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Implementing Eye Gaze Computer Technology to Promote Communication, Participation and Fun for Young Children with Complex Communication and Motor Needs

The document discusses the implementation of Eye Gaze Computer Technology (EGCT) to enhance communication and participation for young children with complex communication and motor needs. It covers factors for effective use, including team collaboration, device selection, and operational components, as well as parents' perspectives and case studies. The findings indicate that while parents view EGCT as beneficial for communication, there are limitations in its recreational and environmental applications, highlighting the need for further research.

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0% found this document useful (0 votes)
1 views

Implementing Eye Gaze Computer Technology to Promote Communication, Participation and Fun for Young Children with Complex Communication and Motor Needs

The document discusses the implementation of Eye Gaze Computer Technology (EGCT) to enhance communication and participation for young children with complex communication and motor needs. It covers factors for effective use, including team collaboration, device selection, and operational components, as well as parents' perspectives and case studies. The findings indicate that while parents view EGCT as beneficial for communication, there are limitations in its recreational and environmental applications, highlighting the need for further research.

Uploaded by

verocastaldi22
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as PDF, TXT or read online on Scribd
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Implementing Eye Gaze Computer Technology to

Promote Communication, Participation and Fun for

Young Children with Complex Communication and Motor Needs

Session 128

AOTA Inspire Annual Conference, Philadelphia, PA

April 3, 2025

Sandra Masayko, M.Ed., OTR/L (Retired), Retired Director of Assistive Technology,


Easterseals SE PA, Philadelphia, PA [email protected]

Joy McGowan, M.S., CCC-SLP, Director of Assistive Technology & AAC, Easterseals SE PA,
Philadelphia, PA [email protected]

Namrata Grampurohit, Ph.D., OTR/L, Associate Professor of Occupational Therapy, Thomas


Jefferson University, Philadelphia, PA [email protected]

Topics:

• How Eye Gaze Computer Technology (EGCT) works


• Factors to consider in EGCT
o Team Collaboration
o Access Components: Personal & Environmental
§ Positioning of body & head in relationship to tracker
§ Use of hands
§ Use of eyes & consideration of Cortical Visual Impairment
§ Interest, Attention & Fatigue
§ Other factors such as seizures and auditory issues
§ Acquiring equipment

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 1


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit
o Considerations for Device Selection
§ Caregiver Perspective/Knowledge of the System
§ Vocabulary
§ Physical Ability to Access Device
§ Communication Partner
§ Portability
§ Child’s Engagement
o Operational Components for Implementation
§ Low tech introduction through toys, actions, fun
§ Navigation to access vocabulary pages
§ Determining voice output
§ Learning to interact with the computer through play
§ Customization
o Language Components for Implementation
§ Pictures
§ Symbols
§ Vocabulary & sentence structure; Phrases
§ Requesting and beyond
o Practice and carryover: Low tech back up for school & home
o Data Keeping
• Parents’ Perspectives (Follow up study—see outline of study on next pages*)
• Case Stories with video and photo examples, interwoven into presentation
o Preschool Children
o Parent Description of Spontaneous Speech
• Occupational Therapy Opportunity: Promote children’s agency through use of AAC
devices for creativity, connectivity and environmental control.

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 2


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit
*Parents’ Perspectives of Eye Gaze Technology Use by Children with

Complex Communication Needs

American Journal of Speech-Language Pathology, Volume 33, Number 3, Pages 1254-1265

https://doi.org/10.1044/2023_AJSLP-23-00100

A descriptive study of 10 parents’ perspectives of 9 children, conducted through an online


survey and follow up telephone interview.

Instruments Used: “Functional outcomes of children’s uses of their single most advanced AAC
device” (Calculator, 2014); Gross Motor Function Classification System, Expanded and Revised

(2007); Manual Abilities Classification System for Children with Cerebral Palsy (2010);
Communication Function Classification System (2011); Vision Function Classification (2020);
with additional questions posed by the investigators.

Description of Children

5 boys, 4 girls, current ages 7-16. All trialed eye gaze technology while in preschool or early
intervention. Multi racial. All speak English at home and 2 speak additional languages at home.

Diagnoses: Cerebral Palsy (CP)=7; Arthrogryposis & CP=1; genetic disorder with ataxia=1;
Cortical Visual Impairment=2. All have limitations of mobility, hand use & communication.

Current Kinds of AAC Used by the Children

Computer based (8 students): Eye gaze control only=56%; Touch activation only=11%; Eye gaze
& touch with keyguard=11%; Eye gaze with switch=11%.

Non computer based (1 student): 3-message switch=11%

Amount & Location of AAC Use for Computer Based AAC (8 students)

5-6 hours/day=38%; 7-10 hours/day=38%; 16 hours/day=12%; unknown=12%

Home & School=88%; School only=12%

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 3


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit
Benefits of Computer Based AAC Use (Based on Calculator’s Questionnaire)

100% of parents agreed that child understands purpose of the device and uses device for
school.

84% of parents agreed that child: seems satisfied with the device; uses device effectively with
people who are unfamiliar; values the device; has figured out how to operate device; uses device
to communicate with many different people.

84% of parents agreed that the device enables child to make friendships with others and has
contributed to overall effectiveness in communication.

Limitations of Computer Based AAC Use

Only 25% use the device for Internet; only 13% use device for environmental control; only 13%
can independently get to the device.

