PERSON CENTRED HEALTH CARE DELIVERY:  e-health as an enabler
Introduction Patient/Person-centred healthcare.  Issues a challenge to the health system and it’s culture Will generate challenges in the IT environment
Today Brief introduction to Patient/Person-centred healthcare.  Two case studies Pregnancy and birth Medication management Consumer Forum and Safe Sharing project Conclusions and Challenges
HISAC will set a direction for the appropriate use of personal health information in the New Zealand health and disability sector.  That direction will be driven by two considerations: patient safety and value for money. We will fulfill our mandate by: Providing independent advice as to the options for investments in the personal health information environment, support the Minister to identify the priority areas, and communicate those priorities to the health sector. Supporting the Ministry of Health, District Health Boards and other health care  organisations  to deliver to the identified priorities. Reporting to the Minister and the sector on progress against those identified priority areas and in particular identifying barriers to implementation and national adoption.
Declaration on patient-centred healthcare (2006) Health systems require the involvement of patients who adhere to their treatments, make behavioural changes and self manage. Cost effective way to improve health outcomes for patients Five principles Respect Choice and empowerment Patient involvement in health policy Access and support Information
HISAC CONSUMER FORUM
HISAC Consumer Forum First Forum in February 2008 because some identified consumer advocates felt the need for a wider reference group. Aim to provide an opportunity for consumer groups and advocates to come together to advise HISAC on community engagement and consumer issues arising from the health care environment. Expressions on interest went out to consumers and their networks – including Consumer Affairs network; groups who had submitted on health information; people with a known interest. 50 people at the first Forum.  Active participation and support from HISAC, Privacy Commission and HDC Currently communicate via a google group; monthly newsletter
Safe Sharing of Health Information
Forum views The forum believed that a consumer awareness programme was required prior to engaging on safe sharing of health information The engagement needed to include health professionals as well as the community Use of existing networks would be a cost effective way of engaging with consumers
Forum Recommendations Add consumer leadership as a driving priority alongside clinical leadership at the front line The Forum continues to monitor and evaluate the engagement process that is implemented and the actioning of any recommendations made A project to scope the current uses of health information with a view to providing this as an ongoing resource that provides information and transparency on current use Run simultaneous research into the effectiveness of sharing electronic health records.
Conclusions Ensure the community understands and supports appropriate use of, and access to, electronically stored personal health information. Understanding doesn’t automatically confer support Clinicians are integral to the development and ongoing use of personal health information solutions. Electronic information will be  centred  around each individual patient/consumer.
Challenges for culture change Move from patronage to partnership Move from patients to people and embrace their complexity Move people who are not health professionals, IT or health managers from the periphery to the centre of patient-centred health care.

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Person Centred Health Care Delivery

  • 1. PERSON CENTRED HEALTH CARE DELIVERY: e-health as an enabler
  • 2. Introduction Patient/Person-centred healthcare. Issues a challenge to the health system and it’s culture Will generate challenges in the IT environment
  • 3. Today Brief introduction to Patient/Person-centred healthcare. Two case studies Pregnancy and birth Medication management Consumer Forum and Safe Sharing project Conclusions and Challenges
  • 4. HISAC will set a direction for the appropriate use of personal health information in the New Zealand health and disability sector. That direction will be driven by two considerations: patient safety and value for money. We will fulfill our mandate by: Providing independent advice as to the options for investments in the personal health information environment, support the Minister to identify the priority areas, and communicate those priorities to the health sector. Supporting the Ministry of Health, District Health Boards and other health care organisations to deliver to the identified priorities. Reporting to the Minister and the sector on progress against those identified priority areas and in particular identifying barriers to implementation and national adoption.
  • 5. Declaration on patient-centred healthcare (2006) Health systems require the involvement of patients who adhere to their treatments, make behavioural changes and self manage. Cost effective way to improve health outcomes for patients Five principles Respect Choice and empowerment Patient involvement in health policy Access and support Information
  • 7. HISAC Consumer Forum First Forum in February 2008 because some identified consumer advocates felt the need for a wider reference group. Aim to provide an opportunity for consumer groups and advocates to come together to advise HISAC on community engagement and consumer issues arising from the health care environment. Expressions on interest went out to consumers and their networks – including Consumer Affairs network; groups who had submitted on health information; people with a known interest. 50 people at the first Forum. Active participation and support from HISAC, Privacy Commission and HDC Currently communicate via a google group; monthly newsletter
  • 8. Safe Sharing of Health Information
  • 9. Forum views The forum believed that a consumer awareness programme was required prior to engaging on safe sharing of health information The engagement needed to include health professionals as well as the community Use of existing networks would be a cost effective way of engaging with consumers
  • 10. Forum Recommendations Add consumer leadership as a driving priority alongside clinical leadership at the front line The Forum continues to monitor and evaluate the engagement process that is implemented and the actioning of any recommendations made A project to scope the current uses of health information with a view to providing this as an ongoing resource that provides information and transparency on current use Run simultaneous research into the effectiveness of sharing electronic health records.
  • 11. Conclusions Ensure the community understands and supports appropriate use of, and access to, electronically stored personal health information. Understanding doesn’t automatically confer support Clinicians are integral to the development and ongoing use of personal health information solutions. Electronic information will be centred around each individual patient/consumer.
  • 12. Challenges for culture change Move from patronage to partnership Move from patients to people and embrace their complexity Move people who are not health professionals, IT or health managers from the periphery to the centre of patient-centred health care.