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BIPOLAR DISORDER
Healthy Living with
Bipolar Disorder
I. ABOUT BIPOLAR DISORDER
a. What is Bipolar Disorder............................................................................ 17
b. Children and Adolescents with Bipolar Disorder.................................... 19
c. Treatment Modalities................................................................................ 31
d. Suicide and Bipolar Disorder.................................................................... 39
e. The Risks of Substance Use for those with Bipolar Disorder.................. 43
f. Pregnancy & Bipolar Disorder................................................................... 57
g. Stigma & Mental Illness............................................................................. 63
h. Aging........................................................................................................... 75
III. RESOURCES
a. Medication Chart..................................................................................... 203
b. Mood Chart.............................................................................................. 204
c. Medication Side Effect Check List......................................................... 205
d. Exercise Journal....................................................................................... 206
e. Food Log.................................................................................................. 207
f. Doctor Contact Sheet.............................................................................. 208
g. Questions for Doctor............................................................................... 209
B
ook Dedication
This book is dedicated to everyone touched by bipolar disorder. Whether you, or
someone you care about, have bipolar disorder, your strength and courage is an
inspiration to us all. We dedicate this book to you and wish you the best of health.
A special thanks to the children who inspired us to found this organization, Chris,
Court, Lauren and Sam.
The information compiled in this book is meant to provide useful information on the topic of Bipolar
Disorder. This book is not meant to be used, nor should it be used, to diagnose or treat any medical
condition. For proper diagnosis or treatment of any medical problem you must consult your own
physician. The publisher and authors are not responsible for any harmful physical or mental health
consequences resulting from the misinterpretation or misapplication of the information or advice
contained in this book. References provided are for informational purposes only and do not
constitute an endorsement by any of the contributors to the book or by the International Bipolar
Foundation of any websites or other sources.
2
Acknowledgments
The International Bipolar Foundation was founded in 2007 by four mothers with
children affected with bipolar disorder. Their desire to ensure a better future
for their children and others affected by this illness resulted in an organization
dedicated to improving understanding and treatment of bipolar disorder through
research.
In this manual, we are so fortunate to receive the support and input from many
experts in the field of bipolar disorder, practitioners, and those who have been
touched firsthand by the illness. They came together with the common goal of
presenting a book that would help anyone who has a connection to this disease.
Their desire to make a better future for them and others with the disease never
waned. The International Bipolar Foundation came into being through their tireless
work, vision and dedication.
We sincerely wish to thank our scientific advisory, honorary and advisory boards
that have continued to support the foundation.
Lastly, a resounding thank you to all who support the International Bipolar
Foundation by providing encouragement, guidance, and love to those affected
by this disease.
To your health,
3
Founded by four parents with children affected with bipolar disorder, the International
Bipolar Foundation is a not for profit organization whose mission is to improve
understanding and treatment of bipolar disorder through research; to promote care and
support resources for individuals and caregivers; and to erase stigma through education.
services; and to erase associated stigma through public education.
www.ibpf.org
We are proud to offer these programs and services free of charge to our global community:
Research
• Research Partner Program: Research Partner Program offers donors the opportunity
to personally select and sponsor scientists based on specific research aims, their
affiliated institutions, or a combination thereof.
Education
4
How To Use This Manual
This book was created to assist anyone touched by bipolar disorder. It is written by
a variety of authors with lived or expert experiences. The chapters contain helpful
information on a variety of topics that arise in everyday life, as well as resources
for dealing with specific issues facing those affected by this illness. Although the
book is written for an American audience, most of the material is transferable to
other countries and cultures. This book has also been translated into a variety of
languages and has country-specific chapters addressing how bipolar is treated
medically and culturally in that country.
It is our goal to provide new perspectives and helpful guides to healthy living, while
recognizing the stigma and challenges of bipolar disorder.
The binder format allows you to continue to add any additional information so that
this may become your ultimate reference book. Periodic updates will be posted at
www.ibpf.org which you can download and print for free.
If you are in a crisis please call Suicide Hotlines: National Hopeline Network:
(800) 784-2433 National Suicide Prevention Lifeline: (800) 273-8255 Suicide
hotline, 24/7 free and confidential. National Youth Crisis Helpline: (800) 442-
4673 International Suicide Information: www.befrienders.org
5
The Authors
Colin Depp
Colin A. Depp, PhD is an Associate Professor in the Department of
Psychiatry at the School of Medicine of the University of California, San
Diego (UCSD). He is a Staff Psychologist in the VA San Diego providing
clinical services, training, and research functions in the ASPIRE Center, a residential
treatment program for homeless returning Veterans. Dr. Depp is also the Deputy Director
of the Education and Training Division of UC San Diego’s Clinical and Translational
Research Institute and he is a faculty member at UCSD’s Sam and Rose Stein Institute
for Research on Aging. Dr. Depp received his bachelor’s degree from the University of
Michigan and his doctorate in clinical psychology from the University of Louisville. He
then completed a pre-doctoral internship at the Palo Alto Veteran’s Administration and
a National Research Service Award post-doctoral fellowship in the Division of Geriatric
Psychiatry at UCSD.
7
The Authors
Karen received her undergraduate degree in Dietetics at Buffalo State University College,
New York, and a Masters degree in Nutrition and Public Health, with an emphasis in
Exercise Physiology from Columbia University. Her Masters research at the University of
California in San Francisco included the study of child and adolescent obesity.
8
The Authors
Ellen Frudakis
Ellen Frudakis was born in Northern California and raised in the foothills
of Nevada County California. In 2004 she co-founded Impact Young
Adults (IYA), a nonprofit organization that provides social activities and
leadership development for young adults with mental illness. Since that time she has held
the role of Copresident, helping to build the organization along with its next round of
young leaders. A previous member of the Consumer Advisory Board, Ellen now serves
on the Executive Board of the International Bipolar Foundation. Ellen is also the recipient
of the International Bipolar Foundation’s prestigious Imagine award Ellen received
her Bachelor of Science degree in Human Services from Springfield College in 2005,
graduating with honors and earning the Student Humanics award for representing the very
principles of this degree program. She is currently in graduate school, working towards a
Master of Arts Degree in Nonprofit Leadership and Management at the University of San
Diego.
Susan’s shares her personal journey with clinical depression in her book, In the Shadow
of God’s Wings: Grace in the Midst of Depression. Susan works with several national
groups including serving on the Advisory Committee for NAMI FaithNet, the American
Association of Pastoral Counselors and the Board of Directors for Pathways to Promise.
9
The Authors
Christi Huff
Christi Huff was diagnosed with Bipolar II in 2005 after experiencing
eating disorders and struggling with anorexia, bulimia and depression in
college. Christi has worked on understanding her own illness and how to
manage it by turning to social media sites for more information and support. In addition
to holding a fulltime job as a paralegal, she is a partner and author of the website Ask A
Bipolar and is a monthly blogger for International Bipolar Foundation. Her goal is to use
her writing and support to help others. Christi wants others to know they are not alone
and hopes her work can help break the stigmas.
10
The Authors
Tom Jensen graduated Summa Cum Laude from UCSD with a Bachelor of Arts in
Chemistry. After obtaining his degree in Medicine from UCLA, Jensen did his residency
at UCSD followed by a Child Psychiatry fellowship at Stanford University.
Throughout his career, Dr. Jensen has been a department chair, written several
medical articles, been interviewed by news and radio, spoken to over 100 different
organizations, been President of the San Diego Chapter of the American Academy of
Child and Adolescent Psychiatry, held positions as both assistant and associate professor
and has received several awards including the American Psychiatric Association (APA)
Distinguished Fellow and a Special Presidential Commendation from the APA.
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The Authors
Kimberly Knox
Multidisciplinary inventor and of note, a patient with Bipolar I.
Ms. Knox was educated around the world, completing her Bachelors
degree in Philosophy of Art and Science at the Union Institute and University. Her
patented inventions include US6476069, “Compositions for creating embolic agents and
uses thereof” (11 patents), and (US61757086 pat. Pending) Moodwatch, among other
notable contributions in chemistry, biofluid mechanics and biomechanical engineering,
including awards and publications.
Her work in fine art and fine jewelry include bronze, fiberglas and fiberglas reinforced
plasters, glass, gold, platinum and precious stones with a permanent installation in the
collection of The Los Angeles County Natural History Museum. The integration-in fact a
fusion-of science and art seem to almost compliment this complex mental condition.
Wendy McNeill
Wendy McNeill is a Los Angeles native who moved to San Diego to attend
the University of California, San Diego, where she graduated with a B.A.
in literature/writing in 1995. Ever since, her professional and personal
pursuits have been as an educator, writer, and mental health advocate. She currently is a
tutor at San Diego Mesa College’s Writing Center, where she has worked with students
one-on-one for over ten years. Prior to her work at the college, Ms. McNeill was a recruiter
and assistant to the clinic manager at the medical research study, the Women’s Health
Initiative at UCSD. Later, she worked in marketing for Prudential. In the non-profit world,
Ms. McNeill served as the Editor-In-Chief of The Advocate, the NAMI (National Alliance on
Mental Illness) newsletter, for four years. Ms. McNeill continued to serve NAMI as a Peer
Mentor, an In Our Own Voice public speaker, and as a trainer for PERT, the Psychiatric
Emergency Response Team with the SDPD. In addition, Ms. McNeill served on the NAMI
Board for four years and is currently on the Board of MHA (Mental Health America.) Ms.
McNeill continues to advocate for people with mental illness in her blog, Wendy’s Whirl’d.
She has been published in Our Stories: Things We Knew Now We Wish We Knew Then
and bp magazine.
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The Authors
Anja Stevens
Anja Stevens is a psychiatrist from the Netherlands. She is a member
of the Board of the Dutch Foundation for Bipolar Disorders, chapter of
ISBD, and a member of the Board of the Dutch Knowledge Centre for
Psychiatry and Pregnancy. Her interests are bipolar disorder in general and, in particular,
bipolar disorder and pregnancy. Her current research focuses on the influence of sleep
disturbance in the perinatal period on postpartum psychopathology. She wrote, together
with Fleur Schreurs, a book on postpartum psychosis and translated, together with Bart
Geerling, Sharon Bracken’s book ‘Eli, the bipolar bear’ to Dutch.
13
The Authors
14
The Authors
She is a co-founder and the Vice President for the International Bipolar Foundation.
15
What is Bipolar Disorder?
By Lisa Selbst Weinreb, J.D.
Mood Changes
Symptoms of mania or a manic Symptoms of depression or a
episode include: depressive episode include:
• A long period of feeling • A long period of feeling
“high” or an overly worried or empty
happy mood • Loss of interest in activities
• Extremely irritable mood once enjoyed
or agitation
16
Behavioral Changes
Symptoms of mania or a manic Symptoms of depression or a
episode include: depressive episode include:
• Easily distracted • Feeling tired or “slowed
• Rapid speech, racing down”
thoughts • Having problems
• Increasing goal-directed concentrating,
activities, such as taking remembering, and making
on new projects decisions
• Decreased need for • Being restless or irritable
sleep • Change in eating, sleeping
• Having an unrealistic or other habits
belief in one’s abilities • Thinking of death or
• Behaving impulsively suicide, or attempting
and engaging in high suicide*
risk behaviors such as
spending sprees or
impulsive sexual activity
17
Children and Adolescents with
Bipolar Disorder
By Rob Friedman, M.D.
If you are a parent and have suspected or been told that your child may be suffering
from bipolar disorder, no doubt, you are somewhere in the process of trying to
understand what that means for you, your child and the rest of your family, now and
in the future. Not every child with a mood swing or tantrum however, has bipolar
disorder.
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When one suffers from an illness of the brain, instead of resulting in measurable
changes in blood pressure or blood sugar, it often results in less easy to measure
changes in one’s thoughts, feelings and behaviors. Just like in the examples above,
these alterations in one’s thoughts, feelings and behaviors, are often beyond one’s
control. We are raised however, to believe that we have the power and ability to
exercise control over our own thoughts,
feelings and behaviors. When we don’t,
we are held accountable and there are
consequences. This is reasonable in the
absence of a brain illness. When there is
an illness of the brain however, there are
chemical, cellular and structural changes
caused by the illness that, up until very
recently, have been difficult to observe
and measure. Since these changes are
difficult to observe and measure, people
have traditionally had a difficult time
believing such changes were real. The
belief that we should be able to control
our thoughts, feelings and behaviors,
coupled with the lack of evidence
that anything was physically altered in
the brains of people with disordered
thoughts, feelings and behaviors,
resulted in the bias and stigma that
people with a brain or mental illness
should somehow be able to have control
over the abnormal thoughts feelings
and behaviors from which they suffer. This stigma becomes fueled by our own
fears of not being able to control our own thoughts, feelings or behaviors while
failing to make the distinction between a normally functioning brain, and a brain
suffering from an illness.
During the last two decades, however, with advances in technology and the
development of sophisticated brain imaging techniques, the changes in the
brains of people who suffer from mental illnesses are more able to be observed,
measured and studied. While such scientific techniques are used in researching
brain illnesses, in most cases, these techniques are not yet available for examining
the brains of individuals for the purposes of assessing, diagnosing and treating
individual people who suffer from some form of mental, or brain illness.
After years of research, although we still probably know relatively little about the
functioning of the brain, there are some things we have learned about illnesses
of the brain, such as bipolar disorder. We know that in bipolar disorder, there
are often underlying genetic determinants found in the DNA inherited from
one’s ancestors that modulate the production and release of chemicals within
and between our brain cells, which have an impact upon how the brain works.
Depending upon which areas of the brain are affected, changes in one’s thoughts,
19
feelings and behaviors can be the result. While there are likely many other chemicals
involved, some of these chemicals are called “neurotransmitters.” Some of the
commonly known neurotransmitters include Serotonin, Dopamine, Acetylcholine
and Norepinephrine. Whether caused completely by genetics, or by an interaction
between something in the environment and our genetically inherited DNA, the
result can be structural and chemical changes in the brain that can change the way
we think, feel and behave. When these altered thoughts, feeling and behaviors are
recognized as abnormal, they are called “symptoms.” When there is a collection
of symptoms that have a negative impact on one’s successful functioning, we call
it an illness, a disease or a disorder. In the past, before we had a way to link these
symptoms of impaired thoughts, feelings and behavior to the physical structure of
the brain, we attributed them to the “mind” and understood them to be a result
of a “mental disorder.” It would seem that much of the confusion and stigma
surrounding these illnesses could be resolved if we began to understand these
illnesses for what they are: illnesses of the brain, or Brain Disorders.
It is difficult to argue against the idea that people are responsible and accountable
for their behavior. However, if we can understand that the child or adolescent
whose behaviors are the result of, or at least influenced by an illness affecting
his or her brain, through no fault of his or her own, it can help parents, siblings,
teachers, friends and clinicians maintain a posture of empathy and compassion,
while minimizing the tendencies toward frustration, anger and rejection. These
negative emotions may ultimately become a part of the environmental stresses
negatively impacting a child or adolescent with bipolar disorder, thereby possibly
contributing to a less positive outcome for them and the family. In order to
20
successfully maintain such posture,
much patience and self-control is
required, highlighting the need for self
care and supportive resources. It is
important to understand that reaching
such a level of equanimity may not
always be possible to achieve and
maintain, but it is helpful to recognize
this as an idealistic goal to strive toward
while parenting and interacting with
children and adolescents with bipolar
disorder.
Nevertheless, it is very difficult for a parent to hear, and accept that their child’s
mood or behavior may be the result of a serious psychiatric condition. As parents,
we want our children to be “normal,” and we struggle with accepting the news that
our child’s behavior may fall outside of the range of what is considered “normal,”
regardless of whatever the diagnosis may be. Suddenly, our hopes, dreams and
wishes for our child are being threatened. Making matters worse, as is true for
much of the world of medical science and research, the more we learn, the more
we realize how much we don’t know. It is important that one’s child be assessed
by a qualified, up to date clinician whom you feel comfortable with and have
confidence in.
In the past, bipolar disorder was called “Manic Depression” or “Manic Depressive
Disorder.” These terms are synonymous, but today, we refer to the condition
as “bipolar disorder.” Bipolar disorder is suspected when there are symptoms
suggestive of a “manic episode” or “mania.” as well as “depressive episodes,”
or “depression.” These episodes can be mild, moderate or severe. When very
severe, the depressive or manic episodes may be accompanied by misperceptions
of reality, or “psychotic symptoms,” such as delusional beliefs or hallucinations.
One of the problems with recognizing and diagnosing bipolar disorder is that for
21
some period of time, a person appears to be manic, while at other times, that same
person may appear to be depressed for a period of time, and at other times, that
same person may have a normal, or “euthymic” mood for a period of time. This
pattern is called Bipolar Disorder, Type I. If the manic episode is on the mild side,
sometimes it is referred to as “hypomanic” as it may not have quite reached the
diagnostic threshold of a full blown “manic” episode. Instead of being diagnosed
with Bipolar Type I Disorder, one may therefore be diagnosed with Bipolar Type
II Disorder. When there are mild depressive episodes alternating with hypomanic
episodes, this is sometimes called “Cyclothymia.” When someone has symptoms
suggestive of a bipolar disorder, but the symptoms do not fit any of the above
subtypes, it may be categorized as Bipolar Disorder Not Otherwise Specified
(NOS).
Adding further to the confusion, sometimes these mood shifts can last for weeks or
months, but at other times, these mood shifts can occur with a greater frequency,
and are referred to as “rapid cycling”
bipolar disorder. When the mood
shifts happen very frequently, such
as several times per day for several
days in a row, it is called “ultra rapid
cycling” bipolar disorder. If that
isn’t confusing enough sometimes,
people can have both manic and
depressive mood states overlapping
and present at the same time. This is
called a “mixed” episode of bipolar
disorder.
22
Let’s take a closer look at the symptoms of both manic and depressive episodes.
23
a decreased need for sleep and an increase in sexual interest or behavior, are
features strongly suggestive of bipolar disorder, as they are not generally part of the
presentation of ADHD. Another clue is that the symptoms of ADHD are generally
always present, while the symptoms of inattention, distractibility, hyperactivity and
impulsivity, when present in Bipolar Disorder tend to fluctuate as the episodes of
mania and depression fluctuate. However, since eighty five percent of children
and adolescents with bipolar disorder are likely to also suffer from ADHD, this
distinction is not always helpful.
Finally, if the above diagnostic challenges are not enough, the diagnosis of
bipolar disorder in children and adolescents is not without further controversy.
As mentioned above, in the last decade, there has been a dramatic increase in
the diagnosis of childhood onset bipolar disorder. While some parents resist the
identification of bipolar disorder in their children, other parents may seek such a
diagnosis as a means of explaining their child’s behavior, when the issues may have
more to do with behavior problems and parenting issues as opposed to bipolar
24
disorder. Still, other children may be diagnosed with bipolar disorder because
of the presence of severe tantrums and outbursts along with other disruptive
behaviors that warrant intervention, but there is no other diagnostic category that
is a better fit in categorizing their symptoms. Researchers have recently begun
examining the subset of children who may be given a diagnosis of bipolar disorder,
but who lack clearly defined episodes of mania and depression. Perhaps some of
these children overlap with ultra-rapid and rapid cycling presentations of bipolar
disorder in children and adolescents, while others may present differently. There
are some children who present with persistent and continuous severe irritability
along with a low frustration tolerance, leading to frequent and severe emotional
outbursts that are no longer developmentally appropriate for their age, and
may be accompanied by additional symptoms of sadness, anxiety, distractibility,
racing thoughts, insomnia and agitation. These children may be on a different
developmental trajectory than children with classic bipolar disorder. They may be
at risk for developing Depressive and Anxiety Disorders and not bipolar disorder
when they reach adulthood. A new diagnostic entity called Disruptive Mood
Dysregulation Disorder to identify and describe these children may be forthcoming.
Regardless of the label, the children who manifest these symptoms, as well as
their parents, siblings and others around them suffer greatly,
and the impairments from which these children suffer are
serious. A better understanding of these children, as well
If it turns out
as effective interventions and treatments to improve the
symptoms from which they suffer are clearly needed. that your child is
correctly diagnosed
To summarize, not everyone who has “mood swings” with bipolar disorder,
suffers from bipolar disorder. Although challenging, it is very important
a thorough assessment performed by a qualified and that your child be
competent clinician can help clarify the issues related
treated effectively and
to the mood swings, and facilitate
the establishment of the correct appropriately
diagnosis or diagnoses, which
There are very will lead to recommendations
effective treatments for appropriate interventions and
available that may treatment. If it turns out that your child is correctly
improve or control the
diagnosed with bipolar disorder, it is very important
symptoms of bipolar
that your child be treated effectively and appropriately.
disorder and allow your
Untreated or incompletely treated bipolar disorder
child every opportunity to
can lead to terrible consequences. There are very
lead a full, productive
effective treatments available that may improve or
and successful
life control the symptoms of bipolar disorder and allow
your child every opportunity to lead a full, productive and
successful life.
26
interpersonal relationships, one’s physical health and lifespan, as well as wreak
havoc upon families, other loved ones and friends. It is not surprising that many
people with bipolar disorder end up in jail. Bipolar disorder can result in premature
death due to high risk behaviors, including the use of drugs and alcohol, as well as
accidents, suicide, and the medical complications of poor physical health. One out
of four people with bipolar disorder will attempt suicide, sometimes resulting in
debilitating injuries, while one out of ten people with bipolar disorder will succeed
in committing suicide.
Although not something parents like to hear and often experience some
resistance to, prescribed medications are the mainstay of treatment for stabilizing
the moods in children and adolescents with bipolar disorder. There are several
medications approved by the Food and Drug Administration for the treatment
of bipolar disorder in children and adolescents. They include lithium, and the
second generation antipsychotics (SGAs) Risperdal, Abilify, Seroquel, and Zyprexa.
However, it is important to keep in mind that many medications used to treat
childhood illnesses, including childhood cancers, may be FDA approved for use
in adults, but not for use in children. Often times, we extrapolate the use of these
medications from adults to children and adolescents. There are several other
medications that have been or are used to treat bipolar disorder in children and
adolescents with varying degrees of success. They include the anticonvulsants
Depakote, Tegretol, Trileptal, Topamax, Neurontin and Lamictal, as well as other
SGAs’, such as Geodon and Clozaril. Many of these medications are used alone or
in combination, depending upon each individual’s unique circumstances.
The use of antidepressant medications, such as the SSRIs’, including Prozac, Paxil,
Zoloft, Celexa and Lexapro, while often helpful in treating depressive symptoms
in children and adolescents, pose serious risks when used in attempting to treat
depressive symptoms in the context of bipolar disorder in children and adolescents.
27
Activation, disinhibition, the triggering of a manic episode and the worsening of
mood symptoms are not uncommon results. If these medications are to be used,
caution and careful monitoring are required (see section on medication treatment).
Since it is not unusual for bipolar disorder to be present along with other psychiatric
disorders most commonly ADHD or Anxiety Disorders sometimes, combinations of
medications to treat more than one disorder is indicated. Treatment can be very
challenging, as the symptoms of one disorder may worsen when trying to treat the
symptoms of a co-occurring disorder with medication.
Each medication or combination of medications has its pros and cons, upsides
and downsides, risks and benefits. Different medications or combinations of
medications may be warranted in different circumstances at different times. Each
medication may have an unwanted effect on some other area of the brain or other
parts of the body than intended, with the potential for causing unwanted side
effects. These side effects can range from short-term temporary annoyances,
to long-term and permanent problems. However, just because there is a risk of
developing a certain side effect, does not mean that one will develop that side
effect. One must also keep in mind that there are serious potential risks in not using
medications to treat the symptoms of bipolar disorder. Becoming educated about
these medications and discussing the various treatment options and alternatives
with a child and adolescent psychiatrist in whom you have trust and confidence
are the first steps. If medications are prescribed, participating in regular medical
follow up visits with the child and adolescent psychiatrist in order to monitor the
symptoms and treatment response, as well as for the potential of unwanted side
effects is essential in ensuring that your child receives every opportunity to obtain
the best treatment available.
Knowledge is Power
Although it may not be obvious, children and adolescents with
unstable moods as the result of bipolar disorder are often
frightened about how out of control they feel. Although Children and
challenging, it is important for parents to do all that adolescents with
they can to stay in the role of the adult. Staying calm
in the face of upsetting situations and reacting to
unstable moods as
your child’s out of control behavior in a thoughtful the result of bipolar
and rational way that models being “in control” is disorder are often
not always easy. However, such a stance can have frightened about
a significant impact on increasing the chances of how out of control
a positive outcome for your child and your family.
Your child needs you and is relying on you to make the they feel
right choices and decisions while shepherding your child
through childhood and into adulthood. Learn as much as you
can from the reliable resources available, and make the best decisions you can for
the health, safety and future of your child.
28
References:
Hamrin, V. and DeSanto Iennaco, Psychopharmacology of Pediatric Bipolar
Disorder, Expert Review of Neurotherapeutics;10 (7): 1053-1088 (2010).
Pavuluri, Mani N., Birmaher, Boris, Naylor, Michael W., Pediatric Bipolar Disorder:
A Review of the Past 10 Years, Journal of the American Academy of Child
and Adolescent Psychiatry, Volume 44, Issue 9, Pages 846-871, September,
2005.
Birmaher, Boris, MD, Axelson, David, MD, Goldstein, Benjamin, MD, Strober,
Micael, Ph.D., et. al, Four-Year Longitudinal Course of Childhood and
Adolescents with Bipolar Spectrum Disorders: The Course and Outcome of
Bipolar Youth (COBY) Study, American Journal of Psychiatry, 166: 795-804
(2009).
Kowatch, MD, PhD, Monroe, CNS, Erin, Delgado,MD, Sergio, Not All Mood
Swings Are Bipolar Disorder, Current Psychiatry, Vol. 10, No. 2, February,
2011.
www.nimh.nih.gov
www.aacap.org
29
Treatment Modalities
By Thomas S. Jensen, M.D.
MOOD STABILIZERS
Within this category there are the Mood Stabilizers and the Anti-Psychotic (or
Atypical) Mood Stabilizers, the later having different characteristics, advantages,
and disadvantages from the more traditional Mood Stabilizers. In routine practice,
monotherapy or using only one, is often not effective for acute and/or maintenance
therapy. Therefore, most patients are given a combination of therapies.
YY Mood Stabilizers: drugs for mood disorders include both lithium and a
group of drugs developed to treat epilepsy called anticonvulsants.
Anticonvulsants (brand/generic):
• Depakote (Epival)
• Depakene (Valproic Acid)
• Keppra (Levetirecetam)
30
• Klonopin (Clonazepam)
• Lamictal (Lamotrigine)
• Neurontin (Gabapentin)
• Tegretol (Carbamazepine)
• Topomax (Topiramate)
• Trileptal (Oxcarbazepine)
• Zonegran (Zonisamide)
32
Tardive Dyskinesia or “TD.” TD is a serious disorder in which involuntary
movements can develop, most commonly involving the mouth, lips, or
tongue, but can occur elsewhere in the body. It often begins with wiggling
movements of the tongue, giving the appearance of a “bag of worms”
when the patient sticks their tongue out. Lip smacking is also a common
manifestation, and the movements can spread to other areas of the face and
involve the neck, shoulders, and other areas of the body. It is important that
the prescribing physician monitor for this side effect when these medications
are used, particularly on a long-term basis.
A very rare but very serious side effect is called Neuroleptic Malignant
Syndrome, or NMS. NMS is a life threatening medical emergency. It is
characterized by a rising body temperature to the point of being dangerous
(it can climb above 104 degrees Fahrenheit). The muscles at the same time
become very stiff, which probably generates some of the heat leading
to the high temperature, though most of this heat is likely caused by the
temperature regulating mechanism in the brain not working well. The
prolonged muscle contractions can lead to popping of muscle cells which
then release proteins called muscle enzymes into the blood. In sufficient
quantities, these enzymes can more or less clog up the filtering elements of
the kidneys and lead to kidney failure. The patient often becomes confused,
and the blood pressure can begin to vary widely. This syndrome requires
immediate treatment at the nearest hospital emergency room.
ANTI-DEPRESSANTS:
Antidepressant refers to several families of drugs, which, as the name implies, are
designed to combat depression. This family includes Selective Serotonin Reuptake
Inhibitors (SSRI), Serotonin Antagonist and Reuptake Inhibitor (SARI), Serotonin-
Noradrenaline Reuptake Inhibitor (SNRI), Norepinephrine-Dopamine Reuptake
Inhibitor (NDRI), Tricyclic (TCA), and Monoamine Oxidase Inhibitors (MAOI).
The use of traditional antidepressants to treat bipolar depression is considered
experimental, and none are FDA-approved for that purpose. There is no research
to show that they have any greater benefit than taking a mood stabilizer (such
as lithium or Depakote) alone. Many of the existing studies of their efficacy have
focused mainly on people with unipolar rather than bipolar disorder.
Using antidepressant medication alone to treat a depressive episode is not
recommended. The drugs may flip a person, particularly a person with bipolar
I disorder, into a manic or hypomanic episode. Hypomania is a more subdued
version of mania. Using antidepressants alone also may lead to or worsen rapid
cycling in some bipolar patients. In rapid cycling, a person has 4 or more distinct
episodes of mania/hypomania or depression over a 1-year period. And while
they may “recover” more quickly from depression, they may be more prone to
experience a relapse or the next phase of illness sooner and more often than
people without rapid cycling.
Nevertheless, there are many different types of antidepressants used to treat
depression in people with bipolar disorder. With antidepressants, it typically takes
33
three to four weeks for people to respond to treatment. Sometimes a doctor will
try several different medicines before finding one that works for a patient. These
medications include SSRIs such as Zoloft or Prozac, SNRIs such as Effexor, and
novel antidepressants such as Wellbutrin. (WebMD)
Note: The FDA has determined that antidepressant medications can increase the
risk of suicidal thinking and behavior in children and adolescents with depression
and other psychiatric disorders. If you have questions or concerns, discuss them
with your health care provider.
Commonly used anti-depressants:
• Anafranil (TCA: Clomipramine hydrochloride)
• Celexa (SSRI: Citalopram Hydrochloride)
• Cymbalta (SNRI: Duloxetine
• Effexor (SNRI: Venlafaxine)
• Lexapro (SSRI: Escitalopram Oxalate)
• Luvox (SSRI: Fluvoxamine Maleate)
• Paxil (SSRI: Paroxetine Hydrochloride)
• Prozac (SSRI: Fluoxetine Hydrochloride)
• Desyrel (SARI: Trazodone)
• Wellbutrin (NDRI: Bupropion)
• Zoloft (SSRI: Sertraline Hydrochloride)
“Natural” approaches
NATURAL APPROACHES: have also been
Two “natural” approaches have also been demonstrated in studies
demonstrated in studies as useful for bipolar as useful for bipolar
depression. depression
YY High dose omega-3 fatty acids in the form
of fish oil. The original studies done in the 1990s
looked at doses in the 3 to 6 grams a day range (3,000
to 6,000 mg a day). There are two important things to
note when buying fish oil. The better ones are “enteric coated,” meaning
they don’t release the oil until it has already passed through the stomach.
This can minimize unpleasant tastes if one burps after taking it. Some
preparations, which tend to be expensive, are bottled in an oxygen-free
environment so that the fish oil does not “oxidize.” This type of fish oil does
not smell or taste like fish and can often be comfortably ingested as a liquid.
YY Inositol: Inositol is sometimes referred to as “vitamin B8” and is sort of an
unofficial B vitamin. It is also structurally similar to glucose. Inositol is present
in large quantities in the membranes of nerve cells and is also involved in
the functioning of serotonin neurons. Serotonin neurons are well known to
play a role in depression.
34
NON-MEDICATION APPROACHES:
There are non-medication but still biologic approaches to treating bipolar
depression.
