss and Cochlear Implants 53
David Jackson Morris and Daan Van de Velde
4 Intelligibility Impairment 81
Katherine C. Hustad and Stephanie A. Borrie
5 Genetic Syndromes and Communication Disorders 95
Vesna Stojanovik
6 Principles of Assessment and Intervention 110
Bonnie Brinton, Martin Fujiki, and Robert Brinton Fujiki
co‐edits the journals Clinical Linguistics and Phonetics and Journal of Multilingual and
Bilingual Speech, as well as book series for Multilingual Matters and Equinox
Publishers. He has published widely in communication disorders, phonetics,
sociolinguistics, bilingualism, and Welsh linguistics. Recently he completed co‐
editing the four‐volume Encyclopedia of Human Communication Sciences and Disorders
for Sage publishers. He is an honorary fellow of the Royal College of Speech and
Language Therapists, and a fellow of the Learned Society of Wales. He currently
lives in Cork, Ireland.
advisory board for the PRISMS (Parents and Researchers Interested in Smith‐
Magenis Syndrome) organization. She lives in Louisville, Colorado.
research interest is the acquisition of grammar, but he has also worked on vocabu-
lary, particularly the assessment of vocabulary development in young children via
parent report. He is a past president of the International Association for the Study
of Child Language, and an honorary member of the Irish Association of Speech
and Language Therapists.
Adam Jacks, PhD, CCC‐SLP, is Associate Professor in the Division of Speech and
Hearing Sciences, Department of Allied Health Sciences, University of North
Carolina School of Medicine. He holds PhD and MA degrees from the University
of Texas at Austin and a BA from Duke University in Durham, North Carolina. He
teaches courses on speech science and motor speech disorders. His research
focuses on understanding the link between neuropathology and behavioral mani-
festations of neurological speech disorders, investigating novel interventions for
people with aphasia and apraxia of speech, and identifying factors associated with
improved quality of life with aphasia.
Nicole Müller is Professor and Head of the Department of Speech and Hearing
Sciences, University College Cork, Ireland and Visiting Professor at Linköping
University, Sweden. She has previously held professorships in the United States
and Sweden. Her research interests include multilingualism and neurogenic and
neurodegenerative conditions leading to cognitive‐communicative impairments.
She is co‐editor of the journal Clinical Linguistics and Phonetics (Taylor & Francis)
and of the book series Communication Disorders Across Languages (Multilingual
Matters). She has published widely in journal and book form and was awarded
a Fulbright scholarship in 2014 to study bilingual Irish–English communication
in a retirement home in the west of Ireland. Among her recent publications are
co‐edited collections on sonority and on cross‐linguistic language acquisition.
Notes on Contributors xvii
Ryan Nelson, PhD, CCC‐SLP, holds the rank of associate professor and Head of
the Department of Communicative Disorders at the University of Louisiana at
Lafayette. Prior to joining the faculty at UL Lafayette, Dr Nelson held the rank of
assistant professor at the University of Texas at El Paso. He has worked as a speech‐
language pathologist in public school settings and in private practice. His work
embodies collaboration with mentors, former students, and colleagues from many
disciplines. Dr Nelson has published and presented nationally and internationally
in the areas of language impairment, literacy, counseling in communicative disor-
ders, qualitative research, eye‐tracking, and autism.
Jane Russell is now retired from clinical and academic work. For many years she
was Lead Specialist Speech & Language Therapist working with children and adults
with orofacial anomalies and velopharyngeal dysfunction at the West Midlands
Centre for Cleft Palate based in Birmingham, UK. She specialized in this field from
1978, and in 1991 completed her PhD with a dissertation entitled Speech development
in children with cleft lip and palate. She is a Fellow of the Royal College of Speech and
Language Therapists. Following retirement from clinical work, Jane continued to
contribute to research in various ways including speech analysis. Unfortunately, she
could no longer continue with this, after a change in personal circumstances in 2017.
Debbie Sell, PhD, OBE, is a Senior Research Fellow at Great Ormond Street
Hospital NHS Foundation Trust (GOSH), London, UK, previously having been
Head of Speech and Language Therapy (SLT) Services and Lead Therapist in the
North Thames Regional Cleft Service there. Debbie now focuses on research, men-
toring, supervision, teaching, and independent clinical practice. Her PhD study in
Sri Lanka (speech in patients with unoperated and late operated cleft palate) led to
that country’s only SLT training course. Debbie has led on developing and testing
speech outcome tools in cleft palate/VPI, setting standards for measuring speech
outcomes and has participated in several multicenter national and international
studies of speech outcome. Debbie’s current interests focus on parents under-
taking articulation therapy in children with cleft palate, supported by therapists
and technology, and is a co‐Founder, together with Dr Triona Sweeney, of Speech
at Home ([email protected]). Debbie is a Fellow of the Royal College of
Speech and Language Therapists, has co-edited two text books and has more than
90 peer reviewed publications.
Notes on Contributors xix
Daan van de Velde is lecturer and researcher at Leiden University Centre for
Linguistics (LUCL) in the Netherlands, where he completed studies in General
Linguistics and French Language and Culture. He holds a PhD from Leiden
University on the topic of speech perception and production by cochlear implant
users. He lectures and performs research in the field of (clinical) phonetics, applied
linguistics, and psycholinguistics, including topics such as the comparison of lan-
guage and music, and perception and production of prosody. Other areas of
interest are language and speech technology and language change. Daan is co‐
developer of a software application allowing Dutch university students to auton-
omously practice their pronunciation of French.
Yvonne Wren is Director of Bristol Speech and Language Therapy Research Unit,
North Bristol NHS Trust, and Senior Research Fellow at the University of Bristol.