50% use the device to access recreation, but this appears to be limited to games. Few use the
device to access music, art or social media.

Assisting Parents in Implementation

Most parents (78% ) felt they received sufficient help to implement the technology. SLPs were
reported most often as providing assistance (77%), followed by AT (33%), OT and PT (22%
each) then other professionals.

Conclusions

Parents perceive eye gaze technology to be a powerful means for their children to communicate.
There appears to be a need to employ the multiple capabilities of computer based AAC to meet
recreational and environmental needs. More research is needed.

References & Resources

Blackstone, S. W., Luo, F., Canchola, J., Wilkinson, K. M., & Roman-Lantzy, C. (2021,
February). Children With Cortical Visual Impairment and Complex Communication

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 4


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit
Needs: Identifying Gaps Between Needs and Current Practice. Retrieved March 2023,
from https://doi.org/10.1044/2020_LSHSS-20-00088

Beukelman, D. R., & Light, J. C. (2020). Augmentative & alternative communication:


supporting children and adults with complex communication needs (5th ed.). Paul H.
Brookes Publishing Co., Inc.

Borgestig, M., Al Khatib, I., Masayko, S., & Hemmingsson, H. (2021). The impact of eye-gaze
controlled computer on communication and functional independence in children and
young people with complex needs – a multicenter intervention study. Developmental
Neurorehabilitation, 24(8), 511–524. https://doi.org/10.1080/17518423.2021.1903603

Calculator, S. N. (2014). Parents' perceptions of communication patterns and effectiveness of use


of augmentative and alternative communication systems by their children with Angelman
syndrome. American Journal of Speech-Language Pathology, 23(4), 562–573.
https://doi.org/10.1044/2014_ajslp-13-0140

Communication Function Classification System. CFCS. (2010). Retrieved October 29, 2022,
from http://cfcs.us/

Eye-Gaze Control Technology for people with cerebral palsy. 2021 clinical guidelines.
AusACPDM. (2021, August 22). Retrieved October 29, 2022, from
https://www.ausacpdm.org.au/resources/eye-gaze-control-technology-for-people-with-
cerebral-palsy-2021-clinical-guidelines/

Galli, J., Loi, E., Gaza, S., Michelette, S., Molinaro, A., Franzoni, A., Rossi, A., Semararo, F.,
Merabet, L., Fazzi, E. (2024). Natural history of cerebral visual impairment in children
with cerebral palsy. Developmental Medicine and Child Neurology 2024; 00:1-10.

https://doi.org/10.1111/dmcn.16096

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 5


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit
Hemmingsson, H., & Borgestig, M. (2020). Usability of Eye-Gaze Controlled Computers in
Sweden: A Total Population Survey. International Journal of Environmental Research
and Public Health, 17(5) https://doi.org/10.3390/ijerph17051639

Karlsson, P., Allsop, A., Dee-Price, B.-J., & Wallen, M. (2018). Eye-Gaze Control Technology
for children, adolescents and adults with cerebral palsy with significant physical
disability: Findings from a systematic review. Taylor & Francis. Retrieved October 29,
2022, from https://www.tandfonline.com/doi/full/10.1080/17518423.2017.1362057

Kuhaneck, H., Bundy, A., Fabrizi, S., Lynch, H., Moore, A., Román-Oyola, R., Stagnitti, K., &

Waldman-Levi, A. (2024). Play as Occupation: the state of our science and a research

agenda for the profession. American Journal of Occupational Therapy, 78(4).

https://doi.org/10.5014/ajot.2024.050824

Manual Ability Classification system for children with cerebral palsy--MACS. (2010). Retrieved
October 30, 2022, from https://www.macs.nu/files/MACS_English_2010.pdf

Palisano, R., Rosenbaum, P., Bartlett, D., & Livingston, M. (2007). GMFCS - E & R Gross
Motor Function Classification System Expanded & Revised English - CanChild.
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ER_English.pdf

Powrie, B., Kolehmainen, N., Turpin, M., Ziviani, J., & Copley, J. (2015). The meaning of
leisure for children and young people with physical disabilities: A systematic evidence
synthesis. Developmental Medicine & Child Neurology, 57(11), 993–1010.
https://doi.org/10.1111/dmcn.12788

Visual function classification. SMILE Lab. (2020). Retrieved October 29, 2022, from
https://www.pisasmilelab.it/vfcs

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 6


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit
Wilkinson, K. M., & Wolf, S. J. (2021). An In-Depth Case Description of Gaze Patterns in an
Individual with Cortical Visual Impairment to Stimuli of Varying Complexity.
Perspectives of the ASHA Special Interest Groups, 6.
https://doi.org/https://doi.org/10.1044/2021_PERSP-21-00111

Wilkinson, K.M., Elko, L., Elko, R., McCarty, T., Sowers, D. J., Blackstone, S., & Roman-
Lantzy, C. An Evidence-Based Approach to Augmentative and Alternative
Communication Design for Individuals with Cortical Visual Impairment. American
Journal of Speech-Language Pathology, 32 (5). https://doi.org/10.1044/2023_AJSLP-22-
00397

Presenta(on Notes Session 128 AOTA Inspire Conference 4/3/2025 7


Implemen(ng Eye Gaze Computer Technology to Promote Communica(on, Par(cipa(on & Fun
for Children with Complex Communica(on & Motor Needs.
Authors: S. Masayko, J. McGowan, N. Grampurohit

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