ADHD - What Everyone Needs To Know (PDFDrive)
ADHD - What Everyone Needs To Know (PDFDrive)
STEPHEN P. HINSHAW
AND
KATHERINE ELLISON
1
3
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We dedicate ADHD: What Everyone Needs to Know® to
anyone who has ever wondered whether the occasional joys of
spontaneity are worth the annual costs of replacing lost sunglasses,
keys, and cellphones, and to everyone willing to make the effort to
understand, appreciate, and occasionally forgive the blessings and
challenges of neurodiversity.
CONTENTS
ACKNOWLEDGMENTS xiii
INTRODUCTION xv
How Many US Children and Adults are Taking Medication for ADHD? 95
What are the Most Common Stimulant Medications in Use? 96
When and How Did Doctors First Begin to Treat ADHD with Medication? 97
How Do Stimulant Medicines Work to Help People with ADHD? 98
What are the Chief Pharmaceutical Alternatives to Stimulant
Medications? 101
What are the Side Effects of ADHD Medications? 102
Can Taking Powerful Stimulant Medications at a Young Age Harm a
Developing Brain? 103
What are the “Ritalin Wars”? 104
How Long Do Medication Benefits Last? 106
Why Do So Many Teens with ADHD Stop Taking their Medicine? 107
How Should Doctors Monitor Treatment with Medications? 108
How Can Patients Improve their Chances of Effective Medication
Treatment? 110
How Might Taking ADHD Medication Influence Later Risk for
Substance Abuse? 111
How Likely is it that People Who Take ADHD Medications Will Become
Dependent on Them or Abuse Them? 112
How Much of a Problem is Abuse of ADHD Medications Among
People Who Don’t Have the Disorder? 113
Contents xi
RESOURCES 177
INDEX 181
ACKNOWLEDGMENTS
Recent research has shown that some of the genes that raise
the risk for ADHD are the same genes that raise the risk for
autism, even though the two disorders manifest themselves
quite differently. This intriguing finding shows us that there
aren’t necessarily specific genes for specific mental disorders but
rather that certain genes sculpt the brain’s development, which
in turn is affected by other genes and by early environments to
yield different kinds behavioral and emotional conditions.
We’ll tell you more about such gene-environment interplay
later on in this chapter, when we discuss the influence of par-
ents and schools. For now, keep in mind that even for traits and
behavior patterns with high heritability, changes in the environ-
ment over time can make such traits and behaviors more or less
pronounced. Height is a good example. People today on average
are several inches taller than their great-grandparents, but this
is not because the genes for height have mutated over a few gen-
erations. Rather, changes in our diets over the last century have
altered the influence of genes, or as scientists say, gene expression.
It may be the same with ADHD. Even though the disorder is
highly heritable, relatively recent and quite dramatic changes
in our modern environment—including the unrelenting flood
of information from personal computers and cellphones and
increasing societal pressures to multitask and perform ever
faster and earlier—may be making most of us less attentive
and more impulsive (and fast-tasking) than ever before. Still,
genes make the key difference in determining which of us, in
the midst of this changing information climate, will lie at the
extremes of the curve. We like to put it this way: People with
ADHD are our era’s coal-mine canaries, more sensitive than
most other individuals to shifting pressures for attention and
achievement that may ultimately affect nearly everyone.
increase the odds that children born with the DRD4-7 allele,
the gene variation linked to risk-taking, will develop a diffi-
cult temperament, possibly combined with problems in execu-
tive functions. Once again, this result and others like it suggest
that certain genes may become activated (or “expressed”) only
or mostly within certain environments—demonstrating the
complex ways in which genes and environments are closely
intertwined.
To cite just one more example of this general rule, Susan
Campbell of the University of Pittsburgh carefully assessed
preschool children with early signs of ADHD as rated by
parents and preschool teachers and found that parents who
responded with negativity and harshness to their children’s
behavior tended to exacerbate their children’s symptoms—not
only right away but over many years. It’s worth emphasizing
that the parents didn’t create those symptoms, the origins of
which were undoubtedly related to genes and temperament,
but appeared to be pouring gas on a developing fire.
