l Issues
l Issues
Chapter 2
2 Learning Objectives
Understand . . .
The goal of “no harm” for all research activities and what constitutes no harm for participant, researcher,
and research sponsor.
3 Learning Objectives
Understand . . .
Differing ethical dilemmas and responsibilities of researchers, sponsors, and research assistants.
“Today, it would be remiss to say that the privacy profession is anything but flourishing. Companies are
increasingly hiring privacy officers and even elevating them to C-suite positions; the European
Commission has proposed a statute in its amended data protection framework that would require data
protection officers at certain organizations, and, at the International Association of Privacy Professionals
(IAPP) membership recently hit 10,000 worldwide.”
5 Ethics are norms or standards of behavior that guide moral choices about our behavior and our
relationships with others.
The goal of ethics in research is to ensure that no one is harmed or suffers adverse consequences from
research activities.
Violating
disclosure
agreements
Misrepresenting
results
Breaking
confidentiality
Deceiving
participants
Ethics are norms or standards of behavior that guide moral choices about our behavior and our
relationships with others. The goal of ethics in research is to ensure that no one is harmed or suffers
adverse consequences from research activities.
Unethical activities are pervasive and include many types of activities. Some of these are listed in the
slide.
For some researchers, ethical and legal norms are the same. The text authors feel that legal constraints
are the minimum standard but not the ideal.
Padded
invoices
Avoiding
legal liability
8 Ethical Codes of Conduct
These organizations offering codes specifically for researchers. Some of the logos in the slide are linked
to the respective organization’s website where you can view the codes of ethics.
Do no harm
Research must be designed so that a participant does not suffer physical harm, discomfort, pain,
embarrassment, or loss of privacy. This slide lists the three guidelines researchers should follow to
protect participants.
When discussing benefits, the researcher should be careful not to overstate or understate the benefits.
Informed consent means that the participant has given full consent to participation after receiving full
disclosure of the procedures of the proposed study.
Researcher Intro
Reveal sponsor
Describe purpose
Research must be designed so that a participant does not suffer physical harm, discomfort, pain,
embarrassment, or loss of privacy. This slide lists the three guidelines researchers should follow to
protect participants.
When discussing benefits, the researcher should be careful not to overstate or understate the benefits.
Informed consent means that the participant has given full consent to participation after receiving full
disclosure of the procedures of the proposed study.
Voluntary Participation
Permission to begin
Competent to
Give Consent
Elements
Knowledge
of Risks
Voluntary
Consent
Since 1966, all projects with federal funding are required to be reviewed by an Institutional Review
Board (IRB). An IRB evaluates the risks and benefits of proposed research. The review requirement may
be more relaxed for projects that are unlikely to be risky – such as marketing research projects. Many
institutions require that all research – whether funded or unfunded by the federal government – be
reviewed by a local IRB.
The IRBs concentrate on two areas. First is the guarantee of obtaining complete, informed consent from
participants. The second is the risk assessment and benefit analysis review.
Complete informed consent has four characteristics and these are named in the slide.
Participants should know the possible risks or outcomes associated with the research.
Adequately Informed
12 Ethical Responsibilities
Special consideration is necessary when researching the behavior and attitudes of children. Besides
providing informed consent, parents are often interviewed during the selection process to ensure that
the child is mature enough and has the verbal and physical capabilities necessary.
true research
objectives
Deception occurs when participants are told only part of the truth or when the truth is fully
compromised.
Deception occurs when the participants are only told part of the truth or when the truth is fully
compromised. Deception can take two forms. One form relates to disguising nonresearch activities as
opinion or business research. For instance, research might be used to collect data that are used to sell
merchandise. Personal information could be collected for illegal purposes.
Sometimes researchers use deception as part of a research design. It involves camouflaging the true
research objects or the identity of the sponsor. This form of deception is used to prevent biasing
respondents or to protect the confidentiality of a third party.