YY Electroconvulsive Therapy (ECT). This involves using an electrical pulse,
while the patient is anesthetized, to induce a seizure. Typically a series of 6
to 12 sessions is used. Often this puts the depressed person into a mania,
and then additional mood stabilizers are used to treat the mania. (http://
ibpf.org/electroconvulsive-therapy)
YY Transcranial Magnetic Stimulation (TCMS or TMS) is a series of magnetic
pulses applied to precise brain areas. (http://ibpf.org/use-transcranial-
magnetic-stimulation-treatment-mood-disorders)
YY Deep Brain Stimulation: Microelectrodes are inserted into a very specific
nest of cells in the brain. Once the appropriate frequency and amplitude of
the electrical impulses are found, this seems to treat the depression.
YY Sleep deprivation, under medical supervision, can also help one get out
of a depressed state. The reason this should only be
done with a doctor prescribing it is that one can quickly
go from depressed to a mixed or manic state following
sleep deprivation.
YY Cognitive Behavioral Therapy (CBT): is a
psychotherapeutic approach that addresses
dysfunctional emotions, maladaptive behaviors and
cognitive processes and contents through a number
of goal-oriented, explicit systematic procedures.
YY Dialectical Behavior Therapy (DBT): is a therapy
designed to help people change patterns of behavior
that are not effective, such as self-harm, suicidal
thinking and substance abuse. This approach works
towards helping people increase their emotional and cognitive regulation
by learning about the triggers that lead to reactive states and helping to
assess which coping skills to apply in the sequence of events, thoughts,
feelings and behaviors that lead to the undesired behavior. (http://ibpf.org/
debra-meehl-dialectical-behavior-therapy-dbt)
YY Family Focused Therapy (FFT): is a therapy where all family members
are included, and consists of several stages, beginning with psychotherapy
about the symptoms and etiology of bipolar disorder and the need for
medication adherence. Families are taught to respond early to emergent
symptoms and provided with training about the best coping responses.
Light Therapy: Outside walks in the sunshine or the use of a full spectrum
artificial light called a phototherapy light can be helpful. It is important to use
the phototherapy light carefully and under the supervision of a psychiatrist,
as overexposure to light can trigger a mania or a mixed state.
35
YY Interpersonal and Social Rhythm Therapy (IPSRT): is a compelling
adjunctive therapy for people with mood disorders, and it emphasizes
techniques to improve medication adherence, manage stressful life events,
and reduce disruptions in social rhythms. IPSRT teaches patients skills that
let them protect themselves against the development of future episodes.
YY Lifestyle Choices:
• It is very important not to repeatedly go on and off your medications,
as sometimes the drugs don’t work the second time around after being
discontinued. This is particularly important in a difficult to treat form of
the illness and if multiple medications were tried before you became
stable. You can lose your response and have few alternatives available,
all because the medication was stopped.
• Maintaining a sleep pattern of going to bed at the same time every night
and getting up at the same time every morning is important. (http://ibpf.
org/circadian-clocks-bipolar-disorder)
• Drugs of abuse are very destabilizing. This is true for all drugs of abuse,
including Cannabis. Of the two general categories of Cannabis, Cannabis
Sativa (the stimulating variety) is far worse than Indica (the sedating
variety) though Indica is well known to induce depression with chronic
use. Stimulant abuse including cocaine is very destabilizing as is the club
drug Ecstasy. Even alcohol can trigger depression. In general, if you have
bipolar disorder, it would be best to not use any substances.
• Adequate nutrition is very important (see chapter X) (http://ibpf.org/
advanced-nutrient-therapies-bipolar-disorders-dr-william-walsh)
• Regular aerobic exercise, preferably in the morning and outside to get
the sunlight in the winter, seem to help keep the biologic clock regulated
and the mood stable.
• Mindful Meditation & Yoga: (http://ibpf.org/mindful-meditation-bipolar-
disorder-can-it-help) (http://ibpf.org/yoga-and-mood-disorders) (http://
ibpf.org/meditation-medication-magic)
Bipolar disorder is an illness that can be treated effectively.
With optimal treatment and proper lifestyle choices,
most bipolar individuals can lead happy, healthy,
productive lives.
The key is to seek optimal treatment, comply with Bipolar disorder
recommendations, don’t stop your medications, is an illness that
and make healthy lifestyle choices.
can be treated
effectively
36
37
Suicide and Bipolar Disorder
By Dr. Tom Jensen, M.D.
The purpose of this chapter is to describe what we know about suicide in bipolar
individuals, as well as to describe how one can go about minimizing the risk of
this terrible outcome. There are helpful tools to help prevent suicide in all three
of the interventions that we use to treat people with bipolar disorder, including
environmental, medication, and therapy interventions.
Twenty years ago, the generally published and truly horrifying statistic was that 20
to 25% of bipolar individuals ultimately died by suicide. However, there has been
a substantial reduction in the suicide death rate in individuals with bipolar disorder
with improved treatment. The 5% to 10% suicide rates that are now quoted seem
to reflect that treatment is having a substantial impact on reducing suicide in those
with bipolar disorder.
That said, one suicide is too many, and even a 5% rate is approximately 30 times
higher than in the general population. We need to get better at treating this
illness, and we need to apply what we know to reduce the risk further. There are
tools that we know help, and therefore the challenges now are to be sure these
tools are included in the treatment of each person with bipolar disorder. Of course
while using what we know, we must continue to fund research into this illness and
find better ways to treat or prevent it.
Unfortunately, there is no perfect formula that will predict who will make a suicide
attempt. However, there are some
common characteristics in those
who die by suicide. The first and one
of the most important of such risk
factors is a mother, father, sister, or
brother who has committed suicide.
This is the single greatest multiplier
of suicide risk. Those who commit
or attempt to commit suicide are
typically in a state of distorted
thinking in which the suicide victim
convinces themselves that they are
in so much pain that it isn’t worth
staying alive and that those around
them will be better off without them.
The second multiplier is substance abuse. A majority of suicide victims have drugs
or alcohol in their system at the time.
38
that if we were given a large grant to reduce the number of suicide deaths in a
community, the most effective thing we could do would be to provide trigger locks
and gun safes.
Perhaps one of the best suicide preventers is to help the person discover what it is
that they have to give to other people and the world, and to help them develop that
talent. Without believing one has something of value to contribute, it is extremely
difficult to address social isolation and poor self-esteem.
All of us would like to know of any warning signs that a suicide attempt is imminent.
The answer is sometimes there are, but sometimes the suicide occurs in a severe
mixed state that occurs suddenly, and friends may have no way of seeing it coming.
The warning signs that can tip one off are several, include talk of suicide or death,
or just references to death. The individual may “put their affairs in order” by giving
things away, updating a will, going through the garage full of stuff, and doing the
things that would make it easier on those they leave behind. Acquiring information
online about how to commit suicide or researching materials to help one commit
suicide are of course major red flags. Rehearsal, in the form of visiting the place
one plans to commit suicide, tying a rope, or dry firing a gun are all serious red
flags as well.
39
What can one do to minimize the likelihood that they or a loved one with bipolar
disorder will commit suicide? In addition to securing firearms, treating or
preventing substance abuse, helping the person to build a support group, and
being especially vigilant with those who have lost a close relative to suicide, there
are additional interventions available.
It is so important that those with bipolar disorder seek treatment with psychiatrists
who are skilled at treating this illness. Sadly, it is not safe to assume that all
psychiatrists treat this illness well. In order to find a physician
where you reside, it may be helpful to go to the consumer
support groups or call them and ask “who is the best?”
The family can In this illness, where the mood can pivot on a dime, the
implement strategies psychiatrist needs to be responsive when you need to
speak with him or her.
to lessen social isolation
and help their bipolar loved There are also specific psychotherapy interventions
one to find one’s gift, and that can be performed by a therapist or psychiatrist.
applying it so as to gain a The therapy of bipolar illness should typically include
sense of usefulness and the following elements: patients, and if possible
worth family members, should learn how to recognize
depression, mania or hypomania, and mixed states. It
is best if a mood chart is used to spot seasonal and other
patterns. Also, charting the mood helps a person recognize
that it is the illness making them feel badly, not just the events in their daily life.
(See mood chart in the reference section) Once a person
knows how to identify specific mood states, they can then
receive cognitive behavioral therapy to learn skills to
deal with the feelings and distorted thoughts in each
mood state. The therapist can also work with the
Having a written plan
patient and their family to make the home safer.
In addition, the family can implement strategies to of what to do if you
lessen social isolation and help their bipolar loved or one’s loved one is
one to find one’s gift, and applying it so as to gain contemplating suicide
a sense of usefulness and worth. The therapist can can be helpful
also monitor and encourage medication compliance.
Since, noncompliance with medications is a common
dilemma with people with bipolar disorder, which in turn
can lead to suicidal thoughts.
Another intervention is to have trusted friends or relatives know about the illness
and become educated about it, so that they can observe and help the affected
person when they experience altered mood states. Spouses should be invited to
appointments with a psychiatrist or therapist.
40
Additionally, having a written plan of what to do if you or one’s loved one is
contemplating suicide can be helpful. The midst of the crisis is not the best time
to figure out who to call. Such a plan should probably include several elements:
3. A reminder that calling 911 is a safe thing to do if one is feeling suicidal and
is having trouble accessing the psychiatrist or therapist.
If you are in a crisis please call Suicide Hotlines: National Hopeline Network:
(800) 784-2433 National Suicide Prevention Lifeline: (800) 273-8255 Suicide
hotline, 24/7 free and confidential. National Youth Crisis Helpline: (800) 442-
4673 International Suicide Information: www.befrienders.org
41
Throwing Water On A Grease Fire:
THE RISKS OF SUBSTANCE USE FOR THOSE WITH BIPOLAR DISORDER
By
Russ Federman, Ph.D., ABPP - University of Virginia
J. Anderson Thomson, Jr., MD - University of Virginia
Tom Horvath, Ph.D., ABPP - Practical Recovery, San Diego, CA
If you have bipolar disorder but you abstain from alcohol and other substances,
you may not need to read this chapter! Use of substances (including cannabis,
alcohol, cocaine, heroin, etc.) generally complicates the experience of bipolar
disorder. This chapter will explain why abstaining is the simplest and safest course
of action. However, we will also provide information about when you may consider
moderation as a potential option.
GABRIELLE
Gabrielle’s mood instability initially emerged around age 12. Her moods were often
dark and stormy characterized by strong irritability and frequent acting out. By high
school, pot was a daily part of life. It softened the painfulness of her depressed
mood and also took the edge off of some of her irritability. She did reasonably
well with her high school grades, but chose to pass on going to college. Instead
she found she was able to support herself through retail clothing sales. At age 20
one of her co-workers gave her some Oxycontin. She was curious, tried it and liked
it a lot. The guy who supplied the Oxycontin to Gabrielle’s coworker soon had
42
Gabrielle converted to heroin. It worked, or at least so she thought. She no longer
worried about where she was going with her life. She only had to worry about how
she would come up with money for more heroine. After losing her job and winding
up on the street, her family intervened and Gabrielle was hospitalized for heroine
detox and substance dependency treatment. The intervention was partly effective
as she finally stopped opiates, but she continued with her intermittent use of pot.
Over the next four years Gabrielle continued to work in retail. Her mood had shifted
to a moderately depressed state with intermittent episodes of strong irritability. At
age 25 she chose to start school at a small liberal arts college near her home town.
She began fall semester with strong hopes of getting her life back on track, but
she quickly found she had little in common with most of the 18 and 19 year-olds
in her general education classes. She also became increasingly anxious about her
academic performance. After all, she was out of practice.
To ease her distress, she began smoking pot on a nightly basis. Increasingly,
she found when she was high, her worries were replaced by a sense of energetic
euphoria. Sleep also became less important as she was regularly awake until
4:00 or 5:00AM surfing the web, chatting online and drawn into whatever caught
her fancy. She found she no longer cared about her grades or even attending
class. This trajectory took her towards a final first semester grade point of 1.3 and
academic probation.
When this reality set in Gabrielle crashed hard. Her euphoric energy was replaced
by despair and emptiness. She spent most of her time in bed and lacked the
motivation to deal with even the smallest details of her life. She was eventually
hospitalized due to her worsening condition only this time her diagnosis was
bipolar disorder.
Although we cannot say for sure, the cost of substance use in each case example
appears to be instigating a manic episode. The cost analysis takes us to the specific
question, was the substance use worth it? We assume you’ll agree that in both
cases the benefits were not worth the costs.
We need to acknowledge that the goals each had (to fit in, to relax) are reasonable
goals, and worth pursuing. Our work with bipolar individuals suggests that
substance use is often related to one or more of the following factors: desires to 1)
calm elevated energy or agitation, 2) lessen depression, 3) deal with the boredom
of mid-range mood, and 4) instigate, increase or prolong the intensity of the “up”
43
feeling of hypomanic mood. There is nothing surprising or abnormal about wanting
to feel calm, up (or more up), not down and not bored.
The problem with using substances to pursue these goals is that if the substances
are effective (as they are for most) it is difficult to moderate their use, particularly
when the user has bipolar disorder. Furthermore, when used in excess substances
typically: 1) can work so well that some of our other capacities (e.g., to socialize, to
relax) become atrophied, 2) do not work as well over time and can even diminish
or take away what they first provided (e.g., using cocaine for “energy” ultimately
results in becoming exhausted, 3) increase the risk of various problems (e.g.,
accidents, infections, arrest, etc.) and 4) can precipitate bipolar illness (an initial
hypomanic/manic episode or subsequent relapses.)
Perhaps you are thinking: “I see the risks here. I won’t let that happen to me. I’ll be
careful.” To reiterate, the simplest way to “be careful” is to abstain from substance
use. However, it is up to you to decide how much “margin for error” you want to
have. Although there are some aspects of bipolar disorder that may be beyond
your control, abstinence is entirely within your control. Consider how you’d feel if
continued substance use were to result in a full manic episode requiring psychiatric
hospitalization while retrospectively knowing that abstinence may have prevented
the whole ordeal.
The remainder of this chapter will provide information that can help you to consider
the moderation vs. abstinence issue in more detail. We will also review the statistics
about substance use and bipolar disorder, what we know (and hypothesize) about
how substance use interacts with bipolar disorder and how moderation can be
accomplished.
44
use disorder, with the others having other substance use disorders involving
marijuana, opiates, stimulants, etc.
Hepatitis C
While many of the complications of having a substance use disorder along with
bipolar disorder may not be surprising, some recent findings about the relationship
between bipolar disorder, substance use and Hepatitis C may not yet be well known.
Bipolar individuals with substance use disorders can be seven times more likely to
have Hepatitis C than patients with no mental illness (Himelhoch, S., McCarthy, J.F.,
Ganoczy, D., Medoff, D., Kilbourne, A., Goldberg, R., Dixon L., Blow F.C.,2009). In
one study nearly one third of individuals diagnosed with bipolar disorder and a
substance use disorder tested positive for Hepatitis C. This infection rate was five
times higher than the rate for either diagnosis alone (Matthew, A.M., Huckans,
M.S., Blackwell A.D., Hauser P., 2008). These high infection rates may be the result
of injection drug use and risky sexual behavior while intoxicated and/or manic.
Having Hepatitis C makes treating bipolar disorder more difficult. The most
common substance misuse problem with bipolar patients is alcohol, and patients
45
with Hepatitis C who are heavy alcohol users are more likely to have liver disease.
They can have hepatic fibrosis, accelerated liver disease progression, and higher
rates of sclerosis and hepatocellular carcinoma than Hepatitis C patients who avoid
alcohol which is to say their liver is weakened (Bhattacharya, R. and Shuhart, M.,
2003). But the medications used to treat bipolar disorder or alcohol dependence
may have adverse affects on the liver. For example, valproic acid (Depakote) can
improve drinking outcomes in alcohol dependent patients with bipolar disorder,
but it is connected with higher (and therefore unhealthy) levels of liver enzymes in
patients with Hepatitis C infection compared to those without it. Thus, the health
of the liver needs to be continually monitored and liver problems may require
adjusting bipolar medication dosages to sub-optimum levels.
Jail Time
You can guess that individuals who misuse substances also end up in jail more
often. Jail time is even more common when substance misuse is combined with
bipolar disorder. In one sample of inmates with bipolar disorder three out of four
were diagnosed with substance abuse disorders compared with only one of five in
a group of hospitalized bipolar patients (Quanbeck, C.D., Stone, D.C., Scott, C.L.,
McDermott, L.L., Frye, M.A., 2004).
Women overall have lower rates of substance abuse disorders than men, and women
have much lower rates of incarceration than men. But the association of substance
use disorders with arrest is particularly high in women with bipolar disorder. In
the sample already cited, women with bipolar disorder who are incarcerated were
38 times more likely to have a substance abuse disorder than a group of non-
incarcerated bipolar women being treated in the community (McDermott, B.E.,
Quanbeck, C., Frye, M.A., 2007).
So if substance use causes so many problems for those with bipolar disorder, why
do they do it? The explanation is self-medication: because mood regulation is so
difficult at times, substances are used to accomplish this task. There is evidence
to suggest that substance use does occur in an effort to cope with some bipolar
symptoms, and that some relief may come of this effort, at least initially. Of course,
46
if the “medication” seems to be working, it is easy to assume that it will continue
working with continued use. Here’s where there’s risk to encounter substantial
problems.
Consistent with this hypothesis is the finding that individuals with mixed mood
and/or rapid cycling states are twice as likely as others with non-mixed, non rapid
cycling mood to misuse drugs and alcohol (Sublette, E.M., Carballo, J., Moreno,
C., Galfalvy, H.C., Brent, D.A., Birmaher, B., John Mann, J., Oquendo, M.A., 2009;
and Tolivar, B.K., 2010). The agitation and turmoil of mixed moods and rapid shifts
can be difficult and substances can be used to ease the roller coaster-like intensity
of these moods.
Perhaps both substance use and bipolar disorder arise from a common underlying
factor or set of factors. We do know that sometimes the substance use disorder
comes first, appearing to promote the arrival of the bipolar disorder. It is as if the
consequences of substance use “stress the neurochemical system” and lead to the
onset of bipolar illness that might not have occurred in the absence of substance
use. The appearance of a manic psychosis after using hallucinogenic substances
is a prominent example of this possibility. However, in other cases substance use
disorders seem to develop secondary to bipolar disorder. They occur as a result
of the disorder. Substance use in manic states can easily become substance abuse
or dependence, because the individual is behaving impulsively and without using
good judgment or foresight. Quite literally, substance use impairs these capacities.
47
For reasons which we will explain, we strongly recommend
abstinence as the simplest and safest course of action for
most with bipolar disorder.
Here’s Why:
First consider all the factors that are shaping development somewhere between
the mid-teens and the mid-twenties: progression to post-high school options (for
many this is college), exploration of independence apart from the family unit, initial
decisions about life direction (selecting a collegiate major), clarification of one’s
own values apart from those of one’s family’s, dealing with realities of competition
within the academic and early career contexts, exploration of sexual and love
relationships, developing early stages of economic self-sufficiency, etc. Obviously
this list only offers a taste and is not fully inclusive.
One of the stronger influences during this stage of development entails the need
to fit in and establish strong interpersonal connection. This is pivotal because
to be successful in gradually lessening ties to one’s family unit, new connections
are needed to move towards. This need to belong and be accepted by peers
is particularly important when we consider the prevalence of alcohol use within
the university population. From the 2010 American College Health Assessment
(American College Health Association, 2010) which draws from a nationally
randomized sample of slightly more than 30,000 college students, we see 60% of
students reported alcohol use at least once in the last month. Even more relevant
is that students perceived 94% used alcohol within the past month. In other
words, they overestimate the extent of alcohol use by their peers. Of this group
of drinkers, close to 30% or almost one out of every three, said that when they
socialized or “partied” they consumed five or more alcoholic drinks. We see that
college students perceive most of their peers use alcohol, and amongst those who
do drink, almost one third consume enough alcohol to become intoxicated when
drinking. Such is life in the late teens and early twenties.
You might perceive this data differently and say “Wait, what about the 40% who
report not using alcohol?” We agree, that’s a substantial figure. But much more
powerful, is the fact that students “perceive” that nine out of ten students do drink.
In other words, abstinence is not a perceived norm in the university population.
When we reflect upon the importance of fitting in, it makes sense that many students
will want to behave in a manner that’s consistent with what they perceive their peers
to be doing. Making alternative choices is far more difficult. For instance, going
48
to a fraternity party and adhering to a one or two drink limit is a hard choice when
most in attendance are having many more. And when a student’s peers are among
those who are not doing well with moderation, then group affiliation can become
a slippery slope towards a student’s own excessive drinking. By choosing to form
close connections with a group of peers who drink, the student greatly increases
his or her own substance use risks. Combine that with a genetic predisposition
towards bipolar disorder and you’ve got a recipe for the kinds of dual diagnoses
problems that we listed earlier in this chapter.
We generally find through our work with many bipolar teens and twentysomethings
that alcohol moderation is usually not a successful strategy. More accurately, it
is one with very low success rates. If failure at moderation meant that one would
simply need to stop drinking and refrain from future alcohol use, then the substance
use outcome would be unfortunate yet correctible. But given that we’re looking
at the precipitation of bipolar onset or potential exacerbation of already existing
symptoms, then we really are referring to non-reversible outcomes. This in and of
itself should be sobering!
49
Keith generally refrained from drinking but sometimes he and his wife had a glass
of wine with dinner. He liked the wine for its flavor and the way it enhanced his
meal. He rarely felt the desire for more than a glass or two. And on those isolated
occasions where he went beyond that limit, he usually paid for it by having difficulty
awakening in time to arrive at his office when his work day started. If Keith were
being honest, he would acknowledge that his occasional slips into too much alcohol
were never worth it. At these times he would feel fatigued, cranky and on edge
for much the following day. He hated it. And he also rarely found that there was
anything extraordinary about his alcohol-related experience from the night before.
You see, Keith was more connected to the life satisfaction that he found through
structure, stability and abstinence as opposed to the excitement he had found
through his previous college substance use. He was at point in his life where the
entire equation for satisfaction and stability was different. Keith realized that the
cost benefit analysis, which he finally understood, pointed toward minimal or no
alcohol use. It just wasn’t worth it anymore.
50
we also don’t want to excessively generalize with excessive rigidity. Let’s parse the
issues with more specificity.
Stimulants
Stimulants represent is a broad category of drugs spanning the range from an
innocuous cup of coffee to smoking crack or injecting meth into one’s veins. The
effects are not unlike the continuum of symptoms from very mild hypomania to full
manic psychosis. But even at the mild end of the continuum, caution is in order.
There are some with bipolar disorder who don’t do well with even mild chemical
stimulation. They have a very low threshold for hypomanic activation. Caffeine or
energy drinks, even in low quantities can be a powerful catalyst for these individuals.
For others, a morning cup of coffee or two, or a mid-day energy drink is no big
deal. Apart from the very mild feeling of activation, a small degree of chemical
stimulation is just that. The task of the bipolar individual is to figure out where he
or she is on this continuum. Do one or two cups of coffee represent a light lift or are
they more like lighting a fuse? If the conclusion is that very moderate use of light
stimulants is benign, it’s important to remain mindful of their danger, especially
in today’s youth culture where caffeine and/or energy drinks are the chemical
supports which facilitate academic all-nighters or even the experience of “raging”
until the early morning hours. Eight or ten cups of coffee in a
day or five red bull drinks at night are not innocuous and
the outcome can be much more than bargained for.
And what about the use of psychostimulants used for treatment of Attention
Deficit/Hyperactivity Disorder? Their use is complicated for the bipolar individual
and must be closely monitored by a prescribed psychiatrist. The psychostimulants
can have the same potential to evoke elevated mood symptoms as do the other
stimulant substances. If they can be avoided, then there’s generally a better
chance for achieving bipolar mood stability. On the other hand, strong untreated
ADHD symptoms can wreak havoc on the task of bipolar treatment and sometimes
taking a prescribed psychostimulant (such as Adderall, Ritalin, etc.) may become
necessary. Suffice to say that the choices of when to use psychostimulants in order
to manage ADHD symptoms and co-occurring bipolar disorder is the purview of
psychiatrists who are knowledgeable about the interface of these two conditions.
The bipolar individual who uses these drugs as a study aid or to sustain energy
when the drugs are not specifically prescribed is again engaging in risky behavior.
51
Opiates
A similar risk-related rationale applies to pain medications. They act upon the
central nervous system to numb pain, including psychic pain. They are addictive,
both physiologically and psychologically while also having a depressant effect
upon mood. A few days use of opiates (Percocet, Vicodin, etc.) following a surgical
procedure is fully appropriate. But for the bipolar individual, using opiates to
numb the pain of depression, replace it with brief euphoria or to calm an agitated
state only opens the door towards deeper depression and increasing dependency
on the medication. As pointed out earlier it also erodes the capacity to manage
psychic pain. Given that developing tolerance for recurring depression is crucial
learning for those with bipolar disorder, it only makes sense that recurrent opiate
use is counterproductive towards this end.
Hallucinogens
The hallucinogens are a broad class of drugs such as LSD, ecstasy, mescaline
psilocybin, etc. They are nearly all produced and sold on the black market (illegally)
except for substances which are used in strictly controlled research conditions.
Because these drugs are not pharmaceutical quality, you never truly know what
you’re getting. And even if there was reliable information about the drug’s chemical
composition, each individual’s reactions to hallucinogenic drugs is unique. Five
people can take the same substance and have five widely different experiences.
When one has a bad experience with a hallucinogen, the “badness” can be acute
enough as to cause psychosis. As you’ve learned through other chapters there is a
risk for psychotic episodes with bipolar illness. We know that the more severe the
bipolar illness, especially the severity of manic episodes, the more likely there will
be episodes of psychosis with hallucinations and delusions (Goodwin and Jamison,
2007). It is obvious that the bipolar individual should refrain from drugs known to
induce hallucinatory highs and even psychoses. Essentially, the unpredictability
of hallucinogenic reactions and their positive correlation with manic psychosis is
strong enough to exclude these drugs from the realm of moderate use. The risks
for the bipolar individual far outweigh the rewards.
Cannabis (marijuana)
There are those that might argue that cannabis doesn’t belong within the group
of hallucinogens as it is not a powerful enough substance. But “not powerful
enough” really reflects how much is smoked. Besides, with today’s high-tech
growing processes the concentration of THC (tetrahydracannabinol), which is the
primary psychoactive substance in cannabis, is many times stronger than when the
drug first began to receive widespread social use in the late 1960’s.
The problem with cannabis is similar to what we see with alcohol or with the milder
stimulants. That is, it is perceived as fairly benign. In fact, there are some states
where its use is legal when medically prescribed and other states where possession
of small quantities represents a level of misdemeanor not much different than a
traffic ticket. It is this very perception of its benign characteristics that conveys the
most risk.
52
Let’s imagine that someone with bipolar disorder gets high on cannabis a couple of
times a month and essentially doesn’t experience any negative consequence (or so
they think). And precisely because they seem to do well with infrequent use, they
find that their use gradually becomes doubled. Even then, the thought of getting
high about once weekly may still seem infrequent enough so as to carry relatively
low risk. But what we’ve seen in clinical practice as well as through research data
is that more frequent cannabis use is positively correlated with higher frequency of
both bipolar onset and relapse (Baethge, C., Hennen, J, Khalsa, H.K., Salvatore, P,
Mauricio, T. and Baldessarini, R.J., 2008). There are also those with bipolar disorder
where even occasional use of cannabis brings about rapid mood destabilization,
particularly within the elevated mood phases. This low threshold for instability can
also be quite variable from one person to the next, depending upon one’s overall
emotional/psychological stability. In fact getting high at one point in a year’s time
may have very different impact upon one’s psyche than getting high at a different
point in the same year. In other words, there are multiple variables at play in
relation to the outcome of cannabis use, none of which make it a very predictable
substance.
For the average, mentally healthy person who is not bipolar, the occasional use
of cannabis may be no big deal. But for the individual with bipolar disorder, the
picture is different. There are the risks that occasional use will become more
frequent as well as the risk that even occasional use may still have negative impact
upon mood stability. We’ve simply seen the same outcome again and again within
the bipolar population. When people with bipolar disorder get high on cannabis
they experience stronger mood variability than if they abstain. And once they get
a handle on abstinence, they generally experience more sustained psychological
well-being.
We’ll conclude with a real life story which demonstrates the many of the risk and
reward issues discussed throughout much of this chapter.
53
Beth’s Bipolar Disorder and Summer Camp:
A Corrective Combination
Beth, who was a 22-year-old, third-year college student, loved to party. So did
most of her peers. At one point in her treatment she was consistently reporting
that her prior weekend had included too much alcohol and too little sleep. Her
medication adherence had become lax and she was continuing to have frequent
episodes of hypomania and depression. She truly wondered if she would ever see
stability again. She also had growing concerns about her capacity to effectively
create a productive and satisfying future
One summer, Beth was hired as a camp counselor for a summer-long residential
camp in a remote mountainous area. She initially was concerned about the radical
change to her lifestyle; but to her surprise, she saw the longest period of stability
since the onset of her bipolar disorder five years earlier. Beth’s recipe for stability
was initially imposed by the requirements of her job. Lights out was at 10 P.M.
and the camp day began each morning at 6:30 A.M. There were also few options
for after-hours partying with her counseling peers as most were in their cabins
with campers. Without much effort, she had developed a stable sleep cycle and
consistent medication adherence while also refraining from any drug or alcohol
use. She found that by the end of the summer she felt better than she had in a long
time. She essentially arrived at the same outcome as did Keith though she saved
herself many years of struggle.
Now Beth says “the best treatment for bipolar disorder is camp life.” She has
endeavored to maintain the same camp-like structure since her summer in the
mountains, holding it as an internal ideal, rather than an externally imposed
limitation. Although her risk of future relapse may never be zero, she loves her
stable and enjoyable life. She discovered that abstinence and camp life were
synonymous with her continued health and stability.
References
American College Health Association (2010). National College Health Assessment
II, Fall 2010 Reference Group Data Report. http://www.acha-ncha.org/docs/
ACHA-NCHA-II_ReferenceGroup_DataReport_Fall2010.pdf
Baethge, C., Hennen, J, Khalsa, H.K., Salvatore, P, Mauricio, T. and Baldessarini,
R.J. (2008): “Sequencing of substance use and affective morbidity in 166
first-episode bipolar I disorder patients.” Bipolar Disorders. 10:6. 738-741
Bhattacharya, R., Shuhart, M. (2003): “Hepatitis C and Alcohol.” Journal of Clinical
Gastroenterolog. 36: 242-253.
Frederick K. Goodwin and Kay Redfield Jamison. (2007): Manic Depressive Illness:
Bipolar Disorders and Recurrent Depression. 2nd Edition. New York, New
York: Oxford University Press.
54
Matthew, A.M., Huckans, M.S., Blackwell, A.D., Hauser, P. (2008): “Hepatitis C
Testing and Infection Rates in Bipolar Patients With and Without Comorbid
Substance Abuse Disorders.” Bipolar Disorder 10: 266-270.
McDermott, B.E., Quanbeck, C., Frye, M.A. (2007): “Comorbid substance use
disorder in women with bipolar disorder associated with criminal arrest.”
Bipolar Disorders, 9: 536-540.
Baillargeon, J., Binswanger, I.A., Penn, J.V., Williams, B.A, Murray O.J. (2009):
“Psychiatric Disorders and Repeat Incarcerations: The Revolving Prison
Door.” American Journal of Psychiatry. 166: 103-109
Onyike, C.U., Bonner, J.O., Lyketsos, C. G., Treisman, G.J. (2004): “Mania During
Treatment of Chronic Hepatitis C with Pegylated Interferon and Ribavirin,”
American Journal of Psychiatry 161: 429-435.
Quanbeck, C.D., Stone, D.C., Scott, C.L., McDermott, L.L., Frye, M.A. (2004):
“Clinical and Legal Correlates of Inmates with Bipolar Disorder at Time of
Criminal Arrest.” Journal Clinical Psychiatry 65: 198-203.