It’s now time to introduce a bit more complexity. Consider
the fact that a child born to be impulsive—to run around the
grocery store, knock things over, drop an iPhone in the toilet,
pull the cat’s tail, steal a sibling’s diary, and inspire weekly if
not daily irate calls from his or her school—is not an easy child
to raise. What makes all of that exponentially harder, and a
sure-fire recipe for family chaos, is that, given the strongly
hereditary nature of ADHD, one or both of that child’s par-
ents may be struggling with the same disorder or at least with
many similar symptoms. People with ADHD, adults and chil-
dren alike, are often so impulsive that they unintentionally
violate others’ personal boundaries, betray confidences, and
react emotionally. None of these actions is conducive to calm
parenting or domestic peace. Moreover, a parent distracted
and frazzled by unpaid bills, unmet deadlines, and an unclean
kitchen is not mentally well equipped to provide authoritative
parenting. Such parents tend to struggle and fail to remain
calm and set clear, firm limits, resulting in the worsening of
36 ADHD
Social Life
Also by second grade, the social demands at school also start
to ramp up. Kids who used to invite everyone in their class-
room to their birthday parties become more discriminating.
Children start having their own say, overruling their parents
about whom they want to come over for a play-date. Cliques
start to form, and kids with ADHD—who may be making
social blunders by invading others’ space and teasing too
aggressively—tend to get left out. Parents of children with a
history of ADHD report almost three times as many problems
with peers as is the norm.
Evidence suggests that kids with ADHD are more often
rejected by their peers than children with any other mental
or behavioral disorder, including depression, anxiety, autism,
or even delinquency. (They develop negative reputations with
peers distressingly quickly.) And this is an issue that should
never be ignored. In several large-scale investigations of entire
school districts, researchers have found that peer rejection
during the grade-school years, as reported by classmates, was
the single strongest predictor of delinquency, failure to fin-
ish high school, and long-lasting mental health problems. In
other words, being ostracized by peers was more influential in
68 ADHD
Family Conflict
The stress load on the parents of children with ADHD—
and particularly on mothers, who still provide most of the
care—greatly increases when those children are in grade
school and first encountering serious problems with teachers
and peers. Mothers of children with ADHD, who are so often
the target of judgment by teachers and other parents, report
that they have far lower levels of self-esteem and markedly
more depression, self-blame, and social isolation than mothers
of children without ADHD.
Researchers have found that parenting-related stress levels
are actually higher for parents of youth with ADHD than for
parents of children with autism spectrum disorders. The rates
of separation and divorce in such cases are estimated to be at
least twice the national rate. Even for parents of children with
the inattentive form of ADHD, nightly battles over homework
inflict serious levels of wear and tear. One of the most serious
How Does ADHD Change Over the Lifespan? 69
we’ve shown, the same traits that can be gifts in certain con-
texts can also produce risk for conflict and disappointments.
children with the disorder and their peers first start to stand
out. This is the time when untreated children begin to have
problems with homework, lose friends, and possibly start to
hate school. Family relationships can also deteriorate, and par-
ents can face overwhelming stress. ADHD can make the teen-
age years even more taxing, and sometimes catastrophic, as
the risks increase of an onslaught including further academic
problems, abuse of drugs and alcohol, delinquency, mood dis-
orders, teen pregnancies, sexually transmitted disease, and
addictions to gambling and the Internet. A particularly serious
danger is distracted and impulsive driving, contributing to
traffic accidents that are the number-one killer of adolescents.
By adulthood, as many as half of those diagnosed with
ADHD will no longer have conspicuous symptoms, but most
will be suffering the fallout in terms of anxiety, depression,
divorce, and the toll of academic and professional failures.
Self-esteem decreases over time in people with ADHD, who
must struggle to avoid either an overly pessimistic sense of
self-worth or inflated views about their performance.
Despite all the long-term problems associated with ADHD,
enough people with the disorder end up thriving to encourage
the view that what’s normally viewed as an impairment can be
beneficial with the right supports. We’re eager for additional
research into how these individuals manage to beat the odds,
turning hyperactivity into energy, impulsivity into creativity,
and daydreaming into innovation.
6
HOW MUCH DOES IT MATTER
WHO YOU ARE AND
WHERE YOU LIVE?
for their own healthcare and are generally more likely than
men to admit to problems. As awareness has grown about
female ADHD, more women have been seeking answers to
questions that may have mystified them for many years. Many
also first begin to suspect they have ADHD after having a
child who gets diagnosed.
