Learning Disabilities
Learning Disabilities
Contemporary Viewpoints
Edited by
Bryant J. Cratty
Professor Emeritus
University of California at Los Angeles
and
Richard 1. Goldman
Learning Disabilities Consultant
Calabasas Hills, California
Amsteldijk 166
1st Floor
1079 LH Amsterdam
The Netherlands
ISBN 3—7186—0623—2
T7 WT
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This book is dedicated to those children with learning
disabilities and their families. Their persistence and
courage on a daily basis in dealing with adversity is a
lesson for all of us. We also admire all those professionals
who devote their lives to the learning disabled and whose
sensitivity, understanding, and awareness help these
youngsters meet their potentiaL
CONTENTS
Foreword ix
Preface xi
Acknowledgments xiii
List of Contributors xv
Graduation Speech xvii
Larry B. Silver
Resources 213
Index 217
FOREWORD
Drake D. Duane, MD
Director, Institute for Developmental Behavioral
Neurology/Biological Psychiatry
Professor, Speech and Hearing Sciences, Arizona State University
President, International Academy for Research in Learning Disabilities
Chair, Scientific Advisory Board, National Dyslexia Research Foundation
PREFACE
and adults. Through her descriptions, we can all better understand the
frustrations and challenges of having a learning disability.
The editors hope that this book will not only alert readers to current
ideas and trends in the field but, more importantly, create a better under-
standing and awareness of learning disabilities and attention deficit dis-
orders.
ACKNOWIEDGMENTS
GRADUATION SPEECH
It's amazing to me when I remember how I used to be, how I felt and
how things were. How the struggle tugged at my heart making me scared
and vulnerable. How most often I was frustrated and wanted nothing
more than to run forward but my mind had no choice but to walk, a little
slower ... a little slower maybe, a little different but I finally got to the
place I wanted to be.
Landmark West, I thank you for giving me the courage and the willing-
ness to try through so many years of struggle.
To my friends, I thank you. To anyone who has ever shared the joy and
the pain, to anyone who has ever gotten lost within the laughter as well
as the chaos, to those of you who have ever left footprints in my heart
and sweet memories in my head: I will never forget you.
To my family, who let me be exactly what I am, your wisdom taught me
strength and your love taught me compassion; I love you.
Through the years, I have learned more than I could have ever learned
in the classroom. I've learned to never give up on the important things,
the ones that, once accomplished, leave you that feeling in yourself that
you can do anything.
I've gained the power of knowing that no matter what lies ahead of me
is an opportunity for experience.
But most of all, I've learned that overcoming adversity, like a broken
bone, causes you to heal that much stronger.
I walk away from here today a high school graduate taking with me
invaluable lessons; what I leave behind is an insecure 8-year-old who
couldn't read or write and believed she never would. I don't really know
what lies in front of me; but whatever it is and whenever it comes I wel-
come it and look forward to its challenge, secure in the knowledge that I
can do anything!
LECTURE 1
I would like to take a few minutes to review all the terms I will use. Just
this evening you heard me introduced as talking about dyslexia, learning
disabilities, and ADD. I will take the first few minutes to review an histori-
cal perspective of how we got where we are. From there, we will move to
some of the key issues related to learning disabilities.
HISTORICAL BACKGROUND
In the U.S. prior to 1940, if children had trouble learning, they were put
into one of three major categories: (1) those children who were mentally
retarded; (2) those children who had emotional problems; or (3) those
children who were socially and culturally disadvantaged. By the early
1 940s, we began to recognize that there was a fourth group of children
who were having trouble learning because of the way their nervous sys-
tems functioned. Initially, it was thought that the reason this group of chil-
dren had trouble functioning was because their brains were damaged. Yet,
these children looked normal, so the term applied to this group was Mini-
mal Brain Damage.
Gradually, by the late 1940s and early 1950s, more and more evi-
dence was presented that demonstrated no damage to the brains of
these children. Instead, there existed "difficult" wiring, or faulty neural
functioning. So the name of this disorder was changed to Minimal Brain
Dysfunction.
By the early 1 960s, people were so confused about what "Minimal
Brain Dysfunction" meant that the National Institutes of Health brought
together what was called a "Consensus Conference" to summarize all of
the research and conclude what was meant by this term. The panel con-
cluded that Minimal Brain Dysfunction referred to a group of problems
often found together, where the child had trouble learning because of
the way his or her nervous system operated. Secondly, many children in
this group were hyperactive and/or distractible. Third, many of them had
emotional, social, and family problems.
If we had stopped there, we would have been years ahead of our-
selves, but like most government documents, the "Conference" report
was put on the shelf, collected dust, and was ignored. We had to go
through twenty years of re-inventing the wheel before we discovered the
same conclusions. That is, if we look at the children and adolescents who
go to a school like Landmark, we find a common theme, that they have a
learning disability. We find that about twenty to twenty-five percent of
them also will have Attention Deficit Hyperactive Disorder (a term I'll de-
4 Larry Silver
fine for you later). In addition, many of these children have social, emo-
tional, and family problems.
What causes these secondary emotional, social, and family problems?
Let me give an example. A boy begins school. He gradually falls behind
academically and is kept back. He is now a year older and a head taller
than everyone else in his class. He is still not learning and begins to feel
bad about himself. He becomes totally discouraged and starts to misbe-
have in school. His teacher then calls home telling his parents, "Your
child is not doing this; your child is not doing that." His parents begin to
feel badly and become frustrated, as does the child. It's 100% predict-
able that if there are two parents in the family, one will believe that the
best way to help the child is to be firm and strict, while the other will be-
lieve that the best way to help the child is to be understanding and per-
missive. And so the parents begin to clash with each other. Eventually,
the principal calls the parents in and says, "Your child is not learning due
to emotional problems, obviously due to marital conflict. Co see a mental
health professional." And so these parents go to see a psychiatrist, a so-
cial worker, or a psychologist because their child is misbehaving in
school. Here, everyone is looking at the smoke rather than at the fire. As
such, when we talk about social, emotional, and family problems, it is
critical that we determine whether the social, emotional, or family prob-
lems are causing the academic difficulty or whether the social, emotion-
al, or family problems are consequences of the academic difficulty.
Initially, the terms that were used for these students attempted to label
the presenting issue. If the problem involved reading, the child had dys-
lexia. If the problem involved math and calculations, the child had dyscal-
culia. If the problem involved written language and graphics, the child
had dysgraphia.
Gradually, it became clear that these terms did not have much mean-
ing. Dyslexia does not tell you "why" a child has difficulty reading but
tells you that he or she cannot read. The child may have just moved from
El Salvador and only knows Spanish. Reading problems may occur for
any number of reasons. The experts decided that one had to clarify the
specific learning difficulties that explain why a child has trouble with
reading or writing or with math. The specific learning difficulty term used
today is "Learning Disabilities." As noted earlier, some children are also
hyperactive, distractible, and/or impulsive. Many different terms have
been used for this behavior. The first term used in this country was "Hy-
perkinetic Reaction of Childhood." Today, we call this disorder "Atten-
tion Deficit Hyperactivity Disorder." This disorder is not my topic for
The Role of the Family in Helping the Child or Adolescent with LD 5
PARENT HELP
Now let me become more specific with you about what you as parents
can do to help. The first thing we need to understand is that learning dis-
abilities are "life" disabilities. Learning disabilities are not just school prob-
lems. The same learning disabilities that interfere with reading, writing,
and arithmetic interfere with baseball, basketball, four-square, jump rope,
setting the dinner table, getting dressed, keeping a room neat—in short,
with every aspect of life. You may have thought of a learning disability as
"my child can't read, reads backwards or reads upside-down and that's
why he goes to Landmark." But you need to realize that his or her learning
disability also explains why there are so many problems at home or with
peers. Parents must broaden their thinking and realize that their son's or
daughter's brain somehow functions differently, whether he or she is with
family, playing with friends, or at school.
The second thing to keep in mind is that learning disabilities are a "life-
time" disability. The child with a learning disability will become the ado-
lescent with the learning disability, and will become the adult with the
learning disability. Parents don't like to hear this. They want to think that
their child will outgrow it. If they just give the child help for a couple of
years, he or she will get better. I don't say this to make parents fell upset
or depressed. I say it because, if parents face reality, they have a better
chance of dealing with reality. Forty percent of the children with learning
disabilities inherit the disorder from their parents. It runs in families. Par-
ents may have the same problem. They, too, may need help.
The point is that if we get these students the right help, and if we give
them the right skills and strategies for learning, they can do as well as
anyone else. They might need special help through high school. They
might also need to go to a college that can provide help. Today, there are
graduate schools and professional schools all over the country that ac-
commodate to youngsters with learning disabilities.
6 Larry Silver
So, what is your job as a parent? Schools will deal with their academic
needs. Parents need to deal with their psychological, social, family, and
peer needs.
I want to review what learning disabilities are, focusing on the reality that
learning disabilities are not just a school disability but are a life disability.
This major theme is expounded on in my book, The Misunderstood Child.
This book is written for parents and contains information about what par-
ents can do to help their child to be successful through adolescence.
Often, when I meet with parents who have children who have been in
special education programs for years, they show me a very thick file. I'll
ask them to summarize the information for me. Can they give me a list of
their child's learning disabilities and, equally important, can they give me
a list of their child's abilities and strengths? Most parents cannot. This in-
formation is critical. The job of a parent is to learn how to build on their
child's strength's rather than expose or magnify their weaknesses. The
role of special education programs is to build on the strengths while
helping to compensate for or overcome the weaknesses. To do this, the
parents must know their child's learning abilities as well as the child's dis-
abilities.
It is convenient to break the types of possible learning disabilities
down into simple steps. The model used is a computer-based model.
The first step in learning is to bring information to the brain and record
it. This is called "input." The second step, once the information is in, is to
make sense out of it. This is referred to as "integration." The third step,
after input and integration, is to be able to store information so it can be
retrieved again. This is termed "memory." The last step, after the informa-
tion is brought in, integrated, made sense out of, and stored, is to get the
information out again, called "output." Thus we talk about input disabili-
ties, integration disabilities, memory disabilities, and output disabilities.
INPUT DISABILITIES
Some children have trouble bringing information in using their eyes and
recording it properly. They have "visual input problems." Some children
have trouble bringing information in using their ears and recording it prop-
erly. We call that "auditory input problems." Some children may have a
mixture of both. The teacher is writing on the blackboard, while talking,
The Role of the Family in Helping the Child or Adolescent with ID 7
and the student can have trouble bringing information in both through the
eyes and ears at the same time and making sense while recording it. The
term we use for this central brain process of seeing or hearing or perceiv-
ing the world is "perception." So the term we use to distinguish this central
brain process of recording something from the outside onto the brain is
"perception." Some children will have a "visual perception problem." Oth-
ers may have an "auditory perception problem."
Visual Perception
Some children or adolescents have difficulty distinguishing differences in
shapes. They may confuse b's and d's and p's and 9's. They may confuse a
ll3 "M", and an "E" where the same symbol can appear in four dif-
ferent positions. They may confuse a "u" and an "n" or a "6" and a "9".
This problem is normal until age six. Another visual perception problem is
"visual figure-ground." This problem refers to difficulty differentiating be-
tween the figure one is to focus on versus the entire visual field, the back-
ground. Some children, when reading, have trouble deciding what words
to look at. As they read, they skip lines, or they read the same line twice.
They must to go back and catch themselves. When they look up from the
page, they trouble deciding where they were when they look down again.
If the table is too cluttered, their eyes look at everything but the important
work on the page. When sitting at the dinner table, they may have difficul-
ty spotting the salt, if asked to pass it. The same child might not hit the nail
with a hammer. Some children have trouble with visual depth perception,
bringing information in through both eyes, fusing it together, and coming
up with three-dimensional vision. These are the children who fall off their
chairs, or who reach for a drink and misjudge it's location, or who, after
cracking an egg, let it hit the table rather than the pot.
How important is visual perception in life? What does it take to catch a
ball, or hit a ball, or throw a ball? The first thing one needs to catch a ball
is "visual figure-ground." One has to look out into the field and spot the
ball from an often confusing background. The second thing one must do
after one spots the ball is to keep one's eyes on it. The reason why
coaches yell at children to keep their eyes on the ball is that if one's eyes
are on the ball, the brain can use depth perception to figure out how fast
the ball is moving so that one can get to the right place and catch it. A
child who skips words and lines when reading may also have a problem
with baseball and basketball. He or she will get their hands up to catch a
ball too soon or too late and get hit in the face. After a while, the child
will just throw up his or her hands to protect the face, because he or she
8 Larry Silver
is afraid of getting hit. These children do not play sports well that require
this kind of eye-hand coordination.
Auditory Perception
A child or adolescent might have difficulty distinguishing subtle differ-
ences in sounds. It is easier to understand the concept of subtle differ-
ences in shapes. There are twenty-six shapes in our alphabet, and ten
shapes in our numerical system. But there are 44 units of sound in the Eng-
lish language, called phonemes. Some words sound very similar, "Blue"
and "blow", "ball" and "bell", "can't" and "can." I might say, "How are
you?" and a child, say eight years old, may appear to be thinking I said,
"How old are you?" This child may not be paying attention because he or
she misunderstands the sounds that are heard.
Some may have an "auditory figure-ground problem:" If there is more
than one sound at any one time, will the child know which one to focus
on?
Let me give an example. John was a ten year-old boy with an auditory
figure-ground problem. I observed him at his home and at his school. At
the home, he was sitting and watching television. His brothers were play-
ing a game on the floor, another sound input. The window was open and
the traffic constituted another sound input. His mother was in the kitch-
en. Suddenly, his mother called out, "john, please come in and set the
table." That brief message lasted about three seconds. John didn't focus
on it. His mother called out three or four times and finally said to me,
"See what I mean. He never pays attention to me!!!" And then John
looked up, totally surprised, with no idea why his mother was angry with
him.
John was surprised because his brain was the only brain he has ever
had. He doesn't know that it is different. He is trying to go through life
like everyone else; but somehow he is always being yelled at for some-
thing, and he does not know why. What John's mother needed to learn
was that her child had an auditory figure-ground problem. If she wanted
to talk to him, she had to make eye contact first. You have to use "visual
figure-ground" to compensate for the "auditory figure-ground disability."
A few days later, I observed John in school. He was sitting at his desk
working. He later described that he had heard noises in his head (think-
ing), noises in the classroom, and noises out in the corridor. The teacher
suddenly said, "Children, it is time to do your math, open your book to
Page 16 and start Problem 4." By the time John realized that the teacher
was talking, he heard "Problem 4." He looked around the room and saw
The Role of the Family in Helping the Child or Adolescent with LD 9
everyone taking out his or her math books. He took out his math book
and then quietly leaned over the shoulder of the child in front of him to
find out what page Problem 4 was on. At that point, the teacher said,
"John, quit bothering the other children and get to work!!!" You see what
it is like to be John, or Mary, or Allison, or anyone who is constantly being
yelled at? They are accused of being stupid, or lazy, or bad, or dumb,
because they cannot do things as well as everyone else. They look nor-
mal and are expected to be normal. But they are not. It is so important for
parents to know their sons' and daughters' strengths and weaknesses so
that they do not continually frustrate themselves and their children.
Some children will have what is termed an "auditory lag." It takes them
a fraction of a second longer to understand what they have heard. They
are constantly trying to think about what they just heard and miss what
comes next. Sometimes they just can't keep up and miss a piece of in-
formation. They seem not to be paying attention. In the classroom, a
teacher might explain something. Then, the child raises his hand to ask a
question. The teacher says, "I've just explained that. Why don't you lis-
ten?" These are the children who are often called "air heads" or "space
cadets" because they always seem to be misunderstanding what is being
said.
Sensory Integration
There are three other areas of input problems that may not impact on
learning but will impact on life. These three inputs are required to know
where one's body is in space and how to perform motor tasks. The first
input is "tactile perception," or "touch input." There is "light touch" and
"deep touch," or "pressure." You know you are sitting down because you
receive pressure from some parts of your body but not from other parts.
Some children have trouble with "touch input." They may not like to
be held or cuddled. They complain about the tag on the back of their
shirt or say that their belt is too tight. They may not like shoes and socks.
Occupational therapists diagnose and treat this problem.
The second of these inputs is "proprioception." These are the nerve
endings in muscles and joints that tell us which muscle groups are re-
laxed to tight and where each joint is. Some children are confused by
these inputs. They might have difficulty learning to use their muscles in
certain patterns, called "muscle planning." Anything they do that re-
quires a pattern of muscle activity is difficult. They might have a difficulty
buttoning, zippering, and tying.
10 Larry Silver
The third input comes from the inner ear. Our vestibular system tells us
where our head is in space and where we are in relation to the ground.
Balance and movement in space may be difficult if there is a "vestibular
perception difficulty."
So far we have only discussed 25% of the possible learning disabilities,
yet I hope you are beginning to understand that these are "life" disabili-
ties. The same learning disabilities that cause difficulty in school interfere
with sports activities, with home activities like cutting up food and get-
ting dressed. Visual perception skills are needed in jump rope, in hop-
scotch, in four square, as well as in coloring and staying inside the lines
and cutting and staying on the line. All these skills require eye-hand coor-
dination. If everyone at a Boy Scouts meeting or at an Indian Princesses
meeting is drawing a turkey, then cutting it out, the child with the visual
perception problem cannot draw very well or cut very well, and every-
one knows what experiences such children can have. They get teased
and come home and say they don't want to go there anymore.
Integration
Let me ask you to do an exercise to demonstrate the concept of integra-
tion. I want each of you to print on your brain three graphic symbols: a
"d", "o", and a "g". In order to make sense out of this message there are at
least three things a person has to do. The first is to package those symbols
in the correct order, called "sequencing." Were they recorded as "god",
"dog", or "ogd"? The next step is to figure out what each word means,
now that it is packaged correctly, called "extraction." For example, "the
dog" and "you dog" use the same word. In one case, the word refers to an
animal, and in the other case it is an insult. The third task is to put the main
inputs into a concept. This is called "organization."
Integration disabilities refer to sequencing, extraction, and organiza-
tion difficulties. Some children have a visual sequencing or extraction
problem. Others might have an auditory sequencing or extraction prob-
lem.
If a child with a sequencing problem is talking, he or she might start in
the middle and go to the beginning of the thought, then shift to the end.
Eventually, the message comes out so that it can be understood. The seg-
ments do not flow in the right order. This child might explain something
well; but when asked to write it, he or she puts everything down out of
sequence. This child might try to copy something off the board, such as
"21 plus 6", but it comes out "12 pIus 6." He or she transposed the "21"
to a "12." Some have trouble using sequences.
The Role of the Family in Helping the Child or Adolescent with LD 11
I recently saw a very bright high school student and suspected a learn-
ing disability. I asked him to name the months of the year. He had no
problem naming January through December. I then asked him to tell me
what comes after August. There was a long pause before he said, "Sep-
tember." I asked why the pause, and he said, "I had to start at January
and work my way up." He couldn't use the sequence of months he had
learned. For these children, the dictionary is difficult. They can recite the
alphabet; but when using the dictionary, they have to go back if the next
letter is above and below the last letter. They have to start back at "A"
each time. These are the same children who hit the ball and run to third
base instead of first base. Parents get angry because every time the child
sets the table, he or she cannot remember where the fork goes, or the
knife and spoon. This is the same child who, when younger, put on his or
her pants before his or her underpants. This child might put on a shirt and
then wonder what to do with his or her undershirt. He or she cannot re-
member the sequence of dressing.
"Extraction" difficulties result in trouble picking up the subtle mean-
ings of words. These children do not pick up jokes or understand humor.
They don't laugh when others laugh. Jokes are plays on words, and these
children don't get them. They hear things literally. Idioms or puns have
little meaning to them. I saw a good example of this just a few weeks ago
when I was visiting a school. It was a small special education class with
about ten students. One child started talking, and the teacher said,
"Class, would you please be quiet." Another child said, "I wasn't talking."
The teacher replied, "I know you weren't." This child went on: "But you
said 'class' and therefore you meant me because lam in the class and/am
very angry." Some children appear to be paranoid because they take
what is said literally.
To identify an organizational problem does not require elaborate test-
ing. Just look at their notebook, or locker, or bedroom. One can see their
trouble with organization. Their notebook is a mess, and things are in the
wrong place. They may not bring home what they are supposed to bring
home. Even if they do their homework, they lose it or forget to turn it in.
They seem to always be losing things. Their whole life is disorganized.
They may also have trouble organizing time. If you say that "a book re-
port is due in two weeks," that time is twenty years away to them; and
then the night before, they panic. They cannot plan time. They have
trouble organizing themselves. These behaviors make their friends upset.
Parents may find themselves getting angry when helping with homework
because this child demands so much of the parent's time. If a parent
12 Larry Silver
says, "Go do your homework," it will not get done. If this parents sits
down next to the child and says," What do you have to do tonight, what
do you want to do first? Do you want to do your English first? Great! Get
started, and I'll come back later to check." The homework may get done.
This child needed a parent to help organize and structure the material.
Memory
We think of two kinds of memory: "short.term" and "long-term." "Long-
term" memory refers to material that is stored and can be retrieved when it
is needed. For most children, "long-term" memory is quite good. They may
remember something years old, that others may have forgotten about. If
they go some place once, they know how to get back to it. Some children
may have trouble with "short-term" memory. This is memory that is being
stored and can be retained briefly. One can retain information while fo-
cusing on it; but unless it is reviewed more, the information will not stay.
He or she can call a phone operator and get a number with an area code.
He or she can then keep these ten digits in memory whlle dialing the num-
ber. But, if between getting the number and dialing it, someone starts talk-
ing, this person may forget the number.
Some children with "short-term" memory disabilities have a "visual
short-term memory" disability, while others have an "auditory short-term
memory" disability. Some parents have learned at home that they cannot
give their child more than one instruction at a time. When they say, "1
want you to go upstairs, brush your hair and wash your face, then come
down again," the child will not remember all of the instructions. In a
classroom, the teacher says, "For tonight, your homework is to read
Chapter 6 and answer all the questions at the end of the chapter." This
child goes home and remembers only to read Chapter 6 and does not do
the answers. At school the next day, the child is accused of not doing the
homework. Children with a "short-term memory" disability need repeti-
tion of information to retain it. They sit down at night and memorize a
spelling or vocabulary list, then go to school the next day and forget what
they have learned.
When they sit in class and are shown a math concept, they really un-
derstand it. Yet when they go home that night, they have forgotten how
to do it. But if a parent does the first problem, bringing it back to
memory, the child can do the rest. "Short-term memory" problems inter-
fere in other ways. One may have to read a chapter in a book. He or she
will read the first paragraph and understand t, then the second, then the
The Role of the Family in Helping the Child or Adolescent with LD 13
third, and fourth, and fifth. When they get to the end of the chapter, they
have no idea what they have read, because they have not retained it.
Some children say "Oh, forget it," or, "It is not important." The reason
might be that they have a "short-term memory" disability. They start to
speak to you. Half-way through, they forget what they are saying. It is
awkward for them to admit, "1 forgot what! was saying." It is easier to say,
"Forget it, it's not important."
Output
There are two ways we get information out of the brain. One way is to use
words or to talk. The other way is to use muscles, as when drawing, gestur-
ing, writing, cutting up paper. We refer to two types of language use:
"spontaneous language" and "demand language." "Spontaneous lan-
guage" refers to self-initiated talking. The child has the luxury of a fraction
of a second in which to organize his or her thoughts, words, and speech.
Some children have no trouble with this. Some children just chatter and
chatter and chatter. "Demand language" refers to situations where the
child must respond without preplanning. What do you think the story is
about?" "What's the answer to Number 6?" "Where is your sister?" The
child must organize his or her thoughts, find the right words, and speak at
the same time. Some children can't do this. The same child may be fluent
and chatter with friends. Yet, when asked a question, he or she delays or
say, "What? Huh?! don't know." He or she can't find the right words. I saw
a young boy the other day and asked him what he liked to do after school.
He said, "I like to go up in my room and play with cards." I replied, "What
do you do with your cards? He said nothing. I then asked, "What kind of
cards? He said, "You know, pictures of sports, you know." He couldn't find
the right words, "baseball cards' and couldn't get them out. But if I held
up a baseball card, and asked him what it was, he would easily respond.
There is nothing wrong with his knowledge. It is just that he cannot re-
trieve words or organize them fast enough. A teacher might say, "This
child is passive aggressive." When asked to clarify, the teacher will re-
spond, "When he wants to, he will speak in class; but when I call on him,
he refuses to answer." This difference may occur because one task in-
volves "spontaneous language" and the other task requires "demand lan-
guage."
The same problem may occur at home. When a child struggles to get
his or her thoughts out with the right words, parents and siblings get frus-
trated with the time needed. Eventually, someone answers for the child.
14 Larry Silver
Motor Output
There are two types of motor output problems: "gross motor" and "fine
motor skills problems." "Gross motor" difficulties refer to coordinating
groups of large muscles: arms, legs, and trunk. Fine motor refers to coordi-
nating teams of small muscles, like the forty-some muscles in your domi-
nant hand when writing.
The child with a "gross motor disability" is clumsy. He or she cannot
run well and might not learn to ride a tricycle or bicycle when everyone
else does. Can you imagine what it feels like to be eight or nine years old
and still need training wheels on your bike?
"Fine motor problems" most commonly impact on writing. This child
holds his or her pen awkwardly and writes slowly. Printing may be pre-
ferred over cursive writing. It is a laborious effort to get anything down
on paper. The child will tell you, "My hand does not work as fast as my
head is thinking." Handwriting is messy. In addition to this mechanical
problem, the child might have a written language disability, manifest in
difficuky getting words down on the page. He or she makes spelling,
grammar, and punctuation errors. The same child who gets A's on spell-
ing tests will misspell the word when writing it. The same child who could
recite every punctuation rule cannot apply them well in writing. This dis-
ability is a problem in the classroom when copying from the blackboard
or taking notes. Homework, of necessity, is usually written work. This
child might resist it, because he or she cannot write fast or easily. Written
language is a problem in daily life as well. How do you write notes to
your friends? If you make spelling errors, your friends might laugh at you.
THE FAMILY
Let's start with chores within the family. How do parents know what
chores to give their son or daughter with learning disabilities? They can
use trial and error. If, however, they know this child's or adolescent's
strengths and weaknesses, they can select chores that build on their
strengths, rather than expose their weaknesses. For a child with "visual
perception" and "visual-motor problems," that is, he or she has difficulty
when his or her eyes must tell the muscles what to do. A parent might not
ask him of her to load or unload the dishwasher (unless the family uses
plastic dishes). This child could, however, walk the dog, bring in the news-
paper, to take out the trash. If the child has a "short-term memory prob-
lem," parents need to write down the chores. "You load the dishwasher
on even number days and unload the dishwasher on odd number days."