She is Chair of the Child Speech Committee of the International Association of
Communication Sciences and Disorders, and founded the UK and Ireland Child
Speech Disorder Research Network. She is Chief Investigator of the Cleft Collective
Speech and Language Study, a national clinical cohort study of children born with
cleft lip and palate in the UK. She is on the Research Council for the charity The
Scar Free Foundation, and a trustee for ICAN, the charity serving the needs of
Notes on Contributors xxi
It is now just under a decade since the first edition of this Handbook appeared, and
in that time the field of communication disorders has progressed on many fronts.
Certain areas have come to prominence that were not previously the focus of
research. Among these areas are the speech and language consequences for chil-
dren who have received cochlear implants, genetic syndromes other than Down
syndrome, and literacy problems (especially the role of writing as well as reading).
In this second edition, and to reflect these and other recent developments in the
field, we recruited internationally renowned experts as new chapter authors. The
chapters on hearing impairment, literacy, and genetic syndromes have been radi-
cally refocused, while all other chapters present updated material. Further, the
chapter on language delay (apart from having a new author) encompasses pat-
terns of typical as well as disordered language development. The chapter on
specific language impairment was retitled to reflect the now‐accepted label of this
disorder: developmental language disorder.
We have retained the four‐part structure of the Handbook as we feel it is a useful
way to present the main topics within language and speech disorders. In Part I the
chapters address foundational issues. Thus, the first chapter by Jack Damico,
Nicole Müller and Martin Ball examines labeling. By this term the authors mean
the tendency of people to label others as deviating from a norm—a common prac-
tice with communication disorders. The chapter discusses the social background
to labeling and points to ways in which communication specialists can become
aware of labeling and avoid its negative consequences.
In Chapter 2, Elena Babatsouli discusses diversity issues in communication dis-
orders, dealing with a range of topics including diversity in terms of language,
gender, ethnicity, socioeconomic status, and others. As well as describing a variety
of diversity concerns. the author also addresses the application of this information
to clinical situations.
The Handbook of Language and Speech Disorders, Second Edition. Edited by Jack S. Damico,
Nicole Müller, and Martin J. Ball.
© 2021 John Wiley & Sons Ltd. Published 2021 by John Wiley & Sons Ltd.
2 Introduction
The Handbook is primarily concerned with language and speech disorders and
does not aim to cover hearing impairment in detail. Nevertheless, hearing loss and
rehabilitation (through, for example, cochlear implantation) do impact speech and
language abilities. Chapter 3 by David Morris and Daan van de Velde discusses this
area. Recent developments in cochlear implants are examined in detail and the
authors also describe auditory brainstem implants for those for whom cochlear
implants are not suitable. Intelligibility impairment can be found in a wide range of
language and speech deficits from child speech disorders, through aphasic language
disorders, to adult acquired motor speech disorders. In Chapter 4, Katherine Hustad
and Stephanie Borrie first define intelligibility (a not uncontroversial task!) and then
describe ways of measuring it and developmental aspects of intelligibility.
Chapter 5 presents a range of genetic syndromes that can affect language and
speech. Vesna Stojanovik covers Williams syndrome and Down syndrome in
detail, dealing with communication problems encountered by these speakers. She
also points forward to the need for neurocognitive investigations of typical
development to better understand the impairments found in genetic syndromes.
The final chapter in Part I of the book also applies across the field of language
and speech disorders. Bonnie Brinton, Martin Fujiki, and Robert Brinton Fujiki dis-
cuss the related areas of assessment and intervention in speech‐language pathology.
They stress the importance of the social context of communication and the need to
bear this in mind in both assessment and intervention. The chapter provides step‐
by‐step advice on how to undertake these two aspects of the speech‐language
pathologist’s practice, whatever communication problem is involved.
Part II of the Handbook contains eight chapters dealing with different language dis-
orders. In disordered language, various linguistic features can be disturbed, ranging
from lexical items (e.g., word‐finding difficulties), through morphology and syntax
(missing or incorrect affixes, sentence ordering difficulties) to semantics and prag-
matics (inaccurate assigning of meaning to words, inappropriate use of language for
a specific context). The chapters in this part of the book highlight which of these fea-
tures are most important in the specific disorder under discussion, but they are not
limited to this. For example, Patricia Prelock, in her chapter on autism, describes the
linguistic markers of this disorder, but also discusses at length the recent changes to
the classification of autism and highlights the importance of appropriate assessment
and intervention. Paul Fletcher in Chapter 8 outlines the typical trajectories of lan-
guage acquisition, highlighting the wide variation in this process between individ-
uals encompassing both vocabulary and grammar. He also points to good practice in
assessment upon which to base appropriate intervention for children with various
patterns of delay in language acquisition. Sandi Gillam, Sarai Holbrook, and Alan
Kamhi in Chapter 9 focus on the language disorder formerly termed “specific lan-
guage impairment” and recently renamed “developmental language disorder.” The
authors discuss the attempts to characterize the disorder and to discover the under-
lying causes, but also point to successful therapeutic strategies and the need for early
intervention. In Chapter 10 Louise Cummings addresses the pragmatics of language
use. She illustrates many types of pragmatic impairments from a variety of speakers
and discusses ways of assessing pragmatic impairment and intervention strategies.