Some researchers believe that deception should never occur. It is generally accepted in the industry that
the benefits to be gained by appropriate research design-based deception should be balanced against
the risks to the participants.
14 Protect confidentiality
Prevent biasing
participants
Protect confidentiality
of the sponsor
Deception occurs when participants are told only part of the truth or when the truth is fully
compromised.
Deception occurs when the participants are only told part of the truth or when the truth is fully
compromised. Deception can take two forms. One form relates to disguising nonresearch activities as
opinion or business research. For instance, research might be used to collect data that are used to sell
merchandise. Personal information could be collected for illegal purposes.
Sometimes researchers use deception as part of a research design. It involves camouflaging the true
research objects or the identity of the sponsor. This form of deception is used to prevent biasing
respondents or to protect the confidentiality of a third party.
Some researchers believe that deception should never occur. It is generally accepted in the industry that
the benefits to be gained by appropriate research design-based deception should be balanced against
the risks to the participants.
Debriefing
Share results
In situations where participants are intentionally or accidentally deceived, they should be debriefed once
the research is complete. Debriefing describes the goals of the research, as well as the truth and reasons
for any deception. Results are shared after the study is complete. Participants who require any medical
or psychological follow-up attention will receive it during the debriefing process.
Provide follow-up
Obtain signed
nondisclosure
Non-
All individuals have a right to privacy, and researchers must respect that right.
Obtaining signed nondisclosure documents – only researchers who have signed nondisclosure forms
should be allowed access to the data.
Methods 2-5 deal with minimizing the chance for a participant to identified and matched with his or her
responses. Links between data and identifying information must be minimized. Interview response
sheets should be inaccessible to everyone except the editors and data entry personnel. Data collection
instruments may be destroyed once data are in a data file. For very small groups, data should not be
made available if it would be easy to pinpoint a person in the group.
Right to Privacy
Right to refuse
For researchers to fully address participants’ right to privacy, they must also 1) inform participants of
their right to refuse to answer any questions or participate in the study; 2) obtain prior permission to
interview or observe participants; and 3) limit the time required for participation to limit the amount of
information collected to only that which is deemed critical.
18 Sponsor Confidentiality
Sponsor Nondisclosure
Purpose Nondisclosure
Some sponsors wish to undertake research without revealing themselves. They have a right to several
types of confidentiality.
Sponsor nondisclosure is used when the sponsor of the research restricts revealing the sponsorship. In
this case, the sponsor may hire an outside firm to complete the research projects.
Purpose nondisclosure is used when the sponsor camouflages the true research objective of the study.
Findings nondisclosure is used when the sponsor restricts the researcher from discussing the findings of
the research project.
Findings Nondisclosure
Changing data
Research must be designed so that a participant does not suffer physical harm, discomfort, pain,
embarrassment, or loss of privacy. This slide lists the three guidelines researchers should follow to
protect participants.
When discussing benefits, the researcher should be careful not to overstate or understate the benefits.
Informed consent means that the participant has given full consent to participation after receiving full
disclosure of the procedures of the proposed study.
role
Occasionally, researchers may be asked by sponsors to participate in unethical behavior. What can the
researcher do to remain ethical? There are four suggestions provided in the slide. The researcher can
attempt to
explain how distorting the truth or breaking faith will lead to future problems, and
Terminate
Relationship
Enforceable
Regulate
Protect
Many organizations have codes of ethics. A code of ethics is an organization’s codified set of norms or
standards of behavior that guide moral choices about research behavior. Effective codes are those that 1)
are regulative, 2) protect the public interest and the interests of the profession served by the code, 3)
are behavior-specific, and 4) are enforceable.
Specify Behavior
Deception
Ethics
Informed consent
Nondisclosure
Findings
Purpose
Sponsor
Right to privacy
Right to quality
Right to safety
Recruiting
Financial Disadvantage
Tracking Behavior
standards