The Role of the Family in Helping the Child or Adolescent with LD 15
What about camps, day camps, sleep-away camps? Let me use the
same child with "visual perception" and "visual-motor problems." You
know what the "All-American Jock Camp" is like? At the end of the week,
one team feels great, while the other teams feel bad because they did
not win. If this child is sent to this kind of camp, and he or she drops the
ball or plays poorly, it is not hard to predict the outcome with peers. This
child has "good gross motor skills" and can do other other activities well.
Perhaps success will be with soccer, bowling, horseback riding, golf, cer-
tain track and field events, or swimming. Pick a camp that offers these
types of sports. Maybe a waterfront camp with swimming, rowing, ca-
noeing, sailing—all "gross motor" sports.
If a child has "auditory perception problems," the coach needs to be
told that this child may appear to not understand. Ask that the coach re-
view the instructions again. Parents need to run interference. They need
to help find activities at which the child can be successful. Today, at
Landmark, one sixth grade girl said, "1 wish / could talk to my horseback-
riding teacher." I asked why. She responded, "One of the things she is
teaching me is balance, letting go of the reins, putting your hands on your
hips and letting the horse walk. I am always afraid I will fall; but when I
reach over to hold onto the saddle the instructor yells at me to put my
hands back on my hips." Someone need to explain to this riding instruc-
tor why this girl has problems with balance (maybe a "sensory integration
problem"). Let her learn to ride and to have fun with her friends.
If a child has a "demand language disability," he or she may wish to get
into drama. Many might say, "Drama... that is talking, and the child has a
disability in this area." The nice thing about drama class is that once the
child memorizes the script, language is spontaneous. That is why many
"dyslexics" are excellent actresses and actors. You see them on talk
shows, and they may have difficulty putting two thoughts together. How-
ever, give them a script to memorize, and they win Oscars.
As children move toward adolescence, they need to begin to learn to
be their own advocate. They cannot learn self-advocacy during high
school. They will not be able to succeed during their post-high school
years. We often make these children passive. They go to school, and the
special education teacher says, "Sit down and get this work done." They
come home, and the parents say, "Sit down and do your homework." Tu-
tors often give work without explaining why. We need to help them un-
derstand themselves. In early adolescence, we have to teach them to be
their own advocates. They have to know their nervous systems and their
limitations and strengths and so do the parents and the professionals
The Role of the Family in Helping the Child or Adolescent with LD 17
working with them. They may need help in talking to their friends or ex-
plaining themselves to their friends. For example, let's think of a high
school student who is still reading at the third grade level and who is go-
ing to a place like Landmark. He or she may go out with friends and be
handed a movie guide. Someone asks, "What movie do you want to see
tonight?" Or, he or she is given a TV guide and asked, "What do you want
to watch?" Reading is a problem every place he or she goes. At a restau-
rant, he or she cannot read the menu. These students need to know
when and what to tell friends. Some of the students I met with today said
that they were afraid to tell friends because "they will think that I am stu-
pid and they will not like me anymore." One child said, "I tellmy friends
that I go to a private school in Encino. I do not tell them it is a Landmark
West because they will think I am going to a retard school." That is how
she feels about herself. We need to help students know that they are not
stupid, that they are not dumb, that they are not bad, and that they are
not lazy. We need to help them understand that some parts of their ner-
vous systems are wired a little differently and, as a result, that they may
need to learn differently.
We need to help them learn to be their own advocates. For example,
we need to help them learn how to explain to a friend that they read
slowly, or how to explain that sometimes they get lost in space, or don't
know their left from their right. Parents or other adults have to role play
to teach them how to explain to someone that they have a "learning dis-
ability" and how it interferes with their life. Parents need to be supportive
when these children are working with their friends and teachers and
must teach them how to fight their battles.
Let them give you an example: One mother approached the new
teacher the day before school started and told her, "My son has been
mainstreamed, he has dyslexia. He doesn't read very fast, and! wouldap-
preciate it if you give him untimed tests." If this happens, you can predict
what is going to occur. First, the teacher is going to say, "Look, Lady, I
have twenty-five to thirty children in my class, five periods each day. I
can't do things like that." Or, "Look, the child is growing up. You have to
get off the child's back and let him do things." A parent taking this kind of
demanding attitude wouldn't get much cooperation. But let me tell you
how we taught a child to work with his teacher. He met with theteacher
himself and said, "1 want you to know that I personally picked you to be
my English teacher during the 11th grade." Don't ask your child to do this
to impress the teacher. The child should know whether he or she can do
better with a teacher who does a lot of lecturing, because auditory per-
18 Larry Silver
SUMMARY
What am I trying to say? Each of you are here because your son or daugh-
ter has a learning disability. Some of you might say, "No, my son or daugh-
ter just needs a small school or private classes and just a little extra
attention."
Please, erase the denial. If you don't believe it, they won't believe it.
Your child or adolescent is here because he or she has a learning disabil-
ity. What is important is that he or she is bright andcan learn. It is impor-
tant for you as parents to learn your child's profile oflearning disabilities
and learning abilities, If you don't know this, there is no way you can cre-
atively or correctly help them. You have to teach your child his or her
abilities and disabilities. Otherwise, he or she will go through life playing
a trial and error game. You need to know how to apply this knowledge in
order to build on strengths rather than to expose weaknesses. As they
get older, you need to teach them to do their own advocacy.
Dr. Silver: The rule of thumb is, if homework becomes a battle zone,
them pull out and let the school deal with it. If youngsters refuse to do
their homework, then the school- will easily find out the next day when
the child returns without the homework done. If you've gotten beyond
that, and the child is really trying hard, then you say, "The homework is
up to you. If you want any help, then I'll be glad to help you. But if you get
frustrated, and your help is just not working, then what you might say is,
"1 really apologize, I really thought I understood your learning problems,
but clearly I don't understand well enough to teach you.1 Why don't you
just skip it tonight, and I'll call your teacher tomorrow and ask him how I
can help you." Then, you get someone at the school to show you that
your child will learn faster if you use methods A, B, or C. Since parents
don't have backgrounds in special education, send a signal to the young-
ster that lets him or her know that you do not know how to help and that
is your problem, that you will figure it out together with the help of the
teacher. But again: if homework time becomes a battle zone, pull away,
and let the school give advice and directions as how to best interact with
your child during homework time.
Question: It is true that these children do not get rid of their problems?
Isn't there some exercise or program or something that helps them get
rid of their problems?
Dr. Silver: How many of you as adults have learning disabilities?
(Hands raised). How many of you have gotten rid of them? (Laughter.) I
don't say this to make you feel badly, I say this to be realistic. We do not
know yet how to get rid of learning disabilities. An awful lot of people are
making millions of dollars promising patients magic cures with brain
studies and vibrating beds and such. These "cures" do not work. What
does work is if we can teach your sons or daughters how to use their
strengths and how to compensate for their weaknesses. If we can teach
them strategies for learning, then they can be successful people.
My reading skills are still quite low. I was able to read a good book on
the plane on the way out here because I had it on tape. My spelling is
very poor, and my writing is still very slow and tedious. I use a word pro-
cessor if I am to do any writing. But my listening and talking skills are
quite good, so I have ended up in a field like psychiatry, versus surgery.
Likewise, these children will learn how to build on their strengths and
compensate for their weaknesses. Some learning disabilities can be com-
pensated for, after which they no longer present major difficulties. Most
of the problems, however, will remain to be dealt with in some way.
The Role of the Family in Helping the Child or Adolescent with ID 23
Question: What about social problems my child has with teachers and
with other students?
Dr. Silver: One of the social problems children with learning disabili-
ties have is that they do not read social cues. We don't know if that is a
perceptual problem. They do not read that look on your face, or your
body language correctly that says, "Hey, you are going too far, you are
annoying me and other people." Most children by the age of two, when
they are playing outside, know by your tone of voice that they had better
come in this time when you call, or they will get into trouble. Most chil-
dren by the age of three know by your body language when you come
home from work that they can be a pest, or that they should leave you
alone. Children with learning disabilities don't know the meaning of
these cues. They just blunder into social errors. We can teach them how
to read social cues. We teach it through social skills training, and we
teach it much as we do reading. We break reading down into steps, and
then we put it back together again. We do the same thing when teaching
social skills and the interpretation of social cues.
I am teaching social skills to some nine year-olds now. Last week, we
worked on how you ask someone what time it is. This sounds very ob-
vious. However, when you are on the phone, and the child is asking you
what time it is, he or she is exhibiting this problem. In the training session,
we broke "asking for the time" down into steps. Step number one was,
"How do you know who may be able to tell you?" (You look to see if they
have a watch on their wrist.) Step number two was, "You walk up to
them." Step number three was, "You say, 'Excuse me." Step number four
was to ask, "Can you tell me what time it is?" Step number five was to say,
"Thank you." As the children role-played those skills, they began to un-
derstand. You have to teach these skills. Sometimes you have to teach
them through exercise intended to help them find out what different
kinds of facial expressions mean, what various kinds of voices mean, and
why some people get irritated when you do not read their non-verbal
cues accurately.
Question: Could you talk about diagnosis. I have a child who is a bor-
derline LD child. But it is clear that the teachers feel she has definite prob-
lems, and this is impacting upon our family.
Dr. Silver: I will stick with learning disabilities as a generic term, rather
than dyslexia, which is one aspect of learning disabilities. There is a dif-
ference between having a learning disability and being eligible for ser-
vices. Having a learning disability means that there is evidence that your
child is learning differently in certain areas. The way you sort that out is to
24 Larry Silver
use one or more of three sets of tests. The first test is an intellectual as-
sessment. This doesn't have to be an lQ test, but you need to know what
your son's or daughter's intellectual potential is and whether they are
overachieving or underachieving. Also, you should look at various mea-
sures of intelligence and look for any consistencies. Scores I saw yester-
day included a verbal score of 1 48 and a performance score of 96, a
tremendous difference. The second test involves some sort of achieve-
ment test. The achievement test gives a feeling for the discrepancies be-
tween performance and potentials. If there is enough of a discrepancy, a
third set of test may be used that specifically recognize and diagnose
learning disabilities. The most popular test is the Woodcock-Johnson,
but there are many others around.
These three sets of tests, a psycho-educational battery, will give you a
diagnosis. The school system will go one step further. Under Federal law,
there are discrepancy formulas that tell if the child falls far enough be-
hind to qualify for services. Depending on the budget and how many
children they are trying to service, the school district may change the
equation to decrease numbers coming into the system or to increase
children coming out of the system. School district personnel might sit
down with you and say, "Yes, I agree that your child has a learning dis-
ability, and I agree with all these scores; but he or she is not two years
behind in a skill area. Therefore, he or she is not eligible for services. Or,
they may agree with you that your child has an IQ of 1 40, so getting aver-
age grades is underachieving of failing. However, they may not pay atten-
tion to the fact that you are doing two to three hours of homework per
night with your child. What you are doing is teaching your youngster and
doing the work for him or her. The only way for your child to be eligible
for services is for you to stop helping, to pull the rug out from under him
or her, and to permit your child to fail. Then, school personnel will say,
"Yes," and extend help by permitting him or her to obtain services for
learning disabled children. You may decide not to do this, as it would not
be fair to your child.
The definition of a learning disability is reasonably clear, the tests
needed to make the diagnosis are reasonably clear, but school systems
will use different scores and formulas and will debate with you when de-
ciding whether or not your child needs and wiH receive services. To ex-
pand that answer and to make it specific to your child, you will need to sit
down with some staff here at Landmark and go over the issues.
Question: My child startles easily, and I want to know whether this is
indicative of my problem.
The Role of the Family in Helping the Child or Adolescent with ID 25
Dr. Silver: Part of the problem with being fifteen is that one does not
like people to be different. The other problem is that one does not under-
stand the concept of "empathy"; one doesn't know how other people
feel. You have to make an effort to have him or her stop the abusive be-
havior and to understand that other people's feelings are hurt by the
abuse. However, if this advice fails, at some point you may have to say,
"No more. Every time I hear you verbally abusing your brother or sister,
you will spend three hours in your room. I am tired of explaining and be-
ing reasonable. I can't allow you to hinder your brother or sister's posi-
tive growth and development, so you must stop abusing and teasing
them or suffer the penalties I have outlined."
LECTURE 2
CURRENT TRENDS IN
DYSLEXIA RESEARCH
"Anyone can pursue their goals with hard work and dedication,
no matter what hurdles stand in the way.'
28 Frank Manis
appear to agree that whatever the genetic basis for the disorder, its final
common pathway, at the level of behavior, is a deficit in phonological
coding of spoken and written language. I will have more to say about
phonological coding shortly.
Another interesting program of research that has emerged within the
last ten years has been based upon autopsy studies involving five male
and two female patients with clear diagnoses of dyslexia. When stained
sections of their brains were viewed microscopically at Harvard in Albert
Galaburda's laboratory, it was found that all five males had common
types of anatomical abnormalities that involved errors in the develop-
ment and migration of neurons during the prenatal period. These neu-
rons were found in improper numbers, and improper arrangements,
particularly in language areas of the brain. Only one of the two female
brains had these focal microscopic abnormalities involving neuron
migration. However, both females and one male showed evidence of
scarring of the cortex due to brain injury occurring some time prior to
age two. In none of the seven cases was there clear documentation of
trauma to the brain at birth or during early childhood. Galaburda also
found that the language areas of the left and right hemisphere were of
the same size. This symmetry occurs in only about twenty percent of
non-dyslexic people's brains. Galaburda theorizes that the neurological
basis for dyslexia consists of two anatomical traits: early cortical damage
and lack of the normal asymmetry in the language regions of the brain.
He speculated recently that the problem in dyslexia stems from a failure
by the brain to eliminate the excessive numbers of neurons that are nor-
mally produced during the prenatal period. This results in a deviant "neu-
ral architecture" (patterns of connections among neurons). The deviant
neural architecture underlies the unique pattern of language difficulties
seen in dyslexics. The source of the anatomical abnormalities is unclear
at present, but may be related to improper genetic instructions for both
brain and immune system development (see Galaburda, 1989 for a good
discussion of this).
As a result of these and of behavioral studies, dyslexia is no longer
seen as a specific kind of learning disability involving reading and spell-
ing. It is now coming to be viewed as a language problem with perhaps
several aspects. Researchers are now concerning themselves with the na-
ture of these language problems. Their work has implications for early
diagnosis of dyslexia, remediation, and predictions about later develop-
me nt.
30 Frank Manis
red, fed, bed). This task involves separating words into the initial conso-
nant (called the onset) and the remaining syllable (called the rime). Bry-
ant and Bradley (1985) showed that children who were poor at this task
at age four and five were more likely to become poor readers at age 7 or
8. Studies of adults with a history of dyslexia reveal continuing problems
in dealing with phonemes. One way we have demonstrated this in our
work is to ask people to remove a phoneme from a word and pronounce
what is left. We use nonsense words to prevent them from solving it by
spelling. For example, how would sparf sound without the p sound? Sarf
is the correct answer. We have used this type of deletion test with indi-
viduals from grades two through ten, and the results reveal problems
among dyslexics at every age (Manis, Szeszulski, Holt and Graves, 1 990;
Szeszulski and Manis, 1990). Bruck (1992) found that young adults with
a history of dyslexia often functioned at a third or fourth grade level on
this task. Bryant and Bradley have an excellent book summarizing their
early work (1985). They argue that problems in analyzing phonemes
makes it difficult for dyslexic children to learn to decode printed word., If
you are not aware that sun, sea, and sock share an initial sound, and rag
does not fit in the series, it will be difficult for you to learn a rule that says
the letter s goes with the sound s.
Samuel Orton (1937) and generations of his followers in the educa-
tional realm knew that dyslexic children have difficulty learning to de-
code printed letters to sounds. A variety of structured programs have
been devised to teach them "phonics" rules with some success. What
Bradley and Bryant have shown is that direct instruction in phonemic
analysis has an indirect effect on decoding. For example, they taught
children to separate words into phonemes using pictures and found that
their reading scores improved despite the fact that no direct instruction
in reading was given. By far the best results were obtained when pho-
neme analysis instruction was combined with phonics training by using
plastic letters that could be moved around to track the movements of
phonemes (e.g., note how s moves in sit, nest, and hits (see Bryant and
Bradley, 1985). A recent study by Hatcher, Hulme and Ellis (1994) con-
firms that a combination of phonemic awareness training and decoding
training works better than either alone.
As we learn more about phonological problems, we are beginning to
theorize about various sub-problems of dyslexia, and how they might be
connected to one another. Many researchers are now claiming that the
phonological difficulty is the core of dyslexia. One of the most interest-
ing studies along this line is by Olson and his colleagues at Colorado (01-
32 Frank Manis
son, Wise, Conners and Rack, 1990), in which they obtained data from a
large group of twins, at least one of whom was dyslexic. They tried to
measure phonological skill using games, such as Pig Latin, which re-
quired children to move phonemes to the ends of words, and tests of the
ability to decode nonsense words. Nonsense words cannot be read by
sight, so the child must apply his/her knowledge of phonics (spelling-to-
sound correspondence rules).
Olson and colleagues also created tasks which required the children
to be sensitive to spellings (they called these orthographic tasks). They
asked them, for example, to decide which of two similar spellings was
the correct spelling of a word (e.g. rane vs. rain; dreem vs. dream). Olson
found that the phonological tasks had strong genetic components. That
is, if one member of a pair of identical twins was low in that task, then the
other twin was likely to be high. The orthographic tasks were about
equally related to genetics and to the individual child's exposure to read-
ing materials.
Does this mean that dyslexics have an inherited phonological proces-
sing problem that cannot be overcome? Does it mean they must bypass
phonological processing of printed words and try to memorize them as
individual spelling patterns? That is not the way I read Olson's findings.
Simply because phonological skill is related to genetics does not mean
phonological skill cannot be taught. After all, the amount of muscle mass
you have has a strong genetic base, but you can increase your muscle
mass with certain types of exercises. In the same way, good phonics
instruction can be expected to increase phonological skill. However,
holding curriculum constant, children with high phonological skill are
likely to advance faster. I am currently doing research on the orthograph-
ic component (the memorized spellings of individual words) at Land-
mark. Our initial findings are that over time, dyslexics' progress in
reading and spelling is related to both increases in phonological decod-
ing and memorized sight words. This suggests that you cannot progress
without both components of word reading (Manis, Custodio and Szes-
zulski, 1993).
LONGITUDINAL STUDIES
More and more often these days we are seeing longitudinal studies of dys-
lexia. This is good news because longitudinal studies can shed light on the
early forms that dyslexia takes as well as the long-term outcome. I will dis-
cuss studies that follow dyslexic children into adolescence and adulthood
Current Trends in Dyslexia Research 33
gence Scale. Hence, dyslexics over time may show significant declines in
IQ. This means that IQ scores are not falsely low, they are really low. We
need to realize that IQ tests are measures of attained knowledge or skill
that include both genetic and environmental influences. I would advo-
cate giving tests that measure many aspects of intelligence, such as the
Woodcock Johnson Revised test (Woodcock and Johnson, 1989). This
would give a more complete picture of the dyslexic individual's strengths
and weaknesses.
Question: Can dyslexia cause mathematics difficulties? How are the
two related?
Dr. Manis: That is a little tricky to describe, because studies show that
about half of children with severe reading problems have varying de-
grees of math problems. It is tempting to say that there is a common
cause, but I suspect there are many other factors that contribute to math
difficulties. One of the best studies which has attempted to break this
apart was done by Bryant and Bradley (1985) in England. As I mentioned
earlier, they identified the phonological factor by playing a little game, in
which you have to pick the odd word out, such as sun, see, sock and rag,
and then were asked to select out which does not fit. The right answer is
rag, because the others start with as." They also did that with rhymes, ask-
ing the children to select out rhyming words. What they found was that
this type of task predicted later reading difficulties, but not arithmetic
computation difficulties. This suggests to me that difficulties in math
computation are related to somewhat different factors than difficulties in
reading. However, reading skill is bound to be important when doing
word problems, or generally when reading math texts. However, arith-
metic skills, as well as geometric and algebraic concepts are probably
largely independent of reading problems. So, if you have a child with
both reading and math problems, I suspect that there is more than one
underlying difficulty. The math difficulties might be related to visual per-
ceptual difficulties and to visualization of shapes and how well you ro-
tate them, as is seen in some studies (e.g., Strang and Rourke, 1985). It
might be related to memory difficulties involving the storing of informa-
tion of all types, not just phonetic information. Problems with attention
or concentration can cause both math and reading problems, of course.
Beyond that, causes of math problems have not been well studied. We
know about one-tenth as much about mathematics difficulties as we do
about reading difficulties.
Question: Can mathematics difficulties be caused by visual proces-
Current Trends in Dyslexia Research 39
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Pennington, B.F. (1989). Using genetics to understand dyslexia. Annals of Dyslexia, 39,81—93.
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nificance of specific arithmetical impairment in childhood. In B.F. Rourke (Ed.), Neurop-
sychology of Learning Disabilities. New York: Guillord.
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ences in literacy. Reading Research Quarterly, 21, 360—406.
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Revised. Allen, TX: DLM Teaching Resources.
LECTURE 3
UNDERSTANDING AND
HELPING LEARNING
DISABLED STUDENTS
TO SURVIVE AND
THRIVE IN SOCIETY
Thank you all for coming out tonight. I think this turnout is a tribute to par-
ents who have come out in the evening after a hard day's work. I am al-
ways impressed with parents who attempt to learn more about their
children, and about how to interact with them more effectively.
I would like to thank you all for being here, and I will try to provide you
with something of value in return. We will discuss learning disabilities,
how they extend themselves into life disabilities, and how parents and
others can help. To get us on the same wavelength, I will first describe
how things are with a learning disabled child.
A few minutes ago, a lady asked me if any of my five children had been
learning disabled youngsters. This brought back some of the scenes that
happened with one of our children during the early grades. One of our
youngsters, now a thriving businessman, was dysgraphic as a child. That
is, he had difficulty with written expression. His dysgraphia was diag-
nosed through testing. However, some twenty three years ago, dysgra-
phia was not easily recognized, nor well known (and, except among
experts, remains relatively unrecognized and undiagnosed today).
His mother and I would go to school and tell his teachers that he was
not trying to be sloppy. We explained that he had coordination problems
when writing.
Our son was an excellent reader, and was, and is, very bright. He just
Understanding and Helping to Survive in Society 45
could not express himself clearly in written form. We finally enrolled him
at the University of Southern California, Reading School. His reading,
however, was not the issue. It was just that at this school, they were will-
ing to reduce the quantity of written work expected of him. They tried to
understand the boy and the problem.
I do, then, have a special slant into some of the problems learning dis-
abled children face, and their families must face. A learning disabled
child warps normal parenting. Often in the family there is a sense of
grieving, feelings that something is wrong emerge, and questions are
raised about whose fault it is. The family seems to have flawed goods and
there is no Nordstroms to take the product back to.
Such a child presents innumerable problems that must be constantly
worked with and assisted. Our family's efforts seemed to have paid off.
As I mentioned, our son is now a successful, educated young man. All of
the effort we put forth has been worthwhile.
We first need some understanding of how the learning process works be-
fore we can understand learning disabilities. Initially there is input. This
may consist of visual, auditory, kinesthetic-tactile, or proprioceptive input.
Proprioceptive input or "muscle memory" is important in many ways.
For example, when learning to spell, we know if a word is written five
times (or more) it is more likely to be retained than if it is not written in
this way. It is within the visual-perceptual aspects of learnings, however,
where things can go very wrong for a learning disabled child. Visual sym-
bols seem to twist. The learning disabled child may actually see words or
letters backwards. Letters may be inverted.
Interpreting auditory input may also pose problems. For example, au-
ditory figure-ground problems may arise. When you get to my age, and
you are at a noisy restaurant, you often do not know what anyone is say-
ing .... you say what? what?, get me to a booth please! It is not that your
hearing is bad, it is just that you are are not discriminating sounds as well
as you once did. Many learning disabled children have problems focus-
ing upon important and relevant sounds, while eliminating extraneous
sounds in their environment. Other auditory problems faced by learning
disabled children include auditory lag, and poor auditory memory. In
short, information which does not get into the central processing system
clearly and efficiently, through both auditory and visual modalities, will
not be understood. Thus, the second stage of learning may not take
46 James Gardner
place in an efficient manner. This I will call "The Inner Box." Within "The
Inner Box" is the processing, integration, and storing of information tak-
ing place. After the signals have come in, through one or more sense mo-
dalities, the information must be processed, integrated and stored. These
processed involve the decoding of both visual and verbal information,
the sequencing and synthesizing of information and its analysis.
During the third phase of learning, the person must do something with
the information. Generally this involves either verbal or written output.
Information comes back out in those two major expressive elements. A
problem of oral expression is termed aphasia. If there is a written prob-
lem it is called dysgraphia. Various perceptual or learning problems may
be related in some underlying way. A youngster may, and often does,
have more than one kind of problem, with input, with integration or syn-
thesis, or with output. Sometimes it is difficult to be sure of the problem.
Thus precise diagnosis (through testing and observation) is critical.
Diagnosis of the kind of learning disability which any child can mani-
fest is the core of successful planning for the remediation of the disabil-
ity. We now have many useful diagnostic tools, such as the Wechsler
Intelligence Scale for Children-Revised (WISC), and The Woodcock-
Johnson Test of Cognitive Abilities, Revised. But it is not the test that we
find most useful. An l.Q. test is only a rough screening device. If there is a
problem with limited intelligence, then a child might not be appropriate-
ly placed in a school or class for learning disabilities. When evaluating
learning disabled youngsters, it is often the sub-test analyses which are
most useful. Inspecting the sub-test pattern, for example, we may find
that that child has a sequencing problem, or that a child has problems
with part-whole relationships. A part-whole relationship from an aca-
demic standpoint reflects problems with how well clumps of information
go together, and form coherent wholes. Sorting out the events that hap-
pened at the Battle of Gettysburg, all fit together in sequence to make a
coherent whole, is an example of this process. Thus a child with a whole-
part relationship problem may understand different aspects of clumps of
information, but still may not be able to string them together meaningful-
ly as a 'whole' piece. Through effective diagnostic work we may, then, be
able to identify such problems, and spot other problems involving input,
integration processing and output. Such difficulties may cause problems
not only academically, but also on the job, and even in sports.