Introduction 3
In Chapter 11, Christine Brennan examines learning disabilities and their impact
on the development of communication. In particular, she points to the different
outcomes in adulthood between treated and untreated learning difficulties. The
following chapter by Holly Damico, Jack Damico, and Ryan Nelson deals with
literacy impairments. A development in this second edition has been to look more
closely at writing rather than concentrating mainly on reading. The chapter stresses
the importance of a meaning‐based approach to literacy teaching and interven-
tion. Pamela Snow, Suze Leitão, and Natalie Kippin in Chapter 13 describe com-
munication outcomes in children who have suffered early life adversity. They note
that such children may not only demonstrate less‐developed language skills, but
will also have trouble in moving from speaking and listening to reading and
writing. The last chapter of Part II deals with aphasia, a multifaceted disorder
affecting both the production and perception of communication. Chris Code pro-
vides a detailed description of the many types of aphasia, and then concentrates
on effective intervention strategies and the need to reintegrate people with aphasia
into the community.
Part III of the Handbook also contains eight chapters, this time dealing with
speech disorders. Speech disorders can range from impairments to the speech pro-
duction mechanisms to problems with the organization of speech sounds in the
linguistic system. Causes can range from delays to normal developmental path-
ways to acquired neurological damage due to stroke or other injury via genetic or
surgical damage to vocal organs. The first three chapters deal with what are often
considered the core areas of speech disorders. Thus, Chapter 15 by Susan Rvachew
describes child speech disorders; Ingo Hertrich, Hermann Ackermann, and
Wolfram Ziegler deal with dysarthria in Chapter 16; and in Chapter 17, Adam
Jacks and Katarina L. Haley cover apraxia of speech. The focus of Chapter 15 is the
heterogeneity of child speech disorders and the need to tailor intervention to the
four main subtypes identified in the chapter. Hertrich and colleagues address the
wide range of dysarthria subtypes and how they relate to specific neurological
conditions. They include assessment and treatment methods, and how to measure
the efficacy of therapy. As well as presenting the characteristics of apraxia of
speech, Jacks and Haley argue for a common set of speech characteristics to be
used in the diagnosis of apraxia of speech in both children and adults. They also
discuss treatment approaches and describe those approaches that so far seem most
efficacious.
Chapter 18 by Kathryn Drager, Erinn Finke, and Elizabeth Serpentine deals
with augmentative and alternative communication (AAC) for those with minimal
or no speech abilities. The authors describe the range of AAC approaches and
stress the need for individually tailored solutions to the communication needs of a
highly variable clinical population.
The next two chapters cover two specialized areas of speech impairment: flu-
ency disorders and voice disorders. In Chapter 19, John Tetnowski, Kathy Scaler
Scott, and Brittany Rutland describe normal and disordered fluency. In particular
they point to major advances in both understanding the underlying causes of
stuttering and in assessment and treatment, since their chapter in the first edition
4 Introduction
of this Handbook. Richard Morris and Archie Harmon also present an updated
chapter on voice and voice disorders. They too bring updated information to their
description of voice disorders, their prevalence, and assessment and treatment
issues.
The final two chapters of Part III deal with speech disorders derived from ge-
netic and medical factors. Debbie Sell, Valerie Pereira, Yvonne Wren, and Jane
Russell have updated Russell’s chapter from the first edition of the Handbook with
details of the most recent research in cleft palate and velopharyngeal impairments.
They stress the importance of the role of the speech‐language professional in the
team treating children with cleft palate, especially in terms of timing of surgical
intervention and of speech therapy. Tim Bressmann, in Chapter 22, describes the
various speech outcomes encountered in cases of laryngectomy, glossectomy, and
disorders related to head and neck cancer. The author deals also with the surgical
procedures undertaken with the various disorders, and describes the different
rehabilitation options available to ameliorate the resultant impairments to speech
production.
The final part of the Handbook contains four chapters dealing with communica-
tion disorders linked to cognitive and intellectual impairments. Chapter 23,
authored by Carol Westby and Silvana Watson, covers attention deficit hyperac-
tivity disorder (ADHD) and its impact on communication. The authors point to
the increasing incidence of ADHD in children, and the need for research‐based
interventions with this population. Margaret Lehman Blake, in Chapter 24, exam-
ines the range of communication problems encountered with right hemisphere
brain damage. She describes difficulties this population may encounter with com-
prehension, and with managing conversation, and the need to develop treatment
approaches based on the wide literature concerning this disorder.
Chapter 25, by Karen Lê and Jennifer Mozeiko, deals with traumatic brain
injury (TBI). A major focus of the chapter is the complex and dynamic nature of
discourse, and how TBI disrupts discourse in its many facets. The authors suggest
that the impairments seen in TBI may be ascribed to disruptions in cognitive sys-
tems, or they may be viewed as manifestations of underlying pragmatic impair-
ments. The potential causes are not only of theoretical importance but have clinical
implications as well.
The final chapter, by Nicole Müller and Zaneta Mok, covers the wide area of
dementia and its impact on communication. The authors describe the more
common dementia types, risk factors for dementia, and diagnosis, assessment,
and intervention. They go on to consider bilingualism and dementia, and con-
clude with a section on interactional approaches.
This Handbook presents current research and thinking across the wide range of
topics falling under the heading of language and speech disorders. It will prove
invaluable to those working with communication impairments and those just
entering the field alike. In this second edition we have taken the opportunity to
update the chapters and, in some cases, to redirect the main emphasis in a topic.
We are confident that the current collection reflects the current status of this impor-
tant field of investigation.
Part I Foundations
1 Labeling as a Sociocultural
Process in Communicative
Disorders
JACK S. DAMICO1, NICOLE MÜLLER2,
AND MARTIN J. BALL3
1
University of Colorado, Boulder, CO, USA
2
University College Cork, Ireland, and Linköping University, Sweden
3
Bangor University, Wales
1.1 Introduction
As a discipline oriented to communication, learning and social action, speech-
language pathologists are increasingly cognizant of the fact that our discipline
stands with several other disciplines as firmly located within the social sciences.
