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Dr. Aidah Abu Elsoud Alkaissi Devision of Intensive Care and Anesthesiology University of Linköping-Sweden

1) The case involves a 65-year-old man with motor neuron disease who is on life support in the ICU after developing respiratory arrest during a medical procedure. 2) Doctors feel further attempts to wean him off life support would be futile, but the patient wishes to live and be placed on a home ventilator, creating an ethical dilemma around end-of-life decision making. 3) The family wants to remove life support due to high medical costs but no longer having money to

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0% found this document useful (0 votes)
213 views43 pages

Dr. Aidah Abu Elsoud Alkaissi Devision of Intensive Care and Anesthesiology University of Linköping-Sweden

1) The case involves a 65-year-old man with motor neuron disease who is on life support in the ICU after developing respiratory arrest during a medical procedure. 2) Doctors feel further attempts to wean him off life support would be futile, but the patient wishes to live and be placed on a home ventilator, creating an ethical dilemma around end-of-life decision making. 3) The family wants to remove life support due to high medical costs but no longer having money to

Uploaded by

Tarsis Henita
Copyright
© Attribution Non-Commercial (BY-NC)
We take content rights seriously. If you suspect this is your content, claim it here.
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Download as PPT, PDF, TXT or read online on Scribd
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Dr.

Aidah Abu Elsoud Alkaissi


Devision of Intensive Care and
Anesthesiology
University of Linköping-
1 Sweden
Ethics of Nursing

 Ethics includes values, codes, and principles that govern


decisions in nursing practice and relationships

 Nursing Ethics is the discipline of evaluating the merits,


risks, and social concerns of activities in the field of nursing

 Ethical principles are necessary to guide to professional


development

2
Code of Ethics for Nursing Students

Code of Academic and Clinical Conduct

 The code of Academic and Clinical conduct is based


on an understanding that to practice nursing as a
student is an agreement to uphold the trust with
which society has placed in us

3
A CODE FOR NURSING STUDENTS

 Advocate the rights of all clients

 Maintain client confidentiality

 Take appropriate action to ensure the safety of clients, self ,


and others

 Provide care for the client in a timely, compassionate and


professional manner

4
A CODE FOR NURSING STUDENTS

 Communicate client care in a truthful

 Promote excellence in nursing by encouraging


lifelong learning and professional development

5
A CODE FOR NURSING STUDENTS

 Treat others with respect and promote environment that


respects human rights, values, an choice of cultural and
spiritual beliefs

 Collaborate in every reasonable manner with the academic


faculty and clinical staff to ensure the highest quality of
client care

 Use every opportunity to improve faculty and clinical staff


understanding of the learning needs of nursing students

6
A CODE FOR NURSING STUDENTS

 Encourage faculty, clinical staff, and peers to mentor


nursing students

 Refrain from performing any technique or procedure for


which the student has not been adequately trained

 Refrain from any deliberate action or omission of care in the


academic or clinical setting that creates unnecessary risk of
injury to client, self or others

7
A CODE FOR NURSING STUDENTS

 Assist in ensuring that there is full disclosure and


that consent is obtained from clients regarding any
form of treatment or research

 Abstain from the use of alcoholic beverages or any


substances in the academic and clinical setting that
impair judgment

8
Principles of Health Care Ethics

 Beneficence: means doing or promoting good in such a


manner as to safeguard and promote the interest and well
being of patients and clients

 Nonmaleficence means to avoid doing harm, to remove


from harm, and to prevent harm

 Harm can be physical and so include pain, disability,


discomfort and death but it can also be psychological and
thus include mental stress

9
Principles of Health Care Ethics

 Autonomy and consent: Principles of self determination

 The cardinal principles of autonomy

 The right to full disclosure- the right to know


 The right to privacy
 The right to receive care and treatment

10
Principles of Health Care Ethics

 Justice: The principle of fairness is the basis for the


obligation to treat all clients equally and fairly

 Veracity: telling the truth. Clients prefer to receive


accurate information about their conditions and
prognosis even when the outlook is bleak