If there are academic problems one attempts to locate a top-flight
educational therapist, or in the extreme, enroll your child in a specialized
Understanding and Helping to Survive in Society 47
school such as Landmark West. With a precise initial diagnosis one is at-
tempting to determine just what is wrong and what should done.
PEER RELATIONSHIPS
The learning disabled child may also have problems with peer relation-
ships. Here a score from a sub-test of the Wechsler may be helpful. If the
child scores low on the sub-test called Picture Completion, he will tend to
evidence difficulties when trying to pick up subtle cues, both academical-
ly and socially. Such children often miss a key part of the instructions given
by the teacher, or remain oblivious to subtle social cues provided by their
peers. Among peers these same children often are the ones who do not
understand the subtle joke, or what just happened, or why Janie is angry
at Betty. They miss the non-verbal cue of the raised eyebrow. They seem
to just to plow ahead, remaining socially oblivious to what psychologists
call incidental cues, and incidental learning. When these children move
through social situations they may sense that others are unhappy with
them. They may not know understand how the mood or direction of the
group changes. They seem unaware of the fact that why they are talking
about no longer fits the conversation. They are still trying to get their two-
cents worth in a topic that has been long-abandoned by the others. They
look and sound awkward, and they are. This problem invites derision di-
rected toward them, and social alienation from others. In these ways the
erosion of their self-concept begins.
SPORTS PARTICIPATION
does not know what do to. Their coordination may be intact, the drive to
succeed may be there. But they often have little notion of why and to
where all they players are running. The overall conceptual organization is
simply not there. So this kind of problem poses difficulties for kids with
this type of learning disability. Incidentally, the diagnosis of these spatial
relationships difficulties, the poor perception of subtle social cues, and
organizational difficulties can come from parents, as well as from profes-
sionals. Informally, I see these difficulties among my young patients.
When I say the elevator is to the left, as they leave my office, and every
time they walk to the right, you as a parent can make such informal diag-
noses yourselves. Your youngster may not seem to know where he or she
is half of the time.
AT WORK
On jobs, children who are having trouble often evidence problems in se-
quencing, organizing and with writing and reading. Clearly, an individual
who has trouble with reading and writing may well be expected to have
job-related difficulties. However, problems with sequencing, organizing,
and conceptualizing are of a different, though no less important nature. In
a fast-food restaurant, for example, not reacting quickly and correctly may
be disastrous. In such situations when A happens one is supposed to go to
actions, B, C, and D quickly! The employees must do things quickly. They
have to get the french fries, and the hamburger, write it all down and serve
the total meal, and fast. Managers of fast-food chains will tell you that
there are a lot of people who have trouble with that kind of processing.
Some of their employees, they state, cannot make the necessary connec-
tions fast enough, and accurately enough.
One way in which parents may help their child speed up organization and
processing is to engage in board games, including card games. With some
children we teach card games, using slow moves. We begin slowly, but
with practice we gradually speed up processing and reaction demands.
We might teach the card game Go Fish to a 4th grader who is having pro-
cessing and sequencing problems. Later Crazy Eights may be tried, and still
later, Spit. Normally one must move quickly and make discriminations rap-
idly. In Spit someone puts down the 4, and then another player must play
a 5 or a 3. With the learning disabled child you may start playing these
Understanding and Helping to Survive in Society 49
games at one-half speed, and even this may be too rapid at first. You have
to experiment to find the right starting speed, and then gradually become
faster as the child can accommodate to processing demands. Parents (or
others) may use more board games at slower speeds when dealing with
younger children who need even more time for processing and integra-
tion. Then as I have indicated, you play the games with increasing speed,
as rapidly as the child's developing skills will allow.
In a classroom if the teacher gives instructions too quickly this same
child will also fall behind, just as he or she does in the games described.
When the child falls behind in class he or she begins to manifest more
avoidance behaviors, since there is inevitable failure and frustration pres-
ent. These avoidance behaviors are strong predictors of failure, since
then the child avoids practicing the very tasks on which he or she needs
intensive work.
Thus parents need to think, not only about exotic training programs, but
also what everyday things can be helpful for a child having processing, se-
quencing, and/or other perceptual dysfunctions. In other words we need
to search for simple exercises that begin where the child is, in terms of
ability, and then later progress by placing greater demands upon the
child's processing speed, dexterity, and performance efficiency.
TUTORS
Tutors are still another tool to be employed against a young person's learn-
ing disability. Sometimes parents must be quite directive with the tutor.
Parents must sometimes tell them how to tutor and what to tutor. Since
most of us as parents cannot tutor our own children effectively, we must
go outside the family when hiring a tutor. But the other side of the coin is
that the tutor, no matter how skillful and experienced, cannot know your
child as well as you do. The tutor, to be most effective, therefore, must be
given additional information and instructions from you the parents. When
we needed a tutor for our dysgraphic son, we found a person experienced
with learning problems, though she had not dealt with dysgraphia before.
So, his mother and I working with the tutor, devised a program which was
very helpful. As our son got older, we found that the final and best help for
him was a word processor. After observing the success of our son, using
this strategy, I have recommended the use of the word processor to many
dysgraphic students, with excellent results.
50 james Gardner
PARENTS
In addition to school and tutors, parents are a third major source of help.
To be most helpful, however, parents often need to rethink their roles.
Sometimes parents are locked into traditional roles. Parents are usually
thought of as value setters, and as those who set the rules. Parents often
pattern themselves after their own parents, or whomever they think are
good parents, and try to be that kind of parent. But as I said earlier, a learn-
ing disabled child will often warp the best efforts at good parenting. What
you thought was going to work will not prove successful: And who you
thought you were, in your parental role does not always suffice when
working with a learning disabled youngster.
One way to re-conceptualize your role as a parent, of a learning dis-
abled child, is to consider yourself as a coach-interpreter type of person,
an interpreter both of life and of life situations. You can never get out of
your traditional parenting roles, those are locked in for most of us. Howev-
er, you can also assume the role of coach/interpreter. This is adouble job.
This additional parent-job is often useful because learning disabled
children are often puzzled by the world around them. They may be con-
fused about what is expected academically of them, or how they should
act with peers, or how they might perform in sports.
Not all children are not having the same problems in all areas. Howev-
er all learning disabled children will exhibit signs of confusion and/or
avoidance in some area(s). A learning disabled child is thus often a
puzzled child, a frustrated child and, too often, a defeated child. Self-es-
teem spirals downward. This in turn produces secondary emotional
problems, over and above the primary problem—the learning disability
itself.
Secondary emotional problems are often manifested differently in
learning disabled boys and girls. Girls tend to become withdrawn, quiet,
even depressed. In contrast, boys tend to act out. A learning disabled
boy would rather be thought of as bad, rather than dumb. Anger is the
cover for the shame of the learning disability.
One approach to understanding learning disabled children, particular-
ly when their behavior appears in distorted forms, is to ask the simple
questions as to whether they are either getting something or avoiding
something by exhibiting such behavior. In this way one can read" the
behavior of children by evaluating the consequences of the behaviors
manifested.
Depressed or angry acting-out behaviors may be less likely among
children whose parents are willing to function as what I have termed
Understanding and Helping to Survive in Society 51
OTHER TECHNIQUES
Walking Through
A useful technique, often used intuitively by many parents and teachers,
may be termed "walking through." "Walking through" involves first model-
ing a job, and then doing it, modeling it again and then doing it again. This
alternation of modeling and doing continues for as many learning trials as
may be necessary.
One might, for example, help a child clean up his or her room, using
the walking through technique. A personal example occurred when we
moved to our new house years ago. Our child with a learning disability
was supposed to join his brothers and sister in organizing each of their
respective rooms. However when faced with this task, he became essen-
tially non-functional. It was not that he rebelled and refused to do the
task, it was that he seemed completely puzzled by it. As all the other chil-
dren put things away, he sat in the middle of the room. He could not or-
ganize the room. He did not seem to know where to start.
Finally his mother and I recognized the problem, and asked his grand-
mother to help him. Granny went in and walked him through the job in
the nicest way. She helped him organize his shirts, socks and pants. She
moved him through the organizational maze slowly and patiently until
the job was done. The room was then organized. All books and clothes
had been put away neatly. Both she and my son were very pleased with
themselves!
This is the walking-through technique. The parental coaching persists
until some sort of criteria has been reached. Practical methods lead to
success. There is no allowance for failure. In this case our son's room was
organized. In other instances, organizational help may be needed for ev-
erything from time management, doing homework, keeping a note
book, to straightening up a school locker.
52 James Gardner
Anxiety Reduction
While consulting to the University of Southern California's Reading
School, and to other specialized schools, I began to perceive that com-
mon to all learning disordered children was much anxiety and the appear-
ance of many avoidance behaviors. Anxiety and avoidance behaviors
would be manifested depending on the task presented and upon the cir-
cumstances. The avoidance behaviors tended to be well-learned, quite au-
tomatic in their appearance, and very functional in the degree of psychic
protection they offered the child.
Since anxiety usually was paired with these avoidance behaviors and
seemed to serve to cue the appearance of such behaviors, we began to
use techniques such as movement to reduce anxiety (large muscle activ-
ity tends to inhibit anxiety). We would ask them to read as they walked
about the room. When we asked them to do this, they not only read bet-
ter but anxiety also was lowered.
Some children with learning disabilities are similar to individuals who
stutter. If you can get the stutterer to do something, such as standing on
his or her head, talking from behind masks, or singing the words, then
stuttering tends to decline. Similarly when you ask children to move away
from a desk while reading, improvement in reading is often noted. By
changing the stimulus cues (from a child crouching at the desk, in front
of a book, to the child walking around the room with the book in hand,
and teacher with arm across the child's shoulders) then anxiety is re-
duced and avoidance behaviors such as looking away, fooling around,
sharpening pencil, tend to decline.
One—Minute Counselor
Circle Back
the adult reinforces the child with a touch, a murmured word, or with a
meaningful glance.
In short the attempt is made to eliminate the old behaviors and to re-
place them with new, more positive ones. To do this, the child's initial
attempts at the positive behaviors must be reinforced by the adult. Later
the child will be reinforced by their success with academics, with social
success with peers, or while participating in sports.
Psychotherapists working with children often use the one minute
counseling framework. However, the professional often adds one more
level to the technique, that is, a more thorough interpretation of why the
child is doing the unwanted behavior in the first place.
If parents attempt to use complicated reasons for why the child is ex-
hibiting avoidance such as "it is because of a conditioned fear of failure
which interferes with effective learning!", then the parents may cause
Charlie to throw up, or at least be turned off to their words. Thus we
counsel parents to avoid voicing deeper level interpretations. Parent
should stay with explaining what they see, what they think the conse-
quences might be. Parents should not be too dire, but should rather be
immediate. The child does not relate well to being told that he or she will
not go to college if a behavior is continued.
But as Charlie's therapist, I can sit in my office with him and explore his
overt behavior as both he and I see it, and as expressed in school reports.
But in counseling I can also draw diagrams. We can practice new behav-
iors, on his part. We can practice all three parts of the brief counseling
technique, and we can also delve a bit deeper into why the behaviors
occur in the first place.
SUMMARY
A new role has been suggested for parents of learning disabled children.
The role of parent—coach interpreter of the world. In general it is a three
part role. The first job is to assess the positive or the negative aspects of
your child, acting as a diagnostician. Then you should come up with a
plan. What are the goals? How can you help? Who else should be brought
into the plan?
Next ask yourself what techniques are available, and how might these
be employed to teach the goals you have set? Most parents (and others)
tend to be OK with the first two aspects, but fall somewhat short on
deriving techniques. But techniques are fairly plentiful if some imagina-
tion is used. These can range from using different kinds of sports to em-
Understanding and Helping to Survive in Society 55
ploying board games, and can include the use of movies and music. Your
child can be assisted in developing a full repertoire of social behaviors
and task oriented behaviors, and will not have to fall back to using avoid-
ance or other negative behaviors.
Parents may model many forms of appropriate behavior, using the
walk through technique I have described. This can include using tasks at
home, such as how to reorganize dishes when placing them in the dish-
washer, as well as how to clear out and reorganize a garage, notebook or
desk. Thus an emphasis should be placed upon organization, on how to
get from here to there easily and successfully. There is also an emphasis
upon helping your child to stop shooting themselves in the foot, with
maladroit classroom and social behaviors.
The various techniques I have described are seen as ways of empower-
ing and enabling parents.
Most of us are at our worst when we can think of nothing positive to
do. As parents, we then may yell, shout and punish, but that doesn't offer
our child much on the positive and constructive side of things.
I have known people who seemed to feel that if they just talk louder to
a person who does not understand English, the person will finally "get it"
in some manner. The same loud, useless talking may occur between a
parent and child. Parents who have no useful techniques to use often
tend to just become louder and/or more punitive. However, if parents
reconceptualize their roles as parents, to the broader role of coach—in-
terpreter—trainer—teacher-model, and then bring into play some of the
techniques discussed (and others which you will create) your child will
be the direct beneficiary.
Using these techniques should minimize your anger, and help you to
think of teaching and learning trials. As you and your child go through a
procedure one more time, and then again, low and behold things will
begin to stick, and you will begin to see positive behavioral changes in
yourself and your child.
Thank you.
Question: What kinds of techniques can you use to enhance the sub-
tie nuances that children don't have? Those nuances with peers relations
you have described, and things of that sort?
Dr. Gardner: This type of thing may sound more difficult than it actual-
ly is. What is a subtle nuance? What is a subtle nuance? Basically, it is a
56 James Gardner
However, you might sit down together in a restaurant, which by its nature
will likely promote civilized and low-key behavior, and become able to
talk about the problem.
You might say "look I think I have been doing something wrong here. I
believe I have been overly critical over the years. I did not mean to hurt
you. But, perhaps I have made you overly sensitive to suggestions, and
you read suggestions as criticism. I am just saying that I feel I have got
something to offer, but I realize that my way is not the only way or even
necessarily the best way. But let's try to work it out together." In this way,
the teen is brought into the problem-solving and communication pro-
cess.
However, nothing works all the time. You have to be prepared for that.
We can formulate the best-laid plans for assisting a young person, and
just have them simply not work. In such a case it's back to the drawing
board and another attempt is made to figure it out all again until you
have something that really works.
As parents, you keep trying. There's no alternative.
Question: As an educator what should I do about a child missing the
social clues you talked about?
Answer: Speaking generally if the student seriously misreads another
student's statement, or intent or something like that, I think it would be
appropriate for you to say something like. . . "1 think you misunderstood
what Mary said" . . . and then let them work out their communication
again.
Teacher response: What if I really don't know? What if it is about the
war and I really don't know what is going to happen? I really believe it is
expressing their own fear.
Dr. Gardner: These are really psychological issues as opposed to
avoidance behaviors. When I find out they are afraid, or that it is a ter-
rible misconception . . . like my mother says "this is the beginning of
World War Ill!" Then it is appropriate to correct the balance. You might
perhaps note that the Gulf Crisis is really not the beginning of World War
Ill, although some people might think so. I would try not to undermine
the parent, but there is a need for a balancing statement to the child. We
adults are often the reality much of the time for children. We must feed
them back a balanced reality. Children live in a magical world for many
years, a world that is half logic and half fantasy. We know that the sense
of reality and logic for children is different than that of adults. The
change from children's thinking to more adult thinking begins to take
place around puberty. Nevertheless, no one of us is a fully logical crea-
58 James Gardner
ture. But our children don't become logical by never learning more
about reality and logic.
Question: How did you explain your son's learning disability to a com-
plete stranger who knows nothing about learning disabilities, knowing
how competitive parents can be?
Dr. Gardner: Regarding our own son, I explained it straight forwardly.
I could not help if they (others) didn't understand every subtle nuance of
learning disabilities. I thus explained that "Our son has a problem in ex-
pressive language, he has a problem in putting words out his fingers.
Though there is no problem in language, he speaks, well, but his hand-
writing is poor."
If the stranger asks. . . "Is it brain damage? I would respond as follows.
"I don't think of it as brain damage, although it used to be considered
brain damage, I consider it more a deficit or deficiency in the hard wiring
of the brain. It is like a TV set. In one little area all the wiring has not
grown it, so we are just helping the wiring grow in."
If a stranger asked "What is caused your son's problem,?" I would an-
swer "Nobody knows for sure. About one-third of children's learning dis-
abilities are from birth defects, another third (or more) are caused by
genetic factors, and the rest are caused by unknown factors. By the way,
usually a stranger who asks this many questions is really seeking informa-
tion about one or his or her own children.
Question: I have problems when placing my son in a new school,
when I change schools he has no friends.
Dr. Gardner: This is not just a problem with learning disabled children.
There are a number of children who have trouble making friends. Some
psychologists think that if you haven't mastered "friend making" abilities
by five to seven years, he or she will have trouble down the line. We see a
lot of children who are social isolates, or even social misfits. Parents have
worked very hard with such children. You have to choose their schools,
camps, and other groups they might enter, with care. Pay special atten-
tion to the qualities and skills of leaders.
I have no glib or simple answers for this problem. Look for areas of
common interest. Athletics is great, of course. But forcing a child with
low skills into sports may do more harm than good. Art programs,
Scouts, Computer Programs and others all can be useful. But there are
not easy answers here. If possible try to place your child in situations in
which there are more, rather than fewer, other children. (A big public
school versus a small private school, a housing tract versus an isolated
Understanding and Helping to Survive in Society 59
NOTE
SOCIAL AND
EMOTI ONAL
DIMENSIONS OF
LEARNING DISABILITIES
%Of %Of
Child School % In
Years Years Popu- Enroll- Main
Category 1976—77 1989-90 Difference lation ment Stream
Learning
Disabled 782,713 2,064,892 160% Gain 3.5% 4.8% 78%
Speech
Impaired 1.1 71,378 976,186 18% Loss 1.7% 2.4% 95%
Mentally
Retarded 820,290 566,150 38% Loss 1.0% 1.2% 28%
Emotionally
Disturbed 245,481 382,159 38% Gain 0.7% 0.9% 44%
Percents rounded to the nearest Hyndreth. Total pupils served are 4.3 million, or approxi-
mately 9.8 percent.
Source: Thirteenth Annual Report to Congress on Idea (1991).
together and is now almost five percent of the total public school enroll-
ment.
The next category, "Speech and Language Handicaps," has suffered a
slight decline in numbers over the years. People are not too concerned
about that because they feel that such decline is a result of increasing
recognition of the language basis of learning disabilities. Thus the chil-
dren who might ordinarily be diagnosed as having a speech and lan-
guage handicap, if it impacts their achievement, are now probably
placed in the "Learning Disability" category. They do indeed have learn-
ing disabilities, but, before, some may have been placed in the "Speech
and Language Handicap" category in most states.
The other category, "Mental Retardation," as you can see, has de-
clined considerably. What is interesting about this category is that many
people do not think that those kids are being served in the "Learning Dis-
ability" category any more. They might have been at the outset. To diag-
nose a kid with learning disabilities in the public schools, we use a
"Learning Disability Discrepancy Formula," that takes into account how
significantly behind mental age or lQ a child's academic achievement is.
There has to be a significant discrepancy between IQ and academic
achievement.
It is pretty clear from the table that a lot of kids now that are being
identified in that category of "Mental Retardation" are probably kids with
more severe mental retardation who do not have an lQ high enough to
be diagnosed as "Learning Disabled." Those with an IQ too low to be
diagnosed as having a learning disability, but too high to be diagnosed as
having mental retardation, unfortunately, are probably not being served.
I am only being partly facetious when I note that if we wait long enough,
they may end up in the next category, "Serious Emotional Disturbance
(SED)." That category is for children who have serious emotional/behav-
ioral problems as a primary handicapping condition. As in all these cate-
gories, children with SED supposedly do not have other handicapping
conditions. They have problems in school because they have anxiety dis-
orders, schizophrenia, psychosis, attention deficit disorders, conduct dis-
orders or a variety of other psychiatric or mental health diagnoses. You
can see that this category is fairly small, composed of fewer than one
percent of all school age kids.
If you think that only one percent of school age children have emo-
tional/behavioral disorders severe enough to impact their educational
performance, then "Have we got a bridge to sell you." Most people think
that, at a minimum there should be probably two percent of kids in that
66 Steven Forness
Currently % CA % In
Served in School Main-
Category U.S. California California Enroll stream
Learning
Disabled 160% Gain 235% Gain 246,619 4.7% 71%
Speech
Impaired 18% Loss 14% Loss 94,355 1.8% 94%
Mentally
Retarded 38% Loss 38% Loss 24,355 0.4% 5%
Emotionally
Disturbed 38% Gain 45% Loss 12,032 0.2% 10%
category. Many people also feel that in the "Learning Disability" catego-
ry, some kids have emotional/behavioral problems that may have af-
fected their educational performance. They are thus placed in the
learning disabled category, even though they are not what we think of as
having a learning disability.
The next table is even more problematic in that it gives us comparable
figures for the state of California (see Table 2). California has an even
greater growth in the LD category than the rest of the nation. This state is
now in the bottom forty percent of all states in terms of proportion of
kids in the "Learning Disability" category. In the "Speech and Language"
category we have declined considerably and have substantially declined
in the category of "Mental Retardation," which is at four tenths of one
percent of the school enrollment. In the category of "Serious Emotional
Disturbance," we are identifying only two tenths of one percent of
school enrollment in this category of special education in California.
When I say "in special education," this includes mainstreamed kids who
are receiving special education services in a regular class or resource
room. This is not just kids in special schools, special classes and the like.
Since only two tenths of one percent of kids are getting served in the SED
category, we probably also have a fair number of kids with emotional/be-
Social and Emotional Dimensions of Learning Disabilities 67
Limiting Conditions
Classification of disorders (all must be met)
The reason I mention these things to you is to give you a sense of some
of the imprecision we have in defining and diagnosing learning disabili-
ties in public schools. In effect, we do not often know, particularly in
California public schools, what we have when we have a child with a
diagnosis of learning disability. There is a good chance a lot of other han-
dicapping conditions are associated with that diagnosis, some of which
you would not find in the learning disability category in other states.
Now having said that, let us look at some of the criteria used to diag-
nose "Serious Emotional Disturbance" in the public schools (Table 4).
These criteria are pretty much the same in California as they are in feder-
al law. They are presented here in outline form. To qualify as having "Seri-
ous Emotional Disturbance" in the public schools, a child has to have a
problem in one of the five areas shown on the left-hand side of the table.
The full wording of the first category is: "An inability to learn which can-
not be explained by intellectual, sensory or health factors." Doesn't that
sound like a Reader's Digest version of a learning disability? It is. If I had
to come up with a learning disability definition in a dozen words or so,
that is probably the definition I would use. This is, however, the very first
criterion used to qualify a child as eligible for special education in the
public schools under the category of "S ED."
Social and Emotional Dimensions of Learning Disabilities 69
ADHD
with
Variable ADHD CD/ODD
NumberofSs 27 28
Percentage of Minority Ss 11.1% 10.7%
Age (years) 9.6 (1.2) 9.3 (1.1)
WISC-R: Full Scale IQ 106.7 (13.3) 105.8 (11.1)
Verbal IQ 106.7 (13.9) 103.7 (11.7)
Performance IQ 105.6 (13.1) 108.7 (13.1)
Attention Cluster 8.9 (2.6) 8.9 (2.4)
Verbal Cluster 11.2 (2.7) 10.9 (2.2)
Perceptual cluster 11.1 (1.4) 11.6 (2.7)
Reading Recognition Screening Test 5.1 (2.4) 4.6 (2.1)
(grade level)
Reading Comprehension Screening Test 5.2 (2.8) 4.6 (3.3)
(grade level)
Reading Diagnostic Test (grade level) 4.8 (2.8) 3.8 (1.7)
Math Diagnostic Test (grade level) 4.9 (2.2) 5.0 (1.7)
Number meeting modified LD discrepancy 4 4
formula of one standard deviation
who was one of the first, along with our group, to use a learning disability
discrepancy formula to properly diagnose learning disabilities.
There is thus an overlap between learning disabilities and attention
deficit hyperactivity disorder that is really much smaller than we used to
think. Probably only ten to twenty percent of all kids who have attention
deficit disorders have a learning disability when properly diagnosed. This
is still a large number of children, because between two and five percent
of the population have "Attention Deficit Hyperactivity Disorder." If we
look at ten percent of those, we still have a fairly large percentage of kids
who would be in this situation.
Let us look at another psychiatric diagnosis that is highly associated
with learning disabilities, and that is the diagnosis of conduct disorders
itself. We studied sixty-seven children diagnosed as having "conduct dis-
order" which, as I said before, is a cluster of severe symptoms involving
aggression, rule breaking, lying, stealing and the like (Forness, Kavale, &
Lopez, 1992). Their difficulties are usually diagnosed as conduct disor-
ders only if they seem to be a relatively stable and enduring set of behav-
iors in a child.
In our study, we found four types of kids with conduct disorders (see
Table 6). In one group, fifteen percent had only conduct disorders with
no other problems. In another group, about twenty-seven percent had
conduct disorders, but their primary diagnosis actually turned out to be
another psychiatric disorder such as "attention deficit disorder," "anxiety
disorder" or "depression." Although they had "conduct disorder" symp-
toms and could be diagnosed as having a conduct disorder, that diagno-
sis often masked an underlying problem such as "depression," "anxiety
disorder" or, in some cases, even "childhood schizophrenia."
Almost a third (3 1%) had more mild forms of "conduct disorder" in
which they were oppositional to adults, did not obey rules and gave
74 Steven Fomess
adults all sorts of problems, but the behavior was not severe enough to
qualify as having a conduct disorder in the formal sense. They were diag-
nosed as having either "adjustment disorder" or what psychiatrists call
"oppositional/defiant disorder."
The last group (2 7%) had a conduct disorder but also qualified as hav-
ing a learning disability. They apparently would have had a learning dis-
ability even if they did not have the conduct disorder. In essence, there
were two disorders in the same child, and it was very clear after psycho-
educational testing that these kids did indeed qualify as learning dis-
abled in California, but in many other states would not qualify because
they had a primary emotional disturbance. It turned out that nearly nine-
ty percent of the kids in this last group got special education. Most of
them received it through the "learning disability" category, not under the
category of "emotional disturbance." Children in the other three groups
had a relatively slim chance of getting into special education, particularly
in California, because so few kids ever make it into that category of "seri-
ous emotional disturbance."