While we must acknowledge our debts to psychology, education, and medicine,
our theoretical orientation over the past 30 years has been influenced by linguistics,
sociology, and anthropology. In parallel with the other social sciences, our research
methodologies and our clinical practices are progressively increasing our focus on
naturalistic inquiry, authentic social contexts, interpretive and interactional per-
spectives, and the qualitative research paradigm (Duchan, 2010; Goodwin, 2014).
This increased turn to the social sciences holds many advantages for our disci-
pline. One of these advantages is how we can adopt aspects of social action theory
to understand the complex process of labeling.
The term labeling within the human and social sciences refers to the tendency of
providing an appraisal and/or a descriptor of others based upon any deviation
from the perceived norm that is sufficient to garner attention (Matsueda, 2014); the
typical outcome of labeling is some sort of categorization that creates differentiation.
Social scientists have recognized that this process is ubiquitous in society. We are
constantly observing and appraising others from our normative and interpretive
The Handbook of Language and Speech Disorders, Second Edition. Edited by Jack S. Damico,
Nicole Müller, and Martin J. Ball.
© 2021 John Wiley & Sons Ltd. Published 2021 by John Wiley & Sons Ltd.
8 Foundations
that the most important societal reaction, the one that often triggered secondary
deviancy, was the response of social institutions of control—the criminal justice
system, special education regulations, mental health institutions—that are legiti-
mated by the state (Goffman, 1964; Lemert, 1967).
Given this theoretical orientation and the work of others, Howard Becker inves-
tigated labeling as a theoretical social construct in his 1963 book Outsiders: Studies
in the Sociology of Deviance. In this book, Becker was especially interested in the
construct of deviancy in society—why some acts are thought to be deviant and
who has the power to label individuals and/or their behavior as deviant. Becker
examined the impact of such labeling on society and the individual. Based upon
his work, he believed that labeling is a sociopolitical act, since his research indi-
cated that once a label has been assigned, how we respond to the label (and the
underlying acts that characterize it) depends on whether the label and its under-
lying actions have become sanctioned within the society. He believed that it is not
the label or the actions of the individual so labeled that are deviant, but rather, the
responses of society that defines it as such. Importantly, Becker believed that the
responses of the powerful in the society (e.g., judges, legislators, physicians, diag-
nosticians) often determine how we are expected to view such labels and the
actions that are characteristic of the labels.
Becker, led by symbolic interactionism, made two primary contributions to
labeling theory, and his work, though somewhat controversial, is the primary
current standard for labeling theory. The two major contributions were, first, that
he offered an explicit labeling definition of deviance: “. . .deviance is not a quality
of the act the person commits, but rather, a consequence of the application by
others of rules and sanctions to an offender” (1963, p. 9). His second contribution
was that he expanded the scope of societal reactions to encompass the creation and
enforcement of social rules. Basically, this meant that the creation of deviancy
begins not at the point when a person violates some rule, but earlier when social
groups first create those rules. Becker also contrasted the positions he staked out
for labeling theory with conventional theories of deviance. This enabled a greater
constructivist orientation.
Based upon this work in sociology, labeling theory has become an important
mechanism for understanding how and why the labeling of individuals as deviant
or the assigning of a diagnostic label (in the case of speech-language pathologists)
may result in unintended consequences. Erikson summed up labeling theory suc-
cinctly when he argued that “Deviance (as a basis of labeling) is not a property
inherent in certain forms of behavior; it is a property conferred upon those forms by
the audiences which directly or indirectly witness them” (1962, p. 311).
disciplines during those events referred to as “diagnosis.” Since the early 1960s, but
especially since the widespread funding of special education in the United States,
there has been a tendency to refer students to special education for language-based
learning problems and for communication disorders of various kinds (e.g.,
Department of Education [DoE], 2002; Kretschmer, 1991; Richardson & Parker, 1993).
Similarly, adults with various communication problems are also referred in order to
initiate rehabilitation (e.g., Edwards & Bastiaanse, 2007; McDonald, 2007; Thompkins,
Marshall, & Phillips, 1980). When an individual (or their caretaker) is in search of an
explanation for mental, physical, emotional, or behavioral differences, or when
someone seeks assistance with learning or adaptive problems, this individual
undergoes a diagnostic process (Flower, 1984). The referral for this evaluation is fol-
lowed by an assessment process that is intended to provide a diagnostic label.
There have been numerous discussions on the process of evaluation in commu-
nication disorders. In general, the process is as follows: (a) a referral is made to the
speech-language pathologist (SLP) by a teacher, nurse, physician, administrator,
another professional, or family member; (b) the SLP reviews the referral and deter-
mines the types of information that should be collected; (c) an appointment is
made for the SLP to evaluate the referred individual in a setting chosen by the
professional; (d) a set of tests and other diagnostic procedures are chosen for the
assessment session; (e) the assessment is completed at the appointed time(s); (f)
the data from the assessment session are combined with any other data obtained
by the SLP to provide diagnostic interpretation involving differential and descrip-
tive diagnosis; and (g) a diagnostic label or category is assigned. Once the diag-
nosis is assigned, then other decisions addressing educational and/or therapeutic
issues are considered and implemented.
Following Matsueda (1992) and the idea of reference groups that employ soci-
etal mechanisms to justify the diagnostic process and the resulting labels assigned,
there are various sanctioned instruments and documents that are employed to
justify and legitimize the diagnostic process. Within the diagnostic realm, the first
mechanisms of influence developed by individuals in positions of power are
instruments like the Diagnostic and Statistical Manual of Mental Disorders published
by the American Psychiatric Association, the classifications and position papers
published by the American Speech-Language-Hearing Association, and codified
laws and regulations sanctioned by governmental entities. These documents and
codes create an expectation of societal support and need for those perceived devi-
ancies characterized as communication disorders. However, there are other ways
that diagnostic labeling is implemented and supported in society: medicalization
and diagnostic legitimization. A brief discussion of these two primary and influen-
tial mechanisms will demonstrate the subjective nature and the power of labeling.