Sublette, E.M., Carballo, J., Moreno C., Galfalvy H.C., Brent D.A., Birmaher B.,
John Mann J., Oquendo M.A. (2009): “Substance Use Disorders and Suicide
Attempts in Bipolar Subtypes.” Journal of Psychiatric Research 43: 230-238.
Tollivar, B.K. (2010): “Bipolar Disorder and Substance Abuse.” Current Psychiatry
9: 33-40.
55
Pregnancy & Bipolar Disorder:
Taking Care of Both of You
By Depression & Bipolar Support Alliance (DBSA)
Shortly after the birth of her first baby boy, a healthy boy, Janine began feeling
down. Her entire body felt heavy, and she wanted to crawl away and hide, but
when she did get the chance to lie down and pull the covers over her head, she
couldn’t get to sleep. Even when her baby was sleeping, or when her husband
or mother was playing with him in another part of the house, she found sleeping
almost impossible. She also worried constantly about her baby-that something
would happen to him-he’d stop breathing, or tip over his bassinet. She would cry
for no apparent reason several times a day, and eventually began to wonder if
her baby and family would be better off
without her.
Janine is not alone. One of every ten new mothers experiences symptoms of
postpartum depression.
56
It can be hard to talk about feeling depressed after having a baby, because of
our society’s belief that this should be the “happiest time in your life.” If you are
suffering from postpartum depression, the time after you give birth feels anything
but joyful. You may feel as if you aren’t a good mother, or that the baby would be
better off without you. These feelings may make you feel ashamed or frightened,
and you may feel that you should hide them from your family and friends. However,
it is important that you can tell someone, whether it is your health care provider,
a family member, friend or clergy member, and that you seek help. You can feel
better, and getting treatment early is the best thing you can do for yourself, your
baby, and your family.
Postpartum depression is not just “the baby blues,” a mild feeling of sadness after
a baby is born that goes away on its own. If the “baby blues” don’t go away after 2
weeks, you could be suffering from postpartum depression, and should seek help.
You need not feel ashamed of having an illness-or of any treatment you may need
to feel better-any more than you would feel ashamed about having diabetes or
asthma and taking medication to stay healthy.
57
What Might Increase my Risk for Postpartum Depression?
Although postpartum depression can affect any woman who has recently given
birth, there are some factors that may increase your chance of having postpartum
depression, such as:
• A history of depression during or after previous pregnancies
• A history of depression or bipolar disorder at any time
• A history of depression, bipolar disorder or postpartum depression in
relatives
• Lack of support from family or friends
• Difficult life events happening around the time of your pregnancy or birth.
• Lack of stability in your marriage or relationship.
• Feeling unsure about your pregnancy.
If you are reading this before the birth of your baby and you’re concerned about the
possibility of developing postpartum depression, talk to your health care provider
before your baby is due. Symptoms of postpartum depression may also begin to
appear during pregnancy, discuss them with your doctor.
A skilled and interested doctor should address all of your concerns, but you may
have additional questions. Don’t leave the doctor’s office until all of your questions
are answered. Take notes if things seem complicated. If you have a lot of questions,
write them down before your appointment and bring them with you. Discuss your
most complicated or difficult issues first. You may want to ask for extra time with
the doctor when you schedule your appointment.
If you are having trouble communicating with your health care provider or if you
feel your needs are not being met, it is all right to look for another doctor who will
be better able to help you.
58
Some medications may have side effects, such as dry mouth, light-headedness,
sexual dysfunction or weight gain. Sometimes side effects go away on their
own; other times it helps to change medication. Don’t become discouraged if
you experience side effects-discuss them with your doctor and find out what
other options you have. There are many different medications available to treat
depression. All of them work, they just don’t work the same on everyone. If one
medication causes side effects or does not relieve your depression, another may
work well and have fewer side effects. Don’t give up. Never stop taking your
medications or change your dosage without first discussing it with your doctor.
Check with your doctor before using herbal, natural or over-the-counter remedies,
because sometimes they can interfere with prescribed medication.
PSYCHOTHERAPY
Psychotherapy or “talk therapy” can also be an important part of treatment.
Sometimes it can work alone; other times, symptoms of depression must be reduced
through another method of treatment such as medication before psychotherapy
can be effective. A good therapist can help you cope with the feelings you are
having and modify patterns in your life that may contribute to your depression.
Choose a therapist with whom you feel safe and whose judgment you trust. You
might choose to visit a psychologist, social worker, or counselor.
Other children may be affected too. It may be a good idea for one parent to spend
more time with other children and talk to them about what is happening in a way
that they can understand. You can explain depression as “not feeling good” or
“feeling sad because of chemical changes in your brain,” and explain that you are
getting treatment to help you feel better. It may be necessary to reassure children
that your illness is not their fault. You might want to ask your doctor or therapist
to sit down with the whole family and talk about your depression, it’s treatment,
how it affects them and what they can do. If any of your children have symptoms
of depression that interfere with their daily activities, school or friendships, talk to
your pediatrician about it.
59
What is Postpartum Psychosis?
Postpartum psychosis is far less common than postpartum depression, and it is
characterized by delusions (thoughts that are not true or logical, such as believing
you are receiving messages through the television) or hallucinations (seeing or
hearing things that aren’t actually there). It is extremely important to get help
immediately in cases of postpartum psychosis. Remember, it is a physical illness.
Postpartum psychosis is not something you can control by yourself,
but it is something you can treat with proper medical help.
Avoiding treatment because you are ashamed or afraid
may have tragic consequences.
A woman with
What if I was Already Diagnosed and depression or bipolar
Treated for Depression or Bipolar disorder can be an
Disorder Before I Became Pregnant? excellent mother-as
A woman with depression or bipolar disorder can be
good a mother as a
an excellent mother-as good a mother as a woman
without one of these illnesses. But a woman with a woman without one of
prior history of depression or bipolar disorder is at an these illnesses
increased risk to develop postpartum depression (1 in
4 develop postpartum depression) compared to a woman
with no prior history (1 in 10 develop postpartum depression).
Be the best mother you can by staying aware of your own moods, working with your
doctor to monitor your illness, planning appropriate treatment during pregnancy,
sticking with the treatment plan you are given and making sure you have a support
network in place before the baby is born. Your support network may include a
support group you attend, your family and friend, health care providers or other
new moms.
Prepare written plans with the help of your family about what should be done
if you should develop postpartum depression (or psychosis). These plans should
include the names and phone numbers of your health care providers, names of
medications which have worked for you in the past, medication allergies, insurance
information, and a list of people who are willing to take care of your baby and other
children if you are unable too.
60
What are Some Things I Can Do to Stay Healthy?
• Keep appointments with all your health care providers and
stick with your prescribed treatment plan.
• Learn all you can about postpartum depression
and its treatment.
• Keep track of your moods, things that cause With the right
you stress, and your response to treatment treatment and support,
in a journal. This may help you spot future
episode earlier.
you can feel like yourself
• Share your thoughts and feelings with others. again and be free to
• Set realistic expectations for yourself. Work enjoy life and your
on accepting yourself as you are. new baby
• Don’t skip meals, even if your appetite and
energy are low. Eat a variety of foods to get the
nutrients you need. Talk to your doctor about taking
vitamin supplements.
• Look for opportunities to be physically active. Even walking or climbing
stairs can help improve your mood and health.
• Develop stress reduction techniques, or ask your doctor about or therapist
to recommend some.
With the right treatment and support, you can feel like yourself again and be free
to enjoy life and your new baby.
Reproduced with permission of the Depression & Bipolar Support Alliance (DBSA)
brochure. Brochures are available at www.dbsalliance.org or by calling 1800-826-
3632.
61
Stigma & Mental Illness
By Muffy Walker MSN., MBA
The first known use of the word stigma occurred in 1593, with its origin from Latin
stigmat-, stigma mark, brand, or from the Greek, from stizein to tattoo.
I know that my sister loves me. I know that my friends love me. But
they still judge me and the stigma of being mentally ill still affects
the way they perceive me, hence.. the way they treat me. As a single
36 year-old man, I notice that many people meet women through
their friends and family. My sister and brother n’ law know plenty
of women that I would get along wonderfully with. I know they love
me, but there are never any introductions because of the stigma that
sticks, even to those closest to me. And that makes me sad. Bret W.
Stigmatizing others has been around for centuries. Criminals, slaves, or traitors had
a tattoo mark that was cut or burned into their skin in order to visibly identify them
as blemished or morally polluted persons. These individuals were to be avoided or
shunned, particularly in public places (1). Separating and judging groups by color,
religion, sexual orientation, medical conditions (i.e. leprosy), and mental ability
functions to establish a “us’ versus “them”. Discrimination, rejection, intolerance,
inequity and exclusion all result from being stigmatized.
62
According to the 2005 National Comorbidity Survey Replication study,
approximately 1 in 3 Americans experience a mental health disorder in any given
year. This translates to over 75 million individuals. Nearly half of Americans will
experience a mental health disorder at some point in their lifetime. It is likely that
you or someone that you know has or will experience a psychological problem.
The direct cost of mental health services, which includes spending for treatment
and rehabilitation, is approximately $69 billion in the United States. Indirect costs,
which refer to lost productivity at the workplace, school, and home, are estimated
at $78.6 billion. (2)
The stigma associated with mental illness adds to the public health burden of
mental
illness itself. In general terms, stigma is the status loss and discrimination triggered
by negative stereotypes about people labeled as having mental illness (3).
Mental disorder can strike anyone! It knows no age limits, economic status, race,
creed or color.
Why do we, as a society, stigmatize our friends, family, and other members of
our community? Perhaps it is due to a lack of education, mis-education, false
information, ignorance, or a need to feel superior. The media must also claim
responsibility for perpetuating the misconceptions about mental illness. Television
and news print tend to focus on those who commit violent crimes rather than those
with mental illnesses who contribute to our society. These infrequently committed
crimes are sensationalized on talk shows, on the cover of popular magazines, and
in headline news.
Current research shows that people with major mental illness are 2.5
times more likely to be the victims of violence than other members
of society. This most often occurs when such factors as poverty,
transient lifestyle and substance use are present. Any of these factors
make a person with mental illness more vulnerable to assault and the
possibility of becoming violent in response. (5)
Like most groups who are stigmatized against, there are many myths surrounding
mental illness. According to the National Alliance for Research on Schizophrenia
and Depression (NARSAD) here are the top 10.
Myths:
Myth #1: Psychiatric disorders are not true medical illnesses like heart disease
and diabetes. People who have a mental illness are just “crazy.”
Fact: Brain disorders, like heart disease and diabetes, are legitimate
medical illnesses. Research shows there are genetic and
biological causes for psychiatric disorders, and they can be
treated effectively.
Yes, they discriminate against us; They don’t count on us; Our society in Iran has
no capacity for us; I mean there is no cultural under- standing in our society; They
ridicule, insult and harm us; I wish they could understand that psychiatric patients
are like other patients, like patients with cancer or cardiac disease and that they
can live their lives. (15)
64
Myth #2: People with a severe mental illness, such as schizophrenia, are usually
dangerous and violent.
Fact: Statistics show that the incidence of violence in people who have a
brain disorder is not much higher than it is in the general population.
Those suffering from a psychosis such as schizophrenia are more
often frightened, confused and despairing than violent.
Myth #4: Depression results from a personality weakness or character flaw, and
people who are depressed could just snap out of it if they tried hard
enough.
Fact: Depression has nothing to do with being lazy or weak. It results from
changes in brain chemistry or brain function, and medication and/or
psychotherapy often help people to recover.
Myth #5: Schizophrenia means split personality, and there is no way to control
it.
Fact: Schizophrenia is often confused with Dissociative Identity
Disorder (previously called multiple personality disorder). Actually,
schizophrenia is a brain disorder that robs people of their ability to
think clearly and logically. The estimated 2.5 million Americans with
schizophrenia have symptoms ranging from social withdrawal to
hallucinations and delusions. Medication has helped many of these
individuals to lead fulfilling, productive lives.
Myth #7: Depression and other illnesses, such as anxiety disorders, do not
affect children or adolescents. Any problems they have are just a
part of growing up.
Fact: Children and adolescents can develop severe mental illnesses. In
the United States, one in ten children and adolescents has a mental
disorder severe enough to cause impairment. However, only about 20
percent of these children receive needed treatment. Left untreated,
these problems can get worse. Anyone talking about suicide should
be taken very seriously.
65
Myth #8: If you have a mental illness, you can will it away. Being treated for a
psychiatric disorder means an individual has in some way “failed” or
is weak.
Fact: A serious mental illness cannot be willed away. Ignoring the problem
does not make it go away, either. It takes courage to seek professional
help.
Myth #9: Addiction is a lifestyle choice and shows a lack of willpower. People
with a substance abuse problem are morally weak or “bad”.
Fact: Addiction is a disease that generally results from changes in brain
chemistry. It has nothing to do with being a “bad” person.
Despite the alarming number of people affected with a mental illness, statistics
show that only one-third of these individuals seek treatment. According to Dr.
Thomas Insel of the NIMH, psychiatry is the only part of medicine — where there
is actually greater stigma for receiving treatment for these illnesses than for having
them.
The stigma impedes recovery by eroding individuals’ social status, social network,
and self-esteem, all of which contribute to poor outcomes, including unemployment,
isolation, delayed treatment-seeking, treatment-refractory symptoms, prolonged
course, and avoidable hospitalizations. (7)
66
The downward spiraling behavior impacts everyone. The family member, friend
or boss who is not privy to the person’s illness, may misinterpret behaviors, once
again wrongly judging them.
Challenging stigma
Stigma, although powerful, does not have to be inevitable. Countries around the
world are joining forces to combat stigma and its harmful effects. Anti-stigma
campaigns, legislation, public education, mobilizing communities in anti-stigma
efforts, and personal commitments to end stigma are all underway. Changing
the belief systems of those who inflict stigma is only one aspect to producing
change, the second of which is to challenge the internalized negative beliefs of
the stigmatized.
• “On June 11, 2009 Wayne Cho completed a 8207 km cross-Canada run to
raise awareness for anxiety and depression. These debilitating illnesses
affect a great number of people and can cause great physical/mental/
emotional harm to not only the affected individuals, but also to those closest
to them. Wayne Cho has battled an anxiety disorder for many years and
knows all-too-well the stigma to which people suffering from mental illness
are subjected. His journey to achieve his dreams, the people that he has met
along the way, and the millions more people that are affected by mental
illness worldwide have inspired Wayne to challenge the stigma surrounding
these disorders.”
67
• Fidgety Fairy Tales—The Mental Health Musical is an original 40-minute
musical produced by the Minnesota Association for Children’s Mental
Health (MACMH) www.macmh.org
• The Iris the Dragon book series was developed in 2000 by Gayle Grass
in Ontario, Canada. It was created to help reduce the negative attitudes
that are associated with mental illness and to generate understanding and
awareness of mental health problems in children. www.iristhedragon.com
MASS MEDIA “Mass media is, far and away, the public’s primary source of information about
mental illnesses.”---Survey of public attitudes, Robert Wood Johnson Foundation
68
Why should we be concerned?
Mass media are those sources that reach vast audiences on a daily basis and include
television, film, radio, newspapers, advertising, and the Internet:
– the average American watches 4 hours of TV each day
– 1.36 billion movie tickets were sold in 2008
– 1.71 million DVDs were rented and over one billion sold in 2007
– the average Internet user spends 61 hours/month on the Internet (February
2009) (8)
Mass Media Tend to Inaccurately Show People with Mental Illness as Violent &
Dangerous
Not only does the media depict criminals as being mentally ill, they further expound
on the stigma by showing the mentally ill as unlikely to recover. Use of cartoons,
advertisements, and films ridicule the mentally ill and make light of their issues.
69
Recent research has found that:
– 48.6 percent of the public are unwilling to work closely on a job with someone
with depression
- The percentage of people associating mental illness with violence has doubled
since 1956. (13)
“Prejudice and discrimination in the U.S. aren’t moving,” said IU sociologist Bernice
Pescosolido, a leading researcher in this area. “In fact, in some cases, it may be
increasing. It’s time to stand back and rethink our approach.”
“Often mental health advocates end up singing to the choir,” Pescosolido said.
“We need to involve groups in each community to talk about these issues which
affect nearly every family in America in some way. This is in everyone’s interest.”
The research article suggests that stigma reduction efforts focus on the person
rather than on the disease, and emphasize the abilities and competencies of
people with mental health problems. Pescosolido says well-established civic
groups -- groups normally not involved with mental health issues -- could be very
effective in making people aware of the need for inclusion and the importance of
increasing the dignity and rights of citizenship for persons with
mental illnesses. (14)
70
Combatting Stigma:
So, what can we do to combat stigma? SAMHSA has a “4-P’s” approach: Praise,
Protest, Personal Contact & Partnership. Here are some specific do’s and don’t’s:
References
(1): (Healthline Network Inc., 2007)
(2): About.com
(3): Link & Phelan, 2001
(4): MHA Colorado
(5): Canadaian MH Assoc Ontario
(6): Lacondria Simmons: http://www.med.upenn.edu/psychotherapy/Stigma.html
(7): Link, Mirotznik, & Cullen, 1991; Link, Struening, Neese-Todd, Asmussen, &
Phelan, 2001; Perlick et al., 2001; Sirey et al., 2001; Struening et al., 2001
(8): Bryant, J. & Thompson, S. (2002). Fundamentals of Media Effects. McGraw-
Hill. Gerbner, G., Gross, L., Morgan, M., & Signorelli, N. (1980). The
“Mainstreaming” of America. Journal of Communication, (30), 10-29.
71
(9): Wahl, O., Wood, A., & Richards, R. (2002). Newspaper coverage of mental
illness: Is it changing? Psychiatric Rehabilitation Journal, Vol. 6, 9-31.
(10): Don Diefenbach (2007). Journal of Community Psychology, Vol. 35, 181-
195.
(11): www.samhsa.org
(12): Pescosolido, B.A., J.K. Martin, J.S. Long, T.R. Medina, J. Phelan, B.G. Link.
2010. “‘A Disease Like Any Other?’ A Decade of Change in Public Reactions
to Schizophrenia, Depression and Alcohol Dependence.” American Journal
of Psychiatry 167(11):1321-1330.
(13): Link, B.G., Phelan, J.C., Bresnahan, M., Stueve, A. & Pescosolido. B.A. (1999).
Public conceptions of mental illness. American Journal of Public Health, Vol.
89, 1328-1333.
(14): Pescosolido, B.A., J.K. Martin, J.S. Long, T.R. Medina, J. Phelan, B.G. Link.
2010. “‘A Disease Like Any Other?’ A Decade of Change in Public Reactions
to Schizophrenia, Depression and Alcohol Dependence.” American Journal
of Psychiatry 167(11):1321-1330.
(15) GHANEAN, H., NOJOMI, M., JACOBSSON, L.. Internalized stigma of mental
illness in Tehran, Iran. Stigma Research and Action, North America, 1, Feb.
2011.
72
Bipolar Disorder And Aging
By Thomas W. Meeks, M.D.; Colin A. Depp, Ph.D.
However, what is known is that most older people who have bipolar disorder have
lived with the illness for many years, as the mean age of onset is between age
20 and 25. These individuals would be referred to as “early-onset.” The cut-off
74
between “early-onset” and “late-onset” is often age 50, but varies from study
to study (Depp & Jeste, 2004). It is more common that “late-onset” individuals
experience neurological illnesses, such as a stroke or progressive dementias.
In fact, having a first depressive or manic episode after age 50 is certainly the
exception rather than the rule. If someone first shows signs consistent with bipolar
disorder after age 50, there should be a thorough work-up, including a CT or MRI
of the brain, to ensure that the symptoms are not due to a medical/neurological
disorder or due to substances (illicit drugs, alcohol, or prescribed medications). In
general, there are probably more similarities than differences between early- and
late-onset patients, but some difference are worth noting. For instance, late-onset
patients more often attain functional milestones such as employment and marriage
prior to the illness starting and are less likely to have first-degree relatives with
bipolar disorder. It should be noted that some seemingly “late-onset” cases may
actually be instances of years of misdiagnosed or undiagnosed bipolar disorder,
or instances in which the first manic or hypomanic episode occurs more than a
decade after the first episode of major depression. Ageist bias may also prevent
proper screening for certain symptoms of mania such as impulsive sexual activity
and other risk-taking behaviors. Comparing younger and older persons with
bipolar disorder, older people may experience less severe symptoms of mania,
as identified in a study of people hospitalized for mania (Young & Falk, 1989).
According to a large survey, community-dwelling older adults report experiencing
more depression- and mania-free days (Calabrese et al., 2003).
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excessive brain deposits of a protein called beta-amyloid. Cognitive impairments
are more prevalent in older adults with bipolar disorder compared to younger
adults. In one study, it was estimated that about 50% of persons older than age
60 with bipolar disorder display clinically significant cognitive impairment, even
when not depressed or manic (Gildengers et al., 2004). It is unclear at this point
if cognitive impairments worsen at a more rapid rate than that expected from
the normal course of aging, with data mixed as to whether this may be the case
(Gildengers et al., 2009; Schouws et al., 2012).
While less common than depression, symptoms that resemble mania (e.g., elevated
mood, impulsivity, rapid speech, decreased sleep, and irritability) may also occur
in up to 1-2% of persons who suffer a stroke. Mania caused by a stroke appears to
be more common if the stroke occurs in the right side of the brain (which in turn
usually affects the left side of the body) and may be more common if the affected
person has a family history of bipolar disorder, suggesting an underlying genetic
susceptibility. Strokes should be considered as a potential cause of late-onset
mania, especially if someone has notable stroke risk factors such as diabetes or
high blood pressure (Santos et al., 2011). On the flip side, however, older adults
with early-onset, long-standing bipolar disorder are actually at increased risk for
cardiovascular disease and stroke because of elevated rates of diabetes, high
cholesterol, high blood pressure, and obesity in bipolar disorder. This is to say,
the cause and effect can go both ways: strokes can cause mood symptoms similar
to bipolar disorder, but bipolar disorder (and some of its medication treatments)
is associated with increased risk for strokes.
Lithium
Medications remain the cornerstone of treatment for bipolar disorder in older
adults. Lithium, arguably the most tried and true mood stabilizer, poses unique
challenges for use in the geriatric population. Older adults have important
changes in how they absorb, distribute, and eliminate medications in the body.
A fairly common age-related change is a decrease in the efficiency of eliminating
medications from the body, a function usually performed by the liver and/or
kidney. Lithium is not processed in the liver but rather is primarily eliminated via
the kidney. The kidneys predictably have a decline in functioning with aging, even
in the absence of any specific disease affecting them. Additionally, treatment with
77
lithium for decades into late life can at times accelerate age-related declines in
kidney function, due to the damaging effects of long-term lithium use on the
kidney in a subgroup of individuals. Several medical conditions that become
more common with aging, such as high blood pressure and diabetes, may also
impair kidney function. Medications used to treat hypertension, such as certain
diuretics (“water pills”) and “ACE inhibitors” (e.g. lisinopril), may interfere with the
kidney’s elimination of lithium, causing an elevated lithium level. Other common
medications that can raise lithium levels are non-steroidal anti-inflammatories
(NSAIDs) used for pain relief—the most commonly used are ibuprofen (Motrin,
Advil) and naproxen (Alleve).
These phenomena in the kidney often cause a lithium dose that yields a safe and
effective lithium blood level in younger adults to yield an elevated, intolerable or
even toxic lithium level among older adults. Troublesome side effects that may
occur even at therapeutic lithium levels in older adults include cognitive complaints,
tremor, worsening urinary frequency or incontinence, impaired balance, lowered
thyroid functioning, and weight gain. Symptoms of lithium toxicity include poor
muscle coordination, confusion, and pronounced tremors—this is a medical
emergency that is managed usually in the hospital by discontinuing lithium
and hydrating the affected person with IV fluids, but occasionally may require
temporary dialysis to remove excess lithium from the body. In fact, even at a
“normal” blood level, the bodily systems of older adults (including the brain) are
generally more sensitive to the effects of lithium. This may be in part related
to age-associated changes in the integrity of the “blood-brain barrier,” which
regulates what compounds in the general blood stream are allowed access to the
blood that nourishes the brain. These phenomena have led geriatric psychiatrists
to prescribe lower doses of lithium as well as to shift the target lithium blood
level from 0.8-1.2 down to 0.5-0.8 mEq/L for most older adults. In addition to
usual laboratory monitoring, older adults treated with lithium should have an EKG
(electrocardiogram) checked as lithium can affect electrical conduction in the heart.
Despite these challenges, lithium may be very helpful for some older adults with
bipolar disorder, including those who have preferentially responded to lithium over
other mood stabilizers as younger adults and those with more “classic” bipolar
disorder (euphoric mania without mixed depressive-manic episodes or rapid
cycling). In a large recent government-sponsored study on bipolar treatments
entitled STEP-BD (Systematic Treatment Enhancement Program for Bipolar
Disorder), when adults aged 60 and above were compared to younger adults,
lithium use was less frequent but not uncommon (30% of geriatric cases vs. 38% of
younger adult cases), and the average dose was about 1/3 lower for older adults.
Interestingly, older adults were twice as likely to recover compared to younger
adults when treated with lithium (D’Souza et al., 2011).
Lithium is also the only medication shown to have definite protective effects
against suicide in bipolar disorder. Because completed suicides are a major mental
health concern in older adults, especially older Caucasian males, lithium deserves
consideration for older adults with bipolar disorder and prominent suicide risk
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factors. Additionally, there are some theoretical benefits of lithium for older adults,
who are more susceptible to diseases of brain degeneration, such as Alzheimer’s
disease. Lithium is being studied for its “neuro-protective” properties, that is,
molecular actions that may prevent nerve cell death. This is still experimental at
this stage, however, and high lithium levels actually impair thinking and memory,
especially among older adults. On the whole, with all other factors being equal,
ease of use favors other mood stabilizers over lithium as first-line agents among
older adults with bipolar disorder. However, all other factors are often not equal,
and lithium may be very beneficial for a substantial portion of older adults, such as
those who have responded well to lithium earlier in life, those with classic euphoric
mania, those at high risk for suicide, and those without prominent medical issues
that affect kidney function.
Valproic acid
Valproic acid (or its related slow-release formulation, divalproex [Depakote]),
originally approved to treat seizures, has become a common alternative to lithium
as a mood stabilizer in bipolar disorder. Valproic acid may be more effective than
lithium for certain variants of bipolar disorder, such as rapid cycling or mixed
manic-depressive episodes. There is some suggestion that it may also be more
effective than lithium in bipolar disorder associated with an underlying neurological
abnormality or substance abuse. Overall, efficacy and tolerability have made
valproic acid a common first line mood stabilizer in late-life bipolar disorder.
Some special consideration should be given when prescribing valproic acid to
older adults, however. With increasing age, levels of the blood protein albumin
tend to decline. This is relevant because valproic acid binds to albumin; when
there is less albumin available or when other drugs such as warfarin (Coumadin)
and aspirin “push” valproic acid off of albumin, this leaves more free levels of
valproic acid in the blood. The free (i.e. not protein-bound) form of the drug is the
one that exerts both beneficial and adverse effects. Routine labs to check for blood
levels of valproic acid do not account for a possible shift to a higher proportion of
free drug that may occur with aging or complex medication regimens. This may
lead to situations in which older adults benefit from a relatively low total valproic
acid blood level or in which side effects emerge at a seemingly low valproic acid
level. Checking a more specialized lab, the free valproic acid level, in these cases
could help older patients and doctors to aim for a more precise valproic acid dose.
Therapeutic effects are often seen for older adults at total valproic acid levels of
65-90 mcg/ml or 6-22 mcg/mL of free valproic acid.
Some common side effects of valproic acid include nausea, sedation, tremor,
weight gain, and thinning hair. Other uncommon but serious adverse effects
include liver toxicity, pancreatitis, and low blood platelets (which can lead to poor
blood clotting). Some evidence suggests liver and pancreas side effects are less
common with increasing age. An infrequent and often unappreciated cause of
confusion in older adults taking valproic acid is a side effect of increased urea (a
“waste product” that may affect brain function when it accumulates). Urea levels
can also be measured with a special laboratory test.
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Other anticonvulsants
Other anti-seizure medications that were discovered to have mood stabilizing
properties include carbamazepine (Tegretol) and lamotrigine (Lamictal).
Carbamazepine, like valproic acid, may be useful for bipolar syndromes more
often resistant to lithium, such as those with rapid cycling or associated underlying
neurological disorders. Carbamazepine tends to be somewhat harder for older
adults to tolerate than valproic acid, largely because of neurological side effects
such as tremor, dizziness, incoordination, double vision, and cognitive impairment.
Carbamazepine can lower blood levels of many medications, so drug interactions
are important to consider when using it among older adults. Other side effects
that occur in all ages but may be even more problematic in older adults are
lowered blood sodium levels, rashes, altered electrical conduction in the heart,
and suppression of the bone marrow’s production of blood cells. Lowered sodium
levels can cause confusion, lethargy, seizures and even coma, and may be more
common when carbamazepine is given to older adults taking SSRI antidepressants
or diuretics.
Antipsychotics
As the name implies, antipsychotic medications have traditionally been developed
for treatment of psychotic disorders such as schizophrenia. However, psychosis is
often evident in severe manic and depressive episodes, and antipsychotics have a
long history of use in bipolar disorder. Research has also shown that antipsychotics
may act as long-term mood stabilizers, anti-manic agents, and antidepressants
in bipolar disorder even without psychotic symptoms. Most research in bipolar
disorder has examined the newer, so-called “atypical” antipsychotics, although
the older, “typical” drugs, such as chlorpromazine (Thorazine) and haloperidol
(Haldol), have been used for decades, especially in the treatment of manic
agitation.
Recent years have seen increasing debate over how much better (if at all) atypical
antipsychotics are than older, typical versions. Both types have relative pros and
cons in older adults. Typical antipsychotics tend to cause more neurological
side effects, such as tremors and stiffness resembling Parkinson’s disease as
well as writhing or jerking movements called tardive dyskinesia. Older adults are
more susceptible than younger adults to both Parkinson-like effects and tardive
dyskinesia when prescribed antipsychotics. Another antipsychotic side effect more
common with typical agents is elevation of the hormone prolactin. Increased
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prolactin blocks the effects of the sex hormones estrogen and testosterone,
which are already on the decline in older adults. This could worsen bone loss and
osteoporosis as well as sexual functioning, two issues often problematic for older
adults. Certain typical antipsychotics strongly block a brain chemical messenger
called acetylcholine. Decreasing the functioning of acetylcholine is particularly
troublesome in older adults because this may worsen certain symptoms already
common in aging, such as memory impairment, trouble urinating, blurry vision,
and constipation.
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Antidepressants
The use of antidepressants in bipolar disorder is generally controversial, regardless
of age, because of risks of medication-induced mania or rapid mood cycling.
Nonetheless, antidepressants are often prescribed to older adults with bipolar
disorder for either the acute or maintenance treatment of bipolar depression. Their
use is probably most reasonable in the following situations: acute depression not
responding to adequate mood stabilizer treatment, absence of rapid cycling or
mixed depressive-manic symptoms, and/or bipolar illness historically characterized
by prominent depression and relatively brief periods of mania or hypomania. As
previously mentioned, lamotrigine and atypical antipsychotics are probably better
alternatives for maintenance and acute treatment of depression, respectively, if
side effects do not prohibit their use. One bright note about antidepressant use
in older adults is that, in contrast to reports of more suicidal thinking/behavior in a
small portion of persons under age 25 taking antidepressants, these medications
on average actually decrease suicidal tendencies in adults age 65 or older.