Now let me turn to what we consider a more internalizing psychiatric
disorder, depression. "Internalizing" is a term that psychiatrists use to sig-
nify a disorder in which the symptoms are within the person, as opposed
to "externalizing," in which the symptoms are directed to other persons.
In "depression" there are four clusters of symptoms: The depressed
mood, a withdrawal or inability to enjoy things, physical symptoms such
as sleep disorders or loss of energy, cognitive symptoms around self-es-
teem or preoccupation with morbid thoughts. A child usually has to have
symptoms in nearly all of these areas to qualify as having a clinical diag-
nosis of depression. We looked at a group of 111 kids who met all these
symptoms of depression and were being diagnosed or treated in our out-
patient department (Forness, 1988; Forness & Sinclair, 1 990). What we
found was relatively interesting (see Table 7). We found that forty two
percent had only a diagnosis of "depression" and nothing else. We found
probably another thirty four percent who actually had a diagnosis of "de-
pression" but also had another diagnosis, such as conduct disorders, anx-
iety disorders and sometimes even attention deficit disorders.
The last group we studied had something in common with these other
two groups. They were diagnosed as depressed and often diagnosed as
having acting out disorders, but they also had learning disabilities. It
looked as if they would indeed have had a learning disability even if they
were not diagnosed as depressed. This is consistent with other articles
we have reviewed that suggest that kids with depression may be at risk
Social and Emotional Dimensions of Learning Disabilities 75
Depressed or
Dysthymic (only) 47 (42%) 10.2 (2.3) 67% 41% 21%
Depressed or
Dysthymic
(co-morbid) 38 (34%) 10.9 (2.8) 68% 24% 44%
Depressed or
Dysthymic
(with LD) 26 (23%) 11.4 (2.7) 62% 31% 85%
for learning disabilities (Forness, 1988; Maag & Forness, 1991). These
are more than just kids who are are demoralized, sad and frustrated be-
cause they have learning disabilities. These kids have serious symptoms
that are severe enough to meet criteria for a clinical diagnosis of depres-
sion.
You can thus see that psychiatric diagnoses may place a child at risk
for having learning disabilities. Let us look now at the reverse. Do learn-
ing disabilities put one at risk for having a psychiatric diagnosis? That may
actually be the case. It makes sense to a lot of teachers of kids with learn-
ing disabilities who observe emotional/behavioral problems in their kids.
It also makes sense that teachers of kids with serious emotional distur-
bances observe that many of their kids have learning disabilities.
Table 8 summarizes literature on more than a dozen different studies
on subtypes of kids with learning disabilities. In these studies, a group of
kids with learning disabilities were classified by their underlying cogni-
tive processing disorders that we referred to earlier, and these have been
reviewed by Weller and Strawser (1987).
They summarized all of these studies that had been done up to that
date. They also looked at the different subtypes of learning disabilities,
not only in terms of the cognitive underlying processing problems that
these kids have, but also at the social or emotional problems these kids
have.
There are five subtypes that have been found to exist consistently
across all of these studies. The first subtype is "non-verbal organization
disorders," what we ordinarily term "perceptual motor problems." These
kids had 'earning disabilities that seemed to be the result of underlying
76 Steven Forness
Type Problems % of LD
tions, they are often distracted by a lot of other things going on. They can
not always tell what they are supposed to be looking at or paying atten-
tion to in social situations. They ignore some of the other important stim-
uli.
It is also clear that these kids tend to withdraw in social situations be-
cause they are bombarded by a lot of visual stimuli. As a consequence,
they may evidence withdrawal, or even be at risk for depression. We are
not certain, because this research is far too new and no one has yet ex-
amined these kids in more detail in order to arrive at a clinical diagnosis.
The next subtype is called "verbal organization disorders." This sub-
type has to do with subtle, underlying language processing problems. It
is a subtype comprising about fourteen to seventeen of all kids with
learning disabilities. These kids have subtle, underlying language prob-
lems that may not be severe enough to be diagnosed as a "primary lan-
guage disability," but that interfere with the ability to read because they
do not have a substantial enough grasp of language to relate it to the
visual letters on the page. Social or emotional problems can occur when
these kids do not feel comfortable with the language process and get
frustrated in social situations. They often act out their frustrations. These
kids may thus be at risk for acting out or aggressive behaviors and be
eventually diagnosed as having conduct disorders.
Not every child who has these disorders, in either language processing
or visual perceptual processing, is at risk for psychiatric disorders. If they
have a tendency to develop a psychiatric disorder, it might be in line with
the different kinds of cognitive disabilities that occur within the "learning
disability" category.
The next category is interesting because it is composed of children
who have disorders in both of those areas. And that, thankfully, is a small
subtype. Sometimes those kids are so impaired in social skills that they
have pervasive problems in areas of making friends, keeping friends,
knowing what to do in a social situation, and the like.
The fourth category is the largest identifiable subtype. It comprises
probably twenty to thirty percent of all kids with learning disabilities and
these kids have inefficient cognitive strategies. They can not seem to use
their language or perception to talk or guide themselves through tasks,
or through difficult academic subjects or through social situations. These
are the kids who are at risk for having attention deficit disorders. They
often do not have good impulse control nor good attentional skills. As a
consequence, if kids have this problem, they might be at risk for a psy-
chiatric diagnosis such as attention deficit disorders.
78 Steven Forness
Lastly, the largest group are kids that, on good psychoeducational test
batteries, show up as having no cognitive processing problems whatsoev-
er. They still, however, have a discrepancy between their lQ and their aca-
demic achievement. Sometimes this is seen in kids who have high lQs and
are functioning close to their respective grade levels. They are almost in
the gifted range so they never get identified as learning disabled in school,
or they may have low lQs and be functioning below their IQ, but not far
enough below to qualify them as having learning disabilities.
Some of these will indeed find their way into the "learning disability"
category. What is interesting about these kids, is that they comprise the
largest subtype of learning disabilities in research studies to date. How-
ever, these kids do not have a demonstrateable underlying disorder in
one of the processing or cognitive functioning areas, disorders they are
required to have in order to qualify in the public schools as having a
learning disability. Thus, many will be at risk for dropping out of school
or developing a variety of social or emotional disorders.
In summary, if a child has a psychiatric diagnosis, he or she seems to
be at risk for having a learning disability. If he/she has a learning disabil-
ity, it does not necessarily mean he/she is going to have a psychiatric
diagnosis. There may, however, be somewhere in the neighborhood of
twenty-five percent of all kids in the "learning disability" category who
might indeed turn out to have an identifiable psychiatric disorder. The
vast majority may not. All psychiatric diagnoses are on a continuum. You
and I know that all of our kids with learning disabilities have a variety of
emotional or behavioral problems just as a result of having this learning
disability. They are usually not serious enough to be diagnosed as having
a clinical diagnosis and meeting criteria for mental health services. I just
want to alert you that these two diagnostic categories in special educa-
tion, the two systems of special education for kids with learning and with
mental health problems, have a great deal in common. You need to be
aware of this relationship and be on the alert. Sometimes the normal
frustration and demoralization that occur with learning disabilities may
spill over into having an identifiable psychiatrist diagnosis for which this
child may need help from a psychiatrist, psychologist, or a mental health
clinic. There are clinics, such as the NPI at UCLA, which do specialize in
the emotional or behavioral disorders of children with learning disabili-
ties and related disorders. Not all mental health clinics or practitioners
may be experienced in this area and may thus fail to provide truly inter-
disciplinary treatment that these children require.
Social and Emotional Dimensions of Learning Disabilities 79
Question: When you said that kids with emotional disabilities have
learning problems, do you mean cause and effect?"
Dr. Forness: Yes, the speculation is, in depression, for example, that
both depression and the learning disability might be caused by a com-
mon neurologic problem (Forness & Kavale, 1985, 1991). There are
some studies using sophisticated brain scans of patients with depression
that suggest that they might have neurologic abnormalities. There are
also studies that suggest that kids who have learning disabilities may
have some neurologic abnormalities. There have been some suggestions
in some of those studies, which are very preliminary, that some areas of
the brain that seem to be effected in children or adults with depression
may be some of the same areas of the brain that are effected inchildren
with learning disabilities. Again, remember that depression, conduct dis-
orders, and attention deficit disorders are all found to be associated in
some children. Thus, "discipline" problems and learning disabilities
could result from a common cause.
There are two other theories, in answer to your question. One is that
having a learning disability puts you at risk for frustration and withdrawal.
That might in turn place you at risk for depression and related conduct
problems. The other theory is that if you have depression, that may put
you at risk for learning disabilities because emotional/cognitive prob-
lems may make it more difficult to concentrate on academic tasks. All
three of those hypotheses are still open.
Question: If you have a child diagnosed as having a learning disability
and depression at the same time, and if the learning disability is treated,
would that affect the depression as well?
Dr. Forness: There are a couple of answers to your question, one of
which is that it is very hard, even for clinicians, to sort out the demoraliza-
tion stemming from having a learning disability, versus depression from
other sources. We have seen a lot of kids who come into our hospital
unit that have a learning disability and depression. We have a good inpa-
tient school for kids admitted to the psychiatric hospital. Sometimes,
however, the progress they make in the classroom on their learning dis-
ability seems to result from the treatment they are receiving for depres-
sion rather than anything special that is happening in classroom
remediation.
It may be that what we are doing with such a child, in relation to cogni-
tive or social therapies or even the psychopharmacology used for de-
pression, may also improve their general attitude, their concentration or
even their neurologic processing. This, in turn, may not completely
Social and Emotional Dimensions of Learning Disabilities 81
"cure" learning disabilities, but at least may help improve overall aca-
demic improvement.
This is all speculative, and there are no studies to suggest that is the
case, but it is pretty clear that there are also kids in our clinic or hospital
who have been treated for depression, and their depression improved;
yet they still have learning disabilities.
We also have a number of studies on kids with learning disabilities
who also have social skills deficits. It may be that the only reason we see
a high level of social skills deficits in kids with learning disabilities is that
at least some of these kids have social skills deficits, in whom the social
skills problems are not due to learning disabilities per se, but are due to
other types of psychiatric and behavioral disorders. We need to rethink a
lot of our assumptions about kids with learning disabilities, and whether
social skills are inherent in LD or are more a result of the co-occurrence
of LD and psychiatric disorders.
Question: Why is attention deficit disorder part of the category of psy-
chiatric disorders? I do not see the connection.
Dr. Forness: It is interesting that there is no diagnostic criteria for atten-
tion deficit disorders anywhere that is formally accepted, except for a few
sources. The first is ICD-9, which is the International Classification of Dis-
eases in Children. It is under the psychiatric heading in that classification.
The second is DSMIII—R, which is a psychiatric diagnostic manual.
The major recognition of attention deficit disorders thus comes
through the mental health system. Pediatricians also diagnose attention
deficit disorders, but generally use the ICD—9 criteria. It is possible that
ADD is considered a major mental health disorder not only because it is
so often diagnosed by psychiatrists, but because it puts one at risk for
other psychiatric disorders. There is also a shift in our thinking about psy-
chiatric disorders recently because of recent findings in genetics, bio-
chemistry, and neurophysiology related to psychiatric disorders; and
attention deficit disorders has genetic, biochemical and neurologic fea-
tures that link it with other psychiatric disorders.
Question: What steps are being taken to change the criteria in Califor-
nia as a result of this research that has been done to categorize these kids
as "LD?" What steps are being taken in California to change what Califor-
nia perceives as learning disabled?
Dr. Forness: In California not much is being done at present. National-
ly there are some steps being taken that I hope will impact California's
recognition of these problems.
82 Steven Forness
in inner-city hospitals are ten percent of live births. So you can see the
magnitude of the problem.
Question: Based on the new information you said about the finding
that kids do not outgrow ADD and go through adulthood with the same
symptoms, what does that mean in terms of the child who is on Ritalin
who initially was told, "a couple of years ought to do it?" What is the dan-
ger of keeping the child on Ritalin for long periods of time?
Dr. Forness: It is not feared, as it once was, that Ritalin may be harmful
over the long term. Earlier studies suggested that there may be diminu-
tion in growth with some of these kids, some may not gain weight nor
height as rapidly as other kids who are not on Ritalin. Those studies' con-
clusions may have been premature. It turns out that there may not be
that many adverse effects if Ritalin is used wisely, which means having a
good child psychiatrist or pediatrician who knows how to use Ritalin,
who knows how to use the minimal doses to get the best effect, and who
gives the kids "drug vacations" over the summer, and other precautions.
It also does not look like those kids are necessarily at risk for being drug-
dependent or being drug abusers. It may be that the reason those kids
are drug abusers is not because they are on Ritalin, but because they
have attention deficit disorders. They abuse the drugs primarily because
they have attention deficit disorders. They abuse the drugs primarily be-
cause they have poor judgement and impulse control problems and not
because they are on Ritalin.
There are now adults who are being prescribed Ritalin, adults who
have never been on Ritalin before. As a matter of fact, I myself was a con-
trol subject in an adult Ritalin trial at UCLA. There are a lot of studies go-
ing on, work with adolescents and with young adults who are being
given Ritalin; and it seems to be very therapeutic. Now again, I have to
hedge my bets on saying that we are still studying its use with adults, so
all the data is not complete. I have to also tell you, as I said before, you
have to have a good pediatrician or pediatric neurologist or child psychi-
atrist who knows what they are doing with the drug.
Question: You made reference to an unfortunate prognosis for adult
ADD persons. Could you elaborate on that, assuming proper Ritalin con-
trol, for example, and coping strategies throughout adolescence, what is
the prognosis beyond that?
Dr. Forness: For a good outcome in attention deficit disorders, it is
very clear that there needs to be three components to treatment. One is
medication, another is family therapy and/or parent training and the
third is educational therapies and classroom modifications. These moda-
Social and Emotional Dimensions of Learning Disabilities 85
lities of therapy seem essential for a good outcome. Even these do not
always guarantee a good outcome, but on the follow-up studies, the
folks who had all three different modalities combined for reasonable pe-
riods of time seemed to have a good adjustment at follow-up as adults. If
you drop out any of those therapies, then the prognosis drops dramati-
cally. If you use two of the three, then the prognosis is not good, but not
as grim as nothing at all.
Generally speaking, the long-term prognosis for untreated ADD in
adolescence or adulthood may be the appearance of disorders such as
depression or other psychiatric disorders, underemployment, or even
criminality.
Question: If treatment should continue through high school level, can
you hope to have the child back into the full mainstream by late adoles-
cence?
Dr. Forness: The issue here has to do with the variability of all these
symptoms. If you remember, the diagnostic process I discussed for atten-
tion deficit disorders or conduct disorders might involve as many as four-
teen symptoms. So there are all sorts of reasons to kind of hedge your
bets when making predictions. The best I can tell you is that, with early
and effective treatment, some cases may well involve a good outcome
even well before late adolescence. Others may continue to need treat-
ment well into adulthood.
Question: I was just wondering about treatment of ADHD within the
future. I know at UCI Child Development Center, it seems like I heard of
their using behavior modification, cognitive behavior, generalization
maintenance, parent training. Do you see some of these components be-
ing transferred to Public Schools? I know Dr. James Swanson has just
thirty percent of his kids on medication there. It just seems like the
technology is out there to help kids almost normalize.
Dr. Forness: There are a number of people who are trying to initiate
effective programs in the public schools. As you know, the U.S. Depart-
ment of Education has given grants on attention deficit disorders and
made recommendations for both regular and special education. Hope-
fully, one of their recommendations will be to provide specific training to
teachers on the kinds of things that seem to work with these kids so that
they can be initiated early on in regular classrooms and even delivered in
more intensive fashion in special education classrooms.
Question: It seems like the techniques are out there in the literature. I
think I have read some of these things since the late 1970's.
Dr. Forness: The techniques are in the literature, not only for this, but
86 Steven Forness
for several related areas in learning disabilities. There is, however, a tre-
mendous lag between their development and their implementation into
the regular classroom, and that is the problem. We currently have the will
and the way, but effective ways of training teachers in knowledge and
skill to deliver these services, and the funds to insure that these aspects
of school reform are carried out are not always available.
Question: Do you think group therapy is more effective than individu-
al therapy for children with learning disabilities and emotional disorders?
Dr. Forness: At particular ages, group therapy may sometimes be
much more important than individual therapy, because peers may be a
better source of support and insight, especially peers who have the same
problem. It can sometimes be a lot more therapeutic than telling
troubles to a shrink who is an adult and with whom a youngster may not
necessarily feel comfortable. Group therapy and individual therapy may
often be recommended in tandem, particularly when insights gained in
individual therapy need to be "tried out" in the safe environment of sup-
portive group therapy. I cannot really recommend one over the other,
but I can tell you that group therapy is a really very important adjunct,
particularly with kids with learning disabilities who do not often have a
chance to sit down and talk about the problems they are having, not only
problems with reading and writing, but about making friends, feelings of
isolation or frustration, and the myriad problems associated with grow-
ing up, all of which can be complicated by having a learning disability.
REFERENCES
American Psychiatric Association (1 987). Diagnostic and Statistical Manual of Mental Disor-
ders (Third Edition — Revised). Washington, D.C.: Author.
Forness, S. 1988. School characteristics of children and adolescents with depression. Mono-
graphs in Behavioral Disorders, 10, 177—203.
Forness, S & Kavale, K. (1989). Identification and diagnostic issues in special education: A sta-
tus report for child psychiatrists. Child Psychiatry and Human Development, 19,
279—301.
Forness, S. & Maag, J. (1991). Depression in children and adolescents: Identification, assess-
ment and treatment. Focus on Exceptional Children, 24, 1—19.
Forness, S., Youpa, D., Hanna, G., Cantwell, D. & Swanson, J, (1992). Classroom instructional
characteristics in attention deficit hyperactivity disorder: Comparison of pure and mixed
subgroups. Behavioral Disorders, 17, 115—123.
Forness, S., Kavale, K. & Lopez, M. (1993). Conduct disorders in school: Special education
eligibility and comorbidity. Journal of Emotional and Behavioral Disorders, 1, 101—108.
Kavale, K. & Forness, S. (1985). The Science of Learning Disabilities. Austin, TX: Pro-Ed.
U.S. Department of Education (1991). Thirteenth Annual Report to Congress on the Imple-
mentation of the Individuals with Disabilities Act. Washington, D.C.: U.S. Office of Spe-
cial Education.
Weller, C. & Strawser, S. (1987). Adaptive behavior of subtypes of learning disabled individu-
als. Journal of Special Education, 21, 101 -116.
LECTURIE 5
Let us begin with a diagram depicting the origins of the LD field. As shown
in Figure 1, the LD field and the study of dyslexia can be traced back to the
work of two physicians named Hinshelwood and Orton. Figure 1 shows
the chronological development of the study of LD and dyslexia, beginning
in the 1800's.
At this point, I would like to trace the four chronological phases re-
search in LD and dyslexia followed. Also, I want to talk about where dys-
lexia fits in with other types of learning disabilities such as dysgraphia,
developmental aphasia, and dyscalculia.
Over the years, I have been asked the following question by teachers
and parents alike: "Is dyslexia a unique phenomenon separate from learn-
ing disabilities?' Figure 1 should help answer this question.
Along the vertical axis of the diagram presented in Figure 1, one finds
the four chronological phases of research in learning disabilities: 1) the
Foundation Phase; 2) the Transition Phase; 3) the Integration Phase; and,
4) the Contemporary Phase. These phases took place from the 1800's
through the 1930's, the 1930's through the 1960's, the 1960's through
the 1 980's, and the 1980's through the present, respectively. Along the
horizontal axis, one notices different types of learning disabilities: Disor-
ders of Spoken Language; Disorders of Written Language; and, Disor-
ders of Perceptual and Motor Processes.
It is important to point out that one type of learning disability is con-
spicuously absent from Figure 1: Disorders of Mathematical Reasoning.
Some of you might be familiar with the term "dyscalculia," which is often
associated with this type of learning disability. Disorders of mathemati-
cal reasoning are distinct from problems with reading or writing that af-
fect math performance, and have just recently been studied closely.
The area that I am going to focus on tonight is located in the middle
section of Figure 1: Disorders of Written Language. This type of learning
disability is referred to today as the phenomenon of dyslexia. In the early
1900's, Hinshelwood and Orton were among the first to document chil-
dren coming into their clinic who were experiencing extreme difficulty
reading. These patients could not read fluently in spite of receiving nor-
mal instruction, coming from an average socio-cultural background, and
90 Michael E. Spagna
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All Poor Readers Are Not Dyslexic
I have started out this session tonight with a discussion of the historical
roots of the LD field and dyslexia for a reason: To point out that, with the
expansion of school programs during the Integration Phase, case study re-
search was largely abandoned, remaining unfinished. Without such quali-
tative research, the description of characteristics of dyslexic children was
left incomplete. In response to such abandonment of qualitative research,
one researcher, Sabatino (1981), said that the field of learning disabilities
had become a field of "service delivery in search of theory."
Actually, today, we see a re-emergence of case study research, with
All Poor Readers Are Not Dyslexic 93
Finally, the third type of dyslexia described by Boder was the "Mixed"
group (23% of total dyslexics studied). These children not only exhibited
a poor sight vocabulary, but also experienced problems sounding out
words. As a result of the severity of reading problems in these young-
sters, Boder also offered the worst educational prognosis for this group:
"Mixed" group dyslexic children could not rely on sight-word or phonic
skills to compensate for word recognition/decoding weaknesses.
Before I leave Boder's work, which I think is very important, I want to
point out some additional findings that were reported after Boder's ini-
tial research. This research posed the question: "How would children
from the three dyslexia groups read irregular words?" An example of an
irregular word would be the word "laugh" which is a sight word that can-
not be decoded using "regular" rules of phonics. If one tries to sound out
"laugh" using only phonological skills, one might pronounce it as "lag,"
interpreting the graphemes "gh" as making the "g" sound/phoneme. Ac-
cording to Boder's work, what might one expect regarding the perfor-
mance of "Dysphonetic" and "Dyseidetic" dyslexic readers when
exposed to sight words such as "laugh?" In other words, which type of
dyslexic reader would be expected to have more difficulty reading sight
words?
If you said the "Dyseidetic" group, you would be correct since these
youngsters would, most likely, experience difficulty remembering the
pronunciation of the word as a whole unit. Instead, Dyseidetic" readers
attempt to sound out unfamiliar words—relying on phonics, which pro-
duce incorrect pronunciations such as "lag." The "Dysphonetic" group,
on the other hand, could probably read "laugh" correctly, especially if
they had been previously exposed to it. Remember that in the "Dyspho-
netic" group, the knowledge of sight words is stronger than the ability to
sound out words.
Let me give you another example which I think will sharpen the dis-
crimination between "Dysphonetic" and "Dyseidetic" dyslexics. "Pseu-
do-words" or "nonsense" words are words that are fairly regular,
phonetically speaking. Usually, a "real" word is changed slightly to create
a new "nonsense" word; for instance, if I take the word "jump," remove
the first letter "j" and replace it with a "," I have created the "nonsense"
word "tump." If one were to construct a list of these "nonsense" words
and present it to the three groups of dyslexic youngsters described by
Boder, which group would you expect to have more difficulty reading
these "nonsense" words? The "Dysphonetic" or the "Dyseidetic" group?
Using Boder's findings, and according to her theory, "Dysphonetic"
All Poor Readers Are Not Dyslexic 95
Before continuing with my talk tonight, let me define the term "dyslexia"
for you according to the World Federation of Neurology (cited in Shay-
witz, Escobar, Shaywitz, Fletcher, & Makuch, 1992): "a disorder mani-
fested by failure to attain the language skills of reading, writing and spelling,
despite conventional instruction, adequate intelligence and socio-cultural
opportunity."
Now, to turn to present day information about dyslexia, I would like to
discuss the incidence of children with dyslexia in California and the
United States. Due to Public Law 91—230, as well as ensuing legislation
(P.L. 94-142 and Section 504 of the Rehabilitation Act of 1973), there
has been an explosion in the number of youngsters identified as having
disabilities. Currently, in the state of California, approximately 5% of the
school-age population has been identified as having LD (USOSERS,
1991). This represents approximately a 140% increase since 1975 in the
number of children identified as LD. Faced with this information, howev-
er, one must ask: "Of those identified as LD, how many youngsters are
poor readers, and possibly dyslexic?" In studies of school-age children,
between 2% and 6% are usually found to have dyslexia (Yule & Rutter,
1975). Applying these findings to the figures reported earlier, it could be
argued that anywhere between 40% and 100% of the LD population has
dyslexia.
Also, when confronted with such a staggering increase in the number
of LD-identified children, one must also ask: "Are all those identified as
LD, truly LD?" One study that addresses this issue was conducted by She-
pard, Smith & Vojir (1983) in Colorado. Shepard et al.'s findings appear
96 Michael E. Spagna
Other Handicaps
Educable Mentally Retarded 2.6 +0.6
(Total) 10.3
Learning Disabilities
Significant Ability/Achievement Discrepancy 20.5 +2.0
(Total) 42.6
Other Learning Problems
Language Interference 6.6 +1.0
Slow Learners 11.4 +1.4
(Total) 30.0
Other
Poor Assessment (no IQ and no Ach. tests) 6.4 +1.3
(Total) 17.0
cluding lower reading ability (we normally consider this group to be "gar-
den-variety" poor readers). Of course, the insinuation with SRR children
is that something's gone wrong since a relatively high level of cognitive
functioning exists. Why aren't SRR children reading up to their ability? It
is not surprising that the child with low levels of cognitive functioning
also exhibits low level reading skills.
I bring this study to your attention for the following reason: When Rut-
ter and Yule presented their findings, quite a bit of controversy was gen-
erated. It had previously been thought that only one group—not two—of
poor readers existed, the GRB group.
To further understand the importance of Rutter and Yule's study, I shall
describe their methodology in more detail. Rutter and Yule examined all
of the Isle of Wight youngsters who had a certain IQ level and looked to
see how they were distributed in terms of their reading ability. Looking at
a normal curve, such as the one presented in Figure 3, one would expect
all of the children having the same level of intelligence to exhibit a read-
ing ability distribution similar to a normal curve. It is important to notice
that the shaded area appearing in Figure 3 represents a group of children
who were found to have reading skills "two standard deviations below
the mean." In other words, these youngsters have significantly below av-
erage reading skills. If one were to think that the reading skills of children
All Poor Readers Are Not Dyslexic 99
of similar IQ were distributed along a normal curve, one should also ex-
pect that only 2.28% of this same population of youngsters would have
severe reading problems "two standard deviations below the mean."