1.3.1 Medicalization
Perhaps the most salient demonstration of a mechanism of symbolic interaction-
ism and its impact on labeling at the societal level involves what has been termed
“medicalization theory” (Williams & Calnan, 1996). This explanatory mechanism
12 Foundations
involves the impact of society and its values acting through a particular societal
institution—medicine—to create new diagnostic categories or to redefine or
expand old categories according to current sociocultural values and beliefs
(Conrad, 2007; Halpern, 1990; Zola, 1972). In addition to the extension of medical
boundaries, in the process of medicalization, nonmedical problems become
defined and labeled as medical problems, usually as disorders or illnesses. For
example, over the past 40 years there have been numerous new medical categories
that did not exist before that time. Medical categories and labels like attention def-
icit hyperactivity disorder (ADHD), anorexia, chronic fatigue syndrome, fibromy-
algia, and post-traumatic stress disorders have all been established in this
time-frame, and other categories have been redefined to create expansions
(Conrad, 2009; Conrad & Potter, 2000; Erchak & Rosenfeld, 1989; Halpern, 1990;
Klasen, 2000; Rosenfeld, 1997; Zola, 2009).
One example of redefinition through medicalization involves cognitive changes
associated with high old age. Until a few decades ago, the notion of senility was
accepted both socially and medically, and highly “successful” aging, that is, a
person living into their 80s or 90s without noticeable deterioration of memory, ori-
entation, or other cognitive skills was considered the exception rather than the
norm. However, a combination of social and medical factors have moved what
was formerly understood as senility firmly into the realm of dementia (in public
and media discourses more often than not identified with Alzheimer’s disease),
that is, a disease process socially constructed as something that is, by definition,
not part of “normal” aging (even though the well-established major risk factor for
a diagnosis of Alzheimer’s disease is old age). While some researchers argue that
conflating the low-functioning end of a normal distribution with a genuine disease
process may be less than helpful in leading to an understanding of either normal
or pathological aging, age-related “dementing” is, in public discourses in the
United States and other industrialized nations, at present framed virtually exclu-
sively within a disease model (Fox, 1989; Guendouzi & Müller, 2006; Müller &
Schrauf, 2014)
Conrad and Potter (2000) have provided excellent demonstrations of medical-
ization for category expansion with adult ADHD. Their work details numerous
societal factors to create a perception that is then followed by the medical institu-
tional response. For example, there was the emergence of publications aimed at
lay readers that heralded the new category, research published with one function
but reinterpreted by the media and advocacy groups for their purposes (Zametkin
et al., 1990), major news media with their own spin on the issue, popular maga-
zines, organizational stakeholders like Children and Adults with Attention Deficit
Disorders (CHADD), and manufacturers of primary drugs for ADHD. Conrad
and Potter (2000) detail a set of early claims regarding ADHD in adults that started
gaining some attention, and then a strong movement into the public sphere when
news organizations began to profile ADHD in adults. Over time, and with the col-
laboration of sympathetic professionals (Brown, 1995), diagnostic institutionaliza-
tion occurred through increased attention and support provided by professional
publications, research journals, and changes in the medical diagnostic criteria. As
Labeling as a Sociocultural Process in Communicative Disorders 13
changes in the DSM diagnostic criteria due to various socially oriented factors in
different editions of this major diagnostic manual. For example, in the DSM-III a
diagnosis of autism required satisfying six mandatory criteria (American
Psychiatric Association [APA], 1980), but in DSM-IV (APA, 1994) the diagnosis is
fulfilled by meeting only 50% of 16 optional criteria. Further, the criteria them-
selves were made more subjective and inclusive by changes in the phrasing
employed. In the DSM-III one of the criteria was manifestation of “a pervasive lack
of responsiveness to other people” (1980, p. 89) while the closest criterion to this
in the DSM-IV is that an individual must demonstrate “a lack of spontaneous
seeking to share . . . achievements with other people (1994, p. 70). Similarly, the
1980 mandatory criteria of “gross deficits in language development” and “bizarre
responses to various aspects of the environment” were changed to “difficulty
sustaining a conversation” and “persistent preoccupation with parts of objects”
respectively. Finally, the numbers of diagnostic categories for autism were changed
from two in DSM-III (infantile autism and childhood onset pervasive develop-
mental disorders) to five in DSM-IV-R (autistic disorder, pervasive developmental
disorder not otherwise specified, childhood disintegrative disorder, Rhett syn-
drome, Asperger’s disorder). In the DSM-5 (American Psychiatric Association,
2013), the category of Asperger’s disorder, always a bit controversial given its sub-
clinical nature, was even modified and taken out of the Pervasive Developmental
Disorder category (e.g., Matson, Kozlowski, Hattier, Horovitz, & Sipes, 2012;
Waterhouse, 2013; Waterhouse & Gillberg, 2014).
Given these changes to the diagnostic criteria between DSM-III and DSM-IV-R,
it is not surprising that there appear to be many more diagnoses of autism over the
time span discussed. Indeed, the new and milder categories or variants of autism
appear to account for 75% of the new diagnoses (Chakrabarti & Fombonne, 2001),
and when other socially driven changes (e.g., establishment of threshold and sub-
threshold symptoms, a decision to co-diagnose, attempts to identify children at
progressively younger ages) are also considered, it is no wonder there appear to be
significant increases in incidence that necessitated the change in categories in
DSM-5. The point, however, is that led by advocacy groups championing more
relaxed and inclusive criteria, the reality of autism has changed according to social
considerations. Discussions on the role of social variables in reconceptualizing
autism, its causes, and its incidence may be found in the work of various researchers
in the history and epidemiology of autism (e.g., Baker, 2008; Fombonne, 2003;
Gernsbacher et al., 2005; Silverman, 2004; Waterhouse, 2013; Worley &
Matson, 2012).