When using antidepressants for older adults with bipolar disorder, selective
serotonin reuptake inhibitors (SSRIs) and bupropion (Wellbutrin) are reasonable
first choices. Among the SSRIs, sertraline (Zoloft) and escitalopram (Lexapro) are
good options for older adults because they have relatively few interactions with
other medications used for common health conditions. Citalopram (Celexa) also
has few medication interactions, but recent data suggest it may predispose older
adults to electrical conduction problems in the heart at doses over 20 mg per
day. Fluoxetine (Prozac) and paroxetine (Paxil) can be helpful in some cases but
are not common initial choices for older adults; they both can interfere with the
liver’s metabolism of certain other medications, and paroxetine is somewhat anti-
cholinergic, which can impair memory functions. Common initial side effects of
SSRI’s include nausea, diarrhea, anxiety, fatigue, insomnia, headache, and sexual
dysfunction (inability to reach orgasm, for instance). Most of these side effects
are mild-to-moderate and dissipate over time. A notable exception is sexual
dysfunction, which is often a more persistent side effect. Ageism should not
make affected persons or their treatment providers insensitive to the possible
impact of sexual side effects on older adults. Less often, SSRIs may be associated
with lowered sodium levels, accelerated loss of bone mass, and gastrointestinal
bleeding in older adults.
83
anesthesia and is roughly comparable to the risk of death during childbirth. Medical
problems which may complicate the use of ECT and increase the risk for adverse
outcomes include unstable heart disease and a brain mass/tumor. Probably the
most concerning possible side effect for most people is cognitive impairment,
specifically memory loss. This is particularly relevant for older adults, who are more
prone to memory impairments. Patients commonly report trouble remembering
some events in the weeks to months before and after ECT, although this usually
resolves. In fact, many people have improvements on tests of cognition with ECT
because the mood disorder itself was already severely impairing their memory
and concentration. Certain techniques during the ECT procedure can help spare
memory and this can be inquired about prior to the treatment.
ECT typically is given 3 times a week, for an average of 8-12 total treatments. Some
people are maintained on medications during ECT, although anticonvulsants such
as valproic acid and lamotrigine can interfere with the ability to induce a seizure,
and lithium may lead to more confusion immediately after ECT is given. Medication
regimens thus have to be individualized for each person. Almost always, however,
some mood stabilizing medication is continued, started, or re-initiated once ECT
is done, as ECT does not “cure” bipolar disorder. Its effects may be pretty long-
lasting, and many people only need one course of treatment in their lifetime. Others
may have recurrent bouts of mania or depression that respond better to another
course of ECT than to medications. Less frequently, persons with bipolar disorder
may have chronic symptoms that are unresponsive or inadequately responsive to
any treatment other than ECT. In such cases, after finishing a round of successful
ECT, future treatments can be gradually spaced apart to one treatment every few
weeks to months in what is called “maintenance ECT,” meaning ECT for these
persons is used not only to treat severe acute mood episodes, but is also used less
frequently over the long-term as the primary treatment method.
Conclusions
More and more persons with bipolar disorder are enjoying the increases in
longevity that the general population has already experienced for many years.
Nonetheless, aging with bipolar disorder presents some unique challenges,
such as increased rates of some medical disorders, cognitive impairments, and
frequent need for adaptation of medication and psychosocial treatments. Later-
life bipolar disorder has been markedly understudied, and much remains to be
learned. Important areas of research include changes in the course of the illness,
differences in symptom presentation, the effectiveness of treatments developed
for younger adult populations, and the interaction between bipolar disorder
and cognitive disorders. There are important positive aspects of aging that are
relevant to bipolar disorder, such as better treatment adherence, age-associated
improvements in emotional regulation, and, according to many cultures, increasing
wisdom. Along those lines, perhaps it is best to conclude this discussion about
the effects of aging on bipolar disorder with the thoughts of someone who has
experienced it first-hand.
Q. What has changed about bipolar disorder since it first started for you?
The illness does not change. My experience of it has changed by learning the
nuances of it as the illness cycle keeps repeating.
It is chronic and learning my triggers took time. I still am not as proficient as I need
to be to fend off severe mood changes. However, I have learned to somewhat
lessen them.
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Q. What it is like to manage BD in the context of the other good and bad parts
about older adulthood:
As long as I am busy I can mostly keep depression away or, at least, minimized.
Among these activities I have learned to keep healthy by trying to help other
people. This counters my feeling like a “victim / loser” which is part of my
downward spiraling depressive pattern.
Managing BD is paramount so I can remain calm and logically face the challenges
of getting older. I can become depressed when focusing on my failed prostate
cancer operation and my failing kidneys whose demise started with taking Lithium
for 13 years before I educated myself on the hazard of taking it. Of course, when
I started with Lithium, it was the “only game in town”.
86
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(2004). Cognitive functioning in late-life bipolar disorder. American Journal
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al. (2004). Burden of general medical conditions among individuals with
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88
Healthy Family Life
and Relationships
By Ashley Aleem
When we have strong and healthy relationships with friends, family members, and
significant others, we are given an opportunity to learn and grow in a supportive
companionship. These relations allow us an outlet to share our fears and
aspirations, to enjoy positive and uplifting activities, and to be comforted and
consoled when we are struggling. A healthy relationship allows us the opportunity
to call on someone for support and assistance when we need it most. The love and
support fostered through healthy relationships can in itself be a tool for recovery
from mental health symptoms. It is natural and healthy to turn to others as a means
to cope.
Moreover, social interaction can help improve our overall mood and outlook.
Engaging in recreational activities or social conversation with others can contribute
positive emotions and fend off negative ones. Positive relationships bring us
enjoyment in life, and life satisfaction can help ease symptoms of mental health
disorders, including bipolar disorder.
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When stress and anxiety increase, we lash out, isolate, or shut down. This only
fuels the stress and instigates anger and resentment in our loved ones. Instead,
reaching out and connecting with those nearest to us will help fight the stress and
strengthen our bonds. Supporting our loved ones when they are struggling and
allowing them to be there for us will improve the bonds within the entire family.
The best time to practice these skills is not while in the midst of a manic or
depressive episode. Rather, it is important that you take steps to strengthen your
bond before a stressor hits. Regularly engage in mutually enjoyable activities. Go
on outings together, initiate uplifting conversation,
and exhibit support for one another’s goals and
accomplishments. Maintaining a connection during
stable times will help you be strong and prepared for
the harder times to come.
If you are serious about maintaining and strengthening the bonds with your family
members, and even developing new relationships, you should pay particular
attention to two things: educating your loved ones about bipolar disorder, and
remaining cognizant of your personal impact on your loved ones. Without this
mutual understanding, the future of your relationships will be jeopardized.
Strongly consider educating your spouse about your mental health diagnosis.
Although it is natural for a couple to have periods of decreased communication
and intimacy, it is more likely that these periods will be exacerbated by the
symptoms of bipolar disorder. Engaging your significant other in a discussion
about your diagnosis may assist in alleviating the negative effects it may have on
91
the relationship. Providing literature on bipolar disorder will be beneficial, although
explaining your experience in your own words might be most powerful. If possible,
and if your spouse is willing, consider inviting him/her into a therapy session so he/
she may gather information from a mental health professional. Ongoing couples
counseling can also assist in resolving concerns and increasing the bonds between
spouses.
Consider requesting that your family members accompany you in a session with a
mental health professional to learn about bipolar disorder. Of course, you will first
want to recruit your therapist’s approval and support for this collaborative meeting.
Let your therapist assist you in preparing for this process and debriefing reactions
afterwards, as it might be a difficult situation. This psycho educational process
will provide your family members with greater understanding of your struggle. A
foundational understanding of your diagnosis will help family members accept the
past behaviors which might have harmed the family dynamic. It will also provide
them with tools to comprehend and respond to your mental health symptoms as
they arise.
For the younger children in your family, engaging in this process might not be
beneficial and may even be detrimental. Again, discuss with your therapist which
members of the family should be present for the discussion around your diagnosis.
However, all members of the family must be made aware of the matter so that they
will be better prepared to handle potential stressors and to provide support to you
as needed. There are many books available for young and old alike to help with
the education.
Be mindful that it is natural for children to have great difficulty understanding the
reason behind your behavior when you are experiencing symptoms. When you
are of sound mind, engage in a calm and compassionate discussion with your
children. Explain that your past behaviors are not an indication of a lack of love.
Show them that you are there for them as a parent now. Your actions today will help
counter those of the past. Remember to tailor your conversation to your children’s
developmental age. If they are able to comprehend more abstract concepts,
consider engaging them, along with your spouse and other adult members of
your family, in education about bipolar disorder. It might be particularly beneficial
to also engage them in family therapy, to help process emotions and reactions and
improve the overall household dynamic.
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We may have acted in a way, which was harmful to them. Just as we were troubled
by our minds, so were they, by our actions. As we became fearful, angry, and
confused, so did they. We cannot combat our mental health symptoms overnight.
Nor can they forgive and forget so easily. We ask them to understand, to be
patient, to give it time. We must do them the same return favor. Relationships are
reciprocal.
Be mindful of the fact that our actions do impact others. We push and pull especially
those nearest to us, our spouses, children, and best friends, and it is only human
for them to react. As you work to improve your wellbeing and fend off symptoms,
remain conscientious of how your actions are perceived by others. Consider seeking
assistance from a mental health professional to assist in increasing mindfulness of
your actions and reactions.
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yourself: are you infringing on your partner’s personal rights or needs? Are you
disregarding their feelings or requests? If you do not show respect for your partner,
you cannot expect to receive any in return. You cannot expect this relationship to
stand the test of time.
Once mutual respect and equal investment have been established, you can begin
to consider other factors which you personally value. Consider your hobbies and
interests in addition to the virtues you prize and your plans for the future. Do you
want a family? Do you value education? Are you outgoing and loud or quiet and
reserved? Outdoorsy or a homebody? Now consider your partner; do your interests
and values line up? If all these aspects of a successful relationship are present in
yours, then you must now approach what might be the hardest part.
94
experience afterwards. Throughout this important discussion with
your new romantic partner, gauge his/her response for signs
of understanding, compassion, and support. If you do not
feel like this person respects you or regards you less
for having this diagnosis, then he/she might not be
worth your time. If they call you names, degrade you The key is to expecting
for your struggles, or discourage your efforts toward
self-care, it might be best for you to withdraw from
and accepting the bad
the relationship. Again, refer to your outside support times as well as the
system for assistance if you need it. If, however, good
while having this discussion, you feel your partner is
engaged and interested, that he/she is willing to learn
about bipolar disorder and to support and comfort you
in your struggles, then congratulations. You have found a
romantic partner with the foundational makings for a long-term
relationship.
Staying Involved
Initially in the relationship, you search for common ground through mutual interests
and values, and you establish respect and reciprocity. As the relationship develops,
you must maintain involvement with your partner so that the relationship continues
to grow and interest is sustained. Take time to schedule shared activities that you
both enjoy. Consider a variety of activities, to include daytime and evening outings.
Think about your mutual hobbies. If you’re both active, consider joining a sports
league together. If you’re entertainment buffs, set regular movie or concert nights.
Also, make it a point to express interest in your partner’s daily routine. Ask about
his/her day at work and share your experiences. Expressing genuine interest in the
other person is an effective way to sustain involvement in the overall relationship.
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emotions equally will help you express your respect and appreciation for your
partner, as well as allow you to discuss upsetting matters more effectively. For
example, if you express excitement about the gift your partner gave you, it will
be easier to voice your hurt around not being acknowledged for the gift you gave
him/her.
Remember, bipolar disorder is a mood disorder. You are more likely to experience
emotional shifts than the average person. As a person diagnosed with a mood
disorder, you know the importance of attending to stressors and frustrations in order
to prevent triggering a manic or depressive episode. An effective preventative step
is to discuss your emotions regularly with those within your support system, which
of course includes your romantic partner. Remember, your partner cares about you
and has already established a willingness to
support you. Do not be afraid to process your
emotions and thoughts before they become
overwhelming.
Resolving Conflicts
When emotions are stifled and matters of concern are ignored, the issue is likely
to swell inside you and eventually explode. When this happens, the best thing to
do is confront the conflict directly. Open the lines of communication with genuine
concern and understanding. Listen to your partner’s opinions and consider them as
best you can. Respond as calmly as possible. Articulate your concern and present
a possible solution. For example, if you feel your partner doesn’t spend enough
time with you, first listen to his/her reasoning. Maybe he/she feels overwhelmed
at work, so he/she doesn’t arrive home until late at night and then simply wants to
go home and sleep. Really listen to their perspective. Consider their experience
wholeheartedly. Then respond with a proposed solution. Maybe you could plan
an outing on a weekend night when he/she feels rested and can give you the
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attention you desire. Or maybe you can offer to just listen to your partner vent
about their frustrations at work in an effort to soothe his/her anxieties. Request
your partner’s input after providing a suggestion. This might be a back-and-forth
process before a solution is achieved, but it will be well worth it if you wish to
maintain the relationship. When experiencing a bumpy road with your mood, you
may suggest discussions at a later date when you are better equipped to handle it.
Remember, every relationship is bound to have ups and downs, and conflicts are an
inevitable part of this process. Expect and accept them for who they are. Consider
how important this relationship is to you, then take action to resolve the conflict
so that you may maintain this connection. Always express your continued respect
for your partner. Verbalize your interest in his/her point of view, then share your
own perspective with the knowledge that this person does care about you as well.
Preserving Individuality
An often-overlooked aspect to maintaining a healthy romantic relationship is the
importance of preserving your individuality. Although you are one of two people
in the relationship, you are first and foremost an individual with your own thoughts,
values, needs, and interests. Although you respect your partner and are considerate
of feelings and demands, you must not neglect your own wants and needs. Healthy
relationships are reciprocal. As such, your individual requests should be met with
the same respect and consideration you provide to your partner. If this is ever
not the case, return to opening the lines of communication and expressing your
emotions.
Always keep in mind that if you do not take care of yourself, which includes setting
boundaries, keeping hobbies separate from your partner’s, engaging in self-care
activities, and embracing your autonomy, you will be ill-equipped to maintain
a healthy and supportive romantic relationship. Just as when a relationship is
unhealthy and jeopardizes your mental wellbeing, if you are not a healthy individual,
the relationship cannot be healthy either.
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Supportive Nutrition
By Karen Freeman, MS, RD, CSSD
Making healthy food choices may seem to be a simple task, but when faced with
bipolar disorder, making those proper nutritional choices can be more challenging.
Numerous variables such as mood swings and medication treatment, place even
greater importance on understanding and implementing supportive nutrition and
lifestyle choices.
Often times when faced with challenging feelings and emotions, a natural
response might be to eat in an attempt to quell those emotions. Unstable moods
such as with bipolar disorder, can make diet and healthy eating behavior even
more challenging. However, there are several nutrition recommendations and
guidelines that when followed, can assist us in maintaining nutritional health. The
most important guideline is to eat on a regular schedule to provide continuous
fuel to our bodies.
Becoming overly hungry affects mood states. Some signs and symptoms of low
blood sugar, include irritability, feelings of impatience and/or anxiety, headaches,
lethargy or hyperactive, dizziness, compromised ability to focus or concentrate,
subtle uneven walking gait and mind racing. If you have not taken in enough food
and several hours have passed between the last meal, you are setting yourself up
for over eating. Therefore, eating every four hours will diminish the chances of
overeating and help to maintain a stable mood.
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meals consisting of carbohydrates, proteins and fats to ward off hunger for 3-4
hours.
The sample meal below of a typical breakfast indicates the food, nutrient source,
and the general number of hours the food might take to digest. This meal, with the
combination of carbohydrates, protein and fat nutrients, would take approximately
3 – 4 hours to digest.
Other variables contributing to the satiety and timing include the quantity and
the fat content of the meal as well as the exercise and activity factors. While
meals containing excess quantities of protein, carbohydrate and fat, especially
fried foods, can keep hunger at bay for 5 hours or more, it is also an indicator that
the nutrient and calorie density of the meal was in excess of our calorie need and
can result in unwanted weight gain.
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How Much Protein and Carbohydrates Do We Need?
After I graduated college with a BS degree in Dietetics, I was sure I was an expert
in giving the answer to this question. For years, I told patients of the importance
of having protein at every meal, or we would risk not replenishing lean body mass
(muscle mass) or worse yet, not be able to repair and replenish the cells turnover.
I was wrong. I later learned that the amino acid (what proteins are made up of)
pool in our bodies and we can hold amino acid combinations for up to 3 days. As
long as we get the 8 essential amino acids from a variety of food sources, we’ll be
fine. Even if we are vegetarians and never eat protein from an animal source, our
remarkable bodies are able to repair and replenish daily muscle and cellular needs
for protein.
Vegetables, grains, beans, legumes, and lentils, all grow from the ground and
are therefore mostly carbohydrates. They all contain protein as well, from 2-8
grams per _ cup cooked serving. An example of the protein power of combined
vegetables can be taken from ethnic meals where food combining is a mainstay of
the daily intake. Mexican cuisine routinely consists of rice and bean dishes. If rice
(white, brown or mixed) is mixed with beans (i.e.: red, black, kidney, pinto) each
incomplete in its protein content, the combined result is a complete “8” of all the
essential amino acids.
For the specific detail and calculations on how to assess our personal protein and
carbohydrate needs, the Recommended Daily Intakes (RDI’s) is 0.8 grams of protein
per kilogram of body weight.
The protein recommendation for an active person ranges from 1.2 – 2.0 grams per
kilogram of body weight and the protein need per day for a non-active person is
4-6 oz. for woman, 7-10 oz. for men.
An example of how to calculate the protein need for a 130 pound active person
is as follows:
1. To get weight in kilograms (kg.), divide weight in pounds by 2.2.
130/2.2 = 60 kgs.
2. To calculate the recommended grams of protein, multiply weight in kilograms
by 1.5 which is the mid range of the higher protein recommendation:
60 kg x 1.5 gms protein = 90 gms. of protein.
3. To estimate how many ounces or protein 90 grams is equivalent to, simply
move the decimal point over one place to = 9.0oz. of protein.
8 oz. of protein per day is equivalent to 1 serving of broiled fish from your favorite
restaurant, 3 oz of protein looks like a deck of cards, and 1oz. serving example is
1 cheese stick size.
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Carbohydrates, as indicated earlier, are used as the primary source of energy
for our muscles and brain function. Carbohydrate depletion is second to fluid
depletion and is the primary reason for fatigue. To calculate carbohydrate need,
we need to look at our exercise and energy expenditure:
2 hours of exercise/day
= 8 g /kg of ideal body weight
3 + hours of exercise/day
= 10 g /kg of ideal body weight
Using the Food Selection Guidelines below, we can create a sample menu that will
provide the carbohydrate and protein needs for a 130 pound active individual who
is engaged in regular physical activity of 30 minutes each day.
Choose small portions of lean, high protein foods; fish, lean poultry and low or
non-fat milk and/or yogurt.
Choose healthy oils such as; fish oils, olive oil, flax, nuts, nut butters, and avocado
instead of the unhealthy oils. And avoid fried foods, trans (hydrogenated oils) fatty
acids, and highly heated oils.
Drink plenty of water and calorie free beverages, flavored with natural foods such
as orange, cucumber, lemon, lime slices. Limit or avoid liquids containing calories.
For example, it is nutritionally preferable to eat 3-4 oranges instead of drinking the
_ cup of orange juice that requires 3-4 squeezed oranges.
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1 SERVING
g. CHO/PRO WHAT’S A SERVING SIZE?
OF:
~ 80 - 100 calories
1 slice of bread; 1/2 cup cooked rice,
15/3 starch
pasta, cereal, beans, lentils, corn;
1/2 cup dry cereal
~ 60 – 80 calories
1/2 cup juice, canned fruit, grapes
15/0 fruit
cherries; 1 fruit, 1 cup berries,
melons; 3 dates, 2 figs, 2 T raisins.
~ 25 – 50 calories
5/2 vegetables
1 cup raw, _ cup cooked
~ 35 – 100
0/7 protein
1 oz. fish, chicken, meat, cheese,
~ 50 calories
6 almonds, cashews; 10 peanuts;
2 pecans, walnuts; 1 T seeds; *1 t. butter,
0/0 fat
margarine, mayonnaise, oil;
1/8 avocado; *1 T cream cheese;
*2 T half & half; 8 olives; *1 T coconut milk.
* saturated fat
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Sample Menu for:
130 lb. female, light exercise at 30 minutes/day
carbohydrate needs are 3-4 gm/kg body weight = 180 – 240 gms and
protein need are 1.2 – 1.5 gm/kg = 7 – 9 oz protein (=72 – 90 gms)
9 AM
1/2 cup lite cranberry juice
8 oz. hot chocolate (nonfat milk, 2 tsp coco)
1 egg
1 oz. cheese
1 slice toast
1 nectarine
10 AM
1 slice squaw toast
1 T almond butter
12:30 PM
1 banana
1 cup cottage cheese
3 PM
2 T raisins
1/2 cup bran flakes
3/4 cup Shredded Wheat or Cheerios
2 T wheat germ
1 cup nonfat milk
5:30 PM
1 tortilla
1 cup pinto beans
1/2 cup rice
1 oz cheese
1 cup green beans
salsa
8:30 PM
8 oz. nonfat milk and 3 cookies
TOTAL:
Protein 96g 21%
Carbohydrates 266g 59%
Fat 40g 20%
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How Much Fat & What Kind of Fat Do We Need?
The Journal of the American Dietetic Association
Volume 111, Issue 5 , May 2011 reviewed “The Great Fat Debate: A Closer Look
at the Controversy.” While the consensus is inconclusive as to the ideal fatty acid
content of a healthy diet, the following are some agreed upon aspects of fat intake:
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Some practical ways to incorporate “healthy” fats in our diet include the following:
• add 10 – 20 nuts to low-fat yogurt, or as a “dressing” addition to salads,
while drizzling the actual oil and vinegar dressing (vs.) pouring.
• drizzle vs. pour all fats.
• add _ - _ of an avocado to enhance flavors of salads and/or sandwiches.
• include natural nut butter sandwiches as a meal option.
The USDA 2010 Dietary Guidelines for Americans recommends 4 oz of fish, twice
per week, which would provide 250 mg/day of n-3 fatty acids. Research on the
mental health benefits of n-3 fatty acid supplementation have been done with
intakes at 5 – 15, 000+ mgs/day. This large quantity is unlikely to be consistently
consumed in a healthy whole food diet without additional supplementation.
Therefore, adding a n-3 fatty acid supplement in the amount of 1 – 2 grams of EPA
plus DHA, has been shown to help a significant percentage of patients suffering
from bipolar disorder with persistent signs of irritability, by reducing the irritability
component of the mood state. (Sagduyu, 2005). However, as with all supplements,
it is always advisable to discuss the health benefits and safety concerns with your
medical doctor.
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The chart below, from the 2010 Dietary Guidelines for Americans, provides a good
estimation of the n-3 fatty acid content of fish:
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Exercise
Exercise is a very important component to maintaining a healthy lifestyle. In
addition to the obvious health benefits of a regular exercise routine, exercise
increases endorphins in the brain thereby boosting a person’s mood. Utilize the
exercise chart in this book to begin a regular exercise routine and check with your
treating doctor before beginning any exercise program.
Drink Water
Our bodies are made up of 61.8% water by weight.
It is therefore important to drink at least eight 8 oz.
glasses of water each day. Many times our body It is important to
tricks us into thinking we are hungry when in fact we drink at least eight
are simply thirsty. Drink up and in turn, you will eat 8oz glasses of water
less. each day
And Other Supplements?
Should we be taking a multivitamin and mineral
supplement and if so, which one and how much? Since
researchers can define and understand the role of only
approximately 20% of the substances in our food supply, it is difficult to actually
know what we are “supplementing.” Yes, we know that we need many essential
vitamins and minerals, much of which we receive in a food based healthy diet, but
there are phytochemicals, antioxidants and countless numbers of other substances
in a wholesome foods diet, of which we cannot replicate in a supplement form. If
we can embrace the idea that a supplement is in fact a supplement, not a substitute
for a healthy diet, then taking a 100% of the RDA vitamin and mineral supplement
might be good insurance.
For those who don’t like to swallow pills, gummy bear multivitamin and mineral
supplements are soft, chewable and have a touch of sweetness and therefore more
motivating to take. Similarly, calcium chews, (they taste like caramel candy) contain
vitamin D & vitamin K to enhance the absorption of calcium.
Supplement takers tend to be more health conscious and eat more whole foods
and as a result, need supplements less. In general, large brand name supplement
companies are more likely to have the nutrients in the bottle that is stated on the
label. There is no mandatory government testing or controlled way to ensure
product efficacy. Some supplement companies do voluntarily have independent
testing done on their products to receive a seal of authenticity from independent
laboratories such as “USP,” United States Pharmacopeia , “a non–governmental,
official public standards–setting authority for prescription and over–the–counter
medicines and other healthcare products manufactured or sold in the United
States.”
Vitamin D is essential for calcium absorption and has been shown to enhance our
body’s natural immunity. Those of us with limited exposure to natural sunlight
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year round, due to where we live and/or the kind of work we do, are at higher risk
of obtaining adequate vitamin D. Supplements at doses up to 1,000 IU have been
shown to be safe. In addition, taking a 20-minute walk during the lunch hour is a
great way to increase activity while getting a natural dose of vitamin D. Being out
and about in natural daylight has also been shown to enhance one’s mood.
There are some nutrient-drug interactions that may increase the need for added
vitamin and mineral supplements. The additional nutrient need is easily met with
a 100% RDA multivitamin and mineral supplement. Psychotropic medications may
have side effects of dry mouth, constipation, or increased appetite. Some may
need to be taken with food or milk and may alter glucose and fat metabolism.
(Pronsky 2004). Some medications should not be taken with certain foods or
drinks. Some examples are as follows:
• Geodon: avoid grapefruit juice with oral form; is to be taken with food.
• Quetiapine (Seroquel); use caution with grapefruit juice.
• Risperdal may increase vitamin D metabolism and may require greater
vitamin D intake.
• Phenothiazines may increase need for riboflavin, may decrease absorption
of vitamin B-12.
For a complete list, contact your treating physician to determine what foods you
should or should not consume with your prescribed medication.
Alcohol
Alcohol is to be avoided! It is a depressant, causes instability to the brain
chemistry and may trigger depressive and manic episodes. In addition, alcohol is
contraindicated with the following medication:
• First-generation antipsychotics: Haldol, Navane, Moban, Loxatane
• Phenothiazines: Chlorpromazine, Thorazine, Prolixin, Trilafon
• Atypical and second-generation antipsychotics: Abilify, Seroquel,
Olanzapine, Geodon, Risperdal
Caffeine
Caffeine mildly stimulates parts of the body and brain. It increases heart rate
and blood pressure and is never recommended for individuals with bipolar
disorder. It interferes with sleep by leading to disturbing sleeping patterns and
causes irritability, anxiety, nervousness, upset stomach, headaches and difficulty
concentrating. It takes 3-4 hours for caffeine to be eliminated from the body.
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Therefore, to cut back and eliminate caffeine consumption, do so gradually and
try using some of these tips:
1. Mix half regular with half decaffeinated coffee or tea.
2. Drink decaffeinated coffee or tea.
3. To decaffeinate tea, steep tea bag in boiling water for 30 seconds. Discard
the tea water and reuse the decaffeinated tea bag.
4 A one-minute steep can contain just half the caffeine of a three-minute
brew.
5. Drink more water. Keep your favorite water container with you.
6. Also check the label of your over-the-counter medication. Some contain as
much caffeine as one or two cups of coffee in just one dose.
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around the world: China, Japan, Australia, the UK, the USA, Norway, Spain and
many European countries.
But what explains the relationships that we see? We know that people with mental
disorders eat differently to those who are not affected. People with depressive
symptoms or those who are more anxious, seem to be particularly attracted to
sweet fatty foods. Why is this? And does this explain the associations that we see
between food and mood?
These are very important questions. The answer to the first question – why are
people with depressive or anxiety symptoms attracted to sweet and fatty foods
– is quite straightforward. Simply speaking, these foods actually make us feel less
stressed and anxious when we eat them! Many studies done using rats tell us that
sugar and fats actually calm down the stress response. Unfortunately, a bit like
smoking and drinking alcohol, the long-term effects of eating these sorts of foods
appear to be the opposite of the short-term effects. In the long-term, these foods
seem to actually increase the risk for these symptoms. The other thing to consider
with these foods is that they are highly addictive. When rats are allowed to eat
‘junk’ foods as much as they want, then have the foods removed, they display all
the signs of withdrawals. At the same time, scientists can see changes in the rats’
brains that are associated with the ‘reward’ systems – the parts of the brain that are
activated in response to drugs of addiction!
The answer to the second question, whether or not the tendency for people with
mood and anxiety disorders and symptoms to have poorer diets explained by the
calming effects of unhealthy foods, the answer is ‘partly’. However, the many studies
that have sought to tease apart cause and effect find that this only explains part of
the relationship. Even after taking this fact into account, there is still evidence that
unhealthy diets increases the risk for mood and anxiety disorders, while healthier
diets are protective. So what else could explain these associations?
While it is true that people from poorer backgrounds or with less education are
more likely to have poor diets, and also more likely to have a mood or anxiety
disorder, this fact doesn’t seem to explain the relationships that we see. The fact
that people who eat well are also more likely to do more exercise, or less likely to
smoke, doesn’t explain the relationships either. So how do these relationships
work? How does food exert an influence on mental health?
Well, a lot of work (again, mostly in animals) tells us that unhealthy foods, high in fat
and sugar, have a very potent and detrimental impact on our brains, our immune
systems, out stress-response systems and our health – both mental and physical.
These interactions are complex but, simply put, such foods can shrink parts of the
brain that are seen to be important in psychiatric illness – the hippocampus; they
increase the activation of our immune systems, which we know is a key factor in
mood disorders in particular; they increase oxidative stress (antioxidants in healthy
foods do the opposite); and they activate the stress response system over the long
term. Each of these are key factors in mood and anxiety disorders.
So, is it possible to improve your bipolar illness by improving your diet? Well,
the answer is that we don’t know for sure yet. The first study to assess whether
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improving diet results in improvements in symptoms of major depression is
currently underway and we won’t know the answer to this important question for
another year or so. However, a few recent studies have shed some light on whether
or not improving diet can result in reducing the risk for depression.
In the first big study, conducted in Europe and involving thousands of people with
risk factors for heart disease (with elevated blood pressure, overweight, diabetes
and/or other risk factors), participants were put into three groups. The first group
– the control group - were told to adhere to a ‘low fat’ diet. The other two groups
were encouraged and supported to switch to a form of a Mediterranean diet. There
is a lot of evidence to suggest that the Mediterranean diet is a particularly healthy
way of eating. It promotes high intakes and a wide range of vegetables and fruits,
as well encouraging the consumption of fish, legumes (lentils, chickpeas, beans),
nuts and wholegrains. One of these groups was also told to use extra olive oil
and the other group was encouraged to have a big handful of raw nuts (almonds,
walnuts, hazelnuts) every day.
The people participating in this big study were then followed to see whether one
group had fewer cardiovascular events (such as heart attacks). The answer was
clear – those in either of the two Mediterranean diet groups had a lower risk for
such events compared to those in the low-fat diet group. What they also found was
that following this diet, particularly if the participant already had diabetes, seemed
to prevent new cases of depression occurring! This was particularly evident in the
group told to eat extra nuts every day. Nuts are very high in antioxidants and this
may have been an important factor in the protective effect.
Similarly, another recent study in older adults sought to prevent people with
symptoms of depression going onto develop a clinical depressive disorder. One
group of participants received a form of psychotherapy, while the other group
received detailed dietary counselling. The study leaders did not anticipate that
dietary improvement would result in any improvements in mental health; they’d
chosen a dietary intervention because they didn’t know that diet was relevant to
mental health! Needless to say, they were very surprised and pleased to find that
both interventions – psychotherapy AND dietary improvement – were very helpful
in preventing the occurrence of a clinical mood disorder.
The final piece of evidence that is of relevance to those suffering from bipolar
disorder is the studies showing some improvements in symptoms from the
consumption of omega-3 fatty acids (fish oil). There are several such trials now and,
although the results aren’t always consistent, there does seem to be evidence that
fish oil can be helpful for people with bipolar disorder.