11
Principles of Health Care Ethics

 Privacy:
 To ensure that the patient’s body is appropriate

covered

 To establish a culture of privacy to ensure that


personal information of patients is kept as private
as possible

12
Principles of Health Care Ethics
 Confidentiality

 To preserving the human dignity of patients

 Discussing clients outside the clinical setting, telling


friends or family about clients, or even discussing clients
in the elevator with other workers violates client
confidentiality and must be a voided

13
Principles of Health Care Ethics
 Responsibility: A nurse, who neglects to give a patient pain
relief can be said to have caused that patient harm

 Proving negligence (i.e. that the nurse is legally responsible)

 It is not only human beings who can cause something to


happen, since conditions (e.g. staff shortages, poor
equipment, inadequate resources, and so forth) may also
cause accidents or result in a patient being injured

14
Principles of Health Care
Ethics
 Accountability

 Is about justifying actions, explaining why something


was (or was not) done

 The purpose of calling people to account for their actions


is therefore to establish whether they had good enough
reasons for acting in the way they did

15
Principles of Health Care Ethics

 FIDELITY

 The professional´s faithfulness or loyalty to agreements


& responsibilities accepted as part of the practice of the
profession

16
Be competent in your
practice
 The nurses are always responsible for their behaviours

 Has to refuse to perform procedures for which they haven´t


been prepared

 Ignorance isn’t a legal defence. Neither will lack of sleep or


overwork be accepted as a legal reason for carelessness
about safety measures or mistakes

17
The ICN- Code of Ethics for Nurses
(2006)

 Nurses have four fundamental responsibilities:

 To promote health
 To prevent illness
 To restore health
 To alleviate suffering

18
The ICN Code of Ethics

 Nursing care is respectful of and unrestricted by


considerations of age, color, creed, culture, disability
or illness, gender, sexual orientation, nationality,
politics, race or social status

19
NURSES AND PEOPLE

 The nurse shares with society the responsibility for


initiating and supporting action to meet the health and social
needs of the public, in particular those of vulnerable
populations

 The nurse also shares responsibility to sustain and protect


the natural environment from depletion, pollution,
degradation and destruction

20
NURSES AND THE PROFESSION

 The nurse is active in developing a core of research-based


professional knowledge

 The nurse, acting through the professional organization,


participates in creating and maintaining safe, equitable
social and economic working conditions in nursing

21
Future Implications
Please take with you home and discuss
it with your colleagues
 Scientific research over the past two decades has resulted in
rapidly developing technology, greatly altering health care
and medical and nursing practice

 Research has forced health care providers to address such


issues as:
 Who should receive the benefits of technology
 What are the long-term results of life-supporting and life-
extending procedures
 What kind of future generations we are preparing

22
Future Implications

 Having addressed these issues, can we say that our


decisions are ethical?

 What will be the ultimate cost in consumer health?

 What will be the actual cost to society?

 Where do nursing responsibilities lie?

23
Future Implications

 To ensure the best possible consumer health


care in the future, physicians and nurses will
have to forge a closer, more collegial
relationship

 Such a relationship will demand a high


order of ethical and professional obligation
24
A CASE STUDY

Helping patients and their families


through difficult times is never easy

25
The case of Mr. P
 A 65 year old retired man was diagnosed to
have motor neuron disease 4 years prior to
retirement and had become progressively
worse
 Seen in various ‘corporate’ speciality
hospitals- poor prognosis conveyed
 Sent to CMC Hospital for a feeding
gastrostomy- difficulty swallowing
 Bed ridden, could not talk, communicated
by
26
writing; fully alert and compos mentis
Encounters in CMC
 During the procedure he developed
respiratory arrest and was put on life
support
 3 months later the ICU head called for a
clinical ethics committee meeting
 Failed attempts to wean off respirator