Based upon such mechanisms of influence and the actual individuals with
sufficient societal power to both label and make the consequences of the label
operational, the diagnostic process nearly always produces a label that is attached
as an indication of some deviant facet of communication. Since evaluation is a
formal process with recognized professionals sanctioned within our society, the
label becomes a powerful designation used to identify and to categorize the labeled
individual. For purposes of this chapter, there are two basic types of labels: a
generalized positive or negative descriptor (e.g., gifted, disorder, deficit, disability,
16 Foundations
handicap), and more specific identifying terms that provide more descriptive and
explanatory power (e.g., specific language impairment, autistic, speech-sound dis-
ordered, stutterer, aphasic, learning disabled). Both label types are employed
depending on who is discussing them and the objectives of one’s discussion
regarding how to address these identified deviancies. This process of diagnosis is
an accepted and even necessary practice when dealing with exceptionalities like
communicative disorders. In order to provide services, to access fiscal resources,
to obtain accommodations, or even to come to an understanding of how to address
disabilities in a remedial process, an official diagnosis, an objective label assigned
to an individual and his or her difficulty is often necessary. While it is commonplace
to obtain these diagnostic labels and to employ them as if they are discrete, concrete
and fixed, the work of Becker and many others demonstrate that this process is
actually much more subjective and fluid than many professionals and the general
public realize (e.g., Aspel et al., 1998; Augustine & Damico, 1995; Carroll, 1997;
Conrad, 2009; Conrad & Potter, 2000; Elliott & Grigorenko, 2014; Fraser &
Christopher, 2007; Wilson, 2000). This is because the assignment of labels based
upon clinical and psychiatric diagnoses is historically and culturally situated. That
is, they may appear, expand or contract over time depending on how the society
and the involved professions form and hold particular beliefs and ideologies
(Conrad, 2009; Cooksey & Brown, 1998).
effectively with their problems (Gross, 1994; Gus, 2000; Kelly & Norwich, 2004;
Riddick, 2000). Therefore, the diagnostic label can have a substantial positive
impact on the lives of the individuals with disabilities (Broom & Woodward, 1996;
Damico & Augustine, 1995; Gibbs & Elliott, 2015; Link, Cullen, Struening, Shrout,
& Dohrenwend, 1989).
subjective. For example, these claims have been made with regard to the recent
definition of autism spectrum disorders (Bagatell, 2010; Gernsbacher et al., 2005;
Waterhouse, 2013), dyslexia, auditory processing disorders (Cacace &
McFarland, 1998), attention deficit hyperactivity disorder (Bussing, Schoenberg, &
Rogers, 1998; Conrad & Potter, 2000; Prior & Sanson, 1986; Reid & Katsiyannis, 1995;
Searight & McLaren, 1998), and specific language impairment (Cole, Schwartz,
Notari, Dale, & Mills, 1995; Conti-Ramsden, Crutchley, & Botting, 1999;
Dollaghan, 2004; Peña, Spaulding, & Plante, 2006; Ukrainetz McFadden, 1996).
While the most obvious harmful consequences may result from errors in
labeling, the negative impact of the process is more complex and insidious. It must
be remembered that labels are actually summaries of complex symptoms, a
“mental shorthand” that plays into the human inclination to stereotype and make
generalizations (Leyens et al., 1994). While this propensity does assist in commu-
nicating ideas underlying the labels, there is also the tendency to stop looking at
the individual and start assuming that he or she is defined by the label and its
characteristics. This assumption enables the professional to stereotype the unique
aspects of the labeled individual so that all children with the same label are consid-
ered similar. This results in a failure to notice and account for personal strengths
and difficulties. The consequence is a reduction of individual differences and a limita-
tion on the ways in which the individual is perceived and treated (Lubinski, 2000; Madon
et al., 2006).
Another negative consequence of labeling arises from the very practice of
assigning a label. If the intent is to label an individual, then often there is an
assumption that not only the symptoms, but their origins exist within the
individual being labeled. Consequently, there is a predisposition to localize the prob-
lems within the individual rather than to search for multiple factors and extraneous
variables, including, for example, teaching styles, prior exposure to opportunities
to learn and apply the targeted skills, and diversity issues in schoolchildren
(Brown, 1995; Coles, 1987; Conrad, 2000; Forness, 1976; McDermott, 1987, 1993;
Rapley, 2004). The decision to focus on intrinsic causal factors rather than extrinsic
factors (or at least a combination) is likely a primary reason for the overrepresen-
tation of various ethnic and socioeconomic groups in some aspects of special edu-
cation (e.g., Cummins, 2000; Damico, 1991; Hamayan et al., 2013; Hood, McDermott,
& Cole, 1980; McDermott & Varenne, 1995; McNamara, 1998). Treating labels as
verification of intrinsic disability may also be based on the assumption that the
source of all educational difficulties is related to causes that are intrinsic to stu-
dents (Carroll, 1997; Gutkin & Nemeth, 1997). This assumption is exacerbated by
the general lack of familiarity that the public has with the principles of language
and learning in academic and communicative contexts.
Unfortunately, this belief in the primacy of intrinsic causal factors, exacerbated
by labeling, frequently results in negative consequences. The label is often used to
“explain away” the problem, so that if, for example, a child experiences poor
teaching or unresponsive therapy, the propensity is to place blame on the child,
not the methods or the teacher/therapist. The within-child deficit model makes
for an easy and effective excuse.