Taken together, the evidence from around the world showing that diet quality
is related to the risk for mood and anxiety disorders, the extensive work done in
animals to show a noxious impact on the brain, immune system and stress response
system of unhealthy foods, and the new studies showing prevention of depressive
illness using dietary improvement and the treatment of symptoms using fish oils, all
suggest that diet is important and relevant to symptoms of mental illness. As such,
improving one’s diet and making all attempts to continue a healthy diet, may be
particularly helpful and important for people with bipolar disorders.
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Summary
• Assess what you “like” to eat and work with a balance to honor your
preferences. Sometimes choosing food you think you “should” eat
can be less healthy.
• Human bodies get hungry approximately every 4 hours. If you feel
hungry and it has been almost four hours since your last meal, you
are probably hungry and it is time to eat.
• Eat to satisfy your appetite. Appetite normally and naturally varies so
it is normal to feel hungrier on some days and less hungry on others.
• Deprivation is a setup for overeating. Include your favorite food and
enjoy social obligations and appointments. Getting overly hungry
hurts. Avoid it when possible and nurture yourself.
• Limit total fat intake and allow for small amounts of healthy fats such
as Monounsaturated fats: nuts, natural nut butters, seeds, avocado,
tofu and olives as well as Omega-3 fatty acids: fish, flax seeds, walnuts
and canola oil.
• Minimize Saturated Fats which are fats in and from meats, poultry
and lard. Avoid trans-fats such as fried food, hydrogenated oils
and sweets.
• Maintain a healthy protein intake and eat what you need per day: 4-6
oz. for woman and 7-10 oz. for men.
• Carbohydrate intake must be adequate to maintain energy and
exercise needs. Fruits & Vegetables (10+/day); Lentils, beans,
potatoes, rice, whole grains (4+/day.)
• Increase fiber intake to 35+ grams per day.
• Include low fat dairy products, such as nonfat milk and yogurt, for
bone health and to help maintain normal weight.
• Drink Water! Often we feel hungry when we are actually thirsty. Limit
or avoid liquid calories and caffeine containing beverages. Water is
the #1 nutrient.
• Move about more and/or start an exercise program.
• Think before you drink alcohol. Alcohol is a diuretic and can cause
dehydration, is a depressant, slows respiratory rate and is caloric. It
is contraindicated with bipolar disorders.
Lastly, The Dietary Guidelines for Americans, 2010, published by the U.S.
Department of Agriculture, U.S. Department of Health and Human Services (www.
dietaryguidelines.gov), as well as ChooseMyPlate.gov, are excellent resources to
assist you in developing and maintaining proper health and nutrition.
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115
Natural Treatments
By Dr. Jennifer Bahr
Over 100 years ago Thomas Edison was quoted as saying “The doctor of the future
will give no medicine but will interest his patients in the care of the human frame,
in diet and in the cause and prevention of disease.” Long before that, Hippocrates,
the father of modern medicine said “Let food be thy medicine and medicine be
thy food.” Both of these are coming to fruition as people are seeking out natural
alternatives for almost everything these days, especially our foods and medicines.
As a naturopathic doctor, I am thrilled to see this trend and hope that it continues.
Many chronic diseases are the result of a poor diet and lifestyle, or can be managed
well with natural therapies. Mood disorders are no different. I do, however, have
some reservations about how the word “natural” can be misleading and assumed
to be healthy and safe. But before we get into the meat of specific treatments and
their safety (or non-safety) for various aspects of mood disorders, I want to discuss
some important relevant background information anyone using natural therapies
should keep in mind.
To start off, I may have just used a term you may be unfamiliar with – naturopathic
doctor. If you are like many people, including myself before I went to naturopathic
medical school, you have probably never even heard of this type of doctor.
Naturopathic doctors (NDs) are trained in 4 year, graduate-level residential
naturopathic medical schools after completing 4 years of undergraduate education.
We are taught the same biomedical sciences such as anatomy, physiology,
biochemistry, pathology and even pharmacology
as your MD or DO. In many cases we are actually
taught by an MD. Where our training differs is the
focus of treatment. We follow a therapeutic order
and philosophic principles, which I will describe
next as they are relevant to this chapter, that
guide the use of natural therapies to stimulate
the body to heal. The types of treatments NDs
learn are clinical nutrition, botanical medicine,
homeopathy, hydrotherapy, mind-body medicine,
environmental medicine, naturopathic manipulative therapy, and in some schools,
acupuncture and bio/neurofeedback. All NDs are trained as primary care doctors,
but some will choose to focus on a particular body system or area of concern, such
as mental health. Those of us who do have a specific area of expertise will still
treat the whole person with naturopathic methods, not just the disease itself. This
is especially important in mental health, where there are often physical concerns
that are highly related to the mental health concerns.
The last point is a perfect segue into the therapeutic order, because it is the first
step that is vital to all treatments. Like the principles of naturopathic medicine, the
therapeutic order can be used to help you make the best decisions for your health.
As we go through naturopathic approaches to mood disorders and their common
co-occurring conditions we will be using the therapeutic order as a guideline. Some
therapies or methods can be broadly applied to most chronic conditions. Where
this is true it will be noted. Some therapies discussed can be used with relative
safety in mood disorders, others will be discussed as natural medicines that should
be avoided with certain diagnoses. Regardless of these notations about broad use
and levels of safety, any changes you make to your diet or natural supplements
should be discussed with your doctor(s).
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THERAPEUTIC ORDER
1. Establish conditions for health. This is the area we will focus heavily on as it
is relevant to all conditions, mental health or otherwise. Ensuring this step is in
order will make other treatments, natural or conventional, work more effectively
and in some cases may reduce the need for some drugs. In order to establish
the conditions for health we will focus on aspects of lifestyle such as sleep,
exercise, mindfulness, social relationships and diet.
2. Stimulate and support the self-healing process. To accomplish this, NDs
will use therapies that have been around for centuries to amplify signals to the
body and brain that establish natural rhythms
or biochemical processes, or to stimulate the Naturopathic Therapeutic Order
body to heal itself. These therapies may include
1. Establish conditions for health
homeopathy, hydrotherapy or light/dark
2. Stimulate and support self-healing
therapy. process
3. Correct areas of imbalance. With this step 3. Correct areas of imbalance
we aim to ensure that the mind and body are 4. Pathology-centered natural care
integrated, hormones (especially thyroid in
5. Pharmacology intervention
mood disorders) are being produced and
utilized optimally, and biochemical pathways are 6. Surgery
functioning optimally. Temporary high doses
of nutrient cofactors (vital nutrients needed to produce energy, hormones,
and neurotransmitters), hormone supplementation, neuro/biofeedback and
meditation can be helpful in this stage.
4. Apply pathology-centered natural care. Pathology-centered natural care
aims to suppress symptoms of an illness. Very high doses of vitamins (the
orthomolecular approach), botanical or herbal medicine, and specific nutrient
supplementation in the case of a known deficiency are common approaches for
mental health conditions. These methods are rarely healing, and as such, would
need to be used long term and monitored regularly unless the first 3 areas
above are addressed. The approaches used in this step will almost universally
have cross-reactions, the same action as, or interferences with conventional
drugs. They may also cause complications in your condition even if used alone.
None of these types of natural treatments should be used without the help of
your doctor.
5. Apply pharmacologic intervention. Naturopathic medicine is not funda-
mentally opposed to the use of conventional drugs. Sometimes the use of
pharmacology is necessary and saves lives. Until the work of eliminating the
stigma associated with mental illness makes it easier to seek treatment early,
this will unfortunately be where most people will start their journey to recovery
and will have to work backwards or through several stages at once. The more
we are able to talk about mental health challenges, and the safer it feels, the
more we can focus on early warning signs and less intensive interventions at the
beginning of treatment. Until then, you or your loved one will likely start with a
conventional drug. This does not mean you can only use pharmaceuticals or will
have to be on them for the rest of your life.
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6. Recommend surgery or major procedures. Surgeries for mental illness are
thankfully a thing of the past, but major procedures such as electroconvulsive
therapy are not. Much like the conventional model, this would only be
recommended as an absolute last resort and would be referred to a specialist
to conduct it.
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Establish Conditions for Health
Treatments do not always have to be something that you put into your body,
they can be related to how you live your life, and sometimes what you don’t put
into your body. Lifestyle treatments can be related to sleep, diet, exercise, social
relationships, mindfulness, and the patterns/routines of daily life. These can and
should be broadly applied regardless of your diagnosis (including those who have
a physical health diagnosis, or even no diagnosis at all).
Sleep
Regardless of your health concern, sleep is vital. Health news reports are littered
with evidence that our current lifestyle is reducing our ability to get this much-
needed aspect of general health. We are constantly bombarded with artificial lights
that negatively impact our natural biological clock. Top that with poor food choices
that impact our blood sugar and therefore energy regulation, and relatively high
levels of stress in our go-go lifestyles, and you have a recipe for poor sleep.
Researchers have yet to identify exactly why we need to sleep, but studies in sleep
deprivation give us some insight into the effects of not getting enough zzz’s. One
small study conducted a simple 24 hour sleep deprivation in adults with no major
health concerns and found that stress hormones were increased while cognitive
function and memory were decreased1. Other studies have shown that even
fragmented sleep for a single night affects some hormone production and can
contribute to increased eating with lower feelings of fullness the following day2. To
make a long story short, we need to sleep to maintain a healthy body and brain.
Disordered sleep, whether insomnia or hypersomnia (too much sleep) is very
common among those with mood disorders. Good sleep hygiene practices can
be helpful in establishing an environment that is more conducive to sleep. This
includes establishing a nightly routine to signal your brain that it is time to prepare
for sleep. An ideal nightly routine would include turning lights down, turning off
all screens, and engaging in calm, quiet activities such as reading. It also includes
setting a daily routine in which you wake up at the same time, even on weekends,
and don’t nap. Caffeine should be avoided after 2pm, but keep in mind that the
effects of caffeine can linger as long as 12 hours depending on how quickly your
body processes it. Finally, use your bed only for sleep and sex. This means that
if you have difficulty falling asleep you should get up and do something else,
preferably boring and without a lot of light, and return when you feel sleepy again.
For those of you who are attached to your smart phone or tablet and use them
exclusively for reading, it would be wise to invest in a library card or older model
e-reader without the backlit screen. Trying to read to induce sleep on a backlit
screen is counterproductive.
More information on specific, non-lifestyle related treatments for disordered
sleeping will be given in later sections.
Diet
The same hectic, non-stop lifestyle that can interfere with sleep also often interferes
with diet. Our diet is where we obtain all of the vital nutrients and cofactors that are
responsible for the normal production of energy, hormones, and neurotransmitters.
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We are always looking for the magic bullet or the specific diet that will solve
our problems. Should you eat high carb and low fat? What about high protein?
Vegetarian? Vegan? Gluten free? Dairy free? There is the Paleo diet, the Atkins
diet, the South Beach Diet, The Zone, the Ketogenic diet, the Blood Type Diet,
the Feingold diet, and on and on and on. You have probably tried one or more of
these diets at some point. The problem is that all of our bodies are different and
will respond differently based on our metabolism and nutritional needs.
Dietary focus should be on having a diet rich in vitamins, minerals, and with a
healthy balance of carbohydrates, proteins and healthy fats (very important for
brain function). The chapter on nutrition goes into great detail about how to
accomplish this, so I will not duplicate the effort here. Instead, I will focus on the
five most common dietary missteps that are associated with a large majority of
chronic diseases.
1. Sugar. We all love sugar, it is encoded in our DNA. But sugary foods are
often high in calories and low in nutrients. Sugar is also associated with
inflammation throughout the body and the brain, and this inflammation is
correlated to many chronic conditions. Reducing or eliminating sugar from
your diet is an excellent first step toward establishing conditions for health.
Keep in mind, alcohol and refined grains such as white bread and pastries
count as sugar even if they don’t taste sweet to you right now. Eliminate
sugar for a month and then see how sweet they really are!
2. Artificial sweeteners. These are just as problematic as sugar. The research
is inconclusive about how these chemicals affect our brains, but there is
strong evidence regarding how they affect our appetite and weight. If you
think about it, it makes sense that consumption of diet sodas would lead to
increased caloric consumption overall because you usually drink soda with
junk food. In fact, the San Antonio Heart Study examined this correlation
and found that those who consumed artificially sweetened beverages had
a significant increase in risk and rates of obesity, even when they started
at normal weights3. While obesity is not a direct contributor to mood
disorders, it is a common co-occurring condition and a frequent side effect
of anti-depressants and mood stabilizers.
3. Highly processed foods. Just like sugar, we all love fatty, greasy foods.
Hi fat foods served our ancestors well to store fat in preparation for times
of scarcity, so we inherited the taste for them. In our current environment
of abundance, this taste doesn’t serve us as well, and leads to the
overconsumption of readily available junk food. These foods are very high
in calories and unhealthy fats (mostly trans fats that make cell membranes
less fluid), and very low in nutrients. Eating “junk food” every once in awhile
is fine, but eating it regularly leads to obesity, inflammation, insufficient
nutrient status, mood changes, digestive problems, and migraines just to
name a few. Anyone with a chronic condition can probably attest that when
they eat junk food, their chronic symptoms get worse. I always suggest that
my patients shop on the outside edges of grocery stores. This is where
you will find fruits, veggies, proteins and grains that are in their original,
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non-processed form. The more foods you can eat that are recognizable in
nature, the better.
4. Eating foods we are sensitive to. Not everyone has a food sensitivity
(sometimes called food allergies), but a lot of us do. Eating foods that we
are sensitive to can be related to a whole host of things, including mood
disruption, difficulty concentrating, skin conditions, headaches, digestive
complaints. Do these sound familiar? Probably, because they keep being
mentioned as things that can be associated with inflammation, which eating
foods you are sensitive to can cause. The most effective and accurate way
to uncover food allergies is by elimination and challenge. What this means
is that you would eliminate all foods that have been identified to cause
sensitivity or allergies in the general population, and then after a period of
1-2 weeks, reintroduce the foods one at a time. This is a very slow and tedious
process, but it can be worthwhile if you have reactions after eating foods,
but can’t identify which specific foods they are. The most common food
sensitivities are wheat/gluten, dairy, corn, soy, eggs, nightshade vegetables
(like tomatoes, eggplant, and peppers), citrus fruits, garlic, and yeast. There
are some blood tests that can be run to check for IgE (immediate response)
and IgG (delayed response) allergies to food, however their accuracy is
somewhat debated. Despite that, people often find improvement in their
health when they remove foods that are found using one of these tests.
5. Pesticides on foods. Organophosphate pesticides are present on all
conventionally grown produce. These chemicals have been found to be
associated with adverse neurodevelopment (including behavioral issues)
and cognitive issues. They are also associated with insulin resistance, which
is a concern if you are taking medications that are also associated with
insulin resistance, such as the neuroleptic drugs. Some symptoms associated
with a high body burden of these pesticides in otherwise healthy people
are poor cognition, poor attention, short-term memory loss, depression,
fatigue, numbness, balance or coordination issues, thyroid dysfunction,
and disruption in sexual interest4. Do any of those overlap with a mood
disorder? You bet. Consumption of pesticides have not yet been shown to
be associated with the onset of a mood disorder, but why risk worsening of
your symptoms by adding something to your body that on its own causes
the symptoms you have? Of course, eating only organic foods can be cost
prohibitive, so I suggest that my patients use the guides published by
the Environmental Working Group each year. These guides give the dirty
dozen, which are the most likely to retain pesticides that you will ingest,
and the clean 15, the least likely to do so. In general, the thicker or tougher
the skin is, the less likely it will be to affect you. If you throw away a peel, it
is probably safe to buy conventionally grown and save some money. Just
remember to wash the skin before you cut through it.
Exercise
It has been said that exercise is the most effective but least used antidepressant and
anti-anxiety treatment. In general, to live a healthy lifestyle you should aim to get
at least 30 minutes of cardiovascular exercise (where your heart rate gets between
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65-85% of the maximum predicted heart rate) and 15-20 minutes of resistance or
strength training exercise at least 3 days a week. To calculate your target heart
rate, subtract your age from 220 and then multiply by .65 for the low end, and .85
for the high end. For a 35-year-old person you would have the following equation:
220 – 35= 185 (predicted max HR)
185 x .65 = 120.25 (low end of cardio training HR)
158 x .85 = 157.25 (high end cardio training HR)
Based on the calculation a 35-year-old person would aim to keep their heart rate
between 120 and 160 beats per minute for at least 30 minutes. Strength training
can be done using body weight for resistance, stress bands, or weights. This is
recommended for most health conditions, but you should always check with your
doctor before beginning a new exercise program. Some conditions may have
specific limitations.
Some studies have shown a correlation between depression and periods of lower
exercise frequency and mania with higher frequency of exercise, however this
does not mean more exercise causes the mania. In my practice, it has been my
observation that regular, and specifically morning exercise, is effective for helping
to maintain mood stability. Part of that is likely related to consistent timing of daily
routines and improved sleep with regular intense exercise.
If you are drawn to more intense forms of exercise, keep in mind that more does
not always mean better. Your body needs time to recuperate. Going far beyond
your limits can cause increased inflammation rather than decreasing it, and can be
counter productive as it could lead to injury that will disrupt your exercise routine
entirely.
If you are new to exercise, start slowly and choose something that is fun for you
so you are more likely to stick with it. The goal in exercise with bipolar disorder is
routine and consistency, so starting with an intense program you are unlikely to
maintain more than a few weeks will be less effective than a moderate program
you can stick with and build on as your fitness improves. Yoga is an activity that has
been demonstrated to improve attention and decrease self-report of feelings of
depression and anxiety5. Yoga can vary in intensity from recuperative (very gentle)
to the more intense versions at higher temperatures. Find what works best for you.
Finally, exercise doesn’t have to be in a gym! You can find active hobbies that
count as exercise, such as wood working, gardening, or hiking. In fact, the benefits
of exercise can be enhanced by being outdoors. Time in nature has been shown
to reduce cortisol levels (highly associated with stress), improve an overall sense of
wellbeing, and even reduce symptoms of ATTENTION DEFICIT HYPERACTIVITY
DISORDER, even without exercising.
Social Relationships
Social interaction is covered in more detail in a later chapter, so it will not be
covered in detail here. I do want to point out briefly that healthy relationships
are vital to overall health and treatment outcomes. Medications, diet, or herbs
cannot give you less anxiety if you work in an incredibly stressful environment
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with an abusive boss. It may help reduce your anxiety by blunting it, but it will
not remove it. Additionally, a recent study showed that treatment adherence to
mood stabilizers is improved where the patient has strong social support as well as
strong beliefs that their health outcomes could be influenced by others6. Although
this study has not been done regarding natural therapies, I have found the same
to be true in my practice and in that of my colleagues throughout the US. The
bottom line for those with a mood disorder is to surround yourself with healthy
relationships and people who are living how you want to live. For those who love
someone with a mood disorder, support them in their choice of healthcare and
they will be more likely to stick with it, leading to better outcomes.
Daily Routines
Throughout this book, the need for consistent routines is emphasized. In many
ways bipolar disorder is really a disorder of circadian rhythms. The natural sleep/
wake cycle is altered. By maintaining consistent routines primarily through sleep/
wake times, night time routines, regular healthy meals, and morning exercise
as described above we can help to maintain a more effective circadian rhythm.
Consistent routines amplify and reinforce the cycle that we wish to maintain.
Mindfulness
Entire books can and have been written on mindfulness. Mindfulness is an
effective tool to ensure that all of the aspects of lifestyle enumerated above can be
accomplished. It can help to establish and maintain your nightly routine by giving
you the skills to slow down. It can help you manage your sugar, alcohol or junk
food cravings by helping you to identify the feelings that you may be having that
trigger cravings. It can help you to become more aware of your feelings related
to triggers and slow your reactions to them. This can in turn help to improve your
relationships. Exercise itself can be incorporated into mindfulness, and mindfulness
can help you maintain your motivation for exercise. Some professional athletes or
entrepreneurs have even attributed their mindfulness practice to their success in
sports or business because of the focus and concentration it gives them.
Meditation and mindfulness are almost always thought of as one and the same. This
often conjures up images of people sitting still for 30 minutes trying not to think or
feel anything. This couldn’t be further from the truth. Mindfulness is actually a keen
awareness of the things that you are experiencing without judgment. Mindfulness
is experiencing the details of life in an intentional way without distraction. Trying
mindful eating is often an effective first exercise. To do this you would begin by
eating without distractions of TV, conversation, music, or anything. You would
engage all of your senses as you slowly take a bite. What does your food look like?
Feel like? Smell like? What are the sounds it makes as you chew? What are the
nuances of its flavor? Can you pick out individual spices? Where do you feel the
food inside your mouth? How does it feel as you swallow? Mindful eating slows the
process down, brings greater awareness to our appetite and emotions, and often
leads to less overeating and more enjoyment of healthier foods.
For those interested in even greater exploration of mindfulness there are programs
that you can take. One in particular was developed by John Kabat Zinn and others
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for the purposes of helping with pain in a hospital setting. The 8-week Mindfulness
Based Stress Reduction (MBSR) course is now offered to communities and hospitals
throughout the US. I recently found a free online version that can be done in your
home, however you will miss out on some of the group dynamic and interaction so
it may be best to undertake the online version with a friend. There are also books
that you can read to help guide you through various types of meditations that you
might find helpful to cope with more challenging moments. One of my favorites is
The Mindful Path to Self-Compassion by Christopher K. Germer.
Hydrotherapy
Hydrotherapy is what it sounds like – the therapeutic use of water – however it is
so much more. In fact, some of my teachers argued that it is a bit of a misnomer
and should really be called thermotherapy, or heat therapy. After all, therapeutic
treatments using water are really focused on the transfer of heat through the
deliberate application of cold or hot water. This can be done using steam rooms,
cold plunge baths, ice, or wet towels (the most accessible and most common
method).
Some of you may be familiar with the more sordid history of psychiatry where
“hydrotherapy” was used as a method of scaring willful or psychotic patients into
submission. In these cases a doctor would simulate drowning or cause extreme
discomfort. I bring this up only to reassure you that this is NOT the type of
hydrotherapy I am discussing.
I see modern day hydrotherapy as it is used by naturopathic doctors to be a
therapy that is amplifying our body’s natural processes. The systematic application
of hot and cold cloths helps to increase nutrient delivery and waste removal from
tissues, reducing inflammation, improving circulation and the immune system,
and generally helps to alleviate stress. The way that hydrotherapy amplifies these
things is by creating what I liken to a pump throughout your circulatory system. The
heat causes dilation of the blood vessels and brings more blood to the surface by
dilating those closer to the surface and constricting those deeper down. Alternating
with cold then does the opposite, constricting the surface vessels and dilating
the deeper vessels, thus shunting the blood that was just drawn to the surface
back down to the internal organs. Blood and lymph work to deliver nutrients and
remove wastes, and this pumping action helps to amplify that.
Hydrotherapy is something that you can do at home and is usually more effective in
the early stages of any condition. It can be helpful in the early stages of depression,
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anxiety, or mild mania as a method to have purposeful relaxation. It can also be
very helpful with pain and other chronic conditions. Despite this, hydrotherapy is
not broadly applicable. The methods used can be either stimulating or relaxing to
the system. In general, the longer you apply the hot or cold, the more relaxing it
is, and the shorter, the more stimulating. Additionally, the greater the temperature
difference (never to the point that you would scald someone) of the water or
applications to your body temperature, the more stimulating it would be. Finally,
you would not want to apply heat for a long time to an already inflamed area.
Hydrotherapy can be done with the full body or localized to a specific area of pain
or trauma. For mood disorders in early stages I find what is called constitutional
hydrotherapy to be helpful, although I would not use it as a stand alone treatment.
To do constitutional hydrotherapy it takes about an hour, requires a decent amount
of equipment, and someone to perform it. It is best done in an office setting. For
a simpler version you can easily do at home you can perform alternating hot and
cold showers. For an average 10-minute shower you would begin with 3 minutes
of hot water followed by 30 seconds of cold and repeat two more times. The hot
water should be hotter than an average shower but not so hot that it will scald the
skin. Similarly, the cold water should be as cold as you can stand it without being
painful. Alternating hot and cold showers should always end on cold, even in the
winter. You will be surprised how quickly you warm up when ending on cold, and
how much longer you retain the warmth than with regular showers. Most people
report that they feel more energized when they end their showers with a cold blast
as well.
Homeopathy
Homeopathy is a system of medicine that uses small doses of single substances
found in nature to stimulate the body to heal. It is based on a centuries old
principle of like cures like that was first posited by Hippocrates, the father of
modern medicine. The exact mechanism in which homeopathy stimulates healing
is unknown, however the current research suggests that nanoparticles7 of the
original substance are created during the process followed to make a homeopathic
preparation.
For homeopathic treatment to be effective for serious conditions a skilled
practitioner and diagnostician needs to be involved. Homeopathic remedies are
prescribed based on the unique, characteristic symptoms that each individual
experiences with their illness. Everyone reading this has or knows someone with a
mood disorder. If you were all to share your stories there would certainly be some
common themes. This is what leads to your medical diagnosis. But I am certain
you would notice some subtle, and some not to subtle differences in how you
experience episodes of mania or depression. Some people find it more pleasant
with increased social engagement and more effective work. Some find it irritating
with increased anger and agitation. Others find it scary with auditory or visual
hallucinations or incredibly risky behaviors. Some are driven to think of or even
attempt suicide because of their symptoms, while others never reach that point,
even if their symptoms are as severe. Similarly, you will also not all have the same
physical symptoms associated with the condition. Some may get migraines every
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time they get depressed or manic. Some may get specific aches and pains. Others
may have digestive complaints. Being able to gather all of this information, sort
through the things that place you or your loved one in a diagnostic category, and
then sorting out the aspects that are unique and specific to you is the job of a
homeopathic practitioner.
The reason this is so important is that these unique symptoms are what guide the
selection of a remedy to help you heal as a whole person. There are over 3,000
homeopathic remedies to select from, and each has specific indications based off
of individual presentation. It is the most individualized medicine that I have seen
thus far. For that reason, it would be impossible to give examples of homeopathic
remedies to use for mood disorders. Any given remedy listed would only work if
your depression, anxiety, or mania symptoms were exactly those that the remedy
is indicated for.
This complex and often poorly understood form of medicine can be incredibly
powerful when done well. There is evidence that it is in no way inferior to the use
of Fluoxetine (Prozac)8 and that it is more effective than stimulant medications for
attentional issues9. In my practice, I have seen a well-prescribed remedy be so
effective that a suicidal patient had a significant reduction in her suicidal thinking
and behavior before she was even seen in the emergency room, so much so that
she was sent home immediately after her evaluation with no concerns for her safety.
For a more detailed example of how homeopathy is used and the types of results
that can be possible, see the case example at the end of this chapter.
Light/Dark Therapy
As described the section on establishing conditions for health, bipolar disorder is
in many ways a disorder of circadian rhythm. When maintaining consistent daily
routines isn’t enough to keep moods stable, sometimes we need to amplify the
sleep and wake cues. This is where light and dark therapy comes in.
Our circadian rhythm is primarily dictated by hormones that fluctuate throughout
the day including cortisol and melatonin. Hormone regulation is affected by many
things, including what we eat. This will be discussed more in a later section. The
production of melatonin requires a complex mechanism involving light input from
the eye to an area of the brain called the hypothalamus and more specifically, the
suprachiasmatic nucleus. When we use light and dark therapy we are amplifying
these signals that would occur in nature if we didn’t use artificial lighting. This is
also why some people will notice an improvement in their sleep patterns after
having gone camping for a week that will last well past their return to their usual
daily life. When we camp we reduce our artificial light exposure that is coming
directly into our eyes and are often able to sleep earlier as the sun sets. This really
only applies to more rustic camping, not to RV camping.
Note that this subsection is called light/dark therapy. Often people will think to use
light therapy when they are depressed because of news stories they have read or
because it worked for a friend. They go online, find a place to order a light with the
more therapeutic wavelengths (typically blue), and then sit in front of it for however
long they can muster, all without direct supervision from a medical professional.
This can be dangerous to do if you have or are susceptible to bipolar disorder.
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People who have this condition can sometimes have a mania triggered if light
therapy is used alone without the accompanying dark therapy. Basically they are
amplifying only half of the signal to the brain.
To more safely and completely amplify signals for our circadian rhythm, we need
to block the same light wavelengths at night that the morning light provides in
abundance. The easiest way to accomplish this is by wearing sunglasses that
block blue wavelengths for an hour or two before bed, even indoors. I have found
patients with bipolar disorder who have clear evidence of a delayed sleep phase
demonstrated with 24 hour salivary cortisol testing do quite well normalizing their
sleep patterns when this method is adhered to strictly and monitored.
Those of us with “clean” healthy diets that we have maintained for a long time
will often get most of the nutrients we need from our food if we are conscientious
about eating a wide variety of fruits and vegetables. If you are one of these people
and you have good energy, go to sleep and wake up easily, and have regular
healthy bowel function, you may not gain as much benefit from a multivitamin.
If you struggle more with any of these things, using a multivitamin may help to
ensure that you are getting not just adequate, but optimum levels of nutrients.
For those of us who have been eating poorly and have more systemic inflammation,
this may also be true but not why you think. More inflammation often leads to
reduced absorption of nutrients from your food. So even if you have cleaned up
your diet, your gut may take a significant amount of time to repair. In these cases,
even a multivitamin will not be enough to increase absorption. These cases may
indicate the short-term use of IV nutrient therapy. This allows us to bypass the
limitations of absorption and deliver the nutrients directly to the bloodstream
where they can then be delivered to the tissues to do their work.
Nutrients are used in our biochemical pathways that produce energy, hormones,
and neurotransmitters. Let’s look at the production of melatonin as an example.
As described earlier, melatonin requires light signals from the eye to specific
areas of the brain to regulate its production. But the precursors that melatonin is
made from must be present. Tryptophan is an amino acid found in many dietary
proteins. This amino acid undergoes a transformation through the use of enzymes,
vitamins and minerals to produce serotonin and eventually melatonin. Along this
process the enzymes require nutrients, called co-factors, in order to function. For
this process, the nutrients that are required include vitamins C, B1, B3, B5, B6, and
folate, zinc, calcium, magnesium, and iron. Some of these vitamins are needed
for what is called the “rate-limiting step” or the step in the process without which
everything slows down dramatically or stops. Without adequate nutrition we will
be less able to produce energy and other substances that help to regulate sleep
and mood. With optimum nutrition, we will produce them with more consistency.
There are better forms of some vitamins, and fat-soluble vitamins (A, D, E and K)
should not be taken in high doses without talking to a doctor first. These vitamins
are stored in fat cells, so it is possible to over dose them. Consult with your doctor
about the best form and combination to take if you are considering vitamin therapy.
Neuro/Biofeedback
Neurofeedback utilizes computer programs to help you train your brain’s
activity. It focuses on alpha, beta, delta, gamma, and theta waves. Alpha waves
are associated with awake but relaxed states, beta with fully awake and alert,
gamma with processing and learning, delta with deep sleep, and theta with
extreme relaxation. Those with more anxiety tend to have a high ratio of beta
waves compared to alpha and theta whereas those with depression tend to be the
reverse. Neurofeedback has been shown to be effective for treating both of these
conditions as well as ATTENTION DEFICIT HYPERACTIVITY DISORDER, dementia,
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and general concerns with focus. It has not been shown to be effective for mania
or bipolar disorder as a full condition.
Using neurofeedback, you are learning how to identify and create certain states
within your brain. This needs to be done using high tech equipment not readily
available for home use, with a skilled technician. Your training would be designed
based on results from a study called a qualitative electroencephalograph (QEEG).
Training typically involves a 20 – 30-minute session in which you have sensors
applied to your scalp with an electrolyte paste to allow for transmission of data.
These sensors are connected to a program that will allow you to watch a movie,
listen to music, or play a game based on keeping your brain waves within a certain
range. Maintaining your brainwaves within that range allows for smooth playback
while going outside of the target range causes pauses or skips. Training typically
requires at least 20 sessions that become more challenging as you improve your
control.
