DTM 2015 Social Media and Diabullying
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The document discusses the impact of social media on diabetes education and the phenomenon of 'dia-bullying,' where individuals criticize others' management choices without harmful intent. It highlights the role of communities in providing peer support and the importance of addressing psycho-social needs in diabetes care. The author emphasizes the potential of social media as a valuable tool for patient engagement and education, likening it to a powerful medicine while cautioning against its misuse.
DTM 2015 Social Media and Diabullying
- 2. Disclosures MediSelf - Sugar Surfng (facebook.com/sugarsurfng) - Diabetes Education Platform Type 1 Technology Ventures, LLC - Diabetech - Licensees - Telcare, Healthimo, Therakür - Advisory Board Member: Several Startups ™
- 3. The Tired Patient w/ #T1D
- 4. So Much Focus On Data 80 180
- 5. The Promise of Social Media Address Psycho-Social Needs Peer Support Zero Incremental Cost Improved Outcomes? Problem Solved!
- 7. Social Media for Patients Before Twitter there was …
- 8. Peer Group Risk Stratifcation
- 9. Shared Blood Sugar Pooling
- 10. Modal Day w Confdence Intervals aka - “Ambulatory Glucose Profle” (Abbott Libre)
- 11. Fast Forward to 2012 Published online before print February 1, 2012, doi: 10.2337/dc11-1597 Diabetes Care March 2012 vol. 35 no. 3 498-502
- 12. Social Takes Off Facebook.com/StephenPonderMD (Endocrinologist) “Community” of more than 7k people worldwide #4 in the world for Healthcare/Medical Category Education by posts is effective but not optimized “They” asked for a book based on the posts Sugar Surfng was born (workshops, facebook & book) Crowd funded in 2014; now on Amazon.com Enter the Dia-Bullying (DB) Phenomenon #1 Most Engaging Post Since Inception
- 13. Dia-Bullying Defned Criticizing one's approach, terminology or other choices which are not harmful to themselves or others. ““
- 14. Community Testimonial ““For 26 yrs I have dealt with unwelcome advice, opinions, judgement, and suggestions from others about my diabetes. Some of these come from well-intentioned people that I love. Nevertheless they are a consistent source of guilt, frustration, and feeling like a failure.
- 15. Community Testimonial ““ By a doc in SoCal - our visits were a repeated pattern, doc storms in with downloaded meter data for last 2 weeks in hand and struggles to find patterns. Head down, hand in hair, Visibly frustrated, rapid questions delivered interrogation style "what?, what happened here a week ago Tuesday at 10am?" Why? What? Did he eat? Not eat?" "Well, you are kind if a couch potato family"
- 16. Community Testimonial ““ … My endo, on the other hand is a WONDERFUL DOC. He lets me do what I need to do and completely understands that (*& happens and doesn't try to change what's working for me every time I see him).
- 17. Community Testimonial ““ My son's teacher this past year came to me concerned, "I'd really like to see him get control of his blood sugar..." Really?? US too! (It's kind of the most important thing in the world to us...his Diabetes management...we just let him be a little boy first!)
- 18. Community Testimonial ““ … But, there are regular posts which I believe start because people want to help & share methods they are passionate about due to the success they have found, but which can quickly turn to become less than supportive.
- 19. More Than 1 Way From Paris to Rome
- 20. The Future Refer your patients to trusted communities Discuss social interactions at each visit Devices as a gateway to exclusive communities Vetted systems for social interventions Education via peer group mentors/coaches Jerry The Bear - interactive - education - augmented reality Facebook.com/jerrythebearco
- 21. Take Aways Patient Engagement is the next blockbuster drug Social Media can be powerful medicine Like medicine, social media can be abused Ignoring social media creates a void Engage patients with trusted content/referrals At each visit discuss psycho-social experience ™