20 Foundations
Since most people are not oriented to the complexity of human meaning
making and the importance of systems theory when addressing learning and com-
municative processes (MacWhinney, 1998; Nelson, 2003; Perkins, 2005; Thelen &
Smith, 1998; van Geert, 1998), they are often willing to localize problems in the
individual; it is simply easier to do so. To ignore the complexity is often soothing
even if it is misdirected. The problem with using the label to reduce the complexity,
of course, is that poor results ensue. Even if teachers or rehabilitative professionals
are dedicated to the remediation process, their best attempts at assistance often are
misguided and ineffective. In fact, research has documented that labeling with a
focus on an intrinsic deficit model typically results in overlooking various envi-
ronmental factors that may have generated or exacerbated the difficulty (Barsky &
Boros, 1995; Boxer, Challen, & McCarthy, 1991; Brown, 1995; Coles, 1987; Dudley-
Marling & Dippo, 1995). As Brechin (1999) discussed, “If the whole problem, by
definition, lies with the individual [via a label], then our understandings and inter-
ventions start and stop with the individual” (p. 1, original emphasis).
Labeling as a process is often discussed within the sociological literature and it is
frequently linked with assessment. This is due to the fact that most test development
was designed for selection purposes (Glaser & Silver, 1994), that is, to determine who
should be admitted to and benefit from what educational opportunity (Carroll, 1997;
Damico, 2019; Glaser & Silver, 1994; Lohman, 1997). To create divisions for selection,
however, a label must be supplied. Consequently, labels often become the hand-
maidens of societal biases and prejudices. Within this function, labeling has particu-
larly damaging consequences. Assessment and the resultant labels assigned to many
students are often used to create a kind of social stratification system, a way to keep
people in their place (Artiles, Higareda, Rueda, & Salazar, 2005; Bradley &
Corwyn, 2002; Cummins, 2000; Ogbu & Simons, 1998; Ruiz-de-Velasco & Fix, 2000).
This labeling process and its resultant placements are a reflection of how power and
control is exerted in assessment to fulfill societal roles of cultural and social reproduction
(Abberley, 1987; Apple, 1982; Kavale & Forness, 1998; Loseke, 1999). The assignment
of a label and the various consequences play a key role in cultural reproduction and social
stratification (Gipps, 1999). In his discussion of the impact of assessment and labeling
theory in education in the United Kingdom, Broadfoot (1996) stated,
Within the realm of special education, labeling students and placing them in reme-
dial programs—even if only for a half an hour a day—effectively removes these
students from general schooling and places them in groups of students of similar
ability for instructional purposes; they are socially isolated (Connor & Ferri, 2005;
Fine, 1991; Gelb & Mizokawa, 1986; Gill & Maynard, 1995; Messick, 1980).
Another random document with
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– Köszönöm, köszönöm, – mondogatta. Én rám úgysem
várakozik pihenés és nem tenném alaposan meggondolva, ha
kényeztetném magamat. Íme itt van minden átadni valóm. (És
kabátja oldalán az egyik zsákból kulcsokat, a másikból irásokat
húzott elő.) A számadások eddig az óráig vannak vezetve. Bocsáss
meg, hogy írásom egy kissé kuszált – mélyen tisztelt barátom
szarkalábaknak szokta nevezni; – de szemeim egy-két napja még
gyöngébbek, mint rendesen. Azt hiszem, két tétel fel fog tünni a
számadásban. De tudakozódjál csak utána és mindenki
egyértelműleg oda fog nyilatkozni, hogy a mi asztalosunk, a ki a
koporsót készítette, általánosan ismert nagy csaló. A másik a
kántistáknak kiszolgáltatott bor nagy mennyisége lesz. De a deákok
mind részegesek és követelők. Fogd kérlek a kulcsokat is, és vedd
figyelembe abbeli kérésemet, hogy a tételeket azonnal vesd össze a
pénzes ládával, mert nem szeretném, ha úgy tekintenének, mit a ki
megszökött a kastélyból, hova utóvégre nagylelkű barátsággal
fogadtatott.
– Hogy-hogy? Mit mondasz, Istók? – kérdé Béla nagy szemeket
meresztve az öregre, ki minden ellenzése daczára fölemelkedett
helyéről, és így folytatá:
– Mélyen… azaz szerelmes öcsém, igen, én megyek és még ma
szeretnék benn lenni Karámoson. Mert, ha meggondolom, mire
magyarázhatnák az emberek tovább itt tartózkodásomat, okvetlen
arra kellett határozni magamat, hogy távozzam e házból. Eddig csak
volt mit tennem, hogy senkise vethesse szememre kenyeremet. Az
én mélyen tisztelt, boldogult barátom kissé hiányos volt a
klasszikusokban, a jusban és a theologiában, melyek nélkül az
életben sok lépésünkben fennakadunk. Az én kötelességem volt e
hiányosságokat tőlem telhetőleg kipótolni. Mostanában pedig, hogy
a szobához kötötte a betegség, gyönge tehetségeimen kívül
lábaimmal is igyekeztem szolgálatára lenni. Minderre azonban a te
fényes elmédnek és fiatal erődnek semmi szüksége s ennélfogva
énnekem ebben a házban semmi tennivalóm.