Biofeedback works similarly but with physical parameters. Typically with biofeedback
you are learning to identify and control emotional or physical responses based on
physical signs. These can include galvanic skin response which measures sweat on
your skin, temperature, pulse and breathing rates. This can be a great tool to help
bring awareness to your body and even bring you back to your body in emotionally
charged states. It can be helpful in mitigating triggers for anxiety and depression,
but again, is not as effective in mania.
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selenium during pregnancy has also been shown to be correlated
with lower rates of post-partum depression13.
SAMe. S-adenosylmethionine, better known as SAMe made the news over
a decade ago as it was purported for its natural antidepressant and
anti-anxiety effects. Claims were made that it was used instead of
SSRIs throughout England. These claims are not untrue, however
this supplement should be used in extreme caution or completely
avoided in bipolar disorder as it can cause hypomania.
Botanical Medicine
Botanical medicine, also called herbal medicine, is the use of plants medicinally.
This class of natural medicine is readily available without prescription but should
ALWAYS be considered a drug. Many drugs are actually made from the medicinally
active parts of plants. Botanical medicine works by introducing an active agent to
your body that is causing it to do something that it wouldn’t do on its own, just like
a pharmaceutical drug does. Plants often have interactions with pharmaceuticals.
These should always be discussed with a doctor before taking them. I almost
always avoid the use of botanical medicine in my patients with mood disorders and
find that when I address the first three steps in the therapeutic order, they aren’t
needed. I will not give doses for any herbs in this section because I want to ensure
you talk to a trained professional about this – that is how seriously I take their use.
The advantage of using plants over their pharmaceutical counterparts is that
many people find them to be gentler and with fewer side effects. Herbal extracts
of medicinal plants can be given as a single substance or combined for your
individual presentation. In using plants, you get additional benefits from them as
well, including other active constituents that work synergistically with the specific
action you are looking for, and some small additional nutrients from the plant as
well.
Plants are designated based on how they affect the body. The plants that are
most commonly used in mood disorders are classified as nervines, sedatives and
adaptogens. Nervines modulate the nervous system and are typically calming.
They can be useful in helping withdraw from recreational or prescription drugs.
An example of a gentle nervine is Avena sativa (milky oat seed). Sedatives are
commonly used in anxiety, hypomania, and insomnia. They are calming, and as
the name describes, mildly sedating. They can amplify the effects of medications
that are being used for the same purpose, such as benzodiazepines. Sedative
plants include Eshscholzia californica (California poppy) and Piper methysiticum
(Kava kava). Clinical report suggests that some of the stronger sedatives such as
Kava kava may be associated with causing severe depression in those with bipolar
disorder. Finally, adaptogens modulate the stress response systems. They typically
help reduce anxiety, increase focus and attention, and improve sleep. Examples
of this include Eleuterococcus senticosus (Siberian ginseng), Withania somnifera
(Ashwaghanda), and Rhodiola rosea (rose root). Adaptogens can be energizing
and should be used with extreme caution in bipolar disorder as they may cause
mania.
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I can’t leave this section without mentioning the most famous herbal medicine for
improved mood – Hypericum perfoliatum (St. John’s Wort). This herb is effective
for depression because it increases the serotonin levels in your system, just like
an SSRI does. The herb should never be used in someone with bipolar disorder
without the presence of a mood stabilizer. Just like taking an antidepressant alone,
taking this herb alone can cause hypomania or make your treatment outcomes
worse. It can also cause a very elevated level of serotonin that leads to toxicity,
called serotonin syndrome.
Orthomolecular medicine
This system of medicine developed by Linus Pauling incorporates the use of
very high doses of vitamins for treatment of mental illness. It is most famous for
the treatment of schizophrenia, but has also been used for mood disorders. It
commonly uses doses of niacin and vitamin C that can cause significant “flushing”
in which the skin becomes uncomfortably red and hot and stools become very
loose. Some people find great relief using this method, however they have to take
the vitamins long term. They typically find that the symptoms return as soon as they
discontinue the high doses.
Migraines
I read a statistic somewhere long ago that there is approximately a 50% coincidence
of migraine headaches and bipolar disorder. A study published over 30 years ago in
The Lancet showed that 93% of children with severe frequent migraines recovered
by identifying and removing food allergens14. I have seen this to be effective
time and again, including in my own health. And, as stated previously, removing
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food allergies can also be very effective for mood stability, focus and attention.
It also tends to clear up other aches and pains and skin conditions as well due to
decreased system-wide inflammation.
Homeopathy, hydrotherapy, acupuncture and biofeedback can all be very effective
for treating migraines. All but hydrotherapy require a professional to work with
(after initial training biofeedback will not require appointments with a professional).
The most commonly used hydrotherapy treatment for migraines is to place the
feet in a hot bath and an ice pack on the head or neck for about 10 minutes at a
time.
The primary nutrient deficiency associated with migraines is magnesium. As you
may recall, magnesium can also be effective for mood stability and for constipation
as well. Magnesium deficiency may be a strong consideration if you experience
both migraines and a mood disorder.
Botanical medicines that are commonly used in natural migraine formulas are
Tanacetum parthenium (Feverfew) and Petasites hybridus (Butterbur). These plants
have both been studied and show moderate efficacy in the prophylactic treatment
of migraines. I have never found them to be effective for the treatment of an active
migraine.
Metabolic Syndrome
This all too common condition in the US is very prevalent in the mental health
population, made even worse by medications that contribute to it such as anti-
psychotics. Even without medications, there is a high rate of what is called reactive
hypoglycemia in people with mood disorders. In reactive hypoglycemia, blood
sugar drops very quickly after eating a meal, leading to fatigue, concentration
issues, irritability, and headaches. When we feel this way we are often prompted
by internal cues to seek out more food which leads to a consistent pattern of
overeating.
Metabolic syndrome is considered a precursor to diabetes and is made up of 5
risk factors. These are central/abdominal obesity, high triglycerides, low HDL (also
called the “good” cholesterol), high blood pressure, and high fasting blood sugar
(or being on medication for previously high blood sugar).
Metabolic syndrome is best managed with lifestyle changes such as sleep and
exercise and strict low carbohydrate diets that include healthy fats. Sometimes
initial supplementation of minerals and herbs can help to regulate blood sugar
while you are adapting to your new regimen. The most common and effective
supplements are chromium picolinate, cinnamon, and green tea. The first two help
to stabilize blood sugar and decrease insulin resistance. Green tea has been shown
to help increase metabolism and to reduce a blood sugar spike after meals.
Insomnia
Insomnia can be a significant challenge, especially in mood disorders. When lifestyle
and diet aren’t helpful enough, homeopathy, hydrotherapy or light/dark therapy
are often helpful. On occasion, the insomnia is bad enough to consider using a
temporary supplementation of melatonin an hour before bedtime. Adaptogenic
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herbs can be helpful in reestablishing good sleep patterns. Sedative or hypnotic
herbs such as those mentioned previously as well as Valerian root can be used
to induce sleep. All of these natural therapies should be discussed with a doctor
before using them as all can have interactions with or amplify the effects of your
prescription medications.
A Case Example
In this case example the name, age, and other identifying information has been
changed for the privacy of the patient.
Emily was 21 when she was first diagnosed with bipolar disorder. She had been
undergoing a very high level of stress in her senior year of college and was
preparing to take her LSAT to apply to law school. She had always experienced
ups and downs, but never sought out medical help because the ups helped her
study more and the downs were never something she couldn’t push through, until
then. The high level of stress and lack of sleep finally got the best of her and she
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couldn’t stop crying. She sought help from her MD and was accurately diagnosed
with bipolar disorder. Her doctor prescribed a mood stabilizer, and after a week
added an antidepressant. Her moods felt better and she finished college and was
accepted to law school. She continued to take her medication consistently because
she was worried about the stress of law school “getting to her” like it had before.
When Emily decided to pursue natural treatment it was because of the side effects
she was getting from the medication. She had no sex drive, felt “foggy headed”
and had gained over 50 pounds. She had started trying to eat better by following
a low fat diet and running daily, but the weight just wouldn’t come off. She was
also concerned about the long term ramifications of her medications, including
the effects it would have on a baby should she decide to become pregnant, and
was hoping to get off of the drugs if possible. Despite all of this she was open to
staying on her medications if that was best.
A full intake showed that she had signs of hypothyroidism including lethargy,
weight gain, constipation and dry skin. She also shared that she had debilitating
migraines up to four times a week. Lab testing showed that she did in fact have
hypothyroidism and metabolic syndrome as well. A food allergy panel suggested
that she had sensitivities to coffee, dairy, wheat, and baker’s yeast.
Her treatment plan started aggressively as she had a high level of commitment and
enthusiasm. It began with an exercise prescription to reduce the amount of running
she was doing to 20-30 minutes 3 days a week and substitute weight training on
alternate days. Some studies suggest that long cardio sessions will actually reduce
thyroid hormone and therefore metabolism as well, whereas weight training does
the opposite. She found a positive impact on her weight and energy levels within
the first 2 weeks of the change in her exercise routine.
She was also started on a thyroid hormone replacement and a low carbohydrate
allergy elimination diet. This meant she avoided all of the common missteps in
diet described earlier in the chapter as well as all grains, most fruits, and her food
sensitivities. Emily’s diet felt restrictive at first while she adapted, but she soon
found that she felt much better eating primarily proteins and veggies. She was
even able to eat out with friends from time to time.
The final piece of the equation was the homeopathic remedy. Emily spent 4 hours
sharing all of her symptoms and medical history. The recap of the symptoms she
experienced confirmed her existing diagnosis of bipolar 2 disorder. At the time of
her initial intake she was feeling more depressed than hypomanic. She had recently
experienced the loss of a significant relationship and found that the only thing that
could keep her from having outbursts of tears was to stay very busy with work. Any
time she found herself unoccupied she would burst into “hysterics” and she would
have suicidal ideation that would last just a few minutes until she was able to make
herself work again. As long as she was working she was fine and had no thoughts
of death. When she would cry, having someone console her made her angry and
she would stiffen against any offered hugs. Her migraines would also get worse
during this time, and were described as feeling like a steel spike was being driven
through her skull right above her eye. These specific symptoms of her depression
and migraine were unique to her, meaning that not everyone with depression and
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migraines will feel them the same way, and indicated the homeopathic remedy
Ignatia amara. Emily had some traumatic experiences in her past as well, so she
was referred to a therapist for talk therapy.
Emily did well on that remedy for a few months, having to change the potency, or
preparation a few times. Eventually her symptoms changed and a different remedy
was indicated. She had several remedies and several ups and downs with her
aggressive diet and exercise plan over the subsequent 2 years. She noticed that as
she continued with homeopathic treatment she was able to eat more of the foods
she was sensitive to without triggering as many migraines or mood episodes. If she
went overboard and started having more severe or more frequent migraines, she
removed the foods she is sensitive to from her diet again and almost immediately
saw an improvement in her migraines and her moods.
After a few months of steady improvement with her natural treatment plan, we
worked with Emily’s psychiatrist to slowly reduce her medications. After about 1
year she was able to fully discontinue her prescription medications. She did have a
few episodes after discontinuing her medication, but by that time she had learned
what her triggers were, how to cope with the symptoms, and when to call for a
change in her homeopathic remedy. She was able to avoid hospitalization.
Now Emily tries to maintain her initial diet and exercise routine but doesn’t have
to be as strict with it. She will go back to the strict schedule every once in awhile
when she feels that she is starting to slip. She maintains a solid sleep routine and is
focusing more on mindfulness with her eating and emotional responses. She calls
every once in awhile when the skills she has learned for her lifestyle aren’t quite
enough and she needs a “tweak” in her homeopathic protocol. Overall, Emily
is feeling great with consistent energy, healthier weight, successful and fulfilling
work, and healthy relationships.
Works Cited:
1 – Joo, E.Y., Yoon, C.W., Koo, D.L., Kim, D., Hong, S.B. (2012). Adverse Effects of
24 Hours of Sleep Deprivation on Cognition and Stress Hormones. Journal
of Clinical Neurology. DOI: 10.3988/jcn.2012.8.2.146
2 – Gonnissen, H.K., Hursel, R., Rutters, F., Martens, E.A., Westerterp-Plantenga,
M.S. (2013). Effects of sleep fragmentation on appetite and related hormone
concentrations over 24 h in healthy men. British Journal of Nutrition. DOI:
10.1017/S0007114512001894
3 – Fowler, S.P., Williams, K., Resendez, R. G., Hunt, K.J., Hazuda, H.P. & Stern,
M. P. (2012) Fueling the Obesity Epidemic? Artificially Sweetened Beverage
Use and Long-term Weight Gain. Obesity: A Research Journal. DOI:
10.1038/oby.2008.284
4 – Pizzorno, Joe (March 2013). Assessment and Intervention of Persistent Organic
Pollutants and Glutathione Depletion. California Naturopathic Doctors
Association MM14: Environmental Medicine and Oncology in Primary
Practice. Lecture conducted in San Francisco, CA.
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5 – Woolery, A., Myers, H., Sternlieb, B., & Ztelzer, L. (2004) A Yoga Intervention for
Young Adults with Elevated Symptoms of Depression. Alternative Therapies
in Health and Medicine. DOI: 10(2):60-63.
6 – Chang, C.W., Sajatovic, M., & Tatsuoka, C. (2014). Correlates of attitudes
towards mood stabilizers in individuals with bipolar disorder. Bipolar
Disorders: An International Journal of Psychiatry and Neurosciences. DOI:
10.1111/bdi.12226
7 – Bell, I., Koithan, M. (2012). A model for homeopathic remedy effects: low
dose nanoparticles, allostatic cross-adaptation, and time-dependent cross-
sensitization in a complex adaptive system.
8 – Adler, U.C., Paiva, N.M.P., Cesar, A.T., Adler, M.S., Molina, A., Padula A.E., Calil,
H.M. (2011). Homeopathic Individualized Q-Potencies versus Fluoxetine for
Moderate to Severe Depression: Double-Blind, Randomized Non-Inferiority
Trial. Evidence-Based Complementary and Alternative Medicine. DOI:
10.1093/ecam/nep114
9 – Frei, H., Everts, R., von Ammon, K., Kaufmann, F., Walther, D. (…), Thurneysen,
A. (2005). Homeopathic treatment of children with attention deficit
hyperactivity disorder: a randomized, double blind, placebo controlled
crossover trial. European Journal of Pediatrics.
10 – Gaby, Alan. (2011) Nutritional Medicine. Fritz Perlberg Publishing, Concord,
NH.
11 – Cope, E.C., Levenson C.W. (2010) Role of zinc in the development and
treatment of mood disorders. Current opinion in clinical nutrition and
metabolic care. DOI: 10.1097/MCO.0b013e32833df61a.
12 – Dye, John (2010). Naturipathic Treatments for Mental Illness. Delivered at
Southwest College of Naturopathic Medicine, Tempe, AZ.
13 – Mokhber, N., Namjoo, M., Tara, F., Boskabadi, H., Rayman, M.P., Ghayour-
Mobarhan, M. , (…) Ferns, G. (2011). Effect of supplementation with
selenium on postpartum depression: a randomized double-blind placebo-
controlled trial. Journal of Maternal-Fetal and Neonatal Medicine. DOI:
10.3109/14767058.2010.482598
14 – Egger, J., Wilson, J., Carter, C.M., Turner, M.W., Soothill, J.F. (1983). Is
migraine food allergy? The Lancet. DOI: 10.1016/S0140-736(83)90866-8
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139
Mental Illness and
Families of Faith
By Reverend Susan Gregg-Schroeder
Introduction
Secular society is finally talking more openly about mental illness but our religious
communities are mostly in the dark ages when it comes to understanding mental
disorders as treatable illnesses.
Based on the findings of the Surgeon General’s report on the magnitude of mental
illness in this country, we know that one in four families sitting in the pews have
a member dealing with mental illness. Yet the secrets of mental illness are kept,
people are not getting the help they need, and the families of persons living with
these brain disorders are not receiving the support they need. Many faith leaders
are also keeping silent about their own mental illnesses. I know this because I am
one of those persons.
Few people at church knew about my depression and hospitalization. For two
years I suffered in silence, hiding my condition from the church community for fear
of losing my job.
It was my senior pastor who stood by me, who believed in grace and who believed
in me. With his support, I finally decided to openly acknowledge my depression.
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I wrote an article for our church newsletter entitled, “The Burden of Silence.” My
senior pastor wrote an accompanying article about the ignorance associated with
mental illness. Our parish nurse set up an informational meeting on depression,
and we had a turn-away crowd of over 130 people. Seeing such a great need, a
depression support group was started, led by a professional counselor.
At the urging (and arm twisting) of a colleague, I was asked to speak at our Bishop’s
Convocation. The stories that my colleagues shared with me behind those closed
doors made me realize that I was being called to speak out about mental illness in
the church. I was especially concerned about my colleagues from various ethnic
groups, where there is fear that such a disclosure may bring shame to the family,
not to mention the effects such a disclosure could have on a person’s future in the
ministry.
Background
According to Glen Milstein in an article published in
the Psychiatric Times in 2002, surveys show that 60%
of Americans seeking help with mental health issues 60% of Americans
go first to their faith leaders. This is twice as many as seeking help with mental
those who went first to a psychiatrist, psychologist
health issues go first to
or family physician. Unfortunately, the response
of clergy and congregations falls significantly short their faith leaders
of what parishioners expect of their faith leaders.
Individuals struggling with mental illness are significantly
less likely to receive the same level of pastoral care as
persons in the hospital with physical illnesses, persons who
are dying or those who have long-term illnesses. People often visit
others with physical illness, bring them meals and provide other helpful services.
Mental illness has been referred to as the modern day leprosy.
There are a number of reasons why these needs are not being met. Clergy do
not receive adequate education about mental illnesses in seminaries. Some faith
groups see mental illness as a moral or spiritual failure. Congregations are made
up of individuals who mirror the stigma we find in society as a whole. Even if
people are aware that someone is struggling with mental illness, they may not
know what to do or say.
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The needs of families coping with mental illness are documented in the book,
Families and Mental Illness: New Directions in Professional Practice (Marsh, New
York: Praeger. 1992.) The needs fall into eight categories:
• A comprehensive system of mental health care
• Support
• Information
• Coping skills
• Involvement in the treatment, rehabilitation, and recovery process
• Contact with other families impacted by mental illness
• Managing the process of family adaptation to illness
• Assistance in handling problems in society at large (e.g. ignorance, fear,
stigma)
Nearly every person has been touched in some way by mental illness. And yet
individuals and families continue to suffer in silence or stop coming to worship
because they are not receiving the support they so desperately need. They
become detached from their faith community and their spirituality, which can be
an important source of healing, wholeness and hope in times of personal darkness.
Treatment Options
For many persons who suffer from a mental illness, psychotherapy (also known as
“talk therapy”) allows the individuals to converse with a trained therapist to address
issues such as low self-esteem, difficult childhood experiences, environmental
trauma, losses of all kinds, relationship issues and the lack of any positive meaning
for one’s life. The most common forms of psychotherapy are cognitive therapy,
psychodynamic therapy, interpersonal therapy, group therapy and marriage and
family counseling. Pastoral counseling that addresses emotional issues while
respecting a person’s faith tradition adds an important dimension to treating the
whole person.
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their medication therapy or participate in psychotherapy if they can envision hope
for the future.
Because of a renewed interest in treating the whole person, more people are
seeking out mental health professionals who will incorporate their spirituality in
the treatment process. Professionals like those with the American Association
of Pastoral Counselors (www.aapc.org) receive training in both psychology and
theology. These counselors can add a spiritual perspective to the professional
counseling relationship by incorporating a person’s spirituality with sensitivity to
cross-cultural traditions. Mental health professionals who are sensitive to and
respectful of the spiritual dimension can “walk with” persons as they seek their
own path to personal growth and healing.
The religious community has much work to do to address the shame, guilt
and stigma associated with mental illness. Because of a lack of information or
theological beliefs, some religious groups do not understand mental illness as an
illness unlike any physical illness. Sometimes a person is encouraged to stop taking
medication and rely on prayer. Some continue to put blame on the family at a time
when the family members are most in need of support. This is especially true with
suicide. If the suicide is seen as a sin or an unfaithful act, the family has to deal with
their grief as well as the guilt, shame and isolation from their
community of faith at a time when the family most needs
the support of their community.
A person’s
spirituality or religious There are no good words to describe the utter
despair and hopelessness associated with severe
views can be of great mental illness. As more research is done on the
benefit in the treatment brain, new medications and new therapies are
and healing of many rapidly being developed to address the physical and
illnesses, including emotional stress associated with brain disorders. But,
unfortunately, there is a split in treating mental illness
mental illness using the medical model that makes little allowance for
addressing issues of spirituality. Yet a person’s spirituality
or religious views can be of great benefit in the treatment
and healing of many illnesses, including mental illness.
With monotheism, as articulated by ancient Judaism, there was a shift in how mental
illness was understood. While still almost completely religious in nature, mental
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illness became a problem in the relationship between an individual and God- a
condition associated with the soul. The Hebrew and Christian scriptures are full of
stories and laments of persons suffering from so-called demon possession, visions
or hallucinations, depression and other forms of mental illness.
In the year 370, the Eastern Orthodox Church established the first hospital. Over
the next 1200 years, the church built hospitals throughout Europe to treat physical
illnesses. Many physicians were monks and priests. Nuns served as nurses. The
physical and spiritual care of patients went hand in hand.
Islam began to spread across Asia, Africa and southern Europe about a thousand
years later. Like Judaism, the Qur’an frequently talks about the spirit or the soul.
But there was not the conception that
mental illness was a punishment from God.
Those suffering from mental illness were
thought to be possessed by supernatural
spirits, but these jinn (genies) were not
seen as good or bad.
With the age of Enlightenment in about 1750 and the introduction of the science
of psychology, attention was directed to the mind. Psychoanalysis looked at
such things as unhappy childhood experiences or other conflicts arising from the
unconscious mind. Followers of Freud viewed spirituality as superstition and the
church’s influence all but disappeared. The split with the church was complete.
Mental illness was no longer a spiritual issue associated with the health of a person’s
soul. It was a problem with the mind or one’s thinking.
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Insane asylums were opened and an era of so-called moral treatment began. From
1750 to about 1950, persons with a serious mental illness were put in an asylum or
other locked facility. Treatment in the early asylums was very poor, often secondary
to prisons. Some early forms of treatment included lobotomies and a primitive
form of electro convulsive therapy or ECT.
Some persons from pacifist faith traditions, like the Mennonites, did their alternative
service during World War II in hospitals that included mental hospitals. Appalled
at the deplorable conditions in the psychiatric hospitals, these faith groups were
among the first to bring compassionate care to these persons. Some of these
religious groups established psychiatric hospitals.
With the advent of anti-psychotic medications around 1950, the focus was on
symptom reduction. Another shift occurred that de-emphasized both the spirit
and the mind and put the focus on biological changes in brain chemistry. We have
moved from mental illness being understood as an illness of the soul or the spirit
to it being a condition of the mind to the medical model which we have today.
The search for meaning is a timeless pursuit. The question of why there is suffering
in this world and what God has to do with suffering is one of the focuses of the
spiritual journey. There are many biblical accounts of God’s people struggling with
intense emotional pain. Some of the most profound descriptions of emotional and
faith struggles are found in Job and in the psalms.
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You have put me in the depths of the Pit, in the regions dark and deep.
Lord, why do you cast me off? Why do you hide your face from me?
Healing is the peace that comes from knowing that God is working in our lives to
bring about the best possible outcome, which is healing mind, body and spirit.
This sense of peace and wholeness are gifts from a loving and compassionate God,
even as we learn to live with mental illness. The challenge we face today is not the
choice between faith and science. We need both.
The President’s New Freedom Report on Mental Healthcare in America (2003) states
that our current delivery system for mental health services is in shambles and only
a total “transformation” of the system will benefit consumers. From a theological
perspective, transformation refers to a spiritual process of growth and change.
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The commission for this report, which was made up of some of the most respected
mental health professionals in America, asks for more coordination of services and
providing treatment through community-based groups rather than institutions. It
also calls for assisting persons to reintegrate into being successful and productive
members of society through such means as job training and community support.
Our faith communities can be an integral part of this process.
The goal is recovery! Recovery is a process rather than a completed goal. Instead
of using our resources to focus on the results of mental illnesses, the New Freedom
Report encourages using resources for lifelong assessment and treatment.
Spiritual Care
If there is one word to describe the emotional pain of mental illness it would be
“disconnection.” People with a serious mental illness often lack insight into their
illness or experience confusion regarding their symptoms and treatment. Clergy
with pastoral skills can address the spiritual and religious dimensions of persons
dealing with different forms of life experiences.
The rituals and sacraments of one’s faith tradition can be of great comfort during
times of distress. Clergy can hear a person’s confession and offer the assurance of
forgiveness. Sacraments like communion and anointing in the Christian tradition
can help the person reunite with his or her faith community. Praying with the
person and the family also helps offer assurance that they are not alone in their
struggle and builds a relationship of trust and confidence.
Because faith leaders are respected by their congregations, they can model an
acceptance that will help diminish the stigma associated with mental illness. This is
easier if mental illness is treated like any other physical illness in sermon illustrations
and in small group educational settings. By including persons with mental illness in
pastoral prayers and liturgies, clergy are helping to educate the congregation that
mental illness is not caused by lack of faith or spiritual commitment.
Pastoral care needs to include visitation to persons and families struggling with
mental illness as with any other physical illness. Devotional material from a faith
tradition can be given to individuals in a counseling setting. Scripture and other
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resources from a faith tradition can bring comfort to persons in a psychiatric
hospital, group home or other setting.
Suffering is terrifying and meaningless if isolated from the whole of people’s lives
and when suffering is excluded from the community. Those who are suffering do
not need to be judged. They need to be assured that someone cares and that
God loves them unconditionally. Integration rather than isolation is what restores
wholeness of mind, body and spirit.
In my deepest depression,
several people stepped in to
“rescue” me. I am fortunate
to have a loving husband who
wanted to help. I am fortunate
to have access to good medical
care. I am fortunate to have a
competent and compassionate
psychiatrist who has stayed with
me as my doctor since my first
hospital admission.
But the unconditional presence of the holy was revealed to me through my pastoral
counselor. While everyone else was trying to “fix” me in some way, my counselor
accepted me as I was. While others were looking for a cure, my friend offered
care. He was vulnerable enough to enter into my dark place without judgment.
He modeled for me an image of a God who surrounds us and holds us in a caring
presence. He modeled an unconditional acceptance that I had never felt. In my
feelings of worthlessness, he held on to a faith that I was loved as a child of God,
just as I was. He became a lifeline to hope.
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I now preach the importance of being in relationship with other people and with
our faith community as one of the gifts that allowed me to gradually emerge from
my deepest darkness and discover the most important gift of the shadow, the gift
of hope. Medications may stabilize symptoms. But it is relationship and love that
heal the soul.
I look back and I realize that I was not alone in my deepest darkness. I also realize
that I persevered, and with the help of others, I was able to choose life. I have
found hope in listening to and reading stories of healing and wholeness restored
in the lives of other people who have struggled with this illness.
After the drowning death of his brother, the great poet William Wordsworth wrote
these few words that hold so much truth. Wordsworth wrote, “A deep distress hath
humanized my soul.” The journey toward wholeness never ends. Knowing we can
trust that the fertile darkness will hold us until we are ready and able to glimpse the
first light of hope, leads us back again into the fullness of life.
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Bipolar Disorder in the Workplace
Do you or do you not tell your employer about your disease? That is a question
that many people with bipolar disorder ask themselves. Whether to disclose your
illness directly to your supervisor is a very personal question. Some people have
had very positive experiences while others have not.
If you ultimately chose to disclose your illness to them, you may want to explain
what bipolar disorder is, how it affects you and how it may affect your work. You
can always reassure your supervisor that you do not expect that
your illness will affect your performance and that you will be
able to fulfill all your work requirements.
The following are two people’s experiences with You have control
bipolar disorder in the workplace that may assist you over your life and your
in making the decision to disclose or not. Remember, illness. How you choose
you have control over your life and your illness. How to handle that in the
you chose to handle that in the workplace is your
choice.
workplace is your
choice.
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A DAY AT THE OFFICE
By Christi Huff
I’m racing out the door with my work bag slung over my shoulder, a glass of water
in one hand, and my handful of morning medications in the other. Anti-depressant?
Check. Mood stabilizer? Check. Adderall? Check. Anti-anxiety? Check. I gulp them
down with the water and race to the bus stop. It’s 7:45 am and I’m running late for
work. On the walk/half jog to the bus, I pull out my phone and check all my emails,
Facebook messages, Twitter alerts, and text messages.
Once on the bus, I try to catch up on a few minutes of “me time” and I pull out my
Kindle to check all the updates from Psych Central, Bipolar Beat, Mental Floss, and
anything else that has updated, just like the other twenty to thirty other commuters
on the bus are doing. I transfer to the subway and pull out a stack of medical
records that need to be reviewed for work. I begin reading and highlighting while
smashed like a sardine with the other fifty or so passengers who are all trying to get
to work as well. I get some of the work done, unload from the train with a handful
of people, and take the escalator up to the closest Starbucks. Minutes later, and
armed with my Starbucks, I have arrived at my building, swiped my ID badge in the
lobby, taken the two different elevators up to my floor and am now walking up to
the ID swipe pad to let me into the floor of my office.
I take a deep breath, swipe my ID, and with the click of the door, it signals it’s
time to check Mr. Bipolar Disorder at the door (or at least try to) before I walk in. I
walk through the door and pass the cubicles to my office. I turn on the computer
and take out the medical records I was reviewing on the train. I’ve been reviewing
these records for so long now, but I just can’t focus on them long enough while
in my office to get a decent amount done. I have to read things over a million
times because I get easily distracted and sometimes I experience a huge fall in my
mood and start crying for no reason. I try distracting myself with another task and
sometimes that helps, yet sometimes it “helps” to the point that I finish that project
and then start something else related to that project, the one without a deadline.
And I keep on going and going in a completely different direction, forgetting I
have other projects that do have a deadline, or have other uncompleted projects
I should work on instead of. It’s hypomania at its finest for me. So what is the end
result? It results in my taking home medical records to review there (or while in
transit) because they didn’t get done during the day as hoped, thus turning my
work day into a ten to twelve-hour day. This is how the typical workday goes for me.
Some days I am more focused than others, and get a million things done. Other days
it takes me almost an entire day to just read through a small stack of documents.
You see, as a paralegal, I have to log a certain number of billable hours within my
work day. All those ups and downs and distractions makes it difficult to get those
hours at times, so in order to not just get the required work done, but to make up
those required hours, I have to get the work done at home. You can imagine then
how that affects my life outside of work. My fiancée frequently has to do things
alone or not at all because I have to work. I miss out on events with my friends
and other social interactions because I am always working. Not having any time to
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socialize makes me feel secluded and feeds into my depression, making some of
the symptoms of bipolar disorder worsen. Being at home so much gives me even
more opportunity to start getting lost in my own thoughts while ruminating, which
can either send me into further depression or can start causing hypomania because
I begin to obsess over a project or new idea that launches a whole list of new ideas
that must be started immediately. Those ruminations distract me from getting my
work done at home, leading to a lot of frustration and the desire to just give up.
This whole cycle begins again tomorrow and then leads to spending the weekends
trying to make up for the work that didn’t get done during the week. Again, this leads
to more disappointment from my fiancée, and at times anger. There is frustration
on my part, anger at myself for not being able to focus, hopelessness because I
begin to fall behind, fear I am going to lose my job, and then the weekend goes by
with very little done again and ends with so much anxiety about going to work the
next morning, I make myself physically ill. As you can see, the work day is not easy,
however, projects DO get done, I don’t miss any calendared deadlines, I don’t miss
any meetings or appointments, and I haven’t caused any sort of negative impact
on any case I have been assigned (that I have been made aware of!). The attorneys
I have worked with have given me great reviews and are happy with my work. So,
if that’s the case, should I tell my employer and see if accommodations could be
made when I start feeling the effects of what I like to call “the Bipolar Coaster?”