Another factor tipping the scales is that the inatten-
tive form of ADHD (which, again, is more common in
women than in men) appears to be more persistent than the
hyperactive-impulsive variant, making it more likely a female
adult will still have problems, when for many males, many
salient symptoms will have disappeared by then. As we’ve
noted, even when core systems improve, the companion disor-
ders that often accompany ADHD in females—including anxi-
ety, depression, and eating disorders—may persist, eventually
encouraging women to get help. Additionally, girls are more
responsive than boys, in general, to the pressures and struc-
ture of school. Once these supports are gone, young women
with ADHD may be more vulnerable to their tendencies to be
disorganized.
Overall there’s no longer any question today that women
experience ADHD at much higher rates than were previ-
ously assumed. Beyond the sheer numbers of new diagnoses
is the fact that prescriptions for ADHD medications are now
rising faster for adult women than for any other segment
of the population. Even so, outside of Hinshaw’s research,
there are few long-term studies of girls with ADHD followed
into adulthood, providing little useful research to date on
the brain-based differences between female and male symp-
toms. Still, a sufficient number of girls with ADHD have
now been studied to yield a vivid picture of the female ver-
sion of this disorder. During childhood, girls meeting rigor-
ous criteria for ADHD show serious behavioral, academic,
and interpersonal problems, on par with those of boys. As
we’ve mentioned, they are less likely than boys to act out
aggressively but more likely to suffer depression, anxiety,
How Much Does It Matter Who You Are and Where You Live? 83
only one source. Others require that the child’s problems cause
serious impairment before a diagnosis is made. These sorts of
diagnostic practices, rather than overall national beliefs, are
the key factors making rates of diagnosis higher or lower in a
given country.
What’s striking is that, outside of subsistence nations
(for which ADHD has not yet registered as a concern) and
outside of the United States, with its perhaps artificially
boosted rates of diagnosis, a remarkably similar proportion
of children around the world has clear trouble in handling
the demands of classrooms. This fact lends credence to the
notion that ADHD is a product of both biological vulnerabil-
ity and increasing demands for attention and academic per-
formance. When education becomes mandatory, underlying
differences in self-regulation and impulse control come to the
fore at highly similar levels. ADHD is increasingly a global
phenomenon—and one that we predict will remain in ascen-
dancy as international pressures for academic achievement
and job performance continue to rise.
don’t know how to use visual aids and all the other exciting
technologies that kids are used to.” Around the same time, the
Citizens Commission on Human Rights helped spur plaintiff’s
lawyers to file half a dozen class-action suits in at least three
states against psychiatrists and pharmaceutical firms. Yet all
of these suits had been dismissed by 2003.
The ADHD advocacy group CHADD came under fire in the
Ritalin Wars on the grounds that it had heavily relied on finan-
cial support from pharmaceutical firms. In 2000, plaintiffs in
one of the civil cases that was ultimately dismissed named
CHADD as a co-conspirator, along with the pharmaceutical
firm Novartis and the American Psychiatric Association, in a
scheme to “invent and promote” the diagnosis of ADHD so the
drug companies could profit from stimulant sales. In recent
years, leaders of CHADD have been sensitive to the charges
against it. Although the advocacy group continues to sup-
port medication as a front-line treatment, it has taken pains to
diversify its sources of contributions while also more energeti-
cally educating its members about alternatives to medication.
teacher ratings several times per week and using that feedback
to help make adjustments.
We emphasize this point because there’s little way of know-
ing in advance which particular medication and dosage will
work for any particular individual. Scientists have been trying
for years to make such predictions, but to date there’s simply
no good substitute for trial-and-error testing. In fact, if a par-
ticular laboratory comes up with a means of using assessment
information (about genes, behavior, cognitive performance,
or something else) that could accurately predict who would
respond to which medication and which dose, our suggestion
is to invest in it—because this would be a major discovery. At
present, the best we have is systematic trial and error.
As children grow, they may gradually need higher dosages.
And sometimes medications lose their initial effectiveness,
requiring adjustments. For drugs of abuse, tolerance occurs
when—over short periods of, say, just a few days—the dosage
must be raised in order to obtain the same “high”. Although
this phenomenon does not pertain to therapeutic doses of stim-
ulants for people with ADHD, a slower form of tolerance may
lead, over many months or years, to gradually increasing dos-
ages (in order to maintain initial gains in behavior or cognitive
performance) that ultimately can no longer be sustained. It’s
one more reason why we strongly recommend behavior ther-
apy for children with ADHD (and cognitive-behavior therapy
for adults) as a supplement or substitute for medication (see
Chapter 8).