 Opinion backed by evidence that


further attempts would be futile
27
The ethical dilemma begins
 His family had spent more than 8 lakhs and
wanted to remove him off the respirator
 They knew of the prognosis
 They had no more money to spend.
 They owed money for treatment at CMC
 He had a wife, one grown up son, one married
daughter whose husband is a lawyer and two
other smaller children who were studying.
 All shared the same opinion about what they wish
to do.
 They did not express the wish to take him home
28
Intensive dilemma in
intensive care
 He has heard of home respirators
and wished to have one.
 Did not wish to die
 The family and Mr. P had not
discussed these issues with each
other
29
Not just another day at the office
 The ICU doctors know treatment is futile
 There is no longer any money to pay for expensive
treatments; the family wish to take Mr. P off life
support
 Mr. P wishes to live; wants a home ventilator
 Where does this come from?
 Mr. P did not want a tracheostomy
 There are limited ICU beds and many potentially
treatable people who need these beds
 This is a Christian institution with certain values
 Conflicting ethical principles: every one of them
 Legal issues
30
What would you do?

THE BUCK STOPS HERE

31
The ethics committee’s
recommendations
 Independent review of medical notes
and physical condition
 Transfer to Neuro-ICU: try to wean off
respirator
 Hospital bears further costs
 Try to get money from ex-employers
 Explore issue of home respirator
 Talk with patient and family
32Meet in one month to review situation
Conversations with the
family
 Wife very distressed by Mr. P’s condition
and prognosis; fears having to deal with
him on her own if he worsened
 Distressed about lack of adequate medical
care in her village in Jharkhand
 Would rather kill herself than take him home
to manage on her own
 Did not want to sacrifice her younger
children's’ futures in futile treatments
 Rational; distressed; not clinically
33depressed
Conversations with the
family
 Very supportive of mother in law
and his own wife
 Fully aware of legal issues

 Was in communication with family


back home, including Mr. P’s son
 Did not see any other practical
solution
34Pleaded for help
The elusive home ventilator
 Costs 2,00,000 Rs
 Needs uninterrupted power supply,
technical support
 Family live in a village in Jharkhand
 Wife not willing to try nursing him on a
ventilator at home
 Transport home by rail or air not possible
 Ambulance journey to Jharkhand also not
feasible
35Money from employer not forthcoming
Independent medical review
and Neuro-ICU efforts

 Confirmed diagnosis, prognosis


 Attempts at weaning off
respirator not proving
successful

36
Conversations with Mr. P
 Knew of his prognosis
 Wished to live
 Agreed to the tracheostomy
 Agreed to try hard to get off the ventilator
 Soon realized this was not possible
 Began to accept that
 his illness would progress;
 that a home respirator was not possible
 even if it were, his QOL would be poor
37
Further conversations
with Mr. P
 Asked to be sent home to die
surrounded by his family
 Not possible

 I suggested his family be brought


here
 List of 15 names of 90 family
members produced
38
Of death and dying
 Acknowledged a good life
 Felt at peace with his maker

 Feared the moment of death: “ did not want to choke to


death’’
 Promise that this would not happen

 Much more at peace about dying after that

 Wrote that he was willing to be taken off life support after


his family came
 Family came on a Monday with return tickets booked for
the following Friday
 Shifted to a private room with technical support

 Family finalized many issues, said their goodbyes


39
The final ethical review
 The family met ethics committee
 All issues reviewed, documented

 My goodbye

 The sedative

 Withdrawal of life support

 Mr. P, in your death, you taught us


about
40
the sanctity of life
The aftermath
 Mr. P’s death affected everyone involved
 Contrast with the situation 25 years ago
 Happens everyday without any ethical
review
 Withdrawal of life support not the central
issue: was it a good death?
 Should we publish this and call for
discussion, legal guidance?
 Guidelines for procedures in similar
situations
41
Lets also remember
 Nursing is about : “Can we?”
 Ethics is about: “Should we?”

42
Dr. Aidah Abu Elsoud Alkaissi
Devision of Intensive Care and
Anesthesiology
University of Linköping-
43 Sweden

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