When Rutter and Yule conducted their research, they discovered a
greater incidence of children with severe reading problems than would
be expected using hypothetical distribution of reading skifl depicted in
Figure 3. Indeed, Rutter and Yule found that approximately 9% of the Isle
of Wight population exhibited severe reading problems—not the 2.28$
expected. Instead of a normal distribution, Rutter and Yule reported that
reading skills could better be described as comprising a bimodal distribu-
tion, with a smaller crest appearing towards the bottom of the curve. This
bimodal distribution is depicted in Figure 4.
The conclusion offered by Rutter and Yule—namely, that reading per-
formance was not evenly distributed among youngsters of similar
IQ—was revolutionary at the time. Pointing to these findings, researchers
all over the world believed that the "Holy Grail" of dyslexia had finally
been discovered, proving that a larger group of children—comprised par-
tially of dyslexic individuals—were experiencing reading problems than
would be expected. In several professional circles, this finding validated
the long-held belief that a "true" phenomenon of dyslexia existed. Fur-
thermore, Rutter and Yule's work was interpreted to indicate that these
dyslexic poor readers were distinct from general poor readers.
Several researchers have disputed Rutter and Yule's findings, however
(most notably, Rodgers, 1983). If we return to Figure 4 for a moment, I
will explain why Rutter and Yule's findings and, hence, their conclusions
have purportedly failed to hold up under scrutiny.
100 Michael E. Spagna
Figure 5. Normal distribution of reading ability alter removing ceiling effects (Rodgers,
1983).
You will notice that the curve presented in Figure 4, when compared
to the curve shown in Figure 3, is skewed to the right. One possible rea-
son for the skew would be that the test was too easy; in other words, the
majority of children taking the test scored well on the assessment instru-
ment. Educational measurement experts refer to this phenomenon as a
"ceiling effect" with many subjects scoring manuscript toward the upper
limit of the test. When "ceiling effects" are present, it can be inferred that
the measurement device used fails to maximally discriminate between
the performance of subjects.
Applying an understanding of this phenomenon to Rutter and Yule's
findings, one can justifiably offer a competing interpretation of the signif-
icance of a bimodal distribution: Rutter and Yule's study was method-
ologically flawed; they failed to use a more appropriate measurement
device, one that guards against "ceiling effects." Rodgers (1983) went
back and reanalyzed the finding of Rutter and Yule, controlling for "ceil-
ing effects" on the reading skill measurement device. A new distribution
of reading scores was generated by Rodgers which is presented in Figure
5. As you can see in Figure 5, once "ceiling effects" are removed from
the data, a normal, not a skewed curve results. This finding directly con-
tradicts those presented by Rutter and Yule, in effect, pointing away from
the conclusion that an unexpected dyslexic group of poor readers exists.
So, again, one witnesses another controversy being created, with people
doubting the existence of dyslexia.
According to Rodgers' work, one could conclude that there is no such
All Poor Readers Are Not Dyslexic 101
For the last seventeen years, thanks to the work of Rutter and Yule, re-
searchers investigated the reading performance of children, searching for
ways to discriminate between types of readers. Baron and Strawson
(1976) were among the first to describe '"'normal" readers as belonging to
one of two groups: "Phonecians" and "Chinese" readers. To be more spe-
cific, Baron and Strawson described Phonecian readers as being better al-
phabetic readers, using a "sounding-out" approach to decode words;
hence, this group of readers could be characterized as having a relatively
high level of phonological awareness. Chinese readers, on the other hand,
were characterized as being good sight-readers, recognizing words visual-
ly as single units having a unique pronunciation. Another way of describ-
ing these two groups of readers would be to characterize "Phonecian"
readers as relying on an "orthographic system" to decode words, using
knowledge of phoneme/grapheme correspondences while reading; "Chi-
102 Michael E. Spagna
PHONIC
READING
GOOD
WHOLE
WORD
READING
POOR GOOD
POOR
PHONIC
READING
PHONECIANS GOOD READERS
GOOD
WHOLE
WORD
READING
POOR GOOD
DYSEIDETIC DYSLEXICS
O0
CHINESE
POOR
MIXED DYSLEXICS DYSPHONETIC
DYSLEXICS
middle-left part of the graph. The "Chinese" readers belong here since
they exhibit good whole word reading skill, but only average phonic read-
ing skill.
Returning again to Figure 7, where do you think the "Phonecian" read-
ing group belongs? Remember that this reader group has good phonic
reading skills but not necessarily good whole word reading skills. Accord-
ing to Baron and Strawson's work, this reader group would be best
placed in the upper-middle to upper-left portion of the diagram.
Now, finally, where would you put the students who are dys'exic read-
ers, "Dysphonetic," "Dyseidetic" or "Mixed" groups. As Figure 7 depicts,
104 Michael E. Spagna
PHONIC
READING
PHONECIANS GOOD READERS
o
0
o
.
0 GOOD
0 0 0
0
C)
0
0 0
00
C) 0
000
" C.) 0 •. C)
t. WHOLE
_ AVERAGE
READERS 0'' WORD
READING
POOR 0 . 0 'o
0 00 0 GOOD
DYSEIDETIC DYSLEXCS () çQ ( C.
C.) 0¼J .Q C.
0 0 o
C)
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POOR
MIXED DYSLEXICS DYSPHONETIC
DYSLEXICS
er words, what do you think the two research groups found when
comparing the cognitive functioning and reading skills of the two
groups?
Based on the identification criteria already set out, one would expect
both groups to exhibit below average reading skills; one would also ex-
pect the dyslexic group to have higher levels of cognitive functioning
when compared to the "Garden-variety" group. When reviewing the re-
sults obtained from the Kansas and Minnesota studies, however, one is
faced with quite unexpected findings.
First of all, both research groups failed to report significant cognitive
functioning differences between the two groups. However, the dyslexic
group scored at a lower level than the "Garden-variety" group on reading
tests. In other words, one might interpret these findings to indicate that
the children who were identified as having dyslexia were, simply put, the
poorest of the poor readers. Do these findings make sense considering
our seemingly incorrect predictions? Why were the results opposite from
what we predicted would happen? A closer look at the University of Kan-
sas and the University of Minnesota studies reveals the answers to these
questions.
Neither study selected youngsters using criteria similar to that de-
scribed earlier in Rutter and Yule's work; namely, discriminating between
dyslexic and "Garden-variety" poor readers using differences in cogni-
tive functioning to separate the two groups. Instead, the University of
Kansas and University of Minnesota studies relied upon school-based
identification criteria to separate dyslexic and non-dyslexic poor readers.
So, a better interpretation of the findings reported in the Kansas and Min-
nesota studies would be the following: The school sites sampled identi-
fied children experiencing the most difficulty reading as having dyslexia,
without regard to differing levels of cognitive functioning. It is important
to point out that schools, faced with dwindling financial resources, might
identify those children who require the greatest educational intervention
as having "dyslexia." Such a decision would obviously by influenced by
economic concerns first and foremost.
Any of you who have ever worked with dyslexic youngsters, however,
have come to find that differences do exist between these children and
"Garden-variety" poor readers. Simply describing children with dyslexia
as the poorest of the poor readers is an inaccurate statements. If intel-
lectual differences did not exist, then one would expect that a dyslexic
youngster would exhibit cognitive functioning commensurate with his!
her level of reading skill—below average in both areas.
All Poor Readers Are Not Dyslexic 107
So far I have been talking about theoretical models and "simple" equa-
tions to describe different types of readers. It all seems logical on paper
and in theory. But, how does one test these theories to ascertain their ve-
racity? If the theoretical reading continuum, presented in Figure 8, really
holds up, one should be able to interview and test youngsters to investi-
gate whether or not qualitative differences do exist between "dyslexic"
and "garden-variety" poor readers. Sticking to the theory, "garden—variety"
poor readers should have poor decoding skills as well as low levels of lin-
guistic comprehension; "dyslexic" readers, in comparison, should exhibit
similar decoding deficits, but should also have higher levels of linguistic
comprehension. In other words, "dyslexic" youngsters should be poor de-
coders and have a relatively good understanding of the real world.
In my research, I have investigated the decoding skills and linguistic
comprehension of "dyslexic" and "garden-variety" poor readers. There
were two phase to a project I began about a year and a half ago. The first
phase began with a meeting I was fortunate to have with Richard Wood-
cock, who created the Woodcock Reading Mastery Test. Woodcock af-
forded me access to his database of 6,000 people used to standardize
the Woodcock-Johnson Psycho-Educational Battery-Revised (1989). In
order to compare the reading performance of school-age youngsters, I
separated children into three groups: good readers, "dyslexic" poor read-
ers, and "garden-variety" poor readers. The research involved an ex-
amination of the performance of "dyslexic" and "garden-variety" poor
110 Michael E. Spagna
Basel Item 1
Ceiling 5 consecutive failed
16 _________ wroutch
17 _______ knoink
18 _______ quog
19 _________ lindify
20 ________ whumb
21 phigh
22 _________ hudned
23 _________ maIreatsun
24 _________ cythe
25 ________ coge
26 ________ depnonlel
Figure 9. Above left, items from the Word Attack subtest of the Woodcock-Johnson Psy-
cho-Educational Battery, Part Two; right, administration directions for the Word Attack sub-
test.
112 Michael E. Spagna
looked like "Ma," the second part of the word looked like "treat" but
with an "f" instead of a "t," and the end of the word was like the "sun" in
the sky. With each of these parts of the "nonsense" word properly classi-
fied and recognized, this child was able to put all of the segments togeth-
er to properly pronounce the pseudo-word. This finding—that "dyslexic"
poor readers would employ a sight-word strategy in an attempt to recog-
nize real words embedded within a pseudo-word was a consistent one
repeated with several dyslexic readers. No "garden-variety" readers used
this approach to correctly pronounce unfamiliar "nonsense" words.
The finding that "dyslexic" poor readers might use alternate strategies
to decode unfamiliar words might have important ramifications for ap-
propriate educational interventions. If teachers could harness the dyslex-
ic youngster's knowledge of real words or linguistic comprehension,
children who have previously experienced frustration could now read
words correctly. With dyslexic readers, I also found that several students
also got some easier items wrong, whereas the low-achieving poor read-
ers got them right. To be more specific, I found that, when exposed to
Item #8 "chur," "garden-variety" poor readers would correctly pro-
nounce it, while dyslexic readers would see the word, become frustrated
that they couldn't sound it out, and attempt to recall a more familiar real
word such as "church." Another example of this phenomenon occurred
with Item #26 "depnonlel," the hardest of the items. Attempting to use
minimal phonics skills, "garden-variety" poor readers pronounced this
item as "depnony." Again, one notices that the ending of the "nonsense"
word has been left off characteristic of the errors this group of young-
sters made. They started to sound it out and never finished.
"Dyslexic" readers, on the other hand, unfamiliar with the pseudo-
word and unable to accurately apply phonics skills, incorporated the "d,"
"I," and "n" to pronounce the item as "dolphin." Again, "dyslexic" read-
ers were relying on their knowledge of real words to compensate for
their lack of phonics.
Even though it was clearly explained to all youngsters tested that the
Word Attack subtest was a list of new words, not real words, and this dis-
claimer was repeated during a second administration of the subtest, "dys-
lexic" readers continued to pronounce Item #26 as "dolphin."
terparts. In his fascinating book The Modularity of Mind (1983), Fodor, ex-
plains how the field of "faculty psychology" might explain the behavioral
differences witnessed in my research. Fodor describes "horizontal facul-
ties" as including broad cognitive functions like memory, linguistic com-
prehension, attention, etc.; "vertical faculties," by comparison, are
described as modules of encapsulated information such as phonological
awareness, the ability to decode words. Stanovich (1990) has applied Fo-
dor's conceptual framework of "horizontal faculties" and "vertical mod-
ules" to his own theory: Stanovich has postulated that "garden-variety"
poor readers have a "developmental lag," exhibiting decoding skills and
linguistic comprehension comparable to younger "good" readers; "dyslex-
ic" readers, on the other hand, are believed to have a "phonological-core
deficit/' exhibiting decoding skills similar to younger readers, but also
showing higher levels of linguistic comprehension when compared to
their younger counterparts. According to Stanovich's interpretation of Fo-
dor's theory, dyslexic children have intact "horizontal faculties," thereby
allowing them to accurately interpret the world around them, understand
language and discourse, etc. However, Stanovich also explains that one of
the "vertical modules," the one that encapsulates knowledge of phonics,
is either missing or significantly diminished in the "dyslexic" reader. Stano-
vich explains that "garden-variety" poor readers are not missing the verti-
cal module that encapsulates phonological knowledge but, instead,
cognitive functioning including this "vertical module" are diminished
across the board.
the different types of readers I have been describing tonight, it is not im-
possible, as Stanovich (1990) has pointed out regarding Figure 8, that a
young "dyslexic" reader might become a "garden-variety" poor reader
over time.
One of the best interventions for children with dyslexia is working with
them on their decoding skills, helping them pick up information to help
them circumnavigate, or get past, some of the problems they have sound-
ing out words. It's not as easy as that, because some dyslexic children are
going to learn best using a sight-word system instead of a phonics system
to teach word identification. By ignoring the fact that dyslexic children ac-
cess words in different manners (refer back to Figure 8), one might believe
that reading problems could be cured just by teaching phonics. About
seven or eight years ago, this was the educational method of choice, not
recognizing that some children will experience difficulty learning to read
using this approach solely.
By not recognizing reading differences and employing alternate
educational strategies to teach reading, a disturbing scenario unfolds: A
child has been identified as having a decoding problem, in spite of the
fact that he/she also exhibits high levels of cognitive functioning, re-
ceives instruction in phonics, regardless of the fact that he/she learns
faster using a sight-word approach. As a result of using a less effective
teaching strategy, this student begins to experience a delay in his/her
reading compared with a comparable school-age peer group. As this stu-
dent gets older, the gap between he/she and his/her peers gets wider.
It should also be pointed out that since students receive a consider-
able amount of information via reading in the classroom, if such a gap
were to develop, widening incrementally over the years it might be high-
ly likely that an individual's understanding of language, and the world in
general would be severely restricted. Essentially, for children with read-
ing problems, knowledge of the world starts dropping off because these
youngsters are not able to access information in the same way "good"
readers do. So, a child's educational prognosis, if he/she has a reading
problem and if he/she doesn't receive early intervention, gets worse
over time.
What, if any, implications do the work of Stanovich and Fodor have for
the front-line teacher? First of all, it is important to point out that the class-
room teacher will be sensitive to individual differences in reading among
116 Michael E. Spagna
Now, I would like to offer some advice to parents of children who are ex-
periencing reading problems. First, it is extremely important for parents to
11 8 Michael E. Spagna
read to their children, especially at an early age. Get them the information
that they're being cut off from in school. Read to them, expose them to
different experiences vis-a-vis trips to museums, national parks, zoos, etc.
If parents have a young child that they suspect might have dyslexia, they
should expose their youngster to "rhyming games." As I have already
pointed out, one excellent source of rhyming can be found in the Dr.
Seuss books.
Secondly, actively encourage discourse in the home through con-
versations with adults and between siblings. Remember, that parents
must present information in novel ways, since the printed word is so diffi-
cult to decipher. Parents should make sure, whenever the opportunity
presents itself, that their child's world is filled with language—whether it
be dinner conversation, exposure to new vocabulary, etc. When I make
this suggestion, I don't mean showing flash cards but, rather, providing
activities that are language oriented.
By reading to children and actively engaging them in conversation,
parents can keep their children intellectually and educationally afloat as
they go through a potentially frustrating—and consequently, emotion-
al—period of their lives.
These suggestions, so far, pertain to the younger dyslexic child. What
happens to the dyslexic adolescent who has already been in school for
several years, not receiving the interventions I have mentioned? Do par-
ents focus on phonics exclusively? The answer to this question is "no."
As the dyslexic child becomes an adult, increasing emphasis should be
placed into the provision of appropriate accommodations, so the dyslex-
ic adult can access information in spite of his/her poor reading skills. For
someone who is graduating from high school, it is important to provide
tools such as "books-on-tape" that will allow the dyslexic adult access to
important real-world information.
During my tenure at the Disabled Student's Program at the University
of California at Berkeley, many of the dyslexic students that I worked with
complained that they didn't want to read textbook chapters, because
they had to read word-for-word an extremely laborious and frustrating
task. With "books-on-tape," however, these very same students stayed
on top of their assignments, learned the requisite information, and went
on to earn an undergraduate degree. That's not to suggest that dyslexic
adults shouldn't be taught how to increase their decoding and compre-
hension skills; this should be a lifelong endeavor, or at least until the dys-
lexic adult reaches a reading level that he/she is comfortable with.
All Poor Readers Are Not Dyslexic 119
CONCLUSION
One last point I wish to make is that dyslexia is not a disease like measles.
If one has to think of dyslexia as a medical phenomenon and it most surely
involves neurological functioning one should think of it as analogous to
obesity (Stanovich, 1990). People who are overweight to a certain degree
are considered to fall into the category of "obesity." Obesity is a medical
phenomenon that is researched for potential causes, and interventions are
designed to prevent people from becoming obese. Considering for one
last time Figure 8, the continuum of good and poor readers, one must ac-
knowledge that statements such as, "This child is dys/exic" and, "This child
is not dyslexic," fly in the face of all of the research I have presented. Dys-
lexia, like being overweight, should be thought of as a real, albeit relative
phenomenon. All individuals have different reading strengths and weak-
nesses; some people have excellent whole-word reading skills but poor
decoding skills; others have excellent decoding skills but poor whole-
word reading skills. Because dyslexia has become an "either-or" phenom-
enon, many children are not receiving the instruction they require since
they have not been identified as "dyslexic." And many children originally
identified as having dyslexia are denied services later in life when they no
longer qualify as having a "severe" reading problem.
All of the information that I have presented tonight has given us some
insight into how children learn to read; this information should be an in-
tegral part of their education for the rest of their lives.
Then, you can side-step the state eligibility criterion—that the child has
to exhibit a significant discrepancy between aptitude and achieve-
ment—and consider school history, family history, medical history, etc.
as an indicator of reading problems. You can act around the pure dis-
crepancy definition of dylexia by looking at other sources, primarily fami-
ly and educational background.
Question: You didn't say anything about writing. Are you dissoci-
ationg that from what we're talking about tonight?
Dr. Spagna: No. Quite contrary. I think reading and writing are very
much intertwined, but I just didn't have the time tonight to talk about it. I
think many children learn to read via their experimentation with the writ-
ten word.
Question: How important is the emotional or motivational attitude of
a learner?
Dr. Spagna: There have been quite a few studies, especially in the area
of "Attribution" theory which are relevant to learning and motivation.
Younger children are not as upset when they encounter difficulties in read-
ing. Reading is a new phenomenon, so they're willing to make mistakes.
Later on in life, though, as these children move from elementary school to
junior high school, they start adding emotional reactions to the fact that
they can't read. There's an excellent book by Seligman which is called
Helplessness. He talks about the classroom and mentions that, if students
are not being stimulated by their educational environment, sooner or later
they'll "turn off" to all education. Now, I would have to agree with Selig-
man's assessment. I have met adults with learning problems, who didn't
have their problems addressed, who won't pick up a newspaper or read
because it's so painful for them emotionally.
REFERENCES
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vised (examiner's manual). Allen, TX: DLM Teaching Resources.
Ysseldyke, J. E., Algozzine, B., Shinn, M. R., & McGuire, M. (1982). Similarities and differences
between low achievers and students classified learning disabled. Journal of Special
Education, 16, (1), 73—85.
LECTURE 6
Our goal is to learn how to be an advocate for the LD child and to help
him or her become an advocate for themselves. All of these children
have numerous strengths and abilities which we draw upon to aid in this
process. However, tonight I will be focusing on some of the internal
struggles these children have. You may at times say to yourselves, "That's
not my child" or, "My child is not that bad off." But to some degree your
child will share some of the characteristics I will be describing this eve-
ning.
When we think about your child as an advocate for him or herself, the
most difficult part is overcoming their feelings of being alone with their
struggles. We want to turn the feelings of defeat into experiences in
which young people can gain an internal voice that says, "Hang in there,
it's O.K., I'm with you." If they do not have an internal voice that comes
through family experiences, then they will feel isolated. I want to convey
to you the LD child's internal emotional tone. In our search for this inner
feeling, it is essential that we understand our young people and their vul-
nerabilities.
I want to convey how we may hear their struggle, so they will not feel
alone in this life. It is bad enough that a youngster has a learning disabil-
ity, and many times the learning disability will persist. It is crucial that we
help them develop a depth of self-understanding out of which self-es-
teem will emerge so they can effectively cope with their difficulties.
Learning disabled children embody a broad range of characteristics.
Some have almost imperceptible learning disabilities and are intact in
many ways. Others have a pervasive learning disability. We find that
many ID children have varying levels of performance., so that while they
may have exceptional capacity in some areas, they may be significantly
deficient in others. What we want to do is build self-esteem that enables
them to say, "Well, O.K., / will have obstacles and embarrassments be-
cause of my learning disabilities, and some of these I cannot overcome.
But if there is one thing that my school and my family has taught me, it is
how to hang in there and still believe in myself." We want to help them
gain the internal as well as external skills to persevere in the face of adver-
sity. After all, if all of us could do this in life, we wouldn't be doing so
badly either.
Learning disabilities are seen in both active and passive forms. Some-
times we see attentional deficits which are active and the youngster is
acting out all over the place. We also see the passive child. This second
type of child is withdrawn, very shy, and presents a very vulnerable pic-
ture. The second youngster does not want to take on anything new for
126 A. Martin Goodman
fear that he will experience another defeat. His or her daily life is often in
the form of crisis.
In my clinical psychotherapy practice, I frequently ask, "What's new
this week?" However, in most people's lives, things do not change much
from week to week. But with LD kids this does not hold true, for there is
always something new. Every single day is filled with difficulties. They
cannot sit still, they daydream, and they are often seen as troublemakers
because they lack the capacity to constructively verbalize their anger
and frustrations. As a result of this, they are often in a state of crisis.
We want to assist these young people with the communication and
articulation of their feelings. It is very difficult for them to transform inter-
nal experiences, feelings and thoughts into language. What we will try to
do this evening is to focus on how to help them so that they can bring
what is inside to the outside. This is a very therapeutic thing to do.
Learning disabled children cannot easily read social cues and do not
know how to fit well into social groups. Psychological maturation is
learning about the shades of grey in social situations. For example, an
adolescent who is not yet mature psychologically, like an adult, has the
tendency to see the world as black and white. Little children will say sim-
plistically, "Is he good or is he bad?" However, as we progress through
life, gaining wisdom, most of us are able to determine shades of grey and
subtleties within our social context. However, the learning disabled child
does not grasp that part of social processing and does not know about
shades of grey. They do not know to enter a social situation in which they
must read the many subtle cues and then work their way into the setting.
Thus, many times we are working with a lonely child, one who stops try-
ing socially because he anticipates defeat. Everyday activities for LD chil-
dren can thus become crisis experiences. If most of us are on the
periphery of a group occasionally, this is O.K. But if this is your daily ex-
perience, if others say things that you don't understand and continually
humiliate you, daily activities become continual crises.
This is especially true for some types of LD adolescents. If you could
go back to any age of life, how many of you would like to go back to the
seventh grade? I do not think many of you would choose to do so. It is a
time during which there is much turmoil.
We will talk later about the LD adolescent, because this is an area of
special needs and it is a particular interest of mine. However, for the mo-
ment, let us continue with the daily mini-crisis of the LD child.
For example, the child with both an attention deficit and a learning dis-
order who leaves home without his lunch experiences mini-crisis. Even
Family Dynamics and Learning Disabilities 127
though you remind him a dozen times, he still forgets. Even though he
forgets, it does not mean that he does not care and, as a result, he often
feels ashamed. Another example of a situation like this would be when
confronting a difficult exam. The child may not only feel that he did not
succeed, but also may feel deep shame because of repeated failure. It is
one thing to do poorly in an examination, but imagine this failure after
you really studied. Other people will often think you are lazy, even
though you know you tried very hard. Think of your own experiences.
Since some of you may be learning disabled also, you can become an
ally to your son or daughter. The fact that you were learning disabled
may prove to be an asset. If this is true, then you might become better
able to get in touch with your son or daughter. Search yourself and try to
remember what it was like to be that age. Now, picture yourself as being
an LD child studying for two hours before an exam and then, just when
you think you might have conquered the exam, you get it back with a
grade of 'D'!
The child might say, "They always tell me I'm not stupid," but deep
down, the child feels stupid. The last thing we want to have happen is for
that child to carry a sense of defeat and shame in an isolated fashion. If
the feeling remains isolated, and cannot be understood by others who
are able to reach out and to feel that disappointment also, the child will
simply wall off the feelings, and the feelings will become part of an accu-
mulation of shaming experiences. This will eventually turn into what is
referred to as "chronic shame." This is the kind of shame that occurs
when someone comes in contact with certain experiences and shame
becomes overwhelming. The LD child thus starts developing a phobic
avoidance toward academics.
A little bit of shame is common for all of us. We all cannot do every-
thing well; all of us will be better at one thing or another. However,
chronic shame to the self is the type of shame that builds up and says, "1
am a poor excuse for a person." The shame is not centered around an act;
it is centered around the identity of the person. This kind of shame is part
of the everyday life of the LD child.
If you see that type of shame displayed in your child, do not deny or
dismiss it. Rather, be understanding and sensitive. Even though LD chil-
dren may look very happy and may be doing O.K. in other ways, they feel
shame because of all the secrets they hold inside. We try, of course, to
help remediate their difficulties and sometimes we can be very success-
ful, particularly in schools like Landmark. One of the remarkable oppor-
tunities the child has here is not only to have things targeted for
128 A. Martin Goodman
things through like their non-LD sibling. And so, parents may often get furi-
ous with them. Parents will state with anger and exasperation, "I thought
you knew better. How could you have done that!" Many negative acts by
the LD child are simply ways of communicating their frustration.
Many of these children who have difficulties in articulating their feel-
ings and thoughts often get in trouble because they do not have any real
way of saying what they need to say. They have difficulties knowing why
they were angry or why things were unfair or unjust. Instead of articulat-
ing, they retaliate and do things which are equally unjust. They will seem
to be saying by their actions, "You see what it feels like? I'll show you—try
this one on for size!" Consequently, they get into more trouble. When
they are sent to the office for behaviors like this, they sit there with self-
righteous indignation. What they are really feeling inside is, "Did you see
what happened to me, how unfair things are?"