A doctor can help a family decide whether a short-acting
medication (lasting a maximum of 4 hours) or a long-acting
one (lasting up to approximately 10 hours, depending on the
formula and individual) will work best. Some children have
problems sleeping when they take the longer-acting medica-
tions, but for many others, the advantages of not needing a
noontime or after-school dose are enormous. Doctors may
also advise families on how and when to take the medication.
Given that stimulants can depress a child’s appetite, many
110 ADHD
medication that could possibly help them, and thus risk being
unethical.
As an alternative, some researchers have tried to find and
study groups of children with ADHD who for one reason or
another have either stayed on medication for long periods of
time or have never used it. The difficulty with this “naturalis-
tic” research is it’s nearly impossible to adequately match such
groups on variables such as intelligence, academic perfor-
mance, access to quality medical care, and severity of ADHD
symptoms. Thorny questions therefore emerge, such as
whether a child who took medications for many years did so
because his or her symptoms were initially quite severe. If he
or she then ended up with a substance abuse problem, it would
be impossible to tell whether this outcome resulted from the
medications or the severity of his or her initial problems.
Regardless of such obstacles, several different researchers
have attempted such comparisons, producing findings sug-
gesting that taking ADHD medications neither increases nor
decreases later risk for substance use and abuse. This overall
finding probably results from averaging together results from
two (or more) subgroups—one for which a protective benefit
truly exists and another in which the medications actually
could sensitize the brain to later misuse. Further research will
be essential to figure out which particular kinds of youth with
ADHD fit into each subgroup.
to work for the rewards being offered, meaning that kids must
be consulted regarding the choice of rewards. Such reinforcers
need not cost a lot of money: Some children will work hard
just to be able to choose a movie to watch. On the other hand,
teenagers usually don’t respond well to reward charts—in this
case it’s better to negotiate in advance how progress will be
recognized. Fourth, as emphasized throughout this chapter,
it’s important to keep expectations low at first, handing out
rewards for what might seem like small improvements and
then building from there.
Direct contingency management programs outside of the
home are usually expensive, due to the small staff-to-youth
ratios needed for such regular reinforcement. They have been
proven to work well in the short term for youth with ADHD,
who lack the intrinsic motivation to finish routine tasks and
maintain self-control. Yet the difficulty for children is to
maintain their progress once they’re out of the tightly man-
aged environment. In fact, this crucial issue about direct con-
tingency management exemplifies a sticking point regarding
every therapeutic intervention for ADHD, including both
medication and behavior therapy. Both young and older
people with ADHD generally have trouble maintaining the
gains they can and do make, once the last pill is swallowed
or the last reward is delivered. In the case of children, this is
what makes it so important for behavior therapists to work
closely with families and teachers, training them to keep up a
reward-rich environment after the formal therapy ends—and
fading out the reward programs only gradually, once intrinsic
motivation is apparent.
In other words, this job isn’t for wimps. But parent training
can help, and there’s no shame in seeking it.
Behavior therapists work directly with the parents, either
individually or in a group. They provide education about
ADHD, offer exercises in behavior management, model strate-
gies, and teach parents how to maintain records to monitor
progress. The record-keeping is important, because one of
the key principles of behavior therapy is to strive for gradual
What Kinds of Behavior Therapies Help the Most? 123
Education Act. Under the IDEA, parents have the right to ask
that the school screen their child for a disability, potentially a
way to avoid paying high fees to a private specialist. If school
authorities don’t think the tests are needed, they can turn the
parents down, but the parents have a right to an appeal. The
school’s assessments are usually much more limited than those
offered by private professionals. Children who qualify under
this system are eligible for what’s known as an individualized
education program, or IEP: a system of accommodations and
regular meetings to monitor them. The 504 plan, in contrast,
has the advantage of being faster to implement, more flexible,
and potentially less stigmatizing.
It’s worth remembering that a daily report card can be writ-
ten in as an accommodation through a 504 plan or an IEP. This
is one of the few truly evidence-based accommodations that
parents can and should seek.