Well, that is one question I get asked a lot. I don’t have an easy answer for it either.
While working for the employer (a law firm) I was with when I was hospitalized
several years ago (and was finally diagnosed with bipolar disorder), I went back
to work for a few days and regretted ever returning. Everyone stared at me and
whispered when I walked past them in the halls. At first I thought I was imagining
those things, but then my secretary came into my office and informed me my
confidentiality had been breached and the information on some of the forms I
needed to complete for my leave of absence had been told to others within the
office. That information, in addition to other things being said as a result of that
breach, caused attorneys to not want to work with me and it wasn’t long before
I realized I could no longer continue working for them. I felt forced out because
the environment was so uncomfortable, and there was no way I could work there
again. Luckily, I had a backup plan and after my departure: I went to law school for
a year. Another law firm I worked for called me into their Human Resources office
because I was a few weeks behind on my time entry. I had been trying to catch up,
but it was overwhelming due to not just my own issues, but because I had been
switched to different departments, was covering for other paralegals on vacation,
my office had been moved and I was trying to process so much new information all
at once. I felt like I was in quicksand. Then, I was also told there was an issue with
me keeping my office door closed all the time. Having such a hard time focusing, I
keep the door closed to prevent distractions from those walking by and the other
conversations occurring outside my office, and because I have my ups and downs,
I don’t necessarily want the whole office to see me going from up and doing ok to
suddenly crying my eyes out. There was no policy about keeping my door open, so
I had no idea I was doing anything wrong. At that point, I felt I needed to explain
the necessary reasons for why I kept my door closed.
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After explaining that I have bipolar disorder and needed it closed because of
distractions and my ups and downs, I was told I was a HUGE liability to the company
and all these issues needed to be dealt with by my doctor. The person I spoke to
informed me there was nothing they could do, asked why I was telling them, and
how could they be sure I wouldn’t miss a deadline or something else that would
put their company at risk? I simply replied that none of those things have ever
been an issue because I take extra measures to ensure those things won’t happen,
and also pointed out that none of the attorneys I have worked for have ever had an
issue with anything like that or had ever given me a review that was poor. The end
of the discussion resulted in keeping the door to my office open and then meeting
with my doctor to get myself together. It wasn’t really helpful, but I at least still had
my job and my confidentiality.
Those are just two situations in which I have told my employer about my bipolar
disorder. There were plenty of instances where I didn’t disclose my illness to
employers, and no one even knew I had one. Even with the two employers I
mentioned above, many of the co-workers I worked hand in hand with for many
years had no idea I had bipolar disorder and had told me they would have never
guessed it in a million years. Would I tell other employers about having bipolar
disorder? So far, not telling them has worked for me because I have not had to
take any sort of extended period of time off due to my symptoms (aside from the
hospitalization). The response I received when I did divulge that information was
not helpful and just reinforced my previous and future decisions to not be as open.
Don’t I have rights under the American’s with Disabilities Act? Absolutely, but
unfortunately, I don’t think many employers are as informed about mental illness
and how the ADA applies to them. The Family Medical Leave Act also allows for
leave of absence or extended periods of time taken off (up to a certain number
of weeks per year) not only for events such pregnancy, but also for mental illness
if it impairs your ability to substantially perform your duties. Again, I don’t think
there has been enough education for employers about mental illness and how the
FMLA applies to those with mental illness either. Outside of the office, employers
are regular people too. They aren’t superhuman, powerful, or king and queenlike
figures that know all and only see the positives of everything. Stigmas and other
information learned outside the office can be taken into the office. That’s just how
the world works. I believe as advocates, we not only need to educate the public,
but make sure employers are educated with correct information as well.
What is supposed to be an eight hour workday, five days a week ends up being a
ten to twelve- hour day, seven days a week for me, triggering a lot of my symptoms,
which makes it harder to work, perpetuating the cycle to occur again and again. It
not only affects me, but those around me as well. Should I speak up? I could. Will
I? Probably not. Past attempts have not shown positive results and right now, I
don’t think I want to take that chance again.
Does this mean that nobody should tell their employer about their bipolar disorder?
Of course not. Every employer is different, just like every job is different. I believe
the decision to tell one’s employer should definitely be a decision based on their
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own relationship with their employer and their own comfort level. In the meantime,
targeting employers in our advocacy should become a priority so that this type of
a decision does not have to be made by individuals with bipolar
disorder, or any other mental illness, and we don’t have to
continue working around the clock battling the “Bipolar
Coaster” just to keep up.
Every employer is
different, just like every
job is different
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Bipolar in the Workplace
By Wendy McNeill
The word workplace conjures all kinds of images depending on who you are and
what you do. In fact, when thinking about the word workplace, “who we are” and
“what we do” become strangely intertwined. We say, “I am a teacher.” “I am an
engineer.” “I am a barista.” Alternatively, if we are not explicitly our jobs, we are
in a field, “I’m in retail,” or “I’m in sales.” In all cases, our workplace tells us and
the world where we fit in the scheme of things, determining our status, our wealth,
and to a certain extent, our identities.
Me? I’m as guilty of this labeling as anyone else. I’m a tutor, a tutor at San Diego
Mesa College. I’ve been a tutor for over ten years, working at Mesa for a couple
of years in my twenties and almost all of my thirties. I’m an anomaly. The tutoring
position is essentially a transient position, one occupied oftentimes by students.
Tutors come; tutors go. It is unheard of, unless you’ve heard of me, for someone
to stay in that position for such a long time. But I myself have bipolar disorder,
and since I can only make a low income since I am on disability, my tutoring job is
perfect. It affords me intellectual stimulation, social interaction, structure, and of
course, an extra bit of cash on top of what I receive from the government.
The other downside is the job itself. I don’t want to spend the rest of my life as
a tutor. I want a real job. A real job with real hours and real benefits. A job that
stretches me, that uses more of my talents, not just a scant handful. Isn’t that the
dream of all under-employed people on disability? Unfortunately, some are too
smart to be satisfied with the situation, but too sick to change it.
Am I too sick to change it? Getting a real job means getting out of the disability
ghetto. It means leaving the security of the State and surviving on my own. Why is
this so hard to do? Why haven’t I done it before? No, I did not lose my bootstraps
somewhere. Getting that better job is hard because I have a disability, a severe
mental illness, with symptoms and impairments and obstacles and barriers and
stigma. These are perfectly valid reasons why I stay in a sub-standard job. At least
I can do my sub-standard job.
However, I believe in recovery, and I believe that remission from bipolar disorder
is possible. I believe that I have reached a stable enough plateau where I can start
taking some risks and pursuing some more education, in this case, a Masters in
Social Work degree from SDSU, so eventually I can serve in the community as a
social worker.
But it has been quite a journey up until this point. If I am to judge myself through
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“society’s” eyes, one might call it a journey filled with mediocrity and defeat, as
I have come not even close to having a “real career.” In the context of my life,
however, in the context of my struggles, what I see is a journey of determination,
grit, doggedness, and the pursuit of happiness in spite of a mental illness.
Against popular wisdom that says people with bipolar disorder are discriminated
against, what I primarily experienced in the workplace was compassion. My bosses
and coworkers over the years have shown me innumerable kindnesses, and I could
not be more grateful for the support that I’ve received.
No one plans to be bipolar. When I was in high school, I wanted to work for a
magazine. Then, in college, I majored in Literature/Writing at UCSD, a stepping
stone to my dream of publishing articles and seeing my name in print. As a freshman,
I applied for a job as the Editor-in-Chief of the Warren College newspaper and was
turned down, but Revelle College, the most prestigious and toughest college at
UCSD, needed an Editor-in-Chief for their newspaper, so they hired me. My job
was to start the next academic year.
This is the time when my life went south. The last day of my freshman year in
college, when I had just finished my Edgar Allen Poe final, I came home to an
apartment stripped of all my belongings. My mother and aunt were there along
with some church friends. My mother and aunt took me by my arms and took me
down the elevator. On the way down, they told me that my father had died the
day before. He had taken his own life.
From that moment, my life was never the same again. It was the pivotal moment,
the “trigger.”
I had my first psychotic break right after finals. This experience landed me in the
hospital for two weeks, and I returned to the campus shocked and shaken, my tail
between my legs.
Laura took me under her wing. She had me meet her at the office, and then she
took me for a long walk around the campus. She told me about her neighbor’s
daughter, an eerily similar story. The young girl was going to college, but living
at home. She started talking faster, making all kinds of plans. Then she started
rearranging the furniture in the house (including the piano.) When she started
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swimming in the pool in the middle of the night, her parents knew that she needed
help. She was taken to the psychiatric ward and diagnosed bipolar. She was like
me, nineteen years old. Laura told me this story, and then she told me her plan. I
could keep my job if I agreed to see a counselor at psychological services. We also
agreed to cut my workload in half, so I would publish two papers a month instead
of one a week.
I continued working under Laura that year, although even with half the amount of
work, I struggled mightily to meet my deadlines. Most importantly, I learned that
employers can be sensitive and kind and do the right thing. It was an important
lesson to learn early, as things would get more difficult later
down the road.
It is important to
It is important to remember that the notion of success
is individual, and every person with bipolar disorder is remember that the
going to experience it differently. Although I do not notion of success is
work full time, that is not to say that someone with individual, and every
bipolar cannot. It certainly happens, depending person with bipolar
on the severity of the illness and how far along in
disorder is going to
recovery a person has come. But many do not. Many
find themselves in part time employment, sometimes experience it
underemployed. Sometimes chronically unemployed. differently
Jobs today are at a premium. Although I was very, very fortunate to work with
employers who were understanding of my situation, going forward, I have become
very circumspect about revealing to an employer that I have bipolar disorder, and
I would only do it if absolutely necessary. That way, the illness stays out of the
picture.
I have recently picked up another part time job - very part time - working for an
organization that provides supportive housing for women with mental illness. I’m
a Mental Health Specialist, which means that I am the staff member on duty at a
house with 15 women. I’m there to provide a set of eyes, and for the ladies, a set
of ears.
Now, my immediate supervisor, who I knew through the mental health community,
knows that I have bipolar disorder, but the President and Founder do not, and I
intend to keep it that way. I think I want to be in one organization where I am not
viewed as someone with a mental illness. Even in an environment that supports
people with mental illness, I think a supervisor’s attitude changes when she hears
about a mental illness. She may think, “Wow, she’s so normal for someone who
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has bipolar disorder!” I think even enlightened people, or people in the mental
health field, feel this way. I think the bias in our culture is so strong that even the
most well intentioned person can have this reaction. So in this one instance, I have
protected my anonymity, although I am “out” in every other area of my life.
Bipolar disorder is a serious disability, and symptoms can get in the way of job
performance. The best thing to do for a bipolar person is to try to maintain as
even keel of a lifestyle as possible and to manage the illness with every strategy at
one’s disposal. This means employing the regular cast of characters: eating right,
sleeping right, exercising, abstaining from substances, staying around positive
people, practicing cognitive therapy, being nice to oneself, among other things.
I also think it is imperative for recovery to have interaction with peers. A support
network of friends with the same disorder is, ironically, necessary to maintain sanity.
Ultimately, maintaining sanity is the goal for all people struggling to manage
bipolar disorder. If it means sacrificing the traditional view of success, then so be it.
Of course, productivity and meaningful use of time are paramount to recovery, but
that might not look like a traditional career for someone who has bipolar disorder.
Like me: I still “am” a tutor. This is a bittersweet admission. On the one hand, I
should be happy to have a dignified job that is relatively stress free that contributes
something positive to people. On the other hand, god only knows where I would
be if I didn’t have the illness. I could have been Something Else.
However, my job has served a specific purpose. I was right about working part time;
I haven’t been in the hospital for eight years. That’s after annual hospitalizations
for nearly ten years straight. I broke the cycle, and I credit my “cushy” job for
creating that statistic, in part.
Has my job fulfilled me, though, even as I plug away at a minimal wage? I try to
remember the words of my students, “Thank you, Wendy. You really helped me.
You helped me a lot.”
If ten people have that experience per day, four times a week…for however many
weeks a year…for ten years…and if I think of that in human terms, I’m humbled
and proud.
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Going to College
with Bipolar Disorder
By Russ Federman, Ph.D., ABPP
These new beginnings also give rise to hope for new outcomes. It’s not uncommon
that a graduating high school senior will want to leave his or her mid-adolescent
difficulties behind while getting a fresh start in a new college environment.
Some of that intention is warranted: a newly declared academic major, choices
of new group memberships and even new love relationships may further serve
to anchor emotional attachments within one’s contemporary world; however, the
big disappointment here is that this same progression doesn’t apply to bipolar
disorder.
While it is true that college students will gradually settle in to their new college
student identity, it’s also true that students’ bipolar reality will accompany them
into their college environment. It’s not something they get to leave behind. A
fresh start with bipolar disorder really means revisiting one’s approach to treatment
and deciding what’s most appropriate for the next stage of development.
For the high school student who has already been diagnosed with bipolar disorder,
selecting the right college is no simple matter. The choice does not only hinge
upon the strength of the college’s reputation, its unique areas of study, or even
whether the school provides much needed scholarship money. Equally important,
if not more so, is finding an environment that will be optimal for maintaining
emotional and psychological stability.
On the other hand, if management of bipolar symptoms has been difficult and
the student is struggling with instability while applying for college, then perhaps
a community college setting or a four-year school fairly close to home would be a
better choice. The real issue here is the extent to which one may need to rely upon
family support as part of his or her essential support network. If this is unclear,
there’s no reason why one couldn’t begin attending a community college and
then transition to school away from home once stability has been demonstrated.
Besides, transfer to a four-year school becomes easier when one has shown a year
or two of strong performance at the community college level. If bipolar symptoms
are in the mild to moderate range and have been well managed during the
preceding year or two, then there’s no reason why a college can’t be considered
that is some distance away from home. If, however, the choice is to fly far from
the nest then the next question becomes whether the college of choice has the
resources to provide adequate support.
As each university has its own unique configuration of student services, it will be
important to investigate what is offered and where it will be found. For purposes
of this continued discussion, the generic phrase, “university counseling center,”
will be referred to as if it were a full-service
treatment setting.
One caution: Often university counseling centers are faced with higher student
demand for services than they are easily able to provide. Therefore, it is common
that university counseling centers primarily provide short-term counseling with
focus upon stabilization and community referral for long-term help, if needed.
Since bipolar disorder is typically an ongoing condition, students should not
be surprised if counseling center professionals want to refer them into the local
community for longer-term treatment. These practices will vary from one school
to the next, but if counseling center professionals talk about a referral, this must
not be taken as a rejection. It’s simply the reality of limited resources that many
counseling centers are facing today. There’s also an inherent benefit to a private
referral. Given the brief treatment focus of many university counseling centers, a
bipolar student may not be able to see the same provider over an extended period
of time. If one is fortunate to obtain a good psychiatrist and psychotherapist in
the local community, then this treatment team can be in place for the duration of
college enrollment. Continuity of treatment is a good thing.
When transferring treatment the student should also sign a release allowing
his or her previous treating psychiatrist to forward copies of medical records
to the counseling center, new psychiatrist or community-based, mental-health
professional. With this information in hand, any new psychiatrist or psychotherapist
can easily review previous treatment history in order to best serve the student in
the new location.
Students should be aware that their medical records belong to them and they
have a right to receive copies at any time. During late adolescence and young
adulthood, when students are likely to be on the move, it’s actually recommended
that they maintain a notebook of their medical records so that they’re able to bring
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copies of records with them when transitioning to college, graduate school, a first
job, employment relocation, or whatever may come next.
While considering all these choices, strong feelings of anticipation and excitement
are perfectly normal. Why not just dive in and fully immerse yourself?
Simple - doing so activates a lot of intensity. And while
intensity can feel pleasurable, especially if accompanied
by mild to moderate hypomania, it is nonetheless
stressful. For students with bipolar disorder, the stress
of intense engagement is not necessarily their friend.
In fact, stress is often the most common trigger for Stress is often the
mood destabilization. most common trigger
for mood
First year bipolar students are strongly advised to destabilization
step back and select from the cornucopia with a
sense of moderation. So what does moderation look
like? Perhaps it’s signing up for 12 or 15 credits instead
of 16 or 18. Perhaps extracurricular activity choices
are delayed by one semester or at least not taken on with
multiple concurrent commitments. And when a road trip is impulsively
suggested by suitemates the second weekend of the semester … hopefully the
bipolar student will choose wisely to remain on campus and stay focused upon
building a stable foundation.
Keep in mind that starting college is an important juncture where many aspects of
change are occurring simultaneously. Saying no to some things at the outset of
school doesn’t mean they won’t remain available as future choices. Approaching
things gradually also does not equate with being left behind. For the bipolar
student, figuring out moderation is far preferable than taking on too much too
soon, becoming overwhelmed and having to bail out prematurely.
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Once these life skills have been achieved, many of the factors precipitating bipolar
destabilization are rendered far less potent. That is precisely why we often see an
improvement in mood and overall functioning as individuals with bipolar disorder
transition out of early adulthood and progress towards later lifecycle stages.
But the middle-age onset of bipolar symptoms is mostly fantasy. Reality is, for
many with bipolar disorder, their full symptom presentation generally emerges
somewhere between the mid-teens and the mid-twenties. And instead of much
needed balance, the accrual of structure, healthy routine and sobriety tend to
become delayed due to the behavioral norms of late adolescence.
For many who are starting a four-year college much of their previous life experience
has been defined by parental norms and rules. And while parental roles tend to
ease up as one becomes older, it is still the case that by the end of high school,
students are usually chomping at the bit to have a taste of freedom. At college,
they’re no longer being told what time to go to bed, what time they need to
be home or even what they can or cannot do when they are out and about.
Many of these life choices become their own and it absolutely makes sense that
college students want to relish this freedom and throw away limitations that may
feel “parental.” The natural consequences to this progression are that during
the college years, we usually see that 1) good sleep hygiene is discarded, 2)
experimentation with psychoactive substances is common and 3) strategies for
managing high work volume are far
from being stress free. The good
news is that for most of these late
teens and twenty-somethings, their
approaches to work and play will
undergo significant modification over
the next 10 to 15 years. But if you’re
bipolar and headed off to college, or
even if you encounter your disorder
while already attending school, you
don’t have that kind of time to make
necessary adjustments.
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with bipolar disorder the combination of high stress, substance use and poor sleep
habits is quite simply like introducing a lit match to gasoline. The outcome isn’t
good.
So it makes sense that the freedom and opportunities of college life present the
bipolar student with enormous challenges. The solution is simple: get good
sleep, stay away from substances and become masterful at handling the stresses
of college life. Ah, if only it were that simple! You see, there’s something else,
quite significant, that’s wedged between the pitfalls of college life and effective
solutions.
But isn’t that so for the many difficult and painful things in life? Imagine one
has been diagnosed with Type I Diabetes where daily blood level monitoring
and insulin shots are an integral part of maintaining healthy functioning. Diabetic
university students usually don’t welcome this
daily regimen; however, they generally comply
because the alternative is far too detrimental for
their well-being.
Whether we’re considering the loss of optimal physical health or the loss of a loved
one, we generally do find ways of adapting and moving forward, but not without
loss and adjustment. In many respects, this is what maturation is all about.
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for the late adolescent and young adult. As we progress through the lifecycle we
all have to accept some modifications of our hopes and dreams. An ideal life
exists in fairytales and movies. It doesn’t exist in our lived realities. For most, these
modifications of hopes and dreams typically occur somewhat later in life, when it
gradually becomes clear that adolescent fantasies and adult realities aren’t a close
match.
But the college student with bipolar disorder needs to adjust expectations at an
earlier age. The predominant lifestyle norms of university life won’t work for the
bipolar student. Indeed they’re a recipe for instability. In order to work with this,
the bipolar student needs to try to embrace his or her diagnosis;
not because it’s desirable, but because it’s real and to
some degree, unchangeable. Denial won’t make it go
away. Denial of the bipolar disorder will temporarily
allow students to do what they want. But when such
choices disregard aspects of bipolar stability then
The bipolar student there’s the inevitable price to pay for brief forays
needs to try to embrace into denial and temporary wish fulfillment.
his or her diagnosis
The necessary psychological adjustment for the
bipolar student entails letting go of their ideal self -
that person the student was striving to become - and
accepting the realities of living with the bipolar diagnosis.
This adjustment is a painful one and it usually isn’t achieved
quickly. Just as with the process of grief, it needs to be revisited
again and again in order to gradually be replaced with a deep sense of acceptance.
It actually is a process of grief: grieving the loss of that person that one wants to be.
So what does this look like in practice? Maybe it means working hard to find
others whose lifestyle revolves around recreational activities other than drinking
and partying. Maybe it means getting a physician’s letter documenting the need
for a single dormitory room in order to have more control over “lights out” time.
Maybe it even means getting some additional help or life coaching in order to
develop really good study habits and effectively distribute one’s academic load
over the duration of the semester. These are all important pragmatic approaches.
Beyond pragmatism, the real work underlying all of this entails the emotional
process of coming to terms with the diagnosis. This is also where some good
psychotherapy can be very helpful. Ultimately, once the reality of “being bipolar”
is comfortably integrated into ones identity, then the pragmatic pieces will fall into
place without a lot of difficulty.
Unfortunately, most students are not ready for this kind of acceptance during their
late teens. In fact, for some the reality of bipolar disorder is so not what they want,
that they intentionally try to reject the whole ball of wax. It’s not uncommon to
have some students say, “I’ll deal with this all once I’m out of college!” Well, yes,
they may have to. There’s also potential long range negative consequence to this
attitude.
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Recent neuroscience research is pointing to a phenomenon where the long range
prognosis for the course of one’s bipolar disorder is a reflection of the degree
of instability that occurs early on with the disorder. In other words, early mood
instability left untreated = long-term difficulty with continued instability, whereas
early instability that is successfully contained = better chances for longer-term
stability. This is referred to as the kindling effect (Post, 2007).
Think of a sprained ankle. Once an ankle is badly sprained it makes the ankle
more susceptible to future sprains. Each successive sprain lowers the threshold
for the kinds of physical stresses that will lead to subsequent sprains. The brain
is not all that different. Vulnerabilities towards bipolar instability, especially when
they are disregarded and simply allowed to occur, actually lower the threshold for
future episodes of instability. This means that the strategies of those who want to
wait until later years before they seriously deal with their disorder are significantly
flawed. Once the neural circuitry of the brain is primed for longer-term instability,
the individual doesn’t get to return to late adolescence for a redo.
So accepting one’s diagnosis and adjusting accordingly is a big deal! The intent
here is not to paint a picture of doom and gloom or to frighten one towards a
preventative position, but more to draw attention to what’s really at stake. When
students are in the midst of their college life it’s not easy to maintain a healthy
perspective on the bigger picture. For college students with bipolar disorder, this
very perspective may be essential to living a life that’s well-grounded in stability,
effective functioning and fulfillment.
Most universities have an office that serves students with physical, psychiatric
and learning disabilities. Typically this office is referred to as Disability Support
Services; though on some campuses it may have a different title. The Americans
with Disabilities Act requires that institutions of higher education provide assistance
and necessary accommodations to students with diagnosed disabilities. Clearly no
college student wants to consider themselves as having a “psychiatric disability,”
but there are times when bipolar symptoms can be just as disabling as any other
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condition. If a student was in a wheelchair due to cerebral palsy, there wouldn’t
be much question as to whether some special assistance would be needed for that
student. His or her classrooms would all need to be wheelchair accessible. If a
student’s arms were affected, it would also make sense that student receive copies
of comprehensive class notes. In other words, some accommodations would need
to be made to assist the student to participate equally in the educational process
along with other nondisabled students. Why should bipolar disorder be viewed
any differently?
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Beyond the helpful advocacy roles provided by others, one of the best strategies
is for a student to meet with professors and share the realities of his or her bipolar
condition. It’s even more helpful when this is done proactively, early in the
semester, rather than waiting until the point where it feels like the semester is a lost
cause. In most instances university professors are more than willing to be flexible
and supportive of students as long as they perceive the student’s sincerity and all
claims are backed up by appropriate documentation.
There’s also the occasional outcome where the semester does become a lost cause.
A ten day hospitalization occurs and the student doesn’t return to effective stable
functioning until a month later. A hypomanic high derails a student’s productivity
for the entire first half of the semester. By the time things have smoothed out
the possibility of catching up with missed work is unrealistic. A student enters
college in late August and does quite well, but hits a wall of depression by mid-
November. The student’s energy, motivation and ability to concentrate are
all greatly diminished and the challenges of completing the semester are only
compounding the depressive symptoms. In instances such as these a full medical
withdrawal from enrollment can be a wise decision.
It’s not uncommon that when discussing these choices with students, their
response is something like, “but that will put me behind the rest of my class.”
Well, it may. But there’s always the potential of making up courses during summer
school or doing the kinds of two week intensive courses that some
universities offer just following winter break.
Conclusion
We’ve often heard the phrase uttered by adults, “My college years were the best
years of my life!” Typically when such is expressed we’re seeing some degree of
retrospective distortion. No doubt, the college years do involve some wonderful
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experiences. But if the truth be told, they are also years of high stress and high
complexity.
Even for those without any psychiatric diagnosis, the transition from late teens
to early adulthood is no walk in the park. For those transiting this phase of
development while also trying to manage their bipolar disorder, the experience
is more like a trek through the Himalayan peaks. There are amazing highs
and dangerous precipices. The journey requires good preparation, excellent
conditioning, extra gear and well developed skills. It’s also a time to connect with
the best guides you can obtain. There will be setbacks. There will even be times
when adverse conditions seem overwhelming. However, if the bipolar student
is able to successfully commit to the journey and accrue many new life skills in the
process, the experience will provide a strong foothold in the realm of emotional
stability. Once that position is well established, the student can continue forward
with a sense of resilience that will last a lifetime.
References
Post, R. 2007. Kindling and sensitization as models for affective episode recurrence,
cyclicity, and tolerance phenomena. Neuroscience and Biobehavioral
Reviews. 31:6. 858-873
Baethge, C., Hennen, J, Khalsa, H.K., Salvatore, P, Mauricio, T. and Baldessarini,
R.J. 2008. Sequencing of substance use and affective morbidity in 166 first-
episode bipolar I disorder patients. Bipolar Disorders. 10:6. 738-741
Activeminds.org, Active Minds is the leading nonprofit organization that empowers
students to speak openly about mental health in order to educate others
and encourage help-seeking. We are chan ging the culture on campuses
and in the community by providing information, leadership opportunities
and advocacy training to the next generation.
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Social Interaction
By Ellen Frudakis
Social interaction is a basic human need. Whether you have bipolar disorder or not,
everyone needs to have opportunities to socialize. Social interaction can be fun,
leading to friendships, and/or provide us with a deeper appreciation and sense of
who we are. I have bipolar disorder and have experienced this first hand. Social
interaction has brought me a feeling of belonging, friendship, laughter, and joy.
At times, it gave me an escape from the challenging aspects of
this illness and a belief in the possibility of recovery. I have
also seen this occur for many of the young people who
have joined Impact Young Adults (IYA), a nonprofit
organization that I co-founded that provides social
activities and leadership experiences for young adults
Social interaction can with mental illness.
come in many different
Social interaction can come in many different
forms forms. Whether you are having coffee with a friend,
attending a meeting, hanging out with family, or even
just talking on the phone, in all of these cases, you are
interacting with others. It doesn’t have to be a big event
or anything planned; it could be as spontaneous as going
for a walk with your neighbor.
In this chapter, I will focus on the needs and benefits of socialization for people with
bipolar disorder, acknowledge some of the challenges that make social interaction
difficult, and offer some tips that I have found helpful in my own journey towards
creating ongoing social relationships that enrich the quality of my life, as well as
the lives of many of the young adults in IYA.
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Realizing the Needs and Benefits of Social Interaction
Some of the many benefits of ongoing social interaction are:
• A feeling of acceptance
• The possibility for friendship
• An increase in self-esteem
• A chance to have fun
• Access to social support when needed
ACCEPTANCE I have been told by many young people with mental illness that
acceptance is a feeling that they long for. However, it is not just important to young
people; I think everyone wants to feel that they are accepted. I know that when I am
with other people who accept me for all that I am, including my bipolar disorder,
I am reminded that there is nothing wrong with me. I feel more comfortable in
my own skin. There are many people I know who feel like they have to censor
themselves when it comes to talking about their mental illness, particularly when
they aren’t yet ready to reveal the fact that they have one.
Joe is someone I know with bipolar disorder. He once told me that the hardest
question for him to answer from strangers and acquaintances is “How are you
doing?” Unless it is a friend or someone he feels is accepting of him, he has trouble
answering this question because he feels that most people will not want to hear
about it if he is having a bad day. Joe says that with people he knows, he is able
to be honest without worrying what they may think of him. This kind of acceptance
helps to relieve his anxiety and other
symptoms related to his disorder. Acceptance
from others makes it easier for him to accept
himself and the illness he manages.
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FUN This is also an important part of social interactions. Recently, another one
of the members of IYA, Scott, said that going on the IYA overnight trips make a
big difference in his life. Specifically, he enjoys getting to spend time with friends,
staying up late talking and making jokes. Scott expressed that one of the best
things about it was not just the fun he had at the time but that it improved his
mood for several days afterwards. He followed up this statement by saying that
it made him feel like he is more than his illness and that he belongs somewhere.
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• SYMPTOMS There are many symptoms associated with bipolar disorder,
but there are two primary symptoms that can make social interaction difficult:
depression and mania.
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begins treatment or is managing symptoms, those outlets can become
inaccessible. I, like many others with this illness, have gone through periods
when I was unable to work or attend school.
If you do find yourself able to meet people, the next barrier is being able
to relate to them. They may have a job, a family, or attend a school, etc. If
you don’t share a common factor in these areas, you may not know what to
say or how to answer questions that may be directed at you. Before I found
my social network and before I was able to go back to school and work,
this was a big issue for me. I was very self-conscious about the fact that, in
my opinion, I wasn’t doing anything of value worth sharing. Like Joe, who I
mentioned earlier, I also had a fear of a common question which is, “What
do you do for a living?” Each time I found myself with people I didn’t know
I would get extremely nervous, expecting that one little question that put
me on the spot.
What I have found is that the more I accept my bipolar disorder, the more
others tend to. Also, knowing how to talk about it helps. If I need to explain
why I wasn’t able to be somewhere, I have referred to my illness as a “health
problem;” at school I refer to it as a “learning disability.” Ultimately, I look
forward to the day when bipolar disorder is viewed just like any other health
condition, but until then I feel content to use these alternatives. (See section
on Stigma)
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me feel like I was losing control of my life. Ultimately, I lost my sense of
self. Before the onset I could say to myself with confidence, “I am a good
student, I am a thoughtful friend, I am a talented artist.” But bipolar disorder
attacked and invalidated everything I thought I knew about myself and
turned my life upside down. It was hard to put myself out there when I didn’t
feel good about myself. The risk was too great. I could be misunderstood,
rejected, or worse… ridiculed. No one I know is up for that, whether they
have a diagnosis or not.
One thing that helps my friend Mary, when she is having trouble with self-
esteem, is to think about something she is good at. For example, when Mary
is healthy she can recognize that she has a lot of courage and persistence
when it comes to her career. When her symptoms flare up she can still see
this courage and persistence in how she works at her mental health. She can
see these qualities in herself despite her circumstances. The goal is to try
basing your self-esteem on who you are as opposed to what you do. Keep in
mind that this is something everyone has trouble with, so you are not alone.
• LIMITED BUDGET Many of the people I know with mental illness have a
lower level of income compared to others without the disorder. This may
be because they have had to go on disability due to the severity of their
symptoms, or if they are able to work, sometimes they cannot work full-
time. This limits the amount of money available to spend on fun activities.
For some, a trip to the movies is way over their budget. I have listed many
social options in the How-to section at the end of this chapter that are low
to no cost.