In addition, learning disabilities directly relate to study habits. When
they look at their books, they think about how inadequate they are. One
of our tasks as parents and educators is to help young people deal with
these feelings of inadequacy and learn how to resolve and tolerate these
feelings so that they will not sit at their desks with their books shut. One
of my tasks as a consultant at Landmark is to work with the staff and help
them form links and connections to the young people. In the tutorial, or
prep program, we try to help the staff prepare students for life itself.
Every child wants to feel special. But how do LD children feel good
about themselves when others, as well as their siblings, perform more
adequately than they do in many ways? One of the common things we
say about LD children is, "Let's help them by building upon their
strengths." But with some LD children, it is sometimes difficult to find
their strengths compared to those of their siblings. We really have to look
for strengths, and this requires special skills and sensitivities.
SIBLING PROBLEMS
Let's talk about the interactions between LD children and their siblings.
The child often has a lot of resentment directed toward their siblings. Sib-
lings are perceived by them as perfect. It is a natural experience for an LD
child who is experiencing defeats in life. The youngster might feel deeply
conflicted about feeling resentment towards competent siblings, because
they really like their brother or sister. The able sibling may be working very
hard to succeed, but have difficulty understanding that. Because there are
so many problems, he often gets the lion's share of parental attention.
130 A. Martin Goodman
Thus, there are many mixed feelings that the siblings have towards their LD
brother or sister who may be getting more parental time and attention.
Many times, besides the simple resentment that they feel, there is a whole
host of other feelings that are present. Normal siblings often feel guilt to-
ward their LD sibling. Because they are doing so much better, they can
sense and see the pain on the face of their LD brother or sister. The
academically adequate child may just waltz in with A's, or be successful in
sports, and they feel a little guilty about this because they do not want
their brother or sister to feel badly in comparison. However, their guilt is
not as strong as their normal desire for positive attention and a need to be
special. No child can resist this. Moreover, they are entitled to have the
family resonate with their success. They are often angry that they have a
brother or sister whom they feel guilty about. Many times, when this an-
ger goes unexpressed, it becomes bottled up and comes out as resent-
ment.
Academically average siblings may also feel guilty because they are
often embarrassed by their ID siblings. If they have a brother or sister
who, by their standards, is not in the mainstream, they are embarrassed.
So these normal siblings may experience turmoil. They also may love
someone they do not like. Additionally, they feel pressure to succeed be-
cause of the presence of an an LD sibling, and they do not want to let the
parents down by being another problem child. Many of them are hurting
or struggling or have their own problems, but they see their parents
struggling with their troubled sibling and, thus, they may keep all their
problems to themselves. In addition, they may also see an older LD sib-
ling having serious problems in the upper grades and think that, "The
higher grades must be terrible. Is that what it is like; do you fall apart
when you get older?"
There are all sorts of natural feelings of rivalry in every family and the
whole phenomena complicates this rivalry. Sometimes rivalry and result-
ing competition can be healthy in circumstances where there is enough
love to go around. The children will push each other and that results in
healthy striving. When a LD child is involved, however, the child is vulner-
able to feelings of inadequacy and defeat.
Lastly, the competent sibling of an LD child often has to live with the
burden of being the object of tremendous envy. They live with the inner
sense that another person somehow wants them to fail. (Actually, we all
have those feelings, in the internal corners of our inner life.) Thus, when
that sibling has a defeat, there is a part of that LD child who is rejoicing.
The healthy brother and sister know it. They live with this feeling and it
Family Dynamics and Learning Disabilities
creates pain for them. As parents, it is crucial that we not judge these
normal reactions in our children, but respond with a level of sensitivity
and assist with understanding so that they may integrate these feelings.
SOLUTIONS
Let's continue to talk about some solutions. I will first go over some ideas
as to how to communicate with these children. I will try to deal with the
parents' experiences. After this, I will answer some questions and try to
develop a dialogue. In a dialogue setting, I can get my clinical orientation
out, as most of the time I work in a clinical setting. The only real control we
have as parents is over ourselves. You cannot really control your children.
You can try to control your child, but it does not work. What I would like
you to do is to learn how to control yourself and to be in touch with your
emotions and feelings. As parents, your job is to teach your children to
become more effective people in this life. Thus, the most crucial thing you
have to do is to provide successful models through good communication.
This means effective communications about abstract ideas, as well as
about everyday life.
One of the big obstacles parents have is to come to grips with the fact
that they have significant feelings of loss and disappointment with regard
to their LD child. When the child is in the cradle, all parents first think,
"Well, he can be what he wants to be." When parents see that their child
is learning disabled, parents may feel that their dreams for their child
have been shattered. You need to be honest with yourselves. Freud said
that, "Children read our unconscious, not our conscious." In other words,
they see our moods, they read our body language, they watch us and
study us and see our emotions from their birth. They know at some point
how you feel about them and what you think. I suggest to you that unless
you search yourselves for your own true feelings, they will come across
anyway. So you must get control of yourselves so that you can get a
sense of what is coming across to your children.
With any sense of loss, there usually occurs a three step process.
These steps involve denial, anger and acceptance. Often, when parents
first hear that their child is learning disabled, they first think that the
school is wrong, or they just do not know "my child," or they do not
know how to work with "my child," etc. This is upsetting and this consti-
tutes a state of denial.
Then anger comes, as this is part of denial. Parents think, "Let's find a
new school!" The parents still have not accepted what their child needs.
132 A. Martin Goodman
There are a number of parents who have their children here at Landmark
that need to look at their own denial process. They have accepted the
basics of the children's learning disabilities. However, they still need to
acknowledge their own unresolved feelings about this fact. One of Land-
mark's goals is to give children the sense that they are in as normal a
school setting as possible. The staff here wants to give children the feel-
ing that they are part of a large social system, and to accept real life. Yet,
on the other hand, these children cannot do all things.
There was a final examination period recently, in which some of the
children were "freaking out" over their examinations. For some, it was
too much; they could not cope. There were other children who did quite
well. They needed, however, to learn to cope with this type of situation,
as life presents many situations which involve final exams. Life is full of
pressure situations, so it is appropriate for Landmark to carefully ap-
proach the examination period as an opportunity to learn how to more
effectively cope with pressure.
We have parents here at Landmark who sometimes state that, "My son
or daughter has to get a good grade in this algebra examination because,
if he doesn't, he will not get into college." While it is true that parents
must face the fact that some LD children will not go to college, there are
many learning disabled children who will go to college. My brother-in-
law is learning disabled and he majored in his strength, music. However,
it took him six years to graduate and it was tough for him. For those who
will not make it into college, we have to begin to deal with this possibility
and with our own disappointments as parents. We should not project
our negative feelings onto our children, and thus make our youngsters
feel ashamed of themselves.
For example, if you wanted your child to become an attorney, it is bet-
ter not to ignore your feelings and just pass them off. It is better to come
to grips with your feelings and tell yourself that you are genuinely disap-
pointed with the fact that he will not become an attorney. If you can face
these feelings in yourself, you are not as likely to project them outwardly
towards your child. Whenever you have a lack of understanding, then
you might take the blame. When you have not come to terms with the
pain, you will suffer blame. Parents devise a variety of ways of blaming
themselves. By blaming themselves, they feel guilty. The parent may
think, "1 should have spent more time with him of her," or, "It must have
come from my side of the family." Thus, it is not uncommon for this to
create a lot of family discord. If you have, to cite another example, a hy-
peractive child, you experience difficulties from the earliest stages of his
Family Dynamics and Learning Disabilities 133
or her life. They may be up every half hour during the first six months of
their lives, and this can drive parents nuts. Parents may then begin to dis-
agree energetically on the parenting style to use, to be too tough or too
lenient. There is usually pain and something needs to be done about it.
When you do not understand it, you will get into a cycle of blame. Some-
times parents will compensate by making their child's problem their rea-
son to live. Everything centers around the child with the problem. But
that is not really what we want to do with these children. We want to give
them balanced social experiences.
So, now we have all these problems. What are we going to do about
them? The answer is simple. Parents should try to become a conduit for
their children, and help them express their inner feelings outwardly. They
can express what is inside with our assistance as parents. We should not
try to shut them down. We should teach them how to deal with a whole
host of emotions. We want to help them through what is called "reflec-
tive listening." Reflective listening works like this: You think of yourself as
mirrors, so that whatever your child says to you, you then repeat it back
to them as a mirror would. Two books are very good in finding out more
about reflective listening. They are: Parent Effectiveness Training by
Thomas Gordon and Step Systematic Training for Effective Parenting by
Don Din kmeyer and Gary B. McKay.
Reflective listening thus involves stating the child's feelings and mean-
ings so that he or she feels that you really hear and understand them.
Every child, particularly teenagers, desperately needs to be understood.
In doing this, we will help them achieve better self-control. We want to
say to ourselves, "What is my child feeling, and what brought on this feel-
ing?" For example, if your child comes home from school and has had a
fight with the teacher, typically the parent wants to get into the problem
immediately by asking, "What did you do, what did the teacher do?",
thus entering the process of assigning blame. What you really need to
do, however, is to help your young person sort the problem out. You
don't want to appear to take sides. You just want to help them reflect
back upon their unpleasant experience.
For example, if your child says, "That teacher was so mean to me, or, I
hate that teacher," the parent should then, rather than assigning blame,
say, "Boy, you really sound angry," which invites the child to tell you a
little bit more. The child might then say, "Yeah, that teacher was really
unfair to me!" Sometimes, at this point, the parent may be tempted to say
something that will shut the child down, such as, "Sometimes you really
do misbehave." Instead, you might say, "You feel the teacher was really
134 A. Martin Goodman
unfair. Tell me about it." Thus, you are not taking sides and you are not
deciding that either the child or teacher was wrong. You are thus inviting
the child to articulate more. The child may then say, "Well, that teacher
singled me out and sent me to the office." It would be tempting at this
point for the parent to say, "You have been sent to the office so many
times, you must be doing something wrong." But, keeping the mirror con-
cept in mind, you can say, "You were sent to the office, that sounds really
upsetting. What happened?" Now this child still has not been shut off,
and is not arguing, and will likely tell you what happened. He might then
say, "Yeah, everyone else in the class was talking and everyone should
have been sent to the office, but she just sent me to the office." The rea-
son I am using this example is that, within my practice recently, I had a
child who was constantly testing the limits. For example, when he was
asked by his teacher to be quiet, he would immediately whisper to a
neighbor and the teacher would say, "Go to the office." It would be very
easy to blame him and to make him defensive. Keeping the mirror con-
cept in mind, I said to him, "You felt you were being singled out. It must
have been terrible." He responded with, "Yes, it was terrible; I hated it.
That teacher had it in for me." This type of communication can give you
an inroad into the child. You may continue with, "You know, sometimes
you are really angry with your teacher, aren't you? But you havealso told
me that he is not so bad. What do you think happened in this situation?" If
you keep him in this reflective mode, you then begin to have a link to the
child. The child may respond by saying, "1 have been singled out." You
might then respond with, "Yeah, I hate to be singled out, and sometimes I
was, and it was terrible." Once again, you have continued to build up a
link; you have held up a mirror. At this time, it could be time to work on a
solution such as, "So, now what do you think we might do to solve this
problem?" If the child says, "It is hopeless; it won't work," you might re-
spond by saying, "1 see you feel really frustrated and you are giving up and
you do not want to really try to solve the problem." Once again, he will
feel that you are linking with his feelings. You can continue in this mode
with, "Let's think of some good ideas together." At this point, neither the
teacher nor the child is being blamed. Thus, you have built up a link of
empathy so that he does not feel that you are putting him down or blam-
ing him. You have not taken a position. You are still in a problem-solving
mode. Part of the problem solving mode could involve helping the child
identify social cues that communicate when the teacher is really serious.
At those times it is essential that no more talking occurs.
Family Dynamics and Learning Disabilities 135
home late, I really feel worried," is much more helpful. It is always good
to encourage a discussion and in this situation you might continue with,
"What do you think we can do about it?" You do not want to directly
attack the youngster. You should simply state that, "I am really con-
cerned when you come home late because I am worried that something
happened to you, and that maybe your car ran out of gas." Another ex-
ample is that many kids do not want to do their homework. In this situa-
tion, you can get into a major power struggle about their homework. If
we engender anger and resentment in a situation like this, our children
will always want to get revenge. Helpful criticism involves saying what
needs to be done in a situation. You address the situation or behavior,
you do not attack the person. For example, if the kid is not studying, an
unhelpful comment would be, "You will never amount to anything in
life." A helpful descriptive comment such as, "You seem to have a hard
time settling down to do this homework," is far more encouraging. You
have not criticized, you have merely described. Wait to see how the
child responds. He might say, "Yeah, I hate it." Again, think of yourself
as a mirror and say, "Yeah, I see you really dislike it. It looks really frustrat.
ing. What do you think we can do about it?" If the youngster begins to
make a battle out of it, use words such as, "You are really angry about
the homework, but I do not want to have a struggle and I do not want to
be on your back. Let's see how we can solve it."
angry," this is simply reflecting back his feelings. Now you might get to
hear more. Many times kids are worried that you will want to talk about
things that they are not ready to think about, or that you are going to give
them a lecture. But if you keep a low-key approach it may prove encour-
aging.
Question: What do you do when your child takes anger and frustra-
tion out of their siblings?
Dr. Goodman: ID children are often abusers, but we want to teach
them how to defend themselves without becoming oppressors. Nor do
we want them to become oppressed. We do not want them to be cruel
to other people, but we do not want them to be vulnerable to the cruelty
of others. Many times a frustrated child, however, turns into a mean
child. When we see this anger, we may want to use this mirroring ap-
proach and to articulate what their inner experience is. We might want to
say, "Joe, you look so angry." We do not want to say, "Joe, when you get
angry you do stupid things." Rather, we want to say, "Joe, for you to do
that, you must have been really, really angry." You are trying to get in
tune with his feelings. After acknowledging that their behavior is unac-
ceptable and that they are capable of better, we can begin problem solv-
ing.
Question: What about struggles around bedtime? Even after a shower
he is not ready to go to bed until 9:30 or 10:00 p.m.
Dr. Goodman: Your question contained different kinds of feelings.
You should use those feelings when you talk to your child and articulate
your feelings. You should say, "I do not want to treat you like a little kid
because you are really responsible in some areas, but when it is time to
go to bed I notice it is really hard for you to get to bed on time." What is
good about this approach is that it is a description, not an accusation.
This is less likely to provoke defense, and just reflects your feelings. You
are saying that you do not want to be restrictive, but you notice he can-
not take care of this bed problem. After you have this non-blaming link,
you encourage the child to help you think of solutions and what to do
about the problem. You are in a non-blaming mode, and with a teenager
you can start to solve the problem. If the child continues to express anger
such as, "Get off my back," use the mirror once again and he will begin
to feel understood. Then you can start problem-solving. Sometimes they
may come up with ideas that are even more strict than those you might
have come with on your own!
If the child continues to reject the idea of problem-solving, you may
have to offer more mature thoughts. For example, better ideas on how to
Family Dynamics and Learning Disabilities 139
get to bed on time. If you notice your own anger building up when the
child does not respond, you should continue to describe your own feel-
ings about anger and frustration regarding the present conflict. Don't let
your anger grow very much, and tell the child that you are beginning to
get angry and that you are tired; that you do not want to yell and you ask
the child for help in taking care of this problem. If this appeal to reason
does not work out, you have to discuss alternative plans with your child,
like starting to prepare for bed earlier in this case. Thus, if you institute
punishment, it is not to inflict pain on the child, but it comes as a logical
consequence to not solving the problem of going to bed. You should tell
the child if he does not want you on his back that he should help you in
solving the bedtime problem.
LECTURE 7
COORDI NATION
PROBLEMS AMONG
LEARNING DISABLED
CHILDREN: MEANINGS
AND IMPLICATIONS
Definitions
Awkward child have been given various labels throughout the past several
decades. They have sometimes been dubbed 'minimally brain damaged'.
This type of definition infers that poor motor coordination is caused by
easily identifiable neurological underpinnings.
Some have referred to physically awkward children as hyperactive, or
possessing an "attentional deficit." Those formulating this type of label
apparently ignore the premise that it is possible for a child to be hyperac-
tive and well-coordinated, or to be uncoordinated and yet evidence
good attention and impulse control.
Others have described awkward children as evidencing developmen-
tal apraxia. The prefix "developmental" usually means that the condition
is apparent early in life, and that the awkwardness observed is reflected
by the inability to integrate task's sub-movements into complex wholes.
Furthermore "developmental apraxia" implies that youngsters given this
label are not mastering appropriate physical skills at the ages expected
by members of their sub-culture.
144 Bryant J. Cratty
INCIDENCE
Poorly coordinated children are present in significant numbers in groups
of youngsters from which the obviously physically, mentally and sensorial-
ly handicapped have been identified and removed for special help. The
incidence of children evidencing poor coordination, according to various
estimates, ranges from 5% (Breamer & Gillman 1966) (Gubbay 1975)
(Henderson & Hall 1982) (Iloeje 1987), to 15% (Hoare & Larkin 1990, and
even to 20% of school populations, from which the obviously handi-
capped have been removed (Paine 1968) (Clements 1966). Their pres-
ence has been documented in Europe (Gubbay 1976) Asia, Africa, (Iloeje
1987), Australia (Hoare & Larkin 1991), and in North America. Thus
throughout the world it appears as though there is at least one awkward
child within most classroom settings containing at least 20 youngsters).
Thus motor awkwardness appears to be a pervasive problem among con-
temporary children and youth.
Gender Differences
It has been assumed for several decades that clumsiness is more prevalent
among boys than among girls (Henderson & Stott 1977) (Lazlo et al.
1988). However recent evidence suggests that this problem may be as
common among young females as among males (Short & Crawford 1984)
(Hoare & Larkin 1991). In the past a preponderance of awkward boys,
have been usually found among both experimental and clinical popula-
tions studied. However, this sex bias may have been due to the tendency
to refer boys, more often than girls, to remedial programs.
terest in what was sometimes termed the 'clumsy child syndrome' has
been varied over recent decades. The pioneering efforts of Nicholas Os-
eretsky in Russia during the 1 920's signaled the start of this type of fo-
cus. The qualities of clumsiness evaluated subsequently were often
dependent upon performance demands and upon values attached to
physical prowess in various sub-cultures, and upon the orientation of the
professionals assessing motor inaptitude in children.
Since the 1 960's articles focusing upon the awkward child have ap-
peared with increased frequency in journals of pediatrics, neurology,
education and learning disabilities. In 1 975 three books focusing upon
the awkward children were published. Two had similar titles "The Clumsy
Child" (Gubbay 1975) (Arnheim 1975). A third book titled "Remedial
Motor Activity for Children" (Cratty 1975) also dealt with the identifica-
tion and remediation of poor coordination in children. Contemporary
work has illuminated the nature of neurological soft-signs, included both
sensory and academic symptoms prevalent among children with poor
coordination (Tupper 1987). A text dealing with Clumsy Child Syn-
dromes by Cratty (1995) also presents a comprehensive view of the
problems of physical awkwardness occurring in developing children and
youth.
A contemporary emphasis upon the early recognition of physical awk-
wardness in children as a medical problem has been evidenced by the
inclusion of this condition in standard neurological texts in the 1960's
(Walton 1966) (Brain and Walton 1969) (Ford 1966). Often this problem
has been categorized as a type of minimal cerebral dysfunction, or as a
type of neurological soft-sign, reflected in symptoms of motor incoor-
dination (Deuel & Robinson 1987).
A Contemporary Viewpoint
Recent research should encourage professional workers to view physical
awkwardness with more precision, than was true in past (Miyahara 1992)
(Hoare & Lark in 1991). These data are also beginning to encourage the
formulation of symptom-specific remedial procedures. Some of the perti-
nent literature appearing during the past two decades, has begun also to
focus upon both poor physical coordination as a problem, separate and
independent of academic learning disabilities. Thus the use of motorinter-
ventions to modify a laundry list of academic difficulties, including reading
is becoming increasingly naive. Lastly newly developed imagining tech-
niques have begun to result in the identification of someof the neural sub-
strates underlying subtle coordination difficulties (Knucley etal. 1983).
physical coordination. In the United States, during the 1980 and 1990's,
poorly coordinated children have become increasingly recognized as an
important sub-division of youngsters requiring special testing and services.
This recognition is reflected in legal—educational descriptions which guide
the diagnosis of all atypical children. The 1987 revision of the Assessment
Code, contained in the Diagnostic and Statistical manual employed by
psychologists and psychiatrists in the United States, contains detailed de-
scriptions of what are labeled, "Specific Developmental Disorders" (Axis
111). One is termed a "Developmental Expressive Writing Disorder"
(31 5.80), and a second a "Developmental Coordination Disorder"
(31 5.40) reflecting poor integration of the larger muscle groups.
It is believed also that the specialists in learning disabilities, and those
formulating curricula for the learning disabled, have important moral,
professional and legal obligations to assess and to attempt to rectify mo-
tor coordination problems frequently exhibited by the members of the
population they serve.
volve the deeper layers of the central nervous system. In contrast, those
occurring later during gestation of shortly after birth are likely to influ-
ence more superficial layers of the central nervous system. Near birth
the cerebral cortex acquires it venous system, and thus is susceptible to
damage due to one or more vascular accidents (mild infarctions).
As is true in the case of hypoxia, vascular incidents are not of all-or
none nature. Vascular accidents and incidents occur to varying degrees,
as is true of oxygen deprivation. The resultant neural damage due to in-
fractions may thus vary markedly. Marked and obvious disruption of the
motor systems occurs when these two problems occur in severe propor-
tions, while minor to moderate symptoms of clumsiness are encoun-
tered when these problems occur to mild degrees (Towbin 1987). A
sharp blow to the head is one cause of behavioral abnormalities which
reflects trauma to the central nervous system. If no penetration of an ob-
ject occurs these are usually labeled "closed brain injuries." Delineating
the precise manner in which behavior will be disturbed is not always pos-
sible upon knowing the location of the cranium which has received the
blow. Striking the head may thus have unpredictable outcomes. This un-
certainty of outcomes occurs because a blow can cause a shearing ef-
fect, in which surface neurons are scraped in ways that may cause
problems difficult to predict. Often swelling produced by a blow in one
portion of the brain may cause pressures in other parts, also producing
diffuse and/or unpredictable outcomes. Unilateral involvement occurs if
the child has been struck on the side of the brain. Movement problems in
this case appear on the side, opposite to that receiving the blow. Usually
the younger the child or youngster incurring head trauma, the more like-
iy post-trauma motor functions may be positively modified with remedial
efforts. A relatively small percent of learning disabled children, with mi-
nor, to moderate coordination problems, have suffered some kind of
head trauma.
Types of biochemical insults may also cause neural damage reflected
in poor motor coordination. One type of problem encountered in large
numbers of infants in the 1980's were the influences of drug ingestion by
pregnant mothers. These noxious substances include crack cocaine, dis-
cussed in the section which follows. Other abusive substances ingested
by pregnant mothers including alcohol, and nicotine can cause develop-
mental problems including motor incoordination (Deren 1986). Lead
poisoning, as well as exposure to asbestos may cause problems that are
reflected partly in motor incoordination and mental confusions in
executing recreational skills and self-care tasks.
Coordination Problems Among Learning Disabled Children 151
SUB-TYPES
CEREBELLAR SYNDROME
Cerebellar functions in humans have been studied for decades. For exam-
ple, symptoms reflecting a moderately dysfunctional cerebellum have
been measured in late childhood and have been associated with low birth
weight by Lesny and others (1980). Cerebellar problems are thus likely
among numerous populations of developmentally delayed youngsters.
One of the main jobs of the cerebellum is to refine and smooth motor
programs, as they emerge from the central nervous system, and journey
to the muscle-collections that combine to produce smooth and purpose-
ful action patterns. The cerebellum also is believed by some as responsi-
ble for controlling and preprogramming various rapid automatic patterns
in which some muscle groups engage. These automated movements
may include the rapid throws (saccades) made by the eyes when read-
ing. Other times the eye jumps in this rapid manner when tracking fast
moving objects (moving more than about 50 angular degrees per se-
cond).
The groups cerebellar-motor symptoms seen in a child also may in-
clude tremors and inaccuracies of the larger muscle groups, as well as
hand-eye coordination difficulties. Problems controlling precise eye
movements are important when engaging in sports containing rapidly
moving objects and people, may also be caused by cerebellar dysfunc-
tions.
Larger parts of the cerebellum are devoted to controlling the precise
movements of the mouth, lips, and hands, as is true of the main sensory-
motor cortex. In contrast, smaller portions of the cerebellum mediate the
less precise movements of which the trunk, and lower limbs are capable.
This is an important principle to keep in mind, when considering the spe-
cific nature of various cerebellar soft-signs that awkward child manifest.
Coordination Problems Among Learning Disabled Children 153
would account for this association between deficits in ball skills and bal-
ance within Miyahara data. Hoare and Larkin (1991) also identified a
sub-group of awkward children evidencing specific deficiencies in bal-
ance, and the absence of other pronounced motor coordination prob-
lems. This group constituted over 28% of the awkward children assessed
in their cluster analysis (Hoare & Larkin 1 991).
Hypotonic Syndrome
Children beset with the hypotonic syndrome, display levels of resting
muscle tone that are below average. This flaccid state may also occur in
the facial region, and in other parts of the body. For example a hypotonic
youngster may display a 'a sleepy look' as overly relaxed muscles lifting
eye lids, result in the eyes remaining half-closed even during waking hours.
Among children with this condition the stomach muscles may appear flac-
cid (ptosis) resulting in a "pot-bellied" look. The term benign hypotonia
has been used to describe this type of syndrome, indicating that the
condition is not progressive (Eng et al 1979).
One of the five sub-types identified by Miyahara's cluster (1992) evi-
denced hypotonicity and poor fitness, coupled by "fair coordination."
This was the fifth most prevalent sub-type within the population of learn-
ing disabled awkward children measured by Miyahara, and accounted
for almost 4% of the youngsters surveyed.
This condition is usually encountered first in infancy, as delays in the
assumption of various important stable and static positions are at-
tempted. During the past two years I have assessed and devised develop-
mental programs for three hypotonic infants ranging in age from 18—22
months who could not sit up unassisted. An additional two youngsters,
whom we have evaluated, were almost three years of age, and yet had
not pulled themselves to a standing position and thus had not begun to
walk. The overall physical health of these youngsters was adequate and
normal, nor did the condition seem to be progressive in nature. They ap-
peared similar to floppy rag dolls when attempting to sit unaided, to as-
sume a creeping position, or when trying to stand. Home-based
programs of infant stimulation were formulated, in which their parents
could participate.