Unfortunately, many parents these days get into battles with
their schools and districts over assessments, diagnostic labels,
and the right kinds of accommodations and special education
placements for their child. Such conflicts are not only stressful
for both sides but drain precious resources from cash-strapped
schools that may ultimately be forced by lawsuits to provide
costly plans for individual children. We believe that basic
behavioral training for more teachers—as well as the use of
paraprofessional teachers’ aides, who can assist teachers with
prompting and rewarding not only youth with ADHD but the
whole classroom—could be used much more often than the
considerably costlier alternatives of resource rooms, special
classes, or even (at the extreme) transfers to special schools,
necessarily underwritten by public-school districts. All of
these have been outcomes of some of the legal settlements with
families of diagnosed children. Advocating for your child at
school may inspire you to summon your inner tiger mother, or
father, to avoid being intimidated by teachers and other staff.
The best course, however, is to be polite and respectful, and not
mention the word “lawyer” unless it’s absolutely inevitable.
148 ADHD
In light of all these factors, it’s more than likely that ADHD
diagnoses and treatment, including new prescriptions for
medication, will continue to increase in the United States—a
bellwether for the rest of the world. The biggest potentially
countervailing factor would be a popular backlash against
the seeming epidemic and in particular against the cursory
diagnoses that have undoubtedly inflated the overall rates of
diagnosis. That backlash could come from any one of several
directions. In particular, if abuse of stimulant medication con-
tinues to increase and claims more casualties, public alarm
might force professional groups to tighten restrictions for
diagnosis and treatment. At the same time, national academic
testing firms and college proctors may react to perceived
exploitation of the diagnosis and tighten their own eligibility
requirements for accommodations.
Another potential countervailing force could come in what
economists call “demand shock,” as increasing numbers of
166 ADHD
Recommended Books
Ashley, S. (2005). The ADD and ADHD Answer Book: Professional
Answers to 275 of the Top Questions Parents Ask. Naperville,
IL: Sourcebooks.
Barkley, R. A. (2000). Taking Charge of ADHD: The Complete, Authoritative
Guide for Parents. New York, NY: Guilford Press.
Barkley, R. A. (2012). Executive Functions: What They Are, How They
Work, and Why They Evolved. New York, NY: Guilford Press.
Barkley, R. A. (2013). Defiant Children: A Clinician’s Manual for
Assessment and Parent Training. New York, NY: Guilford Press.
Barkley, R. A. (Ed.). (2015). Attention Deficit Hyperactivity
Disorder: A Handbook for Diagnosis and Treatment (4th ed.).
New York, NY: Guilford Press.
Beauchaine, T. P., & Hinshaw, S. P. (2013). Child and Adolescent
Psychopathology (2nd ed.). Hoboken, NJ: Wiley.
Beauchaine, T. P., & Hinshaw, S. P. (Eds.). (2015). Oxford Handbook
of Externalizing Spectrum Disorders. New York, NY: Oxford
University Press.
Brown, T. E. (2013). A New Understanding of ADHD in Children and
Adults: Executive Function Deficits. New York, NY: Routledge.
Brown, T. E. (2014). Smart but Stuck: Emotions in Teens and Adults with
ADHD. San Francisco, CA: Jossey-Bass/Wiley.
Denevi, T. (2014). Hyper: A Personal History of ADHD. New York,
NY: Simon & Schuster.
Ellison, K. (2010). Buzz: A Year of Paying Attention. New York,
NY: Hyperion Voice.
178 Resources
Internet Resources
Centers for Disease Control: http://www.cdc.gov/ncbddd/adhd/
National Institute of Mental Health: http://www.nimh.nih.gov/
health/publications/attention-deficit-hyperactivity-disorder/
index.shtml
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(CHADD), offering news about the advocacy group and articles of
interest: https://www.google.com/webhp?sourceid=chrome-
instant&ion=1&espv=2&ie=UTF-8#q=chadd
ADDitude Magazine online (CHADD’s national magazine): http://
www.additudemag.com/index.html/
National Resource Center on ADHD (a project of CHADD): http://
www.help4adhd.org/
ADHD Coaches Organization: http://www.adhdcoaches.org/
American Academy of Child and Adolescent Psychiatry Provider
Finder: http://www.aacap.org/AACAP/Families_and_Youth/
Resources/CAP_Finder.aspx
INDEX