– Istók bátyám! – csitítá a már-már elérzékenyülő öreget Béla,
megragadva kezeit. De ez alig figyelt rá és megindúltan beszélt
tovább:
– Igen, öcsém, én megindulok innen, hol ennekutána mindenki
csak ingyenélőnek tartana. És méltán. Tisztán állok előtted; ha hinni
akarsz nekem, elhiheted, hogy semmit sem szereztem és egy garas
nélkül távozom. Nemzetségem: a Pallérosi Pallérok a Tiszán túl
virágzanak; majd azok szereznek nékem valami kenyeret. Nézd,
ebben az öltözetben állítottam be először – már több harmincz
esztendejénél – a karámosi vármegyeházán az én mélyen tisztelt
barátomhoz, kinek akkor egy reprezentácziót kellett készítenem.
Ugyanezek a csizmák, ugyanez a kabát, ugyanez a kalap volt
rajtam. Ugyancsak azokban indulok most meg, – csupán csak a
kalapomra varrott Kata egy gyászfátylat. Ha meggondolom… Már
össze van kötve odalenn a batyum; a könyveim is mind akkorról
valók. Ha eszembe veszem… De nem. Mit mondjak egyebet? Iszen
te sorra meg tudsz gondolni magad is mindent. Íme, ezekben
óhajtottam eléd terjeszteni nyomós okaimat, melyek arra az alázatos
kérésre bátorítottak, hogy a számadásokat és a pénzes ládát
minden további haladék nélkül vizsgáld át.
A mentor, erőt véve magán, ismételt csuklások és fennakadások
között valahogyan bevégezte szavait, melyek sajátságos keveréke
voltak a beszámoló előadásnak, védbeszédnek és a
búcsúszónoklatnak. Béla félrelökte maga elől a kulcsokat és
papirosokat, s borús szívének igazi, meleg elérzékenyedésével
szólalt meg:
– Nem úgy, nem úgy, hajdani pártfogóm te! Az én lelkemet sok
teher nyomja már s nincs kedvem még a hálátlanság vádjával is
megszaporítni őket. Kinek köszönök én mindent, a mim van? Ki
mentette meg egykor szegény anyámat az éhenhalástól? Ki hozott
engem ide? Ki szerezte meg nekem bátyám derék szívét? Csak
törüld meg szemeidet, Istók. Akkor lenne okod a fájdalomra, ha most
hálátlanúl elfogadnám búcsúra nyujtott kezedet s kivezetnélek az
utczaajtóig, hogy vén napjaidra szélnek eresszelek.
– Te mester vagy a logikában, Béla, – akadozott Istók, könnyei
közt gyönyörködve kedvenczében. Akaratod ellenére is azt
bizonyítja minden szavad, hogy itt én rám és az én gyönge
tehetségeimre semmi szükség. A hálát ne emlegesd, mert abból
csak a te éles okoskodásod tudja azt a következtetést vonni, hogy
maradjak. A mi neked igazságnak tetszik, az csak látszat. Ha
meggondoljuk, hogy az én mélyen tisztelt barátomnak (halála óta
mindig a legünnepélyesebb formában emlékezett meg róla)
tulajdonképen nem is volt mást mit tennie, mint a mit tett, egészen
más eredményre jutunk. Mert Ágnes… no de nem fizetem rosszal a
jót. Most egy kenyéren vagyunk vele, pedig mindig igen büszke volt
hozzám. Neki sincs semmije a rajta valón kívül, csakhogy az ő
viselője még divatos, az enyém meg már ócska. Bekövetkezett,
hogy íme, csak ez a különbség köztünk. De nem is panaszkodom rá,
inkább beismerem, hogy a mi boldogult jótevőnk nagyon hirtelen
indulatú volt. Nem hiába keveset törődött a klasszikusokkal.
Istók beszédközben észrevette, hogy egészen eltávolodott a
tárgytól, melyről tulajdonképen szólani akart. De a jó vitatkozó
szokása szerint hamar összeszedte magát s egy ugrással helyén
termett.
– Ne emlegesd a háladatosságot, Béla. Mert kisértetben vagyok,
hogy azt a kérdést intézzem magamhoz: nem alacsony számítás
vezérelte-e eleitől fogva lépéseimet, hogy helyemet napjaim végeig
biztosítsam? És ha valami kételkedés maradna bennem, vagy ha
mások is azt hinnék – pedig a ti gyanakodó prókátortok mindenkiről
maga után itél – az még rosszabb lenne, mint ha ingyenélőnek
tartanának. Azért csak nézd át gyorsan, pontosan és kímélet nélkül
számadásaimat s engedd meg, hogy a kis Pirók utánam hozza a
batyut.
Béla azonban az iratok helyett újra az ő vonakodó kezeit ragadta
meg.
– Nem hallottad-e soha, öreg barátom, – mondá, – hogy a hű
tiszt, életének derekasan végzett munkája után, nyugalomba tétetik.
Ki meri mondani, hogy nem érdemli meg a kenyerét? Te harmincz
esztendeje töröd fejedet, őrködől híven és sáfárkodol becsületesen;
ki érdemli meg nálad jobban a pihenést? A mivel csak elláthatlak, a
mit kedvedre tehetek, azt te mind-mind sokszorosan megszolgáltad.
Míg ez a ház áll, te úr leszel abban, akár én. Ez az utolsó szavam,
Istók, és nem várok rá feleletet.
Pallérosi Pallér István izgatottan mozgott ide-oda, elővette meg
zsebre dugta kék tarka keszkenőjét és Béla kezét szorongatva,
mondatait be nem fejezve, dadogta:
– Mégis, ha meggondolom… ha megfontolom…
És meggondolta, hogy a klasszikus irodalom, a jus és theologia
terén való harmincz esztendős működésével bizonyára elég fontos
és terhes szolgálatott tett e családnak arra, hogy kénytelen
nyugalomba lépését a világon senki se hányhassa szemére.
XII. FEJEZET.
Frank és Kordélia.