The status of most young children evidencing below-average levels of
residual muscle tone, remains constant and benign, and they do not de-
velop more serious and progressive neuromotor problems later in life.
However in relatively rare cases hypotonia observed in a preschool
youngster may be a sign of progressive condition. In the factor analysis
Coordination Problems Among Learning Disabled Children 155
Tension Syndrome
Some youngsters labeled 'clumsy' display constant and excessively high
levels of muscle tone. In contrast to hypotonic children previously dis-
cussed, a youngster evidencing a tension syndrome displays signs of hy-
pertonicity while attempting skills, as well as when at rest. The tension
levels are raised when a skill becomes difficult for a child to execute. The
accompanying tension thus may compound struggles to execute complex
skills. This syndrome may also appear as a form of developmental dysgra-
phia. Furthermore, symptoms reflecting the tension syndrome, within
groups of awkward children, may represent mild to moderate forms of
spastic cerebral palsy.
This syndrome is often accompanied by excesses in overflow or
associated movements (synkinesia). When a hypertonic child is required
to engage in a forceful movement with the hands, the mouth may gri-
mace excessively and when vigorous jumping movements are executed,
the upper limbs may move and flex. Reaching movements are restrained,
because as they attempt to extend their arms toward objects, the smooth
elongation of the flexer muscles of the arm do not occur. Instead the bi-
ceps may become tense and inhibit coordinated extension. Basic re-
flexes may be exaggerated in strength when elicited (Nichols 1987).
Children exhibiting excess amounts of muscle tension typically evi-
dence hyperactivity. This includes exhibiting locomotor and manipula-
tive behaviors that are in excess of those desirable within a school
setting. Data from the study by Hertzig and Shapiro (1987) suggest the
consistent presence of hypertonic signs, within populations of prema-
ture children.
Unlike hypotonic children, who often seem to be in dream-like states
1 56 Bryant J. Cratty
for a good part of the school day, awkward youngsters evidencing a ten-
sion syndrome frequently leave their chairs in a classroom, grab for ob-
jects and swipe at other children who may pass in reach. The data from
the factor analytic study of neurological soft signs by Hichols (1987) con-
tains correlations between emotional fluctuations, short-attention span,
and muscular tensions coupled with impulsivity. Thus there is statistical
evidence that confirms the existence of the tension syndrome with ac-
companying attentional deficits and impulsivity.
Attempting to acquire printing and writing skills usually presents prob-
lems for this type of youngster. Learning to print letters may result in the
frequent 'overshooting' of a line, or ending point (dysmetria). This prob-
lem is sometimes 'solved' by the child trying to both start a movement
and to inhibit a movement(s) at the same time. Thus a great deal of ex-
cess tension may accompany efforts to improve graphic skills. Relaxation
training is often a helpful accompaniment to writing and printing lessons,
when working with this type of child.
Within a clinical setting, children evidencing 'tension syndromes' need
careful and patient attention. Frequent rests from tension producing
practice may be necessary. Breaks during which relaxation training, or
similar techniques may be applied, are often useful. At the termination of
motor skill lessons it may be necessary to apply additional relaxation
strategies to reduce their tension and to produce a positive emotional
state before they proceed home, or to other parts of a school program.
Dyspraxia Syndrome
Some awkward children have difficulties effectively planning and chaining
together series of sub-movements into smooth, well-integrated motor
skills. Their levels of muscle tone may not be excessively higher or lower
than average, nor do they evidence the unsteadiness reflecting some kind
of cerebellar involvement. Their problem may be reflected primarily in
poorly sequencing sub-actions of movements into whole skills. They may
be identified as dyspraxic.
Miyahara identified a sub-group among the awkward learning dis-
abled children he surveyed who evidenced poor "dynamic coordina-
tion." This was the third most prevalent syndrome within his population
consisting of over 30% of the total group surveyed, (Miyahara 1 992).
Two Australian researchers also found a group within the population
they measured evidencing poor motor abilities independent of per-
ceptually 'loaded' tasks. For example, these apparently apraxic children
did poorly in tasks involving complicated assembly work (Hoare & Larkin
Coordination Problems Among Learning Disabled Children 157
VISUAL—PERCEPTUAL CLUMSINESS
There are numerous visual and visual perceptual problems that may result
in awkward motor behaviors. These problems may range from ocular-mo-
tor problems involving the erratic or inefficient movements of the muscles
moving the eyes, to severe retinal deterioration. In addition, the camera-
like eye may take a clear and accurate 'picture', but the child may not in-
terpret, and organize visual information well and quickly. This latter type
of confusion is often referred to as perceptual rather than a visual difficul-
ty.
Hoare & Larkin (1991) recently identified a sub-type within the popu-
lation of clumsy children they surveyed as evidencing problems in tasks
heavily loaded with visual—perceptual components. This sub-group, con-
sisting of 1 8% of the group they surveyed, had difficulty in "visually
loaded" tasks while evidencing average and above-average performance
in other motor skills.
Visual and visual perceptual problems interfere with accurate move-
ment because the eyes and motor systems are neurologically and thus
functionally intertwined in innumerable ways. Poor balance may occur,
for example, because the eyes are unable to focus well thus destabilizing
the child's space field. This type of problem may be seen when the
youngster is able to balance in a static position better with the eyes
closed, than when they are open. In these cases a confusing visual field,
when temporarily eliminated by closing eyes, permits the motor system
mediating balance to function better. In contrast, when some visually
and/or perceptually inadequate children attempt balance task with their
eyes open, below average scores may result. Problems causing unclear
vision may also inhibit accurate movement.
The presence of erratic (nystagmatic) eye movements, that may reflect
the presence of various visual pathologies, may also prevent a child from
intercepting and extracting information well from moving objects. Seri-
ous visual-neurological problems may also result in inability to intercept
160 Bryant J. Cratty
moving objects well. These can include the presence of a tumor, at any
one of several points within the optic pathways in the front of the brain
(the optic chiasm). These types of tumors may restrict the size of chil-
dren's visual fields, and thus prevent them from tracking balls through
the same wide arc, available to youngsters whose visual fields are normal
in size.
Accommodation problems, also commonly prevent children from fo-
cusing upon written work at a desk near the eyes. This problem involves
the inability of the ocular muscles to draw the eyes toward each other
and to focus at written work on the desk. Thus accommodation prob-
lems are likely to inhibit effective hand-eye coordinations needed when
learning to print letters. Most of these difficulties, however, are modifi-
able with corrective lenses.
Children whose visual systems are apparently intact may lack the abili-
ties to organize and to interpret important visual information. They ap-
pear to be beset with perceptual rather than with visual difficulties. This
quality also has been found to be multi-dimensional. Groups of tests eva-
luating visual perceptual (organizational and interpretational) skills are
applied to large groups of children and factor analyzed, a number of sep-
arate and independent qualities emerge (Smith and Smith 1966). These
included depth perception, the ability to fragment space (what is half-
way between you and the door?) and the ability to judge movement in
space. Thus it appears that deficits in innumerable visual and perceptual
problems, acting alone or in combinations, are likely to affect physical
skills in negative ways.
Mixed Syndrome
In addition to youngsters who evidence clearly definable sub-syndromes,
some awkward children display symptoms that make their precise classifi-
cation difficult. Thus the symptoms some awkward children display may
also cause them to be correctly labeled mixed'. For example, it is often
difficult to separate tensions and incoordination that may, because by
neurological causes, from difficulties arising an emotional overload, be
the result of continual task failure caused of poor motor planning abilities.
Ocular control problems may not only cause motor incoordination,
but also be part of a pervasive coordination problem arising from central
nervous system dysfunctions, also resulting in imprecise movements of
the larger muscle groups. Moreover, as Laszlo and her colleagues have
pointed out, motor clumsiness is often due to a combination of motor
incoordination, integration of process problems, and to deficits in moni-
Coordination Problems Among Learning Disabled Children 161
Overview
Acceptance of the validity of the presence of various syndromes suggests
that each poorly coordinated, learning disabled youngster, should be con-
sidered as unique. A knowledgeable evaluator should assume that few
general qualities and parameters exist, or that predictable correlations will
be obtained between tasks sampling various skill groupings. Moreover,
the presence of these various sub-types among learning disabled children
suggest the importance of instituting syndrome-specific interventions that
are carefully and developmentally planned.
SENSORY—PERCEPTUAL PROBLEMS
There are also a number of 'body agnosias These deficits may involve
sensory-perceptual difficulties that children have when attempting to lo-
cate their bodies in space. Tactile deficits in the limbs and the fingers,
and also poor kinesthetic awareness of limb location and movement are
also contained within this general group of symptoms.
In the 1980's researchers began to link these sensory deficits occur-
ring in children to neural abnormalities. In one study, for example, it was
found that 50% of the youngsters, who evidenced dysgnosias, also had
abnormalities in various components of their central nervous system.
These structural differences included ventricular enlargement (Knuckey
et al. 1983).
The symptoms reflecting body agnosias may be inseparable from be-
haviors seen in youngsters diagnosed as evidencing dyspraxias of various
types. Thus confusions occurring when moving in space, and when se-
quencing task movements, may be attributed both to the presence of
dyspraxia, and also to the presence of dysgnosias. For example, if a child
has difficulties dressing himself/herself one observing clinician may iden-
tify the problem as a dressing apraxia, while another will state that the
problem reflects a body-agnosia (a type of somatoagnosia). Thus the
same, or a similar, behavioral deficit is likely to reflect the interaction of
both an agnosia and also of a specific type of apraxia.
There are measurable sub-components to various types of body agno-
sias and dysnosias. For example, digital agnosia, reflecting a lack of sen-
sory-awareness of the fingers and/or the hands, is composed of several
sub-components, including (a) deficits in the ability of the fingers to 're-
cord' sensations and obtain tactile information when objects (placed out
of view) are touched or stroked. This quality has been termed "stereog-
nosis or, if deficit, astereognosis (b) the ability of the child to identify fin-
gers when they are named verbally and (c) the ability to determine
where tactile stimuli are applied on one hand, when viewing the other
hand (Gerstmann 1940). Thus digital agnosia should be considered in
specific ways, and with reference to the test employed to evaluate differ-
ent sub-types.
For over one hundred years descriptions of deficits in the body image
may be found in the neurological literature. Initially the only descriptions
of agnosias available were those made among stroke patients (Obsers-
teiner 1881) (Luria 1966). During recent decades, however, agnosias
have been studied among maturing youngsters evidencing various devel-
opmental sensory and motor, problems. Initially a few, selected sensory
deficit were described among awkward children brought to clinics for
Coordination Problems Among Learning Disabled Children 163
SpataI Agnosias
General spatial agnosias refer to problems youngsters may have when at-
tempting to transport their total bodies through space with accurate se-
quenced movements. Difficulties are encountered by youngsters
evidencing this type of problem, when trying to move around the furni-
ture in a room, or when attempting to pass between classmates and
school desks. The bumping that may occur among peers may result in
awkward children experiencing social problems.
The remediation of, and accommodation, to this type of problem may
involve both communicating an understanding of the problem to the
child's caretakers, and helping the child understand his or herproblem in
clear terms. The presence of these spatial confusions should not be inter-
preted by parents as reflecting their off-spring's ignorance, or lack of will-
ingness to respond correctly to directions. Rather both the child and
parents should recognize the presence of the problem and should ac-
commodate to it in various ways. For example a series of directions, to
"go up stairs and to put on a red jacket," should be made shorter and
simpler. Most of the time partial directions should be given at first.
Limb Agnosias
In clinical practices, dealing with awkward children, it is common to en-
counter young clients who evidence the inability to locate their limbs in
static positions. Furthermore they also have difficulties when attempting
to kinesthetically monitor the movements of their arms and legs. When
throwing a ball, for example, such youngsters may keep their throwing
arms in front of their bodies. Poor kinesthetic acuity measured in limb
positioning, and in movement tasks among awkward children has been
verified in data from studies by Hulme and his colleagues (Hulme et al
1987), by Smythe and Glencross (1986) and by Judith Laszlo and her col-
leagues (Laszlo et al. 1980) (Laszlo 1985, 1988).
When attempting to remediate this kind of problem, it is often neces-
sary to augment kinesthetic input, with tactile stimulation, and with visu-
al information. For example, when teaching a child to throw, a mirror
placed to the side may prove a helpful teaching aid. The throwing arm
may thus be viewed as it is drawn behind the thrower's line of vision, If
the problem is severe, tactile input may be helpful. The arms may be
gently stroked or rubbed in order to afford more information as to their
location and volume. Children whose movement problems include cere-
bral palsy have traditionally been exposed to this type of tactile interven-
tion. Foot placement when attempting various locomotor tasks, such as
skipping and hopping, may be assisted if templates are placed on the
ground, into which the feet may be placed.
Digital Agnosias
Digital agnosia is the poor awareness of the location and tactile propri-
eties of the hands and fingers. There has been a long history of interest in
this problem, Digital agnosias include several sub-types. These include
problems reflected in tasks assessing sensitivity to touches received by the
hand. Difficulties in determining the shape, texture and shape when
touching or handling objects reflects another type of digital agnosia,
sometimes termed astereognosis. It has been found in several studies that
awkward children, when compared to normals, exhibit less tactile sensi-
tivity in the hands (Kinnealey 1989), and also receive less accurate in-
formation when both touching and handling objects with their hands
(Haron & Henderson 1985).
Gerstmann identified digital agnosia as one of three problems, within
a triad of symptoms, including difficulties in math (acalculia) and body
image deficits (Gerstmann 1927). Difficulties in carrying out simple
Coordination Problems Among Learning Disabled Children 165
EMOTIONAL ACCOMPANIMENTS
Those studying and chronicling the characteristics and habits of awkward
children have been virtually unanimous in the observation that various
emotional problems accompany physical inaptitude. In many ways these
are similar to the problems usually found among the learning disabled,
and reflects compensations for feelings of low self-esteem. It seems logical
to assume that negative social feedback and poor self-assessments result-
ing from the inability to write well in a classroom, coupled with poor play
skills, will likely result in lowering both awkward children's and learning
disabled youngster's self-esteems. Available evidence from contemporary,
data-based studies is beginning to confirm this hypothesis.
In one type of study, comparisons have been made between the self-con-
cept of children labeled clumsy, in contrast to how physically average chil-
dren report feeling about themselves. In an investigation of this type
conducted by me and post-doctoral students several years ago, a ques-
tionnaire-type self-concept test was used containing questions reflecting
children's feeling about their appearance and physical ability. The test was
originally constructed by Dale Harris and Ellen Piers (1964).
In four of the twenty questions tendered to the 222 male subjects, dif-
ferences were found between the two populations contrasted (Cratty et
al. 1 972). The awkward boys reported, more often than did the psychi-
cally adequate boys, that they were sad most of the time, that they did
not believe themselves strong, and that they would rather watch than
play games. A significantly larger percent of the awkward boys also re-
ported that reading was not easy for them. This final finding perhaps re-
flects the presence of a significant percent of boys with learning
difficulties often found within populations of awkward children.
A student and I recently followed up this 1972 investigation with
another, using a highly similar questionnaire (Dalrahim & Cratty 1990).
Eighty-three awkward boys, averaging 6.3 years of age, were polled rela-
tive to the feelings they had about themselves, and how they felt about
their physical appearance and ability. These were children, whom we
had evaluated during the past thirty-six months at our clinic and aver-
aged delays of from 1 to 1 .5 years in physical coordination. The scores of
1 7 awkward girls were used in the same study, using the same question n-
aire. They averaged 6.5 years of age, and also were delayed physically
from one to two years. Of the twenty questions there were marked dif-
Coordination Problems Among Learning Disabled Children 167
overall picture from this and similar studies is that motor inaptitude likely
causes various symptoms reflecting emotional upset.
The relationships between emotional instability and motor impair-
ment may be circular. Stott, for example, suggested that the interactive
relationships he found were due to the presence of general types of neu-
rological impairments that may have influenced both motor and emo-
tional qualities in the youngsters he evaluated. The correlations found in
the studies that have been reviewed, thus require close scrutiny in order
to determine possible causal relationships present, and the direction of
the causation.
Data from a few studies are now beginning to illuminate the possibility
of modifying emotional states by exposing awkward children to remedial
programs. In recent work by Laszlo and her colleagues, for example, di-
rect evidence was obtained of 'dramatic' changes in social—emotional
behaviors occurring among children exposed to a program, that also
produced parallel and positive changes in their physical skills (Laszlo et
al. 1988).
Most encouraging, however, are the recent appearance of longitudi-
nal studies surveying, not only motor characteristics, but also the emo-
tional states of youngsters assessed during several testing sessions taking
place throughout the formative years of life. These studies are obtaining
evidence obtained during significant time periods within the lives of the
young subjects studied. In one of the first of these it was found that,
while some awkward children improve overtime, many continue to have
difficulties, of several types, well into their teens (Gillberg & Gillberg
1989).
A comprehensive, longitudinal study was published recently by Anne
Losse and her colleagues. They compared measures of emotional health
and physical coordination, obtained from thirty-two youngsters at both
their sixth and sixteenth years of life. They found strong evidence that the
youngsters surveyed continued to have motor problems, attracting the
attention to those attempting to teach them motor skills during this entire
decade of their lives. During the several testing sessions necessary to
complete this study, it was also observed that many displayed "intense
personal feelings of failure" throughout this ten year period.
It was concluded by Losse and her helpers, that clumsiness is not a
benign disorder confined to childhood, but rather that awkwardness
continues into the teens. Their data also made it clear that persistent and
measurable evidence of motor ineptitude during the years the study
took place, was accompanied by feelings of social inadequacy among
Coordination Problems Among Learning Disabled Children 169
most of the youngsters taking part in the study. However they also ob-
served that among some subjects who had been extended continuous
and effective parental support, symptoms of poor emotional health were
significantly reduced, and in some cases apparently eliminated (Losse et
al. 1991).
The available data from both correlative and longitudinal investiga-
tions thus strongly suggest that motor ineptitude both causes, and is ac-
companied by, low self-esteem and associated social adjustment
problems in many children and adolescents for significant time periods
during their formative years. Motor task performances constitute con-
crete, and observable, measures of competency, out of incompetency. A
youngster who cannot perform well thus sees vivid evidence of his or her
failings, and concurrently receives negative social feedback from observ-
ing peers, parents, and teachers. Thus both self-perceptions and the so-
cial judgements of others combine to lower the self-esteem of many
awkward children and adolescents.
ous demands and stresses. It is typically found that each child favors one
or more of these compensations, and consistently relies upon them.
Some of the more common of these compensations are as follows.
School Phobias
Aggression
Lacking adequate play skills, awkward children sometimes engage in ex-
cess physical and/or psychological aggression against others. Sometimes
this aggression appears in the form of verbal abuse, or even of obesities
1 72 Bryant I. Cratty
Within the past decade, several studies have been conducted focusing
specifically upon the motor abilities, and their meanings, among learning
disabled children. For example, Denckla and her colleagues (1985), ex-
plored possible relationships between dyslexia, attention and motor profi-
ciency, and concluded that there were various sub-groups within learning
disabled populations, including those with and without attentional and
motor problems. In this same study it was also found that the tests of mo-
tor qualities they employed, including measures of synkinesia (overflow),
and of rapid-repetitive rhythmic movements, were more likely to predict
hyperactivity in children than were measures of specific learning disabili-
ties they obtained. Most important, their data suggested to them that
treatment outcomes may be different for the various sub-groups. Outcom-
es seemed to depend upon the presence of various combinations of
learning disabilities, hyperactivity and of types of motor incoordination
measured within each sub-division.
In two other factor analyses by Nichols (1978) and by Ayres (1972) it
was found that motor coordination and sensory-qualities 'loaded' in fac-
tors separate from those containing motor coordination items. It is inter-
esting to note however, that Ayres then proceeded to formulate and
promote a program of sensory-integration in which motor-sensory expe-
riences were advanced as producing change in a variety of academic
and sensory-perceptual processes. Moreover Ayres work has been re-
cently criticized for the capricious manner in which factors were labeled
within the various studies she carried out from 1965 and 1987 (Cum-
mins 1992).
The most reasonable contemporary viewpoint thus seems to be that
motor development programs should be one, of several parts, of curricu-
la for learning disabled youngsters. However, simply exposing a young-
ster with learning disabilities to sensory-motor experiences will do little
Coordination Problems Among Learning Disabled Children 1 73
tance and accuracy has been assessed, indicate that these qualities in
normal, and among awkward young children, may be moderately im-
provable through training. In contrast, locomotor activities (hopping,
skipping and the like) appear to be more resistant to change through
education in groups of young children. Available information also indi-
cates that drawing and printing tasks also seem modifiable through the
application of effective educational strategies that include specific mo-
tor practice of the tasks involved (Cratty & De Oliveira 1989) (Cratty et
al. 1972) (Chapter 7).
In the few available studies of awkward children, the data indicates
that coordination tasks, and related activities seem modifiable with train-
ing. Moreover, remedial efforts may be assisted with the judicious ap-
plication of medication when hyperactivity accompanies motor
incoordination. However, the presence of soft signs reflecting poor coor-
dination may persist through childhood and into the teens. With effec-
tive interventions, the changes that are recorded may occur in specific
and useful "splinter skills." However, the underlying neurological deficits
seem to remain. Finally, interventions throughout an awkward young-
ster's life need to be accompanied by supportive behaviors emanating
from family members, in order to reduce or eliminate undesirable social-
emotional side-effects (Losse 1991).
Also, the available data indicates that retrogression in fitness and
physical coordination may take place if effective remediation is not insti-
tuted (Cratty et al 1 972) (Cratty & Datrahim 1992). The best progress ap-
pears to take place when programs are carefully designed, and individual
differences are provided for (Rarick & Broadhead 1968).
As is true of other remedial programs, including physical therapy,
speech-language enrichment and occupational therapy, the outcomes of
attempts at improving the motor coordination of an individual child are
often difficult to predict. Moreover, the nature of the possible neural ad-
justments, underlying modifications of physical skills, are also not well
known at this time.
The data reviewed indicates that many learning disabled youngsters dis-
play motor coordination qualities inferior to current developmental aver-
ages. These investigations have also produced several findings useful to
consider when planning school programs for this type of population. For
example, it appears that learning disabled girls may present special prob-
180 Bryant J. Cratty
lems when confronted with physical activity and physical education. They
may lack both motor activity capacities, and also harbor extremely nega-
tive feelings about how they both look and function in motor skill situa-
tions.
The marked delays in fitness recorded in the studies surveyed could be
explained in several ways. One viable supposition is that poorly coordi-
nated learning disabled youngsters tend to avoid physical activity in gen-
eral and thus evidence the results of this avoidance in scores reflecting
poor fitness levels (reflecting what has been termed a 'disuse' syn-
drome). When working with groups of learning disabled children, close
attention should be paid to motivational factors and to employing strate-
gies designed to enhance their self-esteem. Most of the data we and oth-
er have obtained strongly suggest that many learning disabled
youngsters are not happy with their body's appearance and with the
sports skills they are able to exhibit.
Current evidence also indicates that important sub-groups are present
both within populations of awkward children and also groups of the
learning disabled (Lubs et al. 1991). On the basis of this data, it appears
that learning disabled children may be divided into at least four sub-
groups, relative to physical competencies. These include one group who
is relatively free of motor problems, and indeed may be able to compen-
sate for academic deficiencies through vigorous and sustained participa-
tion in recreational sports, and in related activities. A second sub-group
apparently consists of individuals who evidence motor planning prob-
lems along with academic difficulties.
There is recent evidence that this sub-type may be pervasive within
family complexes (Regehr & Kaplan 1988). A third group may evidence
adequate skills and fitness, but require a longer period of time to acquire
complex skills because of the presence of dyspraxias of various kinds.
Still another sub-group of the learning disabled may be able to learn
skills reasonably well, but lack the muscular and cardiovascular fitness
and the coordination needed to fully and vigorously participate in sports
and games. This fourth group seems to possess physical capacities that
remain underdeveloped, because they apparently lack the motivation to
participate in vigorous physical activities.
Data from several studies indicate that motor planning problems in the
learning disabled are pervasive. For example, Rie refers to the problems
learning disabled children have executing complex serial skills (1987).
Important to consider in these data, in addition, is the lack of age-trends
in the scores obtained. This finding suggests that basic problems in se-
Coordination Problems Among Learning Disabled Children 181
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LECTURE 8
A significant amount of time elapsed between the drafting of this chapter and its
publication. During this time new data have appeared in many of the areas
discussed in the chapter. Readers interested in an update are referred to:
1. Textbook of Pharmacotherapy for Child and Adolescent Psychiatric Disorders.
D. Rosenberg, J. Holttum, S. Gershon. Brunner/Mazel, New York, 1994.
2. Child and Adolescent Clinical Psychopharmacology, Second Editions. W.H.
Green, Williams and Wilkins, 1996.
Pharmacological Interventions 189
The question of whether ADD persists into adult life has only recently
been examined. It appears that between 40% and 66% of cases of child-
hood ADD do persist into adult life.
The term "ADD, residual state" (ADD-RS) is used to describe adoles-
cents and adults who had ADDH when they were younger. These indi-
viduals have attentional symptoms, but different attentional symptoms
from those seen in ADD youngsters. The adults have an "internal fidgeti-
ness" and can't relax. They overreact to environmental stimuli, tend to
have trouble sitting still, and have histories of multiple job changes.
Stimulants
Stimulants are the most commonly used medication for the treatment of
ADD. Currently, four major types of stimulants are used: methylphenidate
(or Ritalin); amphetamines or (Dexedrine); magnesium pemoline (Or Cyl-
ert); and fenfluramine hydrochloride (or Pondimin), which is only used in-
frequently.
Approximately three-quarters of all ADD children respond positively
to at least one of the stimulants. The positive effects of stimulants in-
clude: decreases in motor activity, improvements in sustained attention,
decreases in impulsivity and distractibility, improved motivation, and im-
provements in accuracy and speed of academic achievement perfor-
mance (Dulcari, 1990; Kavale, 1982).
196 Dennis P. Cantwell and Lorian Baker
Overall, the three major stimulants (i.e., Ritaliri, Dexedrine and Cylert)
have about the same level of effectiveness. However, many children will
respond positively to one stimulant and not to another stimulant. The
reason for these differential responses is that the different stimulants act
upon different neurotransmitter systems. For example, amphetamines ef-
fects primarily norepinephrine, and methylphenidate primarily effects
dopamine. Cylert effects both norepinephrine and dopamine, but less
strongly than the other two drugs. Pondimin lowers bloods serotonin,
and probably brain serotonin as well.
Although we know that individual respond differently to the various
stimulants, we do not know to predict individual responses. Thus, we
cannot predict whether a particular child will respond better to one me-
dication than to another, or whether he will have fewer side effects with
one drug than another. As a result, treatment must use a trial-and-error
approach. First one medication must be tried at a low dosage, and then
the dosage must be gradually titrated up while assessing whether there
are positive clinical effects and/or negative side effects.
It was once thought that stimulants were responsible for growth sup-
pression in children. However, prospective studies have shown that
there are no long-term effects on either height or weight (Beck et al.,
1975; Hechtman et al., 1984). In fact, stimulants have been used to the
last 50 years with ADD children and are considered to be both effective
and safe (Cantwell, 1 980). Common side effects include increased heart
rate, increased gastro-intestinal movements (stomachaches), and head-
aches. Rarely, the medication may cause tics. However, in clinical prac-
tice, it is extremely rare to have to discontinue stimulant treatment
because of side effects. A failure to respond to the medication of a more
common clinical problem.
One of the drawbacks of the stimulants is that they are short-acting.
Even the so-called "long-acting" or "slow-release" forms last only six to
eight hours. This means that, by the end of the day, ADD children who
were given stimulants in the morning will no longer show a positive re-
sponse. And, when these children wake up the next morning, it is as if
they had have never had any medication; there is no build-up of the me-
dication, and there is no carry-over of effects from the days before.
Sometimes clinicians recommend reducing the dosage of stimulants
or taking the child off the medication entirely during the weekends or
summer vacation. This practice, called a "drug holiday," was once very
popular, and was motivated by the belief that youngsters would take less
medication over time and therefore would be less effected by growth
Pharmacological Interventions 197
Tricyclic Antidepressants
Tricycles are affective alternative medication treatment for ADD, although
their primary use in this country is for treating adult depression. Standard
tricycles (including imipramine [or Tofranilj and amitriptyline [or Elavil])
have been in use since 1957, and there are numerous other tricyclics avail-
able as well.
Some tricyclics primarily act upon norepinephrine; others primarily
act upon serotonin; and still others primarily act upon dopamine. Be-
cause of their actions upon these neurotransmitters, the tricyclics can af-
fect ADD symptoms in ways similar to the stimulants. Specifically, they
can increase attention span, improve impulse control, decrease fidgeti-
ness, and decrease restless behaviors. Some tricyclics (e.g., clomipra-
mine) are also effective in reducing obsessive-compulsive behaviors, and
therefore may be the best drug for those ADD children who have obses-
sive-compulsive problems.
Although the tricyclics share some effects in common with stimulants,
they are different from the stimulants in three major ways. First, tricyclics
are long-lasting and last all day. This means that once a certain level of
tricyclic medication is built up in the blood stream, the effects remain
constant. There isn't the "up and down" phenomenon that occurs from
morning to evening with stimulants.
Second, tricyclics do not produce stimulant side effects such as appe-
tite suppression, stomachaches or tics. Consequently, tricyclics may be
preferred medications for those ADD children who have developed eat-
198 Dennis P. Cantwell and brian Baker
ing problems from stimulants, or who have a tic disorder which might be
exacerbated by stimulants.
Third, tricyclics have both anti-depressant and anti-anxiety effects.
Thus, they may be the preferred treatment for an ADD child who has
those other symptoms as well as ADD symptoms.
For the average ADD child, however, stimulants are a better choice
simply because more is known about them. Stimulants are also easier to
monitor because they are short acting. For example, one can determine
the effect of particular dose of stimulants within a few days. In contrast, it
takes at least a week for the tricyclics to build up in the blood stream to
the point where their effect can be measured. Also, because of the time
needed for tricyclics to build up in the blood stream, drug holiday are not
possible with tricyclics. For example, if tricyclics are not administered
during the weekend, their level in the blood drops so that the following
Monday, there will be no positive effect from taking the medication
again.
MOOD DISORDERS
"Depression" and "demoralization" are two mood problems that are very
common in learning disorder adolescents. "Depression" can occur in vari-
ous forms (e.g., major depression and dysthymia), sometimes alternating
with periods of "elation" or "mania" (bipolar disorder, cyclothymic disor-
der). One striking feature of depression is "anhedonia," or an inability to
get pleasure from the things that ordinarily give pleasure.
Mood disorders are extremely common in the general population,
particularly in females. One woman in four will have a significant epi-
sode of depression in her lifetime, as will about one man in ten. This gen-
der differences does not occur until after puberty. Prior to puberty, the
rates of depressive disorders are exactly the same for boys as for girls.
After puberty, the rate is twice as high in girls as in boys.
Depressive disorder are a different from ADD \in that ADD is a chron-
ic problem that is always there, whereas depression is an episodic prob-
lem that can be resolved. Medications do not cure ADD; they simply
alleviate many of the symptoms. If the medications are discontinued, the
disorder will still be present. For depressive disorders medication can be
withdrawn after treatment, and the condition may no longer be present.
However, relapse may occur with time, necessitating retreatment.
A number of medications are effective for depressive disorders in chil-
dren and adolescents. The tricyclic antidepressants (discussed above)
and the newer non-tricyclic antidepressants (e.g., Prozac and Wellbutrin)
may help. When tricyclics are used for depression, different dosages are
given than when the drug is used to treat ADD.
For manic symptoms, Lithium and Tegretol are two medications that
may be useful. Lithium, as an anti-aggressive in those children who exhib-
it isolated outbursts of physically aggressive behaviors associated with
significant mood swings. However, children who are persistently aggres-
sive, do not show this response to Lithium.
The side effects of Lithium include fine hand tremors, and gastrointes-
tinal problems (i.e., nausea, diarrhea, vomiting). These side effects are
related to the concentration of the drug in the blood stream and indicate
when the dosage is too high.
"Demoralization" (or bad feelings resulting from failure in a important
area of life) is a common mood problem, especially in children with
learning problems. "Demoralization" is not "depression;" it is not charac-
terized by anhedonia," and it does not respond to antidepressant (or oth-
er) medications.
200 Dennis P. Cantwell and Lorian Baker
ANXIETY DISORDER
REFERENCES
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Beck, 1., Langford, W. S., Mackay, M., & Sum, C. (1975). Childhood chemotherapy and later
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Cantwell, D. P. & Baker, L. (1992). Attention deficit disorder with and without hyperactivity:
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Clampit, M. K. & Pirkie, I. B. (1983). Stimulant medication and the hyperactive adolescent:
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Cohen, D. J., Riddle, M. A., & Leckman, I. F. (1992). Pharmacotherapy of Tourette's syn-
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Hunt, R. D., Cohen, D. J., Anderson, C., & Clark, L. (1984). Possible change in noradrenergic
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sis. Journal of Learning Disabilities, 15, 280—288.
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Shaywitz, S. E., Shaywitz, B. A., Fletcher, J. H., & Escobar, M.D. (1990). Prevalence of reading
disability in boys and girls: Results of the Connecticut longitudinal study. Journal of the
American Medical Association, 264, 998-1002.
Shaywitz, S. E., Shaywitz, B. A., Schnell, C., & Towle, V. R. (1988). Concurrent and predictive
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Swanson, J., Simpson, S., Agler, D., Kotkin, R., Pfiffner, 1., Bender, M., Rosenau, C., Mayfield,
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M., Baren, M., & Cantwell, D. (1990). UCI-OCDE school-based treatment program for
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Psychiatry: A world perspective, (vol. 1, pp. 1107—1012). Elsevier Science Publishers
B. V.
LECTURE 9
Joan T. Esposito
Dyslexia Awareness and Resource Center,
Executive Director
California Learning Disabilities Association,
Past President
THE EMOTIONAL
AND EDUCATIONAL
CHALLENGES OF DYSLEXIA
AND ATTENTION DEFICIT
DISORDER: ONE STORY
that I spent attending classes and attempting to learn was literally hell.
Every morning, I woke up sick to my stomach at the thought of school. I
could not understand why my parents made me go to school every day
and struggle. I simply could not learn—no matter how hard I tried. My
teachers could not teach me.
Because I did not learn like many of my classmates, I did not socialize
with them either. How could I? I could not read or spell like them. I was
constantly teased by them. I did not play with the others because I felt
different from them. I could not understand or explain why I felt differ-
ent, I just did! Even without a name for the difference, I knew deep inside
that I was different. Each day I sat in class and prayed that the teacher
would not ask me to read out loud. I went home from school at night and
cried myself to sleep because I did not understand why I could not read
or spell as well as my classmates. As I tried to spell and write legibly I told
myself:
I spent hours alone in my room, trying to figure out how to hide my read-
ing and writing problems from my family and friends. I lied and cheated
my way through school.
that time I entertained some of the top studio executives, directors, pro-
ducers and actors in Hollywood.
The first week I was married, my husband told me that we were going
to have some of his clients to our home for dinner: German actress Elke
Sommers, her husband, Joe Hyams, and Elliot Silverstein, who had just
successfully directed "A Man Called Horse" with Michael Cain. I con-
fessed to my new husband that I was not a good cook, but he directed
me to several cookbooks in the kitchen. What I didn't confess was that I
couldn't read them. Somehow I managed to talk my new husband into
cooking the meal. I helped and watched what he did, and soon learned
how to cook what he could cook. To keep my reading problem a secret,
however, I took a French cookery class. I watched the chef prepare a
meal, then I went home and immediately cooked the same meal to re-
member it. To reinforce my memory I cooked and served the same meal
over and over. Because of all the butter and cream sauces in French
cooking, my husband developed a problem with gout. I now can smile at
my contribution to his problems with gout you, and will see why as my
story continues.
During the first part of my marriage I took dozens of tennis lessons. I
had a strong serve, my coordination was good, and I was able to hit the
ball where I wanted it. But, I could never remember the score or where I
was supposed to stand. Elke Sommers and I had became good friends,
and she was also taking tennis lessons. One day, as I was watching her
take a lesson, she asked me to play a game with her. I quickly replied that
I had given up my lessons and that she needed some one with more ex-
perience. I then had to stop taking lessons so that she would not discover
my lie.
One success for me has been bargain hunting for antiques. Over the
years, people have given me over forty books on antiques, but, of course,
they were of no use to me. I learned by going to antique auctions. I went
to a preview the day before each auction, where I would touch and feel
the pieces and ask the auction attendant questions. I would then attend
the auction. By watching the buyers in the audience bid and by writing
down the prices at which the antiques went, I was able to remember both
the antiques and their prices. I then could go to the antique shops and
compare the prices.
Because of my problems due to undiagnosed dyslexia, I missed many
business opportunities over the years. For example, Elke admired the an-
tiques I bought, and asked me to go to Europe to buy antiques with her
money and split the profits with her. I told her I could not leave my young
Challenges of Dyslexia and ADD: One Story 207
son. What I could not tell her was that I could not read or write well
enough to fill out the forms to get antiques back into this country. As a
result of my learning disabilities I often get disoriented when I travel to
new towns; even walking through new airports and catching a plane can
be confusing for me. Not only the antiques would have been lost in Eu-
rope: I would too. Liza Minelli also admired my decorating talents. She
tried to talk me into decorating her home. But once again I had to lie. I
said I was too busy entertaining my husband's clients and looking after
our young son.
One afternoon, I was sitting in our den with Liza, when my five-year-
old son came in with a container of popcorn in a tinfoil dish. He wanted
me to cook it on the stove top. I knew I could not follow the directions on
top of the popcorn container. My husband, who usually made the pop-
corn, was in the other room talking business with Liza's future husband,
Jack Haley, Jr. So I could not disturb him. I made several excuses to my
young son, but he was not going to let me off that easily. When Liza saw
that I was not responding to Joel, she picked him up and carried him and
the popcorn into the kitchen. I did not dare follow them, in case she gave
the popcorn back to me. So I sat in the den feeling stupid and sick to my
stomach. Soon I could smell something burning, so I ran into the kitchen.
Joel was sitting on the kitchen counter, and Liza was singing and dancing
around the kitchen for him, whlle the popcorn burned on the stove.
On two occasions I was a guest in Chariton Heston's home, and I met him
several times at the studios and at social functions. I found him a warm
and wonderful person but tried my best to avoid talking with him because
of his dry sense of humor. As a resuk of my learning disabilities, I don't
always understand jokes or anyone with a dry sense of humor. Telling
jokes was Chuck's way of making me feel comfortable whenever we met,
but his humor, ironically, had the opposite effect on me.
Before my dyslexia was diagnosed and I understood how I function as
a person with dyslexia, I always felt uncomfortable at parties and in other
social situations. I would avoid parties like the plague. But on one occa-
sion, I allowed myself to be talked into going to a Tupperware party at a
friend's house. Towards the end of the party we were to play a game for
which we had to write down five nouns. I quickly excused myself and
-went to the bathroom. I walked back and forth, looking in the mirror, and
told myself how stupid I was. I had been told over and over what a noun
was; why could I not remember? I felt sick to my stomach. I stayed in the
bathroom as long as I could and hoped that they had finished their game
without me. I came out of the bathroom to find they had waited for me,
208 Joan T. Esposito
so that I would not miss the chance to win the prize, a plastic cup. I can't
remember how I escaped, but I can assure you I never went to another
Tupperware party.
I worked hard and became very clever at covering up my problems
with language, but it took a toll on my health. I developed severe hypo-
glycemia. Several times, I was admitted to the hospital for violent stom-
ach pains and headaches. Each time, after numerous tests showed no
physical cause for the pains, I was released from the hospital without a
diagnosis.
After several years of struggling to entertain clients, I was thrilled at the
idea that our family would leave Beverly Hills for Santa Barbara. We had
no clients or friends in Santa Barbara, and there I could hide away from
the world. We bought a large, old, Spanish home. For the first six months
in Santa Barbara I was happy. I spent the time doing things I loved to do,
things I was gifted in: gardening, remodeling and decorating our home.
Then, one day, my son's teacher asked me to help in his second grade
classroom. I thought I would be able to work with the children on their
art projects or just watch over them for the teacher. But the teacher
asked me to help the children with their spelling and reading. I made an
excuse to leave the classroom, and I never went back.
At this point in life I became a recluse. I would not answer the telephone. I
very seldom left the house. When friends came from Beverly Hills to visit, I
would stay in my bedroom and pretend that I was ill. I saw very few of our
old friends. More and more, I withdrew into myself and became deeply
depressed. I knew that something was wrong with me, but did not know
where to go to get help. I went to a doctor and a counselor, and they both
blamed my withdrawal and depression on my lack of an education, my
low self esteem and my domineering husband. The doctor's solution was
to put me on a heavy dose of anti-depressants, which made me sleep
most of the day.
My ex-husband, my son's father, also has severe symptoms of dyslexia
and attention deficit disorder, although he has not been formally diag-
nosed. He brought the anger, frustration and pain that he had experi-
enced in school into our marriage, and I was the recipient of his violent
temper and mood swings. I was not unlike other women, unable to ac-
quire an education because of their dyslexia, afraid to leave an abusive
husband for fear of not being able to get a job to support their children.
After eleven years of marriage I could no longer take his physical abuse,
and it was starting to affect our son. Somehow, I worked up the courage
to file for a divorce.
Challenges of Dyslexia and ADD: One Story 209
During divorce proceedings, our home sold for over one million dol-
lars, and we had another million and a half in assets. From the day my
nine-year-old son and I moved out of our home, we were homeless off
and on for six years. Fourteen months from that day we found ourselves
on food stamps. My husband had handled all of the finances and bank
accounts.
My husband and his lawyers used my lack of education against me in
court to try to gain custody of our son. The probation officer in our child
custody case reported to the court that he found that "although Joan is
uneducated, I find her quite intelligent." Some of the most humiliating
experiences of my life came when I sat in depositions and courtrooms
full of strangers while my illiteracy and lack of a formal education was
brought up over and over again in reference to my gaining custody of our
son. Testimony on my illiteracy was used over a seven year period, in
over two hundred court appearances.
One year into the divorce proceedings my husband filed bankruptcy
and he put my assets into his bankruptcy. He left the country with the
rest of our assets and left me to pay the taxes, his creditors and his legal
expenses from before and after our separation. He moved to England,
where he met his next wife. She was a former Russian ballerina with the
Royal School of Ballet in London. He bought a Manor House that had
belonged to the late Lord Butler. He drove a Rolls-Royce and traveled
around the world with members of Lord Sainsbury's family. He sent post-
cards to our ten-year-old about his travels abroad and his hunting week-
ends at Lord Sainsbury's country estate. Meanwhile, I was living in Santa
Barbara. I did not have the necessary skills to get a job with a livable
wage, so I cleaned hotel rooms to support us. The salary I made was not
enough to even pay our rent, but we were able to survive with the help of
friends. (You can see now why my ex-husband deserved gout.)
At one point in the bankruptcy court proceedings, when I had no law-
yer, the judge said I had to write a letter. I jumped up and said, "Your
Honor, I don't know what it is, but I have problems writing letters. I need
a dictionary to write!" He was not at all happy with my interruption and
ordered me to write the letter. What the judge heard me say and what I
thought I had said were totally different. I thought I had said, "Your Hon-
or, I can't spell. My hand writing is unreadable. I do not know anything
about grammar. It is very difficult for me to get my thoughts down on
paper in sequence, and I can't find the correct spellings of words in a
dictionary. I own seventeen dictionaries and can't find one that works for
me." I truly believed that I had explained my problem clearly to the
210 Joan T. Esposito
judge, because the thoughts were in my head. But they simply did not
come out the way I thought they did. It was only when I read the court
transcript, years after the divorce was final, that I realized I had not fully
explained my language problem to the judge.
Besides my lawyers and my ex-husband, only two friends knew about
my spelling and writing problems. I spent most of my days and evenings
writing letters to my lawyers by hand. I rewrote my letters over and over; I
made mistakes copying from one page to another. My hand and brain
would get tired. The physical writing on each line and page looked differ-
ent: I used print, script, upper and lower case letters, all in one sentence.
I wrote descriptions of myself in the first, second and third person, as I
still do. Writing was tiring and time consuming. I was constantly on the
telephone to my two friends, asking them to spell words for me. After
months of writing by hand I bought a typewriter for ten dollars at the
swap meet. I was able to write longer letters, but they still had commas
and periods wherever I felt like putting them, and paragraphs were non-
existent.
Because of the custody fight over our son and my fear of losing him, I
gathered up courage and drove to the Santa Barbara City College to en-
roll in an English class. I was sent into a small building where I was given a
test. The questions on the test directed me to find such things in a sen-
tence as the object, the indirect object, the clause, or the prepositional
phrase. I could not understand what an object had to do with grammar.
An object to me was a thing. At that point I could not even pronounce
the word "prepositional phrase." Santa Claus was the only meaning I
could get from the word "clause," and "prepositional" was beyond my
vocabulary. I slipped out of the testing lab when no one was looking and
never returned to finish.
teachers at the college: why could they teach us the reading, spelling, writ-
ing, and math that we could not learn in grade school? You could hear the
anger in some students voices when they questioned the teachers: "WHY
DIDN'T WE HAVE TEACHERS LIKE YOU IN OUR SCHOOLS WHEN WE
WERE KIDS?!"
It was because of my own experiences and those of other students in
my college class that I started the volunteer work I have been doing ever
since. I approached our Santa Barbara newspaper with an article on dys-
lexia. After the article appeared in the paper, I was overwhelmed with
calls from parents asking me to help them advocate for their children
with dyslexia. After three years of working out of our home, in 1990, my
husband Les and I founded the Dyslexia Awareness and Resource Cen-
ter, which is a non-profit organization in Santa Barbara. We have assisted
over six thousand clients, and all the services at the Center are free. I at-
tend Individual Educational Plan (IEP) meetings with parents, expulsion
hearings, court hearings and probation hearings for juvenile delinquents
with learning disabilities. I meet with employers and teach them about
dyslexia and how it affects employee performance. We train groups of
counselors on the nature of learning disabilities. We have a seventy-thou-
sand dollar library of books, teacher training tapes, dyslexia reading pro-
gram videos, and video and audio tapes on learning disabilities, dyslexia,
attention deficit disorder, and Tourette's Syndrome. The Center is the
only one of its kind in the nation.
I can't finish my story without telling you something about my son, Joel, of
whom I am so very proud. When he was seventeen, we discovered that he
had dyslexia and attention deficit disorder. After years of struggling, he
managed to graduate from high school. His report cards commented that
• "he needs to pay attention to written work, keep papers neat and
show the depth of thinking that he indicates verbally";
• "sloppy and disorganized";
• "the weakness of his handwriting will probably preclude his joining
the honors section of U.S. History next year"; and
• "your habits have shown every sign of being quite lazy; the result is
that you are full of intriguing thoughts, insight and a fine vocabulary
which you can only express in poor spelling, poor punctuation and
sentence fragments or run-ons."
After high school my son entered the University of California in Santa Bar-
bara with the most valuable tool in a dyslexic's life, a computer. He be-
212 Joan T. Esposito
came a reporter and assistant editor for the university newspaper. He also
wrote articles for local newspapers.
Joel has just turned twenty-three and is presently a freelance reporter
in Yugoslavia, where he has been living for the last two and a half years.
His news articles on Sarajevo are published in Newsweek, The London
Times, The Irish Times, The Washington Post, The San Francisco Chronicle,
The Toronto Sun, The Miami Herald, The San Diego Chronicle and numer-
ous other national and international newspapers. His articles have been
published in Life, People and Rolling Stone magazines, as well as several
European magazines. He also reports live from Sarajevo for CNN televi-
sion and Sky Television News in Europe.
I would like to close today with a quote from a man whom I admire for his
work on behalf of learning disabled juvenile delinquents. judge Jeffrey H.
Gallet is a judge in the Family Court in New York state. Judge Gallet also
struggled in school with dyslexia. He said, "IF YOU CANNOT READ
THERE ARE ONLY TWO WAYS TO MAKE A LIVING—THE WELFARE
SYSTEM OR CRIME—AND CRIME HAS MORE STATUS."
I would like to thank you for listening.
POSTSCRIPT
Before I finish, I just want to tell you how important it was for me to discov-
er that I had learning disabilities. The labels I gave to myself as an unin-
formed and innocent child were debilitating. The diagnosis of dyslexia
freed me to fulfill my dreams and become a functioning adult. I needed
the appropriate label in order to find a teaching method that had worked
for other people with dyslexia. Although I have several learning disabili-
ties, including attention deficit disorder, the one that affected me most se-
verely was dyslexia. I could read words that I had learned through whole
word recognition, but with new words I struggled to match the sound to
the written symbol on the page. If you can't read, how do you learn about
your other learning disabilities?
ORGANIZATIONS
Association of Educational Therapists (AET)
14852 Ventura Blvd., Suite 207, Sherman Oaks, CA 91403
(818) 788-3850 Fax (818) 380-6896
Children and Adults with Attention Deficit Disorder (C.H.A.D.D.)
499 Northwest 70th Street, Plantation, FL 33317
(305) 587—3700
PUBLICATIONS
Reading. Writing, and Rage, by Dorothy Fink Ungerleider, Rolling Hills Es-
tates, CA, Jalmar Press, 1 985.
Smart Kids With School Problems, by Priscilla 1. Vail, New York, e.P. Dut-
ton, 1987.
Succeeding Against the Odds, How the Learning Disabled Can Realize
their Promise, by Sally L. Smith, New York, Jeremy Tarcher, Perigree
Books, 1991.
Taking Charge of ADHD: The Complete Authoritative Guide for Parents,
R. A. Barkley, Guilford Press, New York, 1995.
VIDEOTAPES
ADHD in Adults
ADHD in the Classroom
ADHD: What Do We Know?
ADHD: What Can We Do?
Russell A. Barkley, Ph.D.
Stonebridge Seminard, 1 992, (508) 836-5570
Guilford Publications, 72 Spring St., New York, NY 10012
(800) 365-7006
How Difficult Can This Be?
Understanding Learning Disabilities (F.A. T. City)
Richard LaVole, PBS Video, 1989. 800 344-3337, Fax (703) 739-5269
I'm Not Stupid
Gannett Broadcasting, Learning Disabilities Association
4156 Library Road, Pittsburgh, PA 15234 (412) 341-1515
Learning Disabilities and Social Skills:
Last One Picked, First One Picked On
Richard Lavoie, PBS Videos, 1994. (800) 344-3337, Fax (703) 739—5269
We Can Learn:
Understanding and Helping Children with Learning Disabilities
National Center for Learning Disabilities (NCLD), 1989.
(212) 545—7510, Fax (212) 545—9665
INDEX
A Apraxic-dyspraxic syndrome,
157—158
Association of Children with Learn-
Abusers, 138
Academic difficulties, 4 ing Disabilities (ACLD), 92
remediation of, 147-148 Astereognosis, 162, 164
Academic reorientation, 52—54 Attention deficit disorder (ADD),
Academic support services, 33 2, 3, 143, 190—193,
Acalculia, 164—165 204-2 12
Activities outside the home, interventions for, 193—194
128—129 medications for, 193-198
Adjustment disorder, 74 Attention deficit disorder, residual
Admonishment of learning dis- state, 193
abled children, 135 Attention deficit disorder with hy-
Adults and attention deficit disor- peractivity (ADDH), 191
der, 192-193 Attention deficit disorder without
Advocacy of learning disabled chil- hyperactivity (ADDW), 191
dren, 16—19, 125 Attention deficit hyperactivity dis-
Aggression, 171—172 order (ADHD), 4-5, 70-73
Agnosia, 161 classification of, 81
Allergies and hyperactivity, 192 treatment of, 84-85
Amitriptyline, 197 Attentional problems, 190
Amphetamines, 195, 196
Attorney type behavior, 1 71
Anafranil, 201
Attribution theory, 121
Analytic method of phonics,
116-117 Auditory agnosias, 161
Anger, 138-139 Auditory distractibility, 25
Anhedonia, 199 Auditory figure-ground problems,
Anti-anxiety drugs, 200 8,45
Antidepressants, 201 Auditory input problems, 6-7
Anxiety disorders, 69, 200-201 Auditory lag, 9
Anxiety reduction, 52 Auditory perception problems, 7,
Aphasia, 46 8-9,16,18
Apoxia and coordination prob- Auditory processing in dyslexics,
lems, 149 36
218 Index