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Clinical Data Repositories: Lesson 13

This document discusses clinical data repositories (CDRs), which systematically store patient-specific data from clinical applications and other systems. CDRs integrate data like demographics, medications, diagnoses and lab results. They allow multiple views of patient records by dimension like time or location. CDRs improve data access across settings. Visualizing data in charts and diagrams simplifies information for decision making.

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Jennifer Ledesma-Pido
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2K views

Clinical Data Repositories: Lesson 13

This document discusses clinical data repositories (CDRs), which systematically store patient-specific data from clinical applications and other systems. CDRs integrate data like demographics, medications, diagnoses and lab results. They allow multiple views of patient records by dimension like time or location. CDRs improve data access across settings. Visualizing data in charts and diagrams simplifies information for decision making.

Uploaded by

Jennifer Ledesma-Pido
Copyright
© © All Rights Reserved
Available Formats
Download as PPTX, PDF, TXT or read online on Scribd
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LESSON 13

CLINICAL DATA REPOSITORIES


LEARNING GUIDE TIME LEARNING
Lesson 13: Clinical Data Repositories ALLOTMENT RESOURCES

Intended Learning Outcomes 1.5 hours Lesson Content:


Lesson 13
13.1. identify the different types of clinical data repositories;
13.2. explain the advantages of having multiple views for
patient medical record; and
13.3. discuss the importance of clinical data visualization.

Self-Directed Activity 2.0 hours


Get a sample of medical laboratory report and write a short
narrative on the results of the laboratory service/s. Make sure
to highlight significant diagram based on the laboratory
results.
Baseline Concept Understanding 30 minutes
Learning Outcomes Assessment 30 minutes
CLINICAL DATA REPOSITORIES

A Clinical Data Repository (CDR) is a systematically structured and gathered


“storehouse” of patient -specific data, which is usually mirrored from a clinical
application, or supplemented with data from other systems.
Common kinds of available information in the CDR are patient demographics,
patient’s primary health provider, medication list, allergies, hospital in-patient visits,
emergency department encounters, outpatient practice visits, immunizations, diagnoses,
procedures, laboratory results, social history, and vitals.
CDR INTEGRATION WITH HIS

There are different levels of integration in the CDR depending on the locations,
indices, catalogues, semantic translations or equivalences, syntactic structures, and
links to external information.
The integration structure from the CDR to the information system in the laboratory
may vary, for example, may be different for radiology and pharmacy department.
TYPES OF CLINICAL DATA REPOSITORIES
REPOSITORY TYPE DEFINITION

Study A database that collects observations for a specific clinical research study.

Electronic Health Record A database of observations made as a result of direct health care.

Observations collected and organized for the purpose of studying or


Registry guiding particular outcomes on a defined population. Associated studies
are either multiple or long-term and evolving over time.

A repository that adds levels of integration and quality to the primary


Warehouse (research or clinical) data of a single institution, to support flexible queries
for multiple uses. Is broader in application than a registry.

A library of heterogeneous data sets from more organizations than a


Collection warehouse or more sources than a registry. Organized to help users find a
particular data set, but not to query for data combined across data sets.

A repository distributed across multiple locations, where each location


Federation retains control over access to its own data, and is responsible for making
the data comparable with the data of other locations.
Multiple Views for Patient Medical Record
The structure of clinical data repositories allows data to be extracted
along dimensions such as time (by year, month, week, or day), location, or
diagnosis among many others.
DATA VISUALIZATION OF LABORATORY RESULTS AND VITALS
Data visualization helps in simplifying a wide array of information, and it allows
decision-makers to derive analytical results from information presented visually.
Figure 13.1 Sample Blood Sugar Level Chart
KEY POINTS TO REMEMBER
 Clinical data repositories (CDR) integrates physician-entered data with data from
different existing information systems including laboratory, radiology, admission, and
pharmacy.
 A CDR is a systematically structured and gathered “storehouse” of patient-specific
data, which is usually mirrored from a clinical application, or supplemented with data
from other clinical systems.
 Repository types include study, electronic health record, registry, warehouse,
collection, and federation.
 CDRs offer a cross-continuum view of information since they allow information to be
gathered and viewed from sources other than an acute setting.
 Data visualization helps in simplifying a wide array of information, and it allows
decision-makers to derive analytical results from information presented visually.

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