• STRESS Stress is like lighter fluid for the fire that is this illness. Stress puts
pressure on a system that is prone to ups and downs. That is why people
with bipolar disorder have to be careful during periods of high stress and
make sure they are getting the support they need, or limiting situations
that add to their stress. Sometimes this means that a social life has to take a
back seat to treatment, and that’s ok… it will be there when you are ready.
Hopefully, if you have already started to make friends, they will understand
if you aren’t available for the time being.
Knowing yourself and what coping skills work at different times can be
especially helpful when you are feeling stressed. There are many stress
management techniques out there – discuss these with your treatment
provider or go to the library or bookstore and look through any books
available on the subject.
These challenges and others may have stopped you in the past from having the
type of social life you desire. Hopefully, the next section will help you overcome
that with ideas on how to meet people and have fun.
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How To
So, how do you get started creating a new social life? Let’s say you are like I was
a few years ago before the creation of IYA, with no one to hang out with except
for the television… how do you step out of that? Below are some ideas that have
worked for me and others I know. You may have taken part in or had experience
with these at some point. I encourage you to get involved in the options that sound
interesting to you. Many of the avenues listed are free or involve minimal costs.
ONLINE RESOURCES
For some people, one of the easiest and least intimidating ways to put themselves
out there is to take advantage of what the Internet has to offer. If computers make
you anxious, please feel free to skip to the next section that discusses in-person
opportunities. If you don’t have your own computer, most libraries offer community
computers that you can use free of charge.
• Online Support Groups – Some online support groups are message boards
where people can “post” how they are feeling or ask a question that others
can respond to. Others are more like chat rooms, where people all log in at
the same time and are led by a facilitator. Some national organizations like
DBSA (Depression Bipolar Support Alliance, http://www.dbsalliance.org)
offer online support groups, like the chat room example.
Make sure not to limit yourself to online friendships. Use the Internet as a starting
point and then ease yourself into something outside of your house. What you
experience online can never fully substitute for an in-person interaction.
IN-PERSON OPPORTUNITIES
If you are someone who feels uncomfortable making conversation with others, try
something where you start out as a viewer or inactive participant. Some examples
of this are listed below:
• RI (Recovery Innovations):
http://www.recoveryinnovations.org
o Mental Health Clubhouses - These are places where people with mental
illness can go during the day to find support and structure. Some have
support groups and social activities. Others offer job rehabilitation
programs and job placement. Many times lunch is available for a minimal
fee. The best thing about the one I attended was a support group for
young people. I was able to meet others my age going through similar
challenges.
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o Impact Young Adults - This is a consumer-led social activity and
leadership experience program for young adults with mental illness in
San Diego, California. (http://www.impactyoungadults.org)
• Parks and Recreation Clubs - Some communities have Parks and Recreation
departments that focus on providing fun activities in their area. Some even
offer specific programs just for people with disabilities.
• Neighbors - Not everyone knows their neighbors these days, but chances
are you have passed them as you come and go from your home or apartment.
Start off slowly by saying hi and asking how their day went. This may lead to
longer conversations here and there, and slowly you might find that you are
building a relationship with them. If you feel comfortable, ask them if they
would like to go to a movie or on a walk with you.
• Education/School
o Take a no cost / no credit course through your local Community College
District. This can take the pressure off if you are unable to make a
semester-long commitment but want to try something new.
o Join a book club. If you are a book lover this is a great way to get involved
with others with similar interests.
o Join a writing group. I have a good friend who joined a writing group
with a few people she has met over the years. She loves to write, and
it gives her deadlines that help her accomplish what she might not get
done on her own.
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• Family - Spending time with members of your family can be a safe and less
intimidating way to socialize with people you already know. If this is not
a healthy option for you, do not feel bad. There are plenty of other ideas
listed here to choose from.
• Interaction with animals - If you are an animal lover, this can be a good way
to get yourself out there. Many local animal shelters look for people to help
out. This way, you can be around animals and other people who like them
as much as you.
I hope that some of these ideas will work for you, or at least inspire you to think
about what interests you. If you are not happy with your current social situation,
there is no time like the present to start changing it. As you move forward, just
remember that getting involved socially can take time. Making friends isn’t always
an easy thing to do, so give yourself credit for trying (many people without bipolar
disorder struggle with this as well). I wish I had been able to recognize the difficulty
and give myself credit when I was first diagnosed, as it would have saved me a
tremendous amount of grief. What I know now, after years of trying to create
positive social experiences, is that it’s completely acceptable if this feels difficult,
because it can be. But hang in there. It is worth it. I have seen people who lacked
any social activity come into IYA and become transformed by being around others
and having fun (in addition to being in treatment, of course). Their lives went from
activities relating to mental illness to activities while having mental illness.
When you are ready, I invite you to come join in the fun of social interaction.
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How to Travel Smart
By Kim Knox
So where’s the fun in that? Even today, with all of the modern conveniences, travel
can still be rough. A 99-year-old woman in a wheelchair might get frisked during
a TSA inspection. The Transportation Security Administration alone can cause
undue travel stress.
And the uncertainties and challenges do not stop there. Regardless of your
experience with travel, it is a different thing entirely when you add on a layer of
anxiety-laced bipolar disorder.
My name is Kimberly Knox, a bipolar I patient and your tour guide on this
adventure called, ‘How to Travel Smart.‘ From my personal travel experience,
and the experience of other bipolar peers, it appears that the principle problems
stem from anxiety, fueled in addition by some degree of either depression, mania,
or worse still, rapid cycling.
But there’s good news. You can take some sensible, rather simple steps to create
the best possible travel scenario. And two words say it all: plan ahead.
Preparing to Travel
Best case scenario: You’ve had bipolar long enough to know the difference
between it and you, and you are on medication that controls it reasonably well.
If not, you’re still fit to travel; you’re just juggling a few more balls than someone
who has settled into some routine.
Travel with a friend, or hire an escort. Preferred Travel Helpers is just one of many
organizations who provide expertly trained staff to accompany you throughout your
trip, with varying degrees of expertise to make your trip completely comfortable
and worry-free. Though I don’t have any personal experience, this firm is fully
insured, their website is informative and friendly. Rates vary depending upon your
needs. www.preferredtravelhelpers.com
Get yourself “in shape” for your trip. This important step includes all the things
that do a body good -- eating nutritious food, drinking plenty of fluids and getting
reasonable amounts of sleep and exercise. Your body and your mind react far
better when they are not being asked to perform at the edges of their limits all the
time. You’re safe—now is the time to gently push yourself.
For every bit of pushing or extending you do in your relaxed pre-trip state, the
more resilient you will feel on the road.
Talk to your doctor and your therapist well in advance of your trip. Share details
about the destination, your trip goals, any known challenges and your concerns.
For example, if you know you’re sensitive to altitude and you’re preparing for a
hike into the Andes, talk to your doctor about taking Diamox (Acetazolamide). If
you’re boarding a ship, perhaps you’ll need something to prevent motion sickness.
Is it advisable to take an aspirin on your long flight? Do you need something to
help you sleep? Perhaps ask about melatonin.
In addition, your doctor may prescribe a medication(s)1 you can take in the event
you need some extra help (a PRN, or ‘as needed’), and if not, don’t be shy: Ask.
There are many medications that can be helpful, and your doctor will know which
will work best with whatever you are already taking.
Your therapist will be able to arm you with coping strategies to help you deal with
challenging situations. The more your therapist knows you and your disorder, the
more helpful this kind of pre-planning and support will be.
Time differences and medication. The word from UCSD’s Michael McCarthy,
MD., PhD in psychiatry, and who has written extensively on the effects of travel
and illnesses, take your medications at the same time. 9:00 pm in America, 9:00
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pm in Europe. The therapeutic levels really won’t be affected, and that includes
lithium.
Check and double check that you pack your medications. Not in your suitcase
but in your carry-on bag. DO NOT CHECK THEM in case you need them during
the flight, experience any travel delays, or heaven forbid your luggage gets lost.
Pack enough for your entire trip... and a little more. If for any reason you have to
obtain more, call your doctor’s office and ask them to send the order to your local
pharmacy abroad. (In other countries, many prescriptions are actually sold over-
the-counter, so check that option too). But bottom-line, take what you’ll need,
plus a “cushion” of a few extra days of medication in case of an emergency.
Focus completely on whatever you are doing at the moment. This is a calming
practice called ‘mindfulness.’ It’s both broad and narrow; internal and external.
Try to appreciate every movement and component of each activity, even if it’s
brushing your teeth. Ritualize whatever you do—keep a schedule of even your
simplest activities-- and you will enjoy a sense of control. I believe that it is
quite impossible to have a panic or anxiety attack if you are completely in the
moment. In a nutshell, mindfulness and all its benefits can be accomplished if
you stay centered and uncluttered. (This is more than just a travel tip!). Also, as
you read through this chapter, do try the EFT (Emotional Freedom Technique), or
“Tapping”.
Two tools may serve you well. One is a new mobile app called MOOD WATCH
that gives you life-changing data in the palm of your hand. You can download the
app on your iPhone, iPad, iPod Touch or Android devices for just 99 cents and
is available in 11 languages. (visit www.MoodWatchapp.com). Another similar
tracking app is the T2Tracker created by the US Department of Defense to help
returning soldiers with PTSD (Post-Traumatic Stress disorder), and it is free. http://
t2health.org/apps/t2-mood-tracker#.UdNd9lOAFZo The details and instructions
for Mood Watch are in the references section.
Tapping
For some additional peace of mind during travel, you might consider trying my
“bonus tip.” It’s called Tapping or EFT: Energy Freedom Technique 2. Amazing,
deep, effective, fast, and specific information is also available in the reference
section.
2 Emotional Freedom Techniques, Craig, G (nd). EFT Manual (pdf). Retrieved 2013-06-26.
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MedJet Assist
And finally, one less worry is always a good thing. I recommend you check out
MedJet Assist3.
This is about physical safety, and the only thing it has to do with bipolar is this:
you will have one less worry. If you or any of your family become seriously sick
or injured, for next to nothing, your fears are gone. MedjetAssist.com. They do
NOT cover psychiatric illnesses, but they DO cover everything else. Rain or shine,
24/7, all around the globe. If you are hospitalized more than 150 miles away
from your home and require continued in-patient care, Medjet will arrange for
air-medical transfer to the hospital of your choice in your home country. This is an
unbelievable service, and it’s real. Place one more worry behind you, whether it’s
for your family or yourself. The flat-rate membership fees are amazingly affordable
both for individual and family plans. This is a MUST HAVE in your travel kit. Look
it up: MedjetAssist.com, and use the discount code: TRAVL for an International
Bipolar Foundation 2% discount on all fees and products.
MedFlash
MedFlash can be a lifesaving tool for travelers as you never know when
you will be incapacitated or injured.
3 As an affiliate with MedJet Assist I was able to secure the 2% discount code.
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Ready to Launch
So your departure date is finally here. You are ready to launch.
We all know airports have the potential to be crowded, noisy places. Your goal
is to have a plan. First of all, travel as lightly as you possibly can so your luggage
doesn’t overwhelm you physically and mentally. Take your time, ask for help and
be prepared to tip. There are people in place to assist you.
If you feel unsteady on your feet-- whether from extreme anxiety or any other
reason-- do not hesitate to seek assistance. Assistance can be just a matter of
using a cane to help with your balance and as a sign to let those around you know
that you require some assistance. It is as much for other people as it is for you.
Keep in mind, a cane isn’t your only option depending on your level of instability.
Nearly all airlines offer a wheelchair service, and if you like, you can request it when
you make your reservations. Also note that if you do ask for wheelchair assistance
you must comply completely with everything you are requested to do. The airline
wants things to go well for you and everyone around you.
Airborne
Once you are airborne, there are several things you can do to stay relaxed at
30,000 feet and to reduce the effects of jet lag. This is my own formula, which I’ve
found to be truly effective trip after trip.
• Let’s assume you have read this entire chapter and have implemented the
tips wisely. You should be well-rested, nourished and organized. You’ve
packed your meds and some snacks in your carry-on, and a cane if you need
it (high anxiety types). You know what to expect-- any stops, plane changes,
flight times and the local arrival time at your destination. You are looking
forward to your trip!
• On longer flights, by all means sleep when you’re sleepy, but shoot for the
longest leg of the flight. Consider the time it’ll be when you arrive, because
you’ll want to adapt to the swing of things as quickly as you can once you’re
there.
• Kudos to you if you’re an easy sleeper, but if not, ask your doctor to prescribe
a sleep aid. What you want are good REM cycles. Go light on coffee or
other caffeine beverages.
• As some medical research shows, taking one aspirin can help prevent the
development of blood clots during long periods of sitting. Ask your doctor
whether this is advisable for you.
• Move your body. Tricky business these days with airline regulations and
limited space, but do as much as you can. Visit the restroom! There are
in-seat exercises the airlines often have instructions for. Moving is good,
especially for your legs.
• Set your watch to the new local time as soon as you’re on your final flight.
As funny as this sounds, set your head too. Refer only to the new time zone
and completely buy into your new reality.
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For a little different approach, David J. Miklowitz, author of The Bipolar Disorder
Survival Guide writes on jet lag:
“One way to combat this travel disruption is to gradually adjust your internal time
clock to the new place you’re going, before you actually leave. So, over the
course of a week before you travel to a later time zone, go to bed an hour earlier
than usual, then an hour and a half, and then 2 hours earlier, and so forth. By the
time you arrive, it may be easier to adjust to the hours of the new time zone. This
procedure usually works best if you’ll be in the new time zone for more than a few
days.”
Jet lag is one of those maladies that has as many cures as hiccoughs, and probably
all about as effective.
Let’s face it, living with a mood disorder is challenging, but it has no right nor
should it have the power to keep us from traveling and exploring our world. Ernest
Hemingway said it so beautifully, “It is good to have an end to journey toward; but
it is the journey that matters, in the end.”
Resources:
TSA (Transportation Security Administration): www.tsa.gov/traveler-information/
what-know-you-go
Tips for Traveling Abroad: http://travel.state.gov/travel/tips/tips_1232.html
MoodWatchApp.com, available in 11 different languages and endorsed by
NAMI (National Alliance for Mental illness) and the International Bipolar
Foundation
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-- Overall, how are you feeling? (Choose from Excellent, Great, Good, Fair Not
So Good or Terrible.)
-- How many hours of sleep last night?
-- Quality of sleep? (Choose from Excellent, Good, Fair or Poor )
From here, you’ll have a little biofeedback exercise, and one that’s well worth
doing. Your mind has more to do with your body than you might think, and you’ll
see the proof here.
Any blood pressure monitor will do. For example this wrist monitor is small,
inexpensive (under $20.00), and if you’re consistent in the way you use it, it’s
accurate. Just strap it on and record your pulse and pressure. Remember,
be consistent. Keep the monitor at heart-level and avoid talking, laughing or
fidgeting and uncross your legs. Now record the numbers in MOOD WATCH.
Then, meditate for between 3 and 5 minutes, focusing on your breath… slow
deep breath in, longer exhale out. Practice will make meditating easier as you
learn to relax and note how you feel better.
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Finally, take your pressure and pulse again and record the numbers after
meditating. You will likely notice a significant difference. If not, you will likely
with practice. (Don’t forget to pack your blood pressure cuff!
Doing this step regularly will help you lower or stabilize your baseline pulse and
pressures so that regardless of your mental state, your body will maintain an even
keel. This is biofeedback. It takes practice, but it is both doable and incredibly
rewarding. Having the ability to check your vitals will reassure you that things are
not nearly as bad as they might feel when anxiety is creeping up. You will quickly
learn that you have more control—even subconsciously—over your body than you
imagined.
Now, go on to evaluate your mood components guiding the buttons with your
finger. You can rate your levels in seconds:
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at all of your information at one time.
The Week Report is even more revealing. It includes your mood chart, and also
sleep, blood pressure, meditation, your meds and your notes.
When seen together, the data are amazingly revealing and helpful in figuring out
what action you can take to feel better. For example, you
may discover that you need to get more sleep… or less
sleep. Perhaps you forgot your medication, or are taking
too much. And you can see what happens to your vitals
and your mood when you meditate.
The Weekly Report can be emailed or printed out on
standard-sized paper for easy reference. Consider sharing
your data with your doctor. MOOD WATCH can be the
window to improved mental health and a happier life.
T2Tracker: http://t2health.org/apps/t2-mood-tracker#.
UdNd9lOAFZo
MedjetAssist.com
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Emotional Freedom Techniques, Craig, G (nd). EFT Manual (pdf). Retrieved 2013-
06-26
Tapping is a mystery. How it works is a mystery, but it works. Imagine a life free
from anxiety, agitation, fear, worry… when you tap, you release these energies
and make room for calmness, joy, contentment, mindfulness, and energy. It only
takes a few minutes. A MUST TRY!
Let me tell you how I was taught: Standing up or sitting down, doesn’t matter,
you’re just going to be focusing for a few minutes. Get centered (focus inside) and
focus on what’s getting to you. Could be a pain you want to resolve--physical,
emotional, could be generalized anxiety, could be sadness, could be anything,
truly.
We’re about to start, so think of your problem--let’s call it anxiety--and rate your
level of anxiety on a scale of 1 to 10, 10 being the most anxious, one being no
anxiety, and don’t play the game if you don’t have any anxiety. Choose anything
else.
Alright, so you’re centered, and you have your problem in mind. Take your
dominant hand and make gentle karate chops into the palm of your other hand –
nothing crazy.
Let’s say you’re at a seven. Start chopping into your hand and repeat the phrase,
“Even though I have this anxiety, I love and accept myself completely.” You repeat
that phrase 3 to 5 times as you are chopping. (Pick a number and be consistent: 5)
For the next section, take both of your hands to the very crown of your head--the
very top. Tap the top of your head with both hands saying, “anxiety”. Repeat this
word 5 times. That’s right, just that word, while you’re tapping.
Move to the inside corners of your eyebrows just above your nose. Tap your
fingers, two fingers each hand, on the bone at the inside corner of your eyebrows.
As you are tapping, continue saying, five times, “anxiety”.
Go to the outside corners of your eyes, tapping on the orbit (bone), again saying,
“anxiety”, 5 times.
Now follow the orbit edge down to the center of your eyes--just below your eyes.
Tap there on the bone again, and as you’re tapping, say 5 times, “anxiety”.
Now with one hand move your fingers down below your nose and above your
upper lip. There, saying 5 times, “anxiety” as you tap.
Next, move your fingers to just below your lower lip, centered, and the top of your
chin. Tap there, 5 times, saying, “anxiety”.
Okay, homestretch! Both hands at the sides of your neck, slide your fingers down
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to your collarbone, and down another 2 inches, there on your chest, tap and say,
5 times, “anxiety”.
And the final tap: on either side of your body reach one arm around and underneath
your arm, tap the side of your body as you say, 5 times, “anxiety”. And you’re
finished!
Now, take a deep breath, relax, and centering yourself again, rate your level of
anxiety. I think you’ll be astounded to find that your level of anxiety really did go
down and you really do feel different.
This technique is so incredibly effective it defies any feeble explanation. Just try it.
Tap away!
References
Miklowitz, D.J., (2011) The Bipolar Disorder Survival Guide, “OK, Now That I’m
Going to Bed on Time, How Do I Fall Asleep?” 175 – 176.
McCarthy, M.J., Welsh, D.K. Cellular Circadian Clocks in Mood Disorders, J Biol
Rhythms 2012 27: 339 DOI: 10.1177/0748730412456367
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The Caregiver
By Muffy Walker, MSN, MBA
Putting baby locks on the kitchen cabinets to protect my toddler was one thing,
but locking away the steak knives from my seven-year-old was not something I ever
imagined would be necessary. I also never imagined that I would need to use my
skills as a psychiatric nurse on my own child.
When my youngest son Courtland turned four, my husband and I began noticing
behaviors that were foreign to us. Court had become unusually aggressive; having
uncontrollable temper tantrums in the grocery store aisle, throwing toys across
the room at his brothers, and kicking me at the slightest parental control. Once
a gregarious, outgoing child, he had become fearful, frightened to go to school,
afraid to be in his room alone, or afraid to go outside to play. Court now shunned
the beach; the sand bothered his toes, and in summer he wore winter clothes,
complaining he was cold. The inside labels on his shirt and seams on his socks sent
him into fits of rage.
I worried that like my other two children, Courtland might also have Attention-deficit
Hyperactivity Disorder (ADHD), but perhaps a really, really bad form of it. Over the
next three and a half years, Court saw five psychiatrists, each offering a different
diagnosis including Obsessive-Compulsive Disorder, ADHD, Oppositional-Defiant
Disorder, and Post-traumatic Stress Disorder. Finally, after being incorrectly treated
with an anti-depressant, Court experienced a full
blown manic episode and was ultimately diagnosed
with Early-onset bipolar disorder.
I quit my job and dedicated my waking hours to learning more, helping my son,
and emotionally supporting my family. We looked into alternative schools and
ultimately sent him to 4 different schools. We used mood charts, star charts for
good behavior, practiced Ross Greene’s “3 basket approach”, and hired a mentor
as we learned that author Danielle Steele did for her son, Nick Traina. We went to
family therapy, individual therapy, and social skills groups.
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The first 10 years were particularly difficult. We walked around as if on egg shells.
We chose our words carefully so as not to upset Court; learned to disguise his
many pills in pudding; in order to monitor his sleep we allowed him to stay in our
room; repaired multiple broken windows, and sheltered our two other boys from
Court’s untempered profanity.
In the early years, our openness came back to haunt us. Parents whispered about
him at t-ball games, no one invited him to birthday parties, sleepovers or play
dates. The children on the playground called him names like psycho, looney head
and mental case. The boys taunted him and told him to go back to the mental
hospital (even though he’d actually never been at one). Each day when I picked
him up from school, he would shuffle over to the car with his head hanging down,
telling me of yet another example of the bullying he had endured.
I wanted so badly for him to fit in, for the other kids to understand him and to
accept him for who he was. After all, the children with diabetes or other physical
illnesses were not excluded. Only those with mental illnesses were.
Like a mother lion, we all do whatever is necessary to protect our cubs, but I felt
like I was losing this battle. I learned that the special education teacher curriculum
in California does not include a “chapter” on bipolar disorder, although it does
include autism, Asperger’s, ADD, & ADHD. Therefore, how could they understand
my son’s behaviors and respond to him in an appropriate manner? They couldn’t
and didn’t, so I gave in-services to the teachers to help educate them about bipolar
disorder. I worked with the school Superintendent and Principal to incorporate
anti-bullying tenets and even hired a theater group that specialized in anti-bullying
vignettes. Nothing seemed to help, but as much it seemed an insurmountable
obstacle, we did not give up.
When my son was 9, we allowed a television station in Los Angeles to interview us.
After telling a co-worker what I had agreed to, she sent me a scholarly paper about
children with AIDS, advising parents not to be public about it. I understood her
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concern, but chose not to succumb to the unjust negative stigma associated with
the biochemical brain disorder with which my son was born.
If you are reading this chapter, then you are probably all too familiar with my
examples of living with someone who is not stable, or of the bullying and negative
stigma and the futility of attempts to correct them.
As caregivers of someone with the disorder, we need to be aware that just as with
so many other illnesses, the symptoms of bipolar disorder range broadly within
a spectrum. Although one person may be psychotic (loss of touch with reality) or
a danger to himself (one in five children with bipolar disorder will kill themselves
before the age of 18), another may be relatively high functioning, attend regular
school, and hold a meaningful job. Think Rachmaninoff, Hemingway, Vincent Van
Gogh, and Carrie Fisher. All are highly successful, extremely creative people, all
who have/had bipolar disorder. Caring for someone with bipolar disorder can be
especially difficult given the nature of the disorder.
Not only is healthcare coverage more limited than for other illnesses, there is the
issue of getting someone to treatment when he or she may not want to go. A
person who is in a manic phase (up) may
refuse to seek treatment and may even
discontinue his medication. The medications
are powerful and have unpleasant side
effects. Someone in a depressed phase
(down) may feel so helpless and worthless
that getting help seems not to be an option.
Furthermore, most of the medications used
to treat bipolar disorder are powerful, have
unpleasant side effects and may thwart their
“high” feelings. Because there is not yet a
cure for bipolar disorder, these medications
must be taken for life, which is a scary
prospect for most people.
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For caregivers, coping with someone with bipolar disorder takes a heavy emotional
toll and strains the relationship, often to the breaking point. An added burden is
the stigma of mental illness, which leaves families feeling frightened and isolated,
unaware that many other families share their experience.
For purposes of this chapter, a caregiver is anyone who has primary care
responsibility for someone diagnosed with bipolar disorder. Caring for a child,
however, is much different than caring for an adult, for whom you probably have
no legal rights. Not only does the type of care change with age, the typical course
of the disorder tends to differ in children and adults.
So what can we as caregivers do to help our loved one with bipolar disorder?
• Meet with your loved one’s clinician. Although clinicians are bound by
laws of confidentiality, you can ask to go with your family member to the
appointment.
• Consider a contract that you and your loved one with bipolar disorder agree
on when he or she is calm, stable, and lucid. If the person is 18 years of age
or over, you will generally not be able to learn much about his treatment
because of HIPAA (The Health Insurance Portability and Accountability Act).
Write out a statement describing agreed-upon treatment plans that you can
show to your loved one when he or she is no longer rational or is refusing
treatment.
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• Prepare a resource list, even if you don’t think you need the service,
(example) Psychiatric Emergency Response Team (PERT) in your area.
• Enlist support and build a network. This is extremely important, not only to
help you with the day –to- day stressors and limit your isolation, but also to
learn what is “normal.”
• Look into a Special Needs Trust. Wikipedia defines this as, “A special needs
trust is created to ensure that beneficiaries who are disabled or mentally ill
can enjoy the use of property which is intended to be held for their benefit.”
In addition to personal planning reasons for such a trust (the person may
lack the mental capacity to handle their financial affairs) there may be fiscal
advantages to the use of a trust. Such trusts may also avoid beneficiaries
losing access to essential government benefits.
• Let your family member know that you care. According to Dr. Andrea
Bledsoe of Everyday Health, here are some things TO SAY and NOT TO
SAY to someone with bipolar disorder:
• Embrace the diagnosis, it’s not going to change, and may not improve.
Medications can control it, but there is not yet a cure.
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Caring for a loved one with bipolar disorder can be exhausting
and disruptive to your daily patterns. More often than not,
you may even overlook your own personal physical and
emotional needs. First and foremost, you must take
care of yourself. If you are not strong both physically
and emotionally, you are no good to yourself or
others. As they say in the airplane, “put your oxygen You must take care
mask on first before assisting another.”
of yourself
When you take on the role of caregiver, you add
more than just one new hat to your
repertoire. Now you are “nurse,”
“doctor,” advocate, case
manager PLUS your previous
roles as wife, mother, father, sibling.
Caregivers’ stress Where there’s caregiving, there’s stress — that feeling
hormone levels were 23 that comes from having too many demands on your
percent higher than those time. Chronic tension suppresses your immune
of their non-caregiving system, making you more susceptible to illness.
counterparts Research shows that caregivers’ stress hormone
levels were 23 percent higher than those of their non-
caregiving counterparts. They also had lower levels of
disease-fighting antibodies. This is why it is crucial to find
ways to take stress-relieving breaks.
2. Get adequate rest and sleep. Adhering to a healthy sleep schedule may be
difficult with all you are now dealing with. Here are some helpful hints to get
those much needed Z’s: Avoid paying bills, having difficult discussions, or
other stressful events in the evening. Try scheduling them early in the day.
Clear your mind. Try imagining a calming scene bringing into play the five
senses. Walk on the beach, listen to the waves, smell the salt air, feel the
warm sun...
Smooth on some lavender cream or put essential oil on a cotton ball near
your pillow. Research shows that the scent of lavender eases anxiety and
insomnia.
Listen to soothing music and turn off the TV and video games an hour
before going to bed.
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Make love, not war. Research shows that sex actually helps induce a sleepy
state by releasing endorphins.
Try some slow, deep breathing. This type of breathing relaxes your body,
oxygenates your blood and reduces the stress you feel.
3. Eat nourishing foods. Try to avoid caffeine, sugar, and processed foods.
Avoid alcohol. Many believe alcohol helps them relax and sleep, however,
alcohol disrupts the sleep cycle causing a nonrestful sleep.
4. Enjoy some “me” time. Plan ahead for some “me” time, whether it’s a walk
with your dog, lunch with a good friend, or curling up with a good book.
“Me” time can be very restorative.
6. Laugh. Enjoying a good belly laugh helps the body relax, raises your blood
oxygen levels, produces endorphins, stimulates your internal organs, and
boosts your immune system. Know a good joke?
7. Give yourself a pat on the back. You aren’t doing this to win a caregiver
award but at the same time, you may not have realized how taxing it
would be. If your loved one with bipolar disorder does not show his or her
appreciation, don’t take it personally. Appreciate your own efforts and how
they’re helping.
8. Find support. Whether you seek support from your church, a professional
therapist, or simply check in with a cheery friend, support is essential. Caring
for your loved one is not a one-person job, although we tend to think it is.
Connect with others who are in the similar situation. Support groups can
work wonders for your morale. Your situations always seem so much worse
until you are in the company of those going through the same thing.
9 Redefine your priorities. Taking care of someone with bipolar disorder may
leave you with little time and energy for yourself. Adjust your expectations
of yourself and explain to others why your time and focus on them may need
to change.
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11. Consider Supplements. Low serotonin levels have been linked to low
spirits, says Marie-Annette Brown, PhD, RN, of the University of Washington.
Getting 400 micrograms of the B vitamin folic acid; 50 milligrams each of B1,
B2 and B6; and 400 international units of vitamin D every morning has been
shown to boost serotonin and, as a result, people’s mood and energy. In
Dr. Brown’s research, combining these supplements with daily exercise and
exposure to natural light helped women overcome depression.
12. Have hope. Remember, bipolar disorder is treatable and in most cases can
be stabilized. Be prepared for the condition to worsen and/or improve at
times. We won’t give up hope.
My dreams for Courtland have not disappeared, they have just changed.
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202
203
STRESSED ENTHUSIASM NERVOUS
TENSE ENERGIZED EXCITED ANXIOUS
HAPPY
Medication Side Effect Checklist
__Blurred vision
__Changes in weight
__Swelling of hands and feet
__Dizziness
__High or low blood pressure
__Headaches or migraines
__Changes in menstruation or breasts
__Change in sexual functions
__Dry mouth
__Excess saliva
__Constipation
__Diarrhea
__Nausea
__Memory loss
__Difficulty in concentrating
__Anxiety
__Agitation
__Thoughts of suicide
If you experience any of the above side effects from your medication, please
contact your treating physician.
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Exercise Journal
Use this form to log your daily exercise to keep you motivated. Make multiple
copies to use in order to maintain a consistent exercise program.
WEEK OF _________________________
MONDAY
TUESDAY
WEDNESDAY
THURSDAY
FRIDAY
SATURDAY
SUNDAY
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Food Log
DATE _________________________
BREAKFAST
LUNCH
DINNER
SNACK
Use this form to log your daily food intake to encourage healthy eating
habits. You may want to make multiple copies to use in order to maintain a
consistent health food plan.
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Doctor Contact Sheet
Address: _________________________________
Phone: ___________________________________
Psychiatrist
Name: ___________________________________
Address: _________________________________
Phone: ___________________________________
Therapist
Name: ___________________________________
Address: _________________________________
Phone: ___________________________________
Other
Name: ___________________________________
Address: _________________________________
Phone: ___________________________________
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Questions For Your Doctor
Use this form to prepare for your upcoming doctor’s appointments. Make a list
of questions you have for the doctor so that you use your limited time with them
wisely and don’t forget to ask the important questions.
1.__________________________________________
2.__________________________________________
3.__________________________________________
4.__________________________________________
5.__________________________________________
6.__________________________________________
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The mission of International Bipolar Foundation is to improve understanding and treatment
of bipolar disorder through research; to promote care and support resources
for individuals and caregivers; and to erase stigma through education.
